Re: pain moving around....also hormones / RA sorry this is long but I had alot to say LOL

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, I am so glad I joined this support group. I originally was invited to join a group for RSD and Chronic Pain. I had nothing in common with these people and they all seemed to just complain ALOT. Mostly people with fibromialga and hard to diagnos diseases and alot of depression because of their pain. I just felt out of place, but since joining this group I am learning so much and finding out that everything is not in my head. My husband also has a hard time understanding how I feel. After I had my daughter I got so bad that he had to dress me. I think he understood better then but he talked like I was going to be crippled for the rest of my life and was planning for me to be in a wheel chair. Things have gotten much better since ( thank GOD) and I think he sometimes

forgets. When I have good days and dont complain about anything hurting for awhile and then all of the sudden I have a flare up he tries to figure out what I did or didnt do to cause it and its hard to explain to him that its nothing I did or didnt do its just the disease. I will be very active for a couple of days and then I rest for a couple of days and I feel I can do pretty good if I make sure I get enough rest time in between and he seems to think that if I stay active all the time that I would do better. That tells me that he really doesnt understand the disease. Its so frustrating some time. He thinks I'm crazy when weather affects me too. I think I need to have him start receiving the emails from the group to then maybe he will realize than its not in my head LOL. Its really great chatting with you. You'll have to keep me updated with everything (especially the pregnancy ). Since I got so bad after my daughter my husband doenst want any more kids. But I think I would be fine. I guess I'm ok with not having anymore too though because my kids are 6 years apart already. Thats another subject I should bring up that I'm curious if anybody else and had problems with. When I was pregnant with my son I developed a cyst in my neck, when he was two I had it removed. I figured I was going to be having surgery and be on antibiotics so that would be a good time to stop taking birth control and try to have another baby. A few months after that I stopped having periods completely for about two years. During that two years is when I started having alot more pain that I thought was RA but

wasnt completely sure. I finally when to the doctor and had some blood work done to test for alot of things including tyroid, lupus, and RA. It came back for a normal RA count of 20 and mine was 1510, I was sent to a rheumatologist (that took me months to get in to see but well worth it). I started out by getting gold injections and 20 mg of prednisone. Shortly after I started treatment I starting having periods again. I thought maybe RA had something to do with hormones but my doctor says no. I have always wanted to talk to other people with RA and see if anyone has had anything similar happen to them. Ok this is long enought and my fingers are cramping LOL so I'll take a break. Hope to talk to you again soon " R. Peek" <wendyhollander@...>

wrote: -Sounds like we have the same manifestations - like a ghost inside the body. And yes, my pain will eventually leave one area and move on to another. It's just SO validating to hear someone describe (and be able to read to my husband) almost exactly my experience. This joint pain starts to make you feel crazy in the head. It's the not knowing when/where it will hit next that gives me such a head trip. I think you're right about not moving around. That is what my gut was telling me yesterday when the pain was so severe. Today I have tried to move around quite a bit more since I CAN, but still taking it easy. Drinking Ginger Ale and listening to Pink Floyd. Funny combo, but it's nice on this New Year's Eve.wendy