Re: Other Topic-Severity of ASD-What helped the most.

[Guest guest]

What helped the most? I think it all worked together. In the beginning we

went casein free (caused severe withdrawal for three weeks) then we went

gluten free, and then several months after that, we went soy protein free

(this brought the biggest notice of improvement) He said his first sentence

four days after removing soy. At the same time we used supplementation: a

good multi vitamin/mineral, extra magnesium to get his bowels moving (he has

chronic constipation), melatonin to aid in sleep, DMG, Acetyl-L-Carnitine

(helped in improving speech), anit-frungals, methyl-cobalamine injections,

Epsom salt baths.

We got a bit of a jump start when he was two when he caught his first bout

of pneumonia. He was given shots of Rocefin for two days and then followed

by ten days of oral Omnicef. On the fourth day of this treatment, he sat up

and said every word he had known before regression. I found research that

stated children with autism treated with Vancomycin got better, but once off

the broad spectrum antibiotic they regressed to baseline (this made me cry

when I read it) but my son did not regress all the way back and we were able

to build on what he retained.

In addition, I bought the teaching manual for behavioral intervention for

young children with autism, developed a home program combining this with

Floor-time techniques and worked with my son every day. I was " in his

business " most of the time --not allowing him to zone out. We would watch

Dora and Diego and Blues Clues, and I would talk to him constantly and ask

questions. I made him work for whatever he wanted. In the beginning, it

was always a choice between to things. Two of his first new words were

" This " and " That. " I taught him to point again by doing hand over hand. I

would elicit eye contact by tapping my nose and saying " Look at me right

hear. "

My husband and I gave him lots of praise and hugs and love. For bad

behavior we used an ABA approach. If he threw a tantrum in a store, I just

made sure he was safe and would let him have his tantrum (usually he threw

himself on the ground and kicked and screamed. I just stood there silent

and ignored other5 peoples stares and remarks (most of the time). When my

son got no response, he would tire and stop, and then I would say, " That

kind of behavior will NEVER get you what you want. "

In addition we use incentives (he likes to go places especially to see the

bathrooms, elevators, or escalators). He loves to play on the computer. He

loves to swim, and he loves to go buy something at the dollar store. These

are the things he gets if he has good behavior, and these are the things he

loses if he has bad behavior. If he loses more than one, if he straightens

up, he can earn only ONE thing back by doing extra chores.

If he gets in trouble today, he loses things for today. Tomorrow is always

fresh with no mistakes in it. The only exception to this is Friday

incentive where he has to have good behavior all week to get someplace

special to go to (if I could have a dollar for every big building I've been

to in Dallas to ride the elevator....) But if he has had too many

incidences during the week, then we don't go on Friday (this has rarely

happened).

We went from not being able to go anywhere to being able to go just about

any where. He is 10.5 years old now and very verbal, imaginative,

affectionate, and fun to be with. It is not a straight, smooth road. there

are ups and downs. It is like a roller coaster ride.

He still has health issues (we wound up in the emergency room again

yesterday, but all is okay. We have short conversations now, and my

favorite thing to hear is , " I love you, Mommy. "

When my son was twenty-six months old, he had no words (he did have them

prior to vaccination). He had little to no eye contact, no longer liked to

be held or hugged. Mainstream doctors told us he was " hopeless. " My son is

a testament, I think, to the hope that biomed and behavioral interventions

can produce great results.

There isn't a magic bullet. later, chelation helped, but he has asthmatic

reaction now to that, so we will find another way.

I also taught my son signs (functional: stop, go, eat, drink...) He picked

these up quickly and then I stopped accepting the signs when I knew he could

say the word. Even though my son is very verbal, he is very visual and does

well when he has a picture schedule and knows what to expect next. Our son

learns by watching and then doing or copying from others.

Hope this helps.

Haven

[Guest guest]

I just have a few minutes and will write more later but my son, 2 1/2 yrs., made

the biggest improvements after we went gluten, casein and soy free. In a matter

of a couple of weeks he " woke up " and seemed to notice things with surprise and

a curiosity I had never seen. He's been GFCFSF for around 9 months now. We

also saw a big jump in language after we started him on digestive enzymes

(TriEnza and No-Fenol) with each meal. Before all of this he was similar to

your child and also had severe " reflux " which was due to soy intolerance and his

belly was so bloated he was wearing a 4T in pants when he was 20 months

old...the bloating was resolved after going soy-free and starting the enzymes.

He also just started age appropriate ABA therapy and is going 40 hours a

week...what they've done with him in just 2 months is nothing short of a

miracle.

Michele

>

> I was wondering whether anyone would be interested in joining this discussion

about the severity of ASD in their children and what helped the most.

> My child is 26 months old now and was diagnosed in Feburary of this year when

he was 20 months old. Currently he has no words, doesnt event make a sound, does

not understand that things have names, doesnt call us mama or dada. In a

nutshell he does not make any sound whatsoever.

> He does not point to show us that he wants something. He has some eye contact

but on his own terms. He is not hyperactive. Infact we think he is very

hypoactive. He does not throw tantrums. If we take something away from him, he

whines just a little bit then chooses to forget about it and carries on with

something else. He does not ask us for food. We have no clue when he is hungry

because he will just not tell us in any way. He does chew his food at all and is

not open to new foods or textures. He does not have GI issues. DAN confirmed

that with testing.

> Sometimes he leads us by hand and puts our hand on something that he wants. He

knows to identify the numbers from 1 to 10. Although he doesnt know to count

because he doesnt speak. At the same time, he is unable to tell us where the cat

is in the book, or where the dog is in the book. He can show us

head,ears,eyes,nose,elbow,toes,tummy,butt,arms,legs and knees. So we know he

understands at least that when he ask him to do it. He does bring me toys to fix

if it is not working. He wants to involve me in some engaging games that need

back and forth interaction,not a ball rolling game but a game that i invented to

encourage engagement.

> Please contribute and discuss.

> Regards

> Rochelle

>

[Guest guest]

> I was wondering whether anyone would be interested in joining this discussion

about the severity of ASD in their children and what helped the most.

I have four children, who ranged from mild to very severe. They are all almost

recovered now.

> My child is 26 months old now and was diagnosed in Feburary of this year when

he was 20 months old. Currently he has no words, doesnt event make a sound, does

not understand that things have names, doesnt call us mama or dada. In a

nutshell he does not make any sound whatsoever.

When my #2 son was 4yo, all he did was laugh and cry. He had never made any

other sound. He said his first word at age 6, after 2 years of biomedical.

The first thing that really helped, was digestive enzymes. That was the only

supplement my son tolerated until I started ALA chelation. Chelation allowed my

son to tolerate foods and supplements, and it was the supplements that recovered

him. He had a LOT of issues, so there were quite a number of things that

" helped the most " . For language, he needed anti-fungals, anti-virals, and

B12/TMG/folic [all supplements, nothing requiring rx]. There were other things

that helped with language, but those were the most helpful.

Dana

[Guest guest]

This group and GFCF kids group. 8) Seriously, but when we removed CASEIN (and

started really reading labels for gluten infractions and contents we were

unaware of-example: Rice Krispies), we got SIGNIFICANT results. SPEECH, SPEECH,

SPEECH, and More Speech.

8) He even complained and said " speech " yesterday because he WANTED to go to

speech!!!! Unbelievable! He never wants to go to speech.

(We missed this week and he NOTICED!)

GFCF diet, careful monitoring of his diet and read/read/read those labels.

>

> I was wondering whether anyone would be interested in joining this discussion

about the severity of ASD in their children and what helped the most.

> My child is 26 months old now and was diagnosed in Feburary of this year when

he was 20 months old. Currently he has no words, doesnt event make a sound, does

not understand that things have names, doesnt call us mama or dada. In a

nutshell he does not make any sound whatsoever.

> He does not point to show us that he wants something. He has some eye contact

but on his own terms. He is not hyperactive. Infact we think he is very

hypoactive. He does not throw tantrums. If we take something away from him, he

whines just a little bit then chooses to forget about it and carries on with

something else. He does not ask us for food. We have no clue when he is hungry

because he will just not tell us in any way. He does chew his food at all and is

not open to new foods or textures. He does not have GI issues. DAN confirmed

that with testing.

> Sometimes he leads us by hand and puts our hand on something that he wants. He

knows to identify the numbers from 1 to 10. Although he doesnt know to count

because he doesnt speak. At the same time, he is unable to tell us where the cat

is in the book, or where the dog is in the book. He can show us

head,ears,eyes,nose,elbow,toes,tummy,butt,arms,legs and knees. So we know he

understands at least that when he ask him to do it. He does bring me toys to fix

if it is not working. He wants to involve me in some engaging games that need

back and forth interaction,not a ball rolling game but a game that i invented to

encourage engagement.

> Please contribute and discuss.

> Regards

> Rochelle

>

[Guest guest]

And then there's us who lost significant speech when we took milk away. Wishing

the diet worked for all, but doesn't. Worth a try but if it doesn't work or for

heaven sakes makes them worse, move on.

We got the most speech with TMG early on in chelation, 5 year jump in expressive

speech. For undermethylators, getting them on the appropriate methylator often

jump starts speech.

[ ] Re: Other Topic-Severity of ASD-What helped the

most.

This group and GFCF kids group. 8) Seriously, but when we removed CASEIN (and

started really reading labels for gluten infractions and contents we were

unaware of-example: Rice Krispies), we got SIGNIFICANT results. SPEECH, SPEECH,

SPEECH, and More Speech.

8) He even complained and said " speech " yesterday because he WANTED to go to

speech!!!! Unbelievable! He never wants to go to speech.

(We missed this week and he NOTICED!)

GFCF diet, careful monitoring of his diet and read/read/read those labels.

>

> I was wondering whether anyone would be interested in joining this

discussion about the severity of ASD in their children and what helped the most.

> My child is 26 months old now and was diagnosed in Feburary of this year

when he was 20 months old. Currently he has no words, doesnt event make a sound,

does not understand that things have names, doesnt call us mama or dada. In a

nutshell he does not make any sound whatsoever.

> He does not point to show us that he wants something. He has some eye

contact but on his own terms. He is not hyperactive. Infact we think he is very

hypoactive. He does not throw tantrums. If we take something away from him, he

whines just a little bit then chooses to forget about it and carries on with

something else. He does not ask us for food. We have no clue when he is hungry

because he will just not tell us in any way. He does chew his food at all and is

not open to new foods or textures. He does not have GI issues. DAN confirmed

that with testing.

> Sometimes he leads us by hand and puts our hand on something that he wants.

He knows to identify the numbers from 1 to 10. Although he doesnt know to count

because he doesnt speak. At the same time, he is unable to tell us where the cat

is in the book, or where the dog is in the book. He can show us

head,ears,eyes,nose,elbow,toes,tummy,butt,arms,legs and knees. So we know he

understands at least that when he ask him to do it. He does bring me toys to fix

if it is not working. He wants to involve me in some engaging games that need

back and forth interaction,not a ball rolling game but a game that i invented to

encourage engagement.

> Please contribute and discuss.

> Regards

> Rochelle

>

[Guest guest]

Why do you think removing a food would cause such problems?

> >

> > I was wondering whether anyone would be interested in joining this

discussion about the severity of ASD in their children and what helped the most.

> > My child is 26 months old now and was diagnosed in Feburary of this year

when he was 20 months old. Currently he has no words, doesnt event make a sound,

does not understand that things have names, doesnt call us mama or dada. In a

nutshell he does not make any sound whatsoever.

> > He does not point to show us that he wants something. He has some eye

contact but on his own terms. He is not hyperactive. Infact we think he is very

hypoactive. He does not throw tantrums. If we take something away from him, he

whines just a little bit then chooses to forget about it and carries on with

something else. He does not ask us for food. We have no clue when he is hungry

because he will just not tell us in any way. He does chew his food at all and is

not open to new foods or textures. He does not have GI issues. DAN confirmed

that with testing.

> > Sometimes he leads us by hand and puts our hand on something that he

wants. He knows to identify the numbers from 1 to 10. Although he doesnt know to

count because he doesnt speak. At the same time, he is unable to tell us where

the cat is in the book, or where the dog is in the book. He can show us

head,ears,eyes,nose,elbow,toes,tummy,butt,arms,legs and knees. So we know he

understands at least that when he ask him to do it. He does bring me toys to fix

if it is not working. He wants to involve me in some engaging games that need

back and forth interaction,not a ball rolling game but a game that i invented to

encourage engagement.

> > Please contribute and discuss.

> > Regards

> > Rochelle

> >

>

>

>

>

>

>

[Guest guest]

I our case, we had little serotonin, methionine in milk is needed to make

serotonin, so removing the milk left her with none. Course, I only figured this

out years after it happened. Serotonin is responsible for mood, appetite,

motivation.

She also cried nonstop, not the crying kids do to punish you, there was no

sound, just tears. She was not a milk guzzler, never craved it. We put her on

raw milk (and this during the time the dams! were saying milk carried mercury to

the brain, geesh) and chelated her and she recovered.

The diet is always worth a try for the few stories we hear in which it's removal

makes such a remarkable difference. But the diet for the diet's sake is just

making more work. For a lot of kids it doesn't matter. It certainly doesn't cure

anything.

[ ] Re: Other Topic-Severity of ASD-What helped the

most.

Why do you think removing a food would cause such problems?

> >

> > I was wondering whether anyone would be interested in joining this

discussion about the severity of ASD in their children and what helped the most.

> > My child is 26 months old now and was diagnosed in Feburary of this year

when he was 20 months old. Currently he has no words, doesnt event make a sound,

does not understand that things have names, doesnt call us mama or dada. In a

nutshell he does not make any sound whatsoever.

> > He does not point to show us that he wants something. He has some eye

contact but on his own terms. He is not hyperactive. Infact we think he is very

hypoactive. He does not throw tantrums. If we take something away from him, he

whines just a little bit then chooses to forget about it and carries on with

something else. He does not ask us for food. We have no clue when he is hungry

because he will just not tell us in any way. He does chew his food at all and is

not open to new foods or textures. He does not have GI issues. DAN confirmed

that with testing.

> > Sometimes he leads us by hand and puts our hand on something that he

wants. He knows to identify the numbers from 1 to 10. Although he doesnt know to

count because he doesnt speak. At the same time, he is unable to tell us where

the cat is in the book, or where the dog is in the book. He can show us

head,ears,eyes,nose,elbow,toes,tummy,butt,arms,legs and knees. So we know he

understands at least that when he ask him to do it. He does bring me toys to fix

if it is not working. He wants to involve me in some engaging games that need

back and forth interaction,not a ball rolling game but a game that i invented to

encourage engagement.

> > Please contribute and discuss.

> > Regards

> > Rochelle

> >

>

>

>

>

>

>

[Guest guest]

I think low serotonin might be a problem for our son. The symptom was

anger/aggression and no response to reasoning with him.

The thing is, I think I may already be able to address this problem with lithium

orotate, but I'm not sure. A couple days ago, I was reading that lithium

increases the amount of tryptophan available.

When my son has a symptom, I look at what causes that symptom and things that I

use or have used that effectively address that symptom. Then I look at what I

use and how it affects the causes I have found.

I see that these things are related - lithium levels, blood sugar regulation,

adrenal reserves, and serotonin levels. Problems in any of these areas can

cause aggression in males or depression in females.

> > >

> > > I was wondering whether anyone would be interested in joining this

discussion about the severity of ASD in their children and what helped the most.

> > > My child is 26 months old now and was diagnosed in Feburary of this year

when he was 20 months old. Currently he has no words, doesnt event make a sound,

does not understand that things have names, doesnt call us mama or dada. In a

nutshell he does not make any sound whatsoever.

> > > He does not point to show us that he wants something. He has some eye

contact but on his own terms. He is not hyperactive. Infact we think he is very

hypoactive. He does not throw tantrums. If we take something away from him, he

whines just a little bit then chooses to forget about it and carries on with

something else. He does not ask us for food. We have no clue when he is hungry

because he will just not tell us in any way. He does chew his food at all and is

not open to new foods or textures. He does not have GI issues. DAN confirmed

that with testing.

> > > Sometimes he leads us by hand and puts our hand on something that he

wants. He knows to identify the numbers from 1 to 10. Although he doesnt know to

count because he doesnt speak. At the same time, he is unable to tell us where

the cat is in the book, or where the dog is in the book. He can show us

head,ears,eyes,nose,elbow,toes,tummy,butt,arms,legs and knees. So we know he

understands at least that when he ask him to do it. He does bring me toys to fix

if it is not working. He wants to involve me in some engaging games that need

back and forth interaction,not a ball rolling game but a game that i invented to

encourage engagement.

> > > Please contribute and discuss.

> > > Regards

> > > Rochelle

> > >

> >

> >

> >

> >

> >

> >