Re: Digest Number 1277

[Guest guest]

Hi Sue,

Glad it all worked out so well. May I ask why you chose not to have

Karrie's IQ tested? I personally think it's a great idea to skip the test.

I 've worked as a school psychologist, and I'm pretty familiar with the

tests. I think they are very limited in what they actually measure. Still,

I'm very curious as to your reasoning, especially since the sp. ed director

was so nice about it.

Thanks, Paige

Date: Thu, 15 Aug 2002 19:39:48 -0500

From: " Sue Brown " <karriemom@...>

Subject: Re: New school district

She said I really caught her off-guard

by not wanting Karrie's IQ tested. When I explained my reasoning, she was

very nice about it.

So, I'm happy once again. The roller coaster is on its way back up.

Sue (who has poison oak all over her) mom to Kate 12 and Karrie 6 w/ds

[Guest guest]

I just wanted to thank everyone for sharing their experiences with me. Jen, I

am having the procedure because my doc is concerned about my stomach and

chest pains. He said its probably my body adjusting to the medicine but he

wants to make sure.

AIH, NYC

[Guest guest]

I would like to report that after a 1-1/2 years my husband has finally

succeeded in obtaining Embrel. We used this group as a resource and repeatedly

contacted our human resources and insurance people. Finally 3 days after I

emailed the FDA approval our insurance approved the medication. On Friday

had his first shot and this morning he said it was hard to believe, but this

thumb was less swollen and his psoriases was less itchy. Thanks to everyone in

the group again.

[Guest guest]

In a message dated 8/19/2002 9:54:27 PM Central Standard Time,

donwilhelm@... writes:

> Hi Sue,

>

> Glad it all worked out so well. May I ask why you chose not to have

> Karrie's IQ tested? I personally think it's a great idea to skip the test.

> I 've worked as a school psychologist, and I'm pretty familiar with the

> tests. I think they are very limited in what they actually measure. Still,

> I'm very curious as to your reasoning, especially since the sp. ed director

> was so nice about it.

>

> Thanks, Paige

>

HI Paige

We opted to skip it too with no problems from the administration. Retesting

is to determine if a child still needs sped services. My question at Sara's

IEP meeting was " does anyone here think Sara is NOT MR? " all said " no " so I

stated no testing is needed then Now there are some tests out there that

can measure with more validity if one needs data or info on their child. One

day we might need that but for now we don't

In some places these tests are used for placement decisions, not here thank

goodness but Im not taking any chances, especially for something that doesn't

measure with accuracy.

Kathy mom to Sara 10 ..... I know you didn't ask me heehee but I answered

anyway

[Guest guest]

In a message dated 8/20/2002 9:46:54 AM Central Standard Time, Wildwards

writes:

> Some parents will allow the IQ testing to be done but no total cumlative

> score reported. They use the subtests to identify areas of weaknesses and

> strengths only.

> Cheryl in VA

HI Cheryl

This is what we did when Sara was first tested ....... I was clueless back

then and allowed some pretty inaccurate tests to be done but at least I knew

I did not want the scores inside the school for some to see and make

judgments on her capabilities. My sister is a teacher and she gave me this

advice. She said some Reg Ed teachers will look at the score and freak lol

I must say the test summary gave us a lot of info. I too looked at the ds

part of Sara and not other issues, like auditory processing etc......... the

summery was pretty accurate considering one of the testing tools was an IQ

test.

I would suggest to parents who are in systems that require testing is to

request a test that is more friendly. There are some out there for the non

verbal etc........ if they ever insist on a re-eval this is what we'll do

Kathy mom to Sara 10

[Guest guest]

And that is the reason that I get amanda tested - so I can receive services

from the state - NY that is. And I do get many services that help our family

and be all she can be!

~ Mom to 11 DS and Diabetes Type 1 and 8 NY

[Guest guest]

Well, now, I don't get Maverick tested, but I get services through the

state....and will continue even after he is out of school if needed.

[Guest guest]

Ask your team how the test will help serve your child. What information will be

gained that the team does not already have?

How will the tests provide insight in teaching stategies for the teacher?

Many times for kids with MR, IQ tests are used as a placement barrier and they

provide fodder for stereotypes.

Cheryl in VA

[Guest guest]

Cheryl,

I was told that these tests are necessary for Karrie's future placement.

I think there are many other ways that information about her capabilities can be

gathered, rather than a number that doesn't really signify if she is able to

live in an apt. with supervision.

Sue

[Guest guest]

In a message dated Tue, 20 Aug 2002 9:04:57 AM Eastern Standard Time,

karriemom@... writes:

> I think there are many other ways that information about her capabilities can

be gathered, rather than a number that doesn't really signify if she is able to

live in an apt. with

> supervision.

I don't think we disagree nor do the parents that refuse consent for IQ testing.

There are more elements in determining MR than IQ. IQ, if used, along with

other data the eligibility team has collected, should be for determining what

disability category a child will be labeled, not for grouping students into a

particular class or tract. Some parents will allow the IQ testing to be done but

no total cumlative score reported. They use the subtests to identify areas of

weaknesses and strengths only.

Cheryl in VA

[Guest guest]

in determining MR than IQ. IQ, if used, along with other data the

eligibility team has collected, should be for determining what disability

category a child will be labeled, not for grouping students into a

particular class or tract.

If I were sure, which I guess I could ask, huh?, that this were what the

info was being gathered for, then maybe I might not be so adamant about it.

I know that we agree.

Have you ever heard that I have to have her tested so she can receive

services after she transitions out of school?

Some parents will allow the IQ testing to be done but no total cumlative

score reported. They use the subtests to identify areas of weaknesses and

strengths only

I could see agreeing to this solution!!

Thanks for your help, Cheryl. Sometimes I wonder if we'll ever reach a point

where things are easier!

Sue

[Guest guest]

In a message dated Tue, 20 Aug 2002 10:05:26 AM Eastern Standard Time,

karriemom@... writes:

> Have you ever heard that I have to have her tested so she

> can receive

> services after she transitions out of school?

When students leave school and come under the domain of local and state agencies

that receive federal monies, the regulations that govern those agencies come

into play. Many times in order to have the label MR, in order to qualify for

services available from community, state, and federal agencies, new testing,

including IQ testing, is required. The agencies are not just going to hand out

monies to anyone who claims to be MR, proof will have to be provided in order to

receive services.

Cheryl in VA

[Guest guest]

In a message dated Tue, 20 Aug 2002 11:13:39 AM Eastern Standard Time, Michdock

writes:

> I don't get Maverick tested, but I get services through the

> state....

Different states have different regulations. Check and see what your Department

of Rehabilitation requires when students are in their last year of high school,

before transitioning to the community.

Some people are told people with DS must have IQ and pysch testing done in order

to receive SSI ... it ain't so!

Our local community college required test results done within a year of

admittance to the school. They have now changed that and will take testing from

age 14 and up .... in adolescence is acceptable to them ... before they wanted

testing performed at an adult age ... makes sense, final stage of development

and maturity, probably best score.

Cheryl in VA

[Guest guest]

In a message dated 8/20/02 9:05:52 AM Central Daylight Time,

karriemom@... writes:

> I was told that these tests are necessary for Karrie's future placement.

> I think there are many other ways that information about her capabilities

> can be gathered, rather than a number that doesn't really signify if she is

> able to live in an apt. with supervision.

> Sue

>

> Sue, I agree with you completely. The head teacher of 's private

> school said she had never seen an IQ score used to help a child. I don't

> agree entirely with that, my daughter at one time was not performing up to

> her potential, so I talked to the principal and he said, she had one of the

> highest IQ's in the class, so they pushed her a bit harder. That's not the

> common usage though. never had a test until we wanted to get into

> HCBS. He did have some testing done at age 18 in order to be declared

> disabled, but it was not a standard test. The guy never found out he could

> read and w rite. He asked R. to count and he counted to ten and quit so

> the guy accepted that. I was torn between wanting to blow the

> guy's mind and making sure he got the disability so I told him it wasn't

> too important. He did a lot of laughing in there. That guy didn't have a

> clue. He just assumed that because he had DS he couldn't do anything.

> GRrrrrr.

>

> Jessie, mom of , age 37, the light of my life.

[Guest guest]

They have used 's IQ scores to do a more restrictive placement this year.

I think every parent should be on guard against that especially if they want

inclusive placements for their children. I have given the school a definite

list of my expectations and so far they are cooperating. is still

pretty happy at school. His teacher is not as condescending now as she was at

the IEP last spring. I told them that I expect academics and I've been getting

them along with some mainstreaming and some functional goals. She sent home a

CD with driver's ed stuff on it. Surprise!

Elaine

Re: Digest Number 1277

I don't think we disagree nor do the parents that refuse consent for IQ

testing. There are more elements in determining MR than IQ. IQ, if used, along

with other data the eligibility team has collected, should be for determining

what disability category a child will be labeled, not for grouping students into

a particular class or tract. Some parents will allow the IQ testing to be done

but no total cumlative score reported. They use the subtests to identify areas

of weaknesses and strengths only.

Cheryl in VA

[Guest guest]

is she dyspraxic?

Message: 20

Date: Tue, 10 Sep 2002 16:41:20 -0000

From: " david_j_mead " <david_j_mead@...>

Subject: Re: OT: Handwriting(printing)

My daughter has that limp hand thing going on,too. Funny thing though

she can rip things to shreds when she wants to :-) I don't just mean

paper either!! She has a hard time with buttons, snaps, car door

handles,etc along with writing. She does squeezing exercises(she has

this fish head that when you squeeze it a tongue pops out-things like

that) I am not sure how much it helps. She loves music so she has a

radio/tape player and we get heavy ones so she is getting a little

work out when she lugs it around. I don't know that any of it has

helped her penmanship though! I was probably no help here lol. I

don't know if it makes any difference but her fingers are like triple

jointed,too.

---------------------------------

Get a bigger mailbox -- choose a size that fits your needs.

http://uk.docs./mail_storage.html

[Guest guest]

I am out of the office currently

Legal disclaimer

--------------------------

The information transmitted is the property of the University of Paisley and is

intended only for the person or entity

to which it is addressed and may contain confidential and/or privileged

material. Statements and opinions expressed in this

e-mail may not represent those of the company. Any review, retransmission,

dissemination and other use of, or taking

of any action in reliance upon, this information by persons or entities other

than the intended recipient is prohibited.

If you received this in error, please contact the sender immediately and delete

the material from any computer.

--------------------------

[Guest guest]

Today's digest came as a document that I had to download. WHY???? Anybody

know? Was it because of taht big long article??

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

[Guest guest]

I have no idea Glitter, mine came as it always does. No difference.

Connie

> Today's digest came as a document that I had to download.

WHY???? Anybody

> know? Was it because of taht big long article??

>

>

> " Blind Reason "

> a novel of pharmaceutical intrigue

> Think your antidepressant is safe? Think again. It's

> Unsafe At Any Dose

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I have no idea Glitter, mine came as it always does. No difference.

Connie

> Today's digest came as a document that I had to download.

WHY???? Anybody

> know? Was it because of taht big long article??

>

>

> " Blind Reason "

> a novel of pharmaceutical intrigue

> Think your antidepressant is safe? Think again. It's

> Unsafe At Any Dose

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Thanks so much Dorothy.. It is always great to hear that someone has had the same things happen.

[Guest guest]

At 09:09 AM 10/19/05, you wrote:

>I will be going to the group meeting today for the SWLC is anyone else

>going to this meeting? I also would like know what others think of the

>SWLC?

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

What is the SWLC?

C. 5'1 "

205/145/125

Dr. Watkins

The past is a foreign country, they do things differently there.

L. P. Hartley

[Guest guest]

--- s <dilliner@...> wrote:

> At 09:09 AM 10/19/05, you wrote:

>

> >I will be going to the group meeting today for the

> SWLC is anyone else

> >going to this meeting? I also would like know what

> others think of the

> >SWLC?

>

> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

> What is the SWLC?

> C. 5'1 "

> 205/145/125

> Dr. Watkins

> The past is a foreign country, they do things

> differently there.

> L. P.

> Hartley

>*******************************************

SWLC is the Surgical Weight Loss Clinic in

Tacoma/Auburn with Dr. Fox

cec

>

__________________________________

Music Unlimited

Access over 1 million songs. Try it free.

http://music./unlimited/

[Guest guest]

Hi ,

Guess I forgot to mention that I'm also my primary

breadwinner, and so would HAVE to keep

teaching...hence the wondering if I could keep doing

it question:) Isn't it funny...when I was " younger " I

was scared to death I'd get pregnant & lose my

" freedom " ...now that I've started thinking about it,

maybe I won't be able to (work, worsening of RA, etc)!

I never thought I'd have to think so hard about

this...

Rie

Message: 7

Date: Sun, 09 Oct 2005 02:10:14 -0000

From: " " <catdelouise@...>

Subject: Re: &

Hi Rie,

Unfortunately, I must continue to work full-time, I

guess unless I drop from exhaustion or something! I

am the primary bread-winner, so I don't have much

choice. I am old-fashioned in that I would have loved

to have been a Stay-at-Home mom with 3 kids, but life

didn't work out that way.

__________________________________

FareChase: Search multiple travel sites in one click.

http://farechase.

[Guest guest]

Hi

There are thousands of people for which SSRIs like Prozac etc. are very

helpfull. But there are some with severe sideeffects, thats true. But there

are much more others.

For me such polemical, one-sided and short-sighted mails have to stay out of

this list.

I think all of us are interested enough to go the right way with a patient,

with or without SSRIs.

But doing neurofeedback in a scientific and responsible way does not exclude

SSRIs and other drugs such as ritalin etc. I have good experiences even by

combining the two ways.

best

Cornelia Dollfus, Switzerland

--

Cornelia Dollfus

Dr. med., Ärztin für Psychotherapie und Neurofeedback

Feldeggstr. 12

8008 Zürich

Co-Leiterin Neurofeedback-Institut Schweiz

Mitglied u.a. NAS, i-SNR, AAPB,

SGP, ZGPP, SGIPA; FIPA

Lust, ein paar Euro nebenbei zu verdienen? Ohne Kosten, ohne Risiko!

Satte Provisionen für GMX Partner: http://www.gmx.net/de/go/partner