Re: School right around the corner...how much do you share?

[Guest guest]

,

My son goes to public school. He had 1/2 day kindergarten last year and is

starting 1st grade this year. He is apraxic (99% recovered) and NT after 4

years of bio-med.

I share the least amount possible. The schools know that he is only partially

vaccinated of course and they know he has a peanut allergy. However, other than

that, I say nothing. I didn't even disclose (although it wasn't asked about in

the original enrollment paperwork) that he had 2 years of speech therapy from

age 2-4 as I considered him nearly completely recovered.

Although I generally like the people at the school, I know that they may have

agendas that aren't identical to mine so I feel that my son's medical status

(unless he is contagious) isn't any of their business.

I would only address things if they come up and then in as general terms as

possible.

>

> Our 5 year old was in preschool three days a week for two years and did great,

but I was able to do a lot of dosing around his hours, including chelating right

through Monday around school. Now this year, he will be starting K five days a

week, full time....such a different animal for me! His preschool owner/teacher

was great with my restrictions and I felt comfortable enough sharing our biomed

journey with her, including chelation. She noticed even the slightest nuances

in his behavior and was right on par with me. Now, with a new school and

people, I am leery of who I can trust. Although, the principal knows us somewhat

and knows a little of what we do, not all of it though. It happens to be a

green charter school that my husband is a founding member of and helped get off

the ground.

>

> How much do you guys share with the teachers, school nurse and others? I know

I will have to share the things that need restriction, like diet, not using play

doh and hand sanitizers unless I provide them, and the like - plus they will

know he takes natural antimicrobials, because he will need to be dosed once or

twice while at school (they already assured me that isn't a problem)...but how

much else should I tell them? Mondays are going to be rough, since he will be

transitioning to post round with some yeast overgrowth symptoms and mercury

redistribution. He gets bloating, lethargic and a little emotional. He isn't

labeled as being on the spectrum, he is very bright and very social, but has

major GI issues, yeast and bacteria which can all equate to behavior changes,

mood swings, lowered frustration threshold, and gassiness, lol. Sorry, but it's

true, he is SO gassy on the first day post round, it's embarrassing to go out

with him on Mondays, ha ha. So technically, I don't HAVE to tell them much, and

I don't want THEM labeling him as the problem kid with preconceived notions that

I put in their head, but at the same time, I want them to know how to deal with

him. Where is the balance? I am planning to talk with his teacher and the

school nurse about the antimicrobials and his food and chemical sensitivities at

minimum, I just don't know what else to put on the agenda, if anything.

>

>

>

[Guest guest]

----- Original Message -----

From: epoxycozy

We said nothing either. Ours was in a public school K, 99% recovered (mild

Dyspraxia, so mild the teacher didn't catch it, we did). We said nothing for the

same reason outlined here and it's impossible to ensure that one kid is not

going to be exposed to anything and I didn't want her singled out.

We were lucky in that there were chemically sensitive kids that went before us

(ours was no longer chemically sensitive) and so they only used green cleaning

products, no herbicides on school lawn, etc. The hand sanitizer was in the

classroom and offered to all, but noone was required to use it, we told ours

just to decline which made that easy.

We had no post round complications and I would expect, if I were you that the

emotionality would be magnified as school adds another stress. I would worry

here more about the social ramifications of sending a gassy child to school with

the other kids, to the other kids reacting, more than what to tell the teacher.

,

My son goes to public school. He had 1/2 day kindergarten last year and is

starting 1st grade this year. He is apraxic (99% recovered) and NT after 4 years

of bio-med.

I share the least amount possible. The schools know that he is only partially

vaccinated of course and they know he has a peanut allergy. However, other than

that, I say nothing. I didn't even disclose (although it wasn't asked about in

the original enrollment paperwork) that he had 2 years of speech therapy from

age 2-4 as I considered him nearly completely recovered.

Although I generally like the people at the school, I know that they may have

agendas that aren't identical to mine so I feel that my son's medical status

(unless he is contagious) isn't any of their business.

I would only address things if they come up and then in as general terms as

possible.

>

> Our 5 year old was in preschool three days a week for two years and did

great, but I was able to do a lot of dosing around his hours, including

chelating right through Monday around school. Now this year, he will be starting

K five days a week, full time....such a different animal for me! His preschool

owner/teacher was great with my restrictions and I felt comfortable enough

sharing our biomed journey with her, including chelation. She noticed even the

slightest nuances in his behavior and was right on par with me. Now, with a new

school and people, I am leery of who I can trust. Although, the principal knows

us somewhat and knows a little of what we do, not all of it though. It happens

to be a green charter school that my husband is a founding member of and helped

get off the ground.

>

> How much do you guys share with the teachers, school nurse and others? I

know I will have to share the things that need restriction, like diet, not using

play doh and hand sanitizers unless I provide them, and the like - plus they

will know he takes natural antimicrobials, because he will need to be dosed once

or twice while at school (they already assured me that isn't a problem)...but

how much else should I tell them? Mondays are going to be rough, since he will

be transitioning to post round with some yeast overgrowth symptoms and mercury

redistribution. He gets bloating, lethargic and a little emotional. He isn't

labeled as being on the spectrum, he is very bright and very social, but has

major GI issues, yeast and bacteria which can all equate to behavior changes,

mood swings, lowered frustration threshold, and gassiness, lol. Sorry, but it's

true, he is SO gassy on the first day post round, it's embarrassing to go out

with him on Mondays, ha ha. So technically, I don't HAVE to tell them much, and

I don't want THEM labeling him as the problem kid with preconceived notions that

I put in their head, but at the same time, I want them to know how to deal with

him. Where is the balance? I am planning to talk with his teacher and the school

nurse about the antimicrobials and his food and chemical sensitivities at

minimum, I just don't know what else to put on the agenda, if anything.

>

>

>

[Guest guest]

You have already recieved some good advice here. My girls will be in all day

Kindy (again) this year and other than the dietary restrictions and playdoh, I

have not really said much. I did file for vaccine exemption with the school. I

would only address issues as they come up if your child blends well with others.

My biggest concern was with food. I did take a large filled snack tub up to the

school for days when my girls wanted something different than what I sent. I

also had items in the school freezer like dye free popsicles. The other

children believe my children have " allergies " (and they do according to IgG) so

we haven't even mentioned the GFCFSF diet. Four of the boys in their class have

peanut allergies so kids seem to grasp that concept better anyway. A few of the

moms have asked me more about our diet and I give them just enough info to

satisfy them like we have " tummy troubles " which is also true-reflux,

constipation. I do pack their lunch every day and many of the other NT children

bring their lunch also.

A lot of it will be learn as you go. I did encourage their teacher to please

contact me by cell phone and she did if she had questions/concerns. Make sure

she has your contact info. and you have your cell phone handy. Best of luck to

you!

HTH

Tracey

>

> Our 5 year old was in preschool three days a week for two years and did great,

but I was able to do a lot of dosing around his hours, including chelating right

through Monday around school. Now this year, he will be starting K five days a

week, full time....such a different animal for me! His preschool owner/teacher

was great with my restrictions and I felt comfortable enough sharing our biomed

journey with her, including chelation. She noticed even the slightest nuances

in his behavior and was right on par with me. Now, with a new school and

people, I am leery of who I can trust. Although, the principal knows us somewhat

and knows a little of what we do, not all of it though. It happens to be a

green charter school that my husband is a founding member of and helped get off

the ground.

>

> How much do you guys share with the teachers, school nurse and others? I know

I will have to share the things that need restriction, like diet, not using play

doh and hand sanitizers unless I provide them, and the like - plus they will

know he takes natural antimicrobials, because he will need to be dosed once or

twice while at school (they already assured me that isn't a problem)...but how

much else should I tell them? Mondays are going to be rough, since he will be

transitioning to post round with some yeast overgrowth symptoms and mercury

redistribution. He gets bloating, lethargic and a little emotional. He isn't

labeled as being on the spectrum, he is very bright and very social, but has

major GI issues, yeast and bacteria which can all equate to behavior changes,

mood swings, lowered frustration threshold, and gassiness, lol. Sorry, but it's

true, he is SO gassy on the first day post round, it's embarrassing to go out

with him on Mondays, ha ha. So technically, I don't HAVE to tell them much, and

I don't want THEM labeling him as the problem kid with preconceived notions that

I put in their head, but at the same time, I want them to know how to deal with

him. Where is the balance? I am planning to talk with his teacher and the

school nurse about the antimicrobials and his food and chemical sensitivities at

minimum, I just don't know what else to put on the agenda, if anything.

>

>

>

[Guest guest]

I just told the truth. I wrote a letter to all involved with my son at

school a letter modeled after the one in " Special diets for Special Kids. "

At the ARD meeting I had them put it in there that Ethan was to eat nothing

unless it was provided by his parents. I gave therm some research

information about the gf/cf diet, and I showed them my son's opiate peptide

test.

I know they thought I was " crazy. " anyway with an agreement about the diet

written into the ARD, they have to abide by it. I also got them to agree to

give my son his noon " mash " filled with his supps as his DAN! provided a

letter for that.

Now remember when we started school, my son was completely non-verbal, and

he diagnosed " moderate/.severe. He had some serious staring spells and was

very difficult to keep his attention. He was not potty trained. I pulled

him for the lack of any PPCD program at all. and then brought him back at 3

and a half with one syllable utterances, continued biomed, and by the spring

he was using three word sentences do to going back to ARD and adding in the

removal of soy.

By then they had finally hired a goodhearted, intelligent teacher, who

literally brought him down the hall after school and said, " It's a

miracle. " I said, " Yes, it is, but God helps those who help themselves. He

led to how to help my son, and HE expected me to do the work. I appreciate

you all abiding by our wishes. so then I won over the teacher and the

speech teacher.

But, this is why it has been a struggle in our district to get FAPE for my

son: They kept seeing the child I first brought in there at three years of

age. They had it so ingrained in them that children with autism can't

improve and so they have resisted spending one extra dime on him. I expect

Ethan to soar this year due to what I plan for his year. this year. I will

let you all know as it unfolds

Today, even the nurse agrees with me about the vaccines, but she has to keep

her job, so she does what she is told and has to threaten parents saying

kids can't come back without the shots. Then I catch the parent outside,

and hand them info about conscientious objection..

I have informed many parents about the diet, but sadly, what I here is,

" That would be too hard. " I cannot speak nor judge these parents. I can

only decide for my own, and like so many of us, I took the road less

traveled, and it has made ALL the difference in the quality of life for my

son who is very verbal, high-functioning, and very well behaved now.

Haven

[Guest guest]

Thanks for all the advice girls. I tend to be an overly honest person, so this

is very hard for me...not sharing all of it. I will have to tell them about the

foods and the chemical sensitivities at minimum, but I think I will leave it at

that. If they draw their own conclusions, I will approach the situation(s) as

it occurs.

So, to make matters worse, the people who gave me my comfort level in the first

place have just newly been fired! I'm not exactly sure why, but my husband is

going to submit a resume to become a board of directors member so that he can be

part of the hiring and voting, etc, going forward. We are lucky to have the

respect of many of the other founding members as well as many of the staff

there. My husband felt comfortable with the last meeting, so here we

go...onward, one day at a time, right?

>

> Our 5 year old was in preschool three days a week for two years and did great,

but I was able to do a lot of dosing around his hours, including chelating right

through Monday around school. Now this year, he will be starting K five days a

week, full time....such a different animal for me! His preschool owner/teacher

was great with my restrictions and I felt comfortable enough sharing our biomed

journey with her, including chelation. She noticed even the slightest nuances

in his behavior and was right on par with me. Now, with a new school and

people, I am leery of who I can trust. Although, the principal knows us somewhat

and knows a little of what we do, not all of it though. It happens to be a

green charter school that my husband is a founding member of and helped get off

the ground.

>

> How much do you guys share with the teachers, school nurse and others? I know

I will have to share the things that need restriction, like diet, not using play

doh and hand sanitizers unless I provide them, and the like - plus they will

know he takes natural antimicrobials, because he will need to be dosed once or

twice while at school (they already assured me that isn't a problem)...but how

much else should I tell them? Mondays are going to be rough, since he will be

transitioning to post round with some yeast overgrowth symptoms and mercury

redistribution. He gets bloating, lethargic and a little emotional. He isn't

labeled as being on the spectrum, he is very bright and very social, but has

major GI issues, yeast and bacteria which can all equate to behavior changes,

mood swings, lowered frustration threshold, and gassiness, lol. Sorry, but it's

true, he is SO gassy on the first day post round, it's embarrassing to go out

with him on Mondays, ha ha. So technically, I don't HAVE to tell them much, and

I don't want THEM labeling him as the problem kid with preconceived notions that

I put in their head, but at the same time, I want them to know how to deal with

him. Where is the balance? I am planning to talk with his teacher and the

school nurse about the antimicrobials and his food and chemical sensitivities at

minimum, I just don't know what else to put on the agenda, if anything.

>

>

>