Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 I keep forgetting to sign my name. I'm Susie from Indianapolis. And I'm the one who is taking part in the study. By the way are there any Hoosiers out there? Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 hi, catlady! I think it is really great that you can give this study a try. I have often thought of doing so, however, I still am working full-time and cannot go to medical appts. easily. My question to you is: do you have to go off all your regular meds. in order to participate? gentle hugs! Marcia cat_lady20042003 <cat_lady20042003@...> wrote: Next Wednesday I'm going to start going through a screening process to take part in a study to see if a medicine (to be named) will help treat rheumatoid arthritis. In a way, I'm kind of looking forward to it, because I will be compensated for my time, but in a way I have conflicting feelings about it. The way I understand it the study will determine whether this medicine can be used to treat RA, which if it helps I'm all for it. But on the other hand, I'm a little concerned because of possible side effects. Of course, I know that there is no such thing as a prescription without any side effects. Plus, I know I can always discontinue the study. Sorry to be rambling on. When I find out more information about the study I'll let everyone know. Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 Hi Susie, I'm , From the Kokomo area, north of Indy > > I keep forgetting to sign my name. > I'm Susie from Indianapolis. And I'm the one who is taking part in > the study. > By the way are there any Hoosiers out there? > Susie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Hi, , Nice meeting a fellow Hoosier. I hope your having a great day. Susie --- " bart.tracy@... " <bart.tracy@...> wrote: > Hi Susie, > I'm , From the Kokomo area, north of Indy > > > > > > I keep forgetting to sign my name. > > I'm Susie from Indianapolis. And I'm the one who > is taking part in > > the study. > > By the way are there any Hoosiers out there? > > Susie > > > > > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Marcia, I think I have to discontinue at least the Naproxin and maybe the Plaquenil. I'm not sure about the MTX or folic acid. As soon as I know more, I'll let you know. I was told that I could qualify for a study where they do an infusion to get the prescription in the bloodstream. I'm all for finding something that can help with the arthritis. Susie --- Marcia Stoyle <marciastoyle@...> wrote: > hi, catlady! I think it is really great that you > can give this study a try. I have often thought of > doing so, however, I still am working full-time and > cannot go to medical appts. easily. My question to > you is: do you have to go off all your regular > meds. in order to participate? gentle hugs! Marcia > > > cat_lady20042003 <cat_lady20042003@...> wrote: > Next Wednesday I'm going to start going through a > screening process to take part in a study to see if > a medicine (to be named) will help treat rheumatoid > arthritis. In a way, I'm kind of looking forward to > it, because I will be compensated for my time, but > in a way I have conflicting feelings about it. The > way I understand it the study will determine whether > this medicine can be used to treat RA, which if it > helps I'm all for it. But on the other hand, I'm a > little concerned because of possible side effects. > Of course, I know that there is no such thing as a > prescription without any side effects. Plus, I know > I can always discontinue the study. Sorry to be > rambling on. When I find out more information about > the study I'll let everyone know. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Welcome to the group, ! You reminded me of something I wanted to tell the group. I am a recruiter for the pharmaceutical industry specifically in areas supporting clinical research trials. I was speaking to someone at Centacor who has done a lot w/ Remicade. I told him I have RA and that I was on Humira...anyway he said an injectable Remicade is being worked on but it is " years away " . But still interesting for those like me who are freaked out by the I.V. Eliz > > > I started a study a few weeks back for a Anti-TNF injection, it's a once a week shot. And like Susie's no name yet. Research studies go in phases, the first is usually a double blind study, that means both you and the research will not know if you are receiving the drug or a placebo. I'm in a third phase of a clinical trial, that's means it's open label, everyone in the study gets the drug and they are studying potential side effects on a larger segment of the population. Normally at this point the drug has been determined 'safe' and the dosage has been narrowed down to a effective dosage. My experience so far is good, the swelling is down, my energy is better, not great but better. I even cooked last night! That's a big thing for me. I do have a question: As the swelling went down in your joints, has anyone else experienced itching in their joints? > > Before any participation in a study the research will go over all possible side effects, what the study entails, what is expected of you and any tests. You will get written information about all aspects of the study. It's also a way to get the ultrasounds and MRI's your HMO will not pay for. > > Oh, and I should introduce myself, my name is , I am from California. I've been dx since 2000 at 40, although as someone who had 'growing pains' as a teenager, and never had painfree joints, the dx was only a formality after I could no longer walk in the mornings. I knew I had RA, both my parents had it and my mother died from it. I've been on Mtx since 2000, now at 9 pills a week. If you feel sick after taking Mtx, ask your doctor about taking folic acid with it, folic acid keeps that flu feeling at bay. I am also on Sulindac and the usual other stuff. For those of you who can't decide about taking the Mtx(methotretate), it took at least 3 months for me to see any improvement. So don't stop too soon, it takes time. I know I must have had some side effects during that time, but it took me so long to get a doctor to pay attention I was in fairly bad shape by the time I got on Mtx. Enbrel and Humira were not an option then, so you are lucky today to have them. Although my GP did talk to me about them about two years ago, but that was when they onlyused it for advanced RA. All in all, I consider myself lucky. I only have a few joints that are going visibly bad and my bone damage could be worse. I am still working and hopefully with the injections, I will have another 5 years before I have to look at retirement. Before my Rheumy figured a way around the HMO (gotta love HMO's), I was looking into Disability retirement. Luckily, I have a Rheumy at a research hospital with active RA research going on. > > My goals are to be able to do my artwork again and dance. > > > > > Subject: Re: rheumatoid studies > > I keep forgetting to sign my name. > I'm Susie from Indianapolis. And I'm the one who is taking part in > the study. > By the way are there any Hoosiers out there? > Susie > Quote Link to comment Share on other sites More sharing options...
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