Leg pain

[Guest guest]

Dear Pat in NY

Yes, you are doing it right! Just reply and we can all read your meil And maybe you did not get a response before, because we do not know what to say except we all know that prednisone is a very serious med and we are glad you can get off it. What does your doctor say about the pain?

I have arthritis, and have serious pain with it. I take Glucosamine w/Chronditin(?) and MSM, and if I do not take enough even for one day, I am in great missery. There must be something you can take. On occasion I allow myself a Tylenol with codein, just so I can sleep. But that is a luxury I do not do often because it is bad for my Liver.

[ ] Leg Pain

Hi All,

I have AIH since 8-01. I am presently reduceing my predisone every month and am now down to 1 mg. I ache all over but I want desperatly to be off it. My liver #'s have been great for 8 months now. So from that stand point I can come off pred, but the joints are so painful, and i have these intense pains up and down my legs all day worse at night. I am even reducing my 6mp down to 100mgs. Has any one had leg pains? I jump in baths all night long only to get about 5 minutes worth of relief.

I hope I get a response, I have written in the past but never heard back from anyone. Am I doing this right by hitting reply after reading?

Pat in NY

[Guest guest]

Hi Pat,

My son is 11 and has AIH. He was diagnosed in 11/02 with it along

with Ulcerative Colitis. In the begining of when he was being

diagnosed... his pedi GI kept asking if he had any joint pain...

sometimes it would be there..and sometimes it wouldnt. She indicated

to me when I asked why is she asking about joint pain....said that it

is sometimes a *side effect* of the AIH..and possibly....when someone

has one autoimmune disease...they have another with out knowing they

have it. Rhumetoid Arthritis is another of the top 10 autoimmune

diseases. During sports season he finds himself taking 1 aleeve

about 2 hrs prior to playing...baseball and basketball and soccer.

He did however notice the pain increasing at times when the

prednisone was decreasing. He was on prednisone from 11/02 till

02/04 and 6MP from 01/03 to about 4 weeks ago.

Not sure that is any help..but it is my experience with the pains

thru my son's disease.

Jayne in NH

Mom to Zach 11 yo DX: AIH 11/02, Ulcerative Colitis 11/02, Dairy free

since 12/02

> Hi All,

> I have AIH since 8-01. I am presently reduceing my predisone

every month and am now down to 1 mg. I ache all over but I want

desperatly to be off it. My liver #'s have been great for 8 months

now. So from that stand point I can come off pred, but the joints are

so painful, and i have these intense pains up and down my legs all

day worse at night. I am even reducing my 6mp down to 100mgs. Has any

one had leg pains? I jump in baths all night long only to get about 5

minutes worth of relief.

[Guest guest]

I am almost embarrassed to respond to this list-because when I see what others

are suffering I really have very little to complain about-(are there many others

out there who feel the same?)-my issue with my legs other than tingling quite

often in my feet after walking several minutes (a classic stenosis symptom I

believe) is I get cramps-mainly at night and mainly just before waking up. Very

unpleasant-effecting mainly calves and sometimes hamstrings.

Leg Pain

Hello, I was wondering if any of you have severe leg pain with your

back problems? Thanks and hope you have a pain free day.

Ann Bell

vjeemt2@...

[Guest guest]

Hi :

Stan here in Fort Lauderdale. As far as what to do for leg/foot cramping, you can try Quinine Sulfate (350 mg per capsule). Some pharmacy's require a dr's script and others let you buy it over-the-counter. Two capsules at bedtime should take care of cramping. I had terrible foot cramps until I began taking this Quinine sulfate.

Best,

Stan

[Guest guest]

Jan

I am 43 years old and was diagnosed at 42 with Spinal Stenosis. I also have

scoliosis and disk degeneration. Thank God my pain is not as severe as Im

reading from you and other people. Twi weeks ago I bent over to pick up my

daighhter and have been in pain since.

Reason for this email is that I dont believe 39 is to young, unless 3 years

ca make a big difference (diagnosed at 42.) I would not stop with your

daughter just because a DR said so. If my parents would not of listened to

my Dr long ago, I wouldnt be suffering from scoliosis. Pediatrician ignored

all signs of it. By the time I was diagnosed, I was 6 " 2', fully grown and

in pain. Parents are their childrens best advocates. I wish you pain

relief

Jeff

Leg pain

>

>

> Anne

> I have had severe neuropathy and leg pain for several years and the

> doctor just blamed in on my weight. (Notice a tendency for some

> doctors to do that?) Changed doctors and guess what? Severe lumbar

> spinal stenosis, cord compression and bulging disk, arthritis of

> knees, ankles and hips, the whole ball of wax. My back pain is less

> then some. I can tolerate walking but not standing. The legs are

> really bad. Pain meds don't touch the neurological pain. Balance,

> sensitivity to heat, cold, pressure and pretty much gone. Lots of

> pain sometimes really severe pain. Pain is worse when I am at rest.

> Neurontin helps some. I keep moving, keep walking and keep hoping

> these doctors come up with something that will help. Two of my

> daughters, one 39 yo and one 26yo have severe back problems. Both

> have been told that they are too young for stenosis and to just

> exercise and do therapy. Both have had back injections which have

> helped.

>

>

>

>

>

>

>

>

[Guest guest]

My daughter has her tonsils out in August and is better but like yours still has

mild cycles that include leg pain. Yesterday was one of those days and her legs

hurt bad enough she didn't want to walk until we got Tylenol in her. The other

things that help with leg pain for her is she likes to take a bath in our

Jacuzzi and the heating pad. These things may only provide psychological comfort

I don't know but it helps until the Tylenol kicks in.

Christy

Mom to

4y/o

>>> krob901@... 02/16/05 11:37AM >>>

Hello! I have been a member here for over a year and continue to

get the emails, but rarely post. Ella, my daughter had a

tonsillectomy a year ago and has never had another fever. There are

some months when we can tell she isn't feeling too good, but doesn't

really complain of anything except joint pains.

Except last night she woke up screaming for about 20 minutes with

her leg hurting " on the inside " she said. We thought it was

probably growing pains, but my other children have never cried so

much. She seemed to be in lots of pain. I just wondered if others

experience this after surgery? I just want to make sure this is

something normal for Pfapa children. She has always had joint

pains, but not to this extreme.

Other than that, Ella is doing wonderful after her surgery and we

are so thankful that we had it done!!!

Thanks! mom to Ella 3.5 years old

>

> > Rosemarie-

> >

> > Did Danny have any episodes with milder symptoms since his

surgery? I

> > am

> > asking because Victor just went through what I believe was a

VERY mild

> > episode - his first since the tonsillectomy on 11/29. One

night

he

> > said his

> > head & throat hurt, eyes hurt from light, and he was tired.

He

did

> > not have

> > a fever. The next day the symptoms were gone but he had a

mouth

sore &

> > still no fever. I am sad he still has something going on but

extremely

> > relieved that it was not a full blown episode.

> >

> > Alisha Elischer

> > Victor (8)

> > Re: Update after Tonsillectomy

> >

> >

> > Alisha,

> >

> > I'm so happy for you and I totally understand the whole fear

of

> > " jinxing " !

> > I'm always afraid when I say our son has been fever free

since

his

> > tonsillectomy tow and half years ago! It would break my

heart

to

> > have him

> > start fevering again. It makes me so sad when parents

don't

see

> > total

> > relief after tonsillectomy even though it seems that a

majority of

> > the

> > kids

> > do benefit from the surgery.

> >

> > At any rate, enjoy every fever free day!!

> >

> > Rosemarie

> > Mom to Danny age 10

> > Denver, CO

> >

> >

> >

> > -----------------------------------------------------------------

------

> > -----

> > --

> >

[Guest guest]

In Coconut Cures, Bruce Fife has a section on coconut-based ointments for

tendonitis and sprains.

Nina

leg pain

Does anyone know if CO will do anything for joint pain, tendonitis or

shin splints?

Shane

[Guest guest]

Judy,

I didn't have any painful deep aches...but I also wasn't trying to give

up any meds at a month post op...yikes...that is very soon!

If it feels unusual, or new, or is an increase in pain I would

definitely call your surgeon's office and talk it over. That said, I

know of others reporting a variety of leg pains in the time period

directly following revision. I think at a month I still had a pretty

overwhelming deep exhaustion in my muscles whenever I did my walking!

Take Care, Cam

>

> Just curious, has anyone else experienced a painful, deep ache in the

> leg following revision surgery and did it go away over time? I'm

just

> over a month post op of the second stage of my revision, and this is a

> pretty significant pain I get if I try to skip a dose of my pain

> medication.

>

> Thanks!

> Judy

>

[Guest guest]

Judy,

Geezzz. Everything hurt after a month. I started doing some serious

walking after a few weeks and that brought on tremendous pains in my

butt literally. My gluts and performis were extremely painful most

of the time up until 5 months. If however, you are concerned you

should call your doc.

> >

> > Just curious, has anyone else experienced a painful, deep ache

in the

> > leg following revision surgery and did it go away over time?

I'm

> just

> > over a month post op of the second stage of my revision, and

this is a

> > pretty significant pain I get if I try to skip a dose of my pain

> > medication.

> >

> > Thanks!

> > Judy

> >

>

[Guest guest]

Thanks . I probably should have clarified that there was a bit of time between my first and second stage. I'm three months out from my first stage and a month and a half from the second (anterior) stage. It's good to know that it's not uncommon to have significant pain at this stage, but I still may call my surgeon's nurse.

I start aquatic therapy in a week at his recommendation. I didn't even know there were PTs that do one-on-one water therapy until the other day. I have a lot to learn :-)

Judy

[ ] Re: Leg Pain

Judy,Geezzz. Everything hurt after a month. I started doing some serious walking after a few weeks and that brought on tremendous pains in my butt literally. My gluts and performis were extremely painful most of the time up until 5 months. If however, you are concerned you should call your doc.> >> > Just curious, has anyone else experienced a painful, deep ache in the > > leg following revision surgery and did it go away over time? I'm > just > > over a month post op of the second stage of my revision, and this is a> > pretty significant pain I get if I try to skip a dose of my pain > > medication. > > > > Thanks!> > Judy> >>

[Guest guest]

my local community college offers one-on-one water thearapy with a

doctor's prescription!

> I start aquatic therapy in a week at his recommendation. I didn't

even know there were PTs that do one-on-one water therapy until the

other day. I have a lot to learn :-)

>

> Judy

[Guest guest]

Hi Judy,

It is better to call. Better safe than sorry.

Hopefully you will love water therapy. I thought

it was the best

[Guest guest]

Hi Judy,

Sorry to hear about the leg pain. I had horrible pain in both my

legs, particularly from the knee down for six weeks post op. It

started in the hospital. The doctor really didn't give me an answer

for what was causing it, except that I was stretching muscles know

that I was standing straight and not bending my knees all the time.

He did do a CT scan in the hospital that showed nothing unusual. My

husband and daughters would massage my calves and that helped.

It got to the point that I hated going to bed, because I knew when I

got up during the night it would start hurting again the minute I

got back into bed. Then I'd just count the minutes until I could

take another pain pill. Believe me, I feel your pain...

Surprisingly after 6 weeks it just went away! It was almost an

overnight miracle. I have had no problems since. I swim/walk

regularly and feel wonderful.

Good luck! With healing thoughts....

Dianne

>

> Just curious, has anyone else experienced a painful, deep ache in

the

> leg following revision surgery and did it go away over time? I'm

just

> over a month post op of the second stage of my revision, and this

is a

> pretty significant pain I get if I try to skip a dose of my pain

> medication.

>

> Thanks!

> Judy

>

[Guest guest]

Hi Judy,

Sorry to hear about the leg pain. I had horrible pain in both my

legs, particularly from the knee down for six weeks post op. It

started in the hospital. The doctor really didn't give me an answer

for what was causing it, except that I was stretching muscles know

that I was standing straight and not bending my knees all the time.

He did do a CT scan in the hospital that showed nothing unusual. My

husband and daughters would massage my calves and that helped.

It got to the point that I hated going to bed, because I knew when I

got up during the night it would start hurting again the minute I

got back into bed. Then I'd just count the minutes until I could

take another pain pill. Believe me, I feel your pain...

Surprisingly after 6 weeks it just went away! It was almost an

overnight miracle. I have had no problems since. I swim/walk

regularly and feel wonderful.

Good luck! With healing thoughts....

Dianne

>

> Just curious, has anyone else experienced a painful, deep ache in

the

> leg following revision surgery and did it go away over time? I'm

just

> over a month post op of the second stage of my revision, and this

is a

> pretty significant pain I get if I try to skip a dose of my pain

> medication.

>

> Thanks!

> Judy

>

[Guest guest]

Thanks Dianne. I hope time will tell. I feel like I have to skip a dose of the pain meds in order to really know what's going on in my body, yet with starting pool therapy, my doctor wants me to stick with the regular timed dosing schedule.

Judy

[ ] Re: Leg Pain

Hi Judy,Sorry to hear about the leg pain. I had horrible pain in both my legs, particularly from the knee down for six weeks post op. It started in the hospital. The doctor really didn't give me an answer for what was causing it, except that I was stretching muscles know that I was standing straight and not bending my knees all the time. He did do a CT scan in the hospital that showed nothing unusual. My husband and daughters would massage my calves and that helped. It got to the point that I hated going to bed, because I knew when I got up during the night it would start hurting again the minute I got back into bed. Then I'd just count the minutes until I could take another pain pill. Believe me, I feel your pain...Surprisingly after 6 weeks it just went away! It was almost an overnight miracle. I have had no problems since. I swim/walk regularly and feel wonderful. Good luck! With healing thoughts....Dianne>> Just curious, has anyone else experienced a painful, deep ache in the > leg following revision surgery and did it go away over time? I'm just > over a month post op of the second stage of my revision, and this is a> pretty significant pain I get if I try to skip a dose of my pain > medication. > > Thanks!> Judy>

[Guest guest]

Hi Judy,

Ugh on the leg pain. I wouldn't say I had pain but definitely achy

and thought I had restless leg syndrome. The more I stretch the better

I think its getting. New stiffness in my hips though now too. We are

probably stressing muscles more than we understand. Have fun with the

water therapy.

Best,

Annette in Arlington

" Live Straight! "

[Guest guest]

Hi Annette. I had forgotten about the restless leg syndrome. It's happened twice so far and just started recently, but in a way it was funny because it was like I was having convulsions (the image makes me laugh). Rather than just needing to mildly shake my leg, I felt like I had to jerk my entire body around and since that didn't work, I had to get out of bed. I just started keeping a dairy, because I couldn't remember which meds I took at which time when it happened, and this may help figure out if it's related to one of them.

I went to andria's rec pool the other day. I never realized they have equipment like styrofoam dumbbells and flotation belts that you can help yourself to. It was also nice because they have a wide ramp that leads down into a walking lane of 3.5 ft. Next week, I see the PT in McLean for evaluation and aquatic therapy, but at least I know I can carry on the water exercises locally in-between visits.

I'm sorry about the stiffness in your hips. I always wished there was a local PT who knew first hand how to work with long fusions (not that I would wish this on anyone). I hope the stiffness will work it's way out eventually, though I guess we'll always be stiff in certain places.

New question for anyone out there. How do we know when are fusions are solid? My doctor said my fusion might not take because of osteoporosis, but he said he'd know at the next visit in two months. Is it always clear on an X Ray? He made a comment that sounded like my last X rays. from the visit a few weeks ago, weren't that clear. If I can go somewhere else for digital radiology and that makes for a more detailed film, I'll do it.

Judy

[ ] Re: Leg Pain

Hi Judy,Ugh on the leg pain. I wouldn't say I had pain but definitely achyand thought I had restless leg syndrome. The more I stretch the betterI think its getting. New stiffness in my hips though now too. We areprobably stressing muscles more than we understand. Have fun with thewater therapy.Best,Annette in Arlington"Live Straight!"

[Guest guest]

>

> Just wondered if anyone else experiences pain in the legs when

being lifted at the end of the day. I'm not sure if it's just from

poor circulation (even though I do elevate my legs with the " auto

footrest things " ) . It hurts and I needed to whine a bit.

>

>

> ---------------------------------

> Ready for the edge of your seat? Check out tonight's top picks on

TV.

>

>

[Guest guest]

Thanks for the response. Gosh! I hope it's nothing serious, Let me know what

your doctor says...I won't be seeing mine until mid Sept.

The best to you as well!

Dee <deebug90@...> wrote:

JOY,

I have SMA type 3 my legs hurt me at the end of the day. I put

my feet up in my chair most of the time but then I have to have them

down some also. I think it's poor circulation but it could be more

serious like blood clot, or ressless leg syndrome. I'm seeing my

doctor on Monday my right shoulder has been hurting and I'm going to

tell him about my legs aching also. I hope that helps ya some.Check

with your doctor they may be able to help you not hurt. I wish you

good luck!

deebug90

---------------------------------

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[Guest guest]

Hi,

Neuropathy can also cause leg pain.

Take care

[Guest guest]

hi i m mohini from india,

i am having sma type II, and i do face the same problem of aching in legs and

right shoulder at the end of the day.....and i m sure it is because of the lack

movement in our body.....but i use aayurvedic medicine which help me alot in

maintaning strenth full day....and it is really halpful..

take care

mohini

Dee <deebug90@...> wrote:

>

> Just wondered if anyone else experiences pain in the legs when

being lifted at the end of the day. I'm not sure if it's just from

poor circulation (even though I do elevate my legs with the " auto

footrest things " ) . It hurts and I needed to whine a bit.

>

>

> ---------------------------------

> Ready for the edge of your seat? Check out tonight's top picks on

TV.

>

>

[Guest guest]

" aayurvedic medicine " What exactly is it that you take to help you

Thanks

Terry

> >

> > Just wondered if anyone else experiences pain in the legs when

> being lifted at the end of the day. I'm not sure if it's just from

> poor circulation (even though I do elevate my legs with the " auto

> footrest things " ) . It hurts and I needed to whine a bit.

> >

> >

> > ---------------------------------

> > Ready for the edge of your seat? Check out tonight's top picks on

> TV.

> >

> >

[Guest guest]

aayurvedic medicine means herbal medicine....which is very famous in

india......and it really give u strenth.......it is powder of herbals which u

shoud mix wid honey n u have to take it twice a day wid cup of milk....and it

cost rupee 2000/- p.month..

yrs mohini

---------------------------------

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[Guest guest]

Hi !

 

I am so glad you posted because I have had pain in my right calf for nine years

now. I have two herniated disc and spondylolthesis on L4 and L5. I am in

constant pain! I actually had to go to the ER on Friday night because the pain

was so bad!

 

I bet you have the samething again and I would get another doctor that is

willing to take the time with you because only you know your pain!

Dawn E.

I would rather be hated for who I am

than to be like for who I am not ~Author Unknown

From: <sessions.jennifer@...>

Subject: leg pain

spinal problems

Date: Sunday, January 18, 2009, 11:27 PM

Hi everyone,

I have been having terrible leg pain - my last MRI a few months ago

showed my 2 collapsed discs and 2 more on the way to collapsing, but

the neurosurgeon said he couldn't see a reason for leg pain. At the

time I saw him a few months back, the leg pain was not as bad as it is

now - almost every time I take a step it's like an electric shock down

into my left calf. I had a pinched nerve back in 2002 which this doc

operated on and I have not had leg pain again until now. I think I may

need to have another scan but have not been back to see my doc yet.

Any thoughts?

Thanks.

Jenn

[Guest guest]

That leg pain takes you down, doesn't it??!! I about could not walk

the other day & almost went to the ER myself, but I have a 3 yr old

and an 11 month old so I didn't. I have degenerative disc disease

which causes terrible back pain but also leg pain, and I've been

dealing with it for almost 10 yrs too. You're right - I need to maybe

see another doc. Same with my pain specialist - he does not seem to

care anymore. Maybe he's jaded, or frustrated that I continue to be

in pain, but so am I!!!! Thanks for the reply.

Jenn

>

> Hi !

> �

> I am so glad you posted because I have had pain in my right calf for

nine years now. I have two herniated disc and spondylolthesis on L4

and L5. I am in constant pain! I actually had to go to the ER on

Friday night because the pain was so bad!

> �

> I bet you have the samething again and I would get another doctor

that is willing to take the time with you because only you know your pain!

>

>

> Dawn E.

> I would rather be hated for who I am

> than to be like for who I am not ~Author Unknown

>

>