Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 , Relax...it'll be okay! I have to say that changing a child's diet is one of the most difficult choices...probably worse than medication! But with some advance planning and resourcefulness, you can change a child's diet and provide him/her with really good substitutions. I make macaroni and cheese using rice pasta elbows and a really good cheesy sauce using tofu American cheese slices (there is a trace of casein in the slices). Anyone whose child misses this dinner, let me know and I will write it out. I can make him pizza using a mix from the Gluten-free pantry. (Here's the link to this mail-order company): <A HREF= " http://www.glutenfree.com/ " >Gluten-Free Pantry</A> And he eats hamburgers from Burger King (with the bun taken off). Cookies are easy to substitute with the right " flour " combinations. In the beginning I wasted LOTS of food trying to find things that were remotely palatable. Now I have a pretty good routine. But don't give up. I don't know what Dr. Goldberg's current dietary recommendations are, but when I started with him almost three years ago, I simply removed whole grain and dairy. I have since gone gluten and dairy free. The gluten was a big culprit in my son's llife. Removing it has made a big difference in ability to focus and communicate. This may not be the case for all children, but some of theses food products can mess up their immune systems... big time! I feel I have rattled on and on. I will stop, but first want to encourage you to check out this website for helpful and practical advice on adjusting to a change in your child's diet. <A HREF= " http://members.aol.com/lisas156/gfpak.htm " >Dietary Interventions in Autism </A> Print it out but load the printer because it is long (even longer than my run-on letter her!! HA HA). Good luck and keep writing for support!! Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 OK everyone... I am not Child, so wish me luck explaining (and much better luck to you for cooking!!) Gluten and practically-casein- free Macaroni & Cheese This may take some preparation on food ordering, and hopefully you'll be able to find all the products, so here it goes: Rice Elbows (I order them from Food For Life Baking Company. I order an entire case which is about $25. Phone: 1-800-797-5090. I'm sure there are other rice elbow suppliers out there; this one just tastes really close to wheat macaroni). American flavor Veggie Slices from Galaxy Foods. I find them in the produce section, but sometimes they are with the real cheese slices. I get these from local supermarkets. Here is their website which lists stores that sell their products: <A HREF= " http://www.galaxyfoods.com/ie_splash.html " >Galaxy Foods - Nature's Dairy Alternatives </A> Rice Dream, plain flavor The rest of the ingredients you probably have at home: salt, pepper, margarine, garlic powder, corn starch OK... I don't " measure " so I will guess the approximate amount to make this. Boil water. Cook " a serving size " of macaroni. Personally I have found that the package instructions recommend cooking less than what my son likes, so be your own judge on the degree of doneness. A " serving size " is about 6 oz for my 60-pound 8-year-old. SAUCE: Over a low burner, melt about 2 TBSP. of margarine with about 2 TBSP of Rice Dream and 3 slices of Veggie Slices/American cheese flavor. Using a whisk, mix until all is melted. Add salt and pepper and garlic salt to taste. Then add about 1 1/2 tsp. of corn starch to help thicken up the sauce. Keep whisking over a low burner until it's the consistency of a nice cheese sauce. Be careful not to add too much Rice Dream or Margarine because it won't be creamy at the end. Mix cheese sauce with macaroni and pray to God that your kid won't poo-poo it after all the effort buying all these ingredients from the entire planet. Please let me know if this recipe doesn't make sense and I will try to modify it. GOOD LUCK!! Becky P.S. Yes, I think sharing recipes would be wonderful! The gluten free pantry (a link given earlier, but here it is again, <A HREF= " http://www.glutenfree.com/ " >Gluten-Free Pantry</A> ) has really terrific pretzels, crackers, and mixes. A little pricey, but the food is really very good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 , Which parts of the diet do you find most restrictive? Other than avoiding dairy and any foods my son was allergic to, and adjusting his diet away from excessive carbohydrates (hard to do, I know!), my son eats relatively normally. Can you tell me where in the web site the diet info is found? Thanks! Sandy On 12 Apr 99 D. ( D. <onelist>) wrote: > From: " D. " <ryankd@...> > > Help! I just visited Dr. Goldberg's site and the section on diet > really shocks me! I mean, do ALL autistic children need to follow > this diet? Do all of you have experience with the diet? My > neurologist never mentioned this to me. I must say, I'm somewhat > depressed. First, they tell you that your child is going to have a > difficult time trying to lead a normal life, then they tell you she > can't eat practically ANYTHING. What a blow. > > > -------------------------------------------------------------------- > ---- Has ONElist changed your life? http://www.ONElist.com Visit our > homepage and share with us your experiences at ONElist of the Week! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 To find the diet, go to " Articles " ,then go to " Autism " ,then go to " Diet Do's and Don't's " . Re: diet From: " SandyD " <sandy@...> , Which parts of the diet do you find most restrictive? Other than avoiding dairy and any foods my son was allergic to, and adjusting his diet away from excessive carbohydrates (hard to do, I know!), my son eats relatively normally. Can you tell me where in the web site the diet info is found? Thanks! Sandy On 12 Apr 99 D. ( D. <onelist>) wrote: > From: " D. " <ryankd@...> > > Help! I just visited Dr. Goldberg's site and the section on diet > really shocks me! I mean, do ALL autistic children need to follow > this diet? Do all of you have experience with the diet? My > neurologist never mentioned this to me. I must say, I'm somewhat > depressed. First, they tell you that your child is going to have a > difficult time trying to lead a normal life, then they tell you she > can't eat practically ANYTHING. What a blow. > > > -------------------------------------------------------------------- > ---- Has ONElist changed your life? http://www.ONElist.com Visit our > homepage and share with us your experiences at ONElist of the Week! ------------------------------------------------------------------------ Start a new hobby. Meet a new friend. http://www.ONElist.com ONElist: The leading provider of free e-mail list services! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 , I went over the do's and don't article - it's really not as intimidating as it sounds. To sum it up: Increase protien and fiber consumption, decrease empty calories (sugar promotes yeast in the digestive tract). Avoid allergens (stuff your kid is allergic to) and some of the stuff that a larger percentage of the population is allergic to (whole grains contain the proteins that cause the allergies, thus avoid whole grains but processed grains are safer because the proteins have been stripped away). Avoid certain additives like BHT, red dye, lots of people have problems with these, not just autistics. It really isn't as difficult as it sounds! There are lots of substitutes available, depending upon what your child's allergies are. Best wishes, Sandy On 12 Apr 99 D. ( D. <onelist>) wrote: > To find the diet, go to " Articles " ,then go to " Autism " ,then go to > " Diet Do's and Don't's " . > > Re: diet > > From: " SandyD " <sandy@...> > > , > > Which parts of the diet do you find most restrictive? > Other than avoiding dairy and any foods my son was allergic to, and > adjusting his diet away from excessive carbohydrates (hard to do, I > know!), my son eats relatively normally. Can you tell me where in > the web site the diet info is found? > > Thanks! > Sandy > > > On 12 Apr 99 D. ( D. <onelist>) > wrote: > > > From: " D. " <ryankd@...> > > > > Help! I just visited Dr. Goldberg's site and the section on diet > > really shocks me! I mean, do ALL autistic children need to follow > > this diet? Do all of you have experience with the diet? My > > neurologist never mentioned this to me. I must say, I'm somewhat > > depressed. First, they tell you that your child is going to have a > > difficult time trying to lead a normal life, then they tell you she > > can't eat practically ANYTHING. What a blow. > > > > > > -------------------------------------------------------------------- > > ---- Has ONElist changed your life? http://www.ONElist.com Visit our > > homepage and share with us your experiences at ONElist of the Week! > > > > -------------------------------------------------------------------- > ---- Start a new hobby. Meet a new friend. http://www.ONElist.com > ONElist: The leading provider of free e-mail list services! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 Me! Me! I want the Mac n Cheese recipe! Sandy P.S. Perhaps others here could post their favorite recipe for " our kids " ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 our son who was diagnosed " severely autistic " 3 yrs ago and who now shows no real signs thankfully follows no special diet at all. he eats dairy,etc. We have improved his eating habits over the last couple of years, but I can truly say his diet had little to nothing to do with his changes. He was tested for allergies early on, and we were cautioned to stay away from a few things but no big deal. I'd say that is worth checking, but I don't think anyone is saying all " a " kids should be on particular diets. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 Dear - I understand your shock over the diet section -- it was my initial reaction at first, too, that and yet another sense of being overwhelmed. However, I would encourage you to at least do some more reading about it and possibly some additional testing. Our son is 7. From the time he was 4 till he was 6 he was on a casein-free (no dairy) and gluten-free (no wheats, oats, barley or rye) diet (and at the same time his baby brother was allergic to eggs -- there were many days when I was practically tearing my hair out trying to figure out how to put something on the table that everyone could eat!). When we put on the diet restrictions initially, he was having 4 to 5 temper tantrums a day, each lasting between 45 minutes and 2 hours, during which time he pretty much had to have an adult supervising him so he didn't hurt himself or destroy the house. Within 3 weeks on the diet, he basically had no tantrums at all (certainly none more than 5 minutes or so duration). So - it was an incredible hassle to be managing the food, but our life as a family changed dramatically when we were able to reduce 's tantruming. is still dairy-free, citrus-free and peanut-butter-free (he tested allergic for all those) and though we don't maintain it perfectly all the time (it's tougher as the kids get older and are around other children so much) it has definitely helped him. My suggestion would be to do some more reading, do some thinking, and for you and your child you'll have to weigh the possible improvements/benefits versus the hassle. Take it a step at a time and it's easier. If you decide to go with the diet restrictions, there are a lot of resources to help and it is possible to get into habits that while overwhelming at first can soon be mangeable. Good luck! --Kathleen McClatchey Whiteman-- >From: " D. " <ryankd@...> > >Help! I just visited Dr. Goldberg's site and the section on diet really >shocks me! I mean, do ALL autistic children need to follow this diet? Do >all of you have experience with the diet? My neurologist never mentioned >this to me. I must say, I'm somewhat depressed. First, they tell you >that your child is going to have a difficult time trying to lead a normal >life, then they tell you she can't eat practically ANYTHING. What a blow. > > >------------------------------------------------------------------------ >Has ONElist changed your life? >http://www.ONElist.com >Visit our homepage and share with us your experiences at ONElist of the Week! >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Kathleen J. McClatchey (Whiteman) kjm@... Executive Communications office phone: (734) 763-8190 Office of the Chief Information Officer fax: (734) 764-3988 5085 Fleming Administration Building cell phone: (734) 358-5122 University of Michigan home phone: (734) 944-1828 Ann Arbor, MI 48109 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 , I know the info on Dr. Goldbergs web page is overwhelming, but once you see the difference it can make, you will not think of it as being difficult, but rather a little work for a big difference. You will also notice that the diet is important, but it is just one part of a total package. Continue reading the information and I also suggest going through one of the presentations he has done and posted as well. It does not suprise me that your Dr. did not mention this to you. After doing some reading, you will notice that this is not new. On the other hand it is not widely used do to the fact that the tools have not been there in the past prove the results. They are now. We had a hard time finding a doctor in Indiana to work with us and Dr. Goldberg. They were not saying it was bad, in fact many agreed with what he was saying, but it was not " medical protocal " and therefor they would not touch it. The Dr. that is working with us was reluctant at first, but know he doesn't even ask why Dr. Goldberg wants this or that, he says he will do anything the Dr. wants as long as Tyler continues to progress like he is. diet From: " D. " <ryankd@...> Help! I just visited Dr. Goldberg's site and the section on diet really shocks me! I mean, do ALL autistic children need to follow this diet? Do all of you have experience with the diet? My neurologist never mentioned this to me. I must say, I'm somewhat depressed. First, they tell you that your child is going to have a difficult time trying to lead a normal life, then they tell you she can't eat practically ANYTHING. What a blow. ------------------------------------------------------------------------ Has ONElist changed your life? http://www.ONElist.com Visit our homepage and share with us your experiences at ONElist of the Week! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 I have responded to a few people on this- I frankly didn't know it went to everyone the way it does-anyway, I think Goldberg was 70% of it-we tracked his changes over the last 3 1/2 yrs. since he's seen him-when he began taking Kutapressin, an immune booster, we noticed a big difference and we think it continues. Froma therapy standpoint, we tried it all. Lovass is NOT it. Greenspan from a theoretical standpoint is where it is-from a practical point, the Koegel's at UC Santa Barbara were wonderful-we saw them for 3 yrs. They find what motivates a child and teach them to initiate. It's obviously much more complicated, but it worked well. Their approach is the answer to therapy. We decided not to " go public " with our story becasue we don't think it's fair to our son. Anyway, if you'd like to discuss this for your personal use, you can call me at 404-355-4511 and i'll talk about the details. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 Dear C. Wither, What would you say helped your child the most if it was not the diet. I, too, agree with your observation regarding diet. You can e-mail privately if you would like. thank you for sharing... marilu schmier CWither43@... wrote: > > From: CWither43@... > > our son who was diagnosed " severely autistic " 3 yrs ago and who now shows no > real signs thankfully follows no special diet at all. he eats dairy,etc. We > have improved his eating habits over the last couple of years, but I can > truly say his diet had little to nothing to do with his changes. He was > tested for allergies early on, and we were cautioned to stay away from a few > things but no big deal. I'd say that is worth checking, but I don't think > anyone is saying all " a " kids should be on particular diets. > > ------------------------------------------------------------------------ > Has ONElist changed your life? > http://www.ONElist.com > Visit our homepage and share with us your experiences at ONElist of the Week! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 Lenny Please check out this website and order the French Bread/pizza mix. It is very good (my son gobbles it up!). Let me know if you have more questions. Becky P.S. Order the $1 recipe book for that product too. I make my dough in a breadmaker. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 1999 Report Share Posted April 14, 1999 Here's my favorite recipie for gluetin-free hotcakes/pancakes: Equal parts soy flour, brown rice flour and either quinoa or amarath flour (health food stores and $$$). Mix into same volume of water (or soy milk, rice milk). Sugar substitute to taste. Add baking soda until you get a quick rise on the griddle. (You'll have to experiment as the mix of flours give different results. I also add some artificial butterflavoring, again to taste. I use a telfon-like griddle so I don't add oil, but you can. And here's the kicker: I make it for me, and not my son! When I tried diet for him, I went on it too, just to make cooking meals easier -- and to model it for him. It didn't do a thing for him, but I FELT GREAT! ha! I found out I'm somewhat alergic to wheat, dairy etc. and I feel great if I don't eat much of it. So he eats some wheat and dairy and I generally avoid it. How's that song go... " Isn't it ironic... " -lenny Izak's dad ps. I sure do miss pizza (and pasta), though > Re: diet > > > From: " SandyD " <sandy@...> > > Me! Me! I want the Mac n Cheese recipe! > > Sandy > > P.S. Perhaps others here could post their favorite recipe for " our > kids " ? > > > > > ------------------------------------------------------------------------ > Start a new hobby. Meet a new friend. > http://www.ONElist.com > ONElist: The leading provider of free e-mail list services! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 1999 Report Share Posted April 14, 1999 I must be a terrible parent of a child with autism. My 18-year-old is on no diet or medication whatsoever! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 1999 Report Share Posted April 14, 1999 What constitutes " excessive carbohydrates? " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 1999 Report Share Posted April 14, 1999 BECKY, THAT WAS AN EXCELLENT RESPONSE TO KIMBERLY. I WOULD LIKE TO HAVE THE RECIPE FOR MACARONI AND CHEESE. MY DAUGHTER LOVES IT, BUT WE ONLY LET HER HAVE IT OCCASSIONALLY, BECAUSE OF DR. GOLDBERG DIET. Re: diet >From: Monday506@... > >, >Relax...it'll be okay! I have to say that changing a child's diet is one of >the most difficult choices...probably worse than medication! But with some >advance planning and resourcefulness, you can change a child's diet and >provide him/her with really good substitutions. I make macaroni and cheese >using rice pasta elbows and a really good cheesy sauce using tofu American >cheese slices (there is a trace of casein in the slices). Anyone whose child >misses this dinner, let me know and I will write it out. I can make him >pizza using a mix from the Gluten-free pantry. (Here's the link to this >mail-order company): ><A HREF= " http://www.glutenfree.com/ " >Gluten-Free Pantry</A> And he eats >hamburgers from Burger King (with the bun taken off). Cookies are easy to >substitute with the right " flour " combinations. In the beginning I wasted >LOTS of food trying to find things that were remotely palatable. Now I have a >pretty good routine. > >But don't give up. I don't know what Dr. Goldberg's current dietary >recommendations are, but when I started with him almost three years ago, I >simply removed whole grain and dairy. I have since gone gluten and dairy >free. The gluten was a big culprit in my son's llife. Removing it has made a >big difference in ability to focus and communicate. This may not be the case >for all children, but some of theses food products can mess up their immune >systems... big time! > >I feel I have rattled on and on. I will stop, but first want to encourage you >to check out this website for helpful and practical advice on adjusting to a >change in your child's diet. ><A HREF= " http://members.aol.com/lisas156/gfpak.htm " >Dietary Interventions in >Autism ></A> Print it out but load the printer because it is long (even longer than >my run-on letter her!! HA HA). > >Good luck and keep writing for support!! Becky > >------------------------------------------------------------------------ >Looking for the perfect gift for a friend? >http://www.ONElist.com >Tell them about ONElist's 115,000 free e-mail communities! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 1999 Report Share Posted April 14, 1999 kimberly, the diet is not that restricted, you will get the hang of it. just stay away from dairy products and whole wheat mainly. our daughter eats mcdonalds and arbys about every day. she only eats the meat, though. no buns. she is now healthy. it may not sound like the best diet, but our daughter is healthy now and a big part of it goes to goldberg. she also gets her fruits and vegetables everyday. don't get depressed!! i heard something the other day that said that maybe we might be special people, because we were trusted in raising these children. i have a web site you might be interested in looking into. it is a institute that helps with autism and other disabilities. the web site is www. option.org good luck mike and donna diet >From: " D. " <ryankd@...> > >Help! I just visited Dr. Goldberg's site and the section on diet really shocks me! I mean, do ALL autistic children need to follow this diet? Do all of you have experience with the diet? My neurologist never mentioned this to me. I must say, I'm somewhat depressed. First, they tell you that your child is going to have a difficult time trying to lead a normal life, then they tell you she can't eat practically ANYTHING. What a blow. > > >------------------------------------------------------------------------ >Has ONElist changed your life? >http://www.ONElist.com >Visit our homepage and share with us your experiences at ONElist of the Week! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 1999 Report Share Posted April 14, 1999 Nobody is a terrible parent if they are on these lists. That is step one. Step 2: visit www.autism.com/ari That will get you started. Read about DMG first. It tastes good and is easy to take chewable or better yet sublingual. you don't have to do vitamins, most of us just want to try to make things better and will try *anything* to see improvement. Last night on our local news a 33 year old autistic man was shown being abused by the director of a group home. She was giving him a " shower " nude in the yard with a garden hose. It was on video. I almost barfed my dinner. Sad things like this is my inspiration to find a better way. Most doctors are apathetic, indifferent and ignorant. It is up to us parents who have a vested interest in helping our children. I cannot just sit and hope he will outgrow it. I am actively trying to find a cure, short of that, effective treatment is next best. ~ Re: diet >From: Virri345@... > >I must be a terrible parent of a child with autism. My 18-year-old is on no >diet or medication whatsoever! > >------------------------------------------------------------------------ >Looking for a new hobby? Want to make a new friend? >http://www.ONElist.com >Come join one of the 115,000 e-mail communities at ONElist! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 As far as the benefit of seeing Dr. Goldberg, it is well worth the cost. For us it is the best thing we did for my son. Look at it as an investment in your child's potential. My only regret is that I did not know about Dr. Goldberg sooner. We first saw Dr. G. when was 6, and he was diagnosed right before he turned 3. When first saw Dr. G, he was starting to repeat kindergarten with some time in special ed. and some time in regular class. During that repeat year of kindergarten, he was doing so much better under Dr. G's care that caught up on the first grade work, and the following year he was placed in second grade. This year in third grade doing regular third grade work he has gotten all A's and B's except for one C. We have been thrilled. has great potential. We are not " recovered " , but have had super progress. I could probably have been better, if we had started sooner! Remember also with Dr. G., he will follow up with your child more closely than any other Dr. - You give weekly fax updates, with feedback from him. He will do phone consultations with you. He also goes to NYC for appointments, with may or may not be as expensive as LA. He is so dedicated to helping these kids, that its amazing. As far as the diet, it's not that hard. (We do not go the harder route of gluten-free as some parents do.) We use Rice Dream rice milk (found with the natural products, un-refrigerated section of grocery store). We just avoid high sugar content, not all sugar. We don't use a lot of sugar substitutes, I think is sensitive- he gets hyper from them. My son is also very picky, but has gotten less picky since following this diet. Now he will eat meat of any kind and he eats vegetables, before he only would eat peanut butter sandwiches (still a mainstay of his school week lunches), chicken nuggets, and hot dogs. We use Gatorade for a juice because there is less sugar, and is not real keen on water. eats popcorn, but you might need to watch for the hidden dairy in some-butter solids. We had better luck with Natural (vs butter flavor) microwave popcorn. Good Luck! :-) diet From: " D. " <ryankd@...> Thanks to all for their input. I really do appreciate all of your comments. I've decided to try the diet and I'm strongly considering taking my daughter to LA to see Dr. Goldberg. I have not shopped yet for the diet. Are there things that I might have here in my home that I might be able to start my daughter on? She's a picky eater. What about light popcorn or hot dogs? Do you just supplement your children with a multivitamin or certain ones? Isn't anyone concerned about these children getting too much nutrasweet? Nutrasweet or aspartame seems the only way to make this work. My grandmother lives with me and is on dialysis and on a renal diet. She cannot have milk products either, and on her cereal, she uses coffee rich (non-dairy creamer). I gave some of this to my daughter to drink and she liked it. Do you think that was a good choice? How soon can I expect to see results? The office visit alone to see Dr. Goldberg is $395, besides lab tests, travel from St. Louis, and lodging. Those of you with experience with him can you help me to weigh the benefits of seeing him with the risks of not seeing him? Thanks, in advance, for your kind replies. Kim/MO ------------------------------------------------------------------------ New hobbies? New curiosities? New enthusiasms? http://www.ONElist.com Sign up for a new e-mail list today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Kim - I can say from our perspective that all the hassle and expense of going to see Dr. Goldberg was well worth it. --Kathleen-- >From: " D. " <ryankd@...> > >Thanks to all for their input. I really do appreciate all of your comments. > >I've decided to try the diet and I'm strongly considering taking my >daughter to LA to see Dr. Goldberg. > >I have not shopped yet for the diet. Are there things that I might have >here in my home that I might be able to start my daughter on? She's a >picky eater. What about light popcorn or hot dogs? Do you just >supplement your children with a multivitamin or certain ones? Isn't >anyone concerned about these children getting too much nutrasweet? >Nutrasweet or aspartame seems the only way to make this work. My >grandmother lives with me and is on dialysis and on a renal diet. She >cannot have milk products either, and on her cereal, she uses coffee rich >(non-dairy creamer). I gave some of this to my daughter to drink and she >liked it. Do you think that was a good choice? How soon can I expect to >see results? > >The office visit alone to see Dr. Goldberg is $395, besides lab tests, >travel from St. Louis, and lodging. Those of you with experience with him >can you help me to weigh the benefits of seeing him with the risks of not >seeing him? > >Thanks, in advance, for your kind replies. > >Kim/MO > > >------------------------------------------------------------------------ >New hobbies? New curiosities? New enthusiasms? >http://www.ONElist.com >Sign up for a new e-mail list today! >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Kathleen J. McClatchey (Whiteman) kjm@... Executive Communications office phone: (734) 763-8190 Office of the Chief Information Officer fax: (734) 764-3988 5085 Fleming Administration Building cell phone: (734) 358-5122 University of Michigan home phone: (734) 944-1828 Ann Arbor, MI 48109 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Dr Goldberg heads east at least 2 times per year which would greatly reduce your expense. Call his office and see what is planned next-he was considering the Carolinas in June. It is worth seeing him-he is the ONLY one approaching this as a medical problem, and having success treating it accordingly. It's a little expensive but.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Have you heard about the biological conference to be held in Orlando FL next month? I think Dr. V. Singh is speaking on the immune response subject..... Re: diet >From: CWither43@... > >Dr Goldberg heads east at least 2 times per year which would greatly reduce >your expense. Call his office and see what is planned next-he was considering >the Carolinas in June. >It is worth seeing him-he is the ONLY one approaching this as a medical >problem, and having success treating it accordingly. It's a little expensive >but.... > >------------------------------------------------------------------------ >Share the wealth! >http://www.ONElist.com >Tell a friend about ONElist's 115,000 free e-mail communities! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 Delaine, Congratulations! I'm so happy for you and Jim! You've waited a long time for this, and now you will be able to relax a little more. I feel the same way about this " diet " . I don't consider it a diet either, it is a way of life. Loosing weight will be a nice benefit Neither your hands or feet are affected? a ----- Original Message ----- From: Jim & Delaine Lowry <keywest@...> onelist < egroups> Sent: Tuesday, October 10, 2000 9:48 PM Subject: [ ] Diet > a > > I understand completely about your feer of losing your hands. This has > been > the scariest for me, also. I have RA in both ankles, both knees, both > elbows, > both wrists. When I got carpel tunnel in both hands, I was really > scared. > > That's why I've been able to stick to my diet, also. I've never really > stayed > on a diet to lose weight before...but, this is not about losing > weight...it's about > losing my hands AND being in pain all the time. > > I've been pain free for so many days lately; I was thinking that maybe I > didn't > have RA anymore. Then, it came back yesterday and I thought back as to > what did I eat that would make me hurt. > > I'm still on the arava and mtx...but with the change in my diet, I'm not > in any > pain like I was before. And, if I eat something wrong and it starts > again, it > starts first in my ankles and knees. Then, if I continue to eat wrong, > it moves > into my elbows and wrists and then I'm hurting all over. > > So, to not have pain keeps me from eating those things that I love. > But, I've > decided that those few seconds of having something that tastes SO good > is > not worth the hours of pain afterwards. > > Good luck to your continued improvement. > > Off subject, our guest house is being sold Thursday at 11 AM. Jim and I > are > SO excited. > > Delaine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2000 Report Share Posted November 8, 2000 Well hi there Delaine from Fl. So the weather is perfect huh? well here in Indpls. it is cold and rainy and boy that makes yours bones ache. I had a miniture schnauzer, candy the sweetest little dog I ever had and guess what? her bro.'s name was Nick he was a prancer, could have been shown I'm sure. The reason I am responding is you mentioned your diet. Could you tell me exactly what your regemine is very enterested . Thanks Judy from Indy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2000 Report Share Posted November 10, 2000 Hi, Would you please let me know more about your diet? I am convinced that diet can help with RA. One of the Rheumatologists in my clinic -- he is Chinese -- suggested I stop eating red meat. I haven't had any in a year. Recently I was told by one of the other doctors that a vegetarian diet with eggs and dairy is best for RA. I suspect sugar is my worst culprit, so I was interested in the sweets that seemed to make you worse. Interestingly, none of my doctors have mentioned sugar! For awhile I was very good with salads and vegetable juice being a mainstay of my diet. I did feel better, but then someone without RA would probably feel better too. Please write and share your diet. Thanks, Patsy -----Original Message----- From: Jim & Delaine Lowry [mailto:keywest@...] Sent: Wednesday, November 08, 2000 12:48 PM onelist Subject: [ ] Diet I've been in North Carolina for the past week visiting my family. It was my parents' 50th wedding anniversary. They had a party on Saturday that was very nice. I met a couple that had double dated with my parents before they were married. I got a bunch of 50th anniversary items for them from ebay. They were priced really reasonable...a lot cheaper than buying from Hallmark. Well, my RA has been so much better with my following my diet. I went off of it while I was in Burlington, NC. I ate anniversary cake and then cake for my niece's birthday and basically blew my diet. And my joints hurt horribly. A couple of nights I took some of my husband's percocet (?) as vioxx50 did nothing for the pain. I'm back home and following my diet again and no RA pain again. So, for me, a good diet is essential to my joints not hurting. For those interested, the guest house still hasn't sold. Maybe the closing will be Monday. This has been a nightmare. We got a new puppy. He's a giant schnauzer that is a half brother to the 9 month old giant schnauzer puppy that we have now. Jim has named him Yogi as " it's deja vu all over again " . This puppy, Yogi, is very much like Nick, the giant schnauzer that we lost to bloat in January. The dogs are 7 months apart in age. So, the trip to North Carolina was quite unusual as we had a new puppy with us. When we came home, the puppy which we had had for one week didn't know we were at home. He still thinks that the van is his home as he was in it most of the time. Chance is acting more grown up now that we have the new puppy. He sees how the new puppy must stay in the kennel most of the time and knows that he is the Big dog and doesn't have to stay in it. Delaine from Key West, FL where the weather is just perfect. Our websites: http://rheumatoid.arthritis.freehosting.net/ http://www.rasupport.webprovider.com/ Change subscription options: Quote Link to comment Share on other sites More sharing options...
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