Re: URGENT - CHILD HAVING SEIZURES

[Guest guest]

Sorry don't have infor on the med but I was wondering if they were in the pool

alot ...maybe too much clorine...

Chlorine

ASD children have proven PST (phenol sulfur-transferase) issues and chlorine

exacerbates these with increased behavioral problems.  Treatment options

include rinsing off immediately after getting out of the pool, giving taurine,

magnesium sulfate cream or Epsom salts baths.  The best way to avoid chlorine

is to swim in the ocean.  If you have a pool, make it a salt water pool, or use

a non-chlorine treatment like Bacquacil.

 

PWC

________________________________

From: katewish2000 <magnolias@...>

Sent: Tue, May 4, 2010 1:52:01 AM

Subject: [ ] URGENT - CHILD HAVING SEIZURES

 

A friend is in Orlando Florida on vacation from Canada and her small son. He was

rushed to the hospital today having seizures. They were visiting universal

studios when they noticed he was unresponsive and quite pale. Mom tried to feed

him some GFCF chocolate and he wouldn't respond and was drooling, then " fell

asleep " . When they got him to the hospital the Dr's said he was seizing so they

gave him an anticonvulsant. They did a CAT scan, blood work and even a spinal

puncture and haven't found anything. They are helping him to breath with a tube

and they said he's had 2- 3 minute seizures and 1 about 40 seconds...until last

I have heard - 8pm pacific. He has IV Ativan, fentalyn, mivf? ..that's what Mom

saw written in the machines. They have scheduled MRI and EEG for early in the

morning tomorrow. He was playing in a water park when this happened...he was

under a water spout for some 10-15 min...when they noticed he was standing too

still....

The family is quite far from home and understandably very scared.

Does anyone know a conpetent Dr. or Neuro in the area of Orlando?

Are the meds being given safe for her autistic son?

Any help, advice or info would be greatly appreciated.

If you email me, I can pass it along to the Mom.

Thanks,

Jen

[Guest guest]

Universal Studios has a lot of flshy lights on the rides. May be epilepsy. Such

lights will set off a seizure.

>

> A friend is in Orlando Florida on vacation from Canada and her small son. He

was rushed to the hospital today having seizures. They were visiting universal

studios when they noticed he was unresponsive and quite pale. Mom tried to feed

him some GFCF chocolate and he wouldn't respond and was drooling, then " fell

asleep " . When they got him to the hospital the Dr's said he was seizing so they

gave him an anticonvulsant. They did a CAT scan, blood work and even a spinal

puncture and haven't found anything. They are helping him to breath with a tube

and they said he's had 2- 3 minute seizures and 1 about 40 seconds...until last

I have heard - 8pm pacific. He has IV Ativan, fentalyn, mivf? ..that's what Mom

saw written in the machines. They have scheduled MRI and EEG for early in the

morning tomorrow. He was playing in a water park when this happened...he was

under a water spout for some 10-15 min...when they noticed he was standing too

still....

> The family is quite far from home and understandably very scared.

>

> Does anyone know a conpetent Dr. or Neuro in the area of Orlando?

> Are the meds being given safe for her autistic son?

> Any help, advice or info would be greatly appreciated.

> If you email me, I can pass it along to the Mom.

>

>

> Thanks,

>

> Jen

>

[Guest guest]

You wont avoid chlorine with a salt water pool. Salt water pools use a chlorine

generator to produce the chlorine (using a brine unit or a unit that requires

the salt be added) as opposed to storing and adding the chlorine yourself.

Have heard about chlorine/salt free pools that use oxygen and copper ionization

in place of chlorine.

Karla

>

> Sorry don't have infor on the med but I was wondering if they were in the pool

alot ...maybe too much clorine...

>

> Chlorine

> ASD children have proven PST (phenol sulfur-transferase) issues and chlorine

exacerbates these with increased behavioral problems.  Treatment options

include rinsing off immediately after getting out of the pool, giving taurine,

magnesium sulfate cream or Epsom salts baths.  The best way to avoid chlorine

is to swim in the ocean.  If you have a pool, make it a salt water pool, or use

a non-chlorine treatment like Bacquacil.

>

>  

> PWC

>

>

>

>

> ________________________________

> From: katewish2000 <magnolias@...>

>

> Sent: Tue, May 4, 2010 1:52:01 AM

> Subject: [ ] URGENT - CHILD HAVING SEIZURES

>

>  

> A friend is in Orlando Florida on vacation from Canada and her small son. He

was rushed to the hospital today having seizures. They were visiting universal

studios when they noticed he was unresponsive and quite pale. Mom tried to feed

him some GFCF chocolate and he wouldn't respond and was drooling, then " fell

asleep " . When they got him to the hospital the Dr's said he was seizing so they

gave him an anticonvulsant. They did a CAT scan, blood work and even a spinal

puncture and haven't found anything. They are helping him to breath with a tube

and they said he's had 2- 3 minute seizures and 1 about 40 seconds...until last

I have heard - 8pm pacific. He has IV Ativan, fentalyn, mivf? ..that's what Mom

saw written in the machines. They have scheduled MRI and EEG for early in the

morning tomorrow. He was playing in a water park when this happened...he was

under a water spout for some 10-15 min...when they noticed he was standing too

still....

> The family is quite far from home and understandably very scared.

>

> Does anyone know a conpetent Dr. or Neuro in the area of Orlando?

> Are the meds being given safe for her autistic son?

> Any help, advice or info would be greatly appreciated.

> If you email me, I can pass it along to the Mom.

>

> Thanks,

>

> Jen

>

>

>

>

>

>

>

>

[Guest guest]

My suggestion to the family would be to stop giving gluten and dairy

immediately, give flax oil and cod liver oil and have him eat a " mucus free

diet " .

>

> A friend is in Orlando Florida on vacation from Canada and her small son. He

was rushed to the hospital today having seizures. They were visiting universal

studios when they noticed he was unresponsive and quite pale. Mom tried to feed

him some GFCF chocolate and he wouldn't respond and was drooling, then " fell

asleep " . When they got him to the hospital the Dr's said he was seizing so they

gave him an anticonvulsant. They did a CAT scan, blood work and even a spinal

puncture and haven't found anything. They are helping him to breath with a tube

and they said he's had 2- 3 minute seizures and 1 about 40 seconds...until last

I have heard - 8pm pacific. He has IV Ativan, fentalyn, mivf? ..that's what Mom

saw written in the machines. They have scheduled MRI and EEG for early in the

morning tomorrow. He was playing in a water park when this happened...he was

under a water spout for some 10-15 min...when they noticed he was standing too

still....

> The family is quite far from home and understandably very scared.

>

> Does anyone know a conpetent Dr. or Neuro in the area of Orlando?

> Are the meds being given safe for her autistic son?

> Any help, advice or info would be greatly appreciated.

> If you email me, I can pass it along to the Mom.

>

>

> Thanks,

>

> Jen

>

[Guest guest]

The person who posted already indicated the child is GFCF.

S S

Re: URGENT - CHILD HAVING SEIZURES

Posted by: " Liz " elizabethsoliday@... homewithb

Tue May 4, 2010 7:48 pm (PDT)

My suggestion to the family would be to stop giving gluten and dairy

immediately, give flax oil and cod liver oil and have him eat a " mucus free

diet " .