Re: Re: help deciding about mercury chelation

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On Thu, Feb 18, 2010 at 8:31 PM, Jan <mercurybabies2@...> wrote:

>

>

> DO NOT do a provoked urine test. These use high doses of chelator given

> infrequently and can cause redistribution that can make your child sicker.

> Your doctors says it's never been proven but that's not the actual

> experience of people who have taken this test or done it on their children.

>

> When it comes to Hg toxicity, just because a hair didn't meet rules does

> not rule out mercury poisoning. Did you have the test looked at by this

> group to check for other markers of mercury? Same with the porphyrin test.

> Those have some failure issues yes, but primarily they are decent forms of

> testing. Also you have to look at history.

> Did he have vaccines? Any exposure to metal dental fillings through you or

> himself?, Rhogam or flu vaccines while pregnant?

> I just haven't found hardly any kids with all this issues who were not

> mercury toxic.

>

> And honestly if you want to know if he has mercury....do a low dose Andy

> Cutler chelation round using alpha lipoic acid on him. All of his symptoms

> say mercury. A trial with low dose chelation is safe and will tell you if it

> will help him. If he has no mercury/metals, the round will not do anything

> to him at all anyway. Far safer than letting the doctor play roulette with

> that test. Sometimes the dmps challenge test does not show mercury anyway,

> even when it's there, because brain mercury is not removed with dmps.

>

> Jan

>

>

>

> >

> > For the past couple of years I have been working with my son, who appears

> to be on the ASD continuum, given his history of allergies, GI problems,

> immune problems, sensory integration issues, etc. Our first approach was to

> use the SCD for over a year and saw significant improvement in overall

> health (allergies went away, stopped having ear inflammation, less viral

> infections, skin improved, bowel function improved, etc.) Once we took all

> milk out of the diet (even SCD approved items) we saw a general improvement

> in mood also.

> >

> > Then a little over a year ago after a viral infection he developed

> significant gross motor tics. At that point we started working with a DAN

> doctor. Since last year, with the addition of a ton of supplements (ASD

> vitamins, Enhansa, B12 injections and spray, Glutathione, are just a few)and

> NAET treatments, his tics are quite minimal at this time.

> >

> > We did several months of NAET treatments which seem beneficial, but got

> to the point where the doctor felt that he did not need additional

> treatments. Overall, his health is still pretty good but we have not been

> strictly SCD since last Fall, introducing rice and potatoes as seems

> tolerated and some other items. It is clear that he still does not tolerate

> some of these changes well and we continue to evaluate any new additions.

> Personally, I think he does the best staying strictly on the SCD, but

> emotionally it is taking a toll to constantly stand out as different.

> >

> > One area we had not addressed was a possible Mercury toxicity. We did a

> hair analysis which per Andy Cutler's counting test, did not indicate a

> mercury toxicity and most recently we completed the urine porphyrin test

> that was quite unclear as to toxicity. It indicated that several indicators

> were elevated but even the doctor had trouble understanding the results. Now

> I understand that per reading and my physician that the reliability of these

> tests are in question.

> >

> > So, my DAN doctor is recommending that we do a provoked urine challenge

> test to get an accurate measure of the Mercury using DMPS. If I am correct

> from reading, there is a risk doing this as it could pull the mercury out

> and then redeposit it in the brain. I asked my doctor about this but he said

> that has never been proven, and that in all the people he has used this test

> (as well as a chelation protocol called Merc-out - uses DMPS) he has seen

> improvement and never had anyone have a problem with this process.

> >

> > I am unsure what to do? I don't want to put my son through chelation if

> he really doesn't need it and I also don't want to make things worse. While

> my son has issues, he really is doing well in many way and I don't want to

> create a problem for him. Still, my goal is to help him have his health, and

> my thought is that if there is a mercury problem, he is going to struggle

> with these dietary issues, allergies, immune deficiencies, etc. forever.

> >

> > What thoughts do you have out there and could you direct me to some

> articles that would be helpful. Also, has anyone used OSR? I have a friend

> doing ALA and DMSA (I think), but I wonder what the response has been to

> OSR.

> >

> > Thanks,

> >

> > - mom of TW - 9 1/2 years old, tic problems, ASD spectrum

> >

>

>

>

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