Re: chelating mild case or high-functioning kids

[Guest guest]

> I'm wondering whether parents with " high-functioning " or " mild case " PDD

children have used chelation.

I chelated one severe child, one moderate child, two mild children, and one

adult. I used ALA.

>>If so, did your child end up better or worse when you stopped chelating,

Better. All four are recovered now, altho it took more than just chelation to

get here.

>>and when and why did you stop chelating?

When it was no longer required.

>>What was the child's environment like when you started chelating--weather,

season, stresses, illnesses (our boy has gut issues [but no parasites, according

to stool test], swollen tonsils, regular sleep interruptions [some due to

apnea], and perhaps spring allergies), ...?

I don't understand this question.

>>What short list of supplements did you find absolutely essential?

My kids required a " long list " , not a short list.

Dana

[Guest guest]

Parent of all sorts have used chelation. Our boys specifically would have rated

approx moderate for one boy and moderately severe for the other boy. A little

over a year later they are now PPD-NOS and moderate.

You stop chelating when they are " all better " and then you chelate a few months

after that.

All better means they don't need any special diet or supplements to function

normally and the behave like normal kids.

There will be no regression unless they are exposed to mercury or lead again and

poisoned again.

Once the root cause of the problem is removed, which heavy metal intoxication,

you no longer have to treat the symptoms because there are no symptoms.

TJ

________________________________

From: rebeccaundd <rcuthomas@...>

Sent: Wed, May 5, 2010 12:38:14 AM

Subject: [ ] chelating " mild case " or " high-functioning " kids

 

I'm new to this group and finding the posts very informative. I'm also reading

Andy Cutler's very useful Amalgam Illness and Hair Test Interpretation books. I

feel like I'm drinking from the fire hose, as they say, but urgently wanting to

start chelating my almost four-year-old boy if hair data indicates it is

warranted, since (I've learned from Cutler) starting chelation earlier yields

better results. I just purchased a DDI Hair Element Profile online from

DirectLabs.com.

I'm wondering whether parents with " high-functioning " or " mild case " PDD

children have used chelation. If so, did your child end up better or worse when

you stopped chelating, and when and why did you stop chelating? What was the

child's environment like when you started chelating--weather, season, stresses,

illnesses (our boy has gut issues [but no parasites, according to stool test],

swollen tonsils, regular sleep interruptions [some due to apnea], and perhaps

spring allergies), ...? What short list of supplements did you find absolutely

essential?

Thank you,

[Guest guest]

> I chelated one severe child, one moderate child, two mild children, and one

adult. I used ALA.

> ... All four are recovered now, altho it took more than just chelation to get

here.

That is very encouraging.

> >>What was the child's environment like when you started chelating--weather,

season, stresses, illnesses...

>

> I don't understand this question.

It's my understanding that chelation strains the immune system, so I was

wondering if people have had more success starting the chelation process when

the weather is warm and sunny and their kids are relatively well. I'm wondering

specifically if kids react differently (poorly) in winter or if dealing with

specific illness(s). Maybe this question is more didactic, now that I think

about it, as I expect we'll start chelation as soon as possible, which will be

summer.

> >>What short list of supplements did you find absolutely essential?

>

> My kids required a " long list " , not a short list.

Sorry, I should have specified *at the start* -- I'm wondering what supplements

really helped the mild kids get going with chelation.

Thank you!

[Guest guest]

TJ, thank you for your reply. It's very helpful to have this spelled out such

that we can set expectations (so a proper course will take years, involving

loads of supplements).

Any parents out there with mild or high-functioning kids who had any trouble

chelating? I'm afraid of doing anything wrong and making our

almost-normal-seeming kid worse, so I'm hoping to learn what *not* to do before

we embark on this.

Thanks again,

[Guest guest]

> Don't do improper chelation and you will be fine. Follow the Andy Cutler

protocol, which is low and frequent dosing.

So, to be completely clear, would the following be a safe program following the

AC protocol:

For our almost-4-year-old who weighs 38 pounds, 10mg of ALA (I've read Kirkland

ALA 25mg is good, and not ®-Lipoic Acid) every three hours (every four hours

at night) for three days, then four days off. If he tolerates that well, and as

he gains weight (though he's lost his appetite recently and may not gain much),

then we might increase the dosage to 15mg or 20mg, then keep it there

consistently for months or years till we stop the chelation process altogether.

Again, this assumes the hair test results confirm mercury intoxication.

Have I got this right?

> Give the supporting supplements, which you can read about in the files section

of the group.

Thank you for the pointer to " Supplement file.htm " ! I hadn't gotten around to

looking at the Files at all (obviously).

> Very safe and effective.

Excellent. I'm looking forward to getting our hair test done so we can know what

we're dealing with.

Thank you,

[Guest guest]

My 6 yr old son is HFA and we are chelating using the AC protocol (on round 35,

so we still have a ways to go) and my only wish is that we had started earlier.

We've been doing biomed for 3 yrs (GFCF, Low Oxlate diet, plus supplements) and

its all helped, but chelating has given him the best gains. The diets helped

with the meltdowns and rigid routines, the supplements helped with yeast,

bacteria, and viruses. Chelating has helped him connect with his peers (adults

and older kids have never been a problem), expanded his interests, improved his

social and cognitive skills. He is a much more " with it " kid.

We're not out of the woods by a long shot, but Im much more confident that we

will get there as long as we stay on this path.

Karla

>

> TJ, thank you for your reply. It's very helpful to have this spelled out such

that we can set expectations (so a proper course will take years, involving

loads of supplements).

>

> Any parents out there with mild or high-functioning kids who had any trouble

chelating? I'm afraid of doing anything wrong and making our

almost-normal-seeming kid worse, so I'm hoping to learn what *not* to do before

we embark on this.

>

> Thanks again,

>

>

[Guest guest]

I'm into about round 13 with my two 12yo girls (adopted from Russia as babies).

K was born at 26 wks and is classic ADHD, with certain autism behaviors (USED to

spin, tippy-toe walk, etc. Very verbal, and too-intensely social). She ALMOST

met the counting rules.

She is responding fabulously to AC chelation. Irritability was always off the

charts, and of all the expensive, exhaustive things we've tried, chelation is

the first thing to hit that.

M DID meet the counting rules, and her problems are extreme anxiety/phobias, and

dyslexia. She is not noticeably improving yet, but she does have negative

reactions if I ooch up the ala higher than she's ready for. I am continuing to

increase her adrenal cortex extract (though expense for all the supplements is a

major problem for us), and hoping we will see improvement.

>

> Yes, you got it right. A few more points.

> -

>

>

>

>

>

>

[Guest guest]

,

I would start lower than 10 mgs the first time, say 5 mgs. If your child

tolerates that, you can raise it incrementally as you go. You don't need to be

in a hurry to raise the dose - stay where your child is comfortable and you are

seeing gains. It's a long process that you can and will tweak as you go along.

Some kids don't tolerate ALA, others don't tolerate DMSA (I have one of each

types of kids). Our child who is sensitive to ALA did a lot better on it after

about 20 rounds of DMSA only. Still, he is on a small dose of ALA and we

sometimes lower the dose if he seems uncomfortable.

After 53 rounds, our 50 lb 6 yr old is still only on 10 mg DMSA 5 mg ALA.

Maggied

>

> So, to be completely clear, would the following be a safe program following

the AC protocol:

>

> For our almost-4-year-old who weighs 38 pounds, 10mg of ALA (I've read

Kirkland ALA 25mg is good, and not ®-Lipoic Acid) every three hours (every

four hours at night) for three days, then four days off. If he tolerates that

well, and as he gains weight (though he's lost his appetite recently and may not

gain much), then we might increase the dosage to 15mg or 20mg, then keep it

there consistently for months or years till we stop the chelation process

altogether. Again, this assumes the hair test results confirm mercury

intoxication.

>

> Have I got this right?

>

>

[Guest guest]

> - You could do a ten round " trial " of chelation. If you get results, it is

proof positive of heavy metal intoxication.

This sounds great. Is this safe in general, or can the hair test results affect

things (such as whether to use ALA or DMSA or both, and whether to change the

dosages)? I've just started reading the chapter " What to do about Heavy Metals

and other Hair Test Results " in Andy Cutler's book Hair Test Interpretation, but

I noticed, for instance, in the Copper section that it says " If hair copper

levels are over 75 then chelation with ALA for other metals should be restricted

somewhat. " (?)

> - If a child reacts positively to a GFCF diet or an elimination diet created

from an Igg test, it is highly likely they are toxic. The metals affect the

body's ability to produce enzymes and other systems in the body that enable the

child to digest dairy, wheat, and other foods properly. Dairy and wheat are the

most common.

Interesting. We haven't (yet) had an IgG test. As it happens, we are vegan so no

one has eaten dairy in years and everyone eats soy daily. We wonder if our

child's symptoms might be worse and might have manifested earlier if he weren't

vegan.

Now I'm pondering the idea of prophylactically chelating our one-year-old

daughter, since spectrum disorders sometimes run in the family. Has anyone done

this?

[Guest guest]

Maggie,

Thank you for the cautions. Did you find out why your kids were sensitive to ALA

and DMSA, respectively? Was there anything noteworthy on their hair tests (that

we should look for in our son's test)?

[Guest guest]

> We've been doing biomed for 3 yrs (GFCF, Low Oxlate diet, plus supplements)

and its all helped, but chelating has given him the best gains. The diets helped

with the meltdowns and rigid routines, the supplements helped with yeast,

bacteria, and viruses. Chelating has helped him connect with his peers (adults

and older kids have never been a problem), expanded his interests, improved his

social and cognitive skills. He is a much more " with it " kid.

>

> We're not out of the woods by a long shot, but Im much more confident that we

will get there as long as we stay on this path.

Thank you for sharing your experience. I appreciate your overarching summary,

especially. It sounds like chelating is helping your son in the areas with which

our son needs help, too, so I'm very keen to get started.

[Guest guest]

> > >>What short list of supplements did you find absolutely essential?

> > My kids required a " long list " , not a short list.

> Sorry, I should have specified *at the start* -- I'm wondering what

supplements really helped the mild kids get going with chelation.

When I first started chelation, the only supplements my kids tolerated was

digestive enzymes. At about round 10, I was able to add a few supplements. At

about round 50, I was able to add most supplements.

Since my kids did not tolerate the supps, I just started with enzymes and ALA.

However, it is recommended to start with a few basic supps if possible.

Dana

[Guest guest]

Hi, ,

We didn't do hair tests. We just tried a tiny dose of DMSA (AC protocol) on our

6 yr old one weekend and we saw gains in him immediately so we knew it was right

for him. I don't know why he's sensitive to ALA, but when we tried it the first

few times, he withdrew and didn't want to be around people, which is what he

does when he's uncomfortable. He still goes through periods when he doesn't

tolerate it, such as right now. We chelated with just DMSA last weekend and he

had a good round with some nice gains and was not cranky when he had to go to

school on Monday. One of his gains was he said, " I wish ... I could fly to the

ceiling and catch it. " (Then he jumped off the headboard of his bed.) We always

talk about wishing but it has always been scripted before.

Our 3 yr old son is the opposite, which is when he gets DMSA he bounces off the

walls but with ALA he gets more grounded and " there " .

Maggied.

>

> Maggie,

>

> Thank you for the cautions. Did you find out why your kids were sensitive to

ALA and DMSA, respectively? Was there anything noteworthy on their hair tests

(that we should look for in our son's test)?

>

>

>

[Guest guest]

Hi - Re your " short-list " question

When we started we had a very good biomed Dr (who has since moved on to heading

up research in the field). His advice for the shortlist of essential

supplements to support the child/person while chelating was:

essential fatty acids

multi-vitamin & mineral - specifically he recommended DRN from Kirkman which was

designed for autism by Dr Neubrander

probiotics - plenty of good quality probiotic

milk thistle - to support the liver

grapefruit seed extract (GSE) - have on had for treating yeast when needed (1 -

4 per day for 2 weeks when yeast flares) (there are other options for this which

some people find better but GSE works for us)

We also used enzymes, epsom salt baths and various other supplements but the

above list is considered the basic essentials and is what my son is having now

that we have returned to chelating him - 70 rounds in. Hope this helps.

Alison W

>

> I'm new to this group and finding the posts very informative. I'm also reading

Andy Cutler's very useful Amalgam Illness and Hair Test Interpretation books. I

feel like I'm drinking from the fire hose, as they say, but urgently wanting to

start chelating my almost four-year-old boy if hair data indicates it is

warranted, since (I've learned from Cutler) starting chelation earlier yields

better results. I just purchased a DDI Hair Element Profile online from

DirectLabs.com.

>

> I'm wondering whether parents with " high-functioning " or " mild case " PDD

children have used chelation. If so, did your child end up better or worse when

you stopped chelating, and when and why did you stop chelating? What was the

child's environment like when you started chelating--weather, season, stresses,

illnesses (our boy has gut issues [but no parasites, according to stool test],

swollen tonsils, regular sleep interruptions [some due to apnea], and perhaps

spring allergies), ...? What short list of supplements did you find absolutely

essential?

>

> Thank you,

>

>

[Guest guest]

Hi Alison,

Thank you for the short list. Just from our attempts to correct his gut issues,

we've coincidentally got our son on all but the GSE (I will check that out) and

milk thistle (I just picked some up today). We introduced enzymes a few days ago

and they seem to help his appetite. Today also I got taurine and epsom salts

and, on his ND's advice, glycine. Our boy's organic acids test results show him

very high in stress, very in need of antioxidants (vitamin C and E), having

difficulty detoxifying (liver isn't working well), with very high intestinal

bacterial overgrowth (presumably yeast). Based on Amalgam Illness (p. 189), I'll

explore the sulfur food exclusion diet.

At this point, my husband and I are thinking we should start chelating

immediately: do the hair test when it arrives in the mail, then start 5mg ALA

every 3 hours for 3 days, 4 days off; when the hair test results come back, add

low-dose DMSA depending on what it says. I'm a little nervous to proceed when I

haven't read both Cutler books entirely, but, given everything we do know,

chelation seems the best course of action.

[Guest guest]

Hi

For your consideration, our biomed recommended starting with DMSA first - it

doesn't cross the blood brain barrier so it won't carry metals from the body

into the brain. Once you've done 8 rounds of DMSA (clearing some of the load

from the body) then add in the ALA and you start to remove toxic metals from the

brain. You are doing great. Kind regards,

Alison W

>

> Hi Alison,

>

> Thank you for the short list. Just from our attempts to correct his gut

issues, we've coincidentally got our son on all but the GSE (I will check that

out) and milk thistle (I just picked some up today). We introduced enzymes a few

days ago and they seem to help his appetite. Today also I got taurine and epsom

salts and, on his ND's advice, glycine. Our boy's organic acids test results

show him very high in stress, very in need of antioxidants (vitamin C and E),

having difficulty detoxifying (liver isn't working well), with very high

intestinal bacterial overgrowth (presumably yeast). Based on Amalgam Illness (p.

189), I'll explore the sulfur food exclusion diet.

>

> At this point, my husband and I are thinking we should start chelating

immediately: do the hair test when it arrives in the mail, then start 5mg ALA

every 3 hours for 3 days, 4 days off; when the hair test results come back, add

low-dose DMSA depending on what it says. I'm a little nervous to proceed when I

haven't read both Cutler books entirely, but, given everything we do know,

chelation seems the best course of action.

>

>

>

[Guest guest]

Hi ,

I have recovered 3 high-functioning kids along with myself (debilitating

cilantro acccident) for well over 100 rounds, 7.5 years and counting. I do not

visit here much anymore. I am currently writing an account of my recovery and

intend to cover aspects of my kids treatment as well. In the mean time, I

happened upon your thread today and here is my brief(?!?!) .02:

1. Stick with Andy Cutler. He knows his chemistry. Period. I trust him. Read as

many of his posts as possible (use onibasu.com for easier searching) and

reference both of Andy's books.

2. YOU CAN REGRESS YOUR CHILD if you chelate improperly. a) Wrong schedule.

Too high of doses to begin with. c) Increasing doses too soon d) Ongoing

exposure from amalgams or other sources e) ingesting food/supps that cause

redistribution/regression. I regressed a couple of times and it's awful(no it's

not always just yeast, it is a nasty redistribution).

3. Do your homework. Question everything. Proceed cautiously. Have patience. As

many have said, [safe and effective oral] chelation is a marathon, not a race.

4. Andy has basic supps in his books and you can glean additional supp info

specific to your child by spending the time online learning. Just because

somebody on the internet or in the doctor's office says it's a good thing,

doesn't mean that it is for your child or maybe anybody for that matter.

Cautious trial and error in many cases, one supp at a time AFTER researching as

much as you can.

5. A couple of details--my kids and I could tolerate only the tiniest of doses

to begin with and it took a long time (often a year) for us to tolerate a dose

increase. We did mostly DMSA/ALA, ending each round with 1 or more doses of DMSA

only.

I found that more frequent dosing was more effective (e.g. every 2 hours during

the day and every 3 hours at night).

We did not meet the counting rules, none of us, perhaps because we were

supplementing prior to the tests. Our hair tests did reveal off-the charts

aluminum, a marker for mercury. Lead was a significant issue too. Regardless, a

trial of several rounds should help determine whether chelation is doing

anything or not.

After so many years, we still chelate occasionally, some of us more than others,

and will continue to do so as long as possible.

Good luck, . You are on the right track!

KD

>

> I'm new to this group and finding the posts very informative. I'm also reading

Andy Cutler's very useful Amalgam Illness and Hair Test Interpretation books. I

feel like I'm drinking from the fire hose, as they say, but urgently wanting to

start chelating my almost four-year-old boy if hair data indicates it is

warranted, since (I've learned from Cutler) starting chelation earlier yields

better results. I just purchased a DDI Hair Element Profile online from

DirectLabs.com.

>

> I'm wondering whether parents with " high-functioning " or " mild case " PDD

children have used chelation. If so, did your child end up better or worse when

you stopped chelating, and when and why did you stop chelating? What was the

child's environment like when you started chelating--weather, season, stresses,

illnesses (our boy has gut issues [but no parasites, according to stool test],

swollen tonsils, regular sleep interruptions [some due to apnea], and perhaps

spring allergies), ...? What short list of supplements did you find absolutely

essential?

>

> Thank you,

>

>

[Guest guest]

If it's any consolation, I didn't own the books when we began. I got them later

on. There is enough information between this groups files, and Moria's website

to get you there!

Jan

Recovery From Autism

>

> Hi Alison,

>

> Thank you for the short list. Just from our attempts to correct his gut

issues, we've coincidentally got our son on all but the GSE (I will check that

out) and milk thistle (I just picked some up today). We introduced enzymes a few

days ago and they seem to help his appetite. Today also I got taurine and epsom

salts and, on his ND's advice, glycine. Our boy's organic acids test results

show him very high in stress, very in need of antioxidants (vitamin C and E),

having difficulty detoxifying (liver isn't working well), with very high

intestinal bacterial overgrowth (presumably yeast). Based on Amalgam Illness (p.

189), I'll explore the sulfur food exclusion diet.

>

> At this point, my husband and I are thinking we should start chelating

immediately: do the hair test when it arrives in the mail, then start 5mg ALA

every 3 hours for 3 days, 4 days off; when the hair test results come back, add

low-dose DMSA depending on what it says. I'm a little nervous to proceed when I

haven't read both Cutler books entirely, but, given everything we do know,

chelation seems the best course of action.

>

>

>

[Guest guest]

Another considerations is that this is not necessary unless you have had mercury

exposure in the previous three months via dental amalgam removal or a vaccine.

Anyone else, can use dmsa and ala from the first round if they are comfortable

in doing so.

If they are not, it's ok to wait, but we did not wait. We began with bot. It

says in Amalgam Illness that only those who have had this recent exposure need

to wait to add ala, or need to " get body burden down " .

Some people/children do not tolerate the ala alone as well as they do with the

dmsa. This is another consideration. Many do find on ala only.

Just some more things to consider

Jan

Recovery From Autism

97 rounds and counting on recovering 7 year old

> >

> > Hi Alison,

> >

> > Thank you for the short list. Just from our attempts to correct his gut

issues, we've coincidentally got our son on all but the GSE (I will check that

out) and milk thistle (I just picked some up today). We introduced enzymes a few

days ago and they seem to help his appetite. Today also I got taurine and epsom

salts and, on his ND's advice, glycine. Our boy's organic acids test results

show him very high in stress, very in need of antioxidants (vitamin C and E),

having difficulty detoxifying (liver isn't working well), with very high

intestinal bacterial overgrowth (presumably yeast). Based on Amalgam Illness (p.

189), I'll explore the sulfur food exclusion diet.

> >

> > At this point, my husband and I are thinking we should start chelating

immediately: do the hair test when it arrives in the mail, then start 5mg ALA

every 3 hours for 3 days, 4 days off; when the hair test results come back, add

low-dose DMSA depending on what it says. I'm a little nervous to proceed when I

haven't read both Cutler books entirely, but, given everything we do know,

chelation seems the best course of action.

> >

> >

> >

>

[Guest guest]

Hi Alison,

Thank you for passing on your biomed's recommendation. Yesterday I ordered 25mg

DMSA from vrp.com and 25mg ALA from Kirkman.com. I was wondering whether to try

DMSA first for exactly that reason. Whatever gets delivered first might get

priority, but I'll discuss with hubbie.

> You are doing great.

Thanks for the moral support!

I'm really heartened to have found this group (through the GenerationRescue.org

site). The resources here are invaluable. Someone who responded to me privately

on this thread casually mentioned that her 14-month-old had slightly delayed

speech development and issues with, of all things, swinging and rocking motions.

Our 14-month-old has just started having big trouble swinging recently, and my

husband and I had no idea it might be PDD-related. So we're likely going to

chelate her at the same time we start our son, with a tiny dosage but on the

same schedule. I ordered her hair test yesterday.

Thanks again,

[Guest guest]

You may want to check post #40859 for Andy's recommended dosing for children. I

would start very, very low. You can always go up, but if you start high (25 mg

is VERY high for a 4 yo, imo) and redistribute/regress your child, you'll regret

it and it can take a long time to recover. Speaking from experience...

>

> Hi Alison,

>

> Thank you for passing on your biomed's recommendation. Yesterday I ordered

25mg DMSA from vrp.com and 25mg ALA from Kirkman.com. I was wondering whether to

try DMSA first for exactly that reason. Whatever gets delivered first might get

priority, but I'll discuss with hubbie.

>

> > You are doing great.

>

> Thanks for the moral support!

>

> I'm really heartened to have found this group (through the

GenerationRescue.org site). The resources here are invaluable. Someone who

responded to me privately on this thread casually mentioned that her

14-month-old had slightly delayed speech development and issues with, of all

things, swinging and rocking motions. Our 14-month-old has just started having

big trouble swinging recently, and my husband and I had no idea it might be

PDD-related. So we're likely going to chelate her at the same time we start our

son, with a tiny dosage but on the same schedule. I ordered her hair test

yesterday.

>

> Thanks again,

>

>

[Guest guest]

Hi KD,

Thank you very much for your post. I so appreciate hearing your thoughts after

your long-term experience with chelation.

> I am currently writing an account of my recovery and intend to cover aspects

of my kids treatment as well.

I will be interested to read this.

> In the mean time, I happened upon your thread today and here is my brief(?!?!)

..02:

>

> 1. Stick with Andy Cutler. He knows his chemistry. Period. I trust him. Read

as many of his posts as possible (use onibasu.com for easier searching) and

reference both of Andy's books.

I've been doing this and will continue to do so. I haven't found anything else

that explains the data with as consistent and believable scientific foundation.

> 2. YOU CAN REGRESS YOUR CHILD if you chelate improperly. a) Wrong schedule.

Too high of doses to begin with. c) Increasing doses too soon d) Ongoing

exposure from amalgams or other sources e) ingesting food/supps that cause

redistribution/regression. I regressed a couple of times and it's awful(no it's

not always just yeast, it is a nasty redistribution).

Thank you for this! This is what I need to understand inside and out.

* Should the AC protocol, or even tinier doses more frequently, take care of

items a and b?

* Regarding c, what metric(s) do you use to determine when it is safe to

increase dosage?

* Regarding d, I'm a little stuck, because we are considering chelating our

14-month-old daughter (before she goes to preschool and has a chance to exhibit

PDD behavior) and I am still breastfeeding. I still have mercury amalgams and

who knows what other toxins lurking in my system. If her hair test comes back

matching the counting rules, should I wean her off breast milk in order to start

chelating? Or should I wait till she's 2 years old to wean and chelate? Any

experience or advice on this?

* Regarding e, I intend to avoid cilantro while breastfeeding and have our kids

avoid it too. Are there other foods we should avoid? What supplements did you

encounter that caused redistribution/regression?

* Most importantly, were any regressions you observed, either in yourself or in

your kids, permanent or did continuing chelation eventually clear them?

> 3. Do your homework. Question everything. Proceed cautiously. Have patience.

As many have said, [safe and effective oral] chelation is a marathon, not a

race.

>

> 4. Andy has basic supps in his books and you can glean additional supp info

specific to your child by spending the time online learning. Just because

somebody on the internet or in the doctor's office says it's a good thing,

doesn't mean that it is for your child or maybe anybody for that matter.

Cautious trial and error in many cases, one supp at a time AFTER researching as

much as you can.

Good points that I will follow.

> 5. A couple of details--my kids and I could tolerate only the tiniest of doses

to begin with and it took a long time (often a year) for us to tolerate a dose

increase. We did mostly DMSA/ALA, ending each round with 1 or more doses of DMSA

only.

>

> I found that more frequent dosing was more effective (e.g. every 2 hours

during the day and every 3 hours at night).

Very interesting. Based on what you and others have said, I'm thinking I should

start my kid with a tiny amount (1-2mg) and very frequent dosing (every 2

hours).

> We did not meet the counting rules, none of us, perhaps because we were

supplementing prior to the tests. Our hair tests did reveal off-the charts

aluminum, a marker for mercury. Lead was a significant issue too. Regardless, a

trial of several rounds should help determine whether chelation is doing

anything or not.

I collected my son's hair sample today. Needless to say, I'm very curious to see

what it says. I'm still waiting for the ALA and DMSA to be delivered.

> After so many years, we still chelate occasionally, some of us more than

others, and will continue to do so as long as possible.

>

> Good luck, . You are on the right track!

Thank you!

[Guest guest]

> You may want to check post #40859 for Andy's recommended dosing for children.

Thank you for the pointer. Good to read Andy's specific recommended dosage. I'll

start my son on 5mg and my daughter, if chelating while her amalgam-containing

mom is still breastfeeding is okay (?), on 2.5mg.

> I would start very, very low. You can always go up, but if you start high (25

mg is VERY high for a 4 yo, imo) and redistribute/regress your child, you'll

regret it and it can take a long time to recover. Speaking from experience...

When you experienced redistribution/regression, was any of it permanent or were

you able to recover completely? What criteria for increasing dosage did you find

safe?

Thanks again,

[Guest guest]

Hi Isa

It's a tough one isn't it. Biomedical treatment of autism is a huge undertaking

but when you look at the alternative it is easier. I don't think it would be

realistic, wise or even effective, necessarily, for her to plunge him directly

into chelation. (Quite likely he has amalgam fillings himself.) However if you

can provide her with information and links to supports such as this group, books

etc, if she is able she can start to take in the options and hopefully begin

with some very safe strategies such as dietary changes, things like epsom salt

baths, probiotics, anti-yeast protocol etc. You are very kind and brave to

offer her another way - but it will be up to her whether she can take it on.

All the best,

Alison W

> >

> > Hi Alison,

> >

> > Thank you for passing on your biomed's recommendation. Yesterday I ordered

25mg DMSA from vrp.com and 25mg ALA from Kirkman.com. I was wondering whether to

try DMSA first for exactly that reason. Whatever gets delivered first might get

priority, but I'll discuss with hubbie.

> >

> > > You are doing great.

> >

> > Thanks for the moral support!

> >

> > I'm really heartened to have found this group (through the

GenerationRescue.org site). The resources here are invaluable. Someone who

responded to me privately on this thread casually mentioned that her

14-month-old had slightly delayed speech development and issues with, of all

things, swinging and rocking motions. Our 14-month-old has just started having

big trouble swinging recently, and my husband and I had no idea it might be

PDD-related. So we're likely going to chelate her at the same time we start our

son, with a tiny dosage but on the same schedule. I ordered her hair test

yesterday.

> >

> > Thanks again,

> >

> >

>

>

>

>

>

>

[Guest guest]

I have no clue, but bless your heart for trying to help. I would suggest to TRY

to wean him off the drugs, but stress that it has to be her choice and suggest

getting a doctor to supervise. (preferably one who is open to natural

treatments). I wouldn't think he could be much worse off...and no, you are not

being too aggressive, lots of adults have success chelating.

Liz

> >

> > Hi Alison,

> >

> > Thank you for passing on your biomed's recommendation. Yesterday I ordered

25mg DMSA from vrp.com and 25mg ALA from Kirkman.com. I was wondering whether to

try DMSA first for exactly that reason. Whatever gets delivered first might get

priority, but I'll discuss with hubbie.

> >

> > > You are doing great.

> >

> > Thanks for the moral support!

> >

> > I'm really heartened to have found this group (through the

GenerationRescue.org site). The resources here are invaluable. Someone who

responded to me privately on this thread casually mentioned that her

14-month-old had slightly delayed speech development and issues with, of all

things, swinging and rocking motions. Our 14-month-old has just started having

big trouble swinging recently, and my husband and I had no idea it might be

PDD-related. So we're likely going to chelate her at the same time we start our

son, with a tiny dosage but on the same schedule. I ordered her hair test

yesterday.

> >

> > Thanks again,

> >

> >

>

>

>

>

>

>