Help please

[Guest guest]

Hi there -

I am so sorry you have having so many problems - insurance companies are not my

favorite people either!!! My son is 4 and has been in therapy for 2 years, my

insurance company also denied coverage for him. Have you looked into your

public school system?? My son gets speech therapy for free through the public

school system, and I lucked out in that his has a WONDERFUL speech therapist who

understands apraxia. He gets 2 days a week 1 on 1 therapy, they even come to

his preschool.

What state do you live in? I have contacts all over and can hopefully put you

in touch with someone in your state that can help. Every state has different

" laws " but I think it is standard that the Public School System offer therapy if

your child qualifies for it. Does someone else out there know more about the

" laws? "

I hope this helps and I hope to hear from you soon. It is necessary your

daughter gets the therapy she needs, and I will help you in anyway that I can.

Carnell

North Carolina

www.verbaldyspraxia.com

[ ] HELP PLEASE

My six year old daughter has apraxia. My insurance through work

has denied paying for speech therapy twice. I make to much money for

a medical card and I've applied for a medical acess card but they

won't know anything for another three weeks. The Doctor that did the

evaluation is being of NO help. Matter of fact she has only delayed

things. The evaluation was done in March, 2001 she was then put on a

waiting list for speech therapy. Well she had a medical card for 2

months, they called in June,2001 for an appointment. So she ended up

only going 3 times before her medical card ran out!! Now we're

stuck. No one will try to help us. I am a single parent. I can't

afford to pay for the speech therapy. So what should I do next. Is

there any way I could get information on speech therapy at home where

I could help her. Or any other information would be greatly

appreciated. I just don't know what else to do.

Thank you,

S.

[Guest guest]

Hi,

You might check out Easter Seals or United Cerebal Palsey, they both have

grants available and work on a sliding scale. I have used both here in

Florida and both have had an SPL who understood about apraxia. Good Luck!

Eileen

-----Original Message-----

From: s.taylor5@... [mailto:s.taylor5@...]

HELP PLEASE

My six year old daughter has apraxia. My insurance through work

has denied paying for speech therapy twice. I make to much money for

a medical card and I've applied for a medical acess card but they

won't know anything for another three weeks. The Doctor that did the

evaluation is being of NO help. Matter of fact she has only delayed

things. The evaluation was done in March, 2001 she was then put on a

waiting list for speech therapy. Well she had a medical card for 2

months, they called in June,2001 for an appointment. So she ended up

only going 3 times before her medical card ran out!! Now we're

stuck. No one will try to help us. I am a single parent. I can't

afford to pay for the speech therapy. So what should I do next. Is

there any way I could get information on speech therapy at home where

I could help her. Or any other information would be greatly

appreciated. I just don't know what else to do.

Thank you,

S.

[Guest guest]

> What state do you live in? I have contacts all over

> and can hopefully put you in touch with someone in

> your state that can help. Every state has different

> " laws " but I think it is standard that the Public

> School System offer therapy if your child qualifies

> for it.

Dear ,

I am moving to Tennessee in December and need

therapies for my daughter. Do you have any contacts

in Tennessee? on county more specifically??

Oh I hope so. Here in PA they refused to give her

what she needed chalking it up to mom's imagination

that she'd do any better. Since we'ere moving at the

end of the year I opted not to fight but rather go

throughinsurance for her therapies and she is

THRIVING!!

But am really needing to be prepared so as not to

lose ground.

Thanks for any help'

>Deborah Lea

__________________________________________________

[Guest guest]

We've used the ish Rite foundation. They have speech and

language clinics around the country. I know ours is free to kids

that have speech problems no matter what their income is. In our

area, you receive therapy for 18 months. There is a long waiting

list, but we have received excellent therapy. The therapists that

we've seen at ish Rite have been better then our old private

therapist.

Also, try the school district. If your child is in public school,

then they have to provide the help.

Good luck.

Suzi

> My six year old daughter has apraxia. My insurance through work

> has denied paying for speech therapy twice. I make to much money

for

> a medical card and I've applied for a medical acess card but they

> won't know anything for another three weeks. The Doctor that did

the

> evaluation is being of NO help. Matter of fact she has only delayed

> things. The evaluation was done in March, 2001 she was then put on

a

> waiting list for speech therapy. Well she had a medical card for 2

> months, they called in June,2001 for an appointment. So she ended

up

> only going 3 times before her medical card ran out!! Now we're

> stuck. No one will try to help us. I am a single parent. I can't

> afford to pay for the speech therapy. So what should I do next. Is

> there any way I could get information on speech therapy at home

where

> I could help her. Or any other information would be greatly

> appreciated. I just don't know what else to do.

> Thank you,

> S.

[Guest guest]

I had the same struggles you did, my son was 9 when properly diagn. (which I

diag. with the help of the internet. He is receiving speech 3x a week

through the school system, which started on pre-school classification, and I

am homeschooling him because the school was not going to be giving him the

program he needed. When he was properly diagn. a year ago, I put in the

appeals through my insurance co. and then when to a stage three, state

appeals and I won, the insurance co. pays for 30 sessions a year, its not

great, but it is better than the initial NO SPEECH PAYMENTS. Look into the

appeals process. Document everything, get your letters of medicall necs.

from your childs doctor, and anything you can. I hope this helps. Good luck

Kathy

----- Original Message -----

From: <s.taylor5@...>

HELP PLEASE

> My six year old daughter has apraxia. My insurance through work

> has denied paying for speech therapy twice. I make to much money for

> a medical card and I've applied for a medical acess card but they

> won't know anything for another three weeks. The Doctor that did the

> evaluation is being of NO help. Matter of fact she has only delayed

> things. The evaluation was done in March, 2001 she was then put on a

> waiting list for speech therapy. Well she had a medical card for 2

> months, they called in June,2001 for an appointment. So she ended up

> only going 3 times before her medical card ran out!! Now we're

> stuck. No one will try to help us. I am a single parent. I can't

> afford to pay for the speech therapy. So what should I do next. Is

> there any way I could get information on speech therapy at home where

> I could help her. Or any other information would be greatly

> appreciated. I just don't know what else to do.

> Thank you,

> S.

>

>

>

>

>

> ****Official Statement from the 7/23,24/01 First Apraxia Conference,

presented also at the 9/20-22/01 Oxford UK Conference is NOW POSTED at

http://www.apraxia.cc ****

>

> Like information but not emails? Choose the option of " no emails web only "

to read, respond to, or post messages directly from the website. For all

the emails sent in one choose " digest. " If you need help with membership

options, please email , , or Rhonda at

-owner

>

> If you are looking for support in your own area, contact CHERAB's Outreach

Coordinator at nicole@...

>

> URL to the home page to change options/or to search the archives:

>

> Kaufman Kits & other products that may help:

http://shopinserviceinc.goemerchant2.com

[Guest guest]

Kathy,

I don't know about S. but this is helpful

to me!!

Thanks,

Deborah Lea

--- Bence <skben2@...> wrote:

> I had the same struggles you did, my son was 9 when

> properly diagn. (which I

> diag. with the help of the internet. He is receiving

> speech 3x a week

> through the school system, which started on

> pre-school classification, and I

> am homeschooling him because the school was not

> going to be giving him the

> program he needed. When he was properly diagn. a

> year ago, I put in the

> appeals through my insurance co. and then when to a

> stage three, state

> appeals and I won, the insurance co. pays for 30

> sessions a year, its not

> great, but it is better than the initial NO SPEECH

> PAYMENTS. Look into the

> appeals process. Document everything, get your

> letters of medicall necs.

> from your childs doctor, and anything you can. I

> hope this helps. Good luck

> Kathy

> ----- Original Message -----

> From: <s.taylor5@...>

> HELP PLEASE

> > My six year old daughter has apraxia. My insurance

> through work

> > has denied paying for speech therapy twice. I make

> to much money for

> > a medical card and I've applied for a medical

> acess card but they

> > won't know anything for another three weeks. The

> Doctor that did the

> > evaluation is being of NO help. Matter of fact she

> has only delayed

> > things. The evaluation was done in March, 2001 she

> was then put on a

> > waiting list for speech therapy. Well she had a

> medical card for 2

> > months, they called in June,2001 for an

> appointment. So she ended up

> > only going 3 times before her medical card ran

> out!! Now we're

> > stuck. No one will try to help us. I am a single

> parent. I can't

> > afford to pay for the speech therapy. So what

> should I do next. Is

> > there any way I could get information on speech

> therapy at home where

> > I could help her. Or any other information would

> be greatly

> > appreciated. I just don't know what else to do.

> >

> Thank you,

> >

> S.

[Guest guest]

Hi S. !

I'm sure you've read the advice from Dr. Marilyn Agin about insurance

from the archives here-if not, let us know and we will repost it for

you or anyone that needs it. I found an interesting post when I was

searching through my old posts from April of 1999 that is still

relevant today. The doctor mentioned in this email is an MD PhD and

worked at that time for a university. I haven't spoken to this

person for awhile, but the last time I asked they wanted us to have

this information but remain anonymous. So to the anonymous doctor

who shared this information-thanks from all of us!!

[Guest guest]

I would fight the insurance company. There are also different scholarships and

Easter seals too.

Nicky

> My six year old daughter has apraxia. My insurance through work

> has denied paying for speech therapy twice. I make to much money for

> a medical card and I've applied for a medical acess card but they

> won't know anything for another three weeks. The Doctor that did the

> evaluation is being of NO help. Matter of fact she has only delayed

> things. The evaluation was done in March, 2001 she was then put on a

> waiting list for speech therapy. Well she had a medical card for 2

> months, they called in June,2001 for an appointment. So she ended up

> only going 3 times before her medical card ran out!! Now we're

> stuck. No one will try to help us. I am a single parent. I can't

> afford to pay for the speech therapy. So what should I do next. Is

> there any way I could get information on speech therapy at home where

> I could help her. Or any other information would be greatly

> appreciated. I just don't know what else to do.

> Thank you,

> S.

[Guest guest]

In wash state where I live there is a Dept. of Dev. disabilities. One of the

things they do is give family support money each year of $1300, to be spend

on things related to child's disability. For example therapy payments that

aren't covered by insurance,adaptive equipment,etc. I don't know if there is

one in every state but there should be. Also I don't know if Easter seals can

help with that, or march of dimes. Hope this helps,Deb

[Guest guest]

Universities also usually offer low cost speech therapy done by students.

Usually these students put twice as much time and effort into their therapy and

certified SLP's supervise everything. Also some University's offer

" scholarships " to some who need it.

> My six year old daughter has apraxia. My insurance through work

> has denied paying for speech therapy twice. I make to much money for

> a medical card and I've applied for a medical acess card but they

> won't know anything for another three weeks. The Doctor that did the

> evaluation is being of NO help. Matter of fact she has only delayed

> things. The evaluation was done in March, 2001 she was then put on a

> waiting list for speech therapy. Well she had a medical card for 2

> months, they called in June,2001 for an appointment. So she ended up

> only going 3 times before her medical card ran out!! Now we're

> stuck. No one will try to help us. I am a single parent. I can't

> afford to pay for the speech therapy. So what should I do next. Is

> there any way I could get information on speech therapy at home where

> I could help her. Or any other information would be greatly

> appreciated. I just don't know what else to do.

> Thank you,

> S.

[Guest guest]

Hi again Deborah!!

Carla has started a support group in Nashville (mamacjtn@...) I am not sure

how far on County is from her, but I hope it is close!! She may be able

to help with advice for the school districts and with good areas to look at!!

In any case, I would go ahead and call the school districts in on County

and ask about their polices and testing for speech therapy. Ask if their SLP is

familiar with apraxia of speech, and as what her/his experience is. It would be

much easier to do this now, rather than wait until you are in the middle of

moving, unpacking boxes, etc. Anything to make the transition easier for your

daughter!!

Please let me know what else I can help with!!

Carnell

North Carolina

www.verbaldyspraxia.com

Re: [ ] HELP PLEASE

> What state do you live in? I have contacts all over

> and can hopefully put you in touch with someone in

> your state that can help. Every state has different

> " laws " but I think it is standard that the Public

> School System offer therapy if your child qualifies

> for it.

Dear ,

I am moving to Tennessee in December and need

therapies for my daughter. Do you have any contacts

in Tennessee? on county more specifically??

Oh I hope so. Here in PA they refused to give her

what she needed chalking it up to mom's imagination

that she'd do any better. Since we'ere moving at the

end of the year I opted not to fight but rather go

throughinsurance for her therapies and she is

THRIVING!!

But am really needing to be prepared so as not to

lose ground.

Thanks for any help'

>Deborah Lea

__________________________________________________

[Guest guest]

Thank you ,

Today was my day to find out if there was a

contact in on county for therapies--you read my

mind!! I am blessed. Thank you again for remembering

my need.

DeboraH Lea

--- Carnell <@...> wrote:

> Hi again Deborah!!

>

> Carla has started a support group in Nashville

> (mamacjtn@...) I am not sure how far on

> County is from her, but I hope it is close!! She

> may be able to help with advice for the school

> districts and with good areas to look at!! In any

> case, I would go ahead and call the school districts

> in on County and ask about their polices and

> testing for speech therapy. Ask if their SLP is

> familiar with apraxia of speech, and as what her/his

> experience is. It would be much easier to do this

> now, rather than wait until you are in the middle of

> moving, unpacking boxes, etc. Anything to make the

> transition easier for your daughter!!

>

> Please let me know what else I can help with!!

>

> Carnell

> North Carolina

> www.verbaldyspraxia.com

[Guest guest]

June,

I'll pray that the medication does the trick for you.

Sherri

--- June Dixon <juner24@...> wrote:

>

> I now have approval for Enbrel,so as soon as I pick

> up the prescription

> I can start learning how to do the injection. This

> is my absolute last

> resort med so I am keeping positive thoughts that I

> can tolerate it and

> that it helps.

>

> Hugs

> June

>

>

[Guest guest]

Hi June,

Good luck with the enbrel. Hope it is your magic bullet.

Lynn

----------

> From: June Dixon <juner24@...>

> Arthritis <RA-Support >

> Subject: [ ] help please

> Date: Wednesday, November 28, 2001 8:32 PM

>

> My email address of juner24@... becomes official on Friday Nov

> 30.How do I switch my accounts to my new address? My mind is blank

> at the moment.

>

> I now have approval for Enbrel,so as soon as I pick up the prescription

> I can start learning how to do the injection. This is my absolute last

> resort med so I am keeping positive thoughts that I can tolerate it and

> that it helps.

>

> Hugs

> June

>

>

[Guest guest]

June,

Use the following link to get to the Conversion Wizard. You

should be able to link your new email address to a ID by using it. If

you are still having trouble please let me know!

http://help./help/us/groups/groups-34.html

I pray that Enbrel will help you, but don't consider it an " absolute last

resort " ! More meds are on the way.

I got a big chuckle out of your Dr. Keystone farewell story. Thanks for

sharing it.

[ ] help please

> My email address of juner24@... becomes official on Friday Nov

> 30.How do I switch my accounts to my new address? My mind is blank

> at the moment.

>

> I now have approval for Enbrel,so as soon as I pick up the prescription

> I can start learning how to do the injection. This is my absolute last

> resort med so I am keeping positive thoughts that I can tolerate it and

> that it helps.

>

> Hugs

> June

[Guest guest]

Would someone please offer experiences or referrals

for developmental pediatricians and speech therapists

in/around St Louis MO.

Thanks for your help.

Birdie

[Guest guest]

Please email me privately and I will forward you a resource list for the STL

area that I maintain. I have an awesome speech path to recommend to you!

tlcrcm@...

Tricia Morin

STL Metro Apraxia Support Group

Would someone please offer experiences or referrals

for developmental pediatricians and speech therapists

in/around St Louis MO.

Thanks for your help.

Birdie

[Guest guest]

Birdie, email me off the list and I will send you an attachment with

a list STL area resources that I maintain.

tlcrcm@...

Tricia Morin

STL Metro Apraxia Support Group

Would someone please offer experiences or referrals

for developmental pediatricians and speech therapists

in/around St Louis MO.

Thanks for your help.

Birdie

[Guest guest]

Get a lawyer.

I finally reached that point after my boss strongly encouraged me to find another job. I am in management and do not have union support.

Surf the web and find a mold wise attorney.

I have been scheduled by my hospital's private insurer for a second opinion with an environmental specialist.

This whole experience can be a nightmare.

Good luck

Eileen

[Guest guest]

I just wanted to share this. This is still dealing with and to the Portsmouth Naval Shipyard dealing with incompetent uncaring insulting people...Janet s

JANET STEVENS

Date: 11/12/02 10:07:23 PM Eastern Standard Time

From: Gingersnap1964

_Morin@..., Olympia@..., EleftherionTA@..., MccoyKM@..., SychterzJA@...

CC: BoydLR@..., wilsondt@..., MaglarasDN@..., DevaneyTM@..., KautzJH@..., VanbramerLM@..., MerrillGE@..., MG@..., sidandrachelstevens@..., DebrittoNJ@..., Ohioson, Patywgn1@..., BufithisCP@..., REVDONNA719, ShortRE@..., SuslaDR@..., TLU867, madeskv@...

BCC: dandjmaglaras@..., WelchMP@...

Good morning,

I talked to Morin and Dan Maglaras had talked to Jerry and Bob Short. Today, I got a copy of everything in my file from Dr. . Mr. Morin said Jerry feels there is not enough evidence. I did not have this file before but everyone had my signed release forms. Mr. also informed Dan Maglaras that my whole problem is from use of nose spray and the mold probably showed up last season. Like I a wear a 3m mask and cant breathe for fun, as I told him.

I have written a letter of permission that is witmessed by my mother for Dan Maglaras to act as legal representitive to discuss workmens comp and HRO issues with Jerry and Bob Short. Danny , please also fax a copy of this email to Jerry as well. Thanks.

Today, Dan Maglaras will fax Jerry , Bob Short and Mr. Morin my files from Dr. . They state testing, sick building syndrome, severity of mold testing, reactions, medicines as well as stating he had to treat me for what happened in Boston. We ALL know about the hidden for a year Environmental Report. I will not lose this. I have lost my life and am getting worse. Dr. reccommends in these files followup with new Environmental Illness Specialist , Dr. Py' in Portland..

I do not know what else to send and how ALL this PLUS what is being done to have to go in the basement..........WHATS MISSING? Seems we should all be getting the picture. My attorney gets it. Pictures and all. He just doesnt deal with workmans comp issues. I cannot find a lawyer who will help that side of it once they hear the Shipyard and Bob Short. Why is that? I really am curious.

I have informed Mr. Morin today that I will NOT let myself be skin tested with this OWCP doctor.It will kill me. as I am so much worse from mold then Boston high dose testing of molds.Whom ever thinks I am making this up can come stay with me for a day. Phil, it is much worse now then when you were here. I have one letter that Jerry has that Dr. Py states this testing from OWCP doctor could WORSEN my situation and I am highly reactive at this time. I will ALSO have a letter from Dr. stating this.

My last words to Mr. Morin were, as a government employee I am appalled at the system that is supposed to help me in this situation. All HRO and OWCP have done is put stumbling blocks for me as I worsen. I cant even drive now. Most days I do not get out of bed. And ER asthma attavcks.

I also have a family member who has done alot of work with Senator . I have given him information to try and get me more help. I am INSULTED that Jerry in OWCP called me a liar and only problem is nose spray. He said he would take a witness testimony about Boston as he did not believe me about that either. I sent it. Today he told Dan Maglaras he changed his mind and wont accept it.

Some of you people want my blood. You have already helped take my life by hiding a report EIGHT months and HRO hindering me in extensions and letters and OWCP keeps giving me hoops to jump through. I also sent what OPM sent to me about questioning the shipyard at working at home to the Shipyard today and did not recieve a reply.

I also still need a signed affidavit from Mari Shults stating that she reccommended I take those three and a half weeks off on advance sick leave in April, and Mike called me at home then and said he agreed and there was no spot for me to come to at the time on the Shipyard.

Terry, if you would like a copy of these files,please let Dan Maglaras know at ext. 3215. Him and his wife Joyce are my best friends and only ones I trust right now. I feel very much alone and abandoned and would like help.

Thank you for your time,

Janet s 207 384 2242

[Guest guest]

Absolutely do NOT let them send them to McGhan. You paid for them and they

are YOURS!

Lynda

At 06:16 PM 3/26/2004, you wrote:

>First the good news...explant and lift yesterday and everything went

>great! But my PS told me that both of my implants were leaking, at

>least 30cc's short on each side when he acounts for max weight of the

>shell and what he put in during implant. Now they go to pathology

>and then they want to sent them to Mcghan " to test them. " I told

>them I might want them so before they send to Mcghan they will let me

>know. I have asked this at least one million times, but I hope you

>don't mind one more time...what do I have to lose to send to Mcghan

>if the doc admits they were leaking through the valve? I remember it

>was maybe Shari who said that if I take their 1200 $$$ for damage

>then I have to sign that I will never sue. The question is

>this...are the saline girls ever going to be able to prove that

>saline implants are as damaging as the silicone??? I never really

>thought about it before because I was told that saline was an intert

>substance and that it did not matter if they leaked. Will we ever be

>able to prove otherwise or that it is the bags themselves???

>

>Thanks ladies as always,

>

>Ann

>

>

>

>

[Guest guest]

if your implants were faulty, contact sawyer. she's working on putting together a suit for women who had implants with faulty valves, etc. her email is indysurvivor@.... i'm sure she can tell you about all the legal stuff.

From: Lynda <coss@...>

Reply-

Date: Fri, 26 Mar 2004 19:04:06 -0700

Subject: Re: Help Please

Absolutely do NOT let them send them to McGhan. You paid for them and they

are YOURS!

Lynda

At 06:16 PM 3/26/2004, you wrote:

>First the good news...explant and lift yesterday and everything went

>great! But my PS told me that both of my implants were leaking, at

>least 30cc's short on each side when he acounts for max weight of the

>shell and what he put in during implant. Now they go to pathology

>and then they want to sent them to Mcghan " to test them. " I told

>them I might want them so before they send to Mcghan they will let me

>know. I have asked this at least one million times, but I hope you

>don't mind one more time...what do I have to lose to send to Mcghan

>if the doc admits they were leaking through the valve? I remember it

>was maybe Shari who said that if I take their 1200 $$$ for damage

>then I have to sign that I will never sue. The question is

>this...are the saline girls ever going to be able to prove that

>saline implants are as damaging as the silicone??? I never really

>thought about it before because I was told that saline was an intert

>substance and that it did not matter if they leaked. Will we ever be

>able to prove otherwise or that it is the bags themselves???

>

>Thanks ladies as always,

>

>Ann

>

>

>

>

[Guest guest]

ann

congrats and I hope you are feeling ok

In my opinion I would never, ever send them back to the mfg- even if we will never be able to sue, you need to know the truth about them and what is lurking in them - especially since they were leaking. Mine were also leaking - 30 cc on one side and they were contaminated - you need to know if this is the case so you can medically be treated properly. I don't think the mfg will come out and give you and of this news which may be helpful in your treatment. also - who knows if maybe we may have a legal case one day? if so you won't have a leg to stand on. just my opinions...

shari

[Guest guest]

Ann, I can't guarantee what will happen or when, but I am determined

to file suit against the implant manufacturers Mentor and McGhan.

Dr. Blais said that they both used the same subcontractor to make

their valves so that means both manufacturers made implants with

faulty valves. Sawyer (a lawyer who had implants and got sick) is

collecting names from those of us who have gotten proof (from Dr.

Blais) that they have/had implants with faulty valves and got sick

AFTER getting them. It may take forever like with the silicone ones

and who knows if we will ever succeed, but I am hopeful that we

will. Maybe with Kacey's story fresh in the media, we'll get some

much needed coverage and things will start rolling along. It's

totally up to you how you want to proceed.

Pam

> First the good news...explant and lift yesterday and everything

went

> great! But my PS told me that both of my implants were leaking, at

> least 30cc's short on each side when he acounts for max weight of

the

> shell and what he put in during implant. Now they go to pathology

> and then they want to sent them to Mcghan " to test them. " I told

> them I might want them so before they send to Mcghan they will let

me

> know. I have asked this at least one million times, but I hope you

> don't mind one more time...what do I have to lose to send to Mcghan

> if the doc admits they were leaking through the valve? I remember

it

> was maybe Shari who said that if I take their 1200 $$$ for damage

> then I have to sign that I will never sue. The question is

> this...are the saline girls ever going to be able to prove that

> saline implants are as damaging as the silicone??? I never really

> thought about it before because I was told that saline was an

intert

> substance and that it did not matter if they leaked. Will we ever

be

> able to prove otherwise or that it is the bags themselves???

>

> Thanks ladies as always,

>

> Ann

[Guest guest]

THANK YOU. I WILL CHECK IT OUT

Mike