Help please

[Guest guest]

Mike,

On the spotlight_LDN group (another group for people with MS

who are on LDN or intersted in it) there has been some discussion

over the last year to year and a half about cord blood stem cell

treatment. The main company discussed that was doing this was

Biomark. Several of the people on that board were signed up to get a

stem cell treatment from Biomark last November in Atlanta Ga. when

the FDA stepped in and shut them down and closed down their web

site. Within the last few months, however, the web site was allowed

to start back up and Biomark is continuing to do the cord blood stem

cell treatments, just not doing them in the United States anymore. I

read a post there in the last month or so that said they will be

doing them in Canada and Mexico as well as in Europe. Their web site

is WWW.biomark-intl.com. Actually I think the moderator of that

group, Lawrence Finestone, is getting a stem cell treatment

right now. I do not know, however, if he is getting it through

Biomark or not as when the FDA shut Biomark down, he said he was

going to look for another option so I don't know if he went with

Biomark in another country or some other group.

I think the message number of the messages where the posts about cord

blood stem cells started was around message # 1639.

Hope that helps.

Diane

> DOES ANYONE HAVE ANY INFORMATION ON CORDBLOOD TREATMENT? AND HAS

ANYONE TRIED

> DL-PHENYLALINE .?

>

> Mike

[Guest guest]

biomark is back up and running ...i know because im getting the cord stem

cell treatment at the end of this month in london...but i will never stop taking

my ldn..good luck to you if you are going to try it..

=ellery

> > DOES ANYONE HAVE ANY INFORMATION ON CORDBLOOD

TREATMENT? AND HAS

> ANYONE TRIED

> > DL-PHENYLALINE .?

> >

> > Mike

[Guest guest]

PLEASE TELL ME MORE ABOUT BIOMARK AND HOW TO CONNECT WITH THEM

----- Original Message -----

From: hospitalmouth

low dose naltrexone

Sent: Tuesday, May 04, 2004 1:53 PM

Subject: [low dose naltrexone] Re: HELP PLEASE

biomark is back up and running ...i know because im getting the cord stem cell treatment at the end of this month in london...but i will never stop taking my ldn..good luck to you if you are going to try it..=ellery> > DOES ANYONE HAVE ANY INFORMATION ON CORDBLOOD TREATMENT? AND HAS > ANYONE TRIED > > DL-PHENYLALINE .?> > > > Mike

[Guest guest]

hi.......any chance of supplying details to me about this....please....im in

ipswich uk.......dave uk

----- Original Message -----

> biomark is back up and running ...i know because im getting the cord stem

> cell treatment at the end of this month in london...but i will never stop

taking

> my ldn..good luck to you if you are going to try it..

>>

>

>

>

>

>

[Guest guest]

here is the website

http://www.biomark-intl.com/

-hm

> > > DOES ANYONE HAVE ANY INFORMATION ON CORDBLOOD

> TREATMENT? AND HAS

> > ANYONE TRIED

> > > DL-PHENYLALINE .?

> > >

> > > Mike

>

>

>

> ------------------------------------------------------------------------------

>

[Guest guest]

Ellery,

Would you please be so kind as to keep us posted as to how you do

with the stem cell treatment, symptoms it helps, side effects, if

any, etc.?

Wishing you the best of luck with it.

Diane

> > Mike,

> >

> > On the spotlight_LDN group (another group for people with

MS

> > who are on LDN or intersted in it) there has been some discussion

> >

[Guest guest]

for sure i will..i have been trying to get this done for six months at least but

the

f.d.a. shut them down for a spell..i am not a fan of american medicine.

as far as side efects there are not supposed to be any and i am to notice

improvement for over a year.

but ill let you know how it is for me..

=ellery=

> > > Mike,

> > >

> > > On the spotlight_LDN group (another group for people with

> MS

> > > who are on LDN or intersted in it) there has been some discussion

> > >

[Guest guest]

ARE YOU SAYING THAT YOU WILL FEEL BETTER FOR A YEAR OR IN IN A YEAR

WHICH CENTER ARE YOU GOING TO

----- Original Message -----

From: hospitalmouth

low dose naltrexone

Sent: Tuesday, May 04, 2004 3:11 PM

Subject: [low dose naltrexone] Re: HELP PLEASE

for sure i will..i have been trying to get this done for six months at least but the f.d.a. shut them down for a spell..i am not a fan of american medicine.as far as side efects there are not supposed to be any and i am to notice improvement for over a year.but ill let you know how it is for me..=ellery=> > > Mike,> > > > > > On the spotlight_LDN group (another group for people with > MS > > > who are on LDN or intersted in it) there has been some discussion > > >

[Guest guest]

for a year is what i understand...i am going to biomark in london...also this is

just what i know. if you want to hear it from the horses mouth(not the

hospitalmouth) please visit there website.

http://www.biomark-intl.com/

take care

=ellery=

> > > > Mike,

> > > >

> > > > On the spotlight_LDN group (another group for people with

> > MS

> > > > who are on LDN or intersted in it) there has been some discussion

> > > >

>

>

>

[Guest guest]

THANK YOU FOR YOUR INFORMATION.I AM ALREADY RECEIVING LDN FROM SKIP'S HIS PRICES ARE BETTER.THE PROBLEM IS MY NEURO WILL NOT CONTINUE MY PRESCRIPTION,BECAUSE HE DOES NOT BELIEVE IN IT.THANK YOU AGAIN!

Mike

[Guest guest]

This doc does phone consults, but is also in Mechanicsburg PA, so

this should set you all up:

Sullican 717.591.0920

I found SkupsPharmacy.com 800.553.7429 to be much cheaper for LDN

than the pharmacy Sullivan recommended.

Sam

> CAN ANYONE GIVE ME CONTACT INFO FOR A DOCTOR AROUND HARRISBURG PA

THAT WILL

> PRESCRIBE LDN ? THANK YOU

>

> Mike

[Guest guest]

SORRY I AM FROM PA.

Mike

[Guest guest]

Try drinking more water and reducing the amount of fat in your diet.

Are you eating out a lot? That can cause gallbladder pain.

> Hi everyone:

>

> Can someone Please tell me what Flushing does?? I heard the name before

> but nobody seems to know what it does or if it works or when the

> procedure is done. Can someone who has done this flushing help me out.

> I get a lot of Gallbladder attacks but my blood tests and ultrasounds

> always come out negative. No doctor seems to want to listen or help. I

> had a test done that tells my Gallbladder doesn't empty like it should.

> I am tired of all these attacks and hearing the word Flush and nobody

> tells me what Flush is. Is it something a doctor does or is it a home

> remedy?? When is it done before or after an attack?? Does it really

> work. I hear also there is a Chinese Herb that is suppose to help.

>

> Thanks

>

[Guest guest]

Hello Francesco

The best person you can see in London is called:

Mr Collin (in the UK, surgeons are called " Mr " )

Their email is broken, so please phone or fax.

His secretary is called

If you were to phone now - you would get an appointment for December or

possibly January, I don't now but I am estimating this based on what people

have told me. That is how long the waiting list is.

An initial consultation costs 150 uk pounds

The contact numbers are:

You need to start with +44 - 20 then

... Phone - 7486 2699

... Fax - 7486 8626

He also works at Moorfields Eye Hospital

http://www.moorfields.org.uk/PrivatePatients/copy_of_Consultants

Regarding advice - the best thing you can to is to talk to Mr Collin. May I

suggest that you ask him if he has worked with a doctor near you in Milan.

This way you may be able to see somebody more quickly.

I have met more than 30 people with BPES. Almost everyone is different. As

years go by surgery techniques get better, people know more.

You may find this article interesting:

http://www.emedicine.com/ent/topic97.htm

It is a detailed article on surgery - written by what appears to be a group

of very reputable people.

Also, you may find this useful

http://www.geneclinics.org/servlet/access?db=geneclinics & site=gt & id=8888891 &

key=yvyThuThGZXK5 & gry= & fcn=y & fw=suti & filename=/profiles/bpes/index.html

I hope that this helps.

Ciao

Shireen

London, England

> blepharophimosis Help please

>

> Dear all of you,

>

> I'm the father of a 20 mounths years old called Caterina.

> She has the bleptarophimosis but any of our relatives are

> affected so it was a shock for us !!!

> We live in Milan (Italy).

>

> She had a first surgery 6 mounths ago for the ephicantus

> inversus and now 3 different doctors told us that in about 1

> year we have to effort a second step for the elevator muscle

> suspension.

>

> Our fear is referred to how to choise the best doctor on this

> relativelt rare operation.

>

> I saw that some of you are fron England. Do you have for

> exeample in London a good doctor to suggest us ? Someone that

> did a lot of this surgery ?

>

> On the books some doctor told that is better to do this

> surgery with a partial anesthesia in order to permit to fix

> in the proper way the lenght of the silicon (or other

> material) " belt " in order to avoid to have eyes partially

> open everytime. Any expeience on that fact ?

>

> We really appreciate your help. Is quite better to know that

> other people are in the same boat of us. It seems that we are

> the only one in Milan with this problem (on a total of 2

> million people !!)

>

> Best regards from Francesco, Olga and for sure Caterina

>

>

>

>

>

>

[Guest guest]

Hi Francesco

You are welcome.

I don't know how many people he has operated on. What I know is that I asked one of the doctors who was training in his clinic "how many people do you see every week who have BPES?" He relied something like 2 or 3 a month. So - I guess he and his colleagues would have more than 100 patients. That is for certain. I first saw him in 1988.

There are several people in this group who have had the benefit of Mr Collin's treatment. I am sure that they will reply to you. I have met 2 of them, mother and daughter.

Also, 3 families in the group are seeing him in November/December. So you will be able to ask them for some feedback.

I can tell you that he is a very nice man, makes people, and children feel very at ease. He is highly respected and people from all over the world go to Moorfields Eye Hospital to work with him.

You may find it useful to look back at some of the posts - especially this one:

message no 1441

Also, as it happens, I do have some friends in Milan, and it is likely that I will be in your town some time soon. My friends are bridge players, and they are always telling us that we should come over for a long weekend.

If you want to speak on the phone, I would be happy to do that - just let me have your number and I will call you. I pay about 2 cents a minute! so we can talk for as long as you like.

Take care

Shireen

From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of fraolgaSent: 27 August 2005 11:06blepharophimosis Cc: Olga CKSubject: R: blepharophimosis Help please

Hi Shireen,

thank you very much indeed for your infos and your support.

We fixed for the 8th of December a visit with Mr and we will see. Do you know how many surgery like this he have done ? Have you had any experience with this hospital/doctor ? What will be a little bit difficult will be to manage the post surgery time between Milan and London (and we have to check also the costs of this).

If you will come any time to Milan let us know !

Ciao,

Francesco

[Guest guest]

I need help I nee to get off my methadone and I really don't want to

go back to my pain managment doctor I am going to make an appointment

will my RA doctor as soon as possiable to see if he can help me I sure

hope he can as I need help from anyone that can tell me any thing that

might help has any one been there I am on 3 every 6 hours now I was on

4 every 6 hours so I have cut down 4 pills a day all ready the pain is

coming back bad now any help would be nice

Sherriein OK

[Guest guest]

Hi everyone- I have already posted this but will post it again. Naltrexone. It is the perfect thing to help you. www.naltrexone.com give it a look see eh???? Yours, Deborah

[Guest guest]

You say you need help to get off methadone but you don't want to turn

to your pain management doctor? Why not? That would seem to be the best

option. If you don't care for the doctor you could consult another.

Sierra

--- In Rheumatoid Arthritis , " Sherrie " <scorn720@y...>

wrote:

>

> I need help I nee to get off my methadone and I really don't want

to

> go back to my pain managment doctor I am going to make an appointment

> will my RA doctor as soon as possiable to see if he can help me I

sure

> hope he can as I need help from anyone that can tell me any thing

that

> might help has any one been there I am on 3 every 6 hours now I was

on

> 4 every 6 hours so I have cut down 4 pills a day all ready the pain

is

> coming back bad now any help would be nice

> Sherriein OK

>

[Guest guest]

and Peace,

I so appreciate your concern and love and send it right back to you.

Love, Light, Peace and Joy,CherylVisit me at: http://www.myspace.com/senegalady

It's raining cats and dogs -- Come to PawNation, a place where pets rule!

[Guest guest]

Dearest Cheryl,

I do not have the words and help that you are seeking, and I'm sure that there

are others on this list who can do much better than I can in offering help. I

just want to say that as I read your post, my heart opened up, and all I know is

that I can feel some of what you are going through. Personally, I think life is

hard. Very hard. Probably not what I'm " supposed " to be saying with all the

new age stuff I have read in my life. It's not easy for me, and all I can say

is that we're all here together, to love, to hug, and to cry with each other

too. There is nothing else I can say, but I want you to know that I love you,

and we are family.

>

> Dear Friends,

>

> I need help. I feel that my emotions have shut down because of everything

> I have had to deal with in this past 7 months. The death of my brother

> and then my sister getting cancer. She is in chemo now and has just lost all

> of her hair and as you know, I shaved my head in solidarity with her. But

> what I am concerned about is that I haven't cried but one time in the last

> 7 months and I know that I am shutting out emotions (unconsciously),

> because I am acting compulsively and having a lot of physical stress related

> problems. I am not sure what to do about this and seek you advice or help.

I

> do not believe that a person who doesn't show emotions is strong. If

> anything I believe the opposite, so I don't understand why this is happening.

>

> Love, Light, Peace and Joy,

> Cheryl

> Visit me at: _http://www.myspace.com/senegalady_

> (http://www.myspace.com/senegalady)

>

> **************It's raining cats and dogs -- Come to PawNation, a place

> where pets rule! (http://www.pawnation.com/?ncid=emlcntnew00000008)

>

[Guest guest]

Dear Cheryl

I have been this way for about 6 months myself.

I keep asking and clearing and looking deeper.

I have not cried over my Sister, I watch my Mom lose it and I try to comfort but when you dont feel anything it is difficult to show even compassion.

I think I am shut down too.

So I am with you on the Help Please.

Love and Blessings,

Peace

[Guest guest]

I am sending you much Love and Light. I know that anyone dealing with grief has their own journey. There is no judgment about this - everyone does it differently and everyone is correct in the way they do this. Be gentle with yourself. Allow yourself the time you require.

I do know you can ask for help. In that soft space of surrender is where the Grace comes in to fill you. In the most difficult moments of my journey breathing meditation was really where I found that peace.

Love and More Love

From: senegalady@... <senegalady@...>Subject: [] Help please Date: Tuesday, June 30, 2009, 3:51 PM

Dear Friends,

I need help. I feel that my emotions have shut down because of everything I have had to deal with in this past 7 months. The death of my brother and then my sister getting cancer. She is in chemo now and has just lost all of her hair and as you know, I shaved my head in solidarity with her. But what I am concerned about is that I haven't cried but one time in the last 7 months and I know that I am shutting out emotions (unconsciously) , because I am acting compulsively and having a lot of physical stress related problems. I am not sure what to do about this and seek you advice or help. I do not believe that a person who doesn't show emotions is strong. If anything I believe the opposite, so I don't understand why this is happening.

Love, Light, Peace and Joy,CherylVisit me at: http://www.myspace. com/senegalady

It's raining cats and dogs -- Come to PawNation, a place where pets rule!

[Guest guest]

i do not know..... but maybe there may be shutting out of thoughts that are threatening, and it is this that may be the reason for the shutting out of emotions.emotions are responses to thoughts... however subtle and silent these thoughts may be. so maybe, one way is to watch all one's thoughts, no matter how threatening they may be and no matter how silent they may be. they are passing, but by withholding them or controlling them, one may be suppressing certain kinds of thoughts that might be unpleasant, which may lead to loss of emotions.also compulsive action often indicates controlled thought-emotion, and when the control is persistent, compulsive action often squeezes through one's defenses (an indication that one is not really in control, though one may be exerting it to give thought a chosen direction).best wishes for yourself and

your sister,saurab From: senegalady@... <senegalady@...>Subject: [] Help please Date: Wednesday, 1 July, 2009, 4:21 AM

Dear Friends,

I need help. I feel that my emotions have shut down because of everything I have had to deal with in this past 7 months. The death of my brother and then my sister getting cancer. She is in chemo now and has just lost all of her hair and as you know, I shaved my head in solidarity with her. But what I am concerned about is that I haven't cried but one time in the last 7 months and I know that I am shutting out emotions (unconsciously) , because I am acting compulsively and having a lot of physical stress related problems. I am not sure what to do about this and seek you advice or help. I do not believe that a person who doesn't show emotions is strong. If anything I believe the opposite, so I don't understand why this is happening.

Love, Light, Peace and Joy,CherylVisit me at: http://www.myspace. com/senegalady It's raining cats and dogs -- Come to PawNation, a place where pets rule!

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