Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hi, I do give my son water kefir, but I make it with water and sugar ans some lemon, he loves it, and if I don't put lemon I get to water his milk with it also, I water down his fresh juices and lemonade with it, I'm not sure what strain of probiotic has (anyone knows?), this has worked wonders for me, because I'm not exposing him to be sensitive to coconuts. and I don't freak out so much if I run out of probiotics or if couldn't give him any during the day. jm ________________________________ From: claire <cccrous@...> Sent: Tue, August 10, 2010 4:59:16 AM Subject: [ ] Young coconut kefir/strange behaviours/Mysuperteach(Anita) Hi I guess i wish to ask Anita this question.... I started making YCK using kefir grains for my 3 yr old son-I started slow but he seemed to crave it so we upped his volume to 500ml over the day within a few weeks.we saw diarrhoea which seemed like dieoff/clearout with nice general improvements but as the time went by we started seeing him do strange PANDAS like behaviours-stooping down to touch the ground every few minutes -strange whale like noises with his mouth and saying mmmmm over and over .I stopped the kefir as it seemed to be one of the possibilities for causing this new behaviour. and as the week went by the behaviour subsided .During the time i stopped the kefir my son started refusing juice requesting " water " meaning kefir water . Well i started it back yesterday -again he was craving it all day -going to get bottle himself so to satisfy him I put a splash in each cup- well the behaviours are back exactly as before.could it be strep in the YCK that is triggering this...Im not even certain what cultures with the grains.I know there is so much research out there to say that strep therm.does not aggravate /cause PANDAS. Hr did have 2+ of alpha haem strep in his CDSA 6 months ago. What advice do you have Anita ?I see in a previous post that you give huge doses of probio and i feel that my son needs it to heal his gut.when we have alot on board he's much more connected /social but now he's actually more withdrawn.could it just be Die off. Any help would be greatly appreciated Joe's mom 3yrs old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Could you be seeing a yeast die-off reaction that is causing stimming or other issues, not a PANDAS reaction? Have you tried giving him activated charcoal, clay, clay baths, epsom baths or anything else for detox? Warm Regards, Summer McFarland 1.22 HEAL KIDS 1.224.325.5437 --------------------------------------------------------------------------------\ ------------------------------------- Over fourteen years of organic search engine optimization, marketing and design. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hi , First let me say I'm really, really far from expert on this. What your son is doing doesn't sound like die-off I've heard about from most kids, but of course, if you talk to enough parents, almost anything can look like anything. If it is die-off, activated charcoal might help and give you a clue as to what is going on. I must say though that it would seem strange to me that a child would be craving something that is causing die-off though--die off feels pretty crappy--so my suspicion would be that it isn't that. Often kids do seem to crave stuff that isn't good for them, that their body can't metabolize properly, and this might be the case with the coconut. Have you used other coconut with your son, and if so, were there any problems? I know that some people have said that strep strain bacteria in certain probiotics have caused issues for their kids. Nothing I've ever read anywhere would confirm that--in fact, stuff like kefir is supposed to be preventative of things like Strep B running rampant in your system. What would me my choice for this is to stop using the coconut kefir and try to get him on another type of cultured drink to see what happens then. As you say, the behaviour stops when your remove the kefir. Perhaps water kefir would be a good choice, although those grains are a bit harder to get. The last thing I can suggest is perhaps looking here http://bodyecology.com/bedecologists.php to see if someone trained in the BED might be willing to answer your question. BED really promotes coconut kefir and perhaps there's been some problem like this before. Long shot, as people who really promote something tend not to acknowledge problems with that something well, but it might be worth it. Sorry I can't be of more help. I hope you're able to figure this out soon. Anita > > Hi I guess i wish to ask Anita this question.... > I started making YCK using kefir grains for my 3 yr old son-I started slow but he seemed to crave it so we upped his volume to 500ml over the day within a few weeks.we saw diarrhoea which seemed like dieoff/clearout with nice general improvements but as the time went by we started seeing him do strange PANDAS like behaviours-stooping down to touch the ground every few minutes -strange whale like noises with his mouth and saying mmmmm over and over .I stopped the kefir as it seemed to be one of the possibilities for causing this new behaviour. and as the week went by the behaviour subsided .During the time i stopped the kefir my son started refusing juice requesting " water " meaning kefir water . Well i started it back yesterday -again he was craving it all day -going to get bottle himself so to satisfy him I put a splash in each cup- well the behaviours are back exactly as before.could it be strep in the YCK that is triggering this...Im not even certain what cultures with the grains.I know there is so much research out there to say that strep therm.does not aggravate /cause PANDAS. Hr did have 2+ of alpha haem strep in his CDSA 6 months ago. What advice do you have Anita ?I see in a previous post that you give huge doses of probio and i feel that my son needs it to heal his gut.when we have alot on board he's much more connected /social but now he's actually more withdrawn.could it just be Die off. > Any help would be greatly appreciated > > Joe's mom 3yrs old > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 If you are using BED kefir starter I believe it's cultured using milk. My daughter gets hyper with the coconut kefir although less now than previously. She has issues with yeast and coconut. [ ] Re: Young coconut kefir/strange behaviours/Mysuperteach(Anita) Hi , First let me say I'm really, really far from expert on this. What your son is doing doesn't sound like die-off I've heard about from most kids, but of course, if you talk to enough parents, almost anything can look like anything. If it is die-off, activated charcoal might help and give you a clue as to what is going on. I must say though that it would seem strange to me that a child would be craving something that is causing die-off though--die off feels pretty crappy--so my suspicion would be that it isn't that. Often kids do seem to crave stuff that isn't good for them, that their body can't metabolize properly, and this might be the case with the coconut. Have you used other coconut with your son, and if so, were there any problems? I know that some people have said that strep strain bacteria in certain probiotics have caused issues for their kids. Nothing I've ever read anywhere would confirm that--in fact, stuff like kefir is supposed to be preventative of things like Strep B running rampant in your system. What would me my choice for this is to stop using the coconut kefir and try to get him on another type of cultured drink to see what happens then. As you say, the behaviour stops when your remove the kefir. Perhaps water kefir would be a good choice, although those grains are a bit harder to get. The last thing I can suggest is perhaps looking here http://bodyecology.com/bedecologists.php to see if someone trained in the BED might be willing to answer your question. BED really promotes coconut kefir and perhaps there's been some problem like this before. Long shot, as people who really promote something tend not to acknowledge problems with that something well, but it might be worth it. Sorry I can't be of more help. I hope you're able to figure this out soon. Anita > > Hi I guess i wish to ask Anita this question.... > I started making YCK using kefir grains for my 3 yr old son-I started slow but he seemed to crave it so we upped his volume to 500ml over the day within a few weeks.we saw diarrhoea which seemed like dieoff/clearout with nice general improvements but as the time went by we started seeing him do strange PANDAS like behaviours-stooping down to touch the ground every few minutes -strange whale like noises with his mouth and saying mmmmm over and over .I stopped the kefir as it seemed to be one of the possibilities for causing this new behaviour. and as the week went by the behaviour subsided .During the time i stopped the kefir my son started refusing juice requesting " water " meaning kefir water . Well i started it back yesterday -again he was craving it all day -going to get bottle himself so to satisfy him I put a splash in each cup- well the behaviours are back exactly as before.could it be strep in the YCK that is triggering this...Im not even certain what cul tures with the grains.I know there is so much research out there to say that strep therm.does not aggravate /cause PANDAS. Hr did have 2+ of alpha haem strep in his CDSA 6 months ago. What advice do you have Anita ?I see in a previous post that you give huge doses of probio and i feel that my son needs it to heal his gut.when we have alot on board he's much more connected /social but now he's actually more withdrawn.could it just be Die off. > Any help would be greatly appreciated > > Joe's mom 3yrs old > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 Thanks so much to all who responded. Im struggling with this one .we are already doing the charcoal every afternoon at the minute to try and mop up die off. we do see a slight improvement in his clarity afterwards but these new behaviours are still there -they are very " tic " like.perhaps it is the coconut as ye have kindly suggested -I havent given him coconut in any other form. I will get grains and try just plain kefir water in his juice.He is definately craving it as he takes a sip from his cup when its plain diluted juice and puts it down and goes straight to get the bottle. Has anyone seen this kind of behavoiur to a food reaction-Joe has so many things going on I really dont know which is which a stim ... food reaction... him just being 3 yrs old. ..pain.Its so hard when the kids dont have the verbal ability to tell you.he does have words but at this stage its labelling. again thank you all kindly for your advice > > > > Hi I guess i wish to ask Anita this question.... > > I started making YCK using kefir grains for my 3 yr old son-I started slow but he seemed to crave it so we upped his volume to 500ml over the day within a few weeks.we saw diarrhoea which seemed like dieoff/clearout with nice general improvements but as the time went by we started seeing him do strange PANDAS like behaviours-stooping down to touch the ground every few minutes -strange whale like noises with his mouth and saying mmmmm over and over .I stopped the kefir as it seemed to be one of the possibilities for causing this new behaviour. and as the week went by the behaviour subsided .During the time i stopped the kefir my son started refusing juice requesting " water " meaning kefir water . Well i started it back yesterday -again he was craving it all day -going to get bottle himself so to satisfy him I put a splash in each cup- well the behaviours are back exactly as before.could it be strep in the YCK that is triggering this...Im not even certain what cultures with the grains.I know there is so much research out there to say that strep therm.does not aggravate /cause PANDAS. Hr did have 2+ of alpha haem strep in his CDSA 6 months ago. What advice do you have Anita ?I see in a previous post that you give huge doses of probio and i feel that my son needs it to heal his gut.when we have alot on board he's much more connected /social but now he's actually more withdrawn.could it just be Die off. > > Any help would be greatly appreciated > > > > Joe's mom 3yrs old > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 I am not nearly as knowledgeable as Anita...but I am wondering if what you might be seeing is viral die off. My kids had all kinds of issues when we did young coconut kefir for a while...even a tablespoon at first made us horribly sick. What happens if you add say apple juice instead of the young coconut juice. We couldn't tolerate that one for a long time. Are you using water kefir grains or milk.... I have used both with juice and done well but they are I believe different strains. Right now, I actually have a few milk grains with my water kefir. For milk kefir, we do 1 can coconut milk, 1 cup dairyfree milk powder and 1 cup soy to make a gallon, since we are dairy free. My kids will drink this and water kefir and kombachu like there was nuttin else to drink...so I rotate them thru the day... hope this helps Ronni > > > > Hi I guess i wish to ask Anita this question.... > > I started making YCK using kefir grains for my 3 yr old son-I started slow but he seemed to crave it so we upped his volume to 500ml over the day within a few weeks.we saw diarrhoea which seemed like dieoff/clearout with nice general improvements but as the time went by we started seeing him do strange PANDAS like behaviours-stooping down to touch the ground every few minutes -strange whale like noises with his mouth and saying mmmmm over and over .I stopped the kefir as it seemed to be one of the possibilities for causing this new behaviour. and as the week went by the behaviour subsided .During the time i stopped the kefir my son started refusing juice requesting " water " meaning kefir water . Well i started it back yesterday -again he was craving it all day -going to get bottle himself so to satisfy him I put a splash in each cup- well the behaviours are back exactly as before.could it be strep in the YCK that is triggering this...Im not even certain what cultures with the grains.I know there is so much research out there to say that strep therm.does not aggravate /cause PANDAS. Hr did have 2+ of alpha haem strep in his CDSA 6 months ago. What advice do you have Anita ?I see in a previous post that you give huge doses of probio and i feel that my son needs it to heal his gut.when we have alot on board he's much more connected /social but now he's actually more withdrawn.could it just be Die off. > > Any help would be greatly appreciated > > > > Joe's mom 3yrs old > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2010 Report Share Posted August 15, 2010 Strep strains of probiotics definitely aggravate PANDAS symptoms in my son and in many other kids. Could be the addition of kefir is crowding out some yeasts but allowing the strep to increase. Wd have used Phyto-biotic by enzymatic Therapy or Paradise Herbs Olive Leaf Extract to keep strep in check, along with probiotics w/o s. thermophilus. Jo > > > > > > Hi I guess i wish to ask Anita this question.... > > > I started making YCK using kefir grains for my 3 yr old son-I started slow but he seemed to crave it so we upped his volume to 500ml over the day within a few weeks.we saw diarrhoea which seemed like dieoff/clearout with nice general improvements but as the time went by we started seeing him do strange PANDAS like behaviours-stooping down to touch the ground every few minutes -strange whale like noises with his mouth and saying mmmmm over and over .I stopped the kefir as it seemed to be one of the possibilities for causing this new behaviour. and as the week went by the behaviour subsided .During the time i stopped the kefir my son started refusing juice requesting " water " meaning kefir water . Well i started it back yesterday -again he was craving it all day -going to get bottle himself so to satisfy him I put a splash in each cup- well the behaviours are back exactly as before.could it be strep in the YCK that is triggering this...Im not even certain what cultures with the grains.I know there is so much research out there to say that strep therm.does not aggravate /cause PANDAS. Hr did have 2+ of alpha haem strep in his CDSA 6 months ago. What advice do you have Anita ?I see in a previous post that you give huge doses of probio and i feel that my son needs it to heal his gut.when we have alot on board he's much more connected /social but now he's actually more withdrawn.could it just be Die off. > > > Any help would be greatly appreciated > > > > > > Joe's mom 3yrs old > > > > > > Quote Link to comment Share on other sites More sharing options...
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