enzyme question and yeast test?

[Guest guest]

Dear all:

So far we're doing biomed support in prep for chelation on my 19 mo old. Not

there yet. Needing some feedback. DS and I are GFCF corn free soy free egg free

chicken/turkey free and shellfish free. I did elimination diet way back when I

was trying to figure out how to resolve his constipation/weight gain issues. DS

is a self-selected raw foodist living on breastmilk (increasingly a snack, not

the main course) and green smoothies with hemp seeds).

I added NoFenol, Trienza (3/4 to 1 cap Nofenol per meal seems to get great

results 50% of the time). Trienza I was adding tiny sprinkle, maybe a coupla

fingernailsfull once a day. Never got further than that. Constipation is pretty

bad. He poops ev other day now, but it's with pain and hard poops moving into

soft poops as he gets to the newer poop.

On the strict elim diet he was pooping almost ev day. I added back in tomatoes,

potatoes, walnuts, brazil nuts, dates, all in small amounts, on rotation diet

(ie not very often). That was around time son's pooping went back toward

constipation ev coupla days. Did a candida/yeast cleanse at that time on both of

us. Horrible reactions from son, and pretty weird ones for me, but I came out of

it much better. DS never showed much difference. Never got to add in more foods

cos I was always dealing with constipation with him. I've been taking Gluten

Defense, which has helped my digestion enormously. Then added the Nofenol and

Trienza for my DS.

DS still having constipation one day, then hard moving to soft poops the next.

Actually harder poops since I've added the Nofenol and Trienza (I do the trienza

so rarely for him b/c of this).

Question: what's my next course of action? Do I do a yeast test with GP Labs?

Which tests should I do?

Do I add different enzymes? afp peptizyde? zycarb? Anyone with similar

experiences who's found results?

We have poor sleeping too--have done since about 5 mos old. Otherwise, son is

doing extremely well. He had a diagnosis of Trisomy 21, but with what we've done

so far, not many people can tell any difference--he's smart, mobile, alert, and

one sweet patootie. We wonder if they may have been wrong with the test.

The sleep issue has almost done us in. I'm ready to try anything. Waiting

waiting to start chelation, but I'm pretty sure till I have a protocol in place

, I'm not doing that for him.

Biotin--anyone know a company that does no corn, no dextrose (cornbyproducts),

no soy, no gluten/dairy biotin? I had some,but it makes son and me much worse. B

vits--we're also allergic to yeast. Any suggestions on the B vit issue if we're

very sensitive to yeast products?

So those are my questions. It's been great to read everyone's posts. I've found

that I have more in common with parents of autism spectrum on this group than I

have with most other moms of kids with Trisomy 21. The similarities in symptoms

are remarkable too.

Best wishes and many thanks,

Fiona

PS my best friend from high school in UK's sister has a daughter with

aspergers--she just got into Oxford Univ.

[Guest guest]

Fiona...Ecological Formulas carry a yeast free a B-Complex. We use it here with

great results.

Valencia

Sent from my iphone

On Dec 18, 2010, at 8:43 PM, " fionam3875 " <fionam3875@...> wrote:

Dear all:

So far we're doing biomed support in prep for chelation on my 19 mo old. Not

there yet. Needing some feedback. DS and I are GFCF corn free soy free egg free

chicken/turkey free and shellfish free. I did elimination diet way back when I

was trying to figure out how to resolve his constipation/weight gain issues. DS

is a self-selected raw foodist living on breastmilk (increasingly a snack, not

the main course) and green smoothies with hemp seeds).

I added NoFenol, Trienza (3/4 to 1 cap Nofenol per meal seems to get great

results 50% of the time). Trienza I was adding tiny sprinkle, maybe a coupla

fingernailsfull once a day. Never got further than that. Constipation is pretty

bad. He poops ev other day now, but it's with pain and hard poops moving into

soft poops as he gets to the newer poop.

On the strict elim diet he was pooping almost ev day. I added back in tomatoes,

potatoes, walnuts, brazil nuts, dates, all in small amounts, on rotation diet

(ie not very often). That was around time son's pooping went back toward

constipation ev coupla days. Did a candida/yeast cleanse at that time on both of

us. Horrible reactions from son, and pretty weird ones for me, but I came out of

it much better. DS never showed much difference. Never got to add in more foods

cos I was always dealing with constipation with him. I've been taking Gluten

Defense, which has helped my digestion enormously. Then added the Nofenol and

Trienza for my DS.

DS still having constipation one day, then hard moving to soft poops the next.

Actually harder poops since I've added the Nofenol and Trienza (I do the trienza

so rarely for him b/c of this).

Question: what's my next course of action? Do I do a yeast test with GP Labs?

Which tests should I do?

Do I add different enzymes? afp peptizyde? zycarb? Anyone with similar

experiences who's found results?

We have poor sleeping too--have done since about 5 mos old. Otherwise, son is

doing extremely well. He had a diagnosis of Trisomy 21, but with what we've done

so far, not many people can tell any difference--he's smart, mobile, alert, and

one sweet patootie. We wonder if they may have been wrong with the test.

The sleep issue has almost done us in. I'm ready to try anything. Waiting

waiting to start chelation, but I'm pretty sure till I have a protocol in place

, I'm not doing that for him.

Biotin--anyone know a company that does no corn, no dextrose (cornbyproducts),

no soy, no gluten/dairy biotin? I had some,but it makes son and me much worse. B

vits--we're also allergic to yeast. Any suggestions on the B vit issue if we're

very sensitive to yeast products?

So those are my questions. It's been great to read everyone's posts. I've found

that I have more in common with parents of autism spectrum on this group than I

have with most other moms of kids with Trisomy 21. The similarities in symptoms

are remarkable too.

Best wishes and many thanks,

Fiona

PS my best friend from high school in UK's sister has a daughter with

aspergers--she just got into Oxford Univ.

[Guest guest]

Sounds like he may have oxalate issues. If so try not feeding any high oxalate

foods such as nuts, spinach, celery, etc. The constipation and not sleeping are

possible signs of oxalate issues. My son and myself both had them. My ASD son

uses prozymes from GiProHealth and they work great. I only need to use 1/2 - 3/4

of a capsule at each meal.

Gray

________________________________

From: Valencia <valencia.wilson@...>

" " < >

Sent: Sun, December 19, 2010 8:16:04 AM

Subject: Re: [ ] enzyme question and yeast test?

Fiona...Ecological Formulas carry a yeast free a B-Complex. We use it here with

great results.

Valencia

Sent from my iphone

On Dec 18, 2010, at 8:43 PM, " fionam3875 " <fionam3875@...> wrote:

Dear all:

So far we're doing biomed support in prep for chelation on my 19 mo old. Not

there yet. Needing some feedback. DS and I are GFCF corn free soy free egg free

chicken/turkey free and shellfish free. I did elimination diet way back when I

was trying to figure out how to resolve his constipation/weight gain issues. DS

is a self-selected raw foodist living on breastmilk (increasingly a snack, not

the main course) and green smoothies with hemp seeds).

I added NoFenol, Trienza (3/4 to 1 cap Nofenol per meal seems to get great

results 50% of the time). Trienza I was adding tiny sprinkle, maybe a coupla

fingernailsfull once a day. Never got further than that. Constipation is pretty

bad. He poops ev other day now, but it's with pain and hard poops moving into

soft poops as he gets to the newer poop.

On the strict elim diet he was pooping almost ev day. I added back in tomatoes,

potatoes, walnuts, brazil nuts, dates, all in small amounts, on rotation diet

(ie not very often). That was around time son's pooping went back toward

constipation ev coupla days. Did a candida/yeast cleanse at that time on both of

us. Horrible reactions from son, and pretty weird ones for me, but I came out of

it much better. DS never showed much difference. Never got to add in more foods

cos I was always dealing with constipation with him. I've been taking Gluten

Defense, which has helped my digestion enormously. Then added the Nofenol and

Trienza for my DS.

DS still having constipation one day, then hard moving to soft poops the next.

Actually harder poops since I've added the Nofenol and Trienza (I do the trienza

so rarely for him b/c of this).

Question: what's my next course of action? Do I do a yeast test with GP Labs?

Which tests should I do?

Do I add different enzymes? afp peptizyde? zycarb? Anyone with similar

experiences who's found results?

We have poor sleeping too--have done since about 5 mos old. Otherwise, son is

doing extremely well. He had a diagnosis of Trisomy 21, but with what we've done

so far, not many people can tell any difference--he's smart, mobile, alert, and

one sweet patootie. We wonder if they may have been wrong with the test.

The sleep issue has almost done us in. I'm ready to try anything. Waiting

waiting to start chelation, but I'm pretty sure till I have a protocol in place

, I'm not doing that for him.

Biotin--anyone know a company that does no corn, no dextrose (cornbyproducts),

no soy, no gluten/dairy biotin? I had some,but it makes son and me much worse. B

vits--we're also allergic to yeast. Any suggestions on the B vit issue if we're

very sensitive to yeast products?

So those are my questions. It's been great to read everyone's posts. I've found

that I have more in common with parents of autism spectrum on this group than I

have with most other moms of kids with Trisomy 21. The similarities in symptoms

are remarkable too.

Best wishes and many thanks,

Fiona

PS my best friend from high school in UK's sister has a daughter with

aspergers--she just got into Oxford Univ.

[Guest guest]

I can help with sleep ideas... even after 40/45 rounds, I still have

interrupted sleep. It's better on nights with no chelation though. Once I

wake,

up I have a hard time falling back to sleep. Dealing with 2 or 3 nights

with only 4 hours of sleep can be frustrating.

I've tried the melatonin (mixing time release with regular - different

amounts and etc.). It works intermittently. I tried 5-HTP (a good brand is

available at Vitacost that's peak-x free) with and without the melatonin, it

works better than melatonin alone. Sometimes I mix the 5-HTP with St.

's Wort and this also works sometimes.

Often, I'll get up and take a 2nd epsom salt bath which often helps but I

lose time having to take another bath and I dislike doing it twice in a

night. Recently, I got some meditation CDs, calming music or subliminal

affirmations (I like the Brain Sync ones). I like this best of all and it works

about 75% of the time. I get sick of the pills and not knowing if this is

one of the times they will work or not work. Popping on the music quietly is

my favorite trick and gives me the best results. /Rosegvr

[Guest guest]

>>Constipation is pretty bad. He poops ev other day now, but it's with pain and

hard poops moving into soft poops as he gets to the newer poop.

Yeast overgrowth is constipating. So is magnesium deficiency. At my house,

increasing the yeast protocol and/or adding magnesium resolved most constipation

issues.

Rice is constipating, and most people use a lot of rice if they are gfcf. More

ideas here

http://www.danasview.net/constip.htm

> On the strict elim diet he was pooping almost ev day. I added back in

tomatoes, potatoes, walnuts, brazil nuts, dates, all in small amounts, on

rotation diet (ie not very often). That was around time son's pooping went back

toward constipation ev coupla days.

Try removing those foods again, see if things resolve. I know at least one of

them that would have caused crazy constipation at my house without major doses

of magnesium.

> We have poor sleeping too--have done since about 5 mos old.

Keep the No-Fenol. I would also try increasing the yeast protocol.

> Biotin--anyone know a company that does no corn, no dextrose (cornbyproducts),

no soy, no gluten/dairy biotin? I had some,but it makes son and me much worse.

Exactly how does it make things " worse " ? If you mean it causes more

constipation, that is a common effect of biotin if you are severely deficient,

because it requires magnesium for proper absorption. I had to give it with a

LOT of magnesium at first.

Dana

[Guest guest]

Thanks--I will get the yeast free B complex and look into the enzymes--are the

Prozymes specifically for oxalate issues?

I didn't know biotin was constipating sometimes--will try it again with

magnesium oil. Had been adding mag to him and me, but always run up against

probs with corn/dextrose/citric acid/soy/gluten/dairy in the supplements, and

the oil is so sticky, but i can definitely use it again. If supps are GFCF, they

usu contain corn/citric acid(also derived from corn). When I finally elim'd all

but absolutely necessary supps, that was when he started sleeping/pooping better

on the elim diet. So i've been leery of adding stuff in and I do it super duper

slowly.

the sleep issues are our son's. We could sleep till next xmas if he let us. But

that sounds all too familiar a pattern for DS! My DH loves the brainsync. I've

done the melatonin/5HTP/serotonin cocktail for DS. Usu the melatonin works for

at least half the night. Kids with the syndrome don't utilize their serotonin

well, so they're notorious bad/restless sleepers. I have him pretty much

programmed now that when he smells lavender he drops off--it's the staying

asleep for whole night that is difficult. He usu sleeps well thru 6pm to 10 or

11pm, but as soon as mommy enters the room, he wakes, sometimes stays awake,

sometimes wakes a coupla hours later and stays awake, sometimes wakes at 4 and

is up for the day, almost always wakes at 5.30/6am and is up for the day. DH and

I get pretty punch drunk after a coupla weeks of that.

Yes, love the nofenol, definitely keeping it. Raised it to 1 cap the other day

and we've had pooping ev day and 4 nights in a row (!!!) of great sleep!

Haven't found a probiotic that works for bambino due to the GFCF soy free corn

free y east free issues. Tried dr ohhira's probiotic. No change. Also tried

homemade sauerkraut--it makes my digestion fantastic, but I get big yeast

infection if I eat too much of it. Son--no change if I give a little sauerkraut.

Thanks for all the advice/experience. Looking forward to starting chelation. Our

results already are pretty darn good. We can hear our son sing the lines of

songs as he listens to them in the car and read the next line in the book we're

reading--I started teaching him to read when he was 3 mos old, mostly cos he was

low tone so I couldn't put him down or do anything else! This kid looooves

books! He and his dad are reading a spanish bilingual priddy book right now! my

husband is making up phrases-- " leche de madre " --we're all learning spanish at

the same time, as a result of these books!

Many thanks. I always feel better when we're sleeping.

best wishes,

Fiona

>

> Dear all:

>

> So far we're doing biomed support in prep for chelation on my 19 mo old. Not

there yet. Needing some feedback. DS and I are GFCF corn free soy free egg free

chicken/turkey free and shellfish free. I did elimination diet way back when I

was trying to figure out how to resolve his constipation/weight gain issues. DS

is a self-selected raw foodist living on breastmilk (increasingly a snack, not

the main course) and green smoothies with hemp seeds).

>

> I added NoFenol, Trienza (3/4 to 1 cap Nofenol per meal seems to get great

results 50% of the time). Trienza I was adding tiny sprinkle, maybe a coupla

fingernailsfull once a day. Never got further than that. Constipation is pretty

bad. He poops ev other day now, but it's with pain and hard poops moving into

soft poops as he gets to the newer poop.

>

> On the strict elim diet he was pooping almost ev day. I added back in

tomatoes, potatoes, walnuts, brazil nuts, dates, all in small amounts, on

rotation diet (ie not very often). That was around time son's pooping went back

toward constipation ev coupla days. Did a candida/yeast cleanse at that time on

both of us. Horrible reactions from son, and pretty weird ones for me, but I

came out of it much better. DS never showed much difference. Never got to add in

more foods cos I was always dealing with constipation with him. I've been taking

Gluten Defense, which has helped my digestion enormously. Then added the Nofenol

and Trienza for my DS.

>

> DS still having constipation one day, then hard moving to soft poops the next.

Actually harder poops since I've added the Nofenol and Trienza (I do the trienza

so rarely for him b/c of this).

>

> Question: what's my next course of action? Do I do a yeast test with GP Labs?

Which tests should I do?

>

> Do I add different enzymes? afp peptizyde? zycarb? Anyone with similar

experiences who's found results?

>

> We have poor sleeping too--have done since about 5 mos old. Otherwise, son is

doing extremely well. He had a diagnosis of Trisomy 21, but with what we've done

so far, not many people can tell any difference--he's smart, mobile, alert, and

one sweet patootie. We wonder if they may have been wrong with the test.

>

> The sleep issue has almost done us in. I'm ready to try anything. Waiting

waiting to start chelation, but I'm pretty sure till I have a protocol in place

, I'm not doing that for him.

>

> Biotin--anyone know a company that does no corn, no dextrose (cornbyproducts),

no soy, no gluten/dairy biotin? I had some,but it makes son and me much worse. B

vits--we're also allergic to yeast. Any suggestions on the B vit issue if we're

very sensitive to yeast products?

>

> So those are my questions. It's been great to read everyone's posts. I've

found that I have more in common with parents of autism spectrum on this group

than I have with most other moms of kids with Trisomy 21. The similarities in

symptoms are remarkable too.

>

> Best wishes and many thanks,

> Fiona

>

> PS my best friend from high school in UK's sister has a daughter with

aspergers--she just got into Oxford Univ.

>