Chelation Progress - Adrenal Disorder Improved

[Guest guest]

Just wanted to give you all an update on our dd. Initial diagnosis at age 4 was

developmental delay. Two years ago at age 8 she was diagnosed with Congenital

Adrenal Hyperplasia. We started at age 5 with transdermal DMSA, A/C protocol,

moved to oral much later. We have about 75 oral rounds under our belt, maybe

half of that since the CAH diagnosis.

We have been treating the adrenal disorder with cortisol (22.5 mg daily) along

with b vitamins and biotin. And of course all of the digestive support and

other vitamins. We've been saliva testing regularly under the guidance of a

hormone practitioner. We do blood hormone testing with her pediatric endo.

Interestingly she has 3 genetic mutations for CAH. Her pediatric endo had never

seen this before. Turns out my husband and I have some mutations as well, but

usually there is one from the mother, and another one from the father.

At any rate, the one major hormone that is usually way out of range with this

disorder is p-17 OH progesterone. When she was first diagnosed via blood, this

was in the thousands. The normal outside range is 100. In the last year,

saliva results have been in the hundreds. (saliva hormone range is the same).

The latest round of saliva testing shows P 17-OH in the NORMAL RANGE with other

androgens (usually on the high side) in range as well.

We have further testing to do before we change her dose of cortisol. I don't

want to suggest (even to myself!) that she is healed. HOWEVER. Her hormone

practitioner said that these results look more like someone who does not have

this disorder.

I just wanted to share this good news because it is highly possible that we are

seeing improvements as a result of chelation. I thought sharing this might spur

us all on to continue the good fight!

Olivia

[Guest guest]

Congratulations! Good news and hope are always wonderful and welcome to me! I

need all the hope I can get.

Martha

>

> Just wanted to give you all an update on our dd. Initial diagnosis at age 4

was developmental delay. Two years ago at age 8 she was diagnosed with

Congenital Adrenal Hyperplasia. We started at age 5 with transdermal DMSA, A/C

protocol, moved to oral much later. We have about 75 oral rounds under our

belt, maybe half of that since the CAH diagnosis.

>

> We have been treating the adrenal disorder with cortisol (22.5 mg daily) along

with b vitamins and biotin. And of course all of the digestive support and

other vitamins. We've been saliva testing regularly under the guidance of a

hormone practitioner. We do blood hormone testing with her pediatric endo.

>

> Interestingly she has 3 genetic mutations for CAH. Her pediatric endo had

never seen this before. Turns out my husband and I have some mutations as well,

but usually there is one from the mother, and another one from the father.

>

> At any rate, the one major hormone that is usually way out of range with this

disorder is p-17 OH progesterone. When she was first diagnosed via blood, this

was in the thousands. The normal outside range is 100. In the last year,

saliva results have been in the hundreds. (saliva hormone range is the same).

>

> The latest round of saliva testing shows P 17-OH in the NORMAL RANGE with

other androgens (usually on the high side) in range as well.

>

> We have further testing to do before we change her dose of cortisol. I don't

want to suggest (even to myself!) that she is healed. HOWEVER. Her hormone

practitioner said that these results look more like someone who does not have

this disorder.

>

> I just wanted to share this good news because it is highly possible that we

are seeing improvements as a result of chelation. I thought sharing this might

spur us all on to continue the good fight!

>

> Olivia

>