TAURINE

October 1, 2004

,

I'm the one that makes sure that takes all her vitamins and meds

because she's developmentally delayed, but I also have an older daughter who's

almost 19yo and I know what you mean.

Explain to your daughter that Taurine has been known to help with seizures

and that it's important that she makes sure that she takes it twice a day like

her AEDs.

Grace

October 1, 2004

,

I don't remember reading anything about taurine being used for anxiety but

that could be because I wasn't looking at it for that reason, I was searching it

for epilepsy.

What kind of seizures do you have and what AEDs are you taking, also, are

they under control?

Grace

October 1, 2004

Grace , My daughter has anxiety issues that is why she is taking it. I

am the one with the seizure problem, but I am also thinking about taking.

> ,

>

> I'm the one that makes sure that takes all her vitamins and

meds

> because she's developmentally delayed, but I also have an older

daughter who's

> almost 19yo and I know what you mean.

>

> Explain to your daughter that Taurine has been known to help with

seizures

> and that it's important that she makes sure that she takes it twice

a day like

> her AEDs.

>

> Grace

>

October 1, 2004

Grace, they are not undercontrol. I have had epilepsy for 35 years. I

have complex partial. I am down to about one or two every month

sometimes every other month. I have had surgery many times. What also

helped me was flax oil capsules. I got rid of 9 seizures a month and

over 200 auras a month.

I was told that taurine can also help anxiety by mark so I am finally

giving it a try.

Is it you son or daughter that has seizures and how bad are they?

> ,

>

> I don't remember reading anything about taurine being used for

anxiety but

> that could be because I wasn't looking at it for that reason, I was

searching it

> for epilepsy.

> What kind of seizures do you have and what AEDs are you taking,

also, are

> they under control?

>

> Grace

>

October 2, 2004

,

It's my daughter that has epilepsy. She started having them when she was

almost 12yo. She has them like every two weeks. She used to have partials at

least 2 days a week when she was on Trileptal, but those have seemed to stop and

now she's having 4 grand mals per month which is way too many. She's

currently on zonegran which we're working to wean her off of and Lamictal which

we're

increasing, but she's still on only 15mg per day.

Currently she seems to have grand mals two weeks after we reduce her dose of

zonegran so I believe that those were withdrawl seizures and she's also having

them 1 week prior to her menstruation. Maybe once she's completely off of

the zonegran we'll be able to see the true picture as to how often she actually

has seizures.

I just started giving her the Taurine twice a day so we'll see how that goes.

Grace

October 2, 2004

Yes I remember when I was young, I was pretty much stable with my

medication. Then menstrual cycle began and then all hell broke loose.

We were searching for another drug which were no others. So that was

hard.

So that will be hard for her during this time. I hope the taurine

works for her.

> ,

>

> It's my daughter that has epilepsy. She started having them when

she was

> almost 12yo. She has them like every two weeks. She used to have

partials at

> least 2 days a week when she was on Trileptal, but those have seemed

to stop and

> now she's having 4 grand mals per month which is way too many. She's

> currently on zonegran which we're working to wean her off of and

Lamictal which we're

> increasing, but she's still on only 15mg per day.

>

> Currently she seems to have grand mals two weeks after we reduce her

dose of

> zonegran so I believe that those were withdrawl seizures and she's

also having

> them 1 week prior to her menstruation. Maybe once she's completely

off of

> the zonegran we'll be able to see the true picture as to how often

she actually

> has seizures.

>

> I just started giving her the Taurine twice a day so we'll see how

that goes.

>

> Grace

>

October 2, 2004

Thanks , please keep us posted on how you and your daughter are doing.

Grace

November 12, 2004

Interesting comments in this thread on supplements, especially

regarding taurine.

I took it for a few months, a few years ago -- along with other

detoxifying aminos (glycine, methionine, etc.) -- and was certainly

doing much better. It is essential I believe to proper liver function

and detoxification, and helps balance the sodium/mineral ratio in

our bodies.

I did read somewhere that taurine and glycine must be taken on

an empty stomach, before meals. Some recommend they be

taken with a tiny amount of baking soda, as they're metabolized

better in an alkaline environment -- the same reason why they

don't work as well when taken with a meal or after a meal -- too

much acid and too many other amino acids compete with their

absorbtion.

d.

>

> Dr. Rea writes:

>

> " If you have chemical sensitivity or overload, you always have

vitamin

> deficiency. Sixty percent of patients with chemical overload

have B6

> deficiency, 30 percent have vitamin C deficiency, and 30

percent are

> deficient in vitamins B1, 2, 3 and 5. And many patients can't

tolerate

> the vitamins they need so they can't begin taking them until

they're

> healthier. "

>

> " I can give you an average daily recommendation [for

environmental

> illness/MCS] but it may not be right for any individual: vitamin A

> 10,000 to 25,000 IU; vitamin E 400 to 1200 IU; multi-mineral

and vitamin

> capsules 1 to 2; vitamin C anywhere from 3,000 to 7,000 mg;

glutathione

> 600 mg; taurine 2 grams. "

>

> Regards, Blake

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested

in any treatment discussed here, please consult your doctor.

>

November 14, 2004

hi years ago i was alsmost as low in taurine as i was glutathione but now

am ok taurine and probably better glutathione ...

its hard for me to take it between meals due to all the suppliments i need

/medications on am empty stomach so i take a larger anount than i need and

assueme due to that its why my taurine levels are now in the normal range

verus early years of the illness..... i realize that u get optinal

absopriton of some amino acids between meals, some with carbohydrate

carrier and some with protein carriers but sometimes just getting it in is

better than not taking it at all ..tealk

> [Original Message]

> From: kdrbrill <kdrbrill@...>

> < >

> Date: 11/12/2004 2:18:48 PM

> Subject: Re: Taurine

>

> Interesting comments in this thread on supplements, especially

> regarding taurine.

>

> I took it for a few months, a few years ago -- along with other

> detoxifying aminos (glycine, methionine, etc.) -- and was certainly

> doing much better. It is essential I believe to proper liver function

> and detoxification, and helps balance the sodium/mineral ratio in

> our bodies.

>

> I did read somewhere that taurine and glycine must be taken on

> an empty stomach, before meals. Some recommend they be

> taken with a tiny amount of baking soda, as they're metabolized

> better in an alkaline environment -- the same reason why they

> don't work as well when taken with a meal or after a meal -- too

> much acid and too many other amino acids compete with their

> absorbtion.

>

> d.

>

> >

> > Dr. Rea writes:

> >

> > " If you have chemical sensitivity or overload, you always have

> vitamin

> > deficiency. Sixty percent of patients with chemical overload

> have B6

> > deficiency, 30 percent have vitamin C deficiency, and 30

> percent are

> > deficient in vitamins B1, 2, 3 and 5. And many patients can't

> tolerate

> > the vitamins they need so they can't begin taking them until

> they're

> > healthier. "

> >

> > " I can give you an average daily recommendation [for

> environmental

> > illness/MCS] but it may not be right for any individual: vitamin A

> > 10,000 to 25,000 IU; vitamin E 400 to 1200 IU; multi-mineral

> and vitamin

> > capsules 1 to 2; vitamin C anywhere from 3,000 to 7,000 mg;

> glutathione

> > 600 mg; taurine 2 grams. "

> >

> > Regards, Blake

> >

> > This list is intended for patients to share personal experiences

> with each other, not to give medical advice. If you are interested

> in any treatment discussed here, please consult your doctor.

> >

February 17, 2005

I dont know if it is this group or another I belong to, But we are having

the same discussion. A woman but her child on it, and just raised the dose

according to the Dr. Atkins guide. I am going to start my daughte on it

tomarrow.

I will keep you posted

February 18, 2005

,

That was me, and the recommended dose, according to Dr. Atkins' book is bewteen

1.5 to 4 grams in divided doses. Taurine is not only good for seizure

disorders, but it is also good for many other ailments.

Dr. Atkins, in his book, states that the " side effects " of taurine, in

contrast, amount to even more additional benefits, so taurine is pretty safe to

take. I hope this helps!

Grace

sarahbri813@... wrote:

I dont know if it is this group or another I belong to, But we are having

the same discussion. A woman but her child on it, and just raised the dose

according to the Dr. Atkins guide. I am going to start my daughte on it

tomarrow.

I will keep you posted

April 4, 2005

Jessi,

Everything that I have read regarding using Taurine for seizures states that you

should take 1500 - 3000mg per day in divided doses. I currently give my

daughter 500mg three times a day and she's 14yo and weighs 137lbs.

Grace

jpma614 <jessiprince@...> wrote:

Hi,

I was wondering if anyone here is giving their child Taurine. I have

been giving my son 250 mg. twice a day for about a month now. I am

wondering if I should be giving him more than that. He is 44 lbs.

He also gets Magnesium, B Complex, & Vitamin C.

Thank you!

Jessi

April 4, 2005

Donn't know about children but I take 500 mg 2xday.

>From: Grace <foxyfoxgrace@...>

>Reply-

>

>Subject: Re: [ ] Taurine

>Date: Mon, 4 Apr 2005 08:35:38 -0700 (PDT)

>

>Jessi,

>

>Everything that I have read regarding using Taurine for seizures states

>that you should take 1500 - 3000mg per day in divided doses. I currently

>give my daughter 500mg three times a day and she's 14yo and weighs 137lbs.

>

>Grace

>

>jpma614 <jessiprince@...> wrote:

>

>Hi,

>

>I was wondering if anyone here is giving their child Taurine. I have

>been giving my son 250 mg. twice a day for about a month now. I am

>wondering if I should be giving him more than that. He is 44 lbs.

>He also gets Magnesium, B Complex, & Vitamin C.

>

> Thank you!

> Jessi

>

April 4, 2005

Children (over the age of 4) can safely take 500mg 3x daily. My 9 year old

is showing remarkable success with 1000 mg twice a day

Re: [ ] Taurine

>Date: Mon, 4 Apr 2005 08:35:38 -0700 (PDT)

>

>Jessi,

>

>Everything that I have read regarding using Taurine for seizures states

>that you should take 1500 - 3000mg per day in divided doses. I currently

>give my daughter 500mg three times a day and she's 14yo and weighs 137lbs.

>

>Grace

>

>jpma614 <jessiprince@...> wrote:

>

>Hi,

>

>I was wondering if anyone here is giving their child Taurine. I have

>been giving my son 250 mg. twice a day for about a month now. I am

>wondering if I should be giving him more than that. He is 44 lbs.

>He also gets Magnesium, B Complex, & Vitamin C.

>

> Thank you!

> Jessi

>

April 5, 2005

there is also a new kind of taurine that is supposed

to better target the brain, it is sold by Dr.

Braverman at PATH medical. We didn't have any lick

with Taurine, but many have- Elise

--- Mark Schauss <schauss@...> wrote:

> Children (over the age of 4) can safely take 500mg

> 3x daily. My 9 year old

> is showing remarkable success with 1000 mg twice a

> day

>

> Re: [ ] Taurine

> >Date: Mon, 4 Apr 2005 08:35:38 -0700 (PDT)

> >

> >Jessi,

> >

> >Everything that I have read regarding using Taurine

> for seizures states

> >that you should take 1500 - 3000mg per day in

> divided doses. I currently

> >give my daughter 500mg three times a day and she's

> 14yo and weighs 137lbs.

> >

> >Grace

> >

> >jpma614 <jessiprince@...> wrote:

> >

> >Hi,

> >

> >I was wondering if anyone here is giving their

> child Taurine. I have

> >been giving my son 250 mg. twice a day for about a

> month now. I am

> >wondering if I should be giving him more than that.

> He is 44 lbs.

> >He also gets Magnesium, B Complex, & Vitamin C.

> >

> > Thank

> you!

> > Jessi

> >

June 19, 2005

In a message dated 19/06/2005 16:15:41 GMT Daylight Time, simondavis@... writes:

Hi - Anybody help on supplements to take alongside taurine. Iâ€™ve been giving this to Callum after the last treatment plan we received â€“ but doing some reading seems it needs to be taken alongside B6 and mag to be effective. Thereâ€™s B6 in his brainchild and we take extra mag anyway â€“ but DAN didnâ€™t specify that we should do this, and if we do and sheâ€™s forgotton how much to make it effective? Thanks, Elaine

>>>I think you are probably already on enough, most of the combo products I have seen only have token amounts in.

Sam does 1000mg Taurine with good effect (seizure control) along with 500mg Magnesium and only 15mg of highly absorbable P5P liquid (Metabolics).

You can always check on your next phone consult or emial

HTHMandi in Dorset

January 1, 2006

Barbara, I am taking magnesium taurinate, not taurine alone. I have

had only good improvement in my tendon pain. But I am also taking

Recuperation.

a Carnes

>

> Hi Rich,

>

> I tried 500 mg of taurine for 3 days in a row. Each night I woke up

with severe cramps in the calves of my legs and my sciatic nerve

began to flare. After 3 nights of this, intensifying each time, I

stopped and it took another few days to calm these down.

>

> Other people talk about taurine having a calming effect. Any

insights on what is happening here with me?

>

> Thanks

> Barbara

>

> From: rvankonynen

> Sent: Friday, December 30, 2005 6:16 PM

> Subject: Denatured whey

>

> Hi, Lance.

>

> According to Jon Pangborn in the book we keep citing, it's a good

> idea to start with taurine before boosting the methylation cycle,

to

> keep the brain working well. He suggests starting with 125 to

250

> mg of taurine and working up, but not going beyond 2 grams per

day.

> After doing that for a week or so, you will be better able to

> tolerate a sudden improvement in methylation, which might deflect

> your sulfur metabolism away from making taurine for a little

while.

>

> Rich

>

January 1, 2006

Hi a,

Thanks for replying. I'm taking 450 mg. magnesium at bedtime along with

melatonin and the taurine during the day since many supplements disturb my

sleep further than it already is. I am a little bewildered by the reaction it

gave me.

Barbara

From: pjeanneus

Sent: Sunday, January 01, 2006 6:34 PM

Subject: Re: Taurine

Barbara, I am taking magnesium taurinate, not taurine alone. I have

had only good improvement in my tendon pain. But I am also taking

Recuperation.

a Carnes

>

> Hi Rich,

>

> I tried 500 mg of taurine for 3 days in a row. Each night I woke up

with severe cramps in the calves of my legs and my sciatic nerve

began to flare. After 3 nights of this, intensifying each time, I

stopped and it took another few days to calm these down.

>

> Other people talk about taurine having a calming effect. Any

insights on what is happening here with me?

>

> Thanks

> Barbara

>

> From: rvankonynen

> Sent: Friday, December 30, 2005 6:16 PM

> Subject: Denatured whey

>

> Hi, Lance.

>

> According to Jon Pangborn in the book we keep citing, it's a good

> idea to start with taurine before boosting the methylation cycle,

to

> keep the brain working well. He suggests starting with 125 to

250

> mg of taurine and working up, but not going beyond 2 grams per

day.

> After doing that for a week or so, you will be better able to

> tolerate a sudden improvement in methylation, which might deflect

> your sulfur metabolism away from making taurine for a little

while.

>

> Rich

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

January 2, 2006

In a message dated 1/2/2006 10:42:29 PM Eastern Standard Time,

brfifield@... writes:

I tried just 100 mg. of SAMe today and my feet went ice cold, the sciatic

nerve again flared up rather intensely and generally I felt lousy.

SAM-e is enteric coated and the lowest dose I am familiar with is 200 mg.

Did you, by any chance, split a tablet? THat may account for your symptoms.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

January 2, 2006

Barb

SAM-e's been such a Godsend to me that I am sorry you have not had the same

benefit so far.

I have not tried NOW brand. I've used Naturesrx (the best), Nutralife and

Schiff (least effective)

Look at this information on 100mg SAM-e from the NOW Foods website. Anything

in Other ingredients that may be an issue?

Free of: sugar, starch, yeast, wheat, gluten, corn, soy, milk or

preservatives.

Other Ingredients: Cellulose, Croscarmellose Sodium, Methacrylic Acid,

Magnesium Stearate (vegetable source), Silica, Triethyl Citrate, Stearic Acid

(vegetable source), Citric Acid and Ascorbic Acid. Vegetarian Formula.

Warnings: Individuals with bipolar (manic) depression should not take SAMe

unless under professional

mjh

In a message dated 1/2/2006 11:04:07 PM Eastern Standard Time,

brfifield@... writes:

Hi mjh,

Thanks for your reply. I didn't split the tablet. The SAMe that I bought was

from NOW - 100 mg. tablets enteric coated. I took just one.

Barbara

From: foxhillers@...

Sent: Monday, January 02, 2006 10:56 PM

Subject: Re: Re: Taurine

In a message dated 1/2/2006 10:42:29 PM Eastern Standard Time,

brfifield@... writes:

I tried just 100 mg. of SAMe today and my feet went ice cold, the sciatic

nerve again flared up rather intensely and generally I felt lousy.

SAM-e is enteric coated and the lowest dose I am familiar with is 200 mg.

Did you, by any chance, split a tablet? THat may account for your symptoms.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

January 2, 2006

Hi, Barbara.

Here's what Jon Pangborn says on page 235 of the autism book:

" Adverse responses to appropriate amounts of taurine are evidently

quite uncommon. During the more than 20 years that I have suggested

taurine use, reports to me of problems have numbered less than a

dozen (out of thousands who have tried taurine as a nutritional

supplement). If the electrolyte levels are already imbalanced in a

certain way and are not corrected by homeostasis, then taurine, in

significant amounts, could worsen the imbalance. Intolerance can

occur in hyperkalemia conditions (excessive blood potassium),

's disease, and insulin deficiency if gram quantities of

taurine are used. This is because it mediates the flux of

electrolyte minerals across cell membranes. As with all

supplements, start at a low dose (100 or 250 mg/day depending on

body weight or age). We are cautioned by clinical researchers not

to use more than about 2000 mg/day (2 grams per day), and large

doses can produce effects that are opposite to what would be

expected. "

Barbara, you might consider trying Recuperat-ion, the mixture of

salts formulated by Alfred Blasi, if you aren't already doing so. I

suspect that this protocol helps to restore the proper balance of

electrolytes inside the cells. It is available from

http://www.recuperat-ion.com/eng/alvio/productos/index.htm

It is helping quite a few people, judging from reports to the

Alfredblasiprotocol group.

Rich

>

> Hi Rich,

>

> I tried 500 mg of taurine for 3 days in a row. Each night I woke

up with severe cramps in the calves of my legs and my sciatic nerve

began to flare. After 3 nights of this, intensifying each time, I

stopped and it took another few days to calm these down.

>

> Other people talk about taurine having a calming effect. Any

insights on what is happening here with me?

>

> Thanks

> Barbara

January 3, 2006

Hi Rich,

Thanks so much for the details and information. I so appreciate the knowlege you

cast on various situations - both mine and others.

It is very bewildering to me when I so often have uncommon reactions to

supplements that many others benefit from. Not to mention very frustrating and

discouraging. I tried just 100 mg. of SAMe today and my feet went ice cold, the

sciatic nerve again flared up rather intensely and generally I felt lousy. I

have spent the majority of the day lying on a heating pad. The Immunopro arrived

just before Christmas but I waited until the 27th to try it. Took just 1/2 tsp.

for 3 days in a row and had to stop it. Still recuperating from that as well.

Perhaps Recuperation will be the answer. I've been collecting information on it

and will examine it more closely.

Thanks again Rich and a Happy New Year to you.

Barbara

Re: Taurine