Re: Please help with sister's preemie baby - issues

[Guest guest]

Can she breastfeed or at least pump her breastmilk? We know now that breastmilk

has valuable stem cells and probably more properties that are still unknown that

are very important for development of the baby. Is she open to restricting her

diet (going allergen free) so the baby can tolerate it?

>

> My sister had a premature baby (4 pounds when born) 3 months ago and back then

I was worried because of our genetics, her having the H1N1 flu vaccine while pg,

her own sensitivities and GI issues that she hasn't addressed, etc....

>

> Well, her son is now three months old and things are cropping up....he is

dairy intolerant, has loose BMs, is fussy, has sleep disturbances, already had

thrush twice and he was GREAT while he was on diflucan for 28 days (Nystatin

didn't work), but as soon as he went off, it came right back.

>

> I had been trying to get her to go natural rather than using these scripts,

that the yeast become resistant to. She is finally listening and has started

wiping his mouth out 3 times a day with a solution of 20 drops with one ounce of

water. She is using dairy free probiotics that I sent her. She has him on

Neocate to avoid as much dairy as possible. My question is, what dose can he

safely use internally? When he first got it, the dr said it was all down his

esophagus. Should he be on anything else, to address bacteria? I know what I do

with my kids (both have these issues and are being chelated), but I wasn't doing

this when they were 3 months old. I would like to see her giving him some blue

ice CLO too, but she can't afford much. What would be a must, at minimum? If I

have to, I will buy and send her what she needs.

>

> Thanks guys!

>

>

[Guest guest]

I would have her take the yeast meds, cod liver oil and let it be " dispensed " in

the right amounts for the baby in the breastmilk. That would be the best case

scenario.

>

> My sister had a premature baby (4 pounds when born) 3 months ago and back then

I was worried because of our genetics, her having the H1N1 flu vaccine while pg,

her own sensitivities and GI issues that she hasn't addressed, etc....

>

> Well, her son is now three months old and things are cropping up....he is

dairy intolerant, has loose BMs, is fussy, has sleep disturbances, already had

thrush twice and he was GREAT while he was on diflucan for 28 days (Nystatin

didn't work), but as soon as he went off, it came right back.

>

> I had been trying to get her to go natural rather than using these scripts,

that the yeast become resistant to. She is finally listening and has started

wiping his mouth out 3 times a day with a solution of 20 drops with one ounce of

water. She is using dairy free probiotics that I sent her. She has him on

Neocate to avoid as much dairy as possible. My question is, what dose can he

safely use internally? When he first got it, the dr said it was all down his

esophagus. Should he be on anything else, to address bacteria? I know what I do

with my kids (both have these issues and are being chelated), but I wasn't doing

this when they were 3 months old. I would like to see her giving him some blue

ice CLO too, but she can't afford much. What would be a must, at minimum? If I

have to, I will buy and send her what she needs.

>

> Thanks guys!

>

>

[Guest guest]

Re breastmilk, I saw this article recently (and I think I may have posted it

here): http://www.nytimes.com/2010/08/03/science/03milk.html?_r=1

Another one, which is good food for thought generally about how breatfeeding

gets undervalued by most Americans:

http://www.bobrow.net/kimberly/birth/BFLanguage.html

FWIW: I used the " feed mom real well and breast-feed " approach when my first

child was a baby. My experience suggests it works quite well.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

>

> Can she breastfeed or at least pump her breastmilk? We know now that

breastmilk has valuable stem cells and probably more properties that are still

unknown that are very important for development of the baby. Is she open to

restricting her diet (going allergen free) so the baby can tolerate it?

>

>

>

[Guest guest]

I tried to make those recommendations when she was still BFing, but now she

isn't BFing any longer and she regrets that decision...

> >

> > My sister had a premature baby (4 pounds when born) 3 months ago and back

then I was worried because of our genetics, her having the H1N1 flu vaccine

while pg, her own sensitivities and GI issues that she hasn't addressed, etc....

> >

> > Well, her son is now three months old and things are cropping up....he is

dairy intolerant, has loose BMs, is fussy, has sleep disturbances, already had

thrush twice and he was GREAT while he was on diflucan for 28 days (Nystatin

didn't work), but as soon as he went off, it came right back.

> >

> > I had been trying to get her to go natural rather than using these scripts,

that the yeast become resistant to. She is finally listening and has started

wiping his mouth out 3 times a day with a solution of 20 drops with one ounce of

water. She is using dairy free probiotics that I sent her. She has him on

Neocate to avoid as much dairy as possible. My question is, what dose can he

safely use internally? When he first got it, the dr said it was all down his

esophagus. Should he be on anything else, to address bacteria? I know what I do

with my kids (both have these issues and are being chelated), but I wasn't doing

this when they were 3 months old. I would like to see her giving him some blue

ice CLO too, but she can't afford much. What would be a must, at minimum? If I

have to, I will buy and send her what she needs.

> >

> > Thanks guys!

> >

> >

>

[Guest guest]

, please tell her it's not too late and tell her La Leche League is a

good group to contact about starting back up. I know some moms who breastfed

their children until they were over two years old. I kind of wish I didn't feel

so pressured to cut my children off at a year, there's really no reason for it

except that our culture looks at a person oddly if they do anything that isn't

the norm, even if it comes natural.

> > >

> > > My sister had a premature baby (4 pounds when born) 3 months ago and back

then I was worried because of our genetics, her having the H1N1 flu vaccine

while pg, her own sensitivities and GI issues that she hasn't addressed, etc....

> > >

> > > Well, her son is now three months old and things are cropping up....he is

dairy intolerant, has loose BMs, is fussy, has sleep disturbances, already had

thrush twice and he was GREAT while he was on diflucan for 28 days (Nystatin

didn't work), but as soon as he went off, it came right back.

> > >

> > > I had been trying to get her to go natural rather than using these

scripts, that the yeast become resistant to. She is finally listening and has

started wiping his mouth out 3 times a day with a solution of 20 drops with one

ounce of water. She is using dairy free probiotics that I sent her. She has

him on Neocate to avoid as much dairy as possible. My question is, what dose

can he safely use internally? When he first got it, the dr said it was all down

his esophagus. Should he be on anything else, to address bacteria? I know what

I do with my kids (both have these issues and are being chelated), but I wasn't

doing this when they were 3 months old. I would like to see her giving him some

blue ice CLO too, but she can't afford much. What would be a must, at minimum?

If I have to, I will buy and send her what she needs.

> > >

> > > Thanks guys!

> > >

> > >

> >

>

[Guest guest]

I would suggest your sister have:

 free carnitine and total carnitine labs

done on her son as soon as possible.  IF this is her son's problem, profound

symptom improvements can occur on (rx) levo-carnitine.

You can e-mail me any questions.

 

How important are carnitine and ketones for the newborn infant?

Hahn P, Novak M.

Abstract

The newborn oxidizes a large amount of fat. This is reflected in the slow rise

of plasma levels of ketones and of total carnitines and acylcarnitines. Feeding

a diet devoid of carnitine (soy-based formulas, total parenteral nutrition [TPN]

) rapidly results in a fall in plasma total carnitine levels, whereas in the

adult such a fall is observed only after a prolonged time of TPN. This suggests

that carnitine synthesis in the newborn is less efficient than in the adult.

Gluteal adipocytes in the newborn show a rise in carnitine content and in the

activity of carnitine transferases soon after birth, when values are higher than

in the adult. Their respiration, lipolysis, and triglyceride formation are

enhanced by L-carnitine and inhibited by D-carnitine. This is not so in the

adult. Addition of L-carnitine to soybean-based formulas decreases plasma

triglyceride and free fatty acid levels in premature infants, who have lower

carnitine levels at birth than

full-term babies. In pregnant women plasma total carnitine levels are

significantly depressed. maternal urinary excretion of total carnitine decreases

as gestational age increases, and less is also found in amniotic fluid. Plasma

levels of total carnitines and acylcarnitine are the same (or higher) in fetal

as in maternal plasma. It is concluded that carnitine may be of particular

importance to the neonate and that adding it to foods lacking this substance may

be advantageous.

PMID: 3884394 [PubMed - indexed for MEDLINE]

L-carnitine reduces brain injury after hypoxia-ischemia in newborn rats.

Wainwright MS, Mannix MK, Brown J, Stumpf DA.

Division of Pediatric Neurology, Feinberg School of Medicine, Northwestern

University, Chicago, IL 60614, USA. M-Wainwright@...

Abstract

Perinatal hypoxia-ischemia remains a significant cause of neonatal mortality and

neurodevelopmental disability. Numerous lines of evidence indicate that cerebral

ischemic insults disrupt normal respiratory activity in mitochondria. Carnitine

(3-hydroxy-4-N-trimethylammonium-butyrate) has an essential role in fatty acid

transport in the mitochondrion and in modulating potentially toxic acyl-CoA

levels in the mitochondrial matrix. There are no naturally occurring esterases

available to reduce the accumulation of acyl-CoA but this process can be

overcome by exogenous carnitine. We used a newborn rat model of perinatal

hypoxia-ischemia to test the hypothesis that treatment with l-carnitine would

reduce the neuropathologic injury resulting from hypoxia-ischemia in the

developing brain. We found that treatment with l-carnitine during

hypoxia-ischemia reduces neurologic injury in the immature rat after both a 7-

and 28-d recovery period. We saw no

neuroprotective effect when l-carnitine was administered after

hypoxia-ischemia. Treatment with d-carnitine resulted in an increase in

mortality during hypoxia-ischemia. Carnitine is easy to administer, has low

toxicity, and is routinely used in neonates as well as children with epilepsy,

cardiomyopathy, and inborn errors of metabolism. l-Carnitine merits further

investigation as a treatment modality for the asphyxiated newborn or as

prophylaxis for the at-risk fetus or newborn.

 

Plasma carnitine deficiency. Clinical observations in 51 pediatric patients.

Winter SC, Szabo-Aczel S, Curry CJ, Hutchinson HT, Hogue R, Shug A.

Abstract

We studied the clinical spectrum associated with secondary plasma carnitine

deficiency in 51 pediatric patients. Forty-three patients had total plasma

carnitine values below 20 mumol/L and an additional eight patients had total

values above 20 mumol/L but had low free plasma carnitine levels. The clinical

presentation in the patients with total plasma carnitine deficiency included

hypotonia (34 of 43), failure to thrive (27 of 43), recurrent infections (27 of

43), encephalopathy (six of 43), nonketotic hypoglycemia (seven of 43), and

cardiomyopathy (nine of 43). Of the eight patients with low free and elevated

esterified carnitine levels, the signs and symptoms at presentation included

hypotonia (six of eight), recurrent infections (six of eight), failure to thrive

(six of eight), encephalopathy (three of eight), nonketotic hypoglycemia (one of

eight), and cardiomyopathy (one of eight). All patients were treated with

L-carnitine. Treatment time varied

from one month to 24 months (average, four months). A subjective improvement in

muscle tone was seen in 24 of 38 patients, 22 of 33 patients showed acceleration

of incremental growth, and infection frequency appeared to decrease in 18 of 33

patients. After therapy, the echocardiograms of all patients with cardiomyopathy

normalized. There were no further hypoglycemic episodes. Of the nine patients

with encephalopathy, eight showed improvement in their mental status. Three

patients died of complications of their primary disorder. In our experience,

secondary plasma carnitine deficiency is a common pediatric finding. The

presence of failure to thrive, recurrent infections, hypotonia, encephalopathy,

cardiomyopathy, or nonketotic hypoglycemia requires investigation of carnitine

status.

PMID: 3578191 [PubMed - indexed for MEDLINE]

J Pediatr Gastroenterol Nutr. 1990 Jan;10(1):66-70.

Carnitine status and blood ammonium levels in low birth weight infants.

Nakamura T, Nakamura S, Kondo Y, Ikeda T, Ogata T, Endo F, Matsuda I.

Department of Pediatrics, Kumamoto University Medical School, Japan.

Abstract

Forty-three low birth weight infants appropriate for gestational age (AGA) were

monitored to evaluate carnitine status in relation to blood ammonium levels. The

infants were grouped into three depending on blood ammonium level on postnatal

day 7: 62.9 +/- 3.8 mumol/L in group 1 (N = 13), 38.9 +/- 8.4 mumol/L in group 2

(N = 23), and 24.5 +/- 2.9 mumol/L in group 3 (N = 9). Plasma free carnitine

levels decreased in all three groups (p less than 0.001) and plasma short chain

acylcarnitine increased only in group 1 (p less than 0.002), compared to

findings in normal infants. The blood ammonium level positively and negatively

correlated to plasma short chain acylcarnitine (p less than 0.002) and plasma

free carnitine levels (p less than 0.002), respectively. The reabsorption rate

of free carnitine in renal tubules (RRFC) was decreased at rates of 37.5, 27.5,

and 25% of infants in groups 1, 2, and 3, respectively. The acylcarnitine/free

carnitine clearance

ratio (RAFCC) was decreased in groups 1 (p less than 0.01) and 2 (p less than

0.05) compared with group 3. Thus, an accumulation of short chain acyl moieties

and insufficiency in renal absorption of free carnitine are putative causes of

lowered plasma free carnitine in infants with higher blood levels of ammonium.

The possibility that the carnitine status regulates blood ammonium levels in low

birth weight infants warrants continued investigation.

PMID: 2324881 [PubMed - indexed for MEDLINE]

Carnitine in maternal and neonatal plasma.

Cederblad G, Niklasson A, Rydgren B, Albertsson-Wikland K, Olegård R.

Abstract

Total plasma carnitine was analysed in 19 women, with uncomplicated pregnancies,

who underwent elective caesarean section, and in their neonates. The women were

given a balanced glucose (glucose group) or saline (saline group) infusion,

group allocation being on a random basis. The carnitine levels in maternal or

infant plasma did not differ between these two groups. At delivery, the mean

maternal carnitine value, 17.4 +/- 1.25 mumol/l, was lower than the mean infant

value, 25.9 mumol/l +/- 2.67 (mean +/- SE, p less than 0.005) and lower than the

mean value in non-pregnant, fertile women, i.e. 40.9 +/- 1.22 mumol/l. The mean

carnitine value in the unfed neonate had not changed when the infant was 4 hours

old. A positive correlation was found between carnitine levels in maternal and

infant plasma (p less than 0.01). At delivery, the levels of non-esterified

fatty acids and 3-OH-butyrate in infant plasma were different in the two groups,

but not at 4 hours

of age. The results suggest that the maternal carnitine level is the most

important factor governing plasma carnitine levels in the neonate

Another important link:

http://www.spectracell.com/media/821abstract2009ejcncarnitine-levels-in-pregnanc\

y.pdf

Pediatr Res. 2003 May;53(5):823-9. Epub 2003 Feb 20.

Neonatal blood carnitine concentrations: normative data by electrospray tandem

mass spectometry.

Chace DH, Pons R, Chiriboga CA, McMahon DJ, Tein I, Naylor EW, De Vivo DC.

Neo Gen Screening, Division of BioAnalytical Chemistry and Mass Spectrometry,

Bridgeville, PA 15017, USA. dcd1@...

Abstract

Despite a number of published reports, there is limited information about

carnitine metabolism in the newborn. To establish normative data, we analyzed

whole-blood carnitine concentrations in 24,644 newborns at age 1.85 +/- 0.95 d

and umbilical cord whole blood and plasma carnitine concentrations in 50

full-term newborns. Total carnitine (TC), free carnitine (FC), and acylcarnitine

(AC) were measured by electrospray tandem mass spectrometry. AC/FC ratios were

derived from these measurements. The entire cohort was stratified according to

TC values into a middle TC group representing 90% of the population and lower

and upper TC groups representing 5% of the population, respectively. Normative

data were derived from the middle TC group of full-term infants (N = 19,595). TC

was 72.42 +/- 20.75 microM, FC was 44.94 +/- 14.99 microM, AC was 27.48 +/- 8.05

microM, and AC/FC ratio was 0.64 +/- 0.19 (+/-SD). These values differed

significantly from umbilical cord

whole blood TC values of 31.27 +/- 10.54 microM determined in 50 samples. No

meaningful correlation was found between TC and gestational age or birth weight

in any group. In controlled analyses, prematurity was not associated with TC

levels, whereas low birth weight (<2500 g) and male sex were significantly

associated with higher TC levels. The association of low birth weight with

higher TC values may be related to decreased tissue carnitine uptake. The sex

effect may be related to hormonal influences on carnitine metabolism. Our study

provides normative data of carnitine values measured by the highly precise

method of electrospray tandem mass spectrometry in a large cohort of newborns

and provides the basis for future studies of carnitine metabolism in health and

disease states during the neonatal period.

Fed Proc. 1985 Apr;44(7):2369-73.

From: G <luckylot@...>

Subject: [ ] Re: Please help with sister's preemie baby - issues

Date: Monday, August 9, 2010, 1:39 AM

 

I tried to make those recommendations when she was still BFing, but now she

isn't BFing any longer and she regrets that decision...

> >

> > My sister had a premature baby (4 pounds when born) 3 months ago and back

then I was worried because of our genetics, her having the H1N1 flu vaccine

while pg, her own sensitivities and GI issues that she hasn't addressed, etc....

> >

> > Well, her son is now three months old and things are cropping up....he is

dairy intolerant, has loose BMs, is fussy, has sleep disturbances, already had

thrush twice and he was GREAT while he was on diflucan for 28 days (Nystatin

didn't work), but as soon as he went off, it came right back.

> >

> > I had been trying to get her to go natural rather than using these scripts,

that the yeast become resistant to. She is finally listening and has started

wiping his mouth out 3 times a day with a solution of 20 drops with one ounce of

water. She is using dairy free probiotics that I sent her. She has him on

Neocate to avoid as much dairy as possible. My question is, what dose can he

safely use internally? When he first got it, the dr said it was all down his

esophagus. Should he be on anything else, to address bacteria? I know what I do

with my kids (both have these issues and are being chelated), but I wasn't doing

this when they were 3 months old. I would like to see her giving him some blue

ice CLO too, but she can't afford much. What would be a must, at minimum? If I

have to, I will buy and send her what she needs.

> >

> > Thanks guys!

> >

> >

>

[Guest guest]

>

> My sister had a premature baby (4 pounds when born) 3 months ago and back then

I was worried because of our genetics, her having the H1N1 flu vaccine while pg,

her own sensitivities and GI issues that she hasn't addressed, etc....

>

> Well, her son is now three months old and things are cropping up....he is

dairy intolerant, has loose BMs, is fussy, has sleep disturbances, already had

thrush twice and he was GREAT while he was on diflucan for 28 days (Nystatin

didn't work), but as soon as he went off, it came right back.

>

If I had an infant with yeast or other gut issues, I would try the following:

Add a very small amount (like 1/8 teaspoon or even 1/16 if you can get the tools

to measure that) of Celtic sea salt (or McCormick French Grey) to one bottle a

day. Make sure it dissolves well. Give this a week or two to see what it is

doing. Then start adding a very small amount (again 1/8 teaspoon or less) of

glyconutrients, which can be gotten in powder form. Give this a week or two to

see what it is doing. If glyconutrients aren't tolerated well, remove them for

a few days and start over with aloe vera, which is one of the ingredients and it

did about 50% of what glyconutrients did for me (and is more readily available

and cheaper). I don't know if you can get aloe in powder form but I have seen

it in a liquid/gel form. I think that would readily dissolve in a bottle.

After the baby is successfully getting both sea salt and glyconutrients orally,

start adding in a tiny amount of coconut oil OR use coconut oil topically on the

baby's skin. It will absorb by skin and with serious gut issues this is better

tolerated. All three of these supplements can cause diarrhea, especially if the

dose is too high. So you don't want to overdo it and do more harm than good.

Take it slow and gentle. Start very conservatively and work your way up, adding

one new thing at a time. Once the baby is on all three things, then very

gradually increase the dose, keeping in mind that their small size means they

shouldn't be taking much anyway. As an adult, I worked my way up to a teaspoon

of glyconutrients a day and was, at one time, taking about 1 to 2 tablespoons of

sea salt and coconut oil per day. A baby shouldn't get anywhere near that much.

As the gut heals, the dose will eventually need to be lowered again because it

will become " too much " once the body no longer needs to work so hard on

repairing the gut.

All three of these supplements do good things for gut health. I have cystic

fibrosis. I am supposed to be on prescription digestive enzymes. I have gotten

off of them. This combination, taken " together " (within about the same hour) is

a big part of what got me off them. The three seem to work best taken around

the same time. I found that increasing one or two of them didn't make a real

huge difference but increasing all three of them really had a huge impact. So I

think there is something synergistic going on.

Good luck to your sister and her baby.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

[Guest guest]

Coconut oil sounds good, very effective and benign. Could be put in his bottles,

after warming the oil.

Other than that, if the baby is strong enough to take Diflucan for 28 days (very

strong medicine for a 3 month old) he's strong enough to take whatever natural

stuff you can get down him.

Most everything comes in liquid. I would treat slowly but not be afraid to give

whatever keeps rid of the yeast.

And unsure of what dose of what you are asking about. If you're asking about the

probiotics, give as much as possible to get rid of the yeast.

The only side effect of too many probiotics is loose stools, and then just back

off.

[ ] Please help with sister's preemie baby - issues

My sister had a premature baby (4 pounds when born) 3 months ago and back then

I was worried because of our genetics, her having the H1N1 flu vaccine while pg,

her own sensitivities and GI issues that she hasn't addressed, etc....

Well, her son is now three months old and things are cropping up....he is

dairy intolerant, has loose BMs, is fussy, has sleep disturbances, already had

thrush twice and he was GREAT while he was on diflucan for 28 days (Nystatin

didn't work), but as soon as he went off, it came right back.

I had been trying to get her to go natural rather than using these scripts,

that the yeast become resistant to. She is finally listening and has started

wiping his mouth out 3 times a day with a solution of 20 drops with one ounce of

water. She is using dairy free probiotics that I sent her. She has him on

Neocate to avoid as much dairy as possible. My question is, what dose can he

safely use internally? When he first got it, the dr said it was all down his

esophagus. Should he be on anything else, to address bacteria? I know what I do

with my kids (both have these issues and are being chelated), but I wasn't doing

this when they were 3 months old. I would like to see her giving him some blue

ice CLO too, but she can't afford much. What would be a must, at minimum? If I

have to, I will buy and send her what she needs.

Thanks guys!