Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Immunovir and Isoprinosine...are the same thing. I think that Immunovir is the patented name or some such. The literature that I received with the Isoprinosine lists both names. Laurion > Anybody try this antiviral?,it is available in canada and europe, Dr. > Cheney and Dr.Patarca-Montero recommend for th1@th2,immunemodulat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 , I paid about $1 pill through PharmacyMex.com. No script needed. Good Service. Beck wrote: > Why should you have to figure all this stuff about immunovir on your own. > Aren't immunologist suppose to be able to recommend it as a treatment? If > you have to do it on your own maybe you should just try it and see what the > reaction would be, I do not think one would expect any long term negative > consequences. But it would be nice if one did not have to be one's own Dr. > But with this DD that is often the case. > > I contacted the Canadian distributor and they need a fax script from a Dr. > to send it. Do Mexican pharmacies need a script? What is the cost of the > drug in Mexico. > > cheers > > Steve > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi, Massimo. This drug works to suppress TNFa activation, which creates inflammation and pain, during growth factor therapies that Dr Cheney has tried in PWCs. I can vouch for eliminating and preventing further severe pain that come on all over my body during one of these treatments, but as far as using it as a primary treatment for CFS its been around long enough and I can't recall a single cure or great overall improvement ever reported by any PWC that has used it for this purpose. " *Massimo " <maxupolo@...> wrote: > > Anybody has ever tried this medicine? I think had some experience with it, if I am not wrong. Anybody else? > > Cheers, > > Massimo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Thanks a lot . I asked this question because when I told Dr. De Meirleir that I had no improvements with Nexavir, he suggested to change it with Immunovir. But I had some feedback from who tried both and he told me that Nexavir did not work but did not have any major side effect, whereas he experienced a bad relapse of all symptoms using Immunovir. Massimo Re: Immunovir Hi, Massimo. This drug works to suppress TNFa activation, which creates inflammation and pain, during growth factor therapies that Dr Cheney has tried in PWCs. I can vouch for eliminating and preventing further severe pain that come on all over my body during one of these treatments, but as far as using it as a primary treatment for CFS its been around long enough and I can't recall a single cure or great overall improvement ever reported by any PWC that has used it for this purpose. " *Massimo " <maxupolo@...> wrote: > > Anybody has ever tried this medicine? I think had some experience with it, if I am not wrong. Anybody else? > > Cheers, > > Massimo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 , Can you clarify this statement? >>>I can vouch for eliminating and preventing further severe pain that come on all over my body during one of these treatments,<<<<< I think you mean the Immunovir relieved severe pain (by suppressing inflammation?), but I got confused by the " during one of these treatments " part. So, I may have misunderstood. Thanks, Katrina > > > > Anybody has ever tried this medicine? I think had some > experience with it, if I am not wrong. Anybody else? > > > > Cheers, > > > > Massimo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi Massimo, Yes, I have tried it. I found no benefits, it made my legs swell marginally, but otherwise no side-effects (which is a rarity for me!). Rosie Anybody has ever tried this medicine? I think had some experience with it, if I am not wrong. Anybody else? Cheers, Massimo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 I have used that in the past but I did not like it I had weight gain and also swollen legs with it - yuck - it was not for me . D. > > Anybody has ever tried this medicine? I think had some experience with it, if I am not wrong. Anybody else? > > Cheers, > > Massimo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi, Katrina. " kattemayo " <kattemayo@...> wrote: > > > , > > Can you clarify this statement? > > >>>I can vouch for eliminating and preventing further > severe pain that come on all over my body during one of these > treatments,<<<<< > > I think you mean the Immunovir relieved severe pain (by suppressing inflammation?) ***Yes, Immunovir suppressed TNFa inflammation and pain caused by growth factor therapy that can upregulate TNFa production. , but I got confused by the " during one of these treatments " part. > So, I may have misunderstood. > > Thanks, > > Katrina *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi Massimo, Immunovir has helped me with sore throats and swollen glands. No cure but a help. Kindest regards, Annette ___________________________________________________________ New is the ultimate force in competitive emailing. Find out more at the Championships. Plus: play games and win prizes. http://uk.rd./evt=44106/*http://mail..net/uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi. I have been on it for about a year, minus some time when I ran out. While I was off it I got a cold. While I'm on it, I don't seem to get sick with viruses. Haven't noticed any side effects, but then I'm kinda dense about stuff like that, so who knows. Helen > > Anybody has ever tried this medicine? I think had some experience with it, if I am not wrong. Anybody else? > > Cheers, > > Massimo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 " *Massimo " wrote: > I asked this question because when I told Dr. De Meirleir that I had no improvements with Nexavir, he suggested to change it with Immunovir. > > But I had some feedback from who tried both and he told me that Nexavir did not work but did not have any major side effect, whereas he experienced a bad relapse of all symptoms using Immunovir. > > Massimo Massimo, was KDM directly these antivirals at a specific viral infection or using these treatments primarily as immune modulators? Dr really wanted to get me into the funded Hemispherx program because he said my active HHV6a and paucity of other pathogens made me the " perfect candidate for a response to ampligen " . But Hemispherx turned me down for the funded study because I could still walk - they only wanted completely bedridden subjects. I was approved for the cost-recovery program, but I lost my health insurance many years ago and can't afford it. I'm not trying to be nasty to other people diagnosed with CFS. It's just that if someone dying from mycoplasma fermentans incognitus is talking to someone destroyed by HHV6a, they STILL need to differentiate what type of CFS they are talking about, as the treatments for vastly disparate pathogens are not compatible. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Dear , actually what I found very weird is the fact that I came out to be negative at the PCR tests for all the main viruses and bacterias, including HHV6, EBV, CMV, Chlamydia and Mycoplasma. Nevertheless, KDM decided that I was not a CFS patient with a profile suitable for an antibiotics treatment. He actually told me that I suffer for Fructose malabsorbtion that lead me to have a leaky gut, and the leaky gut lowered so dramatically my immune defenses that some viruses got reactivated. When I actually asked him how it could be possible in presence of all negative tests, he replied that there are millions of viruses that we don't know.... and of course I did not know what to reply to this answer... That's basically why he decided to put me on Nexavir and now suggesting Immunovir, probbly because I have very low count of CD4s, and he might want to increase my immune system. But still, I don't think I will try the Immunovir. I am thinking of trying the Transfer factor for EBV, and I found a very good doctor here in Italy (actually he is the president of the International Transfer Factor Society) who is willing to help me with this. He has had two cases of complete recovery in two patients with CFS. He usually does not work with CFS patients though, he works a lot with cancer patients. Cheers, Massimo Re: Immunovir " *Massimo " wrote: > I asked this question because when I told Dr. De Meirleir that I had no improvements with Nexavir, he suggested to change it with Immunovir. > > But I had some feedback from who tried both and he told me that Nexavir did not work but did not have any major side effect, whereas he experienced a bad relapse of all symptoms using Immunovir. > > Massimo Massimo, was KDM directly these antivirals at a specific viral infection or using these treatments primarily as immune modulators? Dr really wanted to get me into the funded Hemispherx program because he said my active HHV6a and paucity of other pathogens made me the " perfect candidate for a response to ampligen " . But Hemispherx turned me down for the funded study because I could still walk - they only wanted completely bedridden subjects. I was approved for the cost-recovery program, but I lost my health insurance many years ago and can't afford it. I'm not trying to be nasty to other people diagnosed with CFS. It's just that if someone dying from mycoplasma fermentans incognitus is talking to someone destroyed by HHV6a, they STILL need to differentiate what type of CFS they are talking about, as the treatments for vastly disparate pathogens are not compatible. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 " *Massimo " <maxupolo@...> wrote: > > Dear , > actually what I found very weird is the fact that I came out to be negative at the PCR tests for all the main viruses and bacterias, including HHV6, EBV, CMV, Chlamydia and Mycoplasma. Nevertheless, KDM decided that I was not a CFS patient with a profile suitable for an antibiotics treatment. > > He actually told me that I suffer for Fructose malabsorbtion that lead me to have a leaky gut, and the leaky gut lowered so dramatically my immune defenses that some viruses got reactivated. When I actually asked him how it could be possible in presence of all negative tests, he replied that there are millions of viruses that we don't know.... and of course I did not know what to reply to this answer... > Massimo Well, Massimo, you might get a kick out of reading Osler's Web by Hillary . It's on sale at and Noble for two bucks. (Guess nobody wanted to know about how " CFS " got going.) But anyway, it details the search for an elusive retrovirus that, as far as I know, has never really been ruled out. The research just got derailed and stopped. It may well be that the principal motivator for this illness is so subtle that it does nothing more than create a susceptibility - so we see people falling apart from " Anything and Everything - Stress and stressors " and blaming them, no matter how abnormal it is for anyone to fall apart from what we used to call " normal life " . What we DO know is that doctors and nurses are particularly at risk for developing the illness when they work closely with CFSers - especially if they get a needle-stick direct-blood contact. I just never thought that people who succumbed to stuff that is " Well known NOT to cause CFS " would work so hard to deprive themselves of research by insisting that stress really CAN cause CFS - and drag us into their psycho-realm too. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Hello Everybody, I am new here. My languages have been completely gone by ME, but I hope to speak enought English again that you all can understand me. Massimo, I think you mean by tje doctor in Italy en doctor who works whith sodium bicarbonate? By infuses e.a.. A friend of my here in Holland is in contact with this doctor and he is a bit of coping his therapy. It works. But my personal but in this is....... The illness, for example cancer, is gone for a while. For ever? For just a period? And I have not seen 1 study about the influance on the immune system. I personally think that illnesses are just a symptome of the immune. And there is no immune control. So can we say it works for a long period then? I am by DML too. And I followed your discussion about nexavir. Unfortunately it stopped In my case there were bacterial infections. Also Fructose malabsorbtion, leaky gut, very high elastase and Rnase. There are disfunctions enough. Do you know anyone who is on nexavir for a longer period? greetings! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 immunovir info http://users.adelphia.net/~sherry423/GuaiWhey/modulators.htm > Anybody has ever tried this medicine? I think had some experience > with it, if I am not wrong. Anybody else? > > Cheers, > > Massimo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 My teenage son took Immunovir for quite awhile and he said it definitely helped him feel better. Seemed to help his immune system. He decided to go off it recently because he wanted to cut back on any meds that were not helping substantially. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 Bob, Thanks for the reminder on the pulsing for Immunovir. I had forgotten to do that, so that is maybe why I got in trouble with getting the flu. I was just taking the full dose every day. That gives me hope about trying it out again. Du Pre Poetry website: http://www.angelfire.com/poetry/soareagle/index.html " By words the mind is winged. " Aristophanes Website for National Alliance for Myalgic Encephalomyelitis: http://www.name-us.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 I think it probably is superior on a non-immune compromised person, not sure about dysregulated (our kids) though. I'm a great supporter of immunovir for certain kids. Acyclovir seems to have negative effects on a lot of children. Maybe we could poll it on one of the lists? Will look into this Eileen > > I've posted the only study of immunovir on PubMed. As you can see it > says that acyclovir (Valtrex) is clearly superior for genital herpes. > Sally > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 Hi All, My DAN! suggested Immunovir for my kid. Anyone using it share pros and cons?? Thanks, Sasmita Quote Link to comment Share on other sites More sharing options...
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