Hi there

[Guest guest]

Grace....I have found more of a 2:1 cal/mag balance is good for me. For now

anyway! They say to start supplementing with magnesium you start with a small

amount like 50-100mg. Then increase in regular increments like adding an

additional 50-100mg each one to two weeks. You can increase to your tolerance

level. Your tolerance level is when you start to have symptoms of too much

magnesium. The most common one is loose stools to diarrhea. When you reach

this point start backing off til symptoms subside. You can always flex the dose

up and down by small amounts to get to what " feels right " for you.

, be aware that when you take your bp it should be a " resting " heart rate.

So when you use the bp stations at the stores keep in mind that usually when we

are shopping we do not have a resting heart rate due to all the activity of

shopping. For this reason, bp rates at the stores will tend to be higher than

your true resting heart rate or what a dr might find. Although, if you sat for

a bit until you were relaxed and rested, the store bp might be closer to more

accurate. Just a thought to keep in mind. (This is what my mom's dr told her.)

Hope that helps some,

Kim

Re: Hi there

Thanks Kim,

Have been looking at iThyroid and reading about the balance between Calcium

and Magnesium. My heart has slowed on the carbimazole but still beats very

" hard " so this may be the answer for me too. Not sure how much to take, on

iThyroid it suggests ratio 1:1 for hypers but on the Carbimazole I am heading

hypo so unsure if this will be right for me but will give it a shot. I too

am looking at my diet and ways to improve it.

All good advice guys, keep it coming cos the Dr certainly doesn't mention

any of this. In fact my Dr has never even checked my pulse or blood pressure,

nothing! You guys seem to get a lot more done. the only reason I know my

heart rate is cos I got my husband to take it regularly for me with a stopwatch

because I was feeling so ill with it at the time.

Grace

__________________________________________________________

Tiscali Broadband from 14.99 with free setup!

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[Guest guest]

Hi Kate,

I will certainly ask at drugstore if they have a blood pressure monitor.

Am not aware of a problem with my blood pressure and it is not something

Dr has mentioned, only thing was my heart was way to fast but on the meds

it has slowed a whole lot tho it does a " skip " thing and beats hard sometimes.

Thanks for that:-)

Grace

___________________________________________________________

Tiscali Broadband from 14.99 with free setup!

http://www.tiscali.co.uk/products/broadband/

[Guest guest]

Thanks Kim

Not at work a full day tommorrow so will have a chance to get to health food

shop for Calcium and Magnesium. May ask about the Bugleweed and Lemon Balm

that have been talked about. What about potassium, do I get enough of that

from a banana a day?

Grace

___________________________________________________________

Tiscali Broadband from 14.99 with free setup!

http://www.tiscali.co.uk/products/broadband/

[Guest guest]

Sorry, I don't know much about potassium. I guess that's the next one for me to

look into.

Re: Hi there

Thanks Kim

Not at work a full day tommorrow so will have a chance to get to health food

shop for Calcium and Magnesium. May ask about the Bugleweed and Lemon Balm

that have been talked about. What about potassium, do I get enough of that

from a banana a day?

Grace

__________________________________________________________

Tiscali Broadband from 14.99 with free setup!

http://www.tiscali.co.uk/products/broadband/

________________________________________________________________________

Check out AOL.com today. Breaking news, video search, pictures, email and IM.

All on demand. Always Free.

[Guest guest]

Well the way I read it when you are hyper you use your potassium levels up

really fast. Check it out in the iThyroid site as that is what I was looking

at. on that site recommends potassium.

I will need shares in the health food shop! Lol

___________________________________________________________

Tiscali Broadband from 14.99 with free setup!

http://www.tiscali.co.uk/products/broadband/

[Guest guest]

Buying shares! Why didn't I think of that! LOL!

Re: Hi there

Well the way I read it when you are hyper you use your potassium levels up

really fast. Check it out in the iThyroid site as that is what I was looking

at. on that site recommends potassium.

I will need shares in the health food shop! Lol

__________________________________________________________

Tiscali Broadband from 14.99 with free setup!

http://www.tiscali.co.uk/products/broadband/

________________________________________________________________________

Check out AOL.com today. Breaking news, video search, pictures, email and IM.

All on demand. Always Free.

[Guest guest]

Hi Dena

The only thing I have had comparable is with my Knee Cap. Apparently

the tendons that keep it in position can get tight with swelling.

I have been told from the beginning to move my Knee Cap back and forth

and up and down often.

Good Luck with this.

Dorie Madsen

Hi there

I am new here. I am 55 years old and had a TKR in February. Now my

knee is popping a lot and feels like it is going through some kind of

clock device where it goes click, click, click about 4-5 times each

time I bend it and I am having some pain. I called my surgeon and made

an appointment for next week. The last time I went to him I told him

it was popping a lot and he said it probably would do that

(approximately May) BUT it has gotten worse and getting up and down it

pops hard and doesn't feel real good. Going up and downstairs (14

steps) to my bedroom isn't real comfortable either. Anybody have this

and what happened? The thoughts of more surgery really scares me!

That was the most painful thing I have ever had done. Having babies is

nothing compared to this!

Dena in NC

[Guest guest]

Dena, I'm only 8 weeks post-surgery so can't offer any ideas. I have minor

clicking (OS said that was normal) from time to time. If you're in more pain

I'd definitely talk to my OS again to see what's going on. I had a 2-week

period where my pain made it difficult to walk (but not un-do-able) and it

scared me. But then suddenly the pain dissipated - learned from this group that

bouts of pain are pretty normal. I'm sorry your surgery was so painful - no

wonder you're not looking forward to any more. I'm glad I didn't suffer from

that - my surgery and recovery have been reasonable as far as pain goes. Please

keep us posted.

RTKR-9/16/09

Hi there

I am new here. I am 55 years old and had a TKR in February. Now my knee is

popping a lot and feels like it is going through some kind of clock device where

it goes click, click, click about 4-5 times each time I bend it and I am having

some pain. I called my surgeon and made an appointment for next week. The last

time I went to him I told him it was popping a lot and he said it probably would

do that (approximately May) BUT it has gotten worse and getting up and down it

pops hard and doesn't feel real good. Going up and downstairs (14 steps) to my

bedroom isn't real comfortable either. Anybody have this and what happened?

The thoughts of more surgery really scares me! That was the most painful thing

I have ever had done. Having babies is nothing compared to this!

Dena in NC

------------------------------------

[Guest guest]

Welcome Janice,

I am not anyone special on here. Just another member of the group. And i am also

here to learn more about what i and other people are going thru. It is nice to

be reminded we are not alone. And the pros and cons of all the tests out there.

I think you will be happy you found this place. I know i am. Take care and best

wishes! Shad

Hi there

Hello my new group of friends. I am Janice and I am 60 years old and have had a

bad back since I was 20 in 1970. I have had 5 back surgeries over the years and

to many ESI's to remember. I also have Arachnoiditis a disease caused by built

up scar tissue. It effect the whole lower 1/2 of my body. I see a wonderful pain

doctor once a month and he has saved my life. As the Arachnoiditis progresses he

helps me with pain issues and together we deal with what is happening to my

lower body. This disease effect the legs, feet bowels and bladder. It's not very

selective it will change my life as it gets worse.

I have learned so much about this disease and back disorders. I hope to learn

more.

Janice

[Guest guest]

Shad - I disagree. We are all special! hahahaha

Hi Janice,

What surgeries did you have? You said you had five of them. Were they fusions,

diskectomies, or what?

Barb

>

> Hello my new group of friends. I am Janice and I am 60 years old and have had

a bad back since I was 20 in 1970. I have had 5 back surgeries over the years

and to many ESI's to remember. I also have Arachnoiditis a disease caused by

built up scar tissue. It effect the whole lower 1/2 of my body. I see a

wonderful pain doctor once a month and he has saved my life. As the

Arachnoiditis progresses he helps me with pain issues and together we deal with

what is happening to my lower body. This disease effect the legs, feet bowels

and bladder. It's not very selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to learn

more.

> Janice

>

>

[Guest guest]

Three od them were discectomies and one was a fusion and one was to remove all

the hardware. Since I was 23 I have had back surgery every 8 to 10 years the

rest of my life. My grown children have never known me without pain. They are

very helpful and supportive. I don't know what I would do without them.

I now have Arachnoiditis I dont' know if anyone in this group has this disease

but it is a life changing disease that will eventually put me in a wheelchair if

I live long enough. I am already having a lot of problems. I also have

osteoporosis as a result of taking pain meds for the last 40 years. I haven't

had a break yet but I have lost all my teeth due to this. I used to not go out

at all unless it was to the doctor I didn't want anyone to see me. But now I

don't care it just doesn't matter. Somthing else that has effected my spine and

that is the ESI's they try to talk you into all the time. Many people have good

luck with them but for me they were a disaster. I will shut up for now. I really

look forward to talkign with you all. Everyone has a story and I would love to

hear some success stories.

Janice

Re: Hi there

Shad - I disagree. We are all special! hahahaha

Hi Janice,

What surgeries did you have? You said you had five of them. Were they fusions,

diskectomies, or what?

Barb

>

> Hello my new group of friends. I am Janice and I am 60 years old and have

had a bad back since I was 20 in 1970. I have had 5 back surgeries over the

years and to many ESI's to remember. I also have Arachnoiditis a disease caused

by built up scar tissue. It effect the whole lower 1/2 of my body. I see a

wonderful pain doctor once a month and he has saved my life. As the

Arachnoiditis progresses he helps me with pain issues and together we deal with

what is happening to my lower body. This disease effect the legs, feet bowels

and bladder. It's not very selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to

learn more.

> Janice

>

>

[Guest guest]

Janice,

You are aware the the ESI's are likely the cause of your arachnoiditis, correct?

--- Babbitt

________________________________

From: Janice <faraway1@...>

spinal problems

Sent: Tue, August 31, 2010 8:29:38 PM

Subject: Re: Re: Hi there

Three od them were discectomies and one was a fusion and one was to remove all

the hardware. Since I was 23 I have had back surgery every 8 to 10 years the

rest of my life. My grown children have never known me without pain. They are

very helpful and supportive. I don't know what I would do without them.

I now have Arachnoiditis I dont' know if anyone in this group has this disease

but it is a life changing disease that will eventually put me in a wheelchair if

I live long enough. I am already having a lot of problems. I also have

osteoporosis as a result of taking pain meds for the last 40 years. I haven't

had a break yet but I have lost all my teeth due to this. I used to not go out

at all unless it was to the doctor I didn't want anyone to see me. But now I

don't care it just doesn't matter. Somthing else that has effected my spine and

that is the ESI's they try to talk you into all the time. Many people have good

luck with them but for me they were a disaster. I will shut up for now. I really

look forward to talkign with you all. Everyone has a story and I would love to

hear some success stories.

Janice

Re: Hi there

Shad - I disagree. We are all special! hahahaha

Hi Janice,

What surgeries did you have? You said you had five of them. Were they fusions,

diskectomies, or what?

Barb

>

> Hello my new group of friends. I am Janice and I am 60 years old and have had

a

>bad back since I was 20 in 1970. I have had 5 back surgeries over the years and

>to many ESI's to remember. I also have Arachnoiditis a disease caused by built

>up scar tissue. It effect the whole lower 1/2 of my body. I see a wonderful

pain

>doctor once a month and he has saved my life. As the Arachnoiditis progresses

he

>helps me with pain issues and together we deal with what is happening to my

>lower body. This disease effect the legs, feet bowels and bladder. It's not

very

>selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to learn

>more.

> Janice

>

>

[Guest guest]

Janice

I also have AA and I an sure it has something to do

With the 120 plus esi's that I had.

Deb rn

Sent from my iPhone

On Aug 31, 2010, at 3:14 PM, " Janice " <faraway1@...> wrote:

> Hello my new group of friends. I am Janice and I am 60 years old and have had

a bad back since I was 20 in 1970. I have had 5 back surgeries over the years

and to many ESI's to remember. I also have Arachnoiditis a disease caused by

built up scar tissue. It effect the whole lower 1/2 of my body. I see a

wonderful pain doctor once a month and he has saved my life. As the

Arachnoiditis progresses he helps me with pain issues and together we deal with

what is happening to my lower body. This disease effect the legs, feet bowels

and bladder. It's not very selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to learn

more.

> Janice

>

>

[Guest guest]

what is AA?

Blessings,

L Kaiser

________________________________

From: " I_ownaberner@... " <i_ownaberner@...>

" spinal problems "

<spinal problems >

Sent: Wed, September 1, 2010 4:47:38 AM

Subject: Re: Hi there

Janice

I also have AA and I an sure it has something to do

With the 120 plus esi's that I had.

Deb rn

Sent from my iPhone

On Aug 31, 2010, at 3:14 PM, " Janice " <faraway1@...> wrote:

> Hello my new group of friends. I am Janice and I am 60 years old and have had

a

>bad back since I was 20 in 1970. I have had 5 back surgeries over the years and

>to many ESI's to remember. I also have Arachnoiditis a disease caused by built

>up scar tissue. It effect the whole lower 1/2 of my body. I see a wonderful

pain

>doctor once a month and he has saved my life. As the Arachnoiditis progresses

he

>helps me with pain issues and together we deal with what is happening to my

>lower body. This disease effect the legs, feet bowels and bladder. It's not

very

>selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to learn

>more.

> Janice

>

>

[Guest guest]

Adhesive Arachnoiditis AA for short

Deb RN

From: spinal problems

[mailto:spinal problems ] On Behalf Of Desert Fire

Sent: Wednesday, September 01, 2010 8:53 AM

spinal problems

Subject: Re: Hi there

what is AA?

Blessings,

L Kaiser

________________________________

From: " I_ownaberner@... <mailto:I_ownaberner%40> "

<i_ownaberner@... <mailto:i_ownaberner%40> >

" spinal problems

<mailto:spinal problems%40> "

<spinal problems

<mailto:spinal problems%40> >

Sent: Wed, September 1, 2010 4:47:38 AM

Subject: Re: Hi there

Janice

I also have AA and I an sure it has something to do

With the 120 plus esi's that I had.

Deb rn

Sent from my iPhone

On Aug 31, 2010, at 3:14 PM, " Janice " <faraway1@...

<mailto:faraway1%40verizon.net> > wrote:

> Hello my new group of friends. I am Janice and I am 60 years old and have had

a

>bad back since I was 20 in 1970. I have had 5 back surgeries over the years and

>to many ESI's to remember. I also have Arachnoiditis a disease caused by built

>up scar tissue. It effect the whole lower 1/2 of my body. I see a wonderful

pain

>doctor once a month and he has saved my life. As the Arachnoiditis progresses

he

>helps me with pain issues and together we deal with what is happening to my

>lower body. This disease effect the legs, feet bowels and bladder. It's not

very

>selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to learn

>more.

> Janice

>

>

[Guest guest]

I also have AA that is pretty advanced that I have had a couple of surgeries

because my spinal cord has tethered to scar tissue in addition to a fusion in my

neck. I truly wish they could find a cure for the AA, it is horrible and truly

dictates my life!

I have been wondering lately since ESI's are a concern for AA what is the

difference between ESI's and the " injections " that people on the board talk

about getting? Mine came from a spinal cord surgery gone bad, but I am always

very concerned when people talk about getting injections. I would love to know

which ones are at risk for causing the AA and which ones are not. I realize the

facet joint ones are NOT a risk because they are nowhere near the spinal cord,

but am confused as to ESI's possibly being called by any other names. Are the

ESI's always called that?

As anyone who knows me knows I know nothing about medical terms other than what

I have learned by experience from all of my issues, but would love to know the

difference because if anyone mentions injections I always say " don't do

injections " because I am terrified someone will wind up with AA without having

even heard of it.

Barb

>

> > Hello my new group of friends. I am Janice and I am 60 years old and have

had a bad back since I was 20 in 1970. I have had 5 back surgeries over the

years and to many ESI's to remember. I also have Arachnoiditis a disease caused

by built up scar tissue. It effect the whole lower 1/2 of my body. I see a

wonderful pain doctor once a month and he has saved my life. As the

Arachnoiditis progresses he helps me with pain issues and together we deal with

what is happening to my lower body. This disease effect the legs, feet bowels

and bladder. It's not very selective it will change my life as it gets worse.

> > I have learned so much about this disease and back disorders. I hope to

learn more.

> > Janice

> >

> >

[Guest guest]

My spinal cord is also tethered...amazing though I had a spinal cord stim

placed in oct 08 and used it for a year and a half or so.not sure what

happened or if just breaking the cycle of pain reset things but I no longer

have back pain or the horrific leg pain that I was having.the only problem I

have now is if I sit on the toilet for too long..(which happens as I have

inflammatory bowel disease) then my legs go completely numb..to the point of

standing up is very difficult.but other then that its ok.

YES these ESI's are the same as the " injections " that everyone speaks of..

Deb RN

From: spinal problems

[mailto:spinal problems ] On Behalf Of Me

Sent: Wednesday, September 01, 2010 9:14 AM

spinal problems

Subject: Re: Hi there

I also have AA that is pretty advanced that I have had a couple of surgeries

because my spinal cord has tethered to scar tissue in addition to a fusion

in my neck. I truly wish they could find a cure for the AA, it is horrible

and truly dictates my life!

I have been wondering lately since ESI's are a concern for AA what is the

difference between ESI's and the " injections " that people on the board talk

about getting? Mine came from a spinal cord surgery gone bad, but I am

always very concerned when people talk about getting injections. I would

love to know which ones are at risk for causing the AA and which ones are

not. I realize the facet joint ones are NOT a risk because they are nowhere

near the spinal cord, but am confused as to ESI's possibly being called by

any other names. Are the ESI's always called that?

As anyone who knows me knows I know nothing about medical terms other than

what I have learned by experience from all of my issues, but would love to

know the difference because if anyone mentions injections I always say

" don't do injections " because I am terrified someone will wind up with AA

without having even heard of it.

Barb

[Guest guest]

What's ESI?

Char

________________________________

From: Deb <i_ownaberner@...>

spinal problems

Sent: Wed, September 1, 2010 9:54:30 AM

Subject: RE: Re: Hi there

 

My spinal cord is also tethered...amazing though I had a spinal cord stim

placed in oct 08 and used it for a year and a half or so.not sure what

happened or if just breaking the cycle of pain reset things but I no longer

have back pain or the horrific leg pain that I was having.the only problem I

have now is if I sit on the toilet for too long..(which happens as I have

inflammatory bowel disease) then my legs go completely numb..to the point of

standing up is very difficult.but other then that its ok.

YES these ESI's are the same as the " injections " that everyone speaks of..

Deb RN

From: spinal problems

[mailto:spinal problems ] On Behalf Of Me

Sent: Wednesday, September 01, 2010 9:14 AM

spinal problems

Subject: Re: Hi there

I also have AA that is pretty advanced that I have had a couple of surgeries

because my spinal cord has tethered to scar tissue in addition to a fusion

in my neck. I truly wish they could find a cure for the AA, it is horrible

and truly dictates my life!

I have been wondering lately since ESI's are a concern for AA what is the

difference between ESI's and the " injections " that people on the board talk

about getting? Mine came from a spinal cord surgery gone bad, but I am

always very concerned when people talk about getting injections. I would

love to know which ones are at risk for causing the AA and which ones are

not. I realize the facet joint ones are NOT a risk because they are nowhere

near the spinal cord, but am confused as to ESI's possibly being called by

any other names. Are the ESI's always called that?

As anyone who knows me knows I know nothing about medical terms other than

what I have learned by experience from all of my issues, but would love to

know the difference because if anyone mentions injections I always say

" don't do injections " because I am terrified someone will wind up with AA

without having even heard of it.

Barb

[Guest guest]

I believe it is a combination of to many surgeries plus the ESI's. I have had

quite a few. I have also studied Dr. Sara s works plus Dr. Tennent of

California he is also an expert.Janice

Re: Hi there

Shad - I disagree. We are all special! hahahaha

Hi Janice,

What surgeries did you have? You said you had five of them. Were they fusions,

diskectomies, or what?

Barb

>

> Hello my new group of friends. I am Janice and I am 60 years old and have

had a

>bad back since I was 20 in 1970. I have had 5 back surgeries over the years

and

>to many ESI's to remember. I also have Arachnoiditis a disease caused by

built

>up scar tissue. It effect the whole lower 1/2 of my body. I see a wonderful

pain

>doctor once a month and he has saved my life. As the Arachnoiditis progresses

he

>helps me with pain issues and together we deal with what is happening to my

>lower body. This disease effect the legs, feet bowels and bladder. It's not

very

>selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to

learn

>more.

> Janice

>

>

[Guest guest]

Adhesive Arachnoiditis

Re: Hi there

Janice

I also have AA and I an sure it has something to do

With the 120 plus esi's that I had.

Deb rn

Sent from my iPhone

On Aug 31, 2010, at 3:14 PM, " Janice " <faraway1@...> wrote:

> Hello my new group of friends. I am Janice and I am 60 years old and have

had a

>bad back since I was 20 in 1970. I have had 5 back surgeries over the years

and

>to many ESI's to remember. I also have Arachnoiditis a disease caused by

built

>up scar tissue. It effect the whole lower 1/2 of my body. I see a wonderful

pain

>doctor once a month and he has saved my life. As the Arachnoiditis progresses

he

>helps me with pain issues and together we deal with what is happening to my

>lower body. This disease effect the legs, feet bowels and bladder. It's not

very

>selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to

learn

>more.

> Janice

>

>

[Guest guest]

Epidural steroid injection It is an injection in the spine through the lower

back. The chemicals in it can cause a horrible disease called Arachnoiditis.

Look it up and read about it. Janice

Re: Hi there

I also have AA that is pretty advanced that I have had a couple of surgeries

because my spinal cord has tethered to scar tissue in addition to a fusion

in my neck. I truly wish they could find a cure for the AA, it is horrible

and truly dictates my life!

I have been wondering lately since ESI's are a concern for AA what is the

difference between ESI's and the " injections " that people on the board talk

about getting? Mine came from a spinal cord surgery gone bad, but I am

always very concerned when people talk about getting injections. I would

love to know which ones are at risk for causing the AA and which ones are

not. I realize the facet joint ones are NOT a risk because they are nowhere

near the spinal cord, but am confused as to ESI's possibly being called by

any other names. Are the ESI's always called that?

As anyone who knows me knows I know nothing about medical terms other than

what I have learned by experience from all of my issues, but would love to

know the difference because if anyone mentions injections I always say

" don't do injections " because I am terrified someone will wind up with AA

without having even heard of it.

Barb

[Guest guest]

It absolutely would have a lot to do with you having Arachnoiditis. There is a

chemical in the injection called polyethilene (sp) an it is found in Miralax the

bowel product and it is also found in anti-freeze in your car. It literally

burns the nerves when injected into the spine so you end up with a mass of

nerves with huge amounts of scar tissue embedded thus arachnoiditis or AA there

is a slight difference. Janice

Re: Hi there

Janice

I also have AA and I an sure it has something to do

With the 120 plus esi's that I had.

Deb rn

Sent from my iPhone

On Aug 31, 2010, at 3:14 PM, " Janice " <faraway1@...> wrote:

> Hello my new group of friends. I am Janice and I am 60 years old and have

had a bad back since I was 20 in 1970. I have had 5 back surgeries over the

years and to many ESI's to remember. I also have Arachnoiditis a disease caused

by built up scar tissue. It effect the whole lower 1/2 of my body. I see a

wonderful pain doctor once a month and he has saved my life. As the

Arachnoiditis progresses he helps me with pain issues and together we deal with

what is happening to my lower body. This disease effect the legs, feet bowels

and bladder. It's not very selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to

learn more.

> Janice

>

>

[Guest guest]

Oh Deb, I hope you never EVER EVER have to have the tethered cord surgery. I

have had to do it twice and I honestly wanted to die...I was praying to die

because it hurt so incredibly bad. I was on a morphine drip, additional

medication by mouth every 4, morphine pump, baclofen drip and I was still

wanting to die!!! I knew mine was tethered again for about a year and didn't do

anything about it until I had severe problems, when that happened I had to go in

and do it on an emergency basis. I had two days notice! Fun, fun.

I can't have anything like a pain pump because I have had so many surgeries in

that area I have that pseudo-meningocele from no muscle mass left. I wish I

could have a pump or something because this pain is unrelenting. I still go out

and try to do as many things as I can to continue trying to live my life, but

the pain is ALWAYS there.

I'm glad you finally got yours under control. I have heard of a lot of people

that do have their pain from AA under pretty good control for the most part.

It's been a year since my diagnosis and I'm still working on it....maybe soon it

will be.

Barb

>

> My spinal cord is also tethered...amazing though I had a spinal cord stim

> placed in oct 08 and used it for a year and a half or so.not sure what

> happened or if just breaking the cycle of pain reset things but I no longer

> have back pain or the horrific leg pain that I was having.the only problem I

> have now is if I sit on the toilet for too long..(which happens as I have

> inflammatory bowel disease) then my legs go completely numb..to the point of

> standing up is very difficult.but other then that its ok.

>

> YES these ESI's are the same as the " injections " that everyone speaks of..

>

> Deb RN

>

>

>

> From: spinal problems

> [mailto:spinal problems ] On Behalf Of Me

> Sent: Wednesday, September 01, 2010 9:14 AM

> spinal problems

> Subject: Re: Hi there

>

>

>

>

>

>

> I also have AA that is pretty advanced that I have had a couple of surgeries

> because my spinal cord has tethered to scar tissue in addition to a fusion

> in my neck. I truly wish they could find a cure for the AA, it is horrible

> and truly dictates my life!

>

> I have been wondering lately since ESI's are a concern for AA what is the

> difference between ESI's and the " injections " that people on the board talk

> about getting? Mine came from a spinal cord surgery gone bad, but I am

> always very concerned when people talk about getting injections. I would

> love to know which ones are at risk for causing the AA and which ones are

> not. I realize the facet joint ones are NOT a risk because they are nowhere

> near the spinal cord, but am confused as to ESI's possibly being called by

> any other names. Are the ESI's always called that?

>

> As anyone who knows me knows I know nothing about medical terms other than

> what I have learned by experience from all of my issues, but would love to

> know the difference because if anyone mentions injections I always say

> " don't do injections " because I am terrified someone will wind up with AA

> without having even heard of it.

>

> Barb

>

>

>

>

>

>

>

[Guest guest]

Why on earth would a doctor give anyone 120 ESI's. I probably had 12 which they

come in 3 injections and I think I had them 4 times. I thought that was a lot

but you sure have me beat. Good grief why did they do that to you? What was the

reasoning behind it?

Janice

Re: Hi there

Janice

I also have AA and I an sure it has something to do

With the 120 plus esi's that I had.

Deb rn

Sent from my iPhone

On Aug 31, 2010, at 3:14 PM, " Janice " <faraway1@...> wrote:

> Hello my new group of friends. I am Janice and I am 60 years old and have

had a bad back since I was 20 in 1970. I have had 5 back surgeries over the

years and to many ESI's to remember. I also have Arachnoiditis a disease caused

by built up scar tissue. It effect the whole lower 1/2 of my body. I see a

wonderful pain doctor once a month and he has saved my life. As the

Arachnoiditis progresses he helps me with pain issues and together we deal with

what is happening to my lower body. This disease effect the legs, feet bowels

and bladder. It's not very selective it will change my life as it gets worse.

> I have learned so much about this disease and back disorders. I hope to

learn more.

> Janice

>

>

[Guest guest]

Are the injections limited just to the lower back or do they do them wherever

there is a problem??

I know before my surgery after my cervical fusion I was still having problems

with my neck and the pain management doctor mentioned doing injections and I

told him I didn't want injections. Now I wonder what type of injections he was

wanting to do. I don't suppose it matters now, but for other people's sake I

just wandered if they ESI's are specifically for lower back problems or

everywhere.

Barb

>

> > Hello my new group of friends. I am Janice and I am 60 years old and have

had a bad back since I was 20 in 1970. I have had 5 back surgeries over the

years and to many ESI's to remember. I also have Arachnoiditis a disease caused

by built up scar tissue. It effect the whole lower 1/2 of my body. I see a

wonderful pain doctor once a month and he has saved my life. As the

Arachnoiditis progresses he helps me with pain issues and together we deal with

what is happening to my lower body. This disease effect the legs, feet bowels

and bladder. It's not very selective it will change my life as it gets worse.

> > I have learned so much about this disease and back disorders. I hope to

learn more.

> > Janice

> >

> >