Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 In a message dated 27/09/2005 11:22:15 GMT Daylight Time, catherine.devereux@... writes: I'm not sure if you can get it in th Uk yet but we are using it on rx from Dr McCandless from Coastal Compounding in the U.S. >>>>Seen anything yet? fingers crossed Mandi PS Are you going to AAA conf? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Hi Lorene, I'm not sure if you can get it in th Uk yet but we are using it on rx from Dr McCandless from Coastal Compounding in the U.S. With best wishes TD-DMSA HiAnybody having been able to obtain this in the UK yet? Mandy can you update me on this, sorry I have been a little out of touch!Lorene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Hi Mandi, Have done 3 rounds of 8 hourly 3/11 and may try 4 hourly next time around. Not seen anything major apart from increased stimming, but gts are again causing problems so we're awaiting results of a further dysbiosis test. Actos rx is supposedly on its way so will keep you posted on that. We continue with the LDN which has been positive I feel and we are currently on a 6 week daily B12 run. Despite the bad guts and the detox from the chelation he is maintaining his receptive understanding and responsiveness gains well, its just everything else that needs major work!!! I will be at the conference and can't wait to meet up again - I'm also in the Roxburgh but am on a later flight than you ie Fri pm - what time's yours back on the sunday - we could be on the same one? Love Re: TD-DMSA In a message dated 27/09/2005 11:22:15 GMT Daylight Time, catherine.devereux@... writes: I'm not sure if you can get it in th Uk yet but we are using it on rx from Dr McCandless from Coastal Compounding in the U.S. >>>>Seen anything yet? fingers crossed Mandi PS Are you going to AAA conf? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2005 Report Share Posted November 14, 2005 In a message dated 14/11/2005 14:11:10 GMT Standard Time, ash_bz@... writes: Hi ---Does Mandi or anyone use the new TDDMSA from Breakspear at all???? TIA >>>>I use oral - Kirkman Flavoured Mandi x Do you know where the TD DMSA came from? I am suspecting College/.AMT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 I know it seems like quite a long progression, but it's really only 16 days. :-) It does help their bodies get used to the nutrients gently and gradually, which is why we suggest it. Terri at Brainchild At 03:43 PM 1/28/2006, you wrote: Hi, We're on our first round of TD-DMSA, it's not as bad as expected but does not seem to absorb too well, it's a very runny substance rather than a cream, is this what other people are experiencing? Are you still giving minerals on the on days? We're about to start Brainchilds meaga minerals on Monday, the step up to full dosage is a long time, did anyone else go through the full 4 weeks to full dosage? Emlyn DISCLAIMER No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 Emlyn, Are you using coastal or Lee Silsby? We're using coastal and its more like a stcky gel! I rub it well in with a glove and let him run around (during the day) to let it dry a bit before putting trousers back on! On 28/01/06, maricelltd <maricelltd@...> wrote: Hi,We're on our first round of TD-DMSA, it's not as bad as expected butdoes not seem to absorb too well, it's a very runny substance rather than a cream, is this what other people are experiencing?Are you still giving minerals on the on days?We're about to start Brainchilds meaga minerals on Monday, the step upto full dosage is a long time, did anyone else go through the full 4 weeks to full dosage?EmlynDISCLAIMERNo information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Hi We use TD-DMSA from Breakspear Hosp (not sure where they source from). They said that it is very thin liquid and rec'd that we keep in fridge as that makes it little thicker. We squirt out what we need onto the bottom of a shot glass - then if too much comes out you can suck up excess - we apply & rub in using the glass. (Thanks for this idea Mandi) It seems to work fine. I just have to remember to warm up the bottom of the glass for the night-time apps! Yes, I still give minerals on the on days. We use Brainchild Spectrum support minerals - I think this has slightly lower levels in than the Mega. I was too impatient to go the 4 week route, so halved the time I didn't see any adverse effects but Tom was previously taking a general childs vit and min supp. Hope that helps Gail > > Hi, > > We're on our first round of TD-DMSA, it's not as bad as expected but > does not seem to absorb too well, it's a very runny substance rather > than a cream, is this what other people are experiencing? > Are you still giving minerals on the on days? > We're about to start Brainchilds meaga minerals on Monday, the step up > to full dosage is a long time, did anyone else go through the full 4 > weeks to full dosage? > > Emlyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 In a message dated 30/01/2006 20:59:56 GMT Standard Time, saqabisa@... writes: --- are you i the uk. because i like to know how you came acrosschealation. >>>Butting in - I came across chelation back in 2000 when the Bernard et al paper was published. Most of my learning about it has been done on A-M list and in Moria's files. I;ve just had computer reformatted and lost all my favourites but both are in the LINKS page on the TA site www.treatingautism.com HTH Mandi in Dorset Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Hi Emlyn, The coastal stuff is like a thick gel which rubs in to the skin pretty well and absorbs relatively quickly . At night I leave his pyjama bottoms off and put it on his legs when he is asleep. I tend to alternate legs, applying to the upper thigh using a thin plastic disposable glove. HTH On 30/01/06, maricelltd <maricelltd@...> wrote: ,We're using AMT & college pharmacy TD-DMSA, we find that most of thenight time dose ends up on the bed or in his pyjamas. What sort of glove do you use? Do you only do legs or arms too? We've triedsplitting the dose (2ml) and giving half to each leg but it's stillnot going in to well.Emlyn> >> > Hi,> >> > We're on our first round of TD-DMSA, it's not as bad as expectedbut> > does not seem to absorb too well, it's a very runny substance rather> > than a cream, is this what other people are experiencing?> > Are you still giving minerals on the on days?> > We're about to start Brainchilds meaga minerals on Monday, thestep up > > to full dosage is a long time, did anyone else go through thefull 4> > weeks to full dosage?> >> > Emlyn> >> >> >> >> > > >> > DISCLAIMER> > No information contained in this post is to be construed asmedical> > advice. If you need medical advice, please seek it from asuitably qualified> > practitioner. > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 --- are you i the uk. because i like to know how you came across chealation. nasreen In Autism Treatment , Devereux <catherine.devereux@g...> wrote: > > Hi Emlyn, > The coastal stuff is like a thick gel which rubs in to the skin pretty well > and absorbs relatively quickly . At night I leave his pyjama bottoms off and > put it on his legs when he is asleep. I tend to alternate legs, applying to > the upper thigh using a thin plastic disposable glove. > HTH > > > > On 30/01/06, maricelltd <maricelltd@y...> wrote: > > > > , > > > > We're using AMT & college pharmacy TD-DMSA, we find that most of the > > night time dose ends up on the bed or in his pyjamas. What sort of > > glove do you use? Do you only do legs or arms too? We've tried > > splitting the dose (2ml) and giving half to each leg but it's still > > not going in to well. > > > > Emlyn > > > > > > > > > > > > > > Hi, > > > > > > > > We're on our first round of TD-DMSA, it's not as bad as expected > > but > > > > does not seem to absorb too well, it's a very runny substance > > rather > > > > than a cream, is this what other people are experiencing? > > > > Are you still giving minerals on the on days? > > > > We're about to start Brainchilds meaga minerals on Monday, the > > step up > > > > to full dosage is a long time, did anyone else go through the > > full 4 > > > > weeks to full dosage? > > > > > > > > Emlyn > > > > > > > > > > > > > > > > > > > > > > > > > > > > DISCLAIMER > > > > No information contained in this post is to be construed as > > medical > > > > advice. If you need medical advice, please seek it from a > > suitably qualified > > > > practitioner. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Is Lee Silsby Compounding Pharmacy the only place to order td-dmsa? TIA, Cari Quote Link to comment Share on other sites More sharing options...
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