Medications

[Guest guest]

Thanks for the advice Roxanne. The reason I took my meds at noon today, is

because I only got up at 11:30am! What a bum. I'm pretty tired these days,

so I decided to listen to my body while I wasn't on meds to do as little

damage as possible. As it happens, my body wanted 11-12 hours sleep on

average (unbelievable for me)! Anyways, once the pred kicks in and I get a

job, I'll likely be taking them earlier. Always right after breakfast!

>From: CREE8V1@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Medications

>Date: Tue, 15 Jun 1999 17:41:29 EDT

>

>From: CREE8V1@...

>

>, don't be paranoid. You might do very well on the meds. It takes a

>while usually for them to get going in your system. Is there a reason that

>you took them at 12:00 noon? As I understand it, it is recommended to take

>both of these in the morning, after eating something to reduce the chance

>of

>nausea. Taking prednisone in the morning better mimics the bodies natural

>release of these hormones.

>

>Just a thought, Roxanne

>

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[Guest guest]

, don't be paranoid. You might do very well on the meds. It takes a

while usually for them to get going in your system. Is there a reason that

you took them at 12:00 noon? As I understand it, it is recommended to take

both of these in the morning, after eating something to reduce the chance of

nausea. Taking prednisone in the morning better mimics the bodies natural

release of these hormones.

Just a thought, Roxanne

[Guest guest]

My son takes many meds..morning and night..about 10 pills each time..total 20

per day...He found that actually taking them with a meal he would just throw

them right up..So the first thing he does in the morning is eat..then

shower.dress.get all ready to bet bus by 6:45 then takes his pills....This

seems to work for him.. May be worth a try..Does the same thing at

night...has a snack..dessert and then in 1/2 hour takes pills..

Hope this helps..

Luanne Ty's mom

[Guest guest]

Thanks Luanne, and everyone else who replied, for your tips. So far so good

- one day down, and no crazy side effects. My quads and leg joints are

beginning to ache, but that's about it.

Take care,

>From: BBNLU@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Medications

>Date: Tue, 15 Jun 1999 20:29:53 EDT

>

>From: BBNLU@...

>

>My son takes many meds..morning and night..about 10 pills each time..total

>20

>per day...He found that actually taking them with a meal he would just

>throw

>them right up..So the first thing he does in the morning is eat..then

>shower.dress.get all ready to bet bus by 6:45 then takes his pills....This

>seems to work for him.. May be worth a try..Does the same thing at

>night...has a snack..dessert and then in 1/2 hour takes pills..

>Hope this helps..

>Luanne Ty's mom

>

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[Guest guest]

Glad to help anytime...Feel well..

Luanne Ty's mom

[Guest guest]

Prednisone and Imuran are hard core drugs..... But, my dear, you have no

choice if you want to live.... unfortunately..... Side effects are

numerous... Ask your pharmacy to give you the side effects printout.... Do a

little research on your own.... You will not regret it...

Hope this helps

Love and Light

Dixie

emily simpson wrote:

> From: emily simpson <esimpson7@...>

>

> Hi everyone,

>

> Sorry for my persistent questions. Since I've just started taking

> medications, I'm curious as to what to expect. I know every case is

> different, but I was wondering when some of you have begun to see side

> effects from Prednisone and/or Imuran (good or bad)? Took my first doses

> today, both of them together, at 12:00pm. I'm so paranoid. Ugghh!!

> Anyways, I'm sure all will be well. Just kind of strange...

> I feel as if I'm waiting for a bomb to drop or something!!!

>

>

>

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[Guest guest]

Hi , and to everyone here,

I've been on meds for year and half, the side effects which you wouldn't

like, but to all it effects us alittle different, with 40mgs predisone and

50imuran it was pretty hard. I had hair everywhere on my body, growing in

places that i wouldn't expect. then the weight gain uhggggg, gained 50pds,

can't fit to none of my clothes, i've havent brought a new wardrobe since i'm

optomistic about losing it. I HOPE! Then comes the depression which i know

it made me seem like a demon at times.. Some people have the characteristic

of moon face, i'm not sure if I have it but i guess my head does stand out

in the middle of the night. Anyway i take it day by day, just enjoy each

day you have ahead of you, live it to the best!!!

MIGUEL AIH

Brooklyn,

[Guest guest]

Dear ,

Thanks for sharing your experience. Can I ask how long it took for these

side effects to start showing? Everyday I'm wondering if I'm going to get a

new surprise that day! It sounds like you've had a tough time, but

maintained a positive attitude and sense of humour. I'll follow your advice

and take it day by day. Thanks again,

>From: MRios81143@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Medications

>Date: Thu, 17 Jun 1999 13:14:33 EDT

>

>From: MRios81143@...

>

>Hi , and to everyone here,

>I've been on meds for year and half, the side effects which you wouldn't

>like, but to all it effects us alittle different, with 40mgs predisone and

>50imuran it was pretty hard. I had hair everywhere on my body, growing in

>places that i wouldn't expect. then the weight gain uhggggg, gained 50pds,

>can't fit to none of my clothes, i've havent brought a new wardrobe since

>i'm

>optomistic about losing it. I HOPE! Then comes the depression which i know

>it made me seem like a demon at times.. Some people have the

>characteristic

>of moon face, i'm not sure if I have it but i guess my head does stand out

>in the middle of the night. Anyway i take it day by day, just enjoy each

>day you have ahead of you, live it to the best!!!

>

>MIGUEL AIH

>Brooklyn,

>

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>

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[Guest guest]

hi emily, i guess with everyone it's different, not all the same, it comes

progressively, there's also the chance of ulcers, bone loss and others as

well, but i don't sweat, right now feeling great and all, but i have a hard

time getting out of bed, so heavy but i have to work on it. hey don't worry,

i sent a poem to everyone i hope it came out in the post if not i'll send it

separately. k

aih'

Brookllyn

[Guest guest]

,

You might not feel any effects at all from the meds. I don't think that

everyone does. I did at first but I really don't know if it was the

medication or because I was very sick anyhow at the time. I was told that

Prednisone can work like a stimulant and make you feel a little

hyperactive. Others think it might be a depressant. I didn't have

problems either way. One thing that's very pertinent to me is that after

I'd taken both meds for about 10 months, I felt better than I'd felt in

several years. Unfortunately, I DO have liver disease so the feel-good

period didn't last forever. Except for a few problems, now I feel normal

with some aches and pains I didn't used to have. Oh, yes, and of course,

I'm about 40 lbs. heavier than I used to be. But, you're young and if you

are careful with your diet and you exercise, you probably won't have a big

problem. I did neither.

Take care,

Geri

[Guest guest]

Thanks for your feedback Geri,

It helps a lot to have some sort of guidelines for what to expect when. So

far, I haven't really felt any change, except for my quads and leg joints

are kind of sore/strained/tense. No problem. I'll take that over others

any day.

>From: Geri Spang <spangs@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] Medications

>Date: Fri, 18 Jun 1999 01:38:10 -0700

>

>From: Geri Spang <spangs@...>

>

>,

>You might not feel any effects at all from the meds. I don't think that

>everyone does. I did at first but I really don't know if it was the

>medication or because I was very sick anyhow at the time. I was told that

>Prednisone can work like a stimulant and make you feel a little

>hyperactive. Others think it might be a depressant. I didn't have

>problems either way. One thing that's very pertinent to me is that after

>I'd taken both meds for about 10 months, I felt better than I'd felt in

>several years. Unfortunately, I DO have liver disease so the feel-good

>period didn't last forever. Except for a few problems, now I feel normal

>with some aches and pains I didn't used to have. Oh, yes, and of course,

>I'm about 40 lbs. heavier than I used to be. But, you're young and if you

>are careful with your diet and you exercise, you probably won't have a big

>problem. I did neither.

>Take care,

>Geri

>

>

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[Guest guest]

,

How right you are!!!!! Enjoy each and every day that we have been given.

SueB.

----------

> From: MRios81143@...

> onelist

> Subject: Re: [ ] Medications

> Date: Friday, 18 June 1999 3:14

>

> From: MRios81143@...

>

> Hi , and to everyone here,

> I've been on meds for year and half, the side effects which you wouldn't

> like, but to all it effects us alittle different, with 40mgs predisone

and

> 50imuran it was pretty hard. I had hair everywhere on my body, growing

in

> places that i wouldn't expect. then the weight gain uhggggg, gained

50pds,

> can't fit to none of my clothes, i've havent brought a new wardrobe since

i'm

> optomistic about losing it. I HOPE! Then comes the depression which i

know

> it made me seem like a demon at times.. Some people have the

characteristic

> of moon face, i'm not sure if I have it but i guess my head does stand

out

> in the middle of the night. Anyway i take it day by day, just enjoy

each

> day you have ahead of you, live it to the best!!!

>

> MIGUEL AIH

> Brooklyn,

>

> ------------------------------------------------------------------------

> Last chance to earn $5000 for your charity of choice!

>

> Deadline for " GROW TO GIVE " is June 19. See homepage for details.

> ------------------------------------------------------------------------

> Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

> 2.) To UNsubscribe send to -unsubscribeonelist

> 3.) Digest e-mail format send to -digestonelist

> 4.) Normal e-mail format send to -normalonelist

[Guest guest]

,

It seems that I had some muscle pain at first. Actually, I developed

painful muscle spasms in my back and my legs and feet ached terribly. But

I knew that it was caused by the meds and not my liver, so I just dealt

with them the best I could, realizing they would pass in time. And,

basically they did.

The advice others have given you to exercise and eat healthy foods is good.

The more fit you are, the better you're going to handle any adverse

effects. If you aren't a real food fanatic, you can probably avoid a major

problem with weight gain. I know that you'll do okay. I've met quite a

few people who've taken pred and had virtually no problems at all!

Take care,

Geri

[Guest guest]

I have ordered supplements online, but never prescription medication. I have

heard some horror stories on the news about some of these medications such as

expired products and counterfeits. So, I would definately be careful when

ordering these online (of course the same thing could happen through a

neighborhood pharmacy as well, but I would think that is less likely to

happen than ordering from an unknown pharmacy online).

Annette

[Guest guest]

The Medsmex website is at http://medsmex.com

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[Guest guest]

Yes, I, too, have found places on the net that sell drugs without

prescriptions, but am scared that I'll get something that could kill

me.

If anyone has had a good experience doing this on one of the web

sites, please let me know.

In candidiasis@y..., WusCookin@a... wrote:

> I have ordered supplements online, but never prescription

medication. I have

> heard some horror stories on the news about some of these

medications such as

> expired products and counterfeits. So, I would definately be

careful when

> ordering these online (of course the same thing could happen

through a

> neighborhood pharmacy as well, but I would think that is less

likely to

> happen than ordering from an unknown pharmacy online).

>

> Annette

>

>

>

[Guest guest]

Just wanted to say that my experience with scoliosis had/has many

similarities with Suzy's. Even though I'm 57 and didn't have my first

Harrington op till I was 32 in 1977, I suffered the same feelings of being

different as all the other adolescents with scoliosis.(My mom didn't blame

me for the deformity, however, she just denied it, didn't look for good

medical help with obvious results...) On top of that, after surgery as an

adult, a year in a body cast (with two small children to take care of -

luckily also a very supportive and loving husband) a rod popped, I had more

surgery that didn't work, then another op to fix up the botched one, and

another year in a body cast, then another op to fix up the one that was

supposed to fix up the earilier one, then life in a corset, great pain, the

docs saying things like " Convince yourself that you're all right! " .... then

the flatback diagnosis and ANOTHER op that only made things worse, and

finally in October of 2000, the flatback correction. Now nobody in the

world can tell me that after all that insult to my back I am not going to

be in chronic pain for the rest of my life. The difference is that it's

better than it was before. Like Suzy, I am a member of the " Lost

Generation " (not Hemingway's) - lost in the sense of forgotten and lost in

the sense of really not knowing where to go, what doors to knock on. This

group has been a godsend for me, too - just KNOWING that there are other

people out there with similar problems - people who understand that when my

back hurts, it HURTS, people who don't think I'm a drug addict because I

keep codeine pills in my wallet.... well you've heard it all before.

I don't know about having a list all to ourselves, however - perhaps

it's good that people know about us - I'm sure similar situations have

occurred for other maladies - medical care is in constant flux. Think of

how dialysis treatment has changed over the years and how much better

people fare on dialysis now than 30 years ago. I'm not too worried about

scaring people - after all, nobody is forcing anybody to read our postings.

I do know that I, personally, need the list the way it is - as said

once, a safe haven for those of us who have had quite a bit of bad luck.

And I thank, warmly, all of you who participate and give me renewed courage

every day.

I'll think a bit more and try to send a more articulate posting. I do

agree that adult scoliosis is a totally different " scene " from childhood or

teenage scoliosis: but I think other adult scoliosis patients would only

learn, and I hope, benefit, by hearing our stories.

All the best,

from Italy

[Guest guest]

I benefit from all your stories. I am 21, so I don't fit into child,

teenager or older adult. But I want all of you who suffer now to know that

you have created a place in the world to fit in when no one else in my life

UNDERSTANDS.

These lists are my little secret at work, and they are the only thing that

has kept me going through my chronic pain. Just to know, that I am not

alone.

Thank you.

Natasha

[Guest guest]

I thought it had been decided several days ago that

this thread was a dead issue but since several people

are still posting about it, I'd like to put in my 2

cents worth.

I belong to at list 6 scoli lists (I've lost count)

and periodically, depending on my mood I decide I

should unsubscribe from one or more of them for a

variety of reasons. And yet it is still nice to keep

the communication lines flowing.....even when it

doesn't pertain to me.

Each of us is totally different. Not only are we

different ages, living in different states, countries,

environments, but our medical histories are totally

different. Some of us have idiopathic as opposed to

congentital scoliosis, some of us have birth defects,

some of us have other conditions. Sure it's hard to

read through all the posts, especially if you belong

to as many lists as I do, but you can always skim

them, and pull out the relevent sections.

On a bad day, I don't want to read any of the lists.

But on a good day, I will read (or at least skim) each

and every one and they are all valuable, and I thank

every single person whose life has crossed mine by

virtue of these posts. Let's leave things as they are

and keep one list. Thanks.

Michele

__________________________________________________

[Guest guest]

Michele,

Have you found any other lists for adults who had surgery as kids, but

had differing types of instrumentation? I had an anterior spinal fusion

in 1972, but mine was not a Harrington rod type. I have enjoyed this

list, but I am also interested in locating other lists that might be

suited for me.

Thanks for the info.,

Micmb wrote:

[Guest guest]

There is a potential for error all the time. This is why it is

crucial to realize that just one slip up will affect someone's life.

The importance of having a system of multiple checks in place--and to

actually follow through and use them cannot be understated. Errors

must be identified, corrected, and documented. This may be as simple

as correcting a shortage in pills dispensed, or it may be as

complicated as a life long debiliatation. Simple or not each error

must be reviewed and corrective (not punitive)action must be taken so

the likelyhood of the reoccurrance of that same type of error will be

reduced.

Dora

> Do you ever have a mistake in your pharmacies? For

example....giving

> out the wrong dosage or number of pills......What do you do in a

case

> like that?

[Guest guest]

Well Said Dora!

Punitive measures taken as a result of medication errors causes

others not to report errors. It leads to fear. This reinforces more

errors, because the cause, effect and solution are never researched

and therefore corrective action is never taken.

The AMA, ASHP and APhA, and Jacho support the reporting ,

identification, documentation, research and correction of any and all

errors no matter how small or gross they may be. Each error should be

treated as though its effect were life threatening and the above

review taken seriously and completely.

Yes PTG errors happen! We ARE human. But we need to have all the

possible check points in place and we need to EDUCATE to prevent

errors.

One important way that a tech can prevent errors is

1) to know all about the drug before removing it from the shelf to

dispense.

By knowing what drugs it interacts with, how the drug is

administered, its UAD (usual adult dosages) its classifiction and the

D/S (Disease States) that it is usually prescribed for, the

availabilty, etc one can be better prepared to be on the alert and

find/report prescription errors. In addition, knowing the

precaustions can prevent harm/injury top you the tech and the patient.

Case in point: Proscar

Respectfully,

Jeanetta Mastron CPhT BS Chemistry

Founder/Owner

> > Do you ever have a mistake in your pharmacies? For

> example....giving

> > out the wrong dosage or number of pills......What do you do in a

> case

> > like that?

[Guest guest]

please can any one read my meds and tell me what i should and shouldnt be

taking. i would be so grateful. i have asked my doc only to be told, no

problem.

many thanks

anita

>

> From: gina413@...

> Date: Fri 03/Jan/2003 16:37 GMT

>

> Subject: [ ] Medications

>

> In a message dated 1/2/2003 1:01:39 PM Eastern Standard Time,

> flatcat9@... writes:

>

> > I check anything new with my doctor, while presenting a neatly printed list

> > of everything I'm taking. Then I ALSO check with the pharmacist. And I

> > ALSO check on-line for contraindications. Again, I have in hand that

> > printed list of all my medications. Many of us have run into errors made

> > by the pharmacist or the doctor -- or both. Also, when I'm given a

> > prescription, I read the label on the bottle to make sure that it is the

> > drug and the dosage that it should be. I've found serious mistakes on the

> > label, too.

> >

>

> Harper - I, too, have a list that I continually update. I have 6 doctors who

> see me on a continuing basis, plus my hepatologist. This helps to keep

> things straight for all of us. We can never be too careful with all these

> meds.

>

> Don't you all feel that managing all of these illnesses is somewhat like

> having a non-paying part-time job? Hee, hee.

>

> Love and prayers -

> gina

>

>

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[Guest guest]

Anita..... I don't think anyone here can tell you what you should take

and not take. None of us are MDs. It's just you worried me when you said

you were taking some like sweets and I know that can't be right.

Be honest with your doc and tell them all you are taking and how many,

honesty is the key ..not only to the doc but to yourself. Maybe he/she

can rearrange them so as not to have to take so many.

Asking your pharmacist about them is also wise and Harper has very good

suggestions. We here are only concered about you and are not trying to

direct your treatment at all. Taking care of yourself is the most

impotant thing cause you can't help others if you aint right yourself.

BTW.. got a quick reading from the other side for me..I'm a big skeptic.

love jerry

[Guest guest]

> hi jerry, dont worry, i have made a list of my meds and intend to go tru them

with the hospital doc. on wednesday. thats if they can spare more than the

allotted 10 minutes. thats only after 3/4 hour wait, minimum.

I will try and get a message for you, but when, i dint know. sometimes i get

day after day of messages for people. other days nothing, usually when i am not

feeling well. but dont worry, i love sceptics (i was one of those) its usually

sceptics that get the best readings.

love

anita

> From: gefox@...

> Date: Sat 04/Jan/2003 07:03 GMT

>

> Subject: Re: [ ] Medications

>

> Anita..... I don't think anyone here can tell you what you should take

> and not take. None of us are MDs. It's just you worried me when you said

> you were taking some like sweets and I know that can't be right.

> Be honest with your doc and tell them all you are taking and how many,

> honesty is the key ..not only to the doc but to yourself. Maybe he/she

> can rearrange them so as not to have to take so many.

> Asking your pharmacist about them is also wise and Harper has very good

> suggestions. We here are only concered about you and are not trying to

> direct your treatment at all. Taking care of yourself is the most

> impotant thing cause you can't help others if you aint right yourself.

> BTW.. got a quick reading from the other side for me..I'm a big skeptic.

>

> love jerry

>

>

>