Re: &

[Guest guest]

:

So happy to hear you've already seen rounding! Things are on the

right track.

Hope he's feeling better

Thanks for the good update.

Debbie Abby's mom DOCgrad

MI

> > > > I have a question...does tort always cause gross

developmental

> > > delays? B/c

> > > > the cranial facial dr and Charlotte at CT both agree that

>

> > > has or had

> > > > tort and with the pictures Cranial Tech took before he got

his

> > > helmet..he did

> > > > have a slight tilt...but he is doing everything on time or

> > early.

> > > He sat up

> > > > on his own at around 6 months. He started crawling at about

7

> > > months. He's

> > > > now standing and walking while holding on to the furniture

> which

> > he

> > > started

> > > > at 8 months..and he's now 8 1/2 months. He can turn his head

> > both

> > > ways...he

> > > > used to pull up his shoulder a little when looking to the

> > left..but

> > > i don't

> > > > notice him doing that anymore and i don't notice a tilt..but

> then

> > i

> > > didn't

> > > > really notice it before either.

> > > >

> > > > Also, no one ever recommended PT for him....the cranial dr

gave

> > us

> > > some

> > > > exercises to do with each diaper change..but that's it. And

i

> > have

> > > to admit

> > > > i got very lazy doing those exercises....and i'm not sure if

> his

> > > tort is

> > > > resolved or not. Does everyone with tort go to PT?

> > > >

> > > >

> > > > Mom to

[Guest guest]

In a message dated 5/28/2003 6:18:28 PM Pacific Daylight Time,

RNMSW@... writes:

> I am happy to hear from you two ladies. I've been no-mail for several

> months myself and just recently returned when I bought a laptop :-)

>

Hi and thanks for the welcome. I am excited I have extra time for the

next 3 months and will be able to be here! I always feel, when I am not with

the group I am missing out on things I should be knowing about and also missing

out on saying Hi to the newbies and giving hope that things can return to

almost normal as they have in my case.

Thanks again for the hello :-) Hope you doing well. Wishin I had a

lap top!

Pritchard

Live the Peace

<A HREF= " http://melungeon_music.tripod.com/melungeonmusic/ " >Melungeon Music</A>

's Web Site

<A HREF= " www.melungeons.com " >www.melungeons.com</A> Helen 's Web site

<A HREF= " www.melungeonhealth.com " >www.melungeonhealth.com</A> Morrrison's

web site

<A HREF= " www.rheumatic.org " >www.rheumatic.org</A> Antibiotic therapy web site

[Guest guest]

's doing really well. Occassionally you can tell that he's

kind of annoyed in it. The worst part is that snuggling is hard.

At night is when I'm so tempted to take it off just so I can kiss

his sweet little head. I don't, but I wish I could...Thanks for

asking. Our family accepted it better than I thought, so that's

good.

and

> Hi :

> How's doing in his new STARband? Is he wearing it more

now?

> Hope things are well Happy Thanksgiving.

> Debbie Abby's mom

> MI

[Guest guest]

Yes, there is a big difference in post-operative treatments now than a decade or so ago....I had a c-section in 1990 & one in 2001 & my recovery was vastly different...up & moving in hours after the 2001 surgery. The really great thing was that they cut me in the same place & glued my incision, so my scar looks better than before! hahhaha! Well, between that surgery, stretch marks & now 5 bandaid incisions, my now skinny belly will never sport a bikini! Cindi

-- Re:

Hi ,

Congratulations on your Honour's Society Induction. You must be very happy. I read your comment regarding your Doctor telling you to stretch that scar tissue out. I had to laugh. My Doctor told me just to take it really easy, don't lift anything over 10 pounds. (My daughter was 2 months old at the time). To this day, I can't lift, can't stretch my arm straight above my head. I never did heal properly. It's been 12 years since my last myotomy and I still have shooting pains in my left side if I reach too high with my left arm.

Please . . . take your Doctor's advice. I didn't exercise and have a huge scar from two open myotomies. If I had know 12 years ago that exercise and stretching was beneficial, I wouldn't have "babied" my left side so much. I am in good shape from walking and proper dieting, but I can't do sit-ups, push-ups etc. without pain on my left side. My husband and I have been together for 15 years. He still can't lay his arm around my left side in a relaxed position. What isn't still completely numb, is painful to touch. Achalasia is a strange nerve disorder, but like says, at least we don't die from it, we just live with it.

How was your big date? Hope he was "awesome" lol

.

Cindi

Cindi, Congrats on your new baby myotomy!!!!! Bet that banana tasted better than anything else in this world LOL. My myotomy is doing GREAT!!!!!!! only food I have had a prob with is spaghetti (gives me heartburn). It has been a week since I have checked my email, didn't mean to turn into a lurker. Lifes been pretty busy. Was voted in as next years student council President last Thursday, was inducted into the National Honor's Society for 2 year colleges tonight, and went on my first date in over 6 months last weekend! (guess losing those 20 pounds from "A" wasn't such a bad thing, LOL) My stomach is still the size of a raisin... I will never again get my money's worth at a buffet, but I am WAY cool with that. Only real complaint I have is adhesions (scar tissue). Makes bending over a bit painful right now, but doc says I just gotta stretch that scar tissue out *sigh*. Got my post-op on Tuesday and I will let ya know how it goes. Now I am off to bed so I can go cut open various dead things tomorrow (gotta love biology lab *grin*) in NCPS... and Kathy.... I grew up near Saginaw and am going home this summer..... we should all get together and FINALLY meet someone else who is dealing with "A"

[Guest guest]

In a message dated 7/21/2004 9:32:09 PM Eastern Standard Time,

nucleus24@... writes:

jdugan@...

, I just sent a e-mail requesting the video.. I am very excited . we

just got her implant yesterday to practice wearing.. it is going well...

i can not wait for Aug 6th to come... i know thing will not happen over

night, but I can not wait to her voice !!!!!

[Guest guest]

Yes, my mistake. Just a typo. I know (shoot, just had to

correct it again) from way back. But thanks for clarifying for the

list.

penny

> Hi Penny,

>

>

> > Wanted to share this excerpt from 's post from Experimental

> > (#82536).

>

> I believe the post you quoted is from (with a " k " )--not

(with

> a " c " ). It took me a while to get them straight. They're both

smart as

> all getout and they're both good guys and they both have

for a

> surname.

>

> There's a chapter on with a " k " in Ritchie Shoemaker's book

*Mold

> Warriors.* was in the original Incline Village group of CFS

> people--in fact, is one of the people on whom the CDC (?)

based

> their definition of CFS.

>

> with a " c " --well, you know . He the lively young man on

this

> list who reads research papers in the bathtub, and then blows us

away

> with a steady stream of new ideas and (for me) new science terms.

>

> Sue ,

> Upstate New York

[Guest guest]

" We go back to Cincy AGAIN on the 29th for a PET scan to try to

determine if the swollen nodes and lung nodules are cancer... "

-

Have any of the docs discussed the possibility of doing a " tagged WBC test " ? My

understanding is that it will show exactly where the cells are accumulating.

Just wondering and thinking... Let us know how things go.

Also, -

I was hoping that Dr. B. would be the last specialist that you needed to consult

with -- but now I am wondering if Dr. G. might have some ideas... If not now,

perhaps in the future. Hang in there.

S <tripletsand1@...> wrote:

Hey ,

I'm so sorry to hear about the hail damage, I'm sure that's the last thing

you needed! Hope your insurance gets in gear!

I'm am bummed that you aren't getting any answers from Cincy. I can't even

try to guess as to what the problem is, I know you had mentioned they were

waiting on other testing to come back, maybe that's the hold up. Have you

tried emailing Dr. Bleesing directly? He seems to always respond pretty

quickly for us. I think you do need to do vaccine titers, do you have

anyone local who could run those?

Things are still up in the air with Conner, Dr. B just doesn't know what to

make of everything. He says he continues to be more puzzled by every

abnormal lab test that comes back, this kid has so many things that are

abnormal! We go back to Cincy AGAIN on the 29th for a PET scan to try to

determine if the swollen nodes and lung nodules are cancer. We will

probably return at a later date to do his bone marrow aspiration and lung

biopsy (if we decide they are warranted). Dr. B told us that it seems like

Conner has cancer somewhere in his body, they just haven't been able to

locate it yet, I asked him how I was supposed to sleep with that

information! UGH! He said it could all still just be some unusual form of

immunodeficiency. Our local hem/onc said that she would rather monitor the

nodes, rather than to do biopsies, she is worried about the infection risk.

However our inf. disease doc thinks we need to get to the bottom of this so

he is pushing for the biopsies too. We are just praying that we get answers

sooner, rather than later, and that we can do something about it!

Anyway, the concert sounded like fun! Did you chaperone or drop off?

Mom to Conner (11, Asperger's, mild CP, partial seizures, asthma, GERD,

immunodeficiency and resolved adrenal insufficiency),

Hayden (11, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (11, asthma and mild hearing loss/unaided),

and Kelsey - (9 going on 19!)

Please visit us at www.caringbridge.org/in/connersmith

>Was wondering about your appt in Cincy..I haven't had much time to read

>emails, etc with all the school stuff and work and such. We are still

>battling with the insurance company for our hail damage and everytime I

>have a contractor come, they find more damage, etc..we now have at least

>another 4K in damage.which is really nothing compared to all in the gulf

>states.but non the less, it is frustrating trying to take care of all of

>this...

>

>I took Kaitlyn and her friend to MPLS to see the Green Day concert this

>past w/e. 900 miles driven in two days...

>IT was a bday present for her. She is 14 now and I think the one most

>affected with me working weekends and such. Then we went up to Minot

>and back yest for my niece's confirmation.

>

>I still haven't got any finals from Dr. B..and now doesn't really

>return my calls. I feel like they are just waiting for us to crash. As

>far as I know, they have never been any post vaccine titers done. I

>don't know about antibody function in ..I know he made a response

>to rubella and pertussis...

>

>He is now starting with the mouth sores again..One or two big ones at a

>time about every one to two weeks. He started sneezing last Thursday

>and now sounds really stuffy.He also looks like he has some sort of an

>infection in his belly button..a crusty area and then the umbilicus gets

>red and then looks normal then gets red...I'm debating taking him in to

>see the ped..I think I'll call and leave a message and see what they

>have to say..

>

>Hope all is going well. Thinking of you.

>

>

>

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

[Guest guest]

Thanks Sandy. I try my best to maintain the house and stuff. My clothes are food stained a lot though cause those frilly kitchen aprons just do not loot good on me....lol Just look at the bright side. There are some men that can be trained.....lol

in Suffolk

[Guest guest]

Sandy,

About husbands, I've often wondered the same thing. I just

figured that it was just me, that I FEEL responsible for my husband

(and for my late mother, as well) because of some kind of mothering

instinct. I don't have kids, so I guess I have to mother someone (my

husband, my mother, and my cat usually get the brunt of my mothering).

I think my husband would just give up and be miserable, also, if I

didn't help him try to find a solution (hope he doesn't read this).

Thanks for e mailing Dr. Fuller! My husband is having a bad

spasm morning this morning and he's blaming it on the Trazadone

(couldn't be the DES, could it?!). I'm trying to get him to give it a

few weeks or so on the drug to see if it will eventually help him

(there's that mothering thing again), but that may be a struggle. If

this doesn't work and Dr. Achkar doesn't have any other tricks up his

sleeve, I'll start researching VATS or other options (as soon as this

busy time passes for me, with taking care of the last of my mom's

affairs, writing thank you notes, etc.). Now I know we can call Dr.

Fuller for info, too. Thanks, again, Sandy! I enjoy your posts! Have a

great day!

in Michigan

[Guest guest]

Dear ,

At last someone who wants my 2 kids for a week or so... that is what

you meant isn't it? LOL. Since you don't have kids.... and all that.

My husband is supposed to take a little dose of thyroid. Did it for

a few months, felt better, then had it in his head it wasn't doing

anything. Now he doesn't take it. I gave up. He does it to bug me

doesn't he? Deep breath, deep breath.

Yes, take care of all your other issues and your husband has to be in

an emotional place to address the problem again. We keep getting

accustomed to our situation in life, then something else happens and

we get inspired to resolve problems. He will get there, hopefully

your nagging will coincide to when he is open to it. Going to see

more doctors when you anticipate the answers is not pleasant and

seems worthless.

About the silver.....sounds dangerous to me. But I'm wrong about a

lot of things. I just wrote a long paragraph with adjectives and

maybes about the issue but deleted it. It is important to have open

minds but to always suspect and check. Following the money trail

will often give a clue as to the real benefit of an untested

treatment. As is true in all aspects of life.

To " my " men here... don't care if you are in flowers or stripes...

obviously you are secure in your manhood. Just in the kitchen is a

good thing. A floral apron would just help set the mood. Or no apron.

Sandy In So Cal, glad she moved from Montana, where it is a snow day

with winds, freezing fog and snow. Obviously they don't have snow

days often so it is bad. Need to go turn on the ac as it will be 85

here today.

> Sandy,

> About husbands, I've often wondered the same thing. I just

> figured that it was just me, that I FEEL responsible for my husband

> (and for my late mother, as well) because of some kind of mothering

> instinct. I don't have kids, so I guess I have to mother someone

(my

> husband, my mother, and my cat usually get the brunt of my

mothering).

> I think my husband would just give up and be miserable, also, if I

> didn't help him try to find a solution (hope he doesn't read

this).

> Thanks for e mailing Dr. Fuller! My husband is having a bad

> spasm morning this morning and he's blaming it on the Trazadone

> (couldn't be the DES, could it?!). I'm trying to get him to give

it a

> few weeks or so on the drug to see if it will eventually help him

> (there's that mothering thing again), but that may be a struggle.

If

> this doesn't work and Dr. Achkar doesn't have any other tricks up

his

> sleeve, I'll start researching VATS or other options (as soon as

this

> busy time passes for me, with taking care of the last of my mom's

> affairs, writing thank you notes, etc.). Now I know we can call Dr.

> Fuller for info, too. Thanks, again, Sandy! I enjoy your posts!

Have a

> great day!

>

> in Michigan

[Guest guest]

toomuchclutter wrote:

>... About the silver.....sounds dangerous to me. But I'm wrong about a

>lot of things. I just wrote a long paragraph with adjectives and

>maybes about the issue but deleted it. It is important to have open

>minds but to always suspect and check. ...

>

If anybody does want to check the opposing views on the subject here is

one place they can start:

http://www.quackwatch.org/01QuackeryRelatedTopics/PhonyAds/silverad.html

notan

[Guest guest]

Correction. Won't even ask my GP. I only read enough of the article, to

make a quick decision. Thanks. I am not one to just ingest something

because someone thought it was a good idea.

I think we have all learnt something today. I have hear of people

taking some strange supplements enen whenI was an athlete, but could

not bring myself to use any unless it was endorsed by the Australian

Sports Institute or my GP.

>

> >... About the silver.....sounds dangerous to me. But I'm wrong

about a

> >lot of things. I just wrote a long paragraph with adjectives and

> >maybes about the issue but deleted it. It is important to have open

> >minds but to always suspect and check. ...

> >

> If anybody does want to check the opposing views on the subject here

is

> one place they can start:

>

http://www.quackwatch.org/01QuackeryRelatedTopics/PhonyAds/silverad.html

>

> notan

[Guest guest]

Notan, my hero....

I put in whatever kind of silver that is also in the google search...

interesting articles, some were found under websites that warn of

quack doctors and procedures. It seems to be basically a snake oil.

Apparently it has been brought forward as a cure-all a few times in

the past. There were some pictures of a woman who was blue-gray,

permanent and non-reversible. A silver color, she took it as nose

drops and turned color in her 20's. Now in her 60's. Of course the

disclaimer is that she took one that wasn't properly made.

I hesitate, because I don't want to ignite a controversy with another

member of our special group. He mentioned he had been in the

industry, so he is well-informed about the controversy, so I assume

he is up to the heat. I don't want to chase him away, and welcome

him as a member.

People will clutch onto any hope, no matter how far fetched it seems,

remember everyone going to Mexico for apricot pit cancer treatment in

the 80's. Maybe it is possible some of these things help some

people. I'm not going to say it won't, but it sure isn't recognized

by the recognized medical society, and if these things were so good,

wouldn't we hear a lot more about them. For instance, Prevacid et.

al. It is a wonderful drug... it wasn't around 10 years ago, I

assume and now here it is, everyone knows about it and doctors

prescribe it. Things that do work make it to the top and are

distributed. This silver stuff has never made it to the mass

markets... I suggest rubbing your hands over an ounce of pure silver

you can buy at a coin shop instead.

However... to our dear friend in the South of France, if it works for

you that is great, I won't even dispute whether or not it works. I

worry some members here are hesitant about traditional treatment and

will lower their common sense defenses and clutch on to a " miracle "

cure, so I decided to input my opinion also for what it is worth.

Also about your worry about radio waves etc... I don't disagree, it

is possible they cause health problems, I even admit to once trying

to steer a client away from buying a house very close to the cross

country electrical wires, when they didn't care. But I don't think

they cause the massive problems you are worried about, but that is my

opinion.

My family has been based at the " end of the pavement " in SE Montana

since the homestead act... you don't get much more isolated than

that, away from man made materials of any kind. Turns out that area

is a very hot spot for MS. My Dad used to swear he saw flying

saucers land and that some atomic testing clouds drifted over them.

Turns out he may have seen the test planes for the B2 bomber when it

was being designed, because noone was in that part of the country,

they would test them out of the Rapid City SD military base. Who

would believe some lonely farmer in the middle of nowhere?

So I don't mean that your opinions don't have merit but people need

to make their own informed decisions. We made fun of my Dad for

years about his flying saucer story, turns out me maybe did see

something. So getting into a cut and paste website controversy with

the gentleman from the S of France isn't my intent... in fact if we

met in person I'd enjoy discussing your point of view with you. At

the same time, we should be aware this silver solution has been

around before and seems to have only benefited the marketers and has

apparently significant risk associated with it, if one is to put any

trust into a significant group of websites.

Isn't it a wonderful world, that we can research something that

quickly and form our own opinions.

Now back to the discussion about men in aprons or any other costumes

having to do with cleaning or cooking or childcare. We have enough

firemen and policemen, judges, teachers, computer goofs etc. on our

street, I'm looking for childcare, cooks and cleaners from the

opposite sex as a supplement (pun intended) to my husband.

Sandy in So Cal

At least 80 degrees here, while the family homestead is under 2 feet

of snow and blizzard conditions. Not sure, but think I'll take a few

cell towers instead of snow today, my kids would probably disagree,

but I'm not telling them.

> >

> > >... About the silver.....sounds dangerous to me. But I'm wrong

> about a

> > >lot of things. I just wrote a long paragraph with adjectives

and

> > >maybes about the issue but deleted it. It is important to have

open

> > >minds but to always suspect and check. ...

> > >

> > If anybody does want to check the opposing views on the subject

here

> is

> > one place they can start:

> >

>

http://www.quackwatch.org/01QuackeryRelatedTopics/PhonyAds/silverad.ht

ml

> >

> > notan

[Guest guest]

Don't get me wrong I am not knocking anyones opinion either. Don had

a good point. I think there are too many manufacturers that are not

as accurate as they could be. I am not confident enough to know

better either.

It is always good to be open minded in these situations though.

In this day and age though we must think why are so many more people

getting sick. Is it preservatives, pesticides, radiation or even

stress. Our lifestyles have changed so much over the decades and we

loose track of what is important when we get too busy.

Some places around the world are definitely hot spots for certain

diseases and that would be a good start for research as well.

Getting a lifestyle which has much less if none of these

interferances,

is definitely a step in a better direction. I applaud Don for doing

so.

Hey Sandy, that snow sounds really great. Maybe you could shoot some

down this way. It is a lovely 39 deg celcius(sorry I do not have the

conversion handy) A moderate oven is 170 deg celcius if that helps.

Other than that I am pretty useless in the kitchen.

Have had the kids in the pool this afternoon, they are on school

holidays.The flys are a dam nuisance too. We are getting a large

patio put up on the house today as well so we can sit outside each

evening and have a BBQ and watch the sunset.

We have been to the snow for a holiday and had the best time.

Will go again one day too.

About the man thing- I think if they can cook and do the dishes they

are doing pretty good.

Bye for now

> > >

> > > >... About the silver.....sounds dangerous to me. But I'm

wrong

> > about a

> > > >lot of things. I just wrote a long paragraph with adjectives

> and

> > > >maybes about the issue but deleted it. It is important to

have

> open

> > > >minds but to always suspect and check. ...

> > > >

> > > If anybody does want to check the opposing views on the subject

> here

> > is

> > > one place they can start:

> > >

> >

>

http://www.quackwatch.org/01QuackeryRelatedTopics/PhonyAds/silverad.ht

> ml

> > >

> > > notan

[Guest guest]

toomuchclutter wrote:

I hesitate, because I don't want to ignite a controversy with another member of our special group.

I also hesitate, for that reason and also because people can feel

better just by doing something that they believe is good for them, even

if it is the wrong thing. Feeling better can go a long way to getting

better. It is hard though when the idea may be harmful. The odds of

turning colors from most of those silver products is probably very

small. The greatest risk is probably from making your own brew. So, it

is no skin off of my nose if someone wants to try that stuff, I just

provided a source for those that may want to hear the other side.

Anybody that may be offended doesn't have to visit that site.

One thing that pushes my buttons a little more than that is promoting

needless fear. Fear of "chemicals", fear of modern drugs and fear of

electromagnetic fields. H20 and O2, water and oxygen are chemicals.

Granted there are a lot of poisonous chemical, but they aren't bad

because they are chemicals they are bad because they are poisons. Some

people promote ideas that modern drugs are bad and there are these

ancient sources of herbal wisdom that would keep people healthy and do

away with the need for modern drugs. While it seems to work well in

movies, history does not support that view. The old cultures such

wisdom was suppose to come from suffered epidemics and some were wiped

out and the shamans/medicine men were helpless to stop them. If most of

history, if you lived to fifty you were very old and probably looked

like someone who now would be ninety. People had a lot of kids and

hoped a few would live to take care of them in old age (forties). With

the "chemicals", modern drugs, and everything electricity does for us

life expectancy is higher than past generations could ever have hoped

for. Granted, rates for some things like certain types of cancer are

up, but if people stop dying from things like typhoid and smallpox they

are going to die from something else, and cancer seems to be it. The

good news is that we are living long enough for cancer to be a problem.

I also understand that children get cancer, but if you look at how many

children live to be adults you will see that more are living through

childhood than in other times. And so the population soars.

notan

[Guest guest]

Good post notan. I found my way to the same website a number of

years ago, and I found it to be objective and comprehensive. It

is " science-based " and is scrutinized by a very impressive list of

contributors from many different backgrounds.

Tony

>

> >... About the silver.....sounds dangerous to me. But I'm wrong

about a

> >lot of things. I just wrote a long paragraph with adjectives

and

> >maybes about the issue but deleted it. It is important to have

open

> >minds but to always suspect and check. ...

> >

> If anybody does want to check the opposing views on the subject

here is

> one place they can start:

>

http://www.quackwatch.org/01QuackeryRelatedTopics/PhonyAds/silverad.h

tml

>

> notan

[Guest guest]

I'll read your posts with interest because I'm 34 and

have been wondering if I could really have a baby &

continue teaching or not:) Rie

Message: 8

Date: Fri, 07 Oct 2005 00:33:30 -0000

From: " " <catdelouise@...>

Subject: Re: Planning a pregnancy

Hi ,

Wow, we are in the same boat! I just went off birth

control and am starting to try and I am almost 36;

this would be my first too, and probably last!

I have made the decision to stay on Humira for my RA

and Asacol for my Ulcerative Colitis. The

maternal-fetal medicine specialist says that going off

these drugs could result in a flare and that could

result in miscarriage or early labor.

I kept waiting in hopes I would get completely better

but that never happened. Of course I am scared that I

will be too sick to take care of the baby,

Good luck, !

__________________________________

Music Unlimited

Access over 1 million songs. Try it free.

http://music./unlimited/

[Guest guest]

Hi Rie,

Unfortunately, I must continue to work full-time, I guess unless I drop from

exhaustion or something! I am the primary bread-winner, so I don't have

much choice. I am old-fashioned in that I would have loved to have been a

Stay-at-Home mom with 3 kids, but life didn't work out that way.

>

> I'll read your posts with interest because I'm 34 and

> have been wondering if I could really have a baby &

> continue teaching or not:) Rie

>

> Message: 8

> Date: Fri, 07 Oct 2005 00:33:30 -0000

> From: " " <catdelouise@c...>

> Subject: Re: Planning a pregnancy

>

> Hi ,

>

> Wow, we are in the same boat! I just went off birth

> control and am starting to try and I am almost 36;

> this would be my first too, and probably last!

>

> I have made the decision to stay on Humira for my RA

> and Asacol for my Ulcerative Colitis. The

> maternal-fetal medicine specialist says that going off

>

> these drugs could result in a flare and that could

> result in miscarriage or early labor.

>

> I kept waiting in hopes I would get completely better

> but that never happened. Of course I am scared that I

> will be too sick to take care of the baby,

> Good luck, !

>

>

>

>

>

>

> __________________________________

> Music Unlimited

> Access over 1 million songs. Try it free.

> http://music./unlimited/

>

[Guest guest]

My husband and I have 6 kids and I was the sole bread winner until

the RA got so bad that I just couldn't do it anymore. Marvin, my

husband, was the full time stay at home dad. I have been off work

on disability for several months now, and my company has been paying

the disability. Marvin still stays home to care for me and the

kids. My disability compnay now has me applying for SSDI, and since

I have always worked and my husband doesn't, we will qualify for

SSDI, assuming my disability gets approved. My Rheumy says I will

probably never be able to go back to working full time or at the

level I was before.

Life doesn't always work out the way we want, but in the end,

sometimes it still works out for the best. We didn't plan it this

way, but now we are both home with our children. Since he wasn't

working before, our income will only be based on what I had been

making.

Good luck to all of you trying to conceive, I wish you all the

best. I can't imagine my life without my kids. 5 of them are

biological and the 6th is an adopted special needs former foster

child.

Blessings to all of you,

Miriam

>

> Hi Rie,

>

> Unfortunately, I must continue to work full-time, I guess unless I

drop from

> exhaustion or something! I am the primary bread-winner, so I

don't have

> much choice. I am old-fashioned in that I would have loved to

have been a

> Stay-at-Home mom with 3 kids, but life didn't work out that way.

>

>

>

> --- In Rheumatoid Arthritis , Rie <ravencache@y...>

wrote:

> >

> > I'll read your posts with interest because I'm 34 and

> > have been wondering if I could really have a baby &

> > continue teaching or not:) Rie

> >

> > Message: 8

> > Date: Fri, 07 Oct 2005 00:33:30 -0000

> > From: " " <catdelouise@c...>

> > Subject: Re: Planning a pregnancy

> >

> > Hi ,

> >

> > Wow, we are in the same boat! I just went off birth

> > control and am starting to try and I am almost 36;

> > this would be my first too, and probably last!

> >

> > I have made the decision to stay on Humira for my RA

> > and Asacol for my Ulcerative Colitis. The

> > maternal-fetal medicine specialist says that going off

> >

> > these drugs could result in a flare and that could

> > result in miscarriage or early labor.

> >

> > I kept waiting in hopes I would get completely better

> > but that never happened. Of course I am scared that I

> > will be too sick to take care of the baby,

> > Good luck, !

> >

> >

> >

> >

> >

> >

> > __________________________________

> > Music Unlimited

> > Access over 1 million songs. Try it free.

> > http://music./unlimited/

> >

>

[Guest guest]

sorry has taken awhile to reply Re: the washer is small/medium size copper

washer my husb had/has at home &

the bandage is a Large bandaid i have/ cont to use in public (around anyone

cellphone exposure) & great idea re: copper wire barrette & thanks for

info/ideas!

I also have looked into the SAUNA at the gym i go to & have been trying to

fequent to rid/detox METALS, inc the Mercury, since believe have been Floride

free for yrs &

wonderin/looking into connections as prev emails suggest. Hope EVERYONE is

doing well!God Bless

Sheila

eleccentric <eleccentric@...> wrote:

Sheila, I cannot find a post from you answering 's question.

Sorry if it's there & I missed it - if so, pls tell me message #. I

am excited by your washer idea, tickled that it works, & hopeful that

it is still working. Even if it is not. pls let us know and please

tell us: 1) size of the washer!!!, 2) where you got the washer -

hardware store?, 3) what do you mean by 'gold/copper' plated - did it

come with gold and copper plate? did you have it plated with gold? -

4) how do you attach it to your head - what type of bandage -

specifics please, 5) do you think the washer could be hot-glued to

the underside & /or topside of a hair clip/snappy barrette? I think I

might be able to find a copper washer - although Menard's did not

have them.

-You gave me an idea-I bought heavier gauge copper wire with the idea

of weaving it into a headband or weaving it into designs to wear as

clips. I really would like to know not only the size of your washer-

I'm also interested in the size of the opening in the middle- It

would be helpful in helping me determine approx allowable space in my

copper weave that would remain effective.

-By the way, I've heard of a metallic taste in the mouth as being

symptomatic of ES, however, that is one symptom I have not had

untill...I bought the copper wiring, had it in my hands in the car

and then had distinct, strong metal taste in my mouth which lasted

for quite a while - as if I had put my fingers in my mouth after

handing the wire (which I had not done!)I have not worked with the

copper wire since, because I'm not sure what this means. Any ideas??

I'd like to solve this riddle too. Does it have to do with the

conductive property of copper, and if so, as an ES-why/how would it

contribute to a metallic taste?...Thanks all, , Hudson, WI

>

> Hi Sheila,

>

> That sounds great. Can you please explain what this bandage and

washer

> are?

>

>

> >

> > then i was told the EEG electrodes were gold plated!! this

brought

> & idea that i've been using & seems to work is small bandage

> w/gold/copper plated washer i put on my head during exposure & has

> been working!!! reflecting the signal OFF away from my temple area

&

> NO PAIN!!! for now is working & hopin/praying cont's same

> > God Bless,

> > Sheila

> >

> >

> >

> >

>

---------------------------------

All-new - Fire up a more powerful email and get things done faster.

[Guest guest]

, , Are you near Tysons Corner? I haven't been there in years, maybe they have a good lunch spot & some good shopping! Let me know. Also, I was thinking...Maybe.. Dr.Brinkley could be enticed to help form a east coast "Bash" or something close to it. There are alot of lap-band patients that go to her that aren't on this site but did have surgery in Mexico. Just a though...Dana

-------------- Original message -------------- From: " " <susan@...>

I'd LOVe the opportunity to get together with my fellow Northen VA/land/DC area bandsters. I read and re-read all of the posts about the Seattle bash, REALLLLLY wishing that I could have been there, and was wondering when we can have a similar event for those of us who live on the eastern coast. ( ly, I vote for having an official event at the Willard Intercontinental Hotel- the idea of staring at myself in the shiny brass walls of the elevators without wishing there was a larger potted plant to hide my reflection behind REALLY appeals to me!)Barring that, I'd love to get together in a smaller group. My work schedule is kind of crazy, but with enough prep and planning time I could probably find a way to make myself available. >> That sounds GREAT!! What

will work best for you..week-end, weekday? I'll take a day off if ya want..hehe SUSAN?, think you can squeeze us in? It'll be fun! I think we all go to Dr. Brinkley..I don't know any other fill Dr's except in Baltimore that will only do"their" own patients! But she does fine and has helped me out in my "time of need"! (emergency unfill!!) I love her for that! Pick a day that will work for you & ? and Betty & I will "adjust" our schedules to match ( we both do home health care and can be flexible when needed ;-) Dana> > -------------- Original message -------------- > From: " Judge" <thevajudge@...> > Dana I'd love to meet up with you for lunch. I'm south of D.C. in > Fairfax County but still close enough to meet up with a bandster bud. > Do you go to Dr. Brinkley for your fills? Maybe we could convince the > wise and witty to join us. I b

elieve she's in the Reston / > Loudon area. > > Maybe toward the end of March?> > Let me know.> > ~~>

[Guest guest]

Hi All..I was banded a few weeks ago, all is going well so far. You mentioned Dr. Brinkley in Baltimore.... could someone pass me her number. I live in VA and need to find a fill doctor shortly.... Thanks!!Tinarondana@... wrote: , , Are you near Tysons Corner? I haven't been there in years, maybe they have a good lunch spot & some good shopping! Let me know. Also, I was thinking...Maybe.. Dr.Brinkley could be enticed

to help form a east coast "Bash" or something close to it. There are alot of lap-band patients that go to her that aren't on this site but did have surgery in Mexico. Just a though...Dana -------------- Original message -------------- From: " " <susanparkerstudios> I'd LOVe the opportunity to get together with my fellow Northen VA/land/DC area bandsters. I read and re-read all of the posts about the Seattle bash, REALLLLLY wishing that I could have been there, and was wondering when we can have a similar event for those of us who live on the eastern coast. ( ly, I vote for having an official event at the Willard Intercontinental Hotel- the idea of staring at myself in the shiny brass walls of the elevators without wishing there was a larger potted plant to hide

my reflection behind REALLY appeals to me!)Barring that, I'd love to get together in a smaller group. My work schedule is kind of crazy, but with enough prep and planning time I could probably find a way to make myself available. >> That sounds GREAT!! What will work best for you..week-end, weekday? I'll take a day off if ya want..hehe SUSAN?, think you can squeeze us in? It'll be fun! I think we all go to Dr. Brinkley..I don't know any other fill Dr's except in Baltimore that will only do"their" own patients! But she does fine and has helped me out in my "time of need"! (emergency unfill!!) I love her for that! Pick a day that will work for you & ? and Betty & I will "adjust" our schedules to match ( we both do home health care and can be flexible

when needed ;-) Dana> > -------------- Original message -------------- > From: " Judge" <thevajudge@...> > Dana I'd love to meet up with you for lunch. I'm south of D.C. in > Fairfax County but still close enough to meet up with a bandster bud. > Do you go to Dr. Brinkley for your fills? Maybe we could convince the > wise and witty to join us. I b elieve she's in the Reston / > Loudon area. > > Maybe toward the end of March?> > Let me know.> > ~~>

Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit.

[Guest guest]

Dr Brinkley, located at 198 Dr # 200

Frederick, MD

phone (301) 668-2800

I don't know that she has a practice in Baltimore, but I could be

wrong. ( Sure it would be the first time, but it IS possible

> >

> > That sounds GREAT!! What will work best for you..week-end,

weekday?

> I'll take a day off if ya want..hehe SUSAN?, think you can squeeze

> us in? It'll be fun! I think we all go to Dr. Brinkley..I don't

know

> any other fill Dr's except in Baltimore that will only do " their "

own

> patients! But she does fine and has helped me out in my " time of

> need " ! (emergency unfill!!) I love her for that! Pick a day that

will

> work for you & ? and Betty & I will " adjust " our schedules to

> match ( we both do home health care and can be flexible when

needed ;-

> ) Dana

> >

> > -------------- Original message --------------

> > From: " Judge " <thevajudge@>

> > Dana I'd love to meet up with you for lunch. I'm south of D.C. in

> > Fairfax County but still close enough to meet up with a bandster

> bud.

> > Do you go to Dr. Brinkley for your fills? Maybe we could convince

> the

> > wise and witty to join us. I b elieve she's in the

> Reston /

> > Loudon area.

> >

> > Maybe toward the end of March?

> >

> > Let me know.

> >

> > ~~

> >

>

>

>

>

>

>

>

>

> ---------------------------------

> Now that's room service! Choose from over 150,000 hotels

> in 45,000 destinations on Travel to find your fit.

>

[Guest guest]

Tina, Maybe when your up to it, you could join us in for a get together late March? Lunch, shopping, and comparing experiences. , , Dana, Betty and anyone else that would like to come! Dr. Brinkley is in Frederick and has privileges at Frederick county hospital. The Doctors in Baltimore won't do fills on Mexico patients ;-( Dana

-------------- Original message -------------- From: " " <susan@...>

Dr Brinkley, located at 198 Dr # 200Frederick, MD phone (301) 668-2800 I don't know that she has a practice in Baltimore, but I could be wrong. ( Sure it would be the first time, but it IS possible > >> > That sounds GREAT!! What will work best for you..week-end, weekday? > I'll take a day off if ya want..hehe SUSAN?, think you can squeeze > us in? It'll be fun! I think we all go to Dr. Brinkley..I don't know > any other fill Dr's except in Baltimore that will only do"their" own > patients! But she does fine and has helped me out in my "time of > need"! (emergency unfill!!) I love her for that! Pick a day that will > work for you & ? and Betty & I will "adjust" our schedules to > match ( we both do home health care and can be flexible when needed ;-> ) Dana> > > > -------------- Original message -------------- > > From: " Judge" <thevajudge@> > > Dana I'd love to meet up with you for lunch. I'm south of D.C. in > > Fairfax County but still close enough to meet up with a bandster > bud. > > Do you go to Dr. Brinkley for your fills? Maybe we could convince > the > > wise and witty to join us. I b elieve she's in the > Reston / > > Loudon area. > > > > Maybe toward the end of March?> > > > Let me know.> > > > ~~> >> > > > > > > > > ---------------------------------> Now that's room service! Choose from over 150,000 hotels > in 45,000 destinations on Travel to find your fit.&g

t;

[Guest guest]

Thanks!! Sounds like fun... keep me posted on the plans and I will try to make it.rondana@... wrote: Tina, Maybe when your up to it, you could join us in for a get together late March? Lunch, shopping, and comparing experiences. , , Dana, Betty and anyone else that would like to come! Dr. Brinkley is in Frederick and has privileges at Frederick county hospital. The Doctors in Baltimore won't do fills on Mexico patients ;-( Dana -------------- Original message -------------- From: " " <susanparkerstudios> Dr Brinkley, located at 198 Dr # 200Frederick, MD phone (301) 668-2800 I don't know that she has a practice in Baltimore, but I could be wrong. ( Sure it would be the first time, but it IS possible > >> > That sounds GREAT!! What will work best for you..week-end, weekday? > I'll take a day off if ya want..hehe SUSAN?, think you can squeeze > us in? It'll be fun! I think we all go to Dr. Brinkley..I don't know > any other fill Dr's except in Baltimore that will only do"their" own > patients! But she does fine and has helped me out in my "time of > need"!

(emergency unfill!!) I love her for that! Pick a day that will > work for you & ? and Betty & I will "adjust" our schedules to > match ( we both do home health care and can be flexible when needed ;-> ) Dana> > > > -------------- Original message -------------- > > From: " Judge" <thevajudge@> > > Dana I'd love to meet up with you for lunch. I'm south of D.C. in > > Fairfax County but still close enough to meet up with a bandster > bud. > > Do you go to Dr. Brinkley for your fills? Maybe we could convince > the > > wise and witty to join us. I b elieve she's in the > Reston / > > Loudon area. > > > > Maybe toward the end of March?> > > > Let me know.> > > > ~~> >> > > > >

> > > > ---------------------------------> Now that's room service! Choose from over 150,000 hotels > in 45,000 destinations on Travel to find your fit. & g t;

Get your own web address. Have a HUGE year through Small Business.