Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 If you wait for yeast to clear up, or for the constipation to get better, you will never do ti. Take it from me. Eight years later he is still constipated...... Z On Mon, Aug 30, 2010 at 7:24 AM, laila aziz <lailamalik2n1@...> wrote: > > > The only thing stopping us from chelation right now is my sons > contipation.Dan dr suggested PGX fiber.........but my son is having a hard > time taking it > > What did you guys successfully do for this > > Thanks > Laila > > > > From: wiersmak <wiersmak@... <wiersmak%40dslextreme.com>> > Subject: [ ] Re: Irene--Turning a corner: thoughts on amazing > gains and the AC protocol > < %40> > Received: Saturday, August 28, 2010, 9:31 PM > > > > ALA I get from Kirkman, the smallest dose they sell is 25 mg, so I split it > into 5 doses. I dont use DMSA (we use DMPS),but most get it from vrp.com. > Dont lose hope. > > Karla > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. > But I > > > >think my > > > > > > > > > > > > > > > >experience with my son, bears posting here as well, to give hope > and > > > > > > > > > > > >encouragement to those just starting out and to those perhaps > further > > > >along who > > > > > > > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been > doing the > > > >AC > > > > > > > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months > of life, > > > > > > > > > > > > > > >including several flu shots and one in utero. My boy lost his > skills > > > >starting > > > > > > > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down > to age > > > >18 > > > > > > > > > > > > > > > >months, before we stopped the madness. My boy was loaded with > metals, > > > >needless > > > > > > > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state > came in > > > >at 19 > > > > > > > > > > > > > > > >months and intimated we were dealing with a case of severe autism. > We got > > > >an > > > > > > > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait > 6 months > > > >for. > > > > > > > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 > oils, yeast > > > > > > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of > high > > > > > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was > vax > > > >injured. > > > > > > > > > > > > > > > >His gut was still a mess and he could not function or communicate > > > >properly. For > > > > > > > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we > added ALA - > > > >this > > > > > > > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give > him 3mg > > > >or so > > > > > > > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 > months, 8 > > > >long, long > > > > > > > > > > > > > > > >months where there was even regression. We tried everything people > tout > > > >here as > > > > > > > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, > vinpocetine, > > > >gingko,, b > > > > > > > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By > round 50 > > > >we > > > > > > > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We > saw some > > > > > > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we > saw some > > > >good > > > > > > > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast > or > > > >parasites > > > > > > > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, > some > > > >dairy, etc, > > > > > > > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were > gone > > > >and food > > > > > > > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and > had > > > >limited > > > > > > > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > > > > >chelating. My > > > > > > > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My > dh said > > > >no, no > > > > > > > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will > have > > > >enough > > > > > > > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son > talks, > > > >and > > > > > > > > > > > > > > > >talks and talks, and seems to understand everything. He plays word > games, > > > >makes > > > > > > > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. > The > > > >teacher > > > > > > > > > > > > > > > >reports he greets peers and plays with them on the playground > instead of > > > >merely > > > > > > > > > > > > > > > >running around the perimeter as is his habit. He is by no means > recovered > > > >or age > > > > > > > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is > like he > > > >can't > > > > > > > > > > > > > > > >tell me enough things - like he is uncorked or something. The > other night > > > >he > > > > > > > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He > had a > > > >place mat > > > > > > > > > > > > > > > >with the presidents on it and he was hell bent on showing me that > he knew > > > >all > > > > > > > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. > I > > > >finally > > > > > > > > > > > > > > > >uttered words I thought I would never say, but I had > to... " sweetie, please > > > >be > > > > > > > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done > nothing > > > >really, > > > > > > > > > > > > > > > >other than what we have for the last 2 years. In fact, we have > recently > > > >lowered > > > > > > > > > > > > > > > >all of his supplements considerably. He takes nothing but the most > basic > > > >mins > > > > > > > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, > antioxidants, and > > > > > > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it > somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement > only in > > > >my > > > > > > > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > > > >sleepless > > > > > > > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not > give up! > > > >We have > > > > > > > > > > > > > > > >had stall after stall and regression, and at times I wanted to > throw in > > > >the > > > > > > > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the > support of > > > >people > > > > > > > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and > on and > > > >on. > > > > > > > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. > But I > > > >believe > > > > > > > > > > > > > > > >in my heart it is truly possible. We have only one child, and for > the > > > >first > > > > > > > > > > > > > > > >time, I feel his presence, his true presence as another person > with > > > >opinions and > > > > > > > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late > mother, a > > > > > > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of > breast > > > > > > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a > dream, there > > > >is > > > > > > > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I > have hope, > > > >and > > > > > > > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 - Lots and lots of digestive enzymes. - Organic Acacia fiber disolves in juice or milk and has no flavor. - If you get " rocks " , very hard stool, get a saline enema at the drugstore and clear things out. - Last resort use Miralax to keep moisture in the stool. Many here don't like this, but it is working wonders for our boy. Keep close watch for behavior change, this would indicate a leaky gut. 1T, 2x a day. TJ ________________________________ From: laila aziz <lailamalik2n1@...> Sent: Mon, August 30, 2010 7:24:38 AM Subject: [ ] hello karla and others.advice  The only thing stopping us from chelation right now is my sons contipation.Dan dr suggested PGX fiber.........but my son is having a hard time taking it What did you guys successfully do for this Thanks Laila From: wiersmak <wiersmak@...> Subject: [ ] Re: Irene--Turning a corner: thoughts on amazing gains and the AC protocol Received: Saturday, August 28, 2010, 9:31 PM  ALA I get from Kirkman, the smallest dose they sell is 25 mg, so I split it into 5 doses. I dont use DMSA (we use DMPS),but most get it from vrp.com. Dont lose hope. Karla > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. But I > >think my > > > > > > > > > >experience with my son, bears posting here as well, to give hope and > > > > > > > >encouragement to those just starting out and to those perhaps further > >along who > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been doing the > > >AC > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months of >life, > > > > > > > > > >including several flu shots and one in utero. My boy lost his skills > >starting > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down to age > > >18 > > > > > > > > > >months, before we stopped the madness. My boy was loaded with metals, > >needless > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state came >in > > >at 19 > > > > > > > > > >months and intimated we were dealing with a case of severe autism. We >got > > >an > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6 >months > > >for. > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 oils, >yeast > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of high > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax > >injured. > > > > > > > > > >His gut was still a mess and he could not function or communicate > >properly. For > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA >- > > >this > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give him >3mg > > >or so > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 > >long, long > > > > > > > > > >months where there was even regression. We tried everything people tout > >here as > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, > >gingko,, b > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By round >50 > > >we > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We saw >some > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we saw some > > >good > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast or > >parasites > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, some > >dairy, etc, > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were gone > >and food > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and had > >limited > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > >chelating. My > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My dh >said > > >no, no > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have > >enough > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son >talks, > > >and > > > > > > > > > >talks and talks, and seems to understand everything. He plays word >games, > > >makes > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. The > >teacher > > > > > > > > > >reports he greets peers and plays with them on the playground instead of > > >merely > > > > > > > > > >running around the perimeter as is his habit. He is by no means >recovered > > >or age > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is like >he > > >can't > > > > > > > > > >tell me enough things - like he is uncorked or something. The other >night > > >he > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a > >place mat > > > > > > > > > >with the presidents on it and he was hell bent on showing me that he >knew > > >all > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. I > >finally > > > > > > > > > >uttered words I thought I would never say, but I had to... " sweetie, >please > > >be > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing > >really, > > > > > > > > > >other than what we have for the last 2 years. In fact, we have recently > >lowered > > > > > > > > > >all of his supplements considerably. He takes nothing but the most basic > > >mins > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, antioxidants, >and > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it >somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement only >in > > >my > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > >sleepless > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not give up! > > >We have > > > > > > > > > >had stall after stall and regression, and at times I wanted to throw in > >the > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the support of > > >people > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and on >and > > >on. > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. But I > > >believe > > > > > > > > > >in my heart it is truly possible. We have only one child, and for the > >first > > > > > > > > > >time, I feel his presence, his true presence as another person with > >opinions and > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late mother, >a > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of >breast > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a dream, >there > > >is > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I have >hope, > > >and > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 slippery elm? From: laila aziz Sent: Monday, August 30, 2010 8:24 AM Subject: [ ] hello karla and others.advice The only thing stopping us from chelation right now is my sons contipation.Dan dr suggested PGX fiber.........but my son is having a hard time taking it What did you guys successfully do for this Thanks Laila From: wiersmak <wiersmak@...> Subject: [ ] Re: Irene--Turning a corner: thoughts on amazing gains and the AC protocol Received: Saturday, August 28, 2010, 9:31 PM ALA I get from Kirkman, the smallest dose they sell is 25 mg, so I split it into 5 doses. I dont use DMSA (we use DMPS),but most get it from vrp.com. Dont lose hope. Karla > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. But I > >think my > > > > > > > > > >experience with my son, bears posting here as well, to give hope and > > > > > > > >encouragement to those just starting out and to those perhaps further > >along who > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been doing the > >AC > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months of life, > > > > > > > > >including several flu shots and one in utero. My boy lost his skills > >starting > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down to age > >18 > > > > > > > > > >months, before we stopped the madness. My boy was loaded with metals, > >needless > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state came in > >at 19 > > > > > > > > > >months and intimated we were dealing with a case of severe autism. We got > >an > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6 months > >for. > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 oils, yeast > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of high > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax > >injured. > > > > > > > > > >His gut was still a mess and he could not function or communicate > >properly. For > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA - > >this > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give him 3mg > >or so > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 > >long, long > > > > > > > > > >months where there was even regression. We tried everything people tout > >here as > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, > >gingko,, b > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By round 50 > >we > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We saw some > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we saw some > >good > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast or > >parasites > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, some > >dairy, etc, > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were gone > >and food > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and had > >limited > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > >chelating. My > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My dh said > >no, no > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have > >enough > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son talks, > >and > > > > > > > > > >talks and talks, and seems to understand everything. He plays word games, > >makes > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. The > >teacher > > > > > > > > > >reports he greets peers and plays with them on the playground instead of > >merely > > > > > > > > > >running around the perimeter as is his habit. He is by no means recovered > >or age > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is like he > >can't > > > > > > > > > >tell me enough things - like he is uncorked or something. The other night > >he > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a > >place mat > > > > > > > > > >with the presidents on it and he was hell bent on showing me that he knew > >all > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. I > >finally > > > > > > > > > >uttered words I thought I would never say, but I had to... " sweetie, please > >be > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing > >really, > > > > > > > > > >other than what we have for the last 2 years. In fact, we have recently > >lowered > > > > > > > > > >all of his supplements considerably. He takes nothing but the most basic > >mins > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, antioxidants, and > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement only in > >my > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > >sleepless > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not give up! > >We have > > > > > > > > > >had stall after stall and regression, and at times I wanted to throw in > >the > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the support of > >people > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and on and > >on. > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. But I > >believe > > > > > > > > > >in my heart it is truly possible. We have only one child, and for the > >first > > > > > > > > > >time, I feel his presence, his true presence as another person with > >opinions and > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late mother, a > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of breast > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a dream, there > >is > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I have hope, > >and > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 We, too, have used Miralax when we've had to -- it beats going to the hospital for impacted bowel! But for a long time now, we have managed his constipation issues with Kirkman's EFA powder (which is Flax) and plenty of vitamin C and magnesium. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 I didnt wait for yeast to clear up, I got a protocol in place that we still use. We made sure it was at least somewhat manageable. As for the constipation, the Low Oxalate diet and Sacc B cleared that up. He's been going minimum twice a day for about a year. Took about 6 months total to get there and for us it was well worth the delay. We're on round 41 and he's doing well. Karla > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. > > But I > > > > > >think my > > > > > > > > > > > > > > > > > > > > > >experience with my son, bears posting here as well, to give hope > > and > > > > > > > > > > > > > > > >encouragement to those just starting out and to those perhaps > > further > > > > > >along who > > > > > > > > > > > > > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been > > doing the > > > > > >AC > > > > > > > > > > > > > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months > > of life, > > > > > > > > > > > > > > > > > > > > >including several flu shots and one in utero. My boy lost his > > skills > > > > > >starting > > > > > > > > > > > > > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down > > to age > > > > > >18 > > > > > > > > > > > > > > > > > > > > > >months, before we stopped the madness. My boy was loaded with > > metals, > > > > > >needless > > > > > > > > > > > > > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state > > came in > > > > > >at 19 > > > > > > > > > > > > > > > > > > > > > >months and intimated we were dealing with a case of severe autism. > > We got > > > > > >an > > > > > > > > > > > > > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait > > 6 months > > > > > >for. > > > > > > > > > > > > > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 > > oils, yeast > > > > > > > > > > > > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of > > high > > > > > > > > > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was > > vax > > > > > >injured. > > > > > > > > > > > > > > > > > > > > > >His gut was still a mess and he could not function or communicate > > > > > >properly. For > > > > > > > > > > > > > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we > > added ALA - > > > > > >this > > > > > > > > > > > > > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give > > him 3mg > > > > > >or so > > > > > > > > > > > > > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 > > months, 8 > > > > > >long, long > > > > > > > > > > > > > > > > > > > > > >months where there was even regression. We tried everything people > > tout > > > > > >here as > > > > > > > > > > > > > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, > > vinpocetine, > > > > > >gingko,, b > > > > > > > > > > > > > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By > > round 50 > > > > > >we > > > > > > > > > > > > > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We > > saw some > > > > > > > > > > > > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we > > saw some > > > > > >good > > > > > > > > > > > > > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast > > or > > > > > >parasites > > > > > > > > > > > > > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, > > some > > > > > >dairy, etc, > > > > > > > > > > > > > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were > > gone > > > > > >and food > > > > > > > > > > > > > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and > > had > > > > > >limited > > > > > > > > > > > > > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > > > > > > > >chelating. My > > > > > > > > > > > > > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My > > dh said > > > > > >no, no > > > > > > > > > > > > > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will > > have > > > > > >enough > > > > > > > > > > > > > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son > > talks, > > > > > >and > > > > > > > > > > > > > > > > > > > > > >talks and talks, and seems to understand everything. He plays word > > games, > > > > > >makes > > > > > > > > > > > > > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. > > The > > > > > >teacher > > > > > > > > > > > > > > > > > > > > > >reports he greets peers and plays with them on the playground > > instead of > > > > > >merely > > > > > > > > > > > > > > > > > > > > > >running around the perimeter as is his habit. He is by no means > > recovered > > > > > >or age > > > > > > > > > > > > > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is > > like he > > > > > >can't > > > > > > > > > > > > > > > > > > > > > >tell me enough things - like he is uncorked or something. The > > other night > > > > > >he > > > > > > > > > > > > > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He > > had a > > > > > >place mat > > > > > > > > > > > > > > > > > > > > > >with the presidents on it and he was hell bent on showing me that > > he knew > > > > > >all > > > > > > > > > > > > > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > > > > > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. > > I > > > > > >finally > > > > > > > > > > > > > > > > > > > > > >uttered words I thought I would never say, but I had > > to... " sweetie, please > > > > > >be > > > > > > > > > > > > > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done > > nothing > > > > > >really, > > > > > > > > > > > > > > > > > > > > > >other than what we have for the last 2 years. In fact, we have > > recently > > > > > >lowered > > > > > > > > > > > > > > > > > > > > > >all of his supplements considerably. He takes nothing but the most > > basic > > > > > >mins > > > > > > > > > > > > > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, > > antioxidants, and > > > > > > > > > > > > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it > > somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement > > only in > > > > > >my > > > > > > > > > > > > > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > > > > > >sleepless > > > > > > > > > > > > > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not > > give up! > > > > > >We have > > > > > > > > > > > > > > > > > > > > > >had stall after stall and regression, and at times I wanted to > > throw in > > > > > >the > > > > > > > > > > > > > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the > > support of > > > > > >people > > > > > > > > > > > > > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and > > on and > > > > > >on. > > > > > > > > > > > > > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. > > But I > > > > > >believe > > > > > > > > > > > > > > > > > > > > > >in my heart it is truly possible. We have only one child, and for > > the > > > > > >first > > > > > > > > > > > > > > > > > > > > > >time, I feel his presence, his true presence as another person > > with > > > > > >opinions and > > > > > > > > > > > > > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late > > mother, a > > > > > > > > > > > > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of > > breast > > > > > > > > > > > > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a > > dream, there > > > > > >is > > > > > > > > > > > > > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I > > have hope, > > > > > >and > > > > > > > > > > > > > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Im glad to say that constipation is no longer an issue. For us it was the diet (LOD) and sacc b to address the bacteria. Staying LOD, lots of enzymes and probiotics have kept things moving! Karla > > > > > > > > > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. But I > > > > >think my > > > > > > > > > > > > > > > >experience with my son, bears posting here as well, to give hope and > > > > > > > > > > > >encouragement to those just starting out and to those perhaps further > > > >along who > > > > > > > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been doing the > > > > > >AC > > > > > > > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months of > >life, > > > > > > > > > > > > > > > > >including several flu shots and one in utero. My boy lost his skills > > > >starting > > > > > > > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down to age > > > > > >18 > > > > > > > > > > > > > > > >months, before we stopped the madness. My boy was loaded with metals, > > > >needless > > > > > > > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state came > >in > > > > > >at 19 > > > > > > > > > > > > > > > >months and intimated we were dealing with a case of severe autism. We > >got > > > > > >an > > > > > > > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6 > >months > > > > > >for. > > > > > > > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 oils, > >yeast > > > > > > > > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of high > > > > > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax > > > >injured. > > > > > > > > > > > > > > > >His gut was still a mess and he could not function or communicate > > > >properly. For > > > > > > > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA > >- > > > > > >this > > > > > > > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give him > >3mg > > > > > >or so > > > > > > > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 > > > >long, long > > > > > > > > > > > > > > > >months where there was even regression. We tried everything people tout > > > > >here as > > > > > > > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, > > > >gingko,, b > > > > > > > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By round > >50 > > > > > >we > > > > > > > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We saw > >some > > > > > > > > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we saw some > > > > > >good > > > > > > > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast or > > > >parasites > > > > > > > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, some > > > >dairy, etc, > > > > > > > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were gone > > > > >and food > > > > > > > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and had > > > >limited > > > > > > > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > > > >chelating. My > > > > > > > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My dh > >said > > > > > >no, no > > > > > > > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have > > > >enough > > > > > > > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son > >talks, > > > > > >and > > > > > > > > > > > > > > > >talks and talks, and seems to understand everything. He plays word > >games, > > > > > >makes > > > > > > > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. The > > > >teacher > > > > > > > > > > > > > > > >reports he greets peers and plays with them on the playground instead of > > > > > >merely > > > > > > > > > > > > > > > >running around the perimeter as is his habit. He is by no means > >recovered > > > > > >or age > > > > > > > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is like > >he > > > > > >can't > > > > > > > > > > > > > > > >tell me enough things - like he is uncorked or something. The other > >night > > > > > >he > > > > > > > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a > > > >place mat > > > > > > > > > > > > > > > >with the presidents on it and he was hell bent on showing me that he > >knew > > > > > >all > > > > > > > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. I > > > >finally > > > > > > > > > > > > > > > >uttered words I thought I would never say, but I had to... " sweetie, > >please > > > > > >be > > > > > > > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing > > > >really, > > > > > > > > > > > > > > > >other than what we have for the last 2 years. In fact, we have recently > > > > >lowered > > > > > > > > > > > > > > > >all of his supplements considerably. He takes nothing but the most basic > > > > > >mins > > > > > > > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, antioxidants, > >and > > > > > > > > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it > >somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement only > >in > > > > > >my > > > > > > > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > > > >sleepless > > > > > > > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not give up! > > > > > >We have > > > > > > > > > > > > > > > >had stall after stall and regression, and at times I wanted to throw in > > > > >the > > > > > > > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the support of > > > > > >people > > > > > > > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and on > >and > > > > > >on. > > > > > > > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. But I > > > > > >believe > > > > > > > > > > > > > > > >in my heart it is truly possible. We have only one child, and for the > > > >first > > > > > > > > > > > > > > > >time, I feel his presence, his true presence as another person with > > > >opinions and > > > > > > > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late mother, > >a > > > > > > > > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of > >breast > > > > > > > > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a dream, > >there > > > > > >is > > > > > > > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I have > >hope, > > > > > >and > > > > > > > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 _www.Oxypowder.com_ (http://www.Oxypowder.com) great stuff In a message dated 31/08/2010 11:19:42 GMT Daylight Time, k.ozbo@... writes: The only thing stopping us from chelation right now is my sons contipation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Upping Magnesium helped here. Kenny > > > > > > > > > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. But I > > > >think my > > > > > > > > > > > > > > > >experience with my son, bears posting here as well, to give hope and > > > > > > > > > > > >encouragement to those just starting out and to those perhaps further > > > >along who > > > > > > > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been doing the > > > >AC > > > > > > > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months of life, > > > > > > > > > > > > > > >including several flu shots and one in utero. My boy lost his skills > > > >starting > > > > > > > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down to age > > > >18 > > > > > > > > > > > > > > > >months, before we stopped the madness. My boy was loaded with metals, > > > >needless > > > > > > > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state came in > > > >at 19 > > > > > > > > > > > > > > > >months and intimated we were dealing with a case of severe autism. We got > > > >an > > > > > > > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6 months > > > >for. > > > > > > > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 oils, yeast > > > > > > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of high > > > > > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax > > > >injured. > > > > > > > > > > > > > > > >His gut was still a mess and he could not function or communicate > > > >properly. For > > > > > > > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA - > > > >this > > > > > > > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give him 3mg > > > >or so > > > > > > > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 > > > >long, long > > > > > > > > > > > > > > > >months where there was even regression. We tried everything people tout > > > >here as > > > > > > > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, > > > >gingko,, b > > > > > > > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By round 50 > > > >we > > > > > > > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We saw some > > > > > > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we saw some > > > >good > > > > > > > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast or > > > >parasites > > > > > > > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, some > > > >dairy, etc, > > > > > > > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were gone > > > >and food > > > > > > > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and had > > > >limited > > > > > > > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > > > >chelating. My > > > > > > > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My dh said > > > >no, no > > > > > > > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have > > > >enough > > > > > > > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son talks, > > > >and > > > > > > > > > > > > > > > >talks and talks, and seems to understand everything. He plays word games, > > > >makes > > > > > > > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. The > > > >teacher > > > > > > > > > > > > > > > >reports he greets peers and plays with them on the playground instead of > > > >merely > > > > > > > > > > > > > > > >running around the perimeter as is his habit. He is by no means recovered > > > >or age > > > > > > > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is like he > > > >can't > > > > > > > > > > > > > > > >tell me enough things - like he is uncorked or something. The other night > > > >he > > > > > > > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a > > > >place mat > > > > > > > > > > > > > > > >with the presidents on it and he was hell bent on showing me that he knew > > > >all > > > > > > > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. I > > > >finally > > > > > > > > > > > > > > > >uttered words I thought I would never say, but I had to... " sweetie, please > > > >be > > > > > > > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing > > > >really, > > > > > > > > > > > > > > > >other than what we have for the last 2 years. In fact, we have recently > > > >lowered > > > > > > > > > > > > > > > >all of his supplements considerably. He takes nothing but the most basic > > > >mins > > > > > > > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, antioxidants, and > > > > > > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement only in > > > >my > > > > > > > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > > > >sleepless > > > > > > > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not give up! > > > >We have > > > > > > > > > > > > > > > >had stall after stall and regression, and at times I wanted to throw in > > > >the > > > > > > > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the support of > > > >people > > > > > > > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and on and > > > >on. > > > > > > > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. But I > > > >believe > > > > > > > > > > > > > > > >in my heart it is truly possible. We have only one child, and for the > > > >first > > > > > > > > > > > > > > > >time, I feel his presence, his true presence as another person with > > > >opinions and > > > > > > > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late mother, a > > > > > > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of breast > > > > > > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a dream, there > > > >is > > > > > > > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I have hope, > > > >and > > > > > > > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 What is LOD? From: wiersmak <wiersmak@...> Subject: [ ] Re: hello karla and others.advice Date: Monday, August 30, 2010, 9:16 PM  Im glad to say that constipation is no longer an issue. For us it was the diet (LOD) and sacc b to address the bacteria. Staying LOD, lots of enzymes and probiotics have kept things moving! Karla > > > > > > > > > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. But I > > > > >think my > > > > > > > > > > > > > > > >experience with my son, bears posting here as well, to give hope and > > > > > > > > > > > >encouragement to those just starting out and to those perhaps further > > > >along who > > > > > > > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been doing the > > > > > >AC > > > > > > > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months of > >life, > > > > > > > > > > > > > > > > >including several flu shots and one in utero. My boy lost his skills > > > >starting > > > > > > > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down to age > > > > > >18 > > > > > > > > > > > > > > > >months, before we stopped the madness. My boy was loaded with metals, > > > >needless > > > > > > > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state came > >in > > > > > >at 19 > > > > > > > > > > > > > > > >months and intimated we were dealing with a case of severe autism. We > >got > > > > > >an > > > > > > > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6 > >months > > > > > >for. > > > > > > > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 oils, > >yeast > > > > > > > > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of high > > > > > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax > > > >injured. > > > > > > > > > > > > > > > >His gut was still a mess and he could not function or communicate > > > >properly. For > > > > > > > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA > >- > > > > > >this > > > > > > > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give him > >3mg > > > > > >or so > > > > > > > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 > > > >long, long > > > > > > > > > > > > > > > >months where there was even regression. We tried everything people tout > > > > >here as > > > > > > > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, > > > >gingko,, b > > > > > > > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By round > >50 > > > > > >we > > > > > > > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We saw > >some > > > > > > > > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we saw some > > > > > >good > > > > > > > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast or > > > >parasites > > > > > > > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, some > > > >dairy, etc, > > > > > > > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were gone > > > > >and food > > > > > > > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and had > > > >limited > > > > > > > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > > > >chelating. My > > > > > > > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My dh > >said > > > > > >no, no > > > > > > > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have > > > >enough > > > > > > > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son > >talks, > > > > > >and > > > > > > > > > > > > > > > >talks and talks, and seems to understand everything. He plays word > >games, > > > > > >makes > > > > > > > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. The > > > >teacher > > > > > > > > > > > > > > > >reports he greets peers and plays with them on the playground instead of > > > > > >merely > > > > > > > > > > > > > > > >running around the perimeter as is his habit. He is by no means > >recovered > > > > > >or age > > > > > > > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is like > >he > > > > > >can't > > > > > > > > > > > > > > > >tell me enough things - like he is uncorked or something. The other > >night > > > > > >he > > > > > > > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a > > > >place mat > > > > > > > > > > > > > > > >with the presidents on it and he was hell bent on showing me that he > >knew > > > > > >all > > > > > > > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. I > > > >finally > > > > > > > > > > > > > > > >uttered words I thought I would never say, but I had to... " sweetie, > >please > > > > > >be > > > > > > > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing > > > >really, > > > > > > > > > > > > > > > >other than what we have for the last 2 years. In fact, we have recently > > > > >lowered > > > > > > > > > > > > > > > >all of his supplements considerably. He takes nothing but the most basic > > > > > >mins > > > > > > > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, antioxidants, > >and > > > > > > > > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it > >somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement only > >in > > > > > >my > > > > > > > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > > > >sleepless > > > > > > > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not give up! > > > > > >We have > > > > > > > > > > > > > > > >had stall after stall and regression, and at times I wanted to throw in > > > > >the > > > > > > > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the support of > > > > > >people > > > > > > > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and on > >and > > > > > >on. > > > > > > > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. But I > > > > > >believe > > > > > > > > > > > > > > > >in my heart it is truly possible. We have only one child, and for the > > > >first > > > > > > > > > > > > > > > >time, I feel his presence, his true presence as another person with > > > >opinions and > > > > > > > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late mother, > >a > > > > > > > > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of > >breast > > > > > > > > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a dream, > >there > > > > > >is > > > > > > > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I have > >hope, > > > > > >and > > > > > > > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 > The only thing stopping us from chelation right now is my sons contipation.Dan dr suggested PGX fiber.........but my son is having a hard time taking it > What did you guys successfully do for this Here is my page of constipation information http://www.danasview.net/constip.htm At my house, constipation was caused by yeast overgrowth and magnesium deficiency [caused by several supplements]. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 What kind of magnesium? From: k.ozbo <k.ozbo@...> Subject: [ ] Re: hello karla and others.advice Date: Tuesday, August 31, 2010, 6:13 AM  Upping Magnesium helped here. Kenny > > > > > > > > > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. But I > > > >think my > > > > > > > > > > > > > > > >experience with my son, bears posting here as well, to give hope and > > > > > > > > > > > >encouragement to those just starting out and to those perhaps further > > > >along who > > > > > > > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been doing the > > > >AC > > > > > > > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months of life, > > > > > > > > > > > > > > >including several flu shots and one in utero. My boy lost his skills > > > >starting > > > > > > > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down to age > > > >18 > > > > > > > > > > > > > > > >months, before we stopped the madness. My boy was loaded with metals, > > > >needless > > > > > > > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state came in > > > >at 19 > > > > > > > > > > > > > > > >months and intimated we were dealing with a case of severe autism. We got > > > >an > > > > > > > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6 months > > > >for. > > > > > > > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 oils, yeast > > > > > > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of high > > > > > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax > > > >injured. > > > > > > > > > > > > > > > >His gut was still a mess and he could not function or communicate > > > >properly. For > > > > > > > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA - > > > >this > > > > > > > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give him 3mg > > > >or so > > > > > > > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 > > > >long, long > > > > > > > > > > > > > > > >months where there was even regression. We tried everything people tout > > > >here as > > > > > > > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, > > > >gingko,, b > > > > > > > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By round 50 > > > >we > > > > > > > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We saw some > > > > > > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we saw some > > > >good > > > > > > > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast or > > > >parasites > > > > > > > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, some > > > >dairy, etc, > > > > > > > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were gone > > > >and food > > > > > > > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and had > > > >limited > > > > > > > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > > > >chelating. My > > > > > > > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My dh said > > > >no, no > > > > > > > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have > > > >enough > > > > > > > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son talks, > > > >and > > > > > > > > > > > > > > > >talks and talks, and seems to understand everything. He plays word games, > > > >makes > > > > > > > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. The > > > >teacher > > > > > > > > > > > > > > > >reports he greets peers and plays with them on the playground instead of > > > >merely > > > > > > > > > > > > > > > >running around the perimeter as is his habit. He is by no means recovered > > > >or age > > > > > > > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is like he > > > >can't > > > > > > > > > > > > > > > >tell me enough things - like he is uncorked or something. The other night > > > >he > > > > > > > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a > > > >place mat > > > > > > > > > > > > > > > >with the presidents on it and he was hell bent on showing me that he knew > > > >all > > > > > > > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. I > > > >finally > > > > > > > > > > > > > > > >uttered words I thought I would never say, but I had to... " sweetie, please > > > >be > > > > > > > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing > > > >really, > > > > > > > > > > > > > > > >other than what we have for the last 2 years. In fact, we have recently > > > >lowered > > > > > > > > > > > > > > > >all of his supplements considerably. He takes nothing but the most basic > > > >mins > > > > > > > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, antioxidants, and > > > > > > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement only in > > > >my > > > > > > > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > > > >sleepless > > > > > > > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not give up! > > > >We have > > > > > > > > > > > > > > > >had stall after stall and regression, and at times I wanted to throw in > > > >the > > > > > > > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the support of > > > >people > > > > > > > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and on and > > > >on. > > > > > > > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. But I > > > >believe > > > > > > > > > > > > > > > >in my heart it is truly possible. We have only one child, and for the > > > >first > > > > > > > > > > > > > > > >time, I feel his presence, his true presence as another person with > > > >opinions and > > > > > > > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late mother, a > > > > > > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of breast > > > > > > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a dream, there > > > >is > > > > > > > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I have hope, > > > >and > > > > > > > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 Low Oxalate Diet > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. But I > > > > > > > >think my > > > > > > > > > > > > > > > > > > > > > >experience with my son, bears posting here as well, to give hope and > > > > > > > > > > > > > > > >encouragement to those just starting out and to those perhaps further > > > > > >along who > > > > > > > > > > > > > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been doing the > > > > > > > > >AC > > > > > > > > > > > > > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months of > > >life, > > > > > > > > > > > > > > > > > > > > > > > >including several flu shots and one in utero. My boy lost his skills > > > > > >starting > > > > > > > > > > > > > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down to age > > > > > > > > >18 > > > > > > > > > > > > > > > > > > > > > >months, before we stopped the madness. My boy was loaded with metals, > > > > > >needless > > > > > > > > > > > > > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state came > > >in > > > > > > > > >at 19 > > > > > > > > > > > > > > > > > > > > > >months and intimated we were dealing with a case of severe autism. We > > >got > > > > > > > > >an > > > > > > > > > > > > > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6 > > >months > > > > > > > > >for. > > > > > > > > > > > > > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 oils, > > >yeast > > > > > > > > > > > > > > > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of high > > > > > > > > > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax > > > > > >injured. > > > > > > > > > > > > > > > > > > > > > >His gut was still a mess and he could not function or communicate > > > > > >properly. For > > > > > > > > > > > > > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA > > >- > > > > > > > > >this > > > > > > > > > > > > > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give him > > >3mg > > > > > > > > >or so > > > > > > > > > > > > > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 > > > > > >long, long > > > > > > > > > > > > > > > > > > > > > >months where there was even regression. We tried everything people tout > > > > > > > >here as > > > > > > > > > > > > > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, > > > > > >gingko,, b > > > > > > > > > > > > > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By round > > >50 > > > > > > > > >we > > > > > > > > > > > > > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We saw > > >some > > > > > > > > > > > > > > > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we saw some > > > > > > > > >good > > > > > > > > > > > > > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast or > > > > > >parasites > > > > > > > > > > > > > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, some > > > > > >dairy, etc, > > > > > > > > > > > > > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were gone > > > > > > > >and food > > > > > > > > > > > > > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and had > > > > > >limited > > > > > > > > > > > > > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > > > > > >chelating. My > > > > > > > > > > > > > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My dh > > >said > > > > > > > > >no, no > > > > > > > > > > > > > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have > > > > > >enough > > > > > > > > > > > > > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son > > >talks, > > > > > > > > >and > > > > > > > > > > > > > > > > > > > > > >talks and talks, and seems to understand everything. He plays word > > >games, > > > > > > > > >makes > > > > > > > > > > > > > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. The > > > > > >teacher > > > > > > > > > > > > > > > > > > > > > >reports he greets peers and plays with them on the playground instead of > > > > > > > > >merely > > > > > > > > > > > > > > > > > > > > > >running around the perimeter as is his habit. He is by no means > > >recovered > > > > > > > > >or age > > > > > > > > > > > > > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is like > > >he > > > > > > > > >can't > > > > > > > > > > > > > > > > > > > > > >tell me enough things - like he is uncorked or something. The other > > >night > > > > > > > > >he > > > > > > > > > > > > > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a > > > > > >place mat > > > > > > > > > > > > > > > > > > > > > >with the presidents on it and he was hell bent on showing me that he > > >knew > > > > > > > > >all > > > > > > > > > > > > > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > > > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. I > > > > > >finally > > > > > > > > > > > > > > > > > > > > > >uttered words I thought I would never say, but I had to... " sweetie, > > >please > > > > > > > > >be > > > > > > > > > > > > > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing > > > > > >really, > > > > > > > > > > > > > > > > > > > > > >other than what we have for the last 2 years. In fact, we have recently > > > > > > > >lowered > > > > > > > > > > > > > > > > > > > > > >all of his supplements considerably. He takes nothing but the most basic > > > > > > > > >mins > > > > > > > > > > > > > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, antioxidants, > > >and > > > > > > > > > > > > > > > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it > > >somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement only > > >in > > > > > > > > >my > > > > > > > > > > > > > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > > > > > >sleepless > > > > > > > > > > > > > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not give up! > > > > > > > > >We have > > > > > > > > > > > > > > > > > > > > > >had stall after stall and regression, and at times I wanted to throw in > > > > > > > >the > > > > > > > > > > > > > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the support of > > > > > > > > >people > > > > > > > > > > > > > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and on > > >and > > > > > > > > >on. > > > > > > > > > > > > > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. But I > > > > > > > > >believe > > > > > > > > > > > > > > > > > > > > > >in my heart it is truly possible. We have only one child, and for the > > > > > >first > > > > > > > > > > > > > > > > > > > > > >time, I feel his presence, his true presence as another person with > > > > > >opinions and > > > > > > > > > > > > > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late mother, > > >a > > > > > > > > > > > > > > > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of > > >breast > > > > > > > > > > > > > > > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a dream, > > >there > > > > > > > > >is > > > > > > > > > > > > > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I have > > >hope, > > > > > > > > >and > > > > > > > > > > > > > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2010 Report Share Posted August 31, 2010 I posted this last night but don't see it here. My 7 yo son takes magnesium citrate and aloe vera juice for constipation. These are the only things that have consistently worked for him. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. But I > > > > > >think my > > > > > > > > > > > > > > > > > > > > > >experience with my son, bears posting here as well, to give hope and > > > > > > > > > > > > > > > >encouragement to those just starting out and to those perhaps further > > > > > >along who > > > > > > > > > > > > > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been doing the > > > > > >AC > > > > > > > > > > > > > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months of life, > > > > > > > > > > > > > > > > > > > > >including several flu shots and one in utero. My boy lost his skills > > > > > >starting > > > > > > > > > > > > > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down to age > > > > > >18 > > > > > > > > > > > > > > > > > > > > > >months, before we stopped the madness. My boy was loaded with metals, > > > > > >needless > > > > > > > > > > > > > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state came in > > > > > >at 19 > > > > > > > > > > > > > > > > > > > > > >months and intimated we were dealing with a case of severe autism. We got > > > > > >an > > > > > > > > > > > > > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6 months > > > > > >for. > > > > > > > > > > > > > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 oils, yeast > > > > > > > > > > > > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of high > > > > > > > > > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax > > > > > >injured. > > > > > > > > > > > > > > > > > > > > > >His gut was still a mess and he could not function or communicate > > > > > >properly. For > > > > > > > > > > > > > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA - > > > > > >this > > > > > > > > > > > > > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give him 3mg > > > > > >or so > > > > > > > > > > > > > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 > > > > > >long, long > > > > > > > > > > > > > > > > > > > > > >months where there was even regression. We tried everything people tout > > > > > >here as > > > > > > > > > > > > > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, > > > > > >gingko,, b > > > > > > > > > > > > > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By round 50 > > > > > >we > > > > > > > > > > > > > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We saw some > > > > > > > > > > > > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we saw some > > > > > >good > > > > > > > > > > > > > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast or > > > > > >parasites > > > > > > > > > > > > > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, some > > > > > >dairy, etc, > > > > > > > > > > > > > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were gone > > > > > >and food > > > > > > > > > > > > > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and had > > > > > >limited > > > > > > > > > > > > > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > > > > > >chelating. My > > > > > > > > > > > > > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My dh said > > > > > >no, no > > > > > > > > > > > > > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have > > > > > >enough > > > > > > > > > > > > > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son talks, > > > > > >and > > > > > > > > > > > > > > > > > > > > > >talks and talks, and seems to understand everything. He plays word games, > > > > > >makes > > > > > > > > > > > > > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. The > > > > > >teacher > > > > > > > > > > > > > > > > > > > > > >reports he greets peers and plays with them on the playground instead of > > > > > >merely > > > > > > > > > > > > > > > > > > > > > >running around the perimeter as is his habit. He is by no means recovered > > > > > >or age > > > > > > > > > > > > > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is like he > > > > > >can't > > > > > > > > > > > > > > > > > > > > > >tell me enough things - like he is uncorked or something. The other night > > > > > >he > > > > > > > > > > > > > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a > > > > > >place mat > > > > > > > > > > > > > > > > > > > > > >with the presidents on it and he was hell bent on showing me that he knew > > > > > >all > > > > > > > > > > > > > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > > > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. I > > > > > >finally > > > > > > > > > > > > > > > > > > > > > >uttered words I thought I would never say, but I had to... " sweetie, please > > > > > >be > > > > > > > > > > > > > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing > > > > > >really, > > > > > > > > > > > > > > > > > > > > > >other than what we have for the last 2 years. In fact, we have recently > > > > > >lowered > > > > > > > > > > > > > > > > > > > > > >all of his supplements considerably. He takes nothing but the most basic > > > > > >mins > > > > > > > > > > > > > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, antioxidants, and > > > > > > > > > > > > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement only in > > > > > >my > > > > > > > > > > > > > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > > > > > >sleepless > > > > > > > > > > > > > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not give up! > > > > > >We have > > > > > > > > > > > > > > > > > > > > > >had stall after stall and regression, and at times I wanted to throw in > > > > > >the > > > > > > > > > > > > > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the support of > > > > > >people > > > > > > > > > > > > > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and on and > > > > > >on. > > > > > > > > > > > > > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. But I > > > > > >believe > > > > > > > > > > > > > > > > > > > > > >in my heart it is truly possible. We have only one child, and for the > > > > > >first > > > > > > > > > > > > > > > > > > > > > >time, I feel his presence, his true presence as another person with > > > > > >opinions and > > > > > > > > > > > > > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late mother, a > > > > > > > > > > > > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of breast > > > > > > > > > > > > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a dream, there > > > > > >is > > > > > > > > > > > > > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I have hope, > > > > > >and > > > > > > > > > > > > > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 We have used Magnesium citrate and Magnesium glycinate in the past. I think any form if tolerated should be OK, although according to Kirkmans the oxide form tends to firm stools. Kenny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted on this on another forum. I apologize for the length. But I > > > > > >think my > > > > > > > > > > > > > > > > > > > > > >experience with my son, bears posting here as well, to give hope and > > > > > > > > > > > > > > > >encouragement to those just starting out and to those perhaps further > > > > > >along who > > > > > > > > > > > > > > > > > > > > > >are in a stall or have hit a bump with the AC protocol. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 now. We are coming up on round 96. We have been doing the > > > > > >AC > > > > > > > > > > > > > > > > > > > > > >protocol for 2 years. My son got 26 shots in his first 18 months of life, > > > > > > > > > > > > > > > > > > > > >including several flu shots and one in utero. My boy lost his skills > > > > > >starting > > > > > > > > > > > > > > > > > > > > > >with a Hep A shot at age one, and with all the ensuing shots down to age > > > > > >18 > > > > > > > > > > > > > > > > > > > > > >months, before we stopped the madness. My boy was loaded with metals, > > > > > >needless > > > > > > > > > > > > > > > > > > > > > >to say and was in a terrible way. Early Intervention in our state came in > > > > > >at 19 > > > > > > > > > > > > > > > > > > > > > >months and intimated we were dealing with a case of severe autism. We got > > > > > >an > > > > > > > > > > > > > > > > > > > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6 months > > > > > >for. > > > > > > > > > > > > > > > > > > > > > >During this time we discovered biomed - started gfcf, omega 3 oils, yeast > > > > > > > > > > > > > > > > > > > > >fighters and probiotics. By the time of our appt, we got a dx of high > > > > > > > > > > > > > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax > > > > > >injured. > > > > > > > > > > > > > > > > > > > > > >His gut was still a mess and he could not function or communicate > > > > > >properly. For > > > > > > > > > > > > > > > > > > > > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA - > > > > > >this > > > > > > > > > > > > > > > > > > > > > >was very tough, stressed his adrenals out, and we could only give him 3mg > > > > > >or so > > > > > > > > > > > > > > > > > > > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 > > > > > >long, long > > > > > > > > > > > > > > > > > > > > > >months where there was even regression. We tried everything people tout > > > > > >here as > > > > > > > > > > > > > > > > > > > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, > > > > > >gingko,, b > > > > > > > > > > > > > > > > > > > > > >vites, you name it. Nothing worked or mattered. We persevered. By round 50 > > > > > >we > > > > > > > > > > > > > > > > > > > > > >were able to up ALA and were at more weight appropriate doses. We saw some > > > > > > > > > > > > > > > > > > > > > >satisfying gains, then nothing for a few months. At round 66 we saw some > > > > > >good > > > > > > > > > > > > > > > > > > > > > >gains again, then nothing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > At this time my son's gut was basically healing - no more yeast or > > > > > >parasites > > > > > > > > > > > > > > > > > > > > > >for months, formed stools, he could eat many things, corn eggs, some > > > > > >dairy, etc, > > > > > > > > > > > > > > > > > > > > > >and he loved to try lots of new foods. His seasonal allergies were gone > > > > > >and food > > > > > > > > > > > > > > > > > > > > > >allergies starting to abate. Still he spoke like a cave man and had > > > > > >limited > > > > > > > > > > > > > > > > > > > > > >receptive understanding. Cognition lagged way behind. We just kept > > > > > >chelating. My > > > > > > > > > > > > > > > > > > > > > >dh and I went round and round on whether an EEG was necessary. My dh said > > > > > >no, no > > > > > > > > > > > > > > > > > > > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have > > > > > >enough > > > > > > > > > > > > > > > > > > > > > >rounds and it will get better. He prevailed and we waited. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > In the last 2 weeks it is like someone flipped a switch. My son talks, > > > > > >and > > > > > > > > > > > > > > > > > > > > > >talks and talks, and seems to understand everything. He plays word games, > > > > > >makes > > > > > > > > > > > > > > > > > > > > > >jokes. He seems to be 100% present for the first time in his life. The > > > > > >teacher > > > > > > > > > > > > > > > > > > > > > >reports he greets peers and plays with them on the playground instead of > > > > > >merely > > > > > > > > > > > > > > > > > > > > > >running around the perimeter as is his habit. He is by no means recovered > > > > > >or age > > > > > > > > > > > > > > > > > > > > > >appropriate yet - but he is starting to be on his way there. It is like he > > > > > >can't > > > > > > > > > > > > > > > > > > > > > >tell me enough things - like he is uncorked or something. The other night > > > > > >he > > > > > > > > > > > > > > > > > > > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a > > > > > >place mat > > > > > > > > > > > > > > > > > > > > > >with the presidents on it and he was hell bent on showing me that he knew > > > > > >all > > > > > > > > > > > > > > > > > > > > > >their names from Washington onward. He even told me, " you know, > > > > > > > > > > > > > > > >Washington even has his own bridge. " I almost fell over laughing. I > > > > > >finally > > > > > > > > > > > > > > > > > > > > > >uttered words I thought I would never say, but I had to... " sweetie, please > > > > > >be > > > > > > > > > > > > > > > > > > > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing > > > > > >really, > > > > > > > > > > > > > > > > > > > > > >other than what we have for the last 2 years. In fact, we have recently > > > > > >lowered > > > > > > > > > > > > > > > > > > > > > >all of his supplements considerably. He takes nothing but the most basic > > > > > >mins > > > > > > > > > > > > > > > > > > > > > >and vites, a few amino acids, liver support, fish oils, antioxidants, and > > > > > > > > > > > > > > > > > > > > >probiotics. I even hesitated to post this, for fear of jinxing it somehow. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I posted this basically to say, there is one miracle supplement only in > > > > > >my > > > > > > > > > > > > > > > > > > > > > >view: AC chelation - dmsa and ala, week after week, after tedious > > > > > >sleepless > > > > > > > > > > > > > > > > > > > > > >week. To anyone doubting it or having a hard time of it, do not give up! > > > > > >We have > > > > > > > > > > > > > > > > > > > > > >had stall after stall and regression, and at times I wanted to throw in > > > > > >the > > > > > > > > > > > > > > > > > > > > > >towel, thinking my boy is damaged beyond repair. But with the support of > > > > > >people > > > > > > > > > > > > > > > > > > > > > >here on the boards and Andy, and my spouse, we just forged on, and on and > > > > > >on. > > > > > > > > > > > > > > > > > > > > > >And I believe we have another 200 rounds to go, for full recovery. But I > > > > > >believe > > > > > > > > > > > > > > > > > > > > > >in my heart it is truly possible. We have only one child, and for the > > > > > >first > > > > > > > > > > > > > > > > > > > > > >time, I feel his presence, his true presence as another person with > > > > > >opinions and > > > > > > > > > > > > > > > > > > > > > >ideas, fully present living in our house. It is a beautiful thing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I want to close my post with an inspirational saying my late mother, a > > > > > > > > > > > > > > > > > > > > >relentless optimist, kept by her bed side even as she lay dying of breast > > > > > > > > > > > > > > > > > > > > >cancer: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Keep your heart open to dreams, for as long as there is a dream, there > > > > > >is > > > > > > > > > > > > > > > > > > > > > >hope, and as long as there is hope, there is joy in living. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > She lived this and believed this, and she was very right. I have hope, > > > > > >and > > > > > > > > > > > > > > > > > > > > > >joy now. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Irene > > > > > > > > > > > > > > > > > 5 year old, 95 rounds > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.