Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Indecisiveness is a symptoms of mercury poisoning. Most people with mercury have trouble making decisions and get easily frusturated or overwhelmed when asked to do so. This isn't a brain short circuit. Mercury poisoning makes it hard to think clearly most of the time let alone make choices. What chelation and supplements are you doing? Since not all chelation is created equally it would help if we knew what protocol and what chelator you are using. These behaviors do not seem like OCD at all. OCD behaviors would be things he has to do on his own regardless, like turning the door knob three times before opening it. Three times EVERYTIME he went out the door. It sounds like rather he is thinking no but it takes him a minute to comply with his mind's decisions. As for PANDAS..has he ever had strep throat? A confirmed with testing case of it? If not...it's probably not PANDAS. Chelation can address these issues yes. If you doing Andy Cutler low dose chelation. Do you have a hair test for him? Have you uploaded it to the group for interpretation? > > > Hi Dads and Moms, Please help me to analyze my son. > > My son is 6 yo, and autistic. I suspect that he has symptoms that are beyond autism. > > He has good days and bad days (more bad days than good days). More frequently, in his bad days, he gets more " brain short circuits " . When this happens, he would not be able to make a clear decision. A simple " yes/no " decision will make him frustrated and emotionally stuck. I attribute this to brain inflammation (we are on very strict diets, and doing supplementations and chealation). > > Besides, sometimes if I ask him things like " do you want to sit on my lap to read story together? " , even when his mind decision is NO, he would HAVE TO come sit on my lap for half a second but very quickly get off. Similarly, when we ask him if he wants to go to bathroom or not, even he does not need to, he would HAVE TO run to the bathroom, and quickly run back. Things like this happen more often when he is in bad days. > > I see this as OCD (obsessive compulsive) symptoms. Do your autistic kids have similar OCD symptoms? I suspect PANDAS diesase, but not sure if there exist other possibilities. I'd like to hear from parents like you to help me analyze the case. What lab tests would be helpful for us to confirm/disconfirm conditions? My son has severe heavy metal problems. Would chealation eventually help rid such symptoms? > > Thanks very much, > > Jingwen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 has he been checked for genetic stuff like Fragile X Syndrome? --------------------------- more than autism? Posted by: " Jingwen Jin " jjw.autism@... jjw.autism Mon Feb 22, 2010 12:43 pm (PST) Hi Dads and Moms, Please help me to analyze my son. My son is 6 yo, and autistic. I suspect that he has symptoms that are beyond autism. He has good days and bad days (more bad days than good days). More frequently, in his bad days, he gets more " brain short circuits " . When this happens, he would not be able to make a clear decision. A simple " yes/no " decision will make him frustrated and emotionally stuck. I attribute this to brain inflammation (we are on very strict diets, and doing supplementations and chealation). Besides, sometimes if I ask him things like " do you want to sit on my lap to read story together? " , even when his mind decision is NO, he would HAVE TO come sit on my lap for half a second but very quickly get off. Similarly, when we ask him if he wants to go to bathroom or not, even he does not need to, he would HAVE TO run to the bathroom, and quickly run back. Things like this happen more often when he is in bad days. I see this as OCD (obsessive compulsive) symptoms. Do your autistic kids have similar OCD symptoms? I suspect PANDAS diesase, but not sure if there exist other possibilities. I'd like to hear from parents like you to help me analyze the case. What lab tests would be helpful for us to confirm/disconfirm conditions? My son has severe heavy metal problems. Would chealation eventually help rid such symptoms? Thanks very much, Jingwen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Hi Everyone, Thanks a lot for all of your responses. My son had done several types of heavy metal tests, urine porphyrine, blood, hair element, which all showed painfully high levels of variety of metals: mercury, aluminum, uranium, arsenic, etc. His extremely high levels were mostly due to his dental amalgams and metal crowns (which were subsequently removed by a mercury-free dentist about a year ago). I know mercury does cause indecisiveness, and hope chealation will eventually heal him. We've so far done only 4 rounds of chealation, 3x25mg oral DMSA per day, 3 days on and 11 days off (my son weighs about 43LB). Is this dose appropriate? I'm just starting to read Andy Cutler's articles, and am yet to find out his dose recommendation. Before starting DMSA, we've supplemented him with selenium, glutathione, authia cream, magnesium sulfate cream, B12 shots (along with other vitamins and minerals), to aid his detoxification. Before and during DMSA, we've also been using chlorella. I know there are controversies due to chlorella's being potentially contaminated by sea water. Not sure if using chlorella is wise or not. His OCD-like behaviors are not constant (not ALWAYS he acts that way). We've not done any fragile X syndrome tests or any DNA-related tests. My son was mostly normal before he had the amalgam fillings and metal crowns installed at 3 yo. So genetically, I don't think he had major problems. He did not have apparetnt strep infections in the past, but since strep is such a polular bacteria, many times infections can go undetected. I'll see how much he could improve with more rounds of chealation in the recent, and then decide whether or not PANDAS tests will be needed. Thanks very much, Jingwen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 > > Hi Everyone, > > Thanks a lot for all of your responses. > > My son had done several types of heavy metal tests, urine porphyrine, blood, hair element, which all showed painfully high levels of variety of metals: mercury, aluminum, uranium, arsenic, etc. His extremely high levels were mostly due to his dental amalgams and metal crowns (which were subsequently removed by a mercury-free dentist about a year ago). I know mercury does cause indecisiveness, and hope chealation will eventually heal him. > > We've so far done only 4 rounds of chealation, 3x25mg oral DMSA per day, If you are only giving 3 doses per day, you are not giving it frequently enough. DMSA must be dosed at 4h intervals, or more frequently, around the clock for at least 3 days and 2 nights. > 3 days on and 11 days off It's ok to do 3 days on, 4 off, or 3 days on 11 off. >(my son weighs about 43LB). Is this dose appropriate? I'm just starting to read Andy Cutler's articles, and am yet to find out his dose recommendation. > Andy's dose recommendation is 1/8-1/2 mg per lb, starting at the low end and gradually working up only as tolerated. For a 43 lb child the starting dose would be about 5.4 mg per dose. Start there. When there are no side effects with chelation the dose can be increased by 50%. It is imperative to give it at 4 h intervals, or more frequently. ALA will be needed to clear metals from the brain and organs. ALA must be dosed at 3 h intervals. Often both DMSA and ALA are given together at the same time. The dose range for ALA is the same, start at 1/8 mg/lb and work up slowly to 1/2 mg/lb. > Before starting DMSA, we've supplemented him with selenium, glutathione, Glutathione is not necessary. It can be harmful, depending on the dosage form. > authia cream, Authia cream is poison and should never be used. Use thiamine or benfotiamine instead. > magnesium sulfate cream, B12 shots Some kids react to B12 with anger and agitation. Stopping the shots doesn't immediately stop the behaviors. It is safer to start with oral doses and build the dose gradually to be sure that the dose of the shot will be tolerated. >(along with other vitamins and minerals), to aid his detoxification. > > Before and during DMSA, we've also been using chlorella. I know there are controversies due to chlorella's being potentially contaminated by sea water. Not sure if using chlorella is wise or not. > It's not just that it can be contaminated with mercury because of where it grows. Chlorella does not chelate and makes most mercury poisoned people much sicker. > His OCD-like behaviors are not constant (not ALWAYS he acts that way). We've not done any fragile X syndrome tests or any DNA-related tests. My son was mostly normal before he had the amalgam fillings and metal crowns installed at 3 yo. So genetically, I don't think he had major problems. He did not have apparetnt strep infections in the past, but since strep is such a polular bacteria, many times infections can go undetected. I'll see how much he could improve with >more rounds of chealation in the recent, If you continue to give DMSA 3x per day his condition will worsen. Please read through the FAQ, files and links, Moria's web pages, and Andy Cutler's two books. Search archives using www.onibasu.com J > and then decide whether or not PANDAS tests will be needed. > > Thanks very much, > > Jingwen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 Hi , Your advice is very useful, thank you! I certainly need to research more into this detoxification subject as any incorrect action can harm the child. I just thought of buying Andy Cutler's " Hair Test Interpretation " book. Do you recommend other books more than this one? Our hair element test with DDI was done Oct/2008, and showed painfully high heavy metal levels. I think after some rounds of chelation, we should probably test hair again. Best regards, Jingwen > > > > Hi Everyone, > > > > Thanks a lot for all of your responses. > > > > My son had done several types of heavy metal tests, urine porphyrine, blood, hair element, which all showed painfully high levels of variety of metals: mercury, aluminum, uranium, arsenic, etc. His extremely high levels were mostly due to his dental amalgams and metal crowns (which were subsequently removed by a mercury-free dentist about a year ago). I know mercury does cause indecisiveness, and hope chealation will eventually heal him. > > > > We've so far done only 4 rounds of chealation, 3x25mg oral DMSA per day, > > > If you are only giving 3 doses per day, you are not giving it frequently enough. DMSA must be dosed at 4h intervals, or more frequently, around the clock for at least 3 days and 2 nights. > > > > 3 days on and 11 days off > > > It's ok to do 3 days on, 4 off, or 3 days on 11 off. > > > >(my son weighs about 43LB). Is this dose appropriate? I'm just starting to read Andy Cutler's articles, and am yet to find out his dose recommendation. > > > > > Andy's dose recommendation is 1/8-1/2 mg per lb, starting at the low end and gradually working up only as tolerated. For a 43 lb child the starting dose would be about 5.4 mg per dose. Start there. When there are no side effects with chelation the dose can be increased by 50%. It is imperative to give it at 4 h intervals, or more frequently. > > ALA will be needed to clear metals from the brain and organs. ALA must be dosed at 3 h intervals. Often both DMSA and ALA are given together at the same time. The dose range for ALA is the same, start at 1/8 mg/lb and work up slowly to 1/2 mg/lb. > > > > > > Before starting DMSA, we've supplemented him with selenium, glutathione, > > > Glutathione is not necessary. It can be harmful, depending on the dosage form. > > > > authia cream, > > > Authia cream is poison and should never be used. Use thiamine or benfotiamine instead. > > > > > magnesium sulfate cream, B12 shots > > > Some kids react to B12 with anger and agitation. Stopping the shots doesn't immediately stop the behaviors. It is safer to start with oral doses and build the dose gradually to be sure that the dose of the shot will be tolerated. > > > >(along with other vitamins and minerals), to aid his detoxification. > > > > Before and during DMSA, we've also been using chlorella. I know there are controversies due to chlorella's being potentially contaminated by sea water. Not sure if using chlorella is wise or not. > > > > > It's not just that it can be contaminated with mercury because of where it grows. Chlorella does not chelate and makes most mercury poisoned people much sicker. > > > > > > His OCD-like behaviors are not constant (not ALWAYS he acts that way). We've not done any fragile X syndrome tests or any DNA-related tests. My son was mostly normal before he had the amalgam fillings and metal crowns installed at 3 yo. So genetically, I don't think he had major problems. He did not have apparetnt strep infections in the past, but since strep is such a polular bacteria, many times infections can go undetected. I'll see how much he could improve with >more rounds of chealation in the recent, > > > If you continue to give DMSA 3x per day his condition will worsen. Please read through the FAQ, files and links, Moria's web pages, and Andy Cutler's two books. Search archives using www.onibasu.com > > J > > > > > and then decide whether or not PANDAS tests will be needed. > > > > Thanks very much, > > > > Jingwen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 http://www.noamalgam.com/ > > > > > > Hi Everyone, > > > > > > Thanks a lot for all of your responses. > > > > > > My son had done several types of heavy metal tests, urine porphyrine, blood, hair element, which all showed painfully high levels of variety of metals: mercury, aluminum, uranium, arsenic, etc. His extremely high levels were mostly due to his dental amalgams and metal crowns (which were subsequently removed by a mercury-free dentist about a year ago). I know mercury does cause indecisiveness, and hope chealation will eventually heal him. > > > > > > We've so far done only 4 rounds of chealation, 3x25mg oral DMSA per day, > > > > > > If you are only giving 3 doses per day, you are not giving it frequently enough. DMSA must be dosed at 4h intervals, or more frequently, around the clock for at least 3 days and 2 nights. > > > > > > > 3 days on and 11 days off > > > > > > It's ok to do 3 days on, 4 off, or 3 days on 11 off. > > > > > > >(my son weighs about 43LB). Is this dose appropriate? I'm just starting to read Andy Cutler's articles, and am yet to find out his dose recommendation. > > > > > > > > > Andy's dose recommendation is 1/8-1/2 mg per lb, starting at the low end and gradually working up only as tolerated. For a 43 lb child the starting dose would be about 5.4 mg per dose. Start there. When there are no side effects with chelation the dose can be increased by 50%. It is imperative to give it at 4 h intervals, or more frequently. > > > > ALA will be needed to clear metals from the brain and organs. ALA must be dosed at 3 h intervals. Often both DMSA and ALA are given together at the same time. The dose range for ALA is the same, start at 1/8 mg/lb and work up slowly to 1/2 mg/lb. > > > > > > > > > > > Before starting DMSA, we've supplemented him with selenium, glutathione, > > > > > > Glutathione is not necessary. It can be harmful, depending on the dosage form. > > > > > > > authia cream, > > > > > > Authia cream is poison and should never be used. Use thiamine or benfotiamine instead. > > > > > > > > > magnesium sulfate cream, B12 shots > > > > > > Some kids react to B12 with anger and agitation. Stopping the shots doesn't immediately stop the behaviors. It is safer to start with oral doses and build the dose gradually to be sure that the dose of the shot will be tolerated. > > > > > > >(along with other vitamins and minerals), to aid his detoxification. > > > > > > Before and during DMSA, we've also been using chlorella. I know there are controversies due to chlorella's being potentially contaminated by sea water. Not sure if using chlorella is wise or not. > > > > > > > > > It's not just that it can be contaminated with mercury because of where it grows. Chlorella does not chelate and makes most mercury poisoned people much sicker. > > > > > > > > > > > His OCD-like behaviors are not constant (not ALWAYS he acts that way). We've not done any fragile X syndrome tests or any DNA-related tests. My son was mostly normal before he had the amalgam fillings and metal crowns installed at 3 yo. So genetically, I don't think he had major problems. He did not have apparetnt strep infections in the past, but since strep is such a polular bacteria, many times infections can go undetected. I'll see how much he could improve with >more rounds of chealation in the recent, > > > > > > If you continue to give DMSA 3x per day his condition will worsen. Please read through the FAQ, files and links, Moria's web pages, and Andy Cutler's two books. Search archives using www.onibasu.com > > > > J > > > > > > > > > and then decide whether or not PANDAS tests will be needed. > > > > > > Thanks very much, > > > > > > Jingwen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 > > > > > > Hi Everyone, > > > > > > Thanks a lot for all of your responses. > > > > > > My son had done several types of heavy metal tests, urine porphyrine, blood, hair element, which all showed painfully high levels of variety of metals: mercury, aluminum, uranium, arsenic, etc. His extremely high levels were mostly due to his dental amalgams and metal crowns (which were subsequently removed by a mercury-free dentist about a year ago). I know mercury does cause indecisiveness, and hope chealation will eventually heal him. > > > > > > We've so far done only 4 rounds of chealation, 3x25mg oral DMSA per day, > > > > > > If you are only giving 3 doses per day, you are not giving it frequently enough. DMSA must be dosed at 4h intervals, or more frequently, around the clock for at least 3 days and 2 nights. > > > > > > > 3 days on and 11 days off > > > > > > It's ok to do 3 days on, 4 off, or 3 days on 11 off. > > > > > > >(my son weighs about 43LB). Is this dose appropriate? I'm just starting to read Andy Cutler's articles, and am yet to find out his dose recommendation. > > > > > > > > > Andy's dose recommendation is 1/8-1/2 mg per lb, starting at the low end and gradually working up only as tolerated. For a 43 lb child the starting dose would be about 5.4 mg per dose. Start there. When there are no side effects with chelation the dose can be increased by 50%. It is imperative to give it at 4 h intervals, or more frequently. > > > > ALA will be needed to clear metals from the brain and organs. ALA must be dosed at 3 h intervals. Often both DMSA and ALA are given together at the same time. The dose range for ALA is the same, start at 1/8 mg/lb and work up slowly to 1/2 mg/lb. > > > > > > > > > > > Before starting DMSA, we've supplemented him with selenium, glutathione, > > > > > > Glutathione is not necessary. It can be harmful, depending on the dosage form. > > > > > > > authia cream, > > > > > > Authia cream is poison and should never be used. Use thiamine or benfotiamine instead. > > > > > > > > > magnesium sulfate cream, B12 shots > > > > > > Some kids react to B12 with anger and agitation. Stopping the shots doesn't immediately stop the behaviors. It is safer to start with oral doses and build the dose gradually to be sure that the dose of the shot will be tolerated. > > > > > > >(along with other vitamins and minerals), to aid his detoxification. > > > > > > Before and during DMSA, we've also been using chlorella. I know there are controversies due to chlorella's being potentially contaminated by sea water. Not sure if using chlorella is wise or not. > > > > > > > > > It's not just that it can be contaminated with mercury because of where it grows. Chlorella does not chelate and makes most mercury poisoned people much sicker. > > > > > > > > > > > His OCD-like behaviors are not constant (not ALWAYS he acts that way). We've not done any fragile X syndrome tests or any DNA-related tests. My son was mostly normal before he had the amalgam fillings and metal crowns installed at 3 yo. So genetically, I don't think he had major problems. He did not have apparetnt strep infections in the past, but since strep is such a polular bacteria, many times infections can go undetected. I'll see how much he could improve with >more rounds of chealation in the recent, > > > > > > If you continue to give DMSA 3x per day his condition will worsen. Please read through the FAQ, files and links, Moria's web pages, and Andy Cutler's two books. Search archives using www.onibasu.com > > > > J > > > > > > > > > and then decide whether or not PANDAS tests will be needed. > > > > > > Thanks very much, > > > > > > Jingwen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 I ordered Andy's both books this afternoon. Can't wait to read them! I'll find the temporary folder you mentioned to upload our test results - never did that before. Thanks, Jingwen > > > > > > > > Hi Everyone, > > > > > > > > Thanks a lot for all of your responses. > > > > > > > > My son had done several types of heavy metal tests, urine porphyrine, blood, hair element, which all showed painfully high levels of variety of metals: mercury, aluminum, uranium, arsenic, etc. His extremely high levels were mostly due to his dental amalgams and metal crowns (which were subsequently removed by a mercury-free dentist about a year ago). I know mercury does cause indecisiveness, and hope chealation will eventually heal him. > > > > > > > > We've so far done only 4 rounds of chealation, 3x25mg oral DMSA per day, > > > > > > > > > If you are only giving 3 doses per day, you are not giving it frequently enough. DMSA must be dosed at 4h intervals, or more frequently, around the clock for at least 3 days and 2 nights. > > > > > > > > > > 3 days on and 11 days off > > > > > > > > > It's ok to do 3 days on, 4 off, or 3 days on 11 off. > > > > > > > > > >(my son weighs about 43LB). Is this dose appropriate? I'm just starting to read Andy Cutler's articles, and am yet to find out his dose recommendation. > > > > > > > > > > > > > Andy's dose recommendation is 1/8-1/2 mg per lb, starting at the low end and gradually working up only as tolerated. For a 43 lb child the starting dose would be about 5.4 mg per dose. Start there. When there are no side effects with chelation the dose can be increased by 50%. It is imperative to give it at 4 h intervals, or more frequently. > > > > > > ALA will be needed to clear metals from the brain and organs. ALA must be dosed at 3 h intervals. Often both DMSA and ALA are given together at the same time. The dose range for ALA is the same, start at 1/8 mg/lb and work up slowly to 1/2 mg/lb. > > > > > > > > > > > > > > > > Before starting DMSA, we've supplemented him with selenium, glutathione, > > > > > > > > > Glutathione is not necessary. It can be harmful, depending on the dosage form. > > > > > > > > > > authia cream, > > > > > > > > > Authia cream is poison and should never be used. Use thiamine or benfotiamine instead. > > > > > > > > > > > > > magnesium sulfate cream, B12 shots > > > > > > > > > Some kids react to B12 with anger and agitation. Stopping the shots doesn't immediately stop the behaviors. It is safer to start with oral doses and build the dose gradually to be sure that the dose of the shot will be tolerated. > > > > > > > > > >(along with other vitamins and minerals), to aid his detoxification. > > > > > > > > Before and during DMSA, we've also been using chlorella. I know there are controversies due to chlorella's being potentially contaminated by sea water. Not sure if using chlorella is wise or not. > > > > > > > > > > > > > It's not just that it can be contaminated with mercury because of where it grows. Chlorella does not chelate and makes most mercury poisoned people much sicker. > > > > > > > > > > > > > > > > His OCD-like behaviors are not constant (not ALWAYS he acts that way). We've not done any fragile X syndrome tests or any DNA-related tests. My son was mostly normal before he had the amalgam fillings and metal crowns installed at 3 yo. So genetically, I don't think he had major problems. He did not have apparetnt strep infections in the past, but since strep is such a polular bacteria, many times infections can go undetected. I'll see how much he could improve with >more rounds of chealation in the recent, > > > > > > > > > If you continue to give DMSA 3x per day his condition will worsen. Please read through the FAQ, files and links, Moria's web pages, and Andy Cutler's two books. Search archives using www.onibasu.com > > > > > > J > > > > > > > > > > > > > and then decide whether or not PANDAS tests will be needed. > > > > > > > > Thanks very much, > > > > > > > > Jingwen > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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