Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 Welcome! PDD=Physician Didn't Decide... S S New here, have some questions...shocker, right? lol Posted by: " christine " chrissypottershah@... chrissypottershah Tue Jan 4, 2011 5:53 pm (PST) Hi, I have been lurking for about a month while I get things together to start Cutler's protocol for my son, Elijah. He is eight, diagnosed with PDD- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 , That is funny. My son went through being diagnosed PDD, PDD-NOS. They should have labeled it PHGAFC! " Physician hasn't got a freaking clue! " -- only because I don't want to be vulgar. It's the same when they can't figure out any other diagnosis for people; they jump to, " You're just depressed.Here's Prozac. " I love your definition! Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 Yeah, well, when you are trying to fit behaviors caused by medical and genetic issues into a psychiatric explanation there is bound to be a lack of specificity. The diagnosis is just for putting the whole thing into context for others and doctors, IMO. I tell people he is on the spectrum but doing much better and likely to continue improving until he is off the spectrum entirely. I know this to be true...every problem he has had has turned out, so far, to be physical and fixable. We are very lucky. Chrissy > > Welcome! PDD=Physician Didn't Decide... > S S > > New here, have some questions...shocker, right? lol > Posted by: " christine " chrissypottershah@... chrissypottershah > Tue Jan 4, 2011 5:53 pm (PST) > > > > Hi, I have been lurking for about a month while I get things together to start Cutler's protocol for my son, Elijah. He is eight, diagnosed with PDD- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 You have to pull up the carpet and throw it out. I'd also suggests learning natural means of keeping your kid healthy in the future so things like flu vaccines aren't needed. IF you contact the health department they will refer you to the EPA who will come in and quarantine off a room in your house and charge you a boatload of money to remove the rug. Just remove the carpet, while wearing mask and gloves with the windows open. Put it inside plastic garbage bags and seal them shut with duct tape, then remove them from the house. Also you don't need to wake a kid up to give them a chelator. Most kids take this in the their sleep just fine. There are thousands of posts on this list about giving chelator at night. search " night dosing " . You really don't want to allow yourself to come up with too many excuses for why you can't chelate. You need to do it once that filling it out. Even if you feel your child " isn't that bad off " right now, he will be when he's 15 and angry and having social problems because he's full of mercury. It is VERY hard to fix these kids later on when they are older and don't want to comply with chelation and supplements. I was in your shoes once...with all those amalgams. Find a way to get yourself and your husband on the way to removing them. You need to be healthy to help your children sensibly. And it is actually easier to chelate the family all at once, rather than thinking you can do one kid and then fix the other ones later on. That will make years and years of work for you. This can take 100+ rounds per kid. I'd rather get everyone done at once. The sooner you get the mercury moving out, the less impact it will have on the younger children too. So by the time your 2 year old is 6, he may should be wonderfully normal and healthy! I've learned through my research that my amalgams were a large source of my son's mercury. Followed by vaccinations. Jan > > Hi, I have been lurking for about a month while I get things together to start Cutler's protocol for my son, Elijah. He is eight, diagnosed with PDD-NOS simply because no diagnosis fits him quite right. He is kinda spectrumy but not autistic and not Asperger's. Too verbal for the former, not verbal enough for the latter. Plus his emotional development and relationships are pretty normal for his age, plus a dozen other reasons. Anyway... > > We are thinking chelation now because blood tests show a recent exposure from a shattered fluorescent light tube in a room he slept in all night...his 4 year old brother did it while everyone was asleep when we were on vacation. All three boys slept in the vapors all night. I think the heart attack I had that morning took a year off my life. Ever since I have been working toward getting him to a place where we could do this. I wanted to make sure I chose the right protocol etc. He has been through so much over the years, I don't want to mess things up any more than is absolutely unavoidable. I'm sure y'all can relate to that! > > Anyway, so I know about that exposure, he has one very tiny amalgam we are having removed right before starting chelation (the wait is four days until starting the DMSA, right?). He also had all his vaccinations prior to my awareness about the toxicity of them (pounding my head against the proverbial brick wall of regret, don'tcha know) plus one flu shot when his younger brother was born with lung problems in the middle of flu season...not sure I regret that one! If one of us had made iel sick he would have died, without a doubt. I asked for a thimerosal-free one but they were out of them and I was scheduled for a c-section the next week. I thought it wasn't a big deal..... > > One last possible exposure is a CFL bulb that broke on our playroom carpet 2 years ago. I cleaned it up at the time, unaware that there was a special procedure or anything. I have been doing research about the whole thing and now I am thinking I need to replace the carpet (I will do the whole thing, it is old and dusty anyway) and the vacuum cleaner (which is already relegated to the garage). The question is how I handle the clean up now? Is replacing the carpet enough? What about the furniture sitting on that spot? And the hardwood underneath? It is enough to make a person move! Actually...I wish I could but at least I know what to suspect and worry about in this house now. The enemy you know.... > > Anyway, any advice on how to handle this would be so appreciated. I keep googling and getting more confused. Would there be any benefit to contacting some sort of Health Dept. type of person or would that end up with hazmat guys in my living room over something that isn't that bad. I would REALLY love a way to get a test of the airborne mercury levels in all the rooms of our house but I don't know if that happens WITHOUT the hazmat guys. <wry grin> > > Chrissy > mama to Elijah, 8, will be starting AC chelation this spring or sooner. > > iel, 5, will be chelated when I will be able to give him night doses. He currently sleeps like the dead. I tried to give a drink of water the other night, just to test him, you know? He WOULD NOT wake up. Just kept talking in his sleep and pushing me away. lol > > The baby, Alec, is 2. He only got vaccinated through 6 months, thank goodness. I will also chelate him when he is older. I have a mouth LOADED with amalgam...it stands to reason all my babies, nursed for over 2 1/2 years each, have gotten a fairly decent load of my mercury delivered to them. :( > > The husband (years and years of flu shots and allergy desensitization shots, not to mention a ton of amalgams) and I will likely chelate at some point too, but we have to get Elijah started first and I need to be as together as possible for that. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 I and my oldest son both have a form of cystic fibrosis, which significantly impacts the lungs. This list, my oldest son, and a friend who helped me more than any doctor ever did eventually convinced me (mostly by example) to stop getting the annual flu shot that people like me are supposed to get religiously. My oldest son adamantly refused every year and told me flat out he would rather have the flu than the flu shot. I can't recall the last time we had the flu. If you want to know some of what we are doing to protect our lungs and general health, there is a little info on that here: http://www.healthgazelle.com HTH and good luck. Michele http://www.healthgazelle.com http://www.kidslikemine.com http://www.solanorail.com > He also had all his vaccinations prior to my awareness about the toxicity of them (pounding my head against the proverbial brick wall of regret, don'tcha know) plus one flu shot when his younger brother was born with lung problems in the middle of flu season...not sure I regret that one! If one of us had made iel sick he would have died, without a doubt. I asked for a thimerosal-free one but they were out of them and I was scheduled for a c-section the next week. I thought it wasn't a big deal..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 Thanks for the advice about the carpet! Awesome. Chrissy > > > > Hi, I have been lurking for about a month while I get things together to start Cutler's protocol for my son, Elijah. He is eight, diagnosed with PDD-NOS simply because no diagnosis fits him quite right. He is kinda spectrumy but not autistic and not Asperger's. Too verbal for the former, not verbal enough for the latter. Plus his emotional development and relationships are pretty normal for his age, plus a dozen other reasons. Anyway... > > > > We are thinking chelation now because blood tests show a recent exposure from a shattered fluorescent light tube in a room he slept in all night...his 4 year old brother did it while everyone was asleep when we were on vacation. All three boys slept in the vapors all night. I think the heart attack I had that morning took a year off my life. Ever since I have been working toward getting him to a place where we could do this. I wanted to make sure I chose the right protocol etc. He has been through so much over the years, I don't want to mess things up any more than is absolutely unavoidable. I'm sure y'all can relate to that! > > > > Anyway, so I know about that exposure, he has one very tiny amalgam we are having removed right before starting chelation (the wait is four days until starting the DMSA, right?). He also had all his vaccinations prior to my awareness about the toxicity of them (pounding my head against the proverbial brick wall of regret, don'tcha know) plus one flu shot when his younger brother was born with lung problems in the middle of flu season...not sure I regret that one! If one of us had made iel sick he would have died, without a doubt. I asked for a thimerosal-free one but they were out of them and I was scheduled for a c-section the next week. I thought it wasn't a big deal..... > > > > One last possible exposure is a CFL bulb that broke on our playroom carpet 2 years ago. I cleaned it up at the time, unaware that there was a special procedure or anything. I have been doing research about the whole thing and now I am thinking I need to replace the carpet (I will do the whole thing, it is old and dusty anyway) and the vacuum cleaner (which is already relegated to the garage). The question is how I handle the clean up now? Is replacing the carpet enough? What about the furniture sitting on that spot? And the hardwood underneath? It is enough to make a person move! Actually...I wish I could but at least I know what to suspect and worry about in this house now. The enemy you know.... > > > > Anyway, any advice on how to handle this would be so appreciated. I keep googling and getting more confused. Would there be any benefit to contacting some sort of Health Dept. type of person or would that end up with hazmat guys in my living room over something that isn't that bad. I would REALLY love a way to get a test of the airborne mercury levels in all the rooms of our house but I don't know if that happens WITHOUT the hazmat guys. <wry grin> > > > > Chrissy > > mama to Elijah, 8, will be starting AC chelation this spring or sooner. > > > > iel, 5, will be chelated when I will be able to give him night doses. He currently sleeps like the dead. I tried to give a drink of water the other night, just to test him, you know? He WOULD NOT wake up. Just kept talking in his sleep and pushing me away. lol > > > > The baby, Alec, is 2. He only got vaccinated through 6 months, thank goodness. I will also chelate him when he is older. I have a mouth LOADED with amalgam...it stands to reason all my babies, nursed for over 2 1/2 years each, have gotten a fairly decent load of my mercury delivered to them. :( > > > > The husband (years and years of flu shots and allergy desensitization shots, not to mention a ton of amalgams) and I will likely chelate at some point too, but we have to get Elijah started first and I need to be as together as possible for that. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 That is kind of you but none of us have been sick other than a slight cold since we started the boys on the SCD 2 years ago. I am not at all worried about their lungs or the flu and would have never considered a flu shot other than that very unusual circumstance. The mildest case of the flu would have killed him at the time. He is totally fine now and has been for several years. That is what I meant about not regretting it. We did every single thing we could to keep him from getting sick at that time, including the three of us getting a stupid flu shot so we wouldn't make him sick. I don't regret protecting his life. I don't think the shot really works but that is just my theory. Theories abound in life and most are crap. Mercury in Elijah is awful but a lot less awful than iel dying. Sometimes you take your lumps in life and make the best of it. I am learning a lot here and thankful to have a source of info for the next stage in healing our kids. Somehow my post was interpreted by another board member as saying I hesitate to chelate my kids. I don't. It is happening. No one needs to evangelize me! lol I have already taken my share of the Koolaid, thanks! chrissy > > > He also had all his vaccinations prior to my awareness about the toxicity of them (pounding my head against the proverbial brick wall of regret, don'tcha know) plus one flu shot when his younger brother was born with lung problems in the middle of flu season...not sure I regret that one! If one of us had made iel sick he would have died, without a doubt. I asked for a thimerosal-free one but they were out of them and I was scheduled for a c-section the next week. I thought it wasn't a big deal..... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 Not looking to evangelize. (I've had less of the koolaid than most folks on this list.) Just saying that if your child's lung issues are still a concern, there is info on dealing with serious lung issues. Peace. Michele http://www.healthgazelle.com http://www.kidslikemine.com http://www.solanorail.com > > > > > He also had all his vaccinations prior to my awareness about the toxicity of them (pounding my head against the proverbial brick wall of regret, don'tcha know) plus one flu shot when his younger brother was born with lung problems in the middle of flu season...not sure I regret that one! If one of us had made iel sick he would have died, without a doubt. I asked for a thimerosal-free one but they were out of them and I was scheduled for a c-section the next week. I thought it wasn't a big deal..... > > > Quote Link to comment Share on other sites More sharing options...
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