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Welcome! PDD=Physician Didn't Decide...

S S

New here, have some questions...shocker, right? lol

Posted by: " christine " chrissypottershah@... chrissypottershah

Tue Jan 4, 2011 5:53 pm (PST)

Hi, I have been lurking for about a month while I get things together to start

Cutler's protocol for my son, Elijah. He is eight, diagnosed with PDD-

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,

That is funny. My son went through being diagnosed PDD, PDD-NOS.

They should have labeled it PHGAFC! " Physician hasn't got a freaking clue! "

-- only because I don't want to be vulgar. It's the same when they can't

figure out any other diagnosis for people; they jump to, " You're just

depressed.Here's Prozac. "

I love your definition!

Haven

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Yeah, well, when you are trying to fit behaviors caused by medical and genetic

issues into a psychiatric explanation there is bound to be a lack of

specificity. The diagnosis is just for putting the whole thing into context for

others and doctors, IMO. I tell people he is on the spectrum but doing much

better and likely to continue improving until he is off the spectrum entirely.

I know this to be true...every problem he has had has turned out, so far, to be

physical and fixable. We are very lucky.

Chrissy

>

> Welcome! PDD=Physician Didn't Decide...

> S S

>

> New here, have some questions...shocker, right? lol

> Posted by: " christine " chrissypottershah@... chrissypottershah

> Tue Jan 4, 2011 5:53 pm (PST)

>

>

>

> Hi, I have been lurking for about a month while I get things together to start

Cutler's protocol for my son, Elijah. He is eight, diagnosed with PDD-

>

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You have to pull up the carpet and throw it out. I'd also suggests learning

natural means of keeping your kid healthy in the future so things like flu

vaccines aren't needed.

IF you contact the health department they will refer you to the EPA who will

come in and quarantine off a room in your house and charge you a boatload of

money to remove the rug.

Just remove the carpet, while wearing mask and gloves with the windows open. Put

it inside plastic garbage bags and seal them shut with duct tape, then remove

them from the house.

Also you don't need to wake a kid up to give them a chelator. Most kids take

this in the their sleep just fine. There are thousands of posts on this list

about giving chelator at night. search " night dosing " .

You really don't want to allow yourself to come up with too many excuses for why

you can't chelate. You need to do it once that filling it out. Even if you feel

your child " isn't that bad off " right now, he will be when he's 15 and angry and

having social problems because he's full of mercury. It is VERY hard to fix

these kids later on when they are older and don't want to comply with chelation

and supplements.

I was in your shoes once...with all those amalgams. Find a way to get yourself

and your husband on the way to removing them. You need to be healthy to help

your children sensibly. And it is actually easier to chelate the family all at

once, rather than thinking you can do one kid and then fix the other ones later

on. That will make years and years of work for you. This can take 100+ rounds

per kid. I'd rather get everyone done at once. The sooner you get the mercury

moving out, the less impact it will have on the younger children too. So by the

time your 2 year old is 6, he may should be wonderfully normal and healthy!

I've learned through my research that my amalgams were a large source of my

son's mercury. Followed by vaccinations.

Jan

>

> Hi, I have been lurking for about a month while I get things together to start

Cutler's protocol for my son, Elijah. He is eight, diagnosed with PDD-NOS

simply because no diagnosis fits him quite right. He is kinda spectrumy but not

autistic and not Asperger's. Too verbal for the former, not verbal enough for

the latter. Plus his emotional development and relationships are pretty normal

for his age, plus a dozen other reasons. Anyway...

>

> We are thinking chelation now because blood tests show a recent exposure from

a shattered fluorescent light tube in a room he slept in all night...his 4 year

old brother did it while everyone was asleep when we were on vacation. All

three boys slept in the vapors all night. I think the heart attack I had that

morning took a year off my life. :( Ever since I have been working toward

getting him to a place where we could do this. I wanted to make sure I chose

the right protocol etc. He has been through so much over the years, I don't

want to mess things up any more than is absolutely unavoidable. I'm sure y'all

can relate to that!

>

> Anyway, so I know about that exposure, he has one very tiny amalgam we are

having removed right before starting chelation (the wait is four days until

starting the DMSA, right?). He also had all his vaccinations prior to my

awareness about the toxicity of them (pounding my head against the proverbial

brick wall of regret, don'tcha know) plus one flu shot when his younger brother

was born with lung problems in the middle of flu season...not sure I regret that

one! If one of us had made iel sick he would have died, without a doubt.

I asked for a thimerosal-free one but they were out of them and I was scheduled

for a c-section the next week. I thought it wasn't a big deal....:(.

>

> One last possible exposure is a CFL bulb that broke on our playroom carpet 2

years ago. I cleaned it up at the time, unaware that there was a special

procedure or anything. I have been doing research about the whole thing and now

I am thinking I need to replace the carpet (I will do the whole thing, it is old

and dusty anyway) and the vacuum cleaner (which is already relegated to the

garage). The question is how I handle the clean up now? Is replacing the

carpet enough? What about the furniture sitting on that spot? And the hardwood

underneath? It is enough to make a person move! Actually...I wish I could but

at least I know what to suspect and worry about in this house now. The enemy

you know....

>

> Anyway, any advice on how to handle this would be so appreciated. I keep

googling and getting more confused. Would there be any benefit to contacting

some sort of Health Dept. type of person or would that end up with hazmat guys

in my living room over something that isn't that bad. I would REALLY love a way

to get a test of the airborne mercury levels in all the rooms of our house but I

don't know if that happens WITHOUT the hazmat guys. <wry grin>

>

> Chrissy

> mama to Elijah, 8, will be starting AC chelation this spring or sooner.

>

> iel, 5, will be chelated when I will be able to give him night doses.

He currently sleeps like the dead. I tried to give a drink of water the other

night, just to test him, you know? He WOULD NOT wake up. Just kept talking in

his sleep and pushing me away. lol

>

> The baby, Alec, is 2. He only got vaccinated through 6 months, thank

goodness. I will also chelate him when he is older. I have a mouth LOADED with

amalgam...it stands to reason all my babies, nursed for over 2 1/2 years each,

have gotten a fairly decent load of my mercury delivered to them. :( :( :(

>

> The husband (years and years of flu shots and allergy desensitization shots,

not to mention a ton of amalgams) and I will likely chelate at some point too,

but we have to get Elijah started first and I need to be as together as possible

for that. ;)

>

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I and my oldest son both have a form of cystic fibrosis, which significantly

impacts the lungs. This list, my oldest son, and a friend who helped me more

than any doctor ever did eventually convinced me (mostly by example) to stop

getting the annual flu shot that people like me are supposed to get religiously.

My oldest son adamantly refused every year and told me flat out he would rather

have the flu than the flu shot. I can't recall the last time we had the flu.

If you want to know some of what we are doing to protect our lungs and general

health, there is a little info on that here:

http://www.healthgazelle.com

HTH and good luck.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

>

He also had all his vaccinations prior to my awareness about the toxicity of

them (pounding my head against the proverbial brick wall of regret, don'tcha

know) plus one flu shot when his younger brother was born with lung problems in

the middle of flu season...not sure I regret that one! If one of us had made

iel sick he would have died, without a doubt. I asked for a

thimerosal-free one but they were out of them and I was scheduled for a

c-section the next week. I thought it wasn't a big deal....:(.

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Thanks for the advice about the carpet! Awesome.

Chrissy

> >

> > Hi, I have been lurking for about a month while I get things together to

start Cutler's protocol for my son, Elijah. He is eight, diagnosed with PDD-NOS

simply because no diagnosis fits him quite right. He is kinda spectrumy but not

autistic and not Asperger's. Too verbal for the former, not verbal enough for

the latter. Plus his emotional development and relationships are pretty normal

for his age, plus a dozen other reasons. Anyway...

> >

> > We are thinking chelation now because blood tests show a recent exposure

from a shattered fluorescent light tube in a room he slept in all night...his 4

year old brother did it while everyone was asleep when we were on vacation. All

three boys slept in the vapors all night. I think the heart attack I had that

morning took a year off my life. :( Ever since I have been working toward

getting him to a place where we could do this. I wanted to make sure I chose

the right protocol etc. He has been through so much over the years, I don't

want to mess things up any more than is absolutely unavoidable. I'm sure y'all

can relate to that!

> >

> > Anyway, so I know about that exposure, he has one very tiny amalgam we are

having removed right before starting chelation (the wait is four days until

starting the DMSA, right?). He also had all his vaccinations prior to my

awareness about the toxicity of them (pounding my head against the proverbial

brick wall of regret, don'tcha know) plus one flu shot when his younger brother

was born with lung problems in the middle of flu season...not sure I regret that

one! If one of us had made iel sick he would have died, without a doubt.

I asked for a thimerosal-free one but they were out of them and I was scheduled

for a c-section the next week. I thought it wasn't a big deal....:(.

> >

> > One last possible exposure is a CFL bulb that broke on our playroom carpet 2

years ago. I cleaned it up at the time, unaware that there was a special

procedure or anything. I have been doing research about the whole thing and now

I am thinking I need to replace the carpet (I will do the whole thing, it is old

and dusty anyway) and the vacuum cleaner (which is already relegated to the

garage). The question is how I handle the clean up now? Is replacing the

carpet enough? What about the furniture sitting on that spot? And the hardwood

underneath? It is enough to make a person move! Actually...I wish I could but

at least I know what to suspect and worry about in this house now. The enemy

you know....

> >

> > Anyway, any advice on how to handle this would be so appreciated. I keep

googling and getting more confused. Would there be any benefit to contacting

some sort of Health Dept. type of person or would that end up with hazmat guys

in my living room over something that isn't that bad. I would REALLY love a way

to get a test of the airborne mercury levels in all the rooms of our house but I

don't know if that happens WITHOUT the hazmat guys. <wry grin>

> >

> > Chrissy

> > mama to Elijah, 8, will be starting AC chelation this spring or sooner.

> >

> > iel, 5, will be chelated when I will be able to give him night doses.

He currently sleeps like the dead. I tried to give a drink of water the other

night, just to test him, you know? He WOULD NOT wake up. Just kept talking in

his sleep and pushing me away. lol

> >

> > The baby, Alec, is 2. He only got vaccinated through 6 months, thank

goodness. I will also chelate him when he is older. I have a mouth LOADED with

amalgam...it stands to reason all my babies, nursed for over 2 1/2 years each,

have gotten a fairly decent load of my mercury delivered to them. :( :( :(

> >

> > The husband (years and years of flu shots and allergy desensitization shots,

not to mention a ton of amalgams) and I will likely chelate at some point too,

but we have to get Elijah started first and I need to be as together as possible

for that. ;)

> >

>

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That is kind of you but none of us have been sick other than a slight cold since

we started the boys on the SCD 2 years ago. I am not at all worried about their

lungs or the flu and would have never considered a flu shot other than that very

unusual circumstance. The mildest case of the flu would have killed him at the

time. He is totally fine now and has been for several years. That is what I

meant about not regretting it. We did every single thing we could to keep him

from getting sick at that time, including the three of us getting a stupid flu

shot so we wouldn't make him sick. I don't regret protecting his life. I don't

think the shot really works but that is just my theory. Theories abound in life

and most are crap. Mercury in Elijah is awful but a lot less awful than

iel dying. Sometimes you take your lumps in life and make the best of it.

I am learning a lot here and thankful to have a source of info for the next

stage in healing our kids.

Somehow my post was interpreted by another board member as saying I hesitate to

chelate my kids. I don't. It is happening. No one needs to evangelize me!

lol I have already taken my share of the Koolaid, thanks!

:) chrissy

> >

> He also had all his vaccinations prior to my awareness about the toxicity of

them (pounding my head against the proverbial brick wall of regret, don'tcha

know) plus one flu shot when his younger brother was born with lung problems in

the middle of flu season...not sure I regret that one! If one of us had made

iel sick he would have died, without a doubt. I asked for a

thimerosal-free one but they were out of them and I was scheduled for a

c-section the next week. I thought it wasn't a big deal....:(.

>

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Not looking to evangelize. (I've had less of the koolaid than most folks on this

list.) Just saying that if your child's lung issues are still a concern, there

is info on dealing with serious lung issues.

Peace.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

> > >

> > He also had all his vaccinations prior to my awareness about the toxicity

of them (pounding my head against the proverbial brick wall of regret, don'tcha

know) plus one flu shot when his younger brother was born with lung problems in

the middle of flu season...not sure I regret that one! If one of us had made

iel sick he would have died, without a doubt. I asked for a

thimerosal-free one but they were out of them and I was scheduled for a

c-section the next week. I thought it wasn't a big deal....:(.

> >

>

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