Hi - I am new - about the Flu shot

[Guest guest]

Hi All

My name is , I am 45 years old and new to these boards. While

scrolling around I noticed quite a bit of talk about the flu shot.

People with auto immune illness SHOULD NOT TAKE THE FLU SHOT! Do some

research. Especially if you have multiple auto immune issues.

I was given the flu vaccine in 2003. I had anti-phopholipid sydrome

and anti-lupus autobodie, was taking plaqueneil to stave off full

blown lupus for years. I had Fibromyalgia, Epstein Bar, Oesteo with

35% bone loss in early monopause on hormone replacement. I had a

spinal cord injury which left me with a metal implant from c2-c7

after 2 fusion and esophogeal damage asa well as cord damage.

The primary risk of the flu vaccine is a virus called Guillan

Barre. It can be fatal. Or you can survive. Or you can get a cronic

progresive form called CIDP. That's me! Cronic Immune Demylanating

Polyneuropathy. An easy way of understanding it is like MS of the

limbs up. The mylan leaves starting at the feet and works its way up.

So if you DO ge the vaccine and get sick from it.. the vaccine should

NOT MAKE YOU SICK! GO to the hospital! Anything more than a slight

fever needs to get attended to.

For me it was yet another attack on my already compromised immune

system. There is no cure; there is no telethon and the treatments ar

few and dreary and lifetime. But not for Guillan Barre. So take it

seriously. I receive IVIG every other week. Iv immunoglobulin the

treatment takes 6 1/2 hours and I have to take beyndryl and tylenol

for the headache and allergic to other peoples antibodies. It

flattens me out for a while, but without it I am in a wheelchair or

bedridden and the disease is progressing and will kill me. If this

fails to continue working the next step os plasmapheresis (blood

washing), similar to dialisis. But so far we are holding our own.

Then this past year we added Rhuematoid Arthritis to the mix. I

cannot take any of the new med with CIDP because they with give me

MS. I don't know why.. I got Methotrexate poisoning and wound up in

the hospital. Sulfasazaline as well gave me fluid in my stommach and

yet another hospital stay.

So status quo: RA, CIDP, Fibro,Lupus, Antiphoslipid (not that

important after childbearing years), Oesteoporosis, Spinal Cord

Implant with lesions, (due to auto accident). Now they are saying

Hashimoto's Thyroiditis. Basiclly every part of my body is attacking

itself.

I, however feel blessed to be alive remarkably. I have four

children. Four dogs and three cats and a wonder and thankfully patient

husband.

Every day is just another step on the ladder of life and there is

always somebody less fortunate than I.

God Bless!

Feel free to contact me