Re: more than autism? PANDAS

February 22, 2010

Hello,

I read somewhere that the level of CaM Kinase II (Ca2+/calmodulin-dependent

protein Kinase II), an enzyme in the basal ganglia, may play a role in PANDAS.

Based on my notes, this is attributed to study that was done by Dr. Madeleine

Cunningham and Dr. Suzan Sweda. I am not sure how accurate my notes are in

regards to the authors. I couldn't find the research paper.

I hope that helps.

>

> Hi Dads and Moms, Please help me to analyze my son.

>

> My son is 6 yo, and autistic. I suspect that he has symptoms that are beyond

autism.

>

> He has good days and bad days (more bad days than good days). More frequently,

in his bad days, he gets more " brain short circuits " . When this happens, he

would not be able to make a clear decision. A simple " yes/no " decision will make

him frustrated and emotionally stuck. I attribute this to brain inflammation (we

are on very strict diets, and doing supplementations and chealation).

>

> Besides, sometimes if I ask him things like " do you want to sit on my lap to

read story together? " , even when his mind decision is NO, he would HAVE TO come

sit on my lap for half a second but very quickly get off. Similarly, when we ask

him if he wants to go to bathroom or not, even he does not need to, he would

HAVE TO run to the bathroom, and quickly run back. Things like this happen more

often when he is in bad days.

>

> I see this as OCD (obsessive compulsive) symptoms. Do your autistic kids have

similar OCD symptoms? I suspect PANDAS diesase, but not sure if there exist

other possibilities. I'd like to hear from parents like you to help me analyze

the case. What lab tests would be helpful for us to confirm/disconfirm

conditions? My son has severe heavy metal problems. Would chealation eventually

help rid such symptoms?

>

> Thanks very much,

>

> Jingwen

>

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