Re: need lots of help on DMSA chelation

[Guest guest]

Please describe the symptoms of the regression in detail.

What are you doing for yeast?

Is he tolerating foods okay?

How are his BMs?

Is he taking any adrenal support (Adrenal Cortex Extract)?

Is he on Choline/Inositol for OCD?

Are OCD, stimming, or fears a problem?

If we know a little more, we can help you better.

Liz

>

> I'm new to this board and I am having a rough time with my 5 year old son

right now. We started DMSA 18 months ago under the direction of a " DAN " doctor

- it is going very slow and so about 6 weeks ago I decided to stop it. His

prophyrin test from when we first started 18 months ago is essentially

unchanged. He was taking 2 mg once daily on monday, wed, fridays. I know this

is not the AC protocol but this is the scheudle our doctor uses.

> Now, I see HUGE regression in my son - in many areas. It did not show up

immediately but about 3 or so weeks later. I feel I should restart the dmsa

chealtion yet I feel uncomfortable doing the same schedule because it seemed to

be going to slow with him.

> Advice anyone? I would really appreciate any kind of input.

> Thank you very much.

>

[Guest guest]

Also how much does you son weigh and what dose of DMSA were you giving and how

often were you giving it?

x

From: elizabethsoliday@...

Date: Sat, 15 May 2010 06:31:04 +0000

Subject: [ ] Re: need lots of help on DMSA chelation

Please describe the symptoms of the regression in detail.

What are you doing for yeast?

Is he tolerating foods okay?

How are his BMs?

Is he taking any adrenal support (Adrenal Cortex Extract)?

Is he on Choline/Inositol for OCD?

Are OCD, stimming, or fears a problem?

If we know a little more, we can help you better.

Liz

>

> I'm new to this board and I am having a rough time with my 5 year old son

right now. We started DMSA 18 months ago under the direction of a " DAN " doctor -

it is going very slow and so about 6 weeks ago I decided to stop it. His

prophyrin test from when we first started 18 months ago is essentially

unchanged. He was taking 2 mg once daily on monday, wed, fridays. I know this is

not the AC protocol but this is the scheudle our doctor uses.

> Now, I see HUGE regression in my son - in many areas. It did not show up

immediately but about 3 or so weeks later. I feel I should restart the dmsa

chealtion yet I feel uncomfortable doing the same schedule because it seemed to

be going to slow with him.

> Advice anyone? I would really appreciate any kind of input.

> Thank you very much.

>

_________________________________________________________________

http://clk.atdmt.com/UKM/go/197222280/direct/01/

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[Guest guest]

This schedule for chelation is just wrong. Sorry. First, it is a crazy low dose

to be taking once a day (is this a typo?). Second, you never take DMSA once a

day because it leads to massive redistribution of mercury and other heavy

metals. This is why you see regression, most likely.

You do not need a DAN! doctor to chelate. My guess is you are scared, and think

you cannot fix your child on your own. That is just not true. With this DAN!

doctor, my fear is things will just get worse.

Please reconsider.

pam

>

> I'm new to this board and I am having a rough time with my 5 year old son

right now. We started DMSA 18 months ago under the direction of a " DAN " doctor

- it is going very slow and so about 6 weeks ago I decided to stop it. His

prophyrin test from when we first started 18 months ago is essentially

unchanged. He was taking 2 mg once daily on monday, wed, fridays. I know this

is not the AC protocol but this is the scheudle our doctor uses.

> Now, I see HUGE regression in my son - in many areas. It did not show up

immediately but about 3 or so weeks later. I feel I should restart the dmsa

chealtion yet I feel uncomfortable doing the same schedule because it seemed to

be going to slow with him.

> Advice anyone? I would really appreciate any kind of input.

> Thank you very much.

>

[Guest guest]

Pam,

Thanks for your input. I meant to say he takes 200 mg (not 2 mg) 3x/week.

When I asked my dan about the ac protocol he said there are lots of way to

chelate and that he was not going to get into a debate about this. I was

uncomfortable with that reply but was overwhelmed with everything and so

just accepted it.

Appreciate your help!

~Jani

From: [mailto: ]

On Behalf Of Pamela H

Sent: Saturday, May 15, 2010 12:47 PM

Subject: [ ] Re: need lots of help on DMSA chelation

This schedule for chelation is just wrong. Sorry. First, it is a crazy low

dose to be taking once a day (is this a typo?). Second, you never take DMSA

once a day because it leads to massive redistribution of mercury and other

heavy metals. This is why you see regression, most likely.

You do not need a DAN! doctor to chelate. My guess is you are scared, and

think you cannot fix your child on your own. That is just not true. With

this DAN! doctor, my fear is things will just get worse.

Please reconsider.

pam

>

> I'm new to this board and I am having a rough time with my 5 year old son

right now. We started DMSA 18 months ago under the direction of a " DAN "

doctor - it is going very slow and so about 6 weeks ago I decided to stop

it. His prophyrin test from when we first started 18 months ago is

essentially unchanged. He was taking 2 mg once daily on monday, wed,

fridays. I know this is not the AC protocol but this is the scheudle our

doctor uses.

> Now, I see HUGE regression in my son - in many areas. It did not show up

immediately but about 3 or so weeks later. I feel I should restart the dmsa

chealtion yet I feel uncomfortable doing the same schedule because it seemed

to be going to slow with him.

> Advice anyone? I would really appreciate any kind of input.

> Thank you very much.

>

[Guest guest]

200 mg is an appropriate dose for a 400-800 lb. person, but even then, not on

that dosing schedule.

S S

Re: need lots of help on DMSA chelation

Posted by: " Jani Baasch " baaschj@... janibaasch

Sat May 15, 2010 7:57 pm (PDT)

Pam,

Thanks for your input. I meant to say he takes 200 mg (not 2 mg) 3x/week.

When I asked my dan about the ac protocol he said there are lots of way to

chelate and that he was not going to get into a debate about this. I was

uncomfortable with that reply but was overwhelmed with everything and so

just accepted it.

Appreciate your help!

~Jani

[Guest guest]

WOW!

So, what kind of harm have I done doing that dose for 18 months (he is now just

40 pounds)? I feel just sick about this.

From: [mailto: ] On

Behalf Of Shepard Salzer

Sent: Sunday, May 16, 2010 9:01 AM

autism treatment

Subject: [ ] Re: need lots of help on DMSA chelation

200 mg is an appropriate dose for a 400-800 lb. person, but even then, not on

that dosing schedule.

S S

Re: need lots of help on DMSA chelation

Posted by: " Jani Baasch " baaschj@... <mailto:baaschj%40q.com> janibaasch

Sat May 15, 2010 7:57 pm (PDT)

Pam,

Thanks for your input. I meant to say he takes 200 mg (not 2 mg) 3x/week.

When I asked my dan about the ac protocol he said there are lots of way to

chelate and that he was not going to get into a debate about this. I was

uncomfortable with that reply but was overwhelmed with everything and so

just accepted it.

Appreciate your help!

~Jani

[Guest guest]

> Regression: verbal stimming (and hand stimming: palm of hand facing him and

> waving it back and forth in front of his eyes/face), non-sense words, POOR

> eye contact, difficulty holding still, some sensory seeking, some

> stuttering, high pitched sounds, excessive silliness, difficulty holding a

> conversation with him, more aggression and frustration. His poops are

> formed (occasionally a little soft at the end) and they are covered in white

> stringy/mucous stuff (I'm assuming this is yeast).

Almost all of those symptoms meant yeast here.

Dana

[Guest guest]

I am doing the AC protool contrary to what my DAN! said. I just didn't tell him

I'm doing it differently. I figure he can give me the DMSA and I feel doing AC

protocol is much safer than what her doctor suggested.

Just thought I'd throw that out there!

> > >

> > > I'm new to this board and I am having a rough time with my 5 year old son

> > right now. We started DMSA 18 months ago under the direction of a " DAN "

> > doctor - it is going very slow and so about 6 weeks ago I decided to stop

> > it. His prophyrin test from when we first started 18 months ago is

> > essentially unchanged. He was taking 2 mg once daily on monday, wed,

> > fridays. I know this is not the AC protocol but this is the scheudle our

> > doctor uses.

> > > Now, I see HUGE regression in my son - in many areas. It did not show up

> > immediately but about 3 or so weeks later. I feel I should restart the dmsa

> > chealtion yet I feel uncomfortable doing the same schedule because it seemed

> > to be going to slow with him.

> > > Advice anyone? I would really appreciate any kind of input.

> > > Thank you very much.

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

I did the same when under the care of one DAN!, but was upfront with the second

one (who was OK with it). Now, no DAN!.

Pam

> > > >

> > > > I'm new to this board and I am having a rough time with my 5 year old

son

> > > right now. We started DMSA 18 months ago under the direction of a " DAN "

> > > doctor - it is going very slow and so about 6 weeks ago I decided to stop

> > > it. His prophyrin test from when we first started 18 months ago is

> > > essentially unchanged. He was taking 2 mg once daily on monday, wed,

> > > fridays. I know this is not the AC protocol but this is the scheudle our

> > > doctor uses.

> > > > Now, I see HUGE regression in my son - in many areas. It did not show up

> > > immediately but about 3 or so weeks later. I feel I should restart the

dmsa

> > > chealtion yet I feel uncomfortable doing the same schedule because it

seemed

> > > to be going to slow with him.

> > > > Advice anyone? I would really appreciate any kind of input.

> > > > Thank you very much.

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Well Jani, I have to kick myself too because I did 8 rounds IV Ca-EDTA a year

ago....so, we both will have blue buttocks, smurf-like !!! ;-)

I still have not started AC chelation, but want to start in November, meanwhile

I am preparing my kid's body (who was so weak and disregulated after 2.5 yrs of

diahrrea, he fitted dot by dot in the disaster described by dr A. Wakefield

after MMR shots) and learning through this parent board and Andy's Amalgam

illness book. I am keeping a schematic wall to signal most important aspects and

bring me understanding because l have soooo many things in my mind ....(Like

those you see in a crime movie, when a cop is putting clues together to catch

the criminal). I am glad my answer coincides with what other experienced

parents responded, means my wall is useful! Maybe we in this group could

condense the basics in a nice color printed poster and distribute it among all

DANs before they make more mistakes!!!

Let us know how it goes with your first rounds.

Blessings

Isa

Enviado desde mi oficina móvil BlackBerry® de Telcel

[ ] Re: need lots of help on DMSA chelation

Please describe the symptoms of the regression in detail.

What are you doing for yeast?

Is he tolerating foods okay?

How are his BMs?

Is he taking any adrenal support (Adrenal Cortex Extract)?

Is he on Choline/Inositol for OCD?

Are OCD, stimming, or fears a problem?

If we know a little more, we can help you better.

Liz

>

> I'm new to this board and I am having a rough time with my 5 year old son

right now. We started DMSA 18 months ago under the direction of a " DAN "

doctor - it is going very slow and so about 6 weeks ago I decided to stop

it. His prophyrin test from when we first started 18 months ago is

essentially unchanged. He was taking 2 mg once daily on monday, wed,

fridays. I know this is not the AC protocol but this is the scheudle our

doctor uses.

> Now, I see HUGE regression in my son - in many areas. It did not show up

immediately but about 3 or so weeks later. I feel I should restart the dmsa

chealtion yet I feel uncomfortable doing the same schedule because it seemed

to be going to slow with him.

> Advice anyone? I would really appreciate any kind of input.

> Thank you very much.

>

_________________________________________________________________

http://clk.atdmt.com/UKM/go/197222280/direct/01/

Do you have a story that started on Hotmail? Tell us now

[Guest guest]

Some (not all) DAN doctor's probably wouldn't promote AC chelation - not enough

$$ in it.

> >

> > I'm new to this board and I am having a rough time with my 5 year old son

> right now. We started DMSA 18 months ago under the direction of a " DAN "

> doctor - it is going very slow and so about 6 weeks ago I decided to stop

> it. His prophyrin test from when we first started 18 months ago is

> essentially unchanged. He was taking 2 mg once daily on monday, wed,

> fridays. I know this is not the AC protocol but this is the scheudle our

> doctor uses.

> > Now, I see HUGE regression in my son - in many areas. It did not show up

> immediately but about 3 or so weeks later. I feel I should restart the dmsa

> chealtion yet I feel uncomfortable doing the same schedule because it seemed

> to be going to slow with him.

> > Advice anyone? I would really appreciate any kind of input.

> > Thank you very much.

> >

>

>

>

>

>

> _________________________________________________________________

> http://clk.atdmt.com/UKM/go/197222280/direct/01/

> Do you have a story that started on Hotmail? Tell us now

>

>

[Guest guest]

Hi Jani, lots of people use GSE but many have trouble with it too. Some other

things people use for yeast with success are: Candex, Candidaise, biotin, olive

leaf extract, coconut oil (put on food, in baked goods, etc.), oil of oregano.

You could try any of those or a combination.

Be gentle on the liver now, he has been on an improper protocol. My suggestion

is to use food-based vitamins if you can afford them, at least until he is doing

better. I use: Amla for Vit C, Megafoods Vit B complex, Megafoods Selenium/Vit

E, cod liver oil for Vit A and D, liquid ionic Zinc (Kornax brand). My son had

to recover from an awful high dose DMSA challenge as well, and it was not fun.

It is also important you try to be gentle on his gut by giving foods that are

easily digested. Cooked vegetables, homemade rice milk, coconut kefir, cultured

vegetables. Try to avoid salicylates and phenolic foods if possible till his

gut is a little better. Use digestive enzymes or maybe some Betaine HCl to help

him digest meats or for when you go out to restaurants if you do.

He is going to need a lot of magnesium. Smoothies are a great way to get

coconut kefir (live probiotics), calcium, and magnesium in him. I use a banana,

1/2 to 1 cup frozen blueberries, and some water, then I add the other stuff and

blend it. You can blend in some of the other vitamins too.

I hope that gives you some ideas for recovery from this. I am sorry your son is

going through this, it's awful. Stick around and we will take care of you

Liz

> >

> > I'm new to this board and I am having a rough time with my 5 year old son

> right now. We started DMSA 18 months ago under the direction of a " DAN "

> doctor - it is going very slow and so about 6 weeks ago I decided to stop

> it. His prophyrin test from when we first started 18 months ago is

> essentially unchanged. He was taking 2 mg once daily on monday, wed,

> fridays. I know this is not the AC protocol but this is the scheudle our

> doctor uses.

> > Now, I see HUGE regression in my son - in many areas. It did not show up

> immediately but about 3 or so weeks later. I feel I should restart the dmsa

> chealtion yet I feel uncomfortable doing the same schedule because it seemed

> to be going to slow with him.

> > Advice anyone? I would really appreciate any kind of input.

> > Thank you very much.

> >

>

>

>

>

>

>

[Guest guest]

Doesn't help to dwell on the past, just to learn from it. The best thing you

can do to undo the damage is chelate with a safe, appropriate protocol (AC).

S S

Re: need lots of help on DMSA chelation

Posted by: " Jani Baasch " baaschj@... janibaasch

Sun May 16, 2010 7:22 am (PDT)

WOW!

So, what kind of harm have I done doing that dose for 18 months (he is now just

40 pounds)? I feel just sick about this.

[Guest guest]

Liz,

Thank you so much for all you help and your wonderful suggestions - it

really helped and gave me some hope again. I know it takes time to type

that all out so thank you for your time in doing that.

I will look into where to buy those food based vitamins and get going on

that. I will try the smoothie idea too.

THANK YOU AGAIN. I feel very taken care offJ

~jani.

From: [mailto: ]

On Behalf Of Liz

Sent: Monday, May 17, 2010 12:50 AM

Subject: [ ] Re: need lots of help on DMSA chelation

Hi Jani, lots of people use GSE but many have trouble with it too. Some

other things people use for yeast with success are: Candex, Candidaise,

biotin, olive leaf extract, coconut oil (put on food, in baked goods, etc.),

oil of oregano. You could try any of those or a combination.

Be gentle on the liver now, he has been on an improper protocol. My

suggestion is to use food-based vitamins if you can afford them, at least

until he is doing better. I use: Amla for Vit C, Megafoods Vit B complex,

Megafoods Selenium/Vit E, cod liver oil for Vit A and D, liquid ionic Zinc

(Kornax brand). My son had to recover from an awful high dose DMSA challenge

as well, and it was not fun.

It is also important you try to be gentle on his gut by giving foods that

are easily digested. Cooked vegetables, homemade rice milk, coconut kefir,

cultured vegetables. Try to avoid salicylates and phenolic foods if possible

till his gut is a little better. Use digestive enzymes or maybe some Betaine

HCl to help him digest meats or for when you go out to restaurants if you

do.

He is going to need a lot of magnesium. Smoothies are a great way to get

coconut kefir (live probiotics), calcium, and magnesium in him. I use a

banana, 1/2 to 1 cup frozen blueberries, and some water, then I add the

other stuff and blend it. You can blend in some of the other vitamins too.

I hope that gives you some ideas for recovery from this. I am sorry your son

is going through this, it's awful. Stick around and we will take care of you

Liz

> >

> > I'm new to this board and I am having a rough time with my 5 year old

son

> right now. We started DMSA 18 months ago under the direction of a " DAN "

> doctor - it is going very slow and so about 6 weeks ago I decided to stop

> it. His prophyrin test from when we first started 18 months ago is

> essentially unchanged. He was taking 2 mg once daily on monday, wed,

> fridays. I know this is not the AC protocol but this is the scheudle our

> doctor uses.

> > Now, I see HUGE regression in my son - in many areas. It did not show up

> immediately but about 3 or so weeks later. I feel I should restart the

dmsa

> chealtion yet I feel uncomfortable doing the same schedule because it

seemed

> to be going to slow with him.

> > Advice anyone? I would really appreciate any kind of input.

> > Thank you very much.

> >

>

>

>

>

>

>