Guest guest Posted December 29, 2010 Report Share Posted December 29, 2010 Dear Listmates,,,, i have posted a while ago regarding my son having staring spells. he has had 3 EEGs and nothing has come up. The ped. neuro wont do a SPECT scan or MRI. If my son doesnt get a full verbal prompt he will just stand there. I have tested how long he might just stand there frozen. Today was 1/2 hour until his little sister said something to him then he moved. Otherwise he waits for a command. He has also had 3 bowel accidents at home. Almost like he is losing basic skills. He is 9 yo. we are on Round #38 of AC protocol. We have taken a month off. His ECG shows blockage in heart so were waiting for results of second ECG. Does anyone have any ideas what is going on or what I can do about it.This is so frustrating. jakes mom Quote Link to comment Share on other sites More sharing options...
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