Re: medication refusal and MRSA questions

[Guest guest]

e,

What a tough situation for you and your little guy! I actually have a

friend whose son has MRSA in his ear also. If your son won¹t take the

antibiotics see if the doctor has an injectable antibiotic that is effective

against MRSA. If not, you really have no choice but to do the IV. You¹ve

got to treat MRSA aggressively or it could spread or be fatal.

Janet R.N.

On 1/12/11 3:23 AM, " joyfulheart919 " <joyfulheart919@...> wrote:

>

>

>

>

>

> My 6 yo son has a PE tube in his right ear, it's been there for about 2 years

> now. For the past 6 months or so it has been infected on and off. When it is

> infected, it drains (a lot) of pus and fluid and smells absolutely foul. Then

> it flares his eczema on that side of his face. Other than that, he has no

> fever and not noticeable pain (he's nonverbal) though definitely this is

> irritating. The first couple times, we just let it be and it took awhile but

> eventually it cleared up. I felt the drainage was just the tube doing its job

> and other than the skin irritation and that the school was freaking out- it

> wasn't a big deal. The third time it was taking forever to heal so I broke

> down and gave him the antibiotic drops- it still took quite some time to heal

> but eventually did. The fourth time I took him to the ped so that they could

> culture the pus/fluid- turns out it was MRSA. The only antibiotic that will

> kill this bug is super strong and the taste is so terrible. I was extremely

> worried about giving this antibiotic b/c my son has hx of yeast overgrowth,

> but my fear about this bacteria so close to my son's brain won out. We gave

> the antibiotic but he refused it- we tried EVERYTHING we could think of to

> mask it, hide it in, force it down etc... He has severe food issues to begin

> with so we had limited options for hiding it. When all was said and done, I

> bet we got about half of it in. Now here we are again 6 weeks later, same

> story. Fluid/pus pouring out, the school nurse keeps calling wanting

> permission to talk to his ENT, etc.... So we went to the dr, got a new script

> for a new version at a compounding pharmacy that was only 2.5mL 2x/day. Still

> he will not take it. Now, he just doesn't trust anything we give him and he's

> more adamant than ever about his refusal. He's minimally verbal and not

> really reasonable- like I can't bribe him, he wouldn't understand. There are

> so few foods/drinks that he will actually put to his lips so I'm really at a

> loss. I have to admit, you can smell this antibiotic from across the room-

> it's really terrible. If I cannot get this med down him, the only other

> option is a 10 day IV antibiotic. Needless to say, I'm wanting to avoid that!

> The other things I haven't mentioned is that he has immune system deficiency,

> which is probably why we are where we are. He has had a recent uptick in OCD

> behaviors that makes me wonder if this is connected to the infection. Right

> now his only supps are probiotics and multivit/min.

>

> Thanks for any advice about this situation.

>

> kristine

>

>

>

>

>

[Guest guest]

How are you getting the probiotics and multi/min down him? Liquid, drink?

Some may not like this idea, but is there a capsule form that you can open and

put in some water and sugar. When I was a kid, that is how my mom got us to

swallow what few pills we took. My friend just did it for her 7 year old,

worked with no issues.

If not swallowing capsules, start working on it. Kirkman Labs has a nice small

hypoallergenic Vit C, actually lots I use are really small capsules in the

hypoallergenic series. Great little pill and inexpensive to practice getting

down capsules. Show him, how easy, fun, get others to join in.

Good luck.

Tammy

Re: [ ] medication refusal and MRSA questions

e,

What a tough situation for you and your little guy! I actually have a

friend whose son has MRSA in his ear also. If your son won¹t take the

antibiotics see if the doctor has an injectable antibiotic that is effective

against MRSA. If not, you really have no choice but to do the IV. You¹ve

got to treat MRSA aggressively or it could spread or be fatal.

Janet R.N.

On 1/12/11 3:23 AM, " joyfulheart919 " <joyfulheart919@...> wrote:

>

>

>

>

>

> My 6 yo son has a PE tube in his right ear, it's been there for about 2

years

> now. For the past 6 months or so it has been infected on and off. When it is

> infected, it drains (a lot) of pus and fluid and smells absolutely foul.

Then

> it flares his eczema on that side of his face. Other than that, he has no

> fever and not noticeable pain (he's nonverbal) though definitely this is

> irritating. The first couple times, we just let it be and it took awhile but

> eventually it cleared up. I felt the drainage was just the tube doing its

job

> and other than the skin irritation and that the school was freaking out- it

> wasn't a big deal. The third time it was taking forever to heal so I broke

> down and gave him the antibiotic drops- it still took quite some time to

heal

> but eventually did. The fourth time I took him to the ped so that they could

> culture the pus/fluid- turns out it was MRSA. The only antibiotic that will

> kill this bug is super strong and the taste is so terrible. I was extremely

> worried about giving this antibiotic b/c my son has hx of yeast overgrowth,

> but my fear about this bacteria so close to my son's brain won out. We gave

> the antibiotic but he refused it- we tried EVERYTHING we could think of to

> mask it, hide it in, force it down etc... He has severe food issues to begin

> with so we had limited options for hiding it. When all was said and done, I

> bet we got about half of it in. Now here we are again 6 weeks later, same

> story. Fluid/pus pouring out, the school nurse keeps calling wanting

> permission to talk to his ENT, etc.... So we went to the dr, got a new

script

> for a new version at a compounding pharmacy that was only 2.5mL 2x/day.

Still

> he will not take it. Now, he just doesn't trust anything we give him and

he's

> more adamant than ever about his refusal. He's minimally verbal and not

> really reasonable- like I can't bribe him, he wouldn't understand. There are

> so few foods/drinks that he will actually put to his lips so I'm really at a

> loss. I have to admit, you can smell this antibiotic from across the room-

> it's really terrible. If I cannot get this med down him, the only other

> option is a 10 day IV antibiotic. Needless to say, I'm wanting to avoid

that!

> The other things I haven't mentioned is that he has immune system

deficiency,

> which is probably why we are where we are. He has had a recent uptick in OCD

> behaviors that makes me wonder if this is connected to the infection. Right

> now his only supps are probiotics and multivit/min.

>

> Thanks for any advice about this situation.

>

> kristine

>

>

>

>

>

[Guest guest]

>>The fourth time I took him to the ped so that they could culture the

pus/fluid- turns out it was MRSA. The only antibiotic that will kill this bug

is super strong and the taste is so terrible.

Who told you that? A co-worker's wife had MRSA and had been in and out of the

hospital for a year. The doctors finally told her there was nothing more they

could do. I told her to try OLE, and it eliminated the MRSA within 30 days.

Dana

[Guest guest]

Thanks for the responses. The way we get the multi in him is in his orange

juice which I've been mixing like this for 2 years so to him, that is what OJ

tastes like. The probiotic is a little more work because it doesn't dissolve

but since it has virtually no flavor it's not bad.

They ran a sensitivity to the bacteria and it was sensitive to 2 drugs, both

which we tried and they are awful, smelly and gritty. There is no injectable or

topical. Anything that doesn't need to go through his GI system is always

preferable to me, but nothing turned up other than these two meds which are

either oral or IV (even if we did a hep lock, it's still at least 3x day and I

don't think they would do that outpatient).

I would be willing to try the OLE- where can I read about the protocol? He's

only 40lbs. Is it oral? Am I going to have the same problems with mixing it-

taste, texture, amount...etc..

> >>The fourth time I took him to the ped so that they could culture the

pus/fluid- turns out it was MRSA. The only antibiotic that will kill this bug

is super strong and the taste is so terrible.

>

>

> Who told you that? A co-worker's wife had MRSA and had been in and out of the

hospital for a year. The doctors finally told her there was nothing more they

could do. I told her to try OLE, and it eliminated the MRSA within 30 days.

>

> Dana

>

[Guest guest]

> I would be willing to try the OLE- where can I read about the protocol? He's

only 40lbs. Is it oral? Am I going to have the same problems with mixing it-

taste, texture, amount...etc..

I started with 250mg and worked up. I used capsules, but it also comes as

liquid. It does taste bad, altho it would mix well with tomato juice or

something " Italian " like spaghetti.

Dana