OT: cerebral palsy- asking for advice

[Guest guest]

Dear all,

could you possibly help with a piece of advice?

I have a friend in Ukraine, she has a 6-yo girl with a severe form of CP. The

girl was one of the two twins, the other one died in utero, and she was affected

with the infection. She does not hold her head, does not sit, does not feed

herself, has constant tremors (convulsions?), reacts to strong sounds. (The

neurologic side has a lot of similarities to severe autism, to my eye).

The mom is searching for any possible kind of help. She is not working, taking

care of the girl and bringing her to all therapies available in an Ukrainian

city. I am afraid it is not much - OT and massages. Her husband is at work day

and night. They don't have a computer (too expensive).

Would anybody know possible ways to help them?

1) are there any clinics/charitable programs in the US that would accept a kid

from overseas for a free treatment of CP? (something like Shriner's, but

Shrines's only do orthopaedic and burn treatment)

2) are there good forums for CP parents - I mean like this one, where one can

get real useful advice?

3) would you have other ideas what can be done?

Thank you so much in advance. You cannot imagine what it is to have a severely

disabled kid in Ukraine. She says, bus drivers regularly close doors in front of

her when she tries to enter with the wheelchair, and people around think it is

normal. Compared to that, it is almost heaven here...

[Guest guest]

Hello Elena....

Thinking about your friend's case brings my heart to tremble, I see so many

similar cases here too...(Mexico city) people here is usually polite and

considerate when they see someone (specially a kid) in a wheelchair, but

services are still poor and old-fashioned. For a case so severe like her

daughter, I can only think of the Masgutova's repatterning system, google it,

cerebral palsy has been her main area of work for quite some time. I am also

impressed by the work done at the Bright Minds Institute by Dr Haditti

Shankardass (spelling might be wrong) about seizures being detected and treated

in specific brain areas. I don't know if they have sponsorships, I am trying to

find that info too. There is a good video about her work in youtube.

Hoping for some relief for this family,

Isa

Enviado desde mi oficina móvil BlackBerry® de Telcel

[ ] OT: cerebral palsy- asking for advice

Dear all,

could you possibly help with a piece of advice?

I have a friend in Ukraine, she has a 6-yo girl with a severe form of CP. The

girl was one of the two twins, the other one died in utero, and she was affected

with the infection. She does not hold her head, does not sit, does not feed

herself, has constant tremors (convulsions?), reacts to strong sounds. (The

neurologic side has a lot of similarities to severe autism, to my eye).

The mom is searching for any possible kind of help. She is not working, taking

care of the girl and bringing her to all therapies available in an Ukrainian

city. I am afraid it is not much - OT and massages. Her husband is at work day

and night. They don't have a computer (too expensive).

Would anybody know possible ways to help them?

1) are there any clinics/charitable programs in the US that would accept a kid

from overseas for a free treatment of CP? (something like Shriner's, but

Shrines's only do orthopaedic and burn treatment)

2) are there good forums for CP parents - I mean like this one, where one can

get real useful advice?

3) would you have other ideas what can be done?

Thank you so much in advance. You cannot imagine what it is to have a severely

disabled kid in Ukraine. She says, bus drivers regularly close doors in front of

her when she tries to enter with the wheelchair, and people around think it is

normal. Compared to that, it is almost heaven here...

[Guest guest]

I would recommend a great Lyme Literate practitioner and go straight for

antibiotics. Lots of lyme babies are grossly physically delayed. My son was

not CP, but very physically delayed. All his physical issues resolved with

zithromax and mepron for lyme and babesia (especially mepron) and the remaining

(mostly upper body) were helped with ALA.

I know that many of Dr ' patients had previously lost the ability to walk

prior to treatment. Definitely something worth trying.

Caryn

>

> Hello Elena....

> Thinking about your friend's case brings my heart to tremble, I see so many

similar cases here too...(Mexico city) people here is usually polite and

considerate when they see someone (specially a kid) in a wheelchair, but

services are still poor and old-fashioned. For a case so severe like her

daughter, I can only think of the Masgutova's repatterning system, google it,

cerebral palsy has been her main area of work for quite some time. I am also

impressed by the work done at the Bright Minds Institute by Dr Haditti

Shankardass (spelling might be wrong) about seizures being detected and treated

in specific brain areas. I don't know if they have sponsorships, I am trying to

find that info too. There is a good video about her work in youtube.

> Hoping for some relief for this family,

> Isa

>

> Enviado desde mi oficina móvil BlackBerry® de Telcel

>

> [ ] OT: cerebral palsy- asking for advice

>

> Dear all,

>

> could you possibly help with a piece of advice?

>

> I have a friend in Ukraine, she has a 6-yo girl with a severe form of CP. The

girl was one of the two twins, the other one died in utero, and she was affected

with the infection. She does not hold her head, does not sit, does not feed

herself, has constant tremors (convulsions?), reacts to strong sounds. (The

neurologic side has a lot of similarities to severe autism, to my eye).

>

> The mom is searching for any possible kind of help. She is not working, taking

care of the girl and bringing her to all therapies available in an Ukrainian

city. I am afraid it is not much - OT and massages. Her husband is at work day

and night. They don't have a computer (too expensive).

>

> Would anybody know possible ways to help them?

>

> 1) are there any clinics/charitable programs in the US that would accept a kid

from overseas for a free treatment of CP? (something like Shriner's, but

Shrines's only do orthopaedic and burn treatment)

>

> 2) are there good forums for CP parents - I mean like this one, where one can

get real useful advice?

>

> 3) would you have other ideas what can be done?

>

> Thank you so much in advance. You cannot imagine what it is to have a severely

disabled kid in Ukraine. She says, bus drivers regularly close doors in front of

her when she tries to enter with the wheelchair, and people around think it is

normal. Compared to that, it is almost heaven here...

>

>

>

>

>

[Guest guest]

Hello, Elena,

There is a forum in

Russian:http://autism.forum2x2.ru/index.htm?sid=1648c78f42197332b28132c2a83c951d

..

Some children are CP on that forum, and you can meet very knowledgeble mothers

there. 

Best regards,

Asem

 

From: isaguzmandiaz2@... <isaguzmandiaz2@...>

Subject: Re: [ ] OT: cerebral palsy- asking for advice

Date: Friday, August 27, 2010, 10:26 AM

Hello Elena....

Thinking about your friend's case brings my heart to tremble, I see so many

similar cases here too...(Mexico city) people here is usually polite and

considerate when they see someone (specially a kid) in a wheelchair, but

services are still poor and old-fashioned.  For a case so severe like her

daughter, I can only think of the Masgutova's repatterning system, google it,

cerebral palsy has been her main area of work for quite some time.  I am also

impressed by the work done at the Bright Minds Institute by Dr Haditti

Shankardass (spelling might be wrong) about seizures being detected and treated

in specific brain areas.  I don't know if they have sponsorships, I am trying to

find that info too.  There is a good video about her work in youtube.

Hoping for some relief for this family,

Isa

Enviado desde mi oficina móvil BlackBerry® de Telcel

[ ] OT: cerebral palsy- asking for advice

Dear all,

could you possibly help with a piece of advice?

I have a friend in Ukraine, she has a 6-yo girl with a severe form of CP. The

girl was one of the two twins, the other one died in utero, and she was affected

with the infection. She does not hold her head, does not sit, does not feed

herself, has constant tremors (convulsions?), reacts to strong sounds. (The

neurologic side has a lot of similarities to severe autism, to my eye).

The mom is searching for any possible kind of help. She is not working, taking

care of the girl and bringing her to all therapies available in an Ukrainian

city. I am afraid it is not much - OT and massages. Her husband is at work day

and night. They don't have a computer (too expensive).

Would anybody know possible ways to help them?

1) are there any clinics/charitable programs in the US that would accept a kid

from overseas for a free treatment of CP? (something like Shriner's, but

Shrines's only do orthopaedic and burn treatment)

2) are there good forums for CP parents - I mean like this one, where one can

get real useful advice?

3) would you have other ideas what can be done?

Thank you so much in advance. You cannot imagine what it is to have a severely

disabled kid in Ukraine. She says, bus drivers regularly close doors in front of

her when she tries to enter with the  wheelchair, and people around think it is

normal. Compared to that, it is almost heaven here...

[Guest guest]

Hello Asem,

thanks a lot! It is a great site.

E.

>

>

> From: isaguzmandiaz2@... <isaguzmandiaz2@...>

> Subject: Re: [ ] OT: cerebral palsy- asking for advice

>

> Date: Friday, August 27, 2010, 10:26 AM

>

>

> Hello Elena....

> Thinking about your friend's case brings my heart to tremble, I see so many

similar cases here too...(Mexico city) people here is usually polite and

considerate when they see someone (specially a kid) in a wheelchair, but

services are still poor and old-fashioned.  For a case so severe like her

daughter, I can only think of the Masgutova's repatterning system, google it,

cerebral palsy has been her main area of work for quite some time.  I am also

impressed by the work done at the Bright Minds Institute by Dr Haditti

Shankardass (spelling might be wrong) about seizures being detected and treated

in specific brain areas.  I don't know if they have sponsorships, I am trying to

find that info too.  There is a good video about her work in youtube.

> Hoping for some relief for this family,

> Isa

>

> Enviado desde mi oficina móvil BlackBerry® de Telcel

>

> [ ] OT: cerebral palsy- asking for advice

>

> Dear all,

>

> could you possibly help with a piece of advice?

>

> I have a friend in Ukraine, she has a 6-yo girl with a severe form of CP. The

girl was one of the two twins, the other one died in utero, and she was affected

with the infection. She does not hold her head, does not sit, does not feed

herself, has constant tremors (convulsions?), reacts to strong sounds. (The

neurologic side has a lot of similarities to severe autism, to my eye).

>

> The mom is searching for any possible kind of help. She is not working, taking

care of the girl and bringing her to all therapies available in an Ukrainian

city. I am afraid it is not much - OT and massages. Her husband is at work day

and night. They don't have a computer (too expensive).

>

> Would anybody know possible ways to help them?

>

> 1) are there any clinics/charitable programs in the US that would accept a kid

from overseas for a free treatment of CP? (something like Shriner's, but

Shrines's only do orthopaedic and burn treatment)

>

> 2) are there good forums for CP parents - I mean like this one, where one can

get real useful advice?

>

> 3) would you have other ideas what can be done?

>

> Thank you so much in advance. You cannot imagine what it is to have a severely

disabled kid in Ukraine. She says, bus drivers regularly close doors in front of

her when she tries to enter with the  wheelchair, and people around think it is

normal. Compared to that, it is almost heaven here...

>

>

>

>

>

[Guest guest]

Hello Isa,

thanks a lot for the info! I am now researching both repatterning and the Bright

Minds Institute for my friend. Thanks again!

Elena

>

> Hello Elena....

> Thinking about your friend's case brings my heart to tremble, I see so many

similar cases here too...(Mexico city) people here is usually polite and

considerate when they see someone (specially a kid) in a wheelchair, but

services are still poor and old-fashioned. For a case so severe like her

daughter, I can only think of the Masgutova's repatterning system, google it,

cerebral palsy has been her main area of work for quite some time. I am also

impressed by the work done at the Bright Minds Institute by Dr Haditti

Shankardass (spelling might be wrong) about seizures being detected and treated

in specific brain areas. I don't know if they have sponsorships, I am trying to

find that info too. There is a good video about her work in youtube.

> Hoping for some relief for this family,

> Isa

>

> Enviado desde mi oficina móvil BlackBerry® de Telcel

>

> [ ] OT: cerebral palsy- asking for advice

>

> Dear all,

>

> could you possibly help with a piece of advice?

>

> I have a friend in Ukraine, she has a 6-yo girl with a severe form of CP. The

girl was one of the two twins, the other one died in utero, and she was affected

with the infection. She does not hold her head, does not sit, does not feed

herself, has constant tremors (convulsions?), reacts to strong sounds. (The

neurologic side has a lot of similarities to severe autism, to my eye).

>

> The mom is searching for any possible kind of help. She is not working, taking

care of the girl and bringing her to all therapies available in an Ukrainian

city. I am afraid it is not much - OT and massages. Her husband is at work day

and night. They don't have a computer (too expensive).

>

> Would anybody know possible ways to help them?

>

> 1) are there any clinics/charitable programs in the US that would accept a kid

from overseas for a free treatment of CP? (something like Shriner's, but

Shrines's only do orthopaedic and burn treatment)

>

> 2) are there good forums for CP parents - I mean like this one, where one can

get real useful advice?

>

> 3) would you have other ideas what can be done?

>

> Thank you so much in advance. You cannot imagine what it is to have a severely

disabled kid in Ukraine. She says, bus drivers regularly close doors in front of

her when she tries to enter with the wheelchair, and people around think it is

normal. Compared to that, it is almost heaven here...

>

>

>

>

>

[Guest guest]

hi, she might want to use australian bush flower essences--there are specific

blends/essences for low tone, neurologic stuff, etc, esp for kids. There's a

book Happy Healthy Kids by Ian White. It's something you can do at home and if

you have the whole kit you can work wonders without any help. I do know a lady

who consults too--she's our go-to lady. She knows more than I can learn, but

really you can do it yourself once you've studied the two or three books. Just a

suggestion--not to substitute for other stuff, but boy can it support the

transformation. There's a group abfestudy and a site to order: abfeusa.com.

I'd start with sundew and cognis plus and electro essence (electro works on

nerves and neurological stuff, I've found). You can dab it on temples, don't

need to have them take it.

best wishes,

Fiona

>

> Dear all,

>

> could you possibly help with a piece of advice?

>

> I have a friend in Ukraine, she has a 6-yo girl with a severe form of CP. The

girl was one of the two twins, the other one died in utero, and she was affected

with the infection. She does not hold her head, does not sit, does not feed

herself, has constant tremors (convulsions?), reacts to strong sounds. (The

neurologic side has a lot of similarities to severe autism, to my eye).

>

> The mom is searching for any possible kind of help. She is not working, taking

care of the girl and bringing her to all therapies available in an Ukrainian

city. I am afraid it is not much - OT and massages. Her husband is at work day

and night. They don't have a computer (too expensive).

>

> Would anybody know possible ways to help them?

>

> 1) are there any clinics/charitable programs in the US that would accept a kid

from overseas for a free treatment of CP? (something like Shriner's, but

Shrines's only do orthopaedic and burn treatment)

>

> 2) are there good forums for CP parents - I mean like this one, where one can

get real useful advice?

>

> 3) would you have other ideas what can be done?

>

> Thank you so much in advance. You cannot imagine what it is to have a severely

disabled kid in Ukraine. She says, bus drivers regularly close doors in front of

her when she tries to enter with the wheelchair, and people around think it is

normal. Compared to that, it is almost heaven here...

>