Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Comments intersped.... I really need some advice from some parents who have been down this road for some time. My kids have pandas and are therefore on prophylactic antibiotics (zithro, once a week). We are on a vicious cycle of yeast and bacteria (namely, klebsiella). I believe the ABX can keep you in this vicious cycle for time on... While it is keeping the pandas under control, the GI flora is swept away every time by the ABX. I know it isn't fun, but every time I have to use ABX, I prefer IM administration so the GI tract is spared from direct exposition... If your kids are officially dxd w pandas, would your insurance pay for IVIG? Or ever considered using Zhang's herbs? Like artemisiae or houttuynia? Great against strep but must be used with care , they are very strong. Our dan doc prefers the use of diflucan and vancomycin and high dose probiotics to control it. But I find that I have to use BOTH diflucan and vanco, otherwise I get control of one and the other one flares. Not so uncommon, I know. Doesn't seem to me uncommon at all either, yeast and klebsiella are opportunistic and if the GI flora is weak they will always keep coming back... The same happens w clostridia, often times when you treat yeast, clostridia flares. It is also related to the HM toxicity, this bugs stick when in proper environment, if you sTart treating HM toxicity they might get worse for a time, and when the soil is not as fertile (acid) for them, they will eventually start to weaken, along w proper treatment. Try to boost their immune system too, it shall help. But what do I do now? We are about 1 week into vanco/diflucan and I am wondering if, when we are done with this round, I should just have my son on a permanent rotation of antimicrobials? I mean, it seems like this negates the point of the high dose probiotics, doesn't it? Not necessarily, you give the probiotics hours away from antimicrobials/ABX so that they can really colonize the GI tract. I am weary of ABX and necessary as they might sometimes be, I would never do them w/o high dose probiotics. What probiotics are you giving? What is their diet? I was thinking about the following (4 days of each): Uva Ursi, Olive Leaf Extract, Oil of Oregano. I came up with this on my own b/c each seems to have antimicrobial action against strep, yeast and bacteria. Is this a sound plan? Am I missing something? I think having a good enzyme on board to avoid phenol issues could be helpful, all the a.m can cause phenol sensitive kids to go wacko. Since all of this can cause die-off, I would also add a good toxin-excretion supporter and liver support, for liver, slippery elm, castor oil packs, to aide with toxin excretion, activated charcoal at midnight (I know, more work), L-citrulline, burbur and electrolyte water to keep proper hydration and toxins moving out. Is there really any way to stabalize these kids while on zithromax? I mean should I just stop the zithro and rely on the natural antimicrobials to prevent strep? Will that work? I wouldn't stop abruptly, rather try to see how they work independently and if you see + or - then try to reduce the ABX slowly. Enviado desde mi oficina móvil BlackBerry® de Telcel [ ] Xpost: How do I balance the tx of PANDAS, yeast and bacteria? Vicious cycle!! I really need some advice from some parents who have been down this road for some time. My kids have pandas and are therefore on prophylactic antibiotics (zithro, once a week). We are on a vicious cycle of yeast and bacteria (namely, klebsiella). Our dan doc prefers the use of diflucan and vancomycin and high dose probiotics to control it. But I find that I have to use BOTH diflucan and vanco, otherwise I get control of one and the other one flares. Not so uncommon, I know. But what do I do now? We are about 1 week into vanco/diflucan and I am wondering if, when we are done with this round, I should just have my son on a permanent rotation of antimicrobials? I mean, it seems like this negates the point of the high dose probiotics, doesn't it? I was thinking about the following (4 days of each): Uva Ursi, Olive Leaf Extract, Oil of Oregano. I came up with this on my own b/c each seems to have antimicrobial action against strep, yeast and bacteria. Is this a sound plan? Am I missing something? Is there really any way to stabalize these kids while on zithromax? I mean should I just stop the zithro and rely on the natural antimicrobials to prevent strep? Will that work? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 I actually wondered about IM ABX as well. I was thinking that would be the best route. When I asked this question of my DAN dr-he said if the ABX are killing something in the gut then the IM shot doesn't do it. So I guess it depends on what you are trying to do. SHannon > > Comments intersped.... > > I really need some advice from some parents who have been down this road for some time. My kids have pandas and are therefore on prophylactic antibiotics (zithro, once a week). We are on a vicious cycle of yeast and bacteria (namely, klebsiella). > > I believe the ABX can keep you in this vicious cycle for time on... While it is keeping the pandas under control, the GI flora is swept away every time by the ABX. I know it isn't fun, but every time I have to use ABX, I prefer IM administration so the GI tract is spared from direct exposition... > If your kids are officially dxd w pandas, would your insurance pay for IVIG? Or ever considered using Zhang's herbs? Like artemisiae or houttuynia? Great against strep but must be used with care , they are very strong. > > > Our dan doc prefers the use of diflucan and vancomycin and high dose probiotics to control it. But I find that I have to use BOTH diflucan and vanco, otherwise I get control of one and the other one flares. Not so uncommon, I know. > > Doesn't seem to me uncommon at all either, yeast and klebsiella are opportunistic and if the GI flora is weak they will always keep coming back... The same happens w clostridia, often times when you treat yeast, clostridia flares. It is also related to the HM toxicity, this bugs stick when in proper environment, if you sTart treating HM toxicity they might get worse for a time, and when the soil is not as fertile (acid) for them, they will eventually start to weaken, along w proper treatment. Try to boost their immune system too, it shall help. > > But what do I do now? We are about 1 week into vanco/diflucan and I am wondering if, when we are done with this round, I should just have my son on a permanent rotation of antimicrobials? I mean, it seems like this negates the point of the high dose probiotics, doesn't it? > > Not necessarily, you give the probiotics hours away from antimicrobials/ABX so that they can really colonize the GI tract. > I am weary of ABX and necessary as they might sometimes be, I would never do them w/o high dose probiotics. What probiotics are you giving? > What is their diet? > > > I was thinking about the following (4 days of each): Uva Ursi, Olive Leaf Extract, Oil of Oregano. I came up with this on my own b/c each seems to have antimicrobial action against strep, yeast and bacteria. Is this a sound plan? Am I missing something? > > I think having a good enzyme on board to avoid phenol issues could be helpful, all the a.m can cause phenol sensitive kids to go wacko. > Since all of this can cause die-off, I would also add a good toxin-excretion supporter and liver support, for liver, slippery elm, castor oil packs, to aide with toxin excretion, activated charcoal at midnight (I know, more work), L-citrulline, burbur and electrolyte water to keep proper hydration and toxins moving out. > > Is there really any way to stabalize these kids while on zithromax? I mean should I just stop the zithro and rely on the natural antimicrobials to prevent strep? Will that work? > I wouldn't stop abruptly, rather try to see how they work independently and if you see + or - then try to reduce the ABX slowly. > > > > Enviado desde mi oficina móvil BlackBerry® de Telcel > > [ ] Xpost: How do I balance the tx of PANDAS, yeast and bacteria? Vicious cycle!! > > I really need some advice from some parents who have been down this road for some time. My kids have pandas and are therefore on prophylactic antibiotics (zithro, once a week). We are on a vicious cycle of yeast and bacteria (namely, klebsiella). Our dan doc prefers the use of diflucan and vancomycin and high dose probiotics to control it. But I find that I have to use BOTH diflucan and vanco, otherwise I get control of one and the other one flares. Not so uncommon, I know. But what do I do now? We are about 1 week into vanco/diflucan and I am wondering if, when we are done with this round, I should just have my son on a permanent rotation of antimicrobials? I mean, it seems like this negates the point of the high dose probiotics, doesn't it? > > I was thinking about the following (4 days of each): Uva Ursi, Olive Leaf Extract, Oil of Oregano. I came up with this on my own b/c each seems to have antimicrobial action against strep, yeast and bacteria. Is this a sound plan? Am I missing something? > > Is there really any way to stabalize these kids while on zithromax? I mean should I just stop the zithro and rely on the natural antimicrobials to prevent strep? Will that work? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Stick with natural yeast fighters and chelate, worry about PANDAS/viral stuff later. Chelation can resolve these things without the need for all the " extras " (antibiotics/antivirals/etc). The fact that you say you are on a vicious cycle of yeast and bacteria means to me that your children are intolerant of either food(s) or supplement(s) that you have not identified. Or maybe you are fighting a battle that cannot be won because of the environment! (bacteria/virus/parasite living in cal/mag/iron rich environment because lead/aluminum/mercury displaced them and they remain displaced!) Do you see now how chelation ONLY could resolve this? In my experience if there is chronic yeast, it is best to take away and keep taking away until you see improvement...THEN you can do a trial of adding a new supplement one at a time. Good luck, Liz > > I really need some advice from some parents who have been down this road for some time. My kids have pandas and are therefore on prophylactic antibiotics (zithro, once a week). We are on a vicious cycle of yeast and bacteria (namely, klebsiella). Our dan doc prefers the use of diflucan and vancomycin and high dose probiotics to control it. But I find that I have to use BOTH diflucan and vanco, otherwise I get control of one and the other one flares. Not so uncommon, I know. But what do I do now? We are about 1 week into vanco/diflucan and I am wondering if, when we are done with this round, I should just have my son on a permanent rotation of antimicrobials? I mean, it seems like this negates the point of the high dose probiotics, doesn't it? > > I was thinking about the following (4 days of each): Uva Ursi, Olive Leaf Extract, Oil of Oregano. I came up with this on my own b/c each seems to have antimicrobial action against strep, yeast and bacteria. Is this a sound plan? Am I missing something? > > Is there really any way to stabalize these kids while on zithromax? I mean should I just stop the zithro and rely on the natural antimicrobials to prevent strep? Will that work? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 I have to disagree w your DAN.... If I understand it right, in this case the treating Dr is prescribing the ABX for Pandas first of all, and pandas is a systemic infection, not based in the gut. As for the klebsiella, it is a bacterial infection, klebsiella can be found practically everywhere.... It is very opportunistic, thus I mentioned I believe it is very important to boost the IS. I also think Vanco is a very strong medication and I would think the treating MD has used other methods before grabbing to this last retort. Prolonged use of vanco can induce severe candida and encourage the growth of more dangerous resistant bacteria, such as C difficils. My personal experience having a gut kid who suffered diarrhea for 2.5 yrs, is that ABX did nothing but worsen the situation for him. It was a radical change in his diet, the use of raw plant oils and essential oils (like cinnamon, coconut oil, clove, geranium, lime and orange oils), BIG doses of probiotics, that allowed me to now have a potty-trained kid, not ABX. When I was using ABxs, the more I used them, the more different pathogens came back in his tests, switching from one drug to another only to get a new unwanted host announce itself, he showed + for klebsiella, candida, proteus, e.coli, you name it... It is my humble opinion, that no matter how much ABxs you throw into a kid's tummy, if the good bugs are not rescued and strengthened first, and the body gets detoxified, the bad guys will keep coming back...and oral ABx will support the bad guys as is. Oh, I do understand sometimes there is no way around, I just mean, if you can do it some other way, I feel it is better. I also think keeping this bad bugs under control is important to avoid a crisis, but I also believe that none of this will be independently solved as long as the kids are so toxic. Just my 0.02 Isa Enviado desde mi oficina móvil BlackBerry® de Telcel [ ] Xpost: How do I balance the tx of PANDAS, yeast and bacteria? Vicious cycle!! > > I really need some advice from some parents who have been down this road for some time. My kids have pandas and are therefore on prophylactic antibiotics (zithro, once a week). We are on a vicious cycle of yeast and bacteria (namely, klebsiella). Our dan doc prefers the use of diflucan and vancomycin and high dose probiotics to control it. But I find that I have to use BOTH diflucan and vanco, otherwise I get control of one and the other one flares. Not so uncommon, I know. But what do I do now? We are about 1 week into vanco/diflucan and I am wondering if, when we are done with this round, I should just have my son on a permanent rotation of antimicrobials? I mean, it seems like this negates the point of the high dose probiotics, doesn't it? > > I was thinking about the following (4 days of each): Uva Ursi, Olive Leaf Extract, Oil of Oregano. I came up with this on my own b/c each seems to have antimicrobial action against strep, yeast and bacteria. Is this a sound plan? Am I missing something? > > Is there really any way to stabalize these kids while on zithromax? I mean should I just stop the zithro and rely on the natural antimicrobials to prevent strep? Will that work? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 ----- Original Message ----- From: stephanieweeks@... ====>Are you chelating? We had chelated for about a year and a half before the Zithromax and did not have the seesaw yeast/bacteria cycle. You will never get rid of any of the problems completely until you remove enough of the metals so that the immune system can help. So the answer to stabilization is removing the metals, which yeast/bacteria/Zithromax treatment will not do. I really need some advice from some parents who have been down this road for some time. My kids have pandas and are therefore on prophylactic antibiotics (zithro, once a week). We are on a vicious cycle of yeast and bacteria (namely, klebsiella). Our dan doc prefers the use of diflucan and vancomycin and high dose probiotics to control it. But I find that I have to use BOTH diflucan and vanco, otherwise I get control of one and the other one flares. Not so uncommon, I know. But what do I do now? We are about 1 week into vanco/diflucan and I am wondering if, when we are done with this round, I should just have my son on a permanent rotation of antimicrobials? I mean, it seems like this negates the point of the high dose probiotics, doesn't it? I was thinking about the following (4 days of each): Uva Ursi, Olive Leaf Extract, Oil of Oregano. I came up with this on my own b/c each seems to have antimicrobial action against strep, yeast and bacteria. Is this a sound plan? Am I missing something? Is there really any way to stabalize these kids while on zithromax? I mean should I just stop the zithro and rely on the natural antimicrobials to prevent strep? Will that work? Quote Link to comment Share on other sites More sharing options...
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