Re: URGENT - CHILD HAVING SEIZURES update

May 4, 2010

Thanks everyone for all of your help and suggestions.

I have passed on all of the info and contacts sent to me to the Mom and she is

very grateful for the support. Very scary for the family to have this happen so

far away from home and their support network. The only update I have is that her

son has had the breathing tube removed, but still not out of the woods as of the

last contact.

Still, they have a lot more to work with now, compared to yesterday.

Thanks again,

Jen

>

> A friend is in Orlando Florida on vacation from Canada and her small son. He

was rushed to the hospital today having seizures. They were visiting universal

studios when they noticed he was unresponsive and quite pale. Mom tried to feed

him some GFCF chocolate and he wouldn't respond and was drooling, then " fell

asleep " . When they got him to the hospital the Dr's said he was seizing so they

gave him an anticonvulsant. They did a CAT scan, blood work and even a spinal

puncture and haven't found anything. They are helping him to breath with a tube

and they said he's had 2- 3 minute seizures and 1 about 40 seconds...until last

I have heard - 8pm pacific. He has IV Ativan, fentalyn, mivf? ..that's what Mom

saw written in the machines. They have scheduled MRI and EEG for early in the

morning tomorrow. He was playing in a water park when this happened...he was

under a water spout for some 10-15 min...when they noticed he was standing too

still....

> The family is quite far from home and understandably very scared.

>

> Does anyone know a conpetent Dr. or Neuro in the area of Orlando?

> Are the meds being given safe for her autistic son?

> Any help, advice or info would be greatly appreciated.

> If you email me, I can pass it along to the Mom.

>

> Thanks,

>

> Jen

>

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