Re: Irene--Turning a corner: thoughts on amazing gains and the AC protocol

[Guest guest]

Thank you Irene and Maya for hope--Did you all get the gut healed first??

________________________________

From: iflow97 <iflow97@...>

Sent: Sat, August 28, 2010 7:25:04 AM

Subject: [ ] Re: Turning a corner: thoughts on amazing gains and

the AC protocol

 

Hi Maya - I can't believe you are at round 66- I remember when you were posting

and were worried about starting round 1! Do not despair - we did not have

conversation beyond wants and needs until recently. Same with understanding. My

son just turned a corner all of a sudden in these two areas. Just keep plugging

away - you never know when the next round will be the ONE, where you will turn

that corner as well. Whenever I would get tired and depressed and consider other

interventions or EEGs or whatever, my husband would say, just keep going, he

just needs more chelation.(easy for him to say since I am the one getting up at

night every weekend for the last two years of course) Wouldn't you know though,

he had to be right....

Irene

5 year old, 97 rounds

> >

> > I posted on this on another forum. I apologize for the length. But I think

my

>experience with my son, bears posting here as well, to give hope and

>encouragement to those just starting out and to those perhaps further along who

>are in a stall or have hit a bump with the AC protocol.

> >

> > My son is 5 now. We are coming up on round 96. We have been doing the AC

>protocol for 2 years. My son got 26 shots in his first 18 months of life,

>including several flu shots and one in utero. My boy lost his skills starting

>with a Hep A shot at age one, and with all the ensuing shots down to age 18

>months, before we stopped the madness. My boy was loaded with metals, needless

>to say and was in a terrible way. Early Intervention in our state came in at 19

>months and intimated we were dealing with a case of severe autism. We got an

>appt with a neurodevelopmental ped - but that appt we had to wait 6 months for.

>During this time we discovered biomed - started gfcf, omega 3 oils, yeast

>fighters and probiotics. By the time of our appt, we got a dx of high

>functioning PDD-nos. Whatever, labels meant nothing - my boy was vax injured.

>His gut was still a mess and he could not function or communicate properly. For

>the first several rounds of dmsa we saw lots of gains. Then we added ALA - this

>was very tough, stressed his adrenals out, and we could only give him 3mg or so

>for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 long,

long

>months where there was even regression. We tried everything people tout here as

>miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, gingko,, b

>vites, you name it. Nothing worked or mattered. We persevered. By round 50 we

>were able to up ALA and were at more weight appropriate doses. We saw some

>satisfying gains, then nothing for a few months. At round 66 we saw some good

>gains again, then nothing.

> >

> > At this time my son's gut was basically healing - no more yeast or parasites

>for months, formed stools, he could eat many things, corn eggs, some dairy,

etc,

>and he loved to try lots of new foods. His seasonal allergies were gone and

food

>allergies starting to abate. Still he spoke like a cave man and had limited

>receptive understanding. Cognition lagged way behind. We just kept chelating.

My

>dh and I went round and round on whether an EEG was necessary. My dh said no,

no

>EEGS or Pharma rx meds, lets just chelate and eventually we will have enough

>rounds and it will get better. He prevailed and we waited.

>

> >

> > In the last 2 weeks it is like someone flipped a switch. My son talks, and

>talks and talks, and seems to understand everything. He plays word games, makes

>jokes. He seems to be 100% present for the first time in his life. The teacher

>reports he greets peers and plays with them on the playground instead of merely

>running around the perimeter as is his habit. He is by no means recovered or

age

>appropriate yet - but he is starting to be on his way there. It is like he

can't

>tell me enough things - like he is uncorked or something. The other night he

>would not go to sleep, it was 11 pm and he is a good sleeper. He had a place

mat

>with the presidents on it and he was hell bent on showing me that he knew all

>their names from Washington onward. He even told me, " you know,

>Washington even has his own bridge. " I almost fell over laughing. I finally

>uttered words I thought I would never say, but I had to... " sweetie, please be

>quiet, stop talking, it is time to go to sleep. " We have done nothing really,

>other than what we have for the last 2 years. In fact, we have recently lowered

>all of his supplements considerably. He takes nothing but the most basic mins

>and vites, a few amino acids, liver support, fish oils, antioxidants, and

>probiotics. I even hesitated to post this, for fear of jinxing it somehow.

>

> >

> > I posted this basically to say, there is one miracle supplement only in my

>view: AC chelation - dmsa and ala, week after week, after tedious sleepless

>week. To anyone doubting it or having a hard time of it, do not give up! We

have

>had stall after stall and regression, and at times I wanted to throw in the

>towel, thinking my boy is damaged beyond repair. But with the support of people

>here on the boards and Andy, and my spouse, we just forged on, and on and on.

>And I believe we have another 200 rounds to go, for full recovery. But I

believe

>in my heart it is truly possible. We have only one child, and for the first

>time, I feel his presence, his true presence as another person with opinions

and

>ideas, fully present living in our house. It is a beautiful thing.

>

> >

> > I want to close my post with an inspirational saying my late mother, a

>relentless optimist, kept by her bed side even as she lay dying of breast

>cancer:

>

> >

> > Keep your heart open to dreams, for as long as there is a dream, there is

>hope, and as long as there is hope, there is joy in living.

> >

> > She lived this and believed this, and she was very right. I have hope, and

>joy now.

> >

> > Irene

> > 5 year old, 95 rounds

> >

>

[Guest guest]

There is no need to " heal the gut " before you start chelating. Attempting that

only delays the start of chelation.

> > >

> > > I posted on this on another forum. I apologize for the length. But I think

my

> >experience with my son, bears posting here as well, to give hope and

> >encouragement to those just starting out and to those perhaps further along

who

> >are in a stall or have hit a bump with the AC protocol.

> > >

> > > My son is 5 now. We are coming up on round 96. We have been doing the AC

> >protocol for 2 years. My son got 26 shots in his first 18 months of life,

> >including several flu shots and one in utero. My boy lost his skills starting

> >with a Hep A shot at age one, and with all the ensuing shots down to age 18

> >months, before we stopped the madness. My boy was loaded with metals,

needless

> >to say and was in a terrible way. Early Intervention in our state came in at

19

> >months and intimated we were dealing with a case of severe autism. We got an

> >appt with a neurodevelopmental ped - but that appt we had to wait 6 months

for.

> >During this time we discovered biomed - started gfcf, omega 3 oils, yeast

> >fighters and probiotics. By the time of our appt, we got a dx of high

> >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax injured.

> >His gut was still a mess and he could not function or communicate properly.

For

> >the first several rounds of dmsa we saw lots of gains. Then we added ALA -

this

> >was very tough, stressed his adrenals out, and we could only give him 3mg or

so

> >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 long,

long

> >months where there was even regression. We tried everything people tout here

as

> >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, gingko,,

b

> >vites, you name it. Nothing worked or mattered. We persevered. By round 50 we

> >were able to up ALA and were at more weight appropriate doses. We saw some

> >satisfying gains, then nothing for a few months. At round 66 we saw some good

> >gains again, then nothing.

> > >

> > > At this time my son's gut was basically healing - no more yeast or

parasites

> >for months, formed stools, he could eat many things, corn eggs, some dairy,

etc,

> >and he loved to try lots of new foods. His seasonal allergies were gone and

food

> >allergies starting to abate. Still he spoke like a cave man and had limited

> >receptive understanding. Cognition lagged way behind. We just kept chelating.

My

> >dh and I went round and round on whether an EEG was necessary. My dh said no,

no

> >EEGS or Pharma rx meds, lets just chelate and eventually we will have enough

> >rounds and it will get better. He prevailed and we waited.

> >

> > >

> > > In the last 2 weeks it is like someone flipped a switch. My son talks, and

> >talks and talks, and seems to understand everything. He plays word games,

makes

> >jokes. He seems to be 100% present for the first time in his life. The

teacher

> >reports he greets peers and plays with them on the playground instead of

merely

> >running around the perimeter as is his habit. He is by no means recovered or

age

> >appropriate yet - but he is starting to be on his way there. It is like he

can't

> >tell me enough things - like he is uncorked or something. The other night he

> >would not go to sleep, it was 11 pm and he is a good sleeper. He had a place

mat

> >with the presidents on it and he was hell bent on showing me that he knew all

> >their names from Washington onward. He even told me, " you know,

> >Washington even has his own bridge. " I almost fell over laughing. I finally

> >uttered words I thought I would never say, but I had to... " sweetie, please be

> >quiet, stop talking, it is time to go to sleep. " We have done nothing really,

> >other than what we have for the last 2 years. In fact, we have recently

lowered

> >all of his supplements considerably. He takes nothing but the most basic mins

> >and vites, a few amino acids, liver support, fish oils, antioxidants, and

> >probiotics. I even hesitated to post this, for fear of jinxing it somehow.

> >

> > >

> > > I posted this basically to say, there is one miracle supplement only in my

> >view: AC chelation - dmsa and ala, week after week, after tedious sleepless

> >week. To anyone doubting it or having a hard time of it, do not give up! We

have

> >had stall after stall and regression, and at times I wanted to throw in the

> >towel, thinking my boy is damaged beyond repair. But with the support of

people

> >here on the boards and Andy, and my spouse, we just forged on, and on and on.

> >And I believe we have another 200 rounds to go, for full recovery. But I

believe

> >in my heart it is truly possible. We have only one child, and for the first

> >time, I feel his presence, his true presence as another person with opinions

and

> >ideas, fully present living in our house. It is a beautiful thing.

> >

> > >

> > > I want to close my post with an inspirational saying my late mother, a

> >relentless optimist, kept by her bed side even as she lay dying of breast

> >cancer:

> >

> > >

> > > Keep your heart open to dreams, for as long as there is a dream, there is

> >hope, and as long as there is hope, there is joy in living.

> > >

> > > She lived this and believed this, and she was very right. I have hope, and

> >joy now.

> > >

> > > Irene

> > > 5 year old, 95 rounds

> > >

> >

>

>

>

>

>

>

>

>

[Guest guest]

There is a lot of difference of opinion on this.  At several DAN! conferences

several of the docs have said to heal the gut as much as possible first so that

metals don't get reabsorbed and redistributed.  I suppose it depends on how

really damaged the gut is.

nancy j

a child is diagnosed with

asd every 20 seconds

From: ideals04 <ideals04@...>

Subject: [ ] Re: Irene--Turning a corner: thoughts on amazing gains

and the AC protocol

Date: Saturday, August 28, 2010, 10:44 AM

 

There is no need to " heal the gut " before you start chelating. Attempting

that only delays the start of chelation.

> > >

> > > I posted on this on another forum. I apologize for the length. But I think

my

> >experience with my son, bears posting here as well, to give hope and

> >encouragement to those just starting out and to those perhaps further along

who

> >are in a stall or have hit a bump with the AC protocol.

> > >

> > > My son is 5 now. We are coming up on round 96. We have been doing the AC

> >protocol for 2 years. My son got 26 shots in his first 18 months of life,

> >including several flu shots and one in utero. My boy lost his skills starting

> >with a Hep A shot at age one, and with all the ensuing shots down to age 18

> >months, before we stopped the madness. My boy was loaded with metals,

needless

> >to say and was in a terrible way. Early Intervention in our state came in at

19

> >months and intimated we were dealing with a case of severe autism. We got an

> >appt with a neurodevelopmental ped - but that appt we had to wait 6 months

for.

> >During this time we discovered biomed - started gfcf, omega 3 oils, yeast

> >fighters and probiotics. By the time of our appt, we got a dx of high

> >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax injured.

> >His gut was still a mess and he could not function or communicate properly.

For

> >the first several rounds of dmsa we saw lots of gains. Then we added ALA -

this

> >was very tough, stressed his adrenals out, and we could only give him 3mg or

so

> >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 long,

long

> >months where there was even regression. We tried everything people tout here

as

> >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, gingko,,

b

> >vites, you name it. Nothing worked or mattered. We persevered. By round 50 we

> >were able to up ALA and were at more weight appropriate doses. We saw some

> >satisfying gains, then nothing for a few months. At round 66 we saw some good

> >gains again, then nothing.

> > >

> > > At this time my son's gut was basically healing - no more yeast or

parasites

> >for months, formed stools, he could eat many things, corn eggs, some dairy,

etc,

> >and he loved to try lots of new foods. His seasonal allergies were gone and

food

> >allergies starting to abate. Still he spoke like a cave man and had limited

> >receptive understanding. Cognition lagged way behind. We just kept chelating.

My

> >dh and I went round and round on whether an EEG was necessary. My dh said no,

no

> >EEGS or Pharma rx meds, lets just chelate and eventually we will have enough

> >rounds and it will get better. He prevailed and we waited.

> >

> > >

> > > In the last 2 weeks it is like someone flipped a switch. My son talks, and

> >talks and talks, and seems to understand everything. He plays word games,

makes

> >jokes. He seems to be 100% present for the first time in his life. The

teacher

> >reports he greets peers and plays with them on the playground instead of

merely

> >running around the perimeter as is his habit. He is by no means recovered or

age

> >appropriate yet - but he is starting to be on his way there. It is like he

can't

> >tell me enough things - like he is uncorked or something. The other night he

> >would not go to sleep, it was 11 pm and he is a good sleeper. He had a place

mat

> >with the presidents on it and he was hell bent on showing me that he knew all

> >their names from Washington onward. He even told me, " you know,

> >Washington even has his own bridge. " I almost fell over laughing. I finally

> >uttered words I thought I would never say, but I had to... " sweetie, please be

> >quiet, stop talking, it is time to go to sleep. " We have done nothing really,

> >other than what we have for the last 2 years. In fact, we have recently

lowered

> >all of his supplements considerably. He takes nothing but the most basic mins

> >and vites, a few amino acids, liver support, fish oils, antioxidants, and

> >probiotics. I even hesitated to post this, for fear of jinxing it somehow.

> >

> > >

> > > I posted this basically to say, there is one miracle supplement only in my

> >view: AC chelation - dmsa and ala, week after week, after tedious sleepless

> >week. To anyone doubting it or having a hard time of it, do not give up! We

have

> >had stall after stall and regression, and at times I wanted to throw in the

> >towel, thinking my boy is damaged beyond repair. But with the support of

people

> >here on the boards and Andy, and my spouse, we just forged on, and on and on.

> >And I believe we have another 200 rounds to go, for full recovery. But I

believe

> >in my heart it is truly possible. We have only one child, and for the first

> >time, I feel his presence, his true presence as another person with opinions

and

> >ideas, fully present living in our house. It is a beautiful thing.

> >

> > >

> > > I want to close my post with an inspirational saying my late mother, a

> >relentless optimist, kept by her bed side even as she lay dying of breast

> >cancer:

> >

> > >

> > > Keep your heart open to dreams, for as long as there is a dream, there is

> >hope, and as long as there is hope, there is joy in living.

> > >

> > > She lived this and believed this, and she was very right. I have hope, and

> >joy now.

> > >

> > > Irene

> > > 5 year old, 95 rounds

> > >

> >

>

>

>

>

>

>

>

>

[Guest guest]

Nope all incorrect according to Dr Cutler it's simply a diversion to keep you

coming back and avoid their inadequate and dangerous protocol.

No risk of redistribution in that specific manner I believe Dr Cutler has

stated.

>

> > > >

>

> > > > I posted on this on another forum. I apologize for the length. But I

think my

>

> > >experience with my son, bears posting here as well, to give hope and

>

> > >encouragement to those just starting out and to those perhaps further along

who

>

> > >are in a stall or have hit a bump with the AC protocol.

>

> > > >

>

> > > > My son is 5 now. We are coming up on round 96. We have been doing the AC

>

> > >protocol for 2 years. My son got 26 shots in his first 18 months of life,

>

> > >including several flu shots and one in utero. My boy lost his skills

starting

>

> > >with a Hep A shot at age one, and with all the ensuing shots down to age 18

>

> > >months, before we stopped the madness. My boy was loaded with metals,

needless

>

> > >to say and was in a terrible way. Early Intervention in our state came in

at 19

>

> > >months and intimated we were dealing with a case of severe autism. We got

an

>

> > >appt with a neurodevelopmental ped - but that appt we had to wait 6 months

for.

>

> > >During this time we discovered biomed - started gfcf, omega 3 oils, yeast

>

> > >fighters and probiotics. By the time of our appt, we got a dx of high

>

> > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax

injured.

>

> > >His gut was still a mess and he could not function or communicate properly.

For

>

> > >the first several rounds of dmsa we saw lots of gains. Then we added ALA -

this

>

> > >was very tough, stressed his adrenals out, and we could only give him 3mg

or so

>

> > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 long,

long

>

> > >months where there was even regression. We tried everything people tout

here as

>

> > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine,

gingko,, b

>

> > >vites, you name it. Nothing worked or mattered. We persevered. By round 50

we

>

> > >were able to up ALA and were at more weight appropriate doses. We saw some

>

> > >satisfying gains, then nothing for a few months. At round 66 we saw some

good

>

> > >gains again, then nothing.

>

> > > >

>

> > > > At this time my son's gut was basically healing - no more yeast or

parasites

>

> > >for months, formed stools, he could eat many things, corn eggs, some dairy,

etc,

>

> > >and he loved to try lots of new foods. His seasonal allergies were gone and

food

>

> > >allergies starting to abate. Still he spoke like a cave man and had limited

>

> > >receptive understanding. Cognition lagged way behind. We just kept

chelating. My

>

> > >dh and I went round and round on whether an EEG was necessary. My dh said

no, no

>

> > >EEGS or Pharma rx meds, lets just chelate and eventually we will have

enough

>

> > >rounds and it will get better. He prevailed and we waited.

>

> > >

>

> > > >

>

> > > > In the last 2 weeks it is like someone flipped a switch. My son talks,

and

>

> > >talks and talks, and seems to understand everything. He plays word games,

makes

>

> > >jokes. He seems to be 100% present for the first time in his life. The

teacher

>

> > >reports he greets peers and plays with them on the playground instead of

merely

>

> > >running around the perimeter as is his habit. He is by no means recovered

or age

>

> > >appropriate yet - but he is starting to be on his way there. It is like he

can't

>

> > >tell me enough things - like he is uncorked or something. The other night

he

>

> > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a

place mat

>

> > >with the presidents on it and he was hell bent on showing me that he knew

all

>

> > >their names from Washington onward. He even told me, " you know,

>

> > >Washington even has his own bridge. " I almost fell over laughing. I finally

>

> > >uttered words I thought I would never say, but I had to... " sweetie, please

be

>

> > >quiet, stop talking, it is time to go to sleep. " We have done nothing

really,

>

> > >other than what we have for the last 2 years. In fact, we have recently

lowered

>

> > >all of his supplements considerably. He takes nothing but the most basic

mins

>

> > >and vites, a few amino acids, liver support, fish oils, antioxidants, and

>

> > >probiotics. I even hesitated to post this, for fear of jinxing it somehow.

>

> > >

>

> > > >

>

> > > > I posted this basically to say, there is one miracle supplement only in

my

>

> > >view: AC chelation - dmsa and ala, week after week, after tedious sleepless

>

> > >week. To anyone doubting it or having a hard time of it, do not give up! We

have

>

> > >had stall after stall and regression, and at times I wanted to throw in the

>

> > >towel, thinking my boy is damaged beyond repair. But with the support of

people

>

> > >here on the boards and Andy, and my spouse, we just forged on, and on and

on.

>

> > >And I believe we have another 200 rounds to go, for full recovery. But I

believe

>

> > >in my heart it is truly possible. We have only one child, and for the first

>

> > >time, I feel his presence, his true presence as another person with

opinions and

>

> > >ideas, fully present living in our house. It is a beautiful thing.

>

> > >

>

> > > >

>

> > > > I want to close my post with an inspirational saying my late mother, a

>

> > >relentless optimist, kept by her bed side even as she lay dying of breast

>

> > >cancer:

>

> > >

>

> > > >

>

> > > > Keep your heart open to dreams, for as long as there is a dream, there

is

>

> > >hope, and as long as there is hope, there is joy in living.

>

> > > >

>

> > > > She lived this and believed this, and she was very right. I have hope,

and

>

> > >joy now.

>

> > > >

>

> > > > Irene

>

> > > > 5 year old, 95 rounds

>

> > > >

>

> > >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

[Guest guest]

Our DAN wanted us to wait until we had yeast protocol in place and the bowels

were moving somewhat regularly. Beyond that he said the gut wasnt really going

to heal until we chelated. Delayed chelation for 6 months, but I wasnt going to

chelate a severly constipated kid.

40 rounds so far and he's doing great!

Karla

> >

> > > > >

> >

> > > > > I posted on this on another forum. I apologize for the length. But I

think my

> >

> > > >experience with my son, bears posting here as well, to give hope and

> >

> > > >encouragement to those just starting out and to those perhaps further

along who

> >

> > > >are in a stall or have hit a bump with the AC protocol.

> >

> > > > >

> >

> > > > > My son is 5 now. We are coming up on round 96. We have been doing the

AC

> >

> > > >protocol for 2 years. My son got 26 shots in his first 18 months of life,

> >

> > > >including several flu shots and one in utero. My boy lost his skills

starting

> >

> > > >with a Hep A shot at age one, and with all the ensuing shots down to age

18

> >

> > > >months, before we stopped the madness. My boy was loaded with metals,

needless

> >

> > > >to say and was in a terrible way. Early Intervention in our state came in

at 19

> >

> > > >months and intimated we were dealing with a case of severe autism. We got

an

> >

> > > >appt with a neurodevelopmental ped - but that appt we had to wait 6

months for.

> >

> > > >During this time we discovered biomed - started gfcf, omega 3 oils, yeast

> >

> > > >fighters and probiotics. By the time of our appt, we got a dx of high

> >

> > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax

injured.

> >

> > > >His gut was still a mess and he could not function or communicate

properly. For

> >

> > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA

- this

> >

> > > >was very tough, stressed his adrenals out, and we could only give him 3mg

or so

> >

> > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8

long, long

> >

> > > >months where there was even regression. We tried everything people tout

here as

> >

> > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine,

gingko,, b

> >

> > > >vites, you name it. Nothing worked or mattered. We persevered. By round

50 we

> >

> > > >were able to up ALA and were at more weight appropriate doses. We saw

some

> >

> > > >satisfying gains, then nothing for a few months. At round 66 we saw some

good

> >

> > > >gains again, then nothing.

> >

> > > > >

> >

> > > > > At this time my son's gut was basically healing - no more yeast or

parasites

> >

> > > >for months, formed stools, he could eat many things, corn eggs, some

dairy, etc,

> >

> > > >and he loved to try lots of new foods. His seasonal allergies were gone

and food

> >

> > > >allergies starting to abate. Still he spoke like a cave man and had

limited

> >

> > > >receptive understanding. Cognition lagged way behind. We just kept

chelating. My

> >

> > > >dh and I went round and round on whether an EEG was necessary. My dh said

no, no

> >

> > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have

enough

> >

> > > >rounds and it will get better. He prevailed and we waited.

> >

> > > >

> >

> > > > >

> >

> > > > > In the last 2 weeks it is like someone flipped a switch. My son talks,

and

> >

> > > >talks and talks, and seems to understand everything. He plays word games,

makes

> >

> > > >jokes. He seems to be 100% present for the first time in his life. The

teacher

> >

> > > >reports he greets peers and plays with them on the playground instead of

merely

> >

> > > >running around the perimeter as is his habit. He is by no means recovered

or age

> >

> > > >appropriate yet - but he is starting to be on his way there. It is like

he can't

> >

> > > >tell me enough things - like he is uncorked or something. The other night

he

> >

> > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a

place mat

> >

> > > >with the presidents on it and he was hell bent on showing me that he knew

all

> >

> > > >their names from Washington onward. He even told me, " you know,

> >

> > > >Washington even has his own bridge. " I almost fell over laughing. I

finally

> >

> > > >uttered words I thought I would never say, but I had to... " sweetie,

please be

> >

> > > >quiet, stop talking, it is time to go to sleep. " We have done nothing

really,

> >

> > > >other than what we have for the last 2 years. In fact, we have recently

lowered

> >

> > > >all of his supplements considerably. He takes nothing but the most basic

mins

> >

> > > >and vites, a few amino acids, liver support, fish oils, antioxidants, and

> >

> > > >probiotics. I even hesitated to post this, for fear of jinxing it

somehow.

> >

> > > >

> >

> > > > >

> >

> > > > > I posted this basically to say, there is one miracle supplement only

in my

> >

> > > >view: AC chelation - dmsa and ala, week after week, after tedious

sleepless

> >

> > > >week. To anyone doubting it or having a hard time of it, do not give up!

We have

> >

> > > >had stall after stall and regression, and at times I wanted to throw in

the

> >

> > > >towel, thinking my boy is damaged beyond repair. But with the support of

people

> >

> > > >here on the boards and Andy, and my spouse, we just forged on, and on and

on.

> >

> > > >And I believe we have another 200 rounds to go, for full recovery. But I

believe

> >

> > > >in my heart it is truly possible. We have only one child, and for the

first

> >

> > > >time, I feel his presence, his true presence as another person with

opinions and

> >

> > > >ideas, fully present living in our house. It is a beautiful thing.

> >

> > > >

> >

> > > > >

> >

> > > > > I want to close my post with an inspirational saying my late mother, a

> >

> > > >relentless optimist, kept by her bed side even as she lay dying of breast

> >

> > > >cancer:

> >

> > > >

> >

> > > > >

> >

> > > > > Keep your heart open to dreams, for as long as there is a dream, there

is

> >

> > > >hope, and as long as there is hope, there is joy in living.

> >

> > > > >

> >

> > > > > She lived this and believed this, and she was very right. I have hope,

and

> >

> > > >joy now.

> >

> > > > >

> >

> > > > > Irene

> >

> > > > > 5 year old, 95 rounds

> >

> > > > >

> >

> > > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

[Guest guest]

Karla--where do you get the small doses of DMSA and ALA???  And thanks for the

encouragemewnt.

________________________________

From: wiersmak <wiersmak@...>

Sent: Sat, August 28, 2010 12:39:23 PM

Subject: [ ] Re: Irene--Turning a corner: thoughts on amazing gains

and the AC protocol

 

Our DAN wanted us to wait until we had yeast protocol in place and the bowels

were moving somewhat regularly. Beyond that he said the gut wasnt really going

to heal until we chelated. Delayed chelation for 6 months, but I wasnt going to

chelate a severly constipated kid.

40 rounds so far and he's doing great!

Karla

> >

> > > > >

> >

> > > > > I posted on this on another forum. I apologize for the length. But I

>think my

>

> >

> > > >experience with my son, bears posting here as well, to give hope and

> >

> > > >encouragement to those just starting out and to those perhaps further

>along who

>

> >

> > > >are in a stall or have hit a bump with the AC protocol.

> >

> > > > >

> >

> > > > > My son is 5 now. We are coming up on round 96. We have been doing the

>AC

>

> >

> > > >protocol for 2 years. My son got 26 shots in his first 18 months of life,

> >

> > > >including several flu shots and one in utero. My boy lost his skills

>starting

>

> >

> > > >with a Hep A shot at age one, and with all the ensuing shots down to age

>18

>

> >

> > > >months, before we stopped the madness. My boy was loaded with metals,

>needless

>

> >

> > > >to say and was in a terrible way. Early Intervention in our state came in

>at 19

>

> >

> > > >months and intimated we were dealing with a case of severe autism. We got

>an

>

> >

> > > >appt with a neurodevelopmental ped - but that appt we had to wait 6

months

>for.

>

> >

> > > >During this time we discovered biomed - started gfcf, omega 3 oils, yeast

> >

> > > >fighters and probiotics. By the time of our appt, we got a dx of high

> >

> > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax

>injured.

>

> >

> > > >His gut was still a mess and he could not function or communicate

>properly. For

>

> >

> > > >the first several rounds of dmsa we saw lots of gains. Then we added ALA

-

>this

>

> >

> > > >was very tough, stressed his adrenals out, and we could only give him 3mg

>or so

>

> >

> > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8

>long, long

>

> >

> > > >months where there was even regression. We tried everything people tout

>here as

>

> >

> > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine,

>gingko,, b

>

> >

> > > >vites, you name it. Nothing worked or mattered. We persevered. By round

50

>we

>

> >

> > > >were able to up ALA and were at more weight appropriate doses. We saw

some

>

> >

> > > >satisfying gains, then nothing for a few months. At round 66 we saw some

>good

>

> >

> > > >gains again, then nothing.

> >

> > > > >

> >

> > > > > At this time my son's gut was basically healing - no more yeast or

>parasites

>

> >

> > > >for months, formed stools, he could eat many things, corn eggs, some

>dairy, etc,

>

> >

> > > >and he loved to try lots of new foods. His seasonal allergies were gone

>and food

>

> >

> > > >allergies starting to abate. Still he spoke like a cave man and had

>limited

>

> >

> > > >receptive understanding. Cognition lagged way behind. We just kept

>chelating. My

>

> >

> > > >dh and I went round and round on whether an EEG was necessary. My dh said

>no, no

>

> >

> > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have

>enough

>

> >

> > > >rounds and it will get better. He prevailed and we waited.

> >

> > > >

> >

> > > > >

> >

> > > > > In the last 2 weeks it is like someone flipped a switch. My son talks,

>and

>

> >

> > > >talks and talks, and seems to understand everything. He plays word games,

>makes

>

> >

> > > >jokes. He seems to be 100% present for the first time in his life. The

>teacher

>

> >

> > > >reports he greets peers and plays with them on the playground instead of

>merely

>

> >

> > > >running around the perimeter as is his habit. He is by no means recovered

>or age

>

> >

> > > >appropriate yet - but he is starting to be on his way there. It is like

he

>can't

>

> >

> > > >tell me enough things - like he is uncorked or something. The other night

>he

>

> >

> > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a

>place mat

>

> >

> > > >with the presidents on it and he was hell bent on showing me that he knew

>all

>

> >

> > > >their names from Washington onward. He even told me, " you know,

> >

> > > >Washington even has his own bridge. " I almost fell over laughing. I

>finally

>

> >

> > > >uttered words I thought I would never say, but I had to... " sweetie,

please

>be

>

> >

> > > >quiet, stop talking, it is time to go to sleep. " We have done nothing

>really,

>

> >

> > > >other than what we have for the last 2 years. In fact, we have recently

>lowered

>

> >

> > > >all of his supplements considerably. He takes nothing but the most basic

>mins

>

> >

> > > >and vites, a few amino acids, liver support, fish oils, antioxidants, and

> >

> > > >probiotics. I even hesitated to post this, for fear of jinxing it

somehow.

>

> >

> > > >

> >

> > > > >

> >

> > > > > I posted this basically to say, there is one miracle supplement only

in

>my

>

> >

> > > >view: AC chelation - dmsa and ala, week after week, after tedious

>sleepless

>

> >

> > > >week. To anyone doubting it or having a hard time of it, do not give up!

>We have

>

> >

> > > >had stall after stall and regression, and at times I wanted to throw in

>the

>

> >

> > > >towel, thinking my boy is damaged beyond repair. But with the support of

>people

>

> >

> > > >here on the boards and Andy, and my spouse, we just forged on, and on and

>on.

>

> >

> > > >And I believe we have another 200 rounds to go, for full recovery. But I

>believe

>

> >

> > > >in my heart it is truly possible. We have only one child, and for the

>first

>

> >

> > > >time, I feel his presence, his true presence as another person with

>opinions and

>

> >

> > > >ideas, fully present living in our house. It is a beautiful thing.

> >

> > > >

> >

> > > > >

> >

> > > > > I want to close my post with an inspirational saying my late mother, a

> >

> > > >relentless optimist, kept by her bed side even as she lay dying of breast

> >

> > > >cancer:

> >

> > > >

> >

> > > > >

> >

> > > > > Keep your heart open to dreams, for as long as there is a dream, there

>is

>

> >

> > > >hope, and as long as there is hope, there is joy in living.

> >

> > > > >

> >

> > > > > She lived this and believed this, and she was very right. I have hope,

>and

>

> >

> > > >joy now.

> >

> > > > >

> >

> > > > > Irene

> >

> > > > > 5 year old, 95 rounds

> >

> > > > >

> >

> > > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

[Guest guest]

ALA I get from Kirkman, the smallest dose they sell is 25 mg, so I split it into

5 doses. I dont use DMSA (we use DMPS),but most get it from vrp.com. Dont lose

hope.

Karla

> > >

> > > > > >

> > >

> > > > > > I posted on this on another forum. I apologize for the length. But I

> >think my

> >

> > >

> > > > >experience with my son, bears posting here as well, to give hope and

> > >

> > > > >encouragement to those just starting out and to those perhaps further

> >along who

> >

> > >

> > > > >are in a stall or have hit a bump with the AC protocol.

> > >

> > > > > >

> > >

> > > > > > My son is 5 now. We are coming up on round 96. We have been doing

the

> >AC

> >

> > >

> > > > >protocol for 2 years. My son got 26 shots in his first 18 months of

life,

>

> > >

> > > > >including several flu shots and one in utero. My boy lost his skills

> >starting

> >

> > >

> > > > >with a Hep A shot at age one, and with all the ensuing shots down to

age

> >18

> >

> > >

> > > > >months, before we stopped the madness. My boy was loaded with metals,

> >needless

> >

> > >

> > > > >to say and was in a terrible way. Early Intervention in our state came

in

> >at 19

> >

> > >

> > > > >months and intimated we were dealing with a case of severe autism. We

got

> >an

> >

> > >

> > > > >appt with a neurodevelopmental ped - but that appt we had to wait 6

months

> >for.

> >

> > >

> > > > >During this time we discovered biomed - started gfcf, omega 3 oils,

yeast

>

> > >

> > > > >fighters and probiotics. By the time of our appt, we got a dx of high

> > >

> > > > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax

> >injured.

> >

> > >

> > > > >His gut was still a mess and he could not function or communicate

> >properly. For

> >

> > >

> > > > >the first several rounds of dmsa we saw lots of gains. Then we added

ALA -

> >this

> >

> > >

> > > > >was very tough, stressed his adrenals out, and we could only give him

3mg

> >or so

> >

> > >

> > > > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8

> >long, long

> >

> > >

> > > > >months where there was even regression. We tried everything people tout

> >here as

> >

> > >

> > > > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine,

> >gingko,, b

> >

> > >

> > > > >vites, you name it. Nothing worked or mattered. We persevered. By round

50

> >we

> >

> > >

> > > > >were able to up ALA and were at more weight appropriate doses. We saw

some

> >

> > >

> > > > >satisfying gains, then nothing for a few months. At round 66 we saw

some

> >good

> >

> > >

> > > > >gains again, then nothing.

> > >

> > > > > >

> > >

> > > > > > At this time my son's gut was basically healing - no more yeast or

> >parasites

> >

> > >

> > > > >for months, formed stools, he could eat many things, corn eggs, some

> >dairy, etc,

> >

> > >

> > > > >and he loved to try lots of new foods. His seasonal allergies were gone

> >and food

> >

> > >

> > > > >allergies starting to abate. Still he spoke like a cave man and had

> >limited

> >

> > >

> > > > >receptive understanding. Cognition lagged way behind. We just kept

> >chelating. My

> >

> > >

> > > > >dh and I went round and round on whether an EEG was necessary. My dh

said

> >no, no

> >

> > >

> > > > >EEGS or Pharma rx meds, lets just chelate and eventually we will have

> >enough

> >

> > >

> > > > >rounds and it will get better. He prevailed and we waited.

> > >

> > > > >

> > >

> > > > > >

> > >

> > > > > > In the last 2 weeks it is like someone flipped a switch. My son

talks,

> >and

> >

> > >

> > > > >talks and talks, and seems to understand everything. He plays word

games,

> >makes

> >

> > >

> > > > >jokes. He seems to be 100% present for the first time in his life. The

> >teacher

> >

> > >

> > > > >reports he greets peers and plays with them on the playground instead

of

> >merely

> >

> > >

> > > > >running around the perimeter as is his habit. He is by no means

recovered

> >or age

> >

> > >

> > > > >appropriate yet - but he is starting to be on his way there. It is like

he

> >can't

> >

> > >

> > > > >tell me enough things - like he is uncorked or something. The other

night

> >he

> >

> > >

> > > > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a

> >place mat

> >

> > >

> > > > >with the presidents on it and he was hell bent on showing me that he

knew

> >all

> >

> > >

> > > > >their names from Washington onward. He even told me, " you know,

> > >

> > > > >Washington even has his own bridge. " I almost fell over laughing. I

> >finally

> >

> > >

> > > > >uttered words I thought I would never say, but I had to... " sweetie,

please

> >be

> >

> > >

> > > > >quiet, stop talking, it is time to go to sleep. " We have done nothing

> >really,

> >

> > >

> > > > >other than what we have for the last 2 years. In fact, we have recently

> >lowered

> >

> > >

> > > > >all of his supplements considerably. He takes nothing but the most

basic

> >mins

> >

> > >

> > > > >and vites, a few amino acids, liver support, fish oils, antioxidants,

and

>

> > >

> > > > >probiotics. I even hesitated to post this, for fear of jinxing it

somehow.

> >

> > >

> > > > >

> > >

> > > > > >

> > >

> > > > > > I posted this basically to say, there is one miracle supplement only

in

> >my

> >

> > >

> > > > >view: AC chelation - dmsa and ala, week after week, after tedious

> >sleepless

> >

> > >

> > > > >week. To anyone doubting it or having a hard time of it, do not give

up!

> >We have

> >

> > >

> > > > >had stall after stall and regression, and at times I wanted to throw in

> >the

> >

> > >

> > > > >towel, thinking my boy is damaged beyond repair. But with the support

of

> >people

> >

> > >

> > > > >here on the boards and Andy, and my spouse, we just forged on, and on

and

> >on.

> >

> > >

> > > > >And I believe we have another 200 rounds to go, for full recovery. But

I

> >believe

> >

> > >

> > > > >in my heart it is truly possible. We have only one child, and for the

> >first

> >

> > >

> > > > >time, I feel his presence, his true presence as another person with

> >opinions and

> >

> > >

> > > > >ideas, fully present living in our house. It is a beautiful thing.

> > >

> > > > >

> > >

> > > > > >

> > >

> > > > > > I want to close my post with an inspirational saying my late mother,

a

>

> > >

> > > > >relentless optimist, kept by her bed side even as she lay dying of

breast

>

> > >

> > > > >cancer:

> > >

> > > > >

> > >

> > > > > >

> > >

> > > > > > Keep your heart open to dreams, for as long as there is a dream,

there

> >is

> >

> > >

> > > > >hope, and as long as there is hope, there is joy in living.

> > >

> > > > > >

> > >

> > > > > > She lived this and believed this, and she was very right. I have

hope,

> >and

> >

> > >

> > > > >joy now.

> > >

> > > > > >

> > >

> > > > > > Irene

> > >

> > > > > > 5 year old, 95 rounds

> > >

> > > > > >

> > >

> > > > >

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > >

[Guest guest]

My son's gut was a wreck at the start of chelation. Being gfcf helped- but he

had yeast, parasites and bacteria. Chelation is what healed his gut. We had a

DAN at the time who said you have to control yeast a bit before starting

chelation and who said the AC doses were too small to ever permit recovery. He

was wrong on both counts.

Irene, 5 year old, 97 rounds

> > >

> > > I posted on this on another forum. I apologize for the length. But I think

my

> >experience with my son, bears posting here as well, to give hope and

> >encouragement to those just starting out and to those perhaps further along

who

> >are in a stall or have hit a bump with the AC protocol.

> > >

> > > My son is 5 now. We are coming up on round 96. We have been doing the AC

> >protocol for 2 years. My son got 26 shots in his first 18 months of life,

> >including several flu shots and one in utero. My boy lost his skills starting

> >with a Hep A shot at age one, and with all the ensuing shots down to age 18

> >months, before we stopped the madness. My boy was loaded with metals,

needless

> >to say and was in a terrible way. Early Intervention in our state came in at

19

> >months and intimated we were dealing with a case of severe autism. We got an

> >appt with a neurodevelopmental ped - but that appt we had to wait 6 months

for.

> >During this time we discovered biomed - started gfcf, omega 3 oils, yeast

> >fighters and probiotics. By the time of our appt, we got a dx of high

> >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax injured.

> >His gut was still a mess and he could not function or communicate properly.

For

> >the first several rounds of dmsa we saw lots of gains. Then we added ALA -

this

> >was very tough, stressed his adrenals out, and we could only give him 3mg or

so

> >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 long,

long

> >months where there was even regression. We tried everything people tout here

as

> >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine, gingko,,

b

> >vites, you name it. Nothing worked or mattered. We persevered. By round 50 we

> >were able to up ALA and were at more weight appropriate doses. We saw some

> >satisfying gains, then nothing for a few months. At round 66 we saw some good

> >gains again, then nothing.

> > >

> > > At this time my son's gut was basically healing - no more yeast or

parasites

> >for months, formed stools, he could eat many things, corn eggs, some dairy,

etc,

> >and he loved to try lots of new foods. His seasonal allergies were gone and

food

> >allergies starting to abate. Still he spoke like a cave man and had limited

> >receptive understanding. Cognition lagged way behind. We just kept chelating.

My

> >dh and I went round and round on whether an EEG was necessary. My dh said no,

no

> >EEGS or Pharma rx meds, lets just chelate and eventually we will have enough

> >rounds and it will get better. He prevailed and we waited.

> >

> > >

> > > In the last 2 weeks it is like someone flipped a switch. My son talks, and

> >talks and talks, and seems to understand everything. He plays word games,

makes

> >jokes. He seems to be 100% present for the first time in his life. The

teacher

> >reports he greets peers and plays with them on the playground instead of

merely

> >running around the perimeter as is his habit. He is by no means recovered or

age

> >appropriate yet - but he is starting to be on his way there. It is like he

can't

> >tell me enough things - like he is uncorked or something. The other night he

> >would not go to sleep, it was 11 pm and he is a good sleeper. He had a place

mat

> >with the presidents on it and he was hell bent on showing me that he knew all

> >their names from Washington onward. He even told me, " you know,

> >Washington even has his own bridge. " I almost fell over laughing. I finally

> >uttered words I thought I would never say, but I had to... " sweetie, please be

> >quiet, stop talking, it is time to go to sleep. " We have done nothing really,

> >other than what we have for the last 2 years. In fact, we have recently

lowered

> >all of his supplements considerably. He takes nothing but the most basic mins

> >and vites, a few amino acids, liver support, fish oils, antioxidants, and

> >probiotics. I even hesitated to post this, for fear of jinxing it somehow.

> >

> > >

> > > I posted this basically to say, there is one miracle supplement only in my

> >view: AC chelation - dmsa and ala, week after week, after tedious sleepless

> >week. To anyone doubting it or having a hard time of it, do not give up! We

have

> >had stall after stall and regression, and at times I wanted to throw in the

> >towel, thinking my boy is damaged beyond repair. But with the support of

people

> >here on the boards and Andy, and my spouse, we just forged on, and on and on.

> >And I believe we have another 200 rounds to go, for full recovery. But I

believe

> >in my heart it is truly possible. We have only one child, and for the first

> >time, I feel his presence, his true presence as another person with opinions

and

> >ideas, fully present living in our house. It is a beautiful thing.

> >

> > >

> > > I want to close my post with an inspirational saying my late mother, a

> >relentless optimist, kept by her bed side even as she lay dying of breast

> >cancer:

> >

> > >

> > > Keep your heart open to dreams, for as long as there is a dream, there is

> >hope, and as long as there is hope, there is joy in living.

> > >

> > > She lived this and believed this, and she was very right. I have hope, and

> >joy now.

> > >

> > > Irene

> > > 5 year old, 95 rounds

> > >

> >

>

>

>

>

>

>

>

>

[Guest guest]

You will never heal a gut with anything but getting the metals out. I have done

all the diets. We were down to 5 foods, still are using heavy probiotics and

such, but we could never keep yeast at bay until we finally addressed the reason

for it to begin with, chelation. Uphill battle without it. The metals are going

to get redistributed if you're not using a chelator. Killing off yeast will

release tons of it. Gut is leaky anyway, these metals just keep recirculating

and going into different places with treating the gut without something pulling

metals out in the process. 2 years of treating the gut was a big mistake for us.

We had macdonalds french fries and nothing happened for the first time in my

sweet boy's life!

Jenib

4yr DS ASD #43

2nt Girls

>

> > > >

>

> > > > I posted on this on another forum. I apologize for the length. But I

think my

>

> > >experience with my son, bears posting here as well, to give hope and

>

> > >encouragement to those just starting out and to those perhaps further along

who

>

> > >are in a stall or have hit a bump with the AC protocol.

>

> > > >

>

> > > > My son is 5 now. We are coming up on round 96. We have been doing the AC

>

> > >protocol for 2 years. My son got 26 shots in his first 18 months of life,

>

> > >including several flu shots and one in utero. My boy lost his skills

starting

>

> > >with a Hep A shot at age one, and with all the ensuing shots down to age 18

>

> > >months, before we stopped the madness. My boy was loaded with metals,

needless

>

> > >to say and was in a terrible way. Early Intervention in our state came in

at 19

>

> > >months and intimated we were dealing with a case of severe autism. We got

an

>

> > >appt with a neurodevelopmental ped - but that appt we had to wait 6 months

for.

>

> > >During this time we discovered biomed - started gfcf, omega 3 oils, yeast

>

> > >fighters and probiotics. By the time of our appt, we got a dx of high

>

> > >functioning PDD-nos. Whatever, labels meant nothing - my boy was vax

injured.

>

> > >His gut was still a mess and he could not function or communicate properly.

For

>

> > >the first several rounds of dmsa we saw lots of gains. Then we added ALA -

this

>

> > >was very tough, stressed his adrenals out, and we could only give him 3mg

or so

>

> > >for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 long,

long

>

> > >months where there was even regression. We tried everything people tout

here as

>

> > >miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine,

gingko,, b

>

> > >vites, you name it. Nothing worked or mattered. We persevered. By round 50

we

>

> > >were able to up ALA and were at more weight appropriate doses. We saw some

>

> > >satisfying gains, then nothing for a few months. At round 66 we saw some

good

>

> > >gains again, then nothing.

>

> > > >

>

> > > > At this time my son's gut was basically healing - no more yeast or

parasites

>

> > >for months, formed stools, he could eat many things, corn eggs, some dairy,

etc,

>

> > >and he loved to try lots of new foods. His seasonal allergies were gone and

food

>

> > >allergies starting to abate. Still he spoke like a cave man and had limited

>

> > >receptive understanding. Cognition lagged way behind. We just kept

chelating. My

>

> > >dh and I went round and round on whether an EEG was necessary. My dh said

no, no

>

> > >EEGS or Pharma rx meds, lets just chelate and eventually we will have

enough

>

> > >rounds and it will get better. He prevailed and we waited.

>

> > >

>

> > > >

>

> > > > In the last 2 weeks it is like someone flipped a switch. My son talks,

and

>

> > >talks and talks, and seems to understand everything. He plays word games,

makes

>

> > >jokes. He seems to be 100% present for the first time in his life. The

teacher

>

> > >reports he greets peers and plays with them on the playground instead of

merely

>

> > >running around the perimeter as is his habit. He is by no means recovered

or age

>

> > >appropriate yet - but he is starting to be on his way there. It is like he

can't

>

> > >tell me enough things - like he is uncorked or something. The other night

he

>

> > >would not go to sleep, it was 11 pm and he is a good sleeper. He had a

place mat

>

> > >with the presidents on it and he was hell bent on showing me that he knew

all

>

> > >their names from Washington onward. He even told me, " you know,

>

> > >Washington even has his own bridge. " I almost fell over laughing. I finally

>

> > >uttered words I thought I would never say, but I had to... " sweetie, please

be

>

> > >quiet, stop talking, it is time to go to sleep. " We have done nothing

really,

>

> > >other than what we have for the last 2 years. In fact, we have recently

lowered

>

> > >all of his supplements considerably. He takes nothing but the most basic

mins

>

> > >and vites, a few amino acids, liver support, fish oils, antioxidants, and

>

> > >probiotics. I even hesitated to post this, for fear of jinxing it somehow.

>

> > >

>

> > > >

>

> > > > I posted this basically to say, there is one miracle supplement only in

my

>

> > >view: AC chelation - dmsa and ala, week after week, after tedious sleepless

>

> > >week. To anyone doubting it or having a hard time of it, do not give up! We

have

>

> > >had stall after stall and regression, and at times I wanted to throw in the

>

> > >towel, thinking my boy is damaged beyond repair. But with the support of

people

>

> > >here on the boards and Andy, and my spouse, we just forged on, and on and

on.

>

> > >And I believe we have another 200 rounds to go, for full recovery. But I

believe

>

> > >in my heart it is truly possible. We have only one child, and for the first

>

> > >time, I feel his presence, his true presence as another person with

opinions and

>

> > >ideas, fully present living in our house. It is a beautiful thing.

>

> > >

>

> > > >

>

> > > > I want to close my post with an inspirational saying my late mother, a

>

> > >relentless optimist, kept by her bed side even as she lay dying of breast

>

> > >cancer:

>

> > >

>

> > > >

>

> > > > Keep your heart open to dreams, for as long as there is a dream, there

is

>

> > >hope, and as long as there is hope, there is joy in living.

>

> > > >

>

> > > > She lived this and believed this, and she was very right. I have hope,

and

>

> > >joy now.

>

> > > >

>

> > > > Irene

>

> > > > 5 year old, 95 rounds

>

> > > >

>

> > >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >