Re: botched DMSA side effects... when to seek medical help?

[Guest guest]

,

Normal DMSA side effects that I've seen. These mostly resolve on their own or

when you treat for yeast.

Fatigue...like napping when they don't usually do so.

LOW Fever...like 99F especially the first few rounds.

More urine production..means you need to make sure to drink lots of water.

Pee accidents...this is usually yeast and can range from wetting the bed to not

making it to the bathroom on time. We had horrible problems with this after

Rounds #3 & Round #4.

For my son, increased appetite the first few rounds...he is a skinny boy so I

just fed him more.

Crankiness the day AFTER the round ends...this is probably redistribution.

On my son's 3rd round, we had a horrible (103F) high fever on Day #2. I stopped

the round. It is normal to stop the round or not chelate with a fever of more

than 100F. I was worrying just like you are and then found out on Monday that

1/2 his preschool class had had the same thing...pretty sure they aren't all

chelating.:-)

Why are you dosing every 2 hrs? Most people dose every 4 hours day and night

for DMSA. They may reduce the time between rounds if they have side effects.

It sounds like your dose is really low so that probably isn't the problem.

However, IF you missed a dose by more than an hour, you need to stop the round.

Then you wait until your next scheduled chelating time to start again.

Some people specualte that DMSA slightly suppresses the immune system and then

the kids get whatever bug is going around...that might be the case for your son.

I honestly don't know if the DMSA is the problem. It could be the flu,

roseola..which causes a high fever with no other symptoms until day 3-4 when

they break out in a rash, could be a urinary tract infection (it hurts when he

pees?) or one of those mystery fevers that kids get. My personal rule is that I

give Motrin if my son's fever goes over 103F. Otherwise, I just do what you are

doing...supportive fluids, rest, etc.

Definitely give your son time to get better before you chelate again.

>

> Our almost-four-year-old son has had a fever since last night at 6:15PM and

got so hot that he was hallucinating at 10PM when we measured his temperature at

102F in his armpit. He woke up seeming a bit better, though still weak, around

6AM. He didn't want to pee because he said it hurt, but he did (it was yellow).

He drank a little water but not much. He had about a quarter drop of GSE in a

few sips of water, 100B organisms worth of drinkable soy-based probiotics (he

requested these), one bite of gluten-free oats with quinoa, a dozen goji

berries, and several chewable vit-C-A-E multivitamins for breakfast. Then he

went back to sleep (he usually never naps during the day) around 8AM when his

temperature was 100.9F, twitching slightly. He just woke up and still feels

warm. He says he's sleepy.

>

> Are these *expected* side effects of botching his first ever experience with

DMSA? (Due to a serious misunderstanding of the DMSA protocol on my part, he

received about 2mg DMSA starting Thursday at 2PM, 4PM, 6PM, 8PM, Friday morning

at midnight (a little less than 2mg on that one), 4AM, 8AM, 10AM, noon, 2PM,

4PM, and 6:10PM. Basically, he missed a 2AM and a 6AM dosage early Friday

morning.)

>

> What other side effects might we expect to see?

>

> At what point should we seek medical attention for him?

>

> Thank you,

>

>

[Guest guest]

,

Thank you very much for your post. My husband and I have been very worried about

our son. I have not been getting enough sleep myself and this has probably

affected my thinking and judgment more than I realized.

> Normal DMSA side effects that I've seen. These mostly resolve on their own or

when you treat for yeast.

>

> Fatigue...like napping when they don't usually do so.

> LOW Fever...like 99F especially the first few rounds.

> More urine production..means you need to make sure to drink lots of water.

> Pee accidents...this is usually yeast and can range from wetting the bed to

not making it to the bathroom on time. We had horrible problems with this after

Rounds #3 & Round #4.

> For my son, increased appetite the first few rounds...he is a skinny boy so I

just fed him more.

> Crankiness the day AFTER the round ends...this is probably redistribution.

Thank you very much for providing this list. Just now (almost 24 hours exactly

since onset), his fever broke. He has been having many of the symptoms you

cited: fatigue, fever (albeit higher), normal or maybe less urine, pee

accidents, weird appetite (seems hungry but doesn't want any of the foods we

offer except watermelon and brown rice). He has been relatively normal between

the unusual naps. After eating supper, he looks tired again (he did want and ate

a bit of sulfur and phenol foods but I didn't protest much as he hasn't been

getting many calories today) and he says his left ankle, where the skin has gone

red, feels tingly and numb. Is this tingling also common, or should I be alert

to take some action?

> On my son's 3rd round, we had a horrible (103F) high fever on Day #2. I

stopped the round. It is normal to stop the round or not chelate with a fever

of more than 100F. I was worrying just like you are and then found out on

Monday that 1/2 his preschool class had had the same thing...pretty sure they

aren't all chelating.:-)

Good thought. We mustn't rule out a virus...

> Why are you dosing every 2 hrs? Most people dose every 4 hours day and night

for DMSA. They may reduce the time between rounds if they have side effects.

It sounds like your dose is really low so that probably isn't the problem.

However, IF you missed a dose by more than an hour, you need to stop the round.

Then you wait until your next scheduled chelating time to start again.

Well, I recounted (my basic arithmetic has been bad lately, probably another

sign that I am not getting enough rest myself) and our son " missed " three doses

(10PM, 2AM, 6AM) instead of two. I made two pretty miserable errors in my first

attempt to do DMSA chelation:

1. I misremembered someone's post about a gentler protocol for their family

(more often during the day, less often in the evenings) as having to do with

DMSA when it was actually about ALA. The protocols are not the same, I learned

the hard way.

2. I misinterpreted Andy Cutler's rule about doing DMSA every four hours or less

as meaning that the DMSA doses have to be no farther apart than four hours.

Again, I just learned the hard way that you have to dose DMSA at *exactly the

same* intervals throughout the chelation round.

I am trying to stay calm, though I've been running on adrenaline for the past

couple days and not sleeping well. Counting blessings...

Thank you again,

[Guest guest]

Quick question - are you casein free? Seems odd to me that he requests soy

probiotics. Are you sure he doesn't have soy issues? My kid got really high,

random fevers (with no symptoms of illness besides the fever, like a cough or

tummy trouble) until we pulled soy.

> >

> > Our almost-four-year-old son has had a fever since last night at 6:15PM and

got so hot that he was hallucinating at 10PM when we measured his temperature at

102F in his armpit. He woke up seeming a bit better, though still weak, around

6AM. He didn't want to pee because he said it hurt, but he did (it was yellow).

He drank a little water but not much. He had about a quarter drop of GSE in a

few sips of water, 100B organisms worth of drinkable soy-based probiotics (he

requested these), one bite of gluten-free oats with quinoa, a dozen goji

berries, and several chewable vit-C-A-E multivitamins for breakfast. Then he

went back to sleep (he usually never naps during the day) around 8AM when his

temperature was 100.9F, twitching slightly. He just woke up and still feels

warm. He says he's sleepy.

> >

> > Are these *expected* side effects of botching his first ever experience with

DMSA? (Due to a serious misunderstanding of the DMSA protocol on my part, he

received about 2mg DMSA starting Thursday at 2PM, 4PM, 6PM, 8PM, Friday morning

at midnight (a little less than 2mg on that one), 4AM, 8AM, 10AM, noon, 2PM,

4PM, and 6:10PM. Basically, he missed a 2AM and a 6AM dosage early Friday

morning.)

> >

> > What other side effects might we expect to see?

> >

> > At what point should we seek medical attention for him?

> >

> > Thank you,

> >

> >

>

[Guest guest]

,

I'm glad to hear that your son is feeling better and that the fever broke. IF

the DMSA caused all this, then he had an extreme reaction to it and/or the extra

& missed dosing. I've read on message boards of some " tingling " during

redistribution mostly from adults who are chelating...maybe kids feel it too,

but just don't know how to describe it. It should resolve within 24 hrs or so

if that is the cause.

To make sure I don't miss a dose, I got a digital kitchen timer that has a count

down option. So after each dose, I put in 4 hrs and start it and after 4 hours

it starts beeping at me. It is small enough that I can move it to my bedside or

take it with me in my purse if we leave the house. It is also magnetic so it

lives on my frig during the day. It is a Sunbeam and I got it at the hardware

store.

BASIC Rules for AC Protocol for DMSA alone.

1. Start with dose of 1/4 mg per lb or less. (Note that after 22 rounds, we

still haven't reached 1/4 mg/lb. We started at 4 mg for my 40lb son and are now

at 8.33 mg)

2. Give dose every 4 hours day and night for 6 doses every 24 hrs. You can

give more often if it feels better better or if you giving it with ALA (DMSA/ALA

dosing is usually every 3 hrs during the day and 4 hours at night).

3. If you miss a dose, then stop the round...I usually gave myself about a 15

minute window if I was dosing with DMSA alone.

4. Don't chelate with a fever greater than 100F, when the child is vomiting, or

otherwise ill. Some people will chelate a child with a cold, but I usually

don't.

5. Take at least as many days off as you chelate before chelating again. Most

people do 3 days on followed by 4 days off...basically doing it on weekends.

We've always done every other weekend or every 3rd weekend because getting up at

night wipes ME out. My son does fine, but I'm tired.

6. Have supportive supplements (anti-oxidants, extra minerals, EFA's etc.) on

board. There is a document in the files section about this. Also, drink lots

of water and fluids.

7. Be ready to treat yeast as it will rear its ugly head.

Hope that helps.

>

> ,

>

> Thank you very much for your post. My husband and I have been very worried

about our son. I have not been getting enough sleep myself and this has probably

affected my thinking and judgment more than I realized.

>

> > Normal DMSA side effects that I've seen. These mostly resolve on their own

or when you treat for yeast.

> >

> > Fatigue...like napping when they don't usually do so.

> > LOW Fever...like 99F especially the first few rounds.

> > More urine production..means you need to make sure to drink lots of water.

> > Pee accidents...this is usually yeast and can range from wetting the bed to

not making it to the bathroom on time. We had horrible problems with this after

Rounds #3 & Round #4.

> > For my son, increased appetite the first few rounds...he is a skinny boy so

I just fed him more.

> > Crankiness the day AFTER the round ends...this is probably redistribution.

>

> Thank you very much for providing this list. Just now (almost 24 hours exactly

since onset), his fever broke. He has been having many of the symptoms you

cited: fatigue, fever (albeit higher), normal or maybe less urine, pee

accidents, weird appetite (seems hungry but doesn't want any of the foods we

offer except watermelon and brown rice). He has been relatively normal between

the unusual naps. After eating supper, he looks tired again (he did want and ate

a bit of sulfur and phenol foods but I didn't protest much as he hasn't been

getting many calories today) and he says his left ankle, where the skin has gone

red, feels tingly and numb. Is this tingling also common, or should I be alert

to take some action?

>

> > On my son's 3rd round, we had a horrible (103F) high fever on Day #2. I

stopped the round. It is normal to stop the round or not chelate with a fever

of more than 100F. I was worrying just like you are and then found out on

Monday that 1/2 his preschool class had had the same thing...pretty sure they

aren't all chelating.:-)

>

> Good thought. We mustn't rule out a virus...

>

> > Why are you dosing every 2 hrs? Most people dose every 4 hours day and

night for DMSA. They may reduce the time between rounds if they have side

effects. It sounds like your dose is really low so that probably isn't the

problem. However, IF you missed a dose by more than an hour, you need to stop

the round. Then you wait until your next scheduled chelating time to start

again.

>

> Well, I recounted (my basic arithmetic has been bad lately, probably another

sign that I am not getting enough rest myself) and our son " missed " three doses

(10PM, 2AM, 6AM) instead of two. I made two pretty miserable errors in my first

attempt to do DMSA chelation:

>

> 1. I misremembered someone's post about a gentler protocol for their family

(more often during the day, less often in the evenings) as having to do with

DMSA when it was actually about ALA. The protocols are not the same, I learned

the hard way.

>

> 2. I misinterpreted Andy Cutler's rule about doing DMSA every four hours or

less as meaning that the DMSA doses have to be no farther apart than four hours.

Again, I just learned the hard way that you have to dose DMSA at *exactly the

same* intervals throughout the chelation round.

>

> I am trying to stay calm, though I've been running on adrenaline for the past

couple days and not sleeping well. Counting blessings...

>

> Thank you again,

>

>

[Guest guest]

he says his left ankle, where the skin has gone red, feels tingly and numb. Is

this tingling also common, or should I be alert to take some action?

^^^^^, my son experienced both the rash and the numbness in his legs, but

with ALA. I think this is redistribution of metals and/or detox of more than

the body can handle through the skin. It was frightening to my son (15 yo HFA).

We have discontinued chelation for the time being and are working on healing the

gut and ridding viruses/bacteria.

I guess our kids have a combination of metals, viruses, bacteria, parasites,

inflammation, and mito issues. I don't think my son is ready to detox the

metals, and that is why he experiences rashes and numbness.

Also I don't think you should beat yourself up about the dosing schedule. It's

not likely that caused the fever. Over the years I've read at least 100

different anecdotal routes to recovery from autism. A lot of them did not

involve AC chelation and others did. I've also read anecdotal posts by moms who

were killing themselves doing everything possible to recover their kid and their

children were not at the same high level of functioning as my own son and

students I have worked with. These women were not doing it wrong and I am not

doing it right. We just don't have all the answers yet, so trust your gut, pay

attention to your child's signs and cut yourself a break. He may recover, he

may not, but you are really doing an excellent job and please enjoy your child.

It's a different journey or both of you, but it will be so much more interesting

and enlightening than if he had been " NT " from the get go.

Jen

[Guest guest]

>

> Quick question - are you casein free? Seems odd to me that he requests soy

probiotics. Are you sure he doesn't have soy issues? My kid got really high,

random fevers (with no symptoms of illness besides the fever, like a cough or

tummy trouble) until we pulled soy.

Yes, we're on a gluten-free casein-free diet. Interesting what you say about

soy! Would the fevers come on at any time, or usually during a chelation round?

How long would they last?

Our boy's fever broke last night, but came back after supper and Epsom salts

bath. He woke up several times in the night, feverish but lucid, to drink water

or juice or licorice tea (spiked with the usual glycine and taurine), always at

his request. His diaper was full of urine in the morning.

He's still feeling poorly. He ate two bites of cornflakes and soy milk (before I

read your post) and went back to sleep. Basically he's been sleeping on and off

since Thursday night, and it's now Sunday morning. He seemed to be getting a

runny nose briefly last night before supper, but that seems gone now. He does

seem crankier today. We're all disappointed that our whole weekend has been

taken over by illness; my husband and son were looking forward to attending an

event together, but now they're just sleeping.

I'm worried about getting enough protein and calories into my son. He seems to

get skinnier before our eyes. We have been vegan but he doesn't seem to care for

the rice protein powder that I've been trying to sneak into smoothies. If we

remove soy, and if we keep trying to stay low on sulfur foods and phenol foods,

then that omits about everything but non-peanut nuts, I think, which means we'll

have to find some relatively clean animal foods. Another reason we went vegan

was because of the mercury and PCBs in fish, even high quality fish like wild

Alaskan salmon; salmonella, E. coli, and suspect prions in beef; bacteria in

chicken; etc. What brands of chicken (dark meat) and turkey are considered

mostly safe these days?

Thank you,

[Guest guest]

Jen, thanks for your post. The numbness is definitely scary, though I think it

went away fairly quickly for my son. At least he said it did and the skin

redness is gone now.

> I guess our kids have a combination of metals, viruses, bacteria, parasites,

inflammation, and mito issues. I don't think my son is ready to detox the

metals, and that is why he experiences rashes and numbness.

Yes, I agree it's a very complex situation, especially for people with no

medical training (husband and me). I've been operating under the assumption that

we will *never* know enough to understand exactly what's going on with our son.

The question is whether we can help his health improve just knowing what we do

know.

> Also I don't think you should beat yourself up about the dosing schedule.

It's not likely that caused the fever. Over the years I've read at least 100

different anecdotal routes to recovery from autism. A lot of them did not

involve AC chelation and others did. I've also read anecdotal posts by moms who

were killing themselves doing everything possible to recover their kid and their

children were not at the same high level of functioning as my own son and

students I have worked with. These women were not doing it wrong and I am not

doing it right. We just don't have all the answers yet...

Thank you for providing this perspective. I got some sleep last night am feeling

better, not so much running on fumes, and can appreciate your point of view. The

fever may be coincidental to the chelation. Our son is still sleeping a lot and

has a low fever; he just woke up now wanting more licorice tea (with glycine and

taurine) and complaining of headache. His dad is also feeling very sleepy and

has a headache, but that might because he has been overtired lately (same as

me).

As I've been struggling with dealing with this, I've also been feeling some

guilt and shame because our son is high-functioning and perhaps has fewer issues

than other children whose parents are also struggling, probably moreso than we

are. At the same time, I can't turn off my protective mother bear instinct. It's

there when he gets a minor gash on his knee, it's there when he doesn't respond

to his name or hits a child at preschool or cannot seem to stop pretending to be

an airplane, it's just always there, always on, driving me like a jackhammer.

(Sigh.)

We do try to remember to enjoy our child and to remember our younger child.

Thanks for that reminder, too. We had been hoping to attend a fun event this

weekend, but this debilitating fever/mis-chelation has put everyone in bed, sad

and hungry.

I'm thinking we should focus on healing and supplementing as much as possible

before attempting chelation again. Our son *was* seeming reasonably well before

chelation, wasn't behaving like he had an active yeast thing going on, appetite

was improved, sleep was slightly improved, which is why I thought we could try

starting it. I don't know whether our next attempt will be this coming weekend

or when exactly. I think our first priority has to be fixing our son's diet to

get more protein, nutrients, and calories into our son and properly digested and

taken up by his system.

* Based on his recent organic acids test which showed high oxidative stress and

high difficulty in clearing same, I ordered adrenal cortex glandular from the

recommended source (Nutricology, if I recall correctly). It's not vegan (comes

from cows) but it sounds pretty clean (comes from New Zealand, where they

haven't had any reported BSE cases).

* I'm going to try to find a B-complex that he'll take. He did try a quarter of

one chewable that I had on hand, but there's something about it that he doesn't

like. He seems to have a pretty good intuition about what his body needs.

* The Juice Plus Chewables that he's been taking for vitamins C, A, and E are

too sugary (tapioca syrup, maltodextrin, and evaporated cane juice are the first

three ingredients) which I suspect is bad for yeast and too low dosage to

support him. I need to find chewable versions of these that he'll take. I tried

NutriBiotic's Hypo-Aller C powder in a smoothie but he wouldn't eat it (it also

contains calcium, magnesium, zinc and potassium).

* I'm going to get magnesium and zinc from the recommended sources as well (will

try FloraDix or IonicFizz for Mg, maybe Twin Labs' Chelated Zinc or BrainChild

Nutritionals LiquiZinc for Zn). He has absolutely refused the zinc citrate

chewable that I have, ZincEase (maybe it's the lemon flavoring...?), so have to

find something else.

* I'm considering molybdenum and will look into the Houston Enzymes No-Fenol

(sp?) product that I've seen mentioned here. I think he has an issue with both

sulfur foods and phenol foods, and I've read somewhere that molybdenum and

No-Fenol might help with at least the phenol side. It think chelation is the

only thing that can help with the sulfur foods issue, because sulfur foods are

problematic because they rile up mercury in people with high plasma cysteine, if

I recall correctly.

Teaching our child to swallow pills might also be on the agenda, because finding

tasty versions of all this stuff is difficult.

Anyway, that's what I'm thinking currently.

Thank you,

[Guest guest]

,

Thank you for your reply. I appreciate knowing what to expect with the tingling.

It seemed to go away as quickly as it appeared. I'm hoping it doesn't return.

His fever did return last night and he's still sleeping and warm, though not as

warm as he was at night.

Thanks as well for the suggestion of using a digital kitchen timer. I have one

that sounds similar, will see if it'll go up to four hours. I had been using my

mobile phone to remind me. (Of course, I had it reminding me about an

*incorrect* schedule!)

> BASIC Rules for AC Protocol for DMSA alone.

>

> 1. Start with dose of 1/4 mg per lb or less. (Note that after 22 rounds, we

still haven't reached 1/4 mg/lb. We started at 4 mg for my 40lb son and are now

at 8.33 mg)

When we resume chelation, we're thinking we'll try 1mg or 2mg DMSA every four

hours for three days and nights, then take four days off. We'll pick one dosage

and stick with it for the whole 72 hours.

> 2. Give dose every 4 hours day and night for 6 doses every 24 hrs. You can

give more often if it feels better better or if you giving it with ALA (DMSA/ALA

dosing is usually every 3 hrs during the day and 4 hours at night).

We're not going to start ALA until the DMSA seems to have no or minimal effect

on him.

Just to clarify, you're saying you *can* do DMSA with ALA every 3 hours during

the day and DMSA with ALA every 4 hours at night?

> 3. If you miss a dose, then stop the round...I usually gave myself about a 15

minute window if I was dosing with DMSA alone.

Good to know about the window.

> 4. Don't chelate with a fever greater than 100F, when the child is vomiting,

or otherwise ill. Some people will chelate a child with a cold, but I usually

don't.

I think we will not chelate if our son seems to have a cold, flu or fever. His

current reaction is really scaring us.

> 6. Have supportive supplements (anti-oxidants, extra minerals, EFA's etc.) on

board. There is a document in the files section about this. Also, drink lots

of water and fluids.

Yes, I think we will prioritize this before we attempt chelation again. I just

replied to another person on this topic with a list of specific supplements that

I intend to get.

One delay I hadn't anticipated is his balking at taking some chewable

supplements. They taste fine to me. But maybe he's sensitive to the flavorings.

I need to be more diligent about getting stuff that's more hypoallergenic, I

think.

> 7. Be ready to treat yeast as it will rear its ugly head.

I think we've been successful using GSE. I *think* it cleared or reduced his

recent yeast infection, because his appetite was up and his weird behaviors were

down. I'm concerned about its sulfur effect, though. Sometimes he will take only

a quarter drop (in water).

The caprylic acid that I tried with him tasted horrible. He won't take that. I

do think life would be much easier if he could swallow pills, so we'll try to

teach him that.

At this point I'm feeling overwhelmed with trying to understand and get going

the sheer volume of supplements, sulfur foods to avoid, phenol foods to avoid,

etc. It doesn't help that we have no babysitters or other support (grandparents

all live far away).

Thanks,

[Guest guest]

,

My answers have * around them.

" Just to clarify, you're saying you *can* do DMSA with ALA every 3 hours during

the day and DMSA with ALA every 4 hours at night? "

*YES*

" One delay I hadn't anticipated is his balking at taking some chewable

supplements. They taste fine to me. But maybe he's sensitive to the flavorings.

I need to be more diligent about getting stuff that's more hypoallergenic, I

think. "

*My son won't do chewable stuff either unless it is a " gummy " version. He

doesn't like the texture. We do capsules that I pull apart and dump the powder

into juice and softgels that I poke with a needle and squeeze onto a spoon.*

" The caprylic acid that I tried with him tasted horrible. He won't take that. I

do think life would be much easier if he could swallow pills, so we'll try to

teach him that. "

*You can try using coconut oil that contains caprylic acid. We do 1 capsule

(1000 mg) every day. I poke the capsule and squeeze it out onto a spoon along

with my son's other softgels (Fish Oil, Vit E,Vit D, CoQ10). You can also cook

with coconut oil.*

>

> ,

>

> Thank you for your reply. I appreciate knowing what to expect with the

tingling. It seemed to go away as quickly as it appeared. I'm hoping it doesn't

return. His fever did return last night and he's still sleeping and warm, though

not as warm as he was at night.

>

> Thanks as well for the suggestion of using a digital kitchen timer. I have one

that sounds similar, will see if it'll go up to four hours. I had been using my

mobile phone to remind me. (Of course, I had it reminding me about an

*incorrect* schedule!)

>

> > BASIC Rules for AC Protocol for DMSA alone.

> >

> > 1. Start with dose of 1/4 mg per lb or less. (Note that after 22 rounds, we

still haven't reached 1/4 mg/lb. We started at 4 mg for my 40lb son and are now

at 8.33 mg)

>

> When we resume chelation, we're thinking we'll try 1mg or 2mg DMSA every four

hours for three days and nights, then take four days off. We'll pick one dosage

and stick with it for the whole 72 hours.

>

> > 2. Give dose every 4 hours day and night for 6 doses every 24 hrs. You can

give more often if it feels better better or if you giving it with ALA (DMSA/ALA

dosing is usually every 3 hrs during the day and 4 hours at night).

>

> We're not going to start ALA until the DMSA seems to have no or minimal effect

on him.

>

> >

> > 3. If you miss a dose, then stop the round...I usually gave myself about a

15 minute window if I was dosing with DMSA alone.

>

> Good to know about the window.

>

> > 4. Don't chelate with a fever greater than 100F, when the child is

vomiting, or otherwise ill. Some people will chelate a child with a cold, but I

usually don't.

>

> I think we will not chelate if our son seems to have a cold, flu or fever. His

current reaction is really scaring us.

>

> > 6. Have supportive supplements (anti-oxidants, extra minerals, EFA's etc.)

on board. There is a document in the files section about this. Also, drink

lots of water and fluids.

>

> Yes, I think we will prioritize this before we attempt chelation again. I just

replied to another person on this topic with a list of specific supplements that

I intend to get.

>

> One delay I hadn't anticipated is his balking at taking some chewable

supplements. They taste fine to me. But maybe he's sensitive to the flavorings.

I need to be more diligent about getting stuff that's more hypoallergenic, I

think.

>

> > 7. Be ready to treat yeast as it will rear its ugly head.

>

> I think we've been successful using GSE. I *think* it cleared or reduced his

recent yeast infection, because his appetite was up and his weird behaviors were

down. I'm concerned about its sulfur effect, though. Sometimes he will take only

a quarter drop (in water).

>

> The caprylic acid that I tried with him tasted horrible. He won't take that. I

do think life would be much easier if he could swallow pills, so we'll try to

teach him that.

>

> At this point I'm feeling overwhelmed with trying to understand and get going

the sheer volume of supplements, sulfur foods to avoid, phenol foods to avoid,

etc. It doesn't help that we have no babysitters or other support (grandparents

all live far away).

>

> Thanks,

>

>