Guest guest Posted July 9, 2010 Report Share Posted July 9, 2010 I take 1000mg twice a day, for about 3 months now. of course I am an adult, so the dose would have to be lower but what? On Tue, Jun 29, 2010 at 5:10 AM, mrsjeffry <mrsjeffry@...> wrote: > Hi - I am a new user! > I have a 4 year old, who has had epilepsy since 6 months, and we have not > yet got it under control, and doubt ever will - so now I am exploring > avenues other than, pharmaceuticals. > I have recently had Taurine suggested to me. Would anyone have any > comments about this....or anyother vits etc that I could add (along with > dose levels) > Thanks > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 Is anyone giving their child Taurine to help prevent seizures from coming on? My son's D.A.N. wants us to start him on Taurine as soon as possible, any side effects? Thanks in advance, Vicki 's Mom 13 1/2 years old, HFA/Vaccine Injured Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 Thank you Karla, I'm always very nervous starting something new, especially since my son seems to be getting worse, I definitely don't want something to provoke seizures. In a message dated 9/1/2010 6:56:23 P.M. Pacific Daylight Time, wiersmak@... writes: I know two people on another board that are using taurine for seizures. One has said it helps her son, the other hasnt seen any change, but hasnt been on it long. Not sure how long it would take to see changes. Karla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 That's what I'm worried about, side effects & it's possibly provoking more, severe seizures. I don't know what to do? In a message dated 9/1/2010 7:46:05 P.M. Pacific Daylight Time, mbrookh@... writes: although lab testing would indicate a need for taurine[low plasma levels and very high urine levels], this was not a good supp for seizures for my daughter. We tried it on a couple of occasions- it provoked seizures. There must be more to the story than just giving taurine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 I know two people on another board that are using taurine for seizures. One has said it helps her son, the other hasnt seen any change, but hasnt been on it long. Not sure how long it would take to see changes. Karla > > Is anyone giving their child Taurine to help prevent seizures from coming > on? > My son's D.A.N. wants us to start him on Taurine as soon as possible, any > side effects? > > Thanks in advance, > Vicki > 's Mom 13 1/2 years old, HFA/Vaccine Injured > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2010 Report Share Posted September 1, 2010 although lab testing would indicate a need for taurine[low plasma levels and very high urine levels], this was not a good supp for seizures for my daughter. We tried it on a couple of occasions- it provoked seizures. There must be more to the story than just giving taurine. > > > > Is anyone giving their child Taurine to help prevent seizures from coming > > on? > > My son's D.A.N. wants us to start him on Taurine as soon as possible, any > > side effects? > > > > Thanks in advance, > > Vicki > > 's Mom 13 1/2 years old, HFA/Vaccine Injured > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Get him on anti-seizure meds, once under control has you considered trying AC chelation. > > It's for my 13 1/2 year old Autistic son, no meds yet, need an EEG, he's > had 2 episodes for the last 3 weeks with him resulting in getting dizzy last > night, his eyes rolling in the back of his head & passing out for a few > seconds until his Father was able to wake him up. > We were in the ER for 5 hours last night, blood work, Urine & Cat Scan all > look good, his DAN Dr. suggested seizures last week when we saw him but I > have LONG suspected absence seizures BUT now they seem to be progressing > which is very scary. > His Father started him on one pill of Taurine tonight, so, I guess we have > to see how is goes. > > > In a message dated 9/1/2010 8:45:27 P.M. Pacific Daylight Time, > ideals04@... writes: > > Are you on any rx for seizures? What about chelation? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 No, he's not. He's currently on B-12 Shots, prescribed from his DAN Dr. for the last 3 1/2 months & now, Taurine as of yesterday. He also tested positive for strep. We have been testing & trying things little by little to see what will work. Also going to start a new Probiotic his DAN ordered for us, we are starting that one today. He has been on Probiotics in the past but this was is stronger. Also Biotin will be reintroduced in a few months. In a message dated 9/2/2010 1:39:26 P.M. Pacific Daylight Time, catherine.krupa@... writes: Is your son getting any magesium? My husband developed seizures and medications were not working. He told me his symptoms were muscle twitching, etc... I started him on a supplement of magnesium, calcium, zinc, and D and they are under control with no prescription drugs. He's probably the exception though. Just a thought. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Is your son getting any magesium? My husband developed seizures and medications were not working. He told me his symptoms were muscle twitching, etc... I started him on a supplement of magnesium, calcium, zinc, and D and they are under control with no prescription drugs. He's probably the exception though. Just a thought. > > It's for my 13 1/2 year old Autistic son, no meds yet, need an EEG, he's > had 2 episodes for the last 3 weeks with him resulting in getting dizzy last > night, his eyes rolling in the back of his head & passing out for a few > seconds until his Father was able to wake him up. > We were in the ER for 5 hours last night, blood work, Urine & Cat Scan all > look good, his DAN Dr. suggested seizures last week when we saw him but I > have LONG suspected absence seizures BUT now they seem to be progressing > which is very scary. > His Father started him on one pill of Taurine tonight, so, I guess we have > to see how is goes. > > > In a message dated 9/1/2010 8:45:27 P.M. Pacific Daylight Time, > ideals04@... writes: > > Are you on any rx for seizures? What about chelation? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Vicki, There's some good info on seizures and anticonvulsants @ ARIsupport/ If you search under 'depakote' you'll find some recent trends-info I wished I'd known years ago! For us gfcfsf has been the best thing we've done for seizures. The episodes would occur many hours after eating an offending item so it was hard to spot until we did total withdrawal. I'm sorry about the episodes - even after all these years, it still is totally upsetting when they occur, > > It's for my 13 1/2 year old Autistic son, no meds yet, need an EEG, he's > had 2 episodes for the last 3 weeks with him resulting in getting dizzy last > night, his eyes rolling in the back of his head & passing out for a few > seconds until his Father was able to wake him up. > We were in the ER for 5 hours last night, blood work, Urine & Cat Scan all > look good, his DAN Dr. suggested seizures last week when we saw him but I > have LONG suspected absence seizures BUT now they seem to be progressing > which is very scary. > His Father started him on one pill of Taurine tonight, so, I guess we have > to see how is goes. > > > In a message dated 9/1/2010 8:45:27 P.M. Pacific Daylight Time, > ideals04@... writes: > > Are you on any rx for seizures? What about chelation? > > > Quote Link to comment Share on other sites More sharing options...
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