Re: Considering starting AC

March 18, 2011

We began AC protocol with a toddler grandchild who had lead and mercury issues.

He was a quick responder - entered K with no one the wiser. Now in 5th grade;

funny, social, great fine and gross motor skills, etc and a very lucky little

guy. His mom had watched as her younger sister went down the tubes from a 6y

DPT. This sister began chelation about the same time - she was amost 17y. She is

much better but will not ever see the remarkable recovery that her nephew has

experienced. Please don't waste any more time!!! I, too, was afraid to begin

this but more afraid of the ongoing damage that was apparent over the years.

>

> Hi All,

>

> My little guy is 3.5 years old and I've known about AC chelation since his

> diagnosis almost 18 mos. ago. Since then, we've seen two DAN!s, tried

> homotoxicology and classical homeopathy but we never really get anywhere.

> I'm realizing that he has a lot more detox to do to benefit from the

> homeopathy. I'd like to start AC chelation but to be honest, I'm just

> scared. I have the book and have read most of it. But to just go and start

> without the supervision of any physician really scares me. I've brought it

> up to the DAN! whose tried to steer me toward antibiotics/IVIG for PANDAs

> and HBOT. I think I just need to start something.

>

> Do you need to do preliminary lab work? I'm not one of those super-doctor-y

> mama warriors -- just know enough to know to turn to you guys.

>

> Can someone coach me? Where do I begin? Reassure me this is safe...

>

> Thanks,

>

> L

>

March 18, 2011

Thanks for replying, . Have you been doing it with a doctor or just

based on Andy's book?

On Thu, Mar 17, 2011 at 11:34 PM, mbrookh <mbrookh@...> wrote:

>

> We began AC protocol with a toddler grandchild who had lead and mercury

> issues. He was a quick responder - entered K with no one the wiser. Now in

> 5th grade; funny, social, great fine and gross motor skills, etc and a very

> lucky little guy. His mom had watched as her younger sister went down the

> tubes from a 6y DPT. This sister began chelation about the same time - she

> was amost 17y. She is much better but will not ever see the remarkable

> recovery that her nephew has experienced. Please don't waste any more

> time!!! I, too, was afraid to begin this but more afraid of the ongoing

> damage that was apparent over the years.

>

> >

> > Hi All,

> >

> > My little guy is 3.5 years old and I've known about AC chelation since

> his

> > diagnosis almost 18 mos. ago. Since then, we've seen two DAN!s, tried

> > homotoxicology and classical homeopathy but we never really get anywhere.

> > I'm realizing that he has a lot more detox to do to benefit from the

> > homeopathy. I'd like to start AC chelation but to be honest, I'm just

> > scared. I have the book and have read most of it. But to just go and

> start

> > without the supervision of any physician really scares me. I've brought

> it

> > up to the DAN! whose tried to steer me toward antibiotics/IVIG for PANDAs

> > and HBOT. I think I just need to start something.

> >

> > Do you need to do preliminary lab work? I'm not one of those

> super-doctor-y

> > mama warriors -- just know enough to know to turn to you guys.

> >

> > Can someone coach me? Where do I begin? Reassure me this is safe...

> >

> > Thanks,

> >

> > L

> >

March 18, 2011

I was right where you are over nine and half years ago. I didn't do it then

because I was scared to do it without a doctor. Then I met a wonderful DO

who agreed to consult with Andy, and STILL, I was scared. We are all raised

to believe doctors are the be all and end all, but the truth is, few MD's

are worth their salt. The only doctors I've ever been to who really helped

me feel better were DO's. There are some good MD's, but they are hard to

find.

We went the DAN route. Dr. Holmes gave us hope and some good advice, but

steered us toward MT Promoter, which did nothing.

Andy and Moria on this group -- the only group I could find at the time,

gave me lots of good advice that helped.

We were " lucky. " Our son was normal to fifteen months, and then those shots

took away the son I had given birth to and we then had a son who had lost

all speech, pointing, eye contact. Everything, including his health went to

hell.

But we started the gf diet when he was two. At two and a half we went

casein free, and at three we went soy protein free. We had also added

metabolic support, and I worked with my son all the time.

Since regression, my son would develop an infection with a fever about every

two weeks like clockwork. These were almost always respiratory but also

lots of ear infections. He has had pneumonia eight times since regression.

They said he had a NOS immune disorder. He had SID, OCD, APD. He had an

NOS metabolic disorder because he wasn't regulating copper, so we put him on

extra zinc.

Diet and metabolic supports helped him a lot. He slowly improved. When we

removed soy at age three -- shortly thereafter he said his first sentence.

Doctors said we couldn't chelate because his neutrophil count was too low.

Then that got better, and the DAN talked us into IV chelation in 2006. I

was terrified every time we did it. Seven months later, after a treatment,

my son had a delayed respiratory reaction. It was scary. The DAN said it

was " coincidence. " I thought, " Where have I heard that before? "

But we went back again, and AGAIN, my son had a delayed respiratory

reaction, and this time it snowballed into pneumonia and we wound up at the

hospital. We stopped doing IV. Then last summer the DAN said our son was

high in lead and we needed to chelate him. After the IV DMPS he had

developed a sulfur allergy, so we thought we would do IV EDTA to get the

lead out. We went once a week. On the fourth round, we waited about 45

minutes in the office and then left for the long drive home. There was

horrible traffic, and then our son had a very bad respiratory reaction in

the car in traffic. We were so frightened. We were done with IV.

The DAN STILL wanted to continue but said we would give oral prednisone

before each treatment. The one time my son had had oral steroids, he had a

psychotic episode, so I said, " No! " and I suggested AC chelation, which the

DAN steered us away from and basically said if we didn't want to do it his

way (where he could bleed us even more dry thean he already had) to " Just

leave the metals in there then. "

Before we began IV chelation, our son had all but stopped stimming. The SID

and OCD were gone. After IV, these things came back, but his speech kept

improving. Other things kept improving, as well, but he was still sick all

the time and had to be on Pulmacort and Xopanex and antibiotics all the time

for one infection or another. He had also started developing radiating

staph any time and insect bit him. So he was on antibiotics often.

When the stimming/hyperactivity came back, the DAN tried to talk me into

putting him on Prozac. I refused. The DAN would also admonish us for not

coming in EVERY WEEK. I told him we couldn't afford $280 out of pocket

every week. By this time, doing DAN along with all our son's trips to the

emergency room over the years had broken us. I think he was disappointed he

couldn't squeeze another drop.

We haven't been back.

Then I remembered Andy, Moria, and this group and how much they helped us in

the beginning. I re-read Andy's book. I was scared, given our experience

and our son's reaction to IV chelation. Then another mom gave me a good

kick in the pants (hypothetically speaking), but we took the plunge. We

started nine weeks ago with ALA only.

For the first time in over nine years, our son has not been sick. I learned

about supporting his adrenals. Another mom sent me a research paper on how

ALA was reducing children's asthma. It could be the ACE, the ALA, or both.

I don't care which. I only know that for the first time in nine and a half

years my son has not been sick. He has not had an infection. he has not

had a fever. He has only needed his rescue inhaler THREE times.

On rounds, he is so " with it. " His speech keeps improving and academics are

taking off.

AC is not like IV with its infrequent high doses. It is " low and slow. " It

is a gradual process that can take from two to six years. But I can tell

you, based on the improvements we've seen, we will be in this for the long

haul.

As well as our son did with dietary and metabolic intervention, I truly

believe if we had started AC when he was three, he would have lost the

diagnoses by now. I truly believe this.

In Andy's book, he talks about ways to get doctors to run the tests you want

without having to go into a lot of detail about why you want them.

If it makes you feel better you can get a CBC - check total neutrophil

count. Have a doc check kidney and liver function. I would check

copper/zinc ratio as many of these kids need to be on zinc to chelate excess

copper.

The way we are doing it is very natural -- they sell ALA at Wal-Mart OTC,

for heaven's sake! There are tons of people with amalgams in their mouths

who shouldn't be taking it who are probably taking it and wondering why they

have brain fog. It is very safe, but for the benefit of your child, you

know per ANDY to dose ALA every three hours round the clock for a minimum of

66 hours (though he says seventy-two is best). We dose 66.

After starting this, I am fairly convinced that a lot if not most of my

son's respiratory issues have stemmed form adrenal fatigue rather than true

asthma. ACE has helped with the " asthma, " anxiety, weepy-ness,

clingy-ness. We use biotin and GSE for yeast. Mercury loves to hide in the

adrenals and mess up their function.

This method of chelation gives you, the parent lots of control. it is hard

to stop anything once an IV push has been done. but with AC, if something

comes up, you stop the round and can give some activated charcoal to mop up

floating metals.

We haven't had to stop a round yet. We start round 10 tomorrow. I find

myself looking forward to each new round.

I was scared -- I spent too many years being scared and put it off too

long. You have a great opportunity to start now while your child is

young. I am here wishing I had started my son on AC way back then, and

wondering.... we wound have had a full six years behind us, and the metals

would be OUT. Now it won't be until he is seventeen (but most are helped in

three), so I am hoping it will be sooner rather than later, but we will do

it until we feel the metals are OUT.

If DMSA or DMPS scare you, consider starting with ALA only, and you can then

add DMSA in with it later when you feel more comfortable. That is what we

have done, and it is working for our son.

Your sister of circumstance,

Haven

March 18, 2011

Oral, available OTC at vrp.com in 25mg capsules

Mandi in UK

In a message dated 18/03/2011 13:48:19 GMT Standard Time,

carmichael.stacy@... writes:

Where does one order DMSA? Oral or rectal?

Thanks-

March 18, 2011

How did you know your grandchild had high levels of mercury and lead?

Did you need to see a DAN dr to run tests? I want my son to get some testing but

not sure where to go.

> >

> > Hi All,

> >

> > My little guy is 3.5 years old and I've known about AC chelation since his

> > diagnosis almost 18 mos. ago. Since then, we've seen two DAN!s, tried

> > homotoxicology and classical homeopathy but we never really get anywhere.

> > I'm realizing that he has a lot more detox to do to benefit from the

> > homeopathy. I'd like to start AC chelation but to be honest, I'm just

> > scared. I have the book and have read most of it. But to just go and start

> > without the supervision of any physician really scares me. I've brought it

> > up to the DAN! whose tried to steer me toward antibiotics/IVIG for PANDAs

> > and HBOT. I think I just need to start something.

> >

> > Do you need to do preliminary lab work? I'm not one of those super-doctor-y

> > mama warriors -- just know enough to know to turn to you guys.

> >

> > Can someone coach me? Where do I begin? Reassure me this is safe...

> >

> > Thanks,

> >

> > L

> >

March 18, 2011

Haven,

What is Andy's book? Do you have a title you can give me? I am very interested

in reading it. Thanks.

>

> I was right where you are over nine and half years ago. I didn't do it then

> because I was scared to do it without a doctor. Then I met a wonderful DO

> who agreed to consult with Andy, and STILL, I was scared. We are all raised

> to believe doctors are the be all and end all, but the truth is, few MD's

> are worth their salt. The only doctors I've ever been to who really helped

> me feel better were DO's. There are some good MD's, but they are hard to

> find.

>

> We went the DAN route. Dr. Holmes gave us hope and some good advice, but

> steered us toward MT Promoter, which did nothing.

>

> Andy and Moria on this group -- the only group I could find at the time,

> gave me lots of good advice that helped.

>

> We were " lucky. " Our son was normal to fifteen months, and then those shots

> took away the son I had given birth to and we then had a son who had lost

> all speech, pointing, eye contact. Everything, including his health went to

> hell.

>

> But we started the gf diet when he was two. At two and a half we went

> casein free, and at three we went soy protein free. We had also added

> metabolic support, and I worked with my son all the time.

>

> Since regression, my son would develop an infection with a fever about every

> two weeks like clockwork. These were almost always respiratory but also

> lots of ear infections. He has had pneumonia eight times since regression.

> They said he had a NOS immune disorder. He had SID, OCD, APD. He had an

> NOS metabolic disorder because he wasn't regulating copper, so we put him on

> extra zinc.

>

> Diet and metabolic supports helped him a lot. He slowly improved. When we

> removed soy at age three -- shortly thereafter he said his first sentence.

>

> Doctors said we couldn't chelate because his neutrophil count was too low.

> Then that got better, and the DAN talked us into IV chelation in 2006. I

> was terrified every time we did it. Seven months later, after a treatment,

> my son had a delayed respiratory reaction. It was scary. The DAN said it

> was " coincidence. " I thought, " Where have I heard that before? "

>

> But we went back again, and AGAIN, my son had a delayed respiratory

> reaction, and this time it snowballed into pneumonia and we wound up at the

> hospital. We stopped doing IV. Then last summer the DAN said our son was

> high in lead and we needed to chelate him. After the IV DMPS he had

> developed a sulfur allergy, so we thought we would do IV EDTA to get the

> lead out. We went once a week. On the fourth round, we waited about 45

> minutes in the office and then left for the long drive home. There was

> horrible traffic, and then our son had a very bad respiratory reaction in

> the car in traffic. We were so frightened. We were done with IV.

>

> The DAN STILL wanted to continue but said we would give oral prednisone

> before each treatment. The one time my son had had oral steroids, he had a

> psychotic episode, so I said, " No! " and I suggested AC chelation, which the

> DAN steered us away from and basically said if we didn't want to do it his

> way (where he could bleed us even more dry thean he already had) to " Just

> leave the metals in there then. "

>

> Before we began IV chelation, our son had all but stopped stimming. The SID

> and OCD were gone. After IV, these things came back, but his speech kept

> improving. Other things kept improving, as well, but he was still sick all

> the time and had to be on Pulmacort and Xopanex and antibiotics all the time

> for one infection or another. He had also started developing radiating

> staph any time and insect bit him. So he was on antibiotics often.

>

> When the stimming/hyperactivity came back, the DAN tried to talk me into

> putting him on Prozac. I refused. The DAN would also admonish us for not

> coming in EVERY WEEK. I told him we couldn't afford $280 out of pocket

> every week. By this time, doing DAN along with all our son's trips to the

> emergency room over the years had broken us. I think he was disappointed he

> couldn't squeeze another drop.

>

> We haven't been back.

>

> Then I remembered Andy, Moria, and this group and how much they helped us in

> the beginning. I re-read Andy's book. I was scared, given our experience

> and our son's reaction to IV chelation. Then another mom gave me a good

> kick in the pants (hypothetically speaking), but we took the plunge. We

> started nine weeks ago with ALA only.

>

> For the first time in over nine years, our son has not been sick. I learned

> about supporting his adrenals. Another mom sent me a research paper on how

> ALA was reducing children's asthma. It could be the ACE, the ALA, or both.

> I don't care which. I only know that for the first time in nine and a half

> years my son has not been sick. He has not had an infection. he has not

> had a fever. He has only needed his rescue inhaler THREE times.

>

> On rounds, he is so " with it. " His speech keeps improving and academics are

> taking off.

>

> AC is not like IV with its infrequent high doses. It is " low and slow. " It

> is a gradual process that can take from two to six years. But I can tell

> you, based on the improvements we've seen, we will be in this for the long

> haul.

>

> As well as our son did with dietary and metabolic intervention, I truly

> believe if we had started AC when he was three, he would have lost the

> diagnoses by now. I truly believe this.

>

> In Andy's book, he talks about ways to get doctors to run the tests you want

> without having to go into a lot of detail about why you want them.

>

> If it makes you feel better you can get a CBC - check total neutrophil

> count. Have a doc check kidney and liver function. I would check

> copper/zinc ratio as many of these kids need to be on zinc to chelate excess

> copper.

>

> The way we are doing it is very natural -- they sell ALA at Wal-Mart OTC,

> for heaven's sake! There are tons of people with amalgams in their mouths

> who shouldn't be taking it who are probably taking it and wondering why they

> have brain fog. It is very safe, but for the benefit of your child, you

> know per ANDY to dose ALA every three hours round the clock for a minimum of

> 66 hours (though he says seventy-two is best). We dose 66.

>

> After starting this, I am fairly convinced that a lot if not most of my

> son's respiratory issues have stemmed form adrenal fatigue rather than true

> asthma. ACE has helped with the " asthma, " anxiety, weepy-ness,

> clingy-ness. We use biotin and GSE for yeast. Mercury loves to hide in the

> adrenals and mess up their function.

>

> This method of chelation gives you, the parent lots of control. it is hard

> to stop anything once an IV push has been done. but with AC, if something

> comes up, you stop the round and can give some activated charcoal to mop up

> floating metals.

>

> We haven't had to stop a round yet. We start round 10 tomorrow. I find

> myself looking forward to each new round.

>

> I was scared -- I spent too many years being scared and put it off too

> long. You have a great opportunity to start now while your child is

> young. I am here wishing I had started my son on AC way back then, and

> wondering.... we wound have had a full six years behind us, and the metals

> would be OUT. Now it won't be until he is seventeen (but most are helped in

> three), so I am hoping it will be sooner rather than later, but we will do

> it until we feel the metals are OUT.

>

> If DMSA or DMPS scare you, consider starting with ALA only, and you can then

> add DMSA in with it later when you feel more comfortable. That is what we

> have done, and it is working for our son.

>

> Your sister of circumstance,

>

> Haven

>

March 18, 2011

I would like to know the name of this Andy's book also. Do you do this by

yourself or under dr's supervision. Should i get some testing done or you just

start it and see the benefits And any side effects ........... And if you stop

what is charcoal mop where to get it? My son is 18. Do you think he can benefit

from this? I will take this even if it helps him little bit.. thanks

March 18, 2011

Where does one order DMSA? Oral or rectal?

Thanks-

March 18, 2011

You can get DMSA otc at vrp.com.

You can buy ALA capsules from just about anywhere but we use Kirkman's from

Kirkmanlab.com. These are 25 mg ALA caps, so I only have to split them in

half. You can get 50 mg capsules at Whole Foods. You can buy empty

capsules form a health food store. DMSA and ALA are dosed by weight of the

child. We use ALA, but we are giving a little less than the recommended 1/8

mg per pound.

But you need to read and study Andy's book and also get a yeast protocol in

place. We use biotin and GSE for yeast. We use ACE for adrenal support.

If you can get a doc to order a hair test from Doctor's Data, then you can

per Andy apply the " rules of counting " to see if your child meets these

rules, which indicates mercury intoxication.

I am NOT telling you what to do. I am only telling you what we have done

and we see some wonderful changes in our son.

March 18, 2011

We did some basic testing for my daughter[internist] and then began the protocol

that Cutler advocates. Interest was not interested/informed re chelation so we

were on our own. A few months down the road I did a consult w Andy Cutler. All

you need is in his writings and help from good people here.

> > >

> > > Hi All,

> > >

> > > My little guy is 3.5 years old and I've known about AC chelation since

> > his

> > > diagnosis almost 18 mos. ago. Since then, we've seen two DAN!s, tried

> > > homotoxicology and classical homeopathy but we never really get anywhere.

> > > I'm realizing that he has a lot more detox to do to benefit from the

> > > homeopathy. I'd like to start AC chelation but to be honest, I'm just

> > > scared. I have the book and have read most of it. But to just go and

> > start

> > > without the supervision of any physician really scares me. I've brought

> > it

> > > up to the DAN! whose tried to steer me toward antibiotics/IVIG for PANDAs

> > > and HBOT. I think I just need to start something.

> > >

> > > Do you need to do preliminary lab work? I'm not one of those

> > super-doctor-y

> > > mama warriors -- just know enough to know to turn to you guys.

> > >

> > > Can someone coach me? Where do I begin? Reassure me this is safe...

> > >

> > > Thanks,

> > >

> > > L

> > >

March 18, 2011

My grandson was behind in skills esp speech-had some but very mushy. His folks

had been renovating an old house and his mom, my oldest, was concerned about

lead exposure. She took him in for testing - levels over approx 10mos varied

from 30-50[nl=<10].All the docs wanted to do was monitor levels. As you and I

know the lead blood levels decrease as the lead is packed into body stores so

waiting until the lead levels are normal is futile for future healthy growth and

development. I saw many 'mercury' indicators - flapping, toe walking, speech

problems, extreme texture sensitivity, ?deafness etc. A simple Hair Elements

Test[see files for how to do this] confirmed the mercury. He met a couple of

counting rules. My daughter chelated him approx 10-12 mos w DMSA. She also

stopped all vaccines-thank heavens he was behind as he was always sick and his

doc did not vaccinate sick children. He was enrolled in speech therapy, lots of

YMCA classes for motor skills and had play groups to socialize. He despised milk

and milk products and also would not eat much gluten so those basic instincts

saved him a lot of damage imo. Our side of the family has allergies to both milk

and gluten through a couple of generations. His turnaround was remarkable and

quick. The only remnant that he has is strep problems which exhibit with OCD a

few times/year. So far antibiotics have cleared this. His younger brother[23mos

younger] has had NO vaccines exc for a DPT at approx age 7y when my daughter was

bullied into it during an ER visit for an injury. FWIW, My daughter was

terrified of going in to the doc for a well baby check for her 2nd child. She

put it off until 4 mos time. The nurse took note and made some comment about

'he's a bit over due for beginning vacines.' When my daughter replied that they

would not be doing them, the nurse's reply was 'thank heavens!' They've never

been hassled about vaccines from this doc.

> > >

> > > Hi All,

> > >

> > > My little guy is 3.5 years old and I've known about AC chelation since his

> > > diagnosis almost 18 mos. ago. Since then, we've seen two DAN!s, tried

> > > homotoxicology and classical homeopathy but we never really get anywhere.

> > > I'm realizing that he has a lot more detox to do to benefit from the

> > > homeopathy. I'd like to start AC chelation but to be honest, I'm just

> > > scared. I have the book and have read most of it. But to just go and

start

> > > without the supervision of any physician really scares me. I've brought

it

> > > up to the DAN! whose tried to steer me toward antibiotics/IVIG for PANDAs

> > > and HBOT. I think I just need to start something.

> > >

> > > Do you need to do preliminary lab work? I'm not one of those

super-doctor-y

> > > mama warriors -- just know enough to know to turn to you guys.

> > >

> > > Can someone coach me? Where do I begin? Reassure me this is safe...

> > >

> > > Thanks,

> > >

> > > L

> > >

March 18, 2011

Don't be afraid. Using Andy Cutler's protocol is safe and everyone could use a

little detoxing, so worst case scenario is that you see no change after ten

rounds and you stop. But I think it will be the smartest decision you have ever

made, if you go through with it. I am chelating my 2.5 and 5.5 year olds. It's

the best thing we've ever done. Feel free to check out my blog to follow our

journey...

http://grayson-youarewhatyoueat.blogspot.com/