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Re: pl .HELP !!!!! Is there a supplement for STIMMING that really works.....

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You are right. It is stimming. Is there any supplement to take care of that. It

so seems like that that he wants to put his thumb in his mouth so bad for a

split second and then will rub the saliva on his cheek in circles and because I

am the one stopping him, he will look at me and then if I am not looking he will

do that and then does it a lot in the bus and the classroom. How to channel it

to some acceptable stim because this one is not hygenic at all. He never used to

do this but clearly he cannot help it. Pl. help.... I'm so drained and so is he

I know. Thanks..

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try to limit one behavior it is replaced by the other one. What should I do?

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> You are right. It is stimming. Is there any supplement to take care of that.

It so seems like that that he wants to put his thumb in his mouth so bad for a

split second and then will rub the saliva on his cheek in circles

Playing with saliva, at my house, meant carnitine deficiency.

Dana

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I feel for You , trust me ! My son does a lot of not hygienic stimming , dirty

things are constantly in his mouth , eat straws and all kind of nasty stuff . If

this is stimming , honestly I am not the one to tell how to channel that ,

because for so many years I haven't found a way , and if he looses one behavior

, another comes just us inappropriate . That does sound like OCD however . So

You may be right . I will be looking in to treating bacteria , parasites .

 Stimming usually increases when the Gut is crowded , detox or It could be high

histamines . Again , in Your case it is hard to tell if it  is OCD or stimming

, but in both cases , I suspect that it may be coming from one source !. Think

about what supps You are giving him at the moment ,it may be reaction to a

suppl. 

Nora Bunis -Stuart 

From: beforesunrise202 <beforesunrise202@...>

Subject: [ ] Re: pl .HELP !!!!! Is there a supplement for

STIMMING that really works.....

Date: Friday, March 18, 2011, 3:21 PM

 

You are right. It is stimming. Is there any supplement to take care of that. It

so seems like that that he wants to put his thumb in his mouth so bad for a

split second and then will rub the saliva on his cheek in circles and because I

am the one stopping him, he will look at me and then if I am not looking he will

do that and then does it a lot in the bus and the classroom. How to channel it

to some acceptable stim because this one is not hygenic at all. He never used to

do this but clearly he cannot help it. Pl. help.... I'm so drained and so is he

I know. Thanks..

>

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> My son has been rubbing his cheek constantly and shaking his head. If I

try to limit one behavior it is replaced by the other one. What should I do?

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Guest guest

We never tested for a carnitine deficiency.  This is a supplement

available everywhere (even at Wal-Mart).  There is quite a bit of

research to back up that Acetyl-L-carnitine can repair cells (possibly

at the mitochondrial level [research from Berkley]).  I think everyone

can benefit from it.  I certainly think most of these kids with

mercury or other metals issues need it.

I know if I remember to take it regularly I have more energy.  I have

had my son on it since he was three, and I truly believe it has helped

him.

It is an amino acid.

ALC has the ability to cross the blood-brain barrier and get to the

brain blood circulation, where it acts as a powerful antioxidant,

which helps in prevention of the brain cells' deterioration. Its

supplementation has been shown to be neuro-protective in instances of

cerebral ischemia in rats and may be useful in treating peripheral

nerve injury. It may have some neuro-protective benefit in the

treatment of Parkinson's disease, but further research is required.

ALC has also been shown to improve insulin response and is proved to

have a positive effect on various muscle diseases as well as heart

conditions.

Research at UC Berkley demonstrated that when very old mice were fed

ALC, over time began to act like middle-aged mice, and when ALA (alpha

lipoic acid) was also added over time, the very old mice began to act

like teen-aged mice. They hypothesized that ALC may get inside cells

and repair cells at the mitochondrial level. This is interesting

research as it is the destruction of the mitochondria in cells that

causes aging and many other problems.

I was especially intrigued by the Berkley research and so have

continued to keep my son on this. It is a powerful antioxidant and

since our children most probably have an excess of antioxidants due to

mercury, it seemed a reasonable supplement to keep him. I also liked

the information regarding it being able to cross the BBB. So I have

my son on ALA per the AC protocol and ALC. According the the research

at Berkley, this could produce some amazing results over time. I

believe, this amino acid more than other I tried contributed to my

son's improvements.

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Thanks i will get ALC. Should I alsoget ALA?

>

> We never tested for a carnitine deficiency.  This is a supplement

> available everywhere (even at Wal-Mart).  There is quite a bit of

> research to back up that Acetyl-L-carnitine can repair cells (possibly

> at the mitochondrial level [research from Berkley]).  I think everyone

> can benefit from it.  I certainly think most of these kids with

> mercury or other metals issues need it.

>

> I know if I remember to take it regularly I have more energy.  I have

> had my son on it since he was three, and I truly believe it has helped

> him.

>

> It is an amino acid.

>

> ALC has the ability to cross the blood-brain barrier and get to the

> brain blood circulation, where it acts as a powerful antioxidant,

> which helps in prevention of the brain cells' deterioration. Its

> supplementation has been shown to be neuro-protective in instances of

> cerebral ischemia in rats and may be useful in treating peripheral

> nerve injury. It may have some neuro-protective benefit in the

> treatment of Parkinson's disease, but further research is required.

> ALC has also been shown to improve insulin response and is proved to

> have a positive effect on various muscle diseases as well as heart

> conditions.

>

> Research at UC Berkley demonstrated that when very old mice were fed

> ALC, over time began to act like middle-aged mice, and when ALA (alpha

> lipoic acid) was also added over time, the very old mice began to act

> like teen-aged mice. They hypothesized that ALC may get inside cells

> and repair cells at the mitochondrial level. This is interesting

> research as it is the destruction of the mitochondria in cells that

> causes aging and many other problems.

>

> I was especially intrigued by the Berkley research and so have

> continued to keep my son on this. It is a powerful antioxidant and

> since our children most probably have an excess of antioxidants due to

> mercury, it seemed a reasonable supplement to keep him. I also liked

> the information regarding it being able to cross the BBB. So I have

> my son on ALA per the AC protocol and ALC. According the the research

> at Berkley, this could produce some amazing results over time. I

> believe, this amino acid more than other I tried contributed to my

> son's improvements.

>

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Are you doing the AC Protocol?

You can give Acetyly-L- Carnitine, but ALA should not be used in a person

who has amalgam fillings in their mouth, and for anyone who has metals in

their body (and most of us do due to the polluted environment). ALA should

be dosed on its half-life of every three hours around the clock for a

minimum of 66 hours (Andy recommends 72 hours).

You can use the ALC, but I wouldn't do the ALA unless I were following the

AC Protocol. To use it differently could cause metals to move around and

get carried into the brain, as ALA crosses the BBB, as well. ALC is fine,

though.

In my last post I meant, " since ASD kids have a lot of oxidative stress "

NOT they have an excess of antioxidants. Sorry about the mistype.

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> how to test this cartinine deficiency?

I tested by observation of symptoms and by giving him some and seeing the

improvements.

>>and what to give him?

Some kids do best with acetyl-l-carnitine. Mine did best with straight

l-carnitine.

Dana

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Also he also keeps his finers crossed and that seems to start the cycle of

rubbing etc..

Any views about this observation since you seem to know everything..

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> Hi Dana,

> Everyone I give my son any form of carnitine he cries in an hour or two.

> May I know why?

The dose may be too high, it may have caused yeast overgrowth, or he may not

need it.

Dana

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Dana,

 

Is 1000mg. of l-carnitine too much to give someone that weighs 140 lbs?

 

From: danasview <danasview@...>

Subject: [ ] Re: pl .HELP !!!!! Is there a supplement for STIMMING

that really works.....

Date: Sunday, March 20, 2011, 11:41 AM

 

> Hi Dana,

> Everyone I give my son any form of carnitine he cries in an hour or two.

> May I know why?

The dose may be too high, it may have caused yeast overgrowth, or he may not

need it.

Dana

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> Dana,

> Is 1000mg. of l-carnitine too much to give someone that weighs 140 lbs?

Not usually, but it is possible. Once my son no longer needed carnitine, it did

cause problems even giving him a small amount.

Dana

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What kind of problems. I thought he needed that for the muscle tone and to help

the other vitamins to work. Am I wrong again?

 

Thanks for all your help.

 

Drissia

From: danasview <danasview@...>

Subject: [ ] Re: pl .HELP !!!!! Is there a supplement for STIMMING

that really works.....

Date: Monday, March 21, 2011, 9:36 AM

 

> Dana,

> Is 1000mg. of l-carnitine too much to give someone that weighs 140 lbs?

Not usually, but it is possible. Once my son no longer needed carnitine, it did

cause problems even giving him a small amount.

Dana

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You might want to try 5-HTP to calm him down. It worked for reducing our son's

verbal stimming/tics (And still does, years later) We're not finding carnitine

addresses that with our son (and carnitine is not widely available in Ontario,

Canada. It may still not be a legal over-the-counter supplement here, or so I've

been told. I still get conflicting messages about that (If not about a lot of

other things, if you know what I mean

For more on this (of all that I meant to say?) just ask? .. .

Otherwise, I'm just trying to keep it simple for you, with respect to your

question/ing.

Best wishes,

Glavic

>

>

> You are right. It is stimming. Is there any supplement to take care of that.

It so seems like that that he wants to put his thumb in his mouth so bad for a

split second and then will rub the saliva on his cheek in circles and because I

am the one stopping him, he will look at me and then if I am not looking he will

do that and then does it a lot in the bus and the classroom. How to channel it

to some acceptable stim because this one is not hygenic at all. He never used to

do this but clearly he cannot help it. Pl. help.... I'm so drained and so is he

I know. Thanks..

> >

> >

> >

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> > My son has been rubbing his cheek constantly and shaking his head. If

I try to limit one behavior it is replaced by the other one. What should I do?

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> What kind of problems.

For my son, spaciness, certain stims, and behavior issues.

>>I thought he needed that for the muscle tone and to help the other vitamins to

work. Am I wrong again?

Those are two reasons to take carnitine. But when my son no longer needed it,

it caused problems. Pretty much every supplement caused problems when it was no

longer needed.

Dana

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Dana,

 

I feel like a dunce, but with your son taking so many supplements, how did you

determine which was the problem?

 

Drissia

From: danasview <danasview@...>

Subject: [ ] Re: pl .HELP !!!!! Is there a supplement for STIMMING

that really works.....

Date: Tuesday, March 22, 2011, 9:32 AM

 

> What kind of problems.

For my son, spaciness, certain stims, and behavior issues.

>>I thought he needed that for the muscle tone and to help the other vitamins to

work. Am I wrong again?

Those are two reasons to take carnitine. But when my son no longer needed it, it

caused problems. Pretty much every supplement caused problems when it was no

longer needed.

Dana

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> Dana,

> I feel like a dunce, but with your son taking so many supplements, how did you

determine which was the problem?

I added one at a time, so I knew what each one did. And, I never gave too many

at any one time. Generally I gave 1-2 sets of supps to address specific issues,

and only when those issues were addressed did I move on to another issue.

And, I learned that for most supps, when they were no longer needed, they tended

to cause the same issue that originally they helped to resolve, so that helped

narrow down the problem supps.

Dana

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Hi Dana OLE 100mg or 500mg.

Also i have been following the discussion on the parasites, do you think that

might be the cause because her son is also licking the knuckles and playing with

saliva around his eyes.

Also as you suggested I got the supplement Kyolic aged garlic extract GABA Vit.

B1, B6, B12. is this ok. it says to give 2 acc. to directions I have been

giving one. What do you suggest?

Also I wanted to give him organic coconut flakes but he wouldn't eat them. I

will buy coconut oil also Do you recommend this too?

Do you recommend buying from Vit. Shoppe or no? and vit. shoppe brands are ok or

not.

Also can you pl. tell me the vitC strength to give and the separate Mg. and Ca

supplents and their strengths please.

Thanks for all your time. You have given me a hope........

I will soon be emailing what treatment we have done with our son.

> > What kind of problems.

>

>

> For my son, spaciness, certain stims, and behavior issues.

>

>

> >>I thought he needed that for the muscle tone and to help the other vitamins

to work. Am I wrong again?

>

>

> Those are two reasons to take carnitine. But when my son no longer needed it,

it caused problems. Pretty much every supplement caused problems when it was no

longer needed.

>

> Dana

>

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> Hi Dana OLE 100mg or 500mg.

I started with 250mg, but if your child is very young, I would recommend

starting with 100mg.

> Also i have been following the discussion on the parasites, do you think that

might be the cause because her son is also licking the knuckles and playing with

saliva around his eyes.

Possibly.

> Also as you suggested I got the supplement Kyolic aged garlic extract GABA

Vit. B1, B6, B12. is this ok. it says to give 2 acc. to directions I have

been giving one. What do you suggest?

Not sure this was my recommendation because I have never recommended kyolic

garlic or GABA. However, if you are giving oone capsule and your child is

benefiting, I don't see a problem with continuing to give it, and maybe even

trying two capsules to see if that causes additional improvements.

> Also I wanted to give him organic coconut flakes but he wouldn't eat them. I

will buy coconut oil also Do you recommend this too?

I have never used coconut, but it can be helpful for certain kids.

> Do you recommend buying from Vit. Shoppe or no? and vit. shoppe brands are ok

or not.

I have never purchased from Vitamin Shoppe, maybe someone else who has, can let

you know of their experience.

> Also can you pl. tell me the vitC strength to give and the separate Mg. and Ca

supplents and their strengths please.

For dosing, I recommend starting at low dose and gradually working up to the

dose your child needs. I started at 250mg vitamin C, 200mg magnesium, and 300mg

calcium. My son was calcium toxic at first, so the calcium caused major

problems until I eliminated his toxicity and gave him the nutrients that calcium

requires for proper absorption.

Dana

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  • 4 weeks later...
Guest guest

Hello Dana

I have tried zink suplimentation and carnitine suplimentation for spitting and

leeking no help for naw do you think carnitin at 250mg 2 times per day is ok for

6y old 50lb or i can upper the dose as no help for naw with leeking and spiting

or mouting object.Al so my son eat grass and leaves do you have any ideas for

that .

Thank you in advance for your help

Ralitsa

> > You are right. It is stimming. Is there any supplement to take care of that.

It so seems like that that he wants to put his thumb in his mouth so bad for a

split second and then will rub the saliva on his cheek in circles

>

>

> Playing with saliva, at my house, meant carnitine deficiency.

>

> Dana

>

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> Hello Dana

> I have tried zink suplimentation and carnitine suplimentation for spitting and

leeking no help for naw do you think carnitin at 250mg 2 times per day is ok for

6y old 50lb or i can upper the dose as no help for naw with leeking and spiting

or mouting object.

You can try 250mg 2x per day. My son needed more than that. Also experiment

with acetyl version as well as straight l-carnitine. Some kids need one and not

the other.

Carnitine was required for my son for spitting. For licking and mouthing

objects, that was usually a yeast problem here.

>>Al so my son eat grass and leaves do you have any ideas for that .

I have several thoughts on what it might be, but first, does it appear to cause

physical or behavioral problems, or on the other hand improvements?

Dana

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Thank you Dana

I have already supliment him with 250mg acetil l carnitine as just carnitine

doesnt work so good here for about 2 months do you think i can give him 300mg

from naw as a trial.I cant realy undurstand what provoce the grass eating all

the time when we are out hi bends for grass and leaves and eat it as at home hi

will leek so out hi eat grass is that sound line steems or OCD i have no clue

and this is constant proces on going leeking at home ant fill his mout with

objects and out eating grass and leaves and if i live him hi will put every

thing in his mout just i dont know what is it we did parasit treatment and

everything just is so strong often and anoing like is not spitting like making

bubles with his saliva i cant stand it .

Thank you for your time

From: danasview <danasview@...>

Subject: [ ] Re: pl .HELP !!!!! Is there a supplement for STIMMING

that really works.....

Date: Sunday, 17 April, 2011, 15:50

 

> Hello Dana

> I have tried zink suplimentation and carnitine suplimentation for spitting and

leeking no help for naw do you think carnitin at 250mg 2 times per day is ok for

6y old 50lb or i can upper the dose as no help for naw with leeking and spiting

or mouting object.

You can try 250mg 2x per day. My son needed more than that. Also experiment with

acetyl version as well as straight l-carnitine. Some kids need one and not the

other.

Carnitine was required for my son for spitting. For licking and mouthing

objects, that was usually a yeast problem here.

>>Al so my son eat grass and leaves do you have any ideas for that .

I have several thoughts on what it might be, but first, does it appear to cause

physical or behavioral problems, or on the other hand improvements?

Dana

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