Re: Anyone have any experience with this Dev Ped?

[Guest guest]

,

Yes, my daughter was sent to Illinois Masonic by Early intervention at the age

of 22 months. Dr Cupoli watched through a glass window as the 6 different ladies

in the room " tried " to work with her.They took a break and I guess spoke with

him and then they all came back in. I was told that she is showing signs and

behaviors that were consistent with the dx of Autism but that she was too young

and has no therapies to address her needs. She was given the DX of Global

Developmental Delay, we were given some labs to run through our ped and 

advised

to come back for a re evaluation in 10 months..that was in June of 10.

I will never forget that day as I sit there waiting for this guy to give me some

answers he says " I'm not going to tell you she has Autism but I'm not going to

tell you she doesn't " . He went on to say and don't try the diet that stuff never

works and that the shots had nothing to do with the changes we were seeing.

Little did he know that until that point I didn't know what the diet was or why

he was telling me not to try it. Of course the first thing I did was research

Autism and biomedical and I got a Dan withing a month.The ladies in the room

even joked about how he was always so open with his feelings and he said

something like your going to miss me, I don't know if he left Illinois Masonic

or what.

Long story short I started working with Dr Usman's office in Naperville,il. She

ran titers for my daughter and her Rubella is sky high and then she also checked

metals and my daughter is very high in lead, aluminum and has some mercury.We

are using antivirals right now and are going to start chelation very soon.I

wonder where my daughter would be had we done nothing as he has said.

He was short, and rubbed me the wrong way but he is what I got free from the

state.I did look at doing a " private " evaluation and it would have costed 1500

to 2000 so I used that money towards biomedical.The case manger for EI called to

set up the re evaluation..I am hoping that I don't see him again.

That was my experience..sorry it wasn't good.

mom to Sieanna Grace 31 months

________________________________

From: <emilysaba1@...>

Sent: Thu, March 17, 2011 11:18:56 AM

Subject: [ ] Anyone have any experience with this Dev Ped?

 

Dr. M. Cupoli, MD

He works out of Chicago. I am looking for a develop behavioral ped

and his name came up. Would be nice to know if anyone else

has used his services?

TIA.

[Guest guest]

Thank you, ! I heard the same thing about Dr. Usman - that she was only

interested in taking your money. Someone mentioned their child was worse after

seeing her. Now I don't know what to do

>

> ,

> Yes, my daughter was sent to Illinois Masonic by Early intervention at the age

> of 22 months. Dr Cupoli watched through a glass window as the 6 different

ladies

> in the room " tried " to work with her.They took a break and I guess spoke with

> him and then they all came back in. I was told that she is showing signs and

> behaviors that were consistent with the dx of Autism but that she was too

young

> and has no therapies to address her needs. She was given the DX of Global

> Developmental Delay, we were given some labs to run through our ped and 

advised

> to come back for a re evaluation in 10 months..that was in June of 10.

>

>

> I will never forget that day as I sit there waiting for this guy to give me

some

> answers he says " I'm not going to tell you she has Autism but I'm not going to

> tell you she doesn't " . He went on to say and don't try the diet that stuff

never

> works and that the shots had nothing to do with the changes we were seeing.

> Little did he know that until that point I didn't know what the diet was or

why

> he was telling me not to try it. Of course the first thing I did was research

> Autism and biomedical and I got a Dan withing a month.The ladies in the room

> even joked about how he was always so open with his feelings and he said

> something like your going to miss me, I don't know if he left Illinois Masonic

> or what.

>

> Long story short I started working with Dr Usman's office in Naperville,il.

She

> ran titers for my daughter and her Rubella is sky high and then she also

checked

> metals and my daughter is very high in lead, aluminum and has some mercury.We

> are using antivirals right now and are going to start chelation very soon.I

> wonder where my daughter would be had we done nothing as he has said.

>

> He was short, and rubbed me the wrong way but he is what I got free from the

> state.I did look at doing a " private " evaluation and it would have costed 1500

> to 2000 so I used that money towards biomedical.The case manger for EI called

to

> set up the re evaluation..I am hoping that I don't see him again.

>

> That was my experience..sorry it wasn't good.

>

>

>

> mom to Sieanna Grace 31 months

>

>

>

>

> ________________________________

> From: <emilysaba1@...>

>

> Sent: Thu, March 17, 2011 11:18:56 AM

> Subject: [ ] Anyone have any experience with this Dev Ped?

>

>  

> Dr. M. Cupoli, MD

>

> He works out of Chicago. I am looking for a develop behavioral ped

> and his name came up. Would be nice to know if anyone else

> has used his services?

>

> TIA.

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Theh last time I saw a dev ped was eight yers ago. she told me my son would

never speak agian, be potty trained, make a friend, be in a regular

classroom, leave home, or go to college. she said I should look for an

institution to put him in NOW and get on with our lives. I said hell no of

course. then she said, " If you can just wait until he is a little older, I

have drugs I can give him to make YOUR life easier. "

I told her no thank you and that I wasn't looking to make my life easier but

the quality of my son's life better. I left there and knew NEVER to bother

with a dev ped again. My son has proved her wrong on most counts. He was

in a regular classroom but now we home school. He has made friends,

regained all forms of speech - though he is about five years delayed in

speech, he is very bright and catching up in his studies.

When my son gets into the college of his choice, we are going to look this

woman up.

It was a waste of time and money. We did biomed and are doing AC. He is

progressing. Oh, and the DIET HELPED my son phenomenally! To this day if

he has an infraction, his behavior will change dramatically for the worse.

Food can have a profound affect on anyone.

Haven

[Guest guest]

What are the things that you did with your son? Thanks

[Guest guest]

Since this was addressed to the group, I don't know if you were referring to

me or not.

However, my son was normal to fifteen months and regressed IMMEDIATELY

following his fifteen-month shots. he lost all speech and there were

numerous other problems that developed. It was very bad. A host of

problems and issues. String spells. Sleepless nights and a lot of pain for

him, too.

We took away gluten when he was two. We removed casein when he was two and

a half. WE removed soy protein when he was three. At the same time we

added metabolic supports (vitamins, minerals and amino acids). the most

important amino acid we added was Acetyl-L-Carnitine, which I believe helped

my son a lot. We were always trying to improve on his diet. We used a

rotation diet for quite some time which I think helped.

I b ought the book, " Behavioral Interventions for Young Children with

Autism " and I had also read about " Floor-time. " I gleaned what I liked from

each and worked with my son A lot. I decided to be " in his business " as

much as I could, and my husband took over when he came home from work. I

tried to avoid him " zoning out " a lot. In the car I would talk to him all

the time and point out the business signs. this is some of the first

" reading " he did once he started talking again.

Per the BIFYCWA book, I broke new skills down into steps. this method has

always helped him to learn a new skill.

My son had immune system issues so he has been sick a lot (he's had

pneumonia eight times since regression). He had chronic, debillitating

constipation. We learned to get this under control with diet, plenty of

vitamin C, magnesium, and EFA powder (flax).

By 2006 we got talked into IV chelation. by then his stimming, SID, and OCD

had all but disappeared but he still had attention problems. The IV

chelation brought stimming, SID, anxiety, and OCD back. My son also had

severe respiratory reactions to IV chelation so we quit that.

Nine weeks ago we started AC Protocol with ALA only. We added biotin and

GSE for yeast control. We added ACE for adrenal support. For the first

time in nine years, my son has not been chronically sick. He has only

needed his rescue inhaler three times in nine weeks. Each time was on the

first day of a round, so I upped his ACE last round and he hasn't needed his

rescue inhaler. I also added " No Fenol " enzyme to help break down the

phenols in GSE as GSE was giving him red cheeks and ears. No Fenol has

helped tremendously. My son also takes another enzyme before each meal to

help break down any hidden gluten, casein, and soy protein that I might be

missing.

My son has come a long way, and now with doing the AC Protocol he is making

more progress again. We are very optimistic.

[Guest guest]

> >

> > ,

> > Yes, my daughter was sent to Illinois Masonic by Early intervention at the

age

> > of 22 months. Dr Cupoli watched through a glass window as the 6 different

ladies

> > in the room " tried " to work with her.They took a break and I guess spoke

with

> > him and then they all came back in. I was told that she is showing signs and

> > behaviors that were consistent with the dx of Autism but that she was too

young

> > and has no therapies to address her needs. She was given the DX of Global

> > Developmental Delay, we were given some labs to run through our ped and 

advised

> > to come back for a re evaluation in 10 months..that was in June of 10.

> >

> >

> > I will never forget that day as I sit there waiting for this guy to give me

some

> > answers he says " I'm not going to tell you she has Autism but I'm not going

to

> > tell you she doesn't " . He went on to say and don't try the diet that stuff

never

> > works and that the shots had nothing to do with the changes we were seeing.

> > Little did he know that until that point I didn't know what the diet was or

why

> > he was telling me not to try it. Of course the first thing I did was

research

> > Autism and biomedical and I got a Dan withing a month.The ladies in the room

> > even joked about how he was always so open with his feelings and he said

> > something like your going to miss me, I don't know if he left Illinois

Masonic

> > or what.

> >

> > Long story short I started working with Dr Usman's office in Naperville,il.

She

> > ran titers for my daughter and her Rubella is sky high and then she also

checked

> > metals and my daughter is very high in lead, aluminum and has some

mercury.We

> > are using antivirals right now and are going to start chelation very soon.I

> > wonder where my daughter would be had we done nothing as he has said.

> >

> > He was short, and rubbed me the wrong way but he is what I got free from the

> > state.I did look at doing a " private " evaluation and it would have costed

1500

> > to 2000 so I used that money towards biomedical.The case manger for EI

called to

> > set up the re evaluation..I am hoping that I don't see him again.

> >

> > That was my experience..sorry it wasn't good.

> >

> >

> >

> > mom to Sieanna Grace 31 months

> >

> >

> >

> >

> > ________________________________

> > From: <emilysaba1@>

> >

> > Sent: Thu, March 17, 2011 11:18:56 AM

> > Subject: [ ] Anyone have any experience with this Dev Ped?

> >

> >  

> > Dr. M. Cupoli, MD

> >

> > He works out of Chicago. I am looking for a develop behavioral ped

> > and his name came up. Would be nice to know if anyone else

> > has used his services?

> >

> > TIA.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Were you concerned about socialization when you changed from regular classroom

to homeschool? and why did you change?

Thanks )

S

>

> Theh last time I saw a dev ped was eight yers ago. she told me my son would

> never speak agian, be potty trained, make a friend, be in a regular

> classroom, leave home, or go to college. she said I should look for an

> institution to put him in NOW and get on with our lives. I said hell no of

> course. then she said, " If you can just wait until he is a little older, I

> have drugs I can give him to make YOUR life easier. "

>

> I told her no thank you and that I wasn't looking to make my life easier but

> the quality of my son's life better. I left there and knew NEVER to bother

> with a dev ped again. My son has proved her wrong on most counts. He was

> in a regular classroom but now we home school. He has made friends,

> regained all forms of speech - though he is about five years delayed in

> speech, he is very bright and catching up in his studies.

>

> When my son gets into the college of his choice, we are going to look this

> woman up.

>

> It was a waste of time and money. We did biomed and are doing AC. He is

> progressing. Oh, and the DIET HELPED my son phenomenally! To this day if

> he has an infraction, his behavior will change dramatically for the worse.

> Food can have a profound affect on anyone.

>

> Haven

>

>

>

[Guest guest]

Of course I was concerned about socialization, socialization will do my son

no good if he cannot learn to comprehend what he reads, compute math, and

have writing skills to at the very minimum a ninth grade level. Ignorance

would isolate him beyond measure.

I am not allowed to talk about the particulars of " why " we pulled him other

than to say " we settled. "

I developed a home program for my son that includes academic learning,

music, PE, speech, PT, OT, citizenship, and social skills training. He goes

to a social skills class once a week. He gets 30 minutes of one on one

social training and then 60 minutes of group. He loves this class that uses

roll playing and drama to teach social skills. The skits are then

videotaped and he has an account where he can go (and we can go) to view his

clips any time. These skills are reinforced through his 60 minutes of speech

a week and I also reinforce using Carol Gray's social stories book. We are

considering joining the Boy Scouts at some point for more interaction.

A local home school group is kind to include my son in activities he can

participate in. My God daughter's nephew comes to play with him. We get

together with other home schooling families and their kids, as well.

My son is making phenomenal progress in home school. In September he could

not comprehend at first grade level and now he is comprehending at third

grade level and even with some fourth grade material, and we are very

pleased with the progress we are seeing.

I have been working as a parent advocate for some years now. I have never

charged a parent for help. I have learned a lot about how schools operate,

especially in Texas. It is very sad. What I have seen is that schools make

things look very good on paper, but often have little to back up proof of

progress in special needs children. There is little real accountability.

They lead parents to believe their children are making progress when in fact

little is being done to effect progress in these children. Unfortunately in

schools, these children are viewed as " unteachable " - as children who cannot

really learn so they are viewed as a waste of resources.

No matter how teachers and administrators say, " We care, " they do not. they

care about saving money. That is the bottom line. The other problem is

that from what I have seen, schools know very little about educating

children with autism, but they are not going to admit it. They present

themselves as experts without any real training.

I have a hard time believing any child with autism can receive a FAPE in a

Texas public school. When I finally view a district who is providing one, I

will let you know where, but so far I haven't seen it. Trust me, I am

looking all the time, but I just don't see it happening.

This is why Texas ranks 49th in the nation for educating special needs

kids. Texas has a lot of committee meetings and there is a lot of talk, but

change is slow in coming. For now, in Texas schools, most special needs

children are in the " School to prison pipeline. "

The national averages (according to the US Department of Education) state

that 67% of special needs children in this country will still be unemployed

a year after leaving public school. 37% of special needs children wind up

in the prison system within five years of leaving public school. Texas

statistics are worse than that. Many of these children will be perpared for

nothing more than work in a supervised workshop for the intellectually

impaired, which pays less than minimum wage. Others will be prepared for

nothing more than life in state institutions should something happen to

their parents or legal guardians.

The FEDERAL LAW under the IDEA states that a FAPE for a child with special

needs MUST: prepare the child for post-secondary education, independent

living, and employment. That is the definition of an appropraite program.

That is the definition of a " free, appropriate education. " If a program

developed by a public school is not a stepping stone toward the child

arriving to this point by age twenty-one, then it fails to live up to its

requirements under the IDEA.

Ask yourself if what your child's school is doing for your child will get

your child prepared for those three requirements set forth under the IDEA by

age twenty-one. In order to be prepared for post-secondary education, a

child must learn to read, write, spell, compute, and socialize well enough

to exist in that environment. They need these skills to get further

education and be employable. They need social skills and independent living

skills to be able to be independent.

Far too many schools make a pre-determination that a child can never get to

that point so they condemn them from the start. It takes active parent

advocacy to change these lines of thinking. The past teaches us that

prejudice and bigotry are hard to eradicate. Schools are still inclined --

once the label of " autism " is attached to a child, to see any possibilities

for improvement. This of course is unwarranted as many children with autism

can reach independence, employment, and success when given appropriate

educations.

Sincerely,

Haven