Mb12

[Guest guest]

In a message dated 17/02/2005 23:24:04 GMT Standard Time, CK2Mail writes:

ADVERTISEMENTFor the next 6 weeks we will be adding video of parents discussingthe effects MB12 has had on their children, both the positive andall side effects they experience. Also, when I can get before andafter video this will be added. We intend to get 20-30 videos up inthe the next 6 weeks.There is a lot of misinformation on the Net about MB12 as to themethod of getting it into the body, side effects, expected results,etc. Hopefully these videos will help parents looking for treatmentoptions for their children to make an informed choice regarding MB12.Currently we have 9 parents and 2 before and after videos.NOTE: The MB12 protocol is FREE to ANY physician that calls ouroffice and requests it.To see the videos, goto www.drneubrander.com and then select theVideos tab.Rick Neubrander

ADVERTISEMENTFor the next 6 weeks we will be adding video of parents discussingthe effects MB12 has had on their children, both the positive andall side effects they experience. Also, when I can get before andafter video this will be added. We intend to get 20-30 videos up inthe the next 6 weeks.There is a lot of misinformation on the Net about MB12 as to themethod of getting it into the body, side effects, expected results,etc. Hopefully these videos will help parents looking for treatmentoptions for their children to make an informed choice regarding MB12.Currently we have 9 parents and 2 before and after videos.NOTE: The MB12 protocol is FREE to ANY physician that calls ouroffice and requests it.To see the videos, goto www.drneubrander.com and then select theVideos tab.Rick Neubrander

[Guest guest]

Hi Mandi,

I jst watched the first of the video clips about MB12 from Dr Neubrander. Its awesome. The tears just poured down my face. Lets hope its some of us doing stuff like that some day too.

Keep up the good work all

Caroline ( in Arctic Aberdeenshire)

xx

[Guest guest]

Hi Lorene,

I'm sorry I can't comment on the rash but the stimming is quite a common side effect, indeed our son Jack seemed to react in this way for the first 2-3 weeks but has settled down with the shots now and although very minor, it does seem to be the one thing that he's benefited from! According to Neubrander it can take 12-18 months to see any good consistent change and often it is those who react most severely to it initially who gain most from it in the long run. Are you doing them every 3 days as this is supposedly the optimum dose rate?

Stick in there, and let us know how things progress.

With best wishes

Re: Fwd: MB12Send reply to: Desperate4DMPSEurope > Hi Mandi,> I jst watched the first of the video clips about MB12 from Dr> Neubrander. Its awesome. The tears just poured down my face. Lets> hope its some of us doing stuff like that some day too. Keep up the> good work all Caroline ( in Arctic Aberdeenshire) xx>

[Guest guest]

Hi Lorene, Sorry I have no idea about which tests can show that a child can benefit from MB12, but perhaps someone else does? However, I think we are learning a lot together by observing our children. I saw a marked improvement in 's stools. They became as normal as I have ever seen them (size, shape, colour etc!). Don't ask me why this has happened. I am, however thrilled. Has anyone else on the list seen improvements like this? (Sharon, did you say you'd seen this too?) Tyrus from Coastal said expect an increase in stimming for a couple of weeks when you start MB12 then it will settle. (He also suggested taking it out of the fridge for 10 mins before you inject, which I thought was a good tip). Also, interestingly, developed a small round patch of red spots on his neck, slightly raised, which are still there after several weeks. Not itchy or bothering him, but I still don't know what they are. I saw Mandi post something about ringworm and wonder if it is that, but it doesn't look exactly like the picture on the link she kindly posted for us to look at. Sharon posted something about molluscum. You have just mentioned eczma. I wonder if there is a link between MB12 and these skin conditions we are seeing? Has anyone on CK12 or other lists seen anything which could suggest that this is a possibility? I am seeing Dr Heard on Thurs and our family Dr next week and will post anything interesting that they report back It may be that there is no connection, but just a hunch???? Keep us posted on your MB12 experience, Lorene and we'll help in any way we can. It's nerve wracking at first but you'll soon get into a rhythm and it would be great if you see positive results. Pamela Re: Fwd: MB12Send reply to: Desperate4DMPSEurope > Hi Mandi,> I jst watched the first of the video clips about MB12 from Dr> Neubrander. Its awesome. The tears just poured down my face. Lets> hope its some of us doing stuff like that some day too. Keep up the> good work all Caroline ( in Arctic Aberdeenshire) xx> Royal Mail Charity PartnerYou can help us to raise £500,000. We're not asking you for money! To find out how to vote for The Children's Society to be Royal Mail's new Charity Partner visit www.childrenssociety.org.uk/whoareyou/corporatePartner/SG_Feature/6888/23/.If you have received this email in error and are not the intended recipient please notify the Email Administrator using the email address: postmaster@.... Please note that access to this email by anyone other than the intended recipient is unauthorised, and we would appreciate you respecting our privacy. Any disclosure, copying or distribution of a message by an unintended recipient may be unlawful.Church of England Children's Society Company No. 40004-C Charity Registration No. 221124Subsidiary Companies: The Children's Society (Services) Ltd Company No. 4545124, The Children's Society (Trading) Ltd Company No. 885496Registered Office: Rudolf House, Margery Street, London WC1X 0JL

[Guest guest]

Dr Neubrander and Dr McCandless said there is no test that can tell

us if a child can benefit or not from the MB12.

The B12 level tests are unrelayble. First they though that it will

benefit Childs that are undermethylated (because of the methyl in

it), then with experience they realised that even overmethylated

Childs benefit.

My son seams to do well with them, at first we saw some hyperness

and noncomplaint, now there are progress in communication,

comprehension, better sleep, no WOW to report, but it is the first

biomedical treatment that make us seen some progress...

Good luck

Liora

>

> Desperate4DMPSEurope

> From: CarolineTraa@a...

> Date sent: Tue, 22 Feb 2005 04:19:29 EST

> Subject: Re: Fwd: MB12

> Send reply to: Desperate4DMPSEurope

>

> > Hi Mandi,

> > I jst watched the first of the video clips about MB12 from Dr

> > Neubrander. Its awesome. The tears just poured down my face.

Lets

> > hope its some of us doing stuff like that some day too. Keep up

the

> > good work all Caroline ( in Arctic Aberdeenshire) xx

> >

[Guest guest]

I watched it several times and I still cry LOL.

I was fantasing the other day about being at DAN with a recovery story and then thought they won;t let me in - I never had a Dan dr LOL. IF Sam ever gets all the way to indistinguishable you won;t need a video to hear me!!!

Now off to do another MB12 shot

Ever hopeful Mandi in the seriously chilly south coast UK

I jst watched the first of the video clips about MB12 from Dr Neubrander. Its awesome. The tears just poured down my face. Lets hope its some of us doing stuff like that some day too.

[Guest guest]

Lorene,

I found Dr Neubranders explaination that our kids requirement for

methyl b-12 is more like a dependency rather than a deficiency very

helpful. As Liora has said, there's no reliable way to determine who

is going to benefit from the shots, so its suck it and see. Might be

worth watching the Neubrander DAN talk again now you've started the

shots. He talks about the reports of hyperactivity, how to spot if

your child is likely to be a responder, how long to keep going etc

You mention Lloyd still has low cysteine, so therefore low

gluathione? That's a key marker for requirement, as I understand it,

because one of the things the methyl b-12 does is bumps up the

glutathione that I know you are well aware these kids desperately

need for detox.

My hunch is its this increase in glutathione, and the corresponding

increase in detox, that must be connected to all these strange rashes

our kids are getting. For us, the " molluscum " spots showed up first -

as a few individual raised spots on the hip - exactly at the time we

started TD-glutathione last November. The rash really took off when

I added the lipoceutical glutathione. I hope I'm not clutching at

straws here, but it seems too much of a co-incidence not to be

connected in some way. What do others think?

Pamela is right. We also saw an unexplained, but very welcome,

improvement in stools following methyl b12 injections. We also saw a

big leap forward in communication and connectedness, for us within a

week. Also more verbal stimming.

Hope the ezcema improves soon and that you can find some answers in

the Nebrander talk

Best,

Sharon

> Hi all,

>

> Can you all clarify for me what are the lab tests that should show

> that a child is likely to benefit from B12?

>

> We now have normal levels of homocystein, just low in Cystein, but

> how can you predict if a child will benefit or not?

>

> I have so far given 2 injections; 1 was followed 3 days later by a

> massive eczema on the neck, first time he has had this; and I have

> no idea why- but that was a total pain as it was so itchy and he

was

> just recovering from a staphyllococus infection on the tongue! So,

I

> was very nervous that we would have staph on the neck too.

>

> Second injection, so far so good, but I feel my son is quite stimmy

> for 2 days after, unless this is linked to another issue. There has

> been no change re communication.

>

> Any thoughts?

>

> Lorene

[Guest guest]

Hi all,

Can you all clarify for me what are the lab tests that should show

that a child is likely to benefit from B12?

We now have normal levels of homocystein, just low in Cystein, but

how can you predict if a child will benefit or not?

I have so far given 2 injections; 1 was followed 3 days later by a

massive eczema on the neck, first time he has had this; and I have

no idea why- but that was a total pain as it was so itchy and he was

just recovering from a staphyllococus infection on the tongue! So, I

was very nervous that we would have staph on the neck too.

Second injection, so far so good, but I feel my son is quite stimmy

for 2 days after, unless this is linked to another issue. There has

been no change re communication.

Any thoughts?

Lorene

On 22 Feb 2005, at 4:19, CarolineTraa@... wrote:

Desperate4DMPSEurope

From: CarolineTraa@...

Date sent: Tue, 22 Feb 2005 04:19:29 EST

Subject: Re: Fwd: MB12

Send reply to: Desperate4DMPSEurope

> Hi Mandi,

> I jst watched the first of the video clips about MB12 from Dr

> Neubrander. Its awesome. The tears just poured down my face. Lets

> hope its some of us doing stuff like that some day too. Keep up the

> good work all Caroline ( in Arctic Aberdeenshire) xx

>

[Guest guest]

Hello

I am confused about these shots - I have been told that Tom would

benefit from this form of B12 but how you do administer it? We're 90

minutes from a DAN doctor...

This is probably a very basic question but I can't find any info on

it on other groups.

Thanks

Steph, Tom's mum

PS Tom is doing pretty well on the rebuilding vits and mins. Using

a few more words this week than this and school have remarked

how " chatty " he is.

> > Hi all,

> >

> > Can you all clarify for me what are the lab tests that should

show

> > that a child is likely to benefit from B12?

> >

> > We now have normal levels of homocystein, just low in Cystein,

but

> > how can you predict if a child will benefit or not?

> >

> > I have so far given 2 injections; 1 was followed 3 days later by

a

> > massive eczema on the neck, first time he has had this; and I

have

> > no idea why- but that was a total pain as it was so itchy and he

> was

> > just recovering from a staphyllococus infection on the tongue!

So,

> I

> > was very nervous that we would have staph on the neck too.

> >

> > Second injection, so far so good, but I feel my son is quite

stimmy

> > for 2 days after, unless this is linked to another issue. There

has

> > been no change re communication.

> >

> > Any thoughts?

> >

> > Lorene

[Guest guest]

Hi Steph,

Great to hear Tom is doing well on the vits & minerals.

I believe you can give MB-12 (Methylcobalamin B-12) in a variety of

forms, orally, creams or injections.

Depending on your child's potential level of malabsorbtion in their

gut the level of effective dose absorbed cannot be assured. A

transdermal cream would by-pass the gut and therefore be more

effective, but the very best delivery method is via injections. See

Dr Neubranders website (if you can - watch the family testimonial

videos in the video section) @ www.DrNeubrander.com

I've being giving Callum (he's 6 years old and non-verbal & only

weighs 36lbs / 16kg) a 1250mcg MB-12 injection every three days for

the last 2-3 weeks. So far only noticed more verbalisation,

screaming, yelling & ecolalic sounds.

The injections come pre-filled with very short needles (8-10mm 1/3

inch). They are best delivered whilst the child is sound asleep in

the upper right hand quadrant of the left or right buttock cheek at an

angle of 30 degrees or less.

You can place some EMLA / numbing cream on the injection site 30-60

minutes before the injection, but I don't need to with Callum - he

hardly flinches and doesn't wake up :-)

Hope this helps,

Steve, Joanne, Callum & Ellie-Mae

Barnsley, UK

- XXXX -

> > > Hi all,

> > >

> > > Can you all clarify for me what are the lab tests that should

> show

> > > that a child is likely to benefit from B12?

> > >

> > > We now have normal levels of homocystein, just low in Cystein,

> but

> > > how can you predict if a child will benefit or not?

> > >

> > > I have so far given 2 injections; 1 was followed 3 days later by

> a

> > > massive eczema on the neck, first time he has had this; and I

> have

> > > no idea why- but that was a total pain as it was so itchy and he

> > was

> > > just recovering from a staphyllococus infection on the tongue!

> So,

> > I

> > > was very nervous that we would have staph on the neck too.

> > >

> > > Second injection, so far so good, but I feel my son is quite

> stimmy

> > > for 2 days after, unless this is linked to another issue. There

> has

> > > been no change re communication.

> > >

> > > Any thoughts?

> > >

> > > Lorene

[Guest guest]

In a message dated 01/06/2005 09:29:53 GMT Daylight Time, jacqui@... writes:

How did those of you who are working without a doc discover how to administer the shots? I would be nervous even if I'd been shown but not being shown how did you do it? Also do you use the "numbing" cream?

>>>I just read the stuff on the net - Dr N's site and other parents and went for it

I don;t use numbing vcream and do it when he awake as he woke up which I thought was bizzrae since I tried it on me and I can;t feel a thing (I have plenty butt fat though LOL).

Actually I am thinking I have been giving it a bit high, neverless we have seen improvements from it. Keep the angle low is most importnat

HTHMandi

[Guest guest]

Mandi,

Is low at an angle of 30 in relation to what? I suppose my question is where

is 0 degrees? Is the 30 degrees an angle from the spine, or at an angle of

30 degree from the buttock.

In other words, if Sam was lying face down, are you pointing the plunger end

(not the needle end) of the syringe closer to the floor or the ceiling?

>From: Mum231ASD@...

>Reply-Desperate4DMPSEurope

>Desperate4DMPSEurope

>Subject: Re: MB12

>Date: Wed, 1 Jun 2005 05:12:56 EDT

>

>

>In a message dated 01/06/2005 09:29:53 GMT Daylight Time,

>jacqui@... writes:

>

>How did those of you who are working without a doc discover how to

>administer the shots? I would be nervous even if I'd been shown but

>not being shown how did you do it? Also do you use the " numbing "

>cream?

>

>

>

> >>>I just read the stuff on the net - Dr N's site and other parents and

>went

>for it

>

>I don;t use numbing vcream and do it when he awake as he woke up which I

>thought was bizzrae since I tried it on me and I can;t feel a thing (I have

>plenty butt fat though LOL).

>

>Actually I am thinking I have been giving it a bit high, neverless we have

>seen improvements from it. Keep the angle low is most importnat

>

>HTH

>Mandi

_________________________________________________________________

Use MSN Messenger to send music and pics to your friends

http://messenger.msn.co.uk

[Guest guest]

In a message dated 01/06/2005 14:41:46 GMT Daylight Time, stuartfinnes1@... writes:

Is low at an angle of 30 in relation to what? I suppose my question is where is 0 degrees? Is the 30 degrees an angle from the spine, or at an angle of 30 degree from the buttock.In other words, if Sam was lying face down, are you pointing the plunger end (not the needle end) of the syringe closer to the floor or the ceiling?

>>>I calculate the angle from his body and do less than 30 degrees, probably 15-20 coz I got pink wee at 30 degrees - or at least my estimation of it.

So plunger nearer the ceiling than the floor IF he was laying down (he has his mothers butt - another disability!!)

Mandi

[Guest guest]

Thanks Mandi,

Strangely enough, I'm looking forward to the MB12, I'm quite hopeful of this

for - we know he has major issues with B-vits, so just maybe it

will make a difference.

>From: Mum231ASD@...

>Reply-Desperate4DMPSEurope

>Desperate4DMPSEurope

>Subject: Re: MB12

>Date: Wed, 1 Jun 2005 14:44:53 EDT

>

>

>In a message dated 01/06/2005 14:41:46 GMT Daylight Time,

>stuartfinnes1@... writes:

>

>Is low at an angle of 30 in relation to what? I suppose my question is

>where

>is 0 degrees? Is the 30 degrees an angle from the spine, or at an angle of

>30 degree from the buttock.

>

>In other words, if Sam was lying face down, are you pointing the plunger

>end

>(not the needle end) of the syringe closer to the floor or the ceiling?

>

>

>

> >>>I calculate the angle from his body and do less than 30 degrees,

>probably

>15-20 coz I got pink wee at 30 degrees - or at least my estimation of it.

>

>So plunger nearer the ceiling than the floor IF he was laying down (he has

>his mothers butt - another disability!!)

>

>Mandi

_________________________________________________________________

Winks & nudges are here - download MSN Messenger 7.0 today!

http://messenger.msn.co.uk

[Guest guest]

Hello

We've not had pink wee with MB12 - Mark injects Tom at an angle but

not that finely calculated. Just upper outer quadrant of tiny

bottom! We were talked through it by Dr Heard's assistant and Mark

must be doing something right as Tom is completely fine with it.

The angle makes it easier to puncture the skin as well (sorry, but

true).

By all means phone us if you want to, think you have our number

Tom's been fine with it - initially a bit wired but that could be

the chelation. overall pretty calm although his pica has resurfaced.

best

Steph and Mark

> Thanks Mandi,

>

> Strangely enough, I'm looking forward to the MB12, I'm quite

hopeful of this

> for - we know he has major issues with B-vits, so just

maybe it

> will make a difference.

>

>

> >From: Mum231ASD@a...

> >Reply-Desperate4DMPSEurope

> >Desperate4DMPSEurope

> >Subject: Re: MB12

> >Date: Wed, 1 Jun 2005 14:44:53 EDT

> >

> >

> >In a message dated 01/06/2005 14:41:46 GMT Daylight Time,

> >stuartfinnes1@h... writes:

> >

> >Is low at an angle of 30 in relation to what? I suppose my

question is

> >where

> >is 0 degrees? Is the 30 degrees an angle from the spine, or at

an angle of

> >30 degree from the buttock.

> >

> >In other words, if Sam was lying face down, are you pointing the

plunger

> >end

> >(not the needle end) of the syringe closer to the floor or the

ceiling?

> >

> >

> >

> > >>>I calculate the angle from his body and do less than 30

degrees,

> >probably

> >15-20 coz I got pink wee at 30 degrees - or at least my

estimation of it.

> >

> >So plunger nearer the ceiling than the floor IF he was laying

down (he has

> >his mothers butt - another disability!!)

> >

> >Mandi

>

> _________________________________________________________________

> Winks & nudges are here - download MSN Messenger 7.0 today!

> http://messenger.msn.co.uk

[Guest guest]

> Hi Steph,

We are looking forward to starting MB12 also, especially after

watching the DAN Conference Videos and reading Dr N site a few times.

Are you doing them with the Elmla cream, and a night and have you

seen anything different in his behaviour so far.

How are you getting on with the SCD Diet? Have been there before so I

know it can be tough. Whose kid will drink warm chicken broth, not

mine!! Still got peanut butter bread/cake in freezer from the last

time but I am sure we will be recommended to revisit this after we see

Dr Heard next week. All the docs at the conference (well most) still

recommend getting the gut in shape as being a priority.

But it you don't have any obvious bowel for sleep problems its hard to

make such a huge committment to any special diet.

on has been particularly happy and engaged this week on school

holiday. He also seems very happy to be held upside down, anyone know

what that's all about.

Sure that the td-dmps is having a good effect we are just over 3

months into it.

Sorry to ramble, it's friday and the red wine is open!!

Sally in Manchester

[Guest guest]

Hi Sally and list

MB 12 - hard to tell what effect it's having. We're not numbing him

first - I think Mark has just got the technique of it right.

They're very short needles, nothing like I imagined. Sure he'd be

happy to talk you through it you'd like. He is the Bristow of

the family now.

Tom's been really engaged lately - we're about six weeks into DMPS

and two weeks into MB 12. Less stimmy, fewer rages (tempting fate

here) but possibly more emotional, not necessarily a bad thing.

Loads and loads of eye contact. Tom is non verbal but I have never

seen him (since he regressed) look more as if he's about to say " I'd

rather have a chockie digestive than this nut muck you keep baking

and pretending it's biscuit " . So no I can't claim SCD is going

well. Mark's on his way back from Sainsbury with some saccharine.

We're going for Nut macaroons today! Poor Tom is so loath to eat

carbs that aren't rice or dry pasta he's in danger of being on

Atkins. And if there's one thing he doesn't need it's to lose

weight or put more strain on his kidneys. So we're sort of two

thirds SCD - he does finally tolerate cloudy apple juice, tucked

into sunflower seeds the other day (!) and is getting used to small

burger with an apple for breakfast instead of toast and marmite.

His pica is sort of back but I think he's craving those missing

carbohydrates. His pica of choice is currently Clinique foundation

or face masks. Lovely soft insides he must have. He also seems to

go for that plastic adhesive if he can work the lock. But overall

I'd say the pica is much better, much less frenzied than it was. He

tried to tuck into some Ecover the other day and was most

disappointed.

The thing I find most encouraging is that he actively helps us to

treat him. I know that must make some parents spit but he rubs in

his own DMPS, has been found trying to get it from the fridge, takes

all his vits and mins in a spoon and even takes his Nystatin. And

the eye contact is amazing when he does - almost as if he knows

we're in it together. This from a child that would gag at a bit of

brocoli and can pick a pea out of a chile con carne. It must be

making him feel a bit better. Tom also loves to hang upside down,

must be the rush of blood to the head. Not sure if that's an

autistic thing - but you can imagine that if your brain feels foggy

it must be good to get some blood into it. Now I'm rambling and not

even the red wine as an excuse.

all best

Steph

> > Hi Steph,

>

> We are looking forward to starting MB12 also, especially after

> watching the DAN Conference Videos and reading Dr N site a few

times.

> Are you doing them with the Elmla cream, and a night and have you

> seen anything different in his behaviour so far.

>

> How are you getting on with the SCD Diet? Have been there before

so I

> know it can be tough. Whose kid will drink warm chicken broth, not

> mine!! Still got peanut butter bread/cake in freezer from the last

> time but I am sure we will be recommended to revisit this after we

see

> Dr Heard next week. All the docs at the conference (well most)

still

> recommend getting the gut in shape as being a priority.

>

> But it you don't have any obvious bowel for sleep problems its

hard to

> make such a huge committment to any special diet.

>

> on has been particularly happy and engaged this week on

school

> holiday. He also seems very happy to be held upside down, anyone

know

> what that's all about.

>

> Sure that the td-dmps is having a good effect we are just over 3

> months into it.

>

> Sorry to ramble, it's friday and the red wine is open!!

>

> Sally in Manchester

[Guest guest]

Steph and Sally,

has always liked being upside down. He has recently been through a phase of wanting pressure on his head. His OT suggested we stand him on his hands and hold him upside down (like a handstand with us helping). She said the pressure of the blood rushing to his head would give a similar sensation to us pressing on his head. Only hold him until he goes pink in the face then let him down.

Jane

Re: MB12

Hi Sally and listMB 12 - hard to tell what effect it's having. We're not numbing him first - I think Mark has just got the technique of it right. They're very short needles, nothing like I imagined. Sure he'd be happy to talk you through it you'd like. He is the Bristow of the family now.Tom's been really engaged lately - we're about six weeks into DMPS and two weeks into MB 12. Less stimmy, fewer rages (tempting fate here) but possibly more emotional, not necessarily a bad thing. Loads and loads of eye contact. Tom is non verbal but I have never seen him (since he regressed) look more as if he's about to say "I'd rather have a chockie digestive than this nut muck you keep baking and pretending it's biscuit". So no I can't claim SCD is going well. Mark's on his way back from Sainsbury with some saccharine. We're going for Nut macaroons today! Poor Tom is so loath to eat carbs that aren't rice or dry pasta he's in danger of being on Atkins. And if there's one thing he doesn't need it's to lose weight or put more strain on his kidneys. So we're sort of two thirds SCD - he does finally tolerate cloudy apple juice, tucked into sunflower seeds the other day (!) and is getting used to small burger with an apple for breakfast instead of toast and marmite. His pica is sort of back but I think he's craving those missing carbohydrates. His pica of choice is currently Clinique foundation or face masks. Lovely soft insides he must have. He also seems to go for that plastic adhesive if he can work the lock. But overall I'd say the pica is much better, much less frenzied than it was. He tried to tuck into some Ecover the other day and was most disappointed.The thing I find most encouraging is that he actively helps us to treat him. I know that must make some parents spit but he rubs in his own DMPS, has been found trying to get it from the fridge, takes all his vits and mins in a spoon and even takes his Nystatin. And the eye contact is amazing when he does - almost as if he knows we're in it together. This from a child that would gag at a bit of brocoli and can pick a pea out of a chile con carne. It must be making him feel a bit better. Tom also loves to hang upside down, must be the rush of blood to the head. Not sure if that's an autistic thing - but you can imagine that if your brain feels foggy it must be good to get some blood into it. Now I'm rambling and not even the red wine as an excuse.all bestSteph> > Hi Steph,> > We are looking forward to starting MB12 also, especially after> watching the DAN Conference Videos and reading Dr N site a few times.> Are you doing them with the Elmla cream, and a night and have you> seen anything different in his behaviour so far. > > How are you getting on with the SCD Diet? Have been there before so I> know it can be tough. Whose kid will drink warm chicken broth, not> mine!! Still got peanut butter bread/cake in freezer from the last> time but I am sure we will be recommended to revisit this after we see> Dr Heard next week. All the docs at the conference (well most) still> recommend getting the gut in shape as being a priority. > > But it you don't have any obvious bowel for sleep problems its hard to> make such a huge committment to any special diet.> > on has been particularly happy and engaged this week on school> holiday. He also seems very happy to be held upside down, anyone know> what that's all about.> > Sure that the td-dmps is having a good effect we are just over 3> months into it.> > Sorry to ramble, it's friday and the red wine is open!!> > Sally in Manchester

[Guest guest]

My daughter LOVED this. She used to love lying on the couch with her hand hung over the side. She still likes to do headstands because she says it "feels good".

After my Jack Russel had her Rabies vax ( and subsequent siezures for three days), she hangs her head over the side of the window ledge. This rather freaked me out because my dog started showing other strange behaviour like "humping" and she's a "she"! Now I am beginning to understand with the latter due to new info on testosterone and mercury...

Re: MB12

Hi Sally and listMB 12 - hard to tell what effect it's having. We're not numbing him first - I think Mark has just got the technique of it right. They're very short needles, nothing like I imagined. Sure he'd be happy to talk you through it you'd like. He is the Bristow of the family now.Tom's been really engaged lately - we're about six weeks into DMPS and two weeks into MB 12. Less stimmy, fewer rages (tempting fate here) but possibly more emotional, not necessarily a bad thing. Loads and loads of eye contact. Tom is non verbal but I have never seen him (since he regressed) look more as if he's about to say "I'd rather have a chockie digestive than this nut muck you keep baking and pretending it's biscuit". So no I can't claim SCD is going well. Mark's on his way back from Sainsbury with some saccharine. We're going for Nut macaroons today! Poor Tom is so loath to eat carbs that aren't rice or dry pasta he's in danger of being on Atkins. And if there's one thing he doesn't need it's to lose weight or put more strain on his kidneys. So we're sort of two thirds SCD - he does finally tolerate cloudy apple juice, tucked into sunflower seeds the other day (!) and is getting used to small burger with an apple for breakfast instead of toast and marmite. His pica is sort of back but I think he's craving those missing carbohydrates. His pica of choice is currently Clinique foundation or face masks. Lovely soft insides he must have. He also seems to go for that plastic adhesive if he can work the lock. But overall I'd say the pica is much better, much less frenzied than it was. He tried to tuck into some Ecover the other day and was most disappointed.The thing I find most encouraging is that he actively helps us to treat him. I know that must make some parents spit but he rubs in his own DMPS, has been found trying to get it from the fridge, takes all his vits and mins in a spoon and even takes his Nystatin. And the eye contact is amazing when he does - almost as if he knows we're in it together. This from a child that would gag at a bit of brocoli and can pick a pea out of a chile con carne. It must be making him feel a bit better. Tom also loves to hang upside down, must be the rush of blood to the head. Not sure if that's an autistic thing - but you can imagine that if your brain feels foggy it must be good to get some blood into it. Now I'm rambling and not even the red wine as an excuse.all bestSteph> > Hi Steph,> > We are looking forward to starting MB12 also, especially after> watching the DAN Conference Videos and reading Dr N site a few times.> Are you doing them with the Elmla cream, and a night and have you> seen anything different in his behaviour so far. > > How are you getting on with the SCD Diet? Have been there before so I> know it can be tough. Whose kid will drink warm chicken broth, not> mine!! Still got peanut butter bread/cake in freezer from the last> time but I am sure we will be recommended to revisit this after we see> Dr Heard next week. All the docs at the conference (well most) still> recommend getting the gut in shape as being a priority. > > But it you don't have any obvious bowel for sleep problems its hard to> make such a huge committment to any special diet.> > on has been particularly happy and engaged this week on school> holiday. He also seems very happy to be held upside down, anyone know> what that's all about.> > Sure that the td-dmps is having a good effect we are just over 3> months into it.> > Sorry to ramble, it's friday and the red wine is open!!> > Sally in Manchester

[Guest guest]

In a message dated 18/09/2005 20:41:03 GMT Daylight Time, williamsjm@... writes:

What are the "negative positives" you refer to?

>>>>Tad hyper, tad aggressive as in squeezing to hard, hugging my neck and pulling those little hairs there -Ouch!, interspersed between being a complete angel

Mandi x

[Guest guest]

In a message dated 19/09/2005 19:22:17 GMT Daylight Time, kay.steve@... writes:

so if I give it tonight, Monday, does that mean I give the next one on Thursday night (ie a break of 3 days )

>>>yep perfect

Mandi x

[Guest guest]

I interpret it to mean one night on, 2 nights off, so yes, tonight then again Thursday.

Steph

MB12

Hi Mandi and all those using MB12 from The Breakspear.I am starting this, this week and need to ask a very basic question.We need to give it every 3 days, so if I give it tonight, Monday, does that mean I give the next one on Thursday night (ie a break of 3 days ) or do I give it Wednesday night (ie on the 3rd day)?Can anyone enlighten me?Thanks Kay.

[Guest guest]

Thanks Steph and Mandi. Think my brain ineeds an overhaul!

Managed to give him the shot whilst he was awake, after a lot of talking about it,although not sure if he will let me do it again!

Kay.

I interpret it to mean one night on, 2 nights off, so yes, tonight then again Thursday.

We need to give it every 3 days, so if I give it tonight, Monday, does that mean I give the next one on Thursday night

[Guest guest]

Our first today using the B12 . Any advice? . Should it be done whilst holding him down , by force, or whilst he drops of to sleep. I am a little worried.

regards

Chriso[ Cypus]

Re: MB12

Thanks Steph and Mandi. Think my brain ineeds an overhaul!

Managed to give him the shot whilst he was awake, after a lot of talking about it,although not sure if he will let me do it again!

Kay.

I interpret it to mean one night on, 2 nights off, so yes, tonight then again Thursday.

We need to give it every 3 days, so if I give it tonight, Monday, does that mean I give the next one on Thursday night

[Guest guest]

In a message dated 24/09/2005 06:26:27 GMT Daylight Time, tryfonas@... writes:

Thanks for that, finally the best place is the bum or buttock at a 40 degree angle is that right?

Is there something else i should know or be careful or note about these B12s?

thanks again

>>>> I didn;t realise you wern;t aware of the details - who Rx this for you? You need to go to Dr Neurbanders site and watch the vidoes of how to do it.

Upper out quadrant of the buttock 30 degrees or less, less is better

www.drneubrander.com

MAndi