Guest guest Posted September 23, 2005 Report Share Posted September 23, 2005 Hi Mandi, Do you use Emla cream? We do, but wonder whether we really need to. I understand from the forum that it is possible to buy big tubes of Emla cream on net from abroad, but in the deepest part of sleep, I'm not sure Geth would know anything about it. BWs, Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 In a message dated 24/09/2005 09:47:12 GMT Daylight Time, krisandstusmith@... writes: Do you use Emla cream? We do, but wonder whether we really need to. I understand from the forum that it is possible to buy big tubes of Emla cream on net from abroad, but in the deepest part of sleep, I'm not sure Geth would know anything about it. >>>we don;t use any cream or wipes. If you get the timing right, I don't think you need it. Sam would wipe it off anyways, can even get plasters off if they are in the middle of his back (tried it once with Epsom Salts granules back inthe days when he drank the bath water LOL) Good luck MAndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 Thanks for that, finally the best place is the bum or buttock at a 40 degree angle is that right? Is there something else i should know or be careful or note about these B12s? thanks again [what we all would do without this group] Chriso Re: MB12 In a message dated 20/09/2005 13:04:41 GMT Daylight Time, tryfonas@... writes: Our first today using the B12 . Any advice? . Should it be done whilst holding him down , by force, or whilst he drops of to sleep. I am a little worried. >>>Hi Chriso - how did it go? I find it easier to do it when Samis asleep now but you have to be very particular about the timing. If you get it right they don;t flinch or know anything about it. Within 45-90 mins of falling asleep was the advice I was given. We seemed to do well at an hour but now find 30mins is best. This is when Sharons does owens too Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Hi, not Mandi, but we don't use anything either. I do it just after his bath when he is leaning on the bed looking at book or toy. He sees me coming and wriggles a little but doesn't even cry. Sometimes he laughs which is weird, but he doesn't seem bothered by it at all. Probably just accepts it as another part of his routine! Sally in Manchester Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Hi, Yes I think we'll just bite the bullet when our current supply of Emla cream runs out - Gethin laughs when I put the cream on - just ticklish I think. (We do the actual jab while he sleeps - about an hour after he's dropped off. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 In a message dated 24/11/2005 01:14:49 GMT Standard Time, Ladyshrink111@... writes: Because they rely on parent reports you could probably get any statistic you wanted >>>> have you actually seen the report these parents are filling in? THere are 136 questions on it. DrN accepts no subjeticve answers or ticl boxes - you have to p[ractically write him an essay on what you mean by any improvement. I didn't do his form, mine was subjective, me, teachers, SALT, firends none of which except my mate knew what we were doing and its really hard, most peeps don;t do this for fun, up there with night dosing on things we don;t actuallu LIKE to do LOL Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Hi Vicky, I have been doing MB12 a while now. There was a point where I thought that towards the end of the last day there was tail of in his behaviour and that he may have needed more. I thought he needed a bit more folinic acid - I think it helped us. MB12 also made his stools looser - not diarrohea. Not sure what others have found with this. Anyway we didnt increase it.. and things stablised - poos not logs though ! I have just retested his amino acids and homocysteine is now low. So thats a good thing its moving on but my thoughts now are that its moving on too quick cos its so low. We have slowed MB12 down to every 4 or 5 days added a bit more B6 and poos are now logs and better speech / behaviour. It may swing back the other way and we will need more MB12 ! Trial and error - and a degree in biochemistry ! My motto in biomed is do what is right for your child as no 2 kids are the same. Joanne > > We have been doing MB12 for 4-5 months now and Iv'e noticed is > markedly better on the day of injection, I have been careful to get the > shallow angle so pretty sure I'm not going into muscle. > I know on the Neubrander discussion forum some parents are doing MB12 > every day and wondered what you all thought of that. > My observations are far more concentration, more attempts at > communication, virtually no meltdowns, happy and smiley, better play > skills, seen a lot of this before MB12 but not as obvious. > We are using 20mg at a larger amount in order to stop chrystalizing, > working well so far. > Vicky > xx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 DrN is now saying that about 40% of kids do much better on every-day or every-other-day protocols. Your observations are probably the best guidliness on how to approach this. If you are still not sure I suggest you try posting this on autismweb.com biomedical forum, DrN's brother Rick is there and usually answers questions related to mb12 protocols. Natasa > > We have been doing MB12 for 4-5 months now and Iv'e noticed is > markedly better on the day of injection, I have been careful to get the > shallow angle so pretty sure I'm not going into muscle. > I know on the Neubrander discussion forum some parents are doing MB12 > every day and wondered what you all thought of that. > My observations are far more concentration, more attempts at > communication, virtually no meltdowns, happy and smiley, better play > skills, seen a lot of this before MB12 but not as obvious. > We are using 20mg at a larger amount in order to stop chrystalizing, > working well so far. > Vicky > xx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Vicky, He must be related to Henry. We have a hole in the bathroom ceiling. Margaret MB12 I decided to be a complete smartass and decided when I ordered last lot that I wouldn't bother with new weight, seeing as everything was going swimmingly, I would just ignore all the Neubrander stuff about being weight dependent.Aaaaaaaaargh are we being punished for that, real regression big time, I had actually forgotton could be this awful, the last time we seen such a dip was the TDMPS challenge.Will post on their site and ask how much for his new weight and just lose out financially, so what's new lol.Anyway an effective test as to whether this was really doing anything, not reccomended though, as we now have a huge hole in his bedroom ceiling.Vickyxx__________ NOD32 1.1461 (20060329) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Gosh that would be difficult to say, my sons gut issues are pretty much resolved but we have been addressing them for yrs, only been doing MB12 for one yr, lots of gains I attribute to it but couldn't say for sure that gut improvements were among them. Sorry cant be more helpful. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Gosh that would be difficult to say, my sons gut issues are pretty much resolved but we have been addressing them for yrs, only been doing MB12 for one yr, lots of gains I attribute to it but couldn't say for sure that gut improvements were among them. Sorry cant be more helpful. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 In a message dated 02/07/2006 23:20:17 GMT Daylight Time, dava93@... writes: its been difficult to get nystatin and metronizadole, pro biotics and supplements into Dan very fussy about the taste (can t blame him). >>>Me neither but you have tests to show he needs this stuff so you need to try hard to get it in. Sams stuff goes in one mouthful and then he has a chaser of water. We could not have done this when he was your lads age I might add! Have you tried apple sauce? Nystatin and Flagyll are totally horrid. Probiotocs not usually too bad - which ones are you using? What other supps tatses does he hate? B vits are a nightmare Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 In a message dated 02/07/2006 23:20:17 GMT Daylight Time, dava93@... writes: its been difficult to get nystatin and metronizadole, pro biotics and supplements into Dan very fussy about the taste (can t blame him). >>>Me neither but you have tests to show he needs this stuff so you need to try hard to get it in. Sams stuff goes in one mouthful and then he has a chaser of water. We could not have done this when he was your lads age I might add! Have you tried apple sauce? Nystatin and Flagyll are totally horrid. Probiotocs not usually too bad - which ones are you using? What other supps tatses does he hate? B vits are a nightmare Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Hi everyone, its been difficult to get nystatin and metronizadole, pro biotics and supplements into Dan very fussy about the taste (can t blame him). Has anyone seen gut issues improve with B12 shots. thanks dave From: Mum231ASD@...Reply-Autism Treatment To: Autism Treatment Subject: Re: Re: Mb12 - child protection isue!!Date: Wed, 28 Jun 2006 19:04:03 EDT In a message dated 28/06/2006 20:22:25 GMT Daylight Time, peta3366@... writes: She did ask why I stopped and I just said the first thing that came into my head - the chelation cream gave him-a rash and we didn't see any wows with the b12. She only knew about hte biomed stuff 'cos my dr told her - I didn't want to tell her anything - dangerous woman. >>Purfik answer my dear - I shall use that one if needs be Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Hi everyone, its been difficult to get nystatin and metronizadole, pro biotics and supplements into Dan very fussy about the taste (can t blame him). Has anyone seen gut issues improve with B12 shots. thanks dave From: Mum231ASD@...Reply-Autism Treatment To: Autism Treatment Subject: Re: Re: Mb12 - child protection isue!!Date: Wed, 28 Jun 2006 19:04:03 EDT In a message dated 28/06/2006 20:22:25 GMT Daylight Time, peta3366@... writes: She did ask why I stopped and I just said the first thing that came into my head - the chelation cream gave him-a rash and we didn't see any wows with the b12. She only knew about hte biomed stuff 'cos my dr told her - I didn't want to tell her anything - dangerous woman. >>Purfik answer my dear - I shall use that one if needs be Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2006 Report Share Posted July 4, 2006 Hi we get nystatin in capsule form from coastal in USA - I put it on his rice cake with sunflower spread and it doesn't taste. I have just tried one and it's fine. We got a years supply to save on postage and give it 3 times a day. Peta- -- In Autism Treatment , Mum231ASD@... wrote: > > > In a message dated 02/07/2006 23:20:17 GMT Daylight Time, dava93@... > writes: > > its been difficult to get nystatin and metronizadole, pro biotics and > supplements into Dan very fussy about the taste (can t blame him). > > > >>>Me neither but you have tests to show he needs this stuff so you need to > try hard to get it in. Sams stuff goes in one mouthful and then he has a > chaser of water. We could not have done this when he was your lads age I might > add! > > Have you tried apple sauce? > > Nystatin and Flagyll are totally horrid. > > Probiotocs not usually too bad - which ones are you using? > > What other supps tatses does he hate? B vits are a nightmare > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2006 Report Share Posted July 5, 2006 Dave We have had amazing success in wiping out yeast and clostridia using grapefruit seed extract and wormwood/artemesia/grapefruit seed extract combination and other natural remedies. We also used flagyl and vancomycin for the above which seemed to dampen down but they just came back. My understanding is that flagyl/vancomycin can't be used too often whereas these herbal remedies seem to be effective and can be used intermittently without risk. The only trouble is they are foul- tasting, like most things! Any way you can work on trying to teach Dan to swallow capsules? It has changed life immeasurably for us. BW Rhona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Sounds like some kinda overgrowth, could he be yeasty or high in Clostridia/strep... If not normally aggressive Mandi always says that for her is sure sign of bacteria (I think)... She is always biting people, bad woman that she is!! Anyway anything else, increased peeing, dark circles, have you done his genetics, s show she shouldnt be MB12ing right now and is better off it, Remember it will big time start methylation (in some) and that will be causing de-tox, maybe try cutting back to once a week or once every 4-5 days... Just an idea... Luv Caroline xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Just wondering if anyone has experienced this on MB12 trial. is getting injection every third day. First day after he is really quite unsettled, some screaming etc. Second day great full of giggles, happy good concentration etc.. third day frustrated he bit his escort this morning and then the cycle begins again. Of course it coule be nothing at all to do with MB12 but it does seem a bit of a coincidence >>I think this is common - are you keeping a log of Dr N's feedback sheet? Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 It is rather typical, - you are seeing an on off effect, might be your child is too thin, or you are injecting too deep... some find it isbetter whan giving injections more often, or using nasal spray or B12 cream instead or extra... to even out the effect Geir Flatabø 2007/1/25, Elaine Rankin : Hi, Just wondering if anyone has experienced this on MB12 trial. is getting injection every third day. First day after he is really quite unsettled, some screaming etc. Second day great full of giggles, happy good concentration etc ... third day frustrated he bit his escort this morning and then the cycle begins again. Of course it coule be nothing at all to do with MB12 but it does seem a bit of a coincidence. Thanks Elaine --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.17.10/651 - Release Date: 24/01/2007 18:48 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Hi Elaine, First thing I'd try is every 2nd day instead of every 3rd. Sounds like the mb12 is ramping up on the 1st day, he gets what he needs on the 2nd day and then it's on it's way back down on day 3. Kind of like a sawtooth (probably come out wrong in post): b12 ^ | /\ | / \ | / \ |====================feel good above here :-) | / \ | / \ | / \ |-------1----2----3------------>days So idea would be every 2nd day he'd always be above the happy line :-) anyway be worth a shot!!! for a week or 2 and see if he evens out. Mark > > Hi, > > Just wondering if anyone has experienced this on MB12 trial. is > getting injection every third day. First day after he is really quite > unsettled, some screaming etc. Second day great full of giggles, happy good > concentration etc.. third day frustrated he bit his escort this morning and > then the cycle begins again. Of course it coule be nothing at all to do > with MB12 but it does seem a bit of a coincidence. > > Thanks > Elaine > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.5.432 / Virus Database: 268.17.10/651 - Release Date: 24/01/2007 > 18:48 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 We had this when we first started, then we seen lots of good improvements, then after about 1yr or so plateaued, the advice was to use the B Complex, initially it moved things along again, then he seemed not to tolerate the B's, so much so we had to stop them, so went back to no change. Have now stopped the MB12 altogether, just received a new batch though so if anyone wants them? Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 any of you worried about long term side effects of MB12?? > >Reply-Autism Treatment >Autism Treatment >Subject: Re: MB12 >Date: Thu, 25 Jan 2007 21:37:07 -0000 > >Hi Elaine, > >First thing I'd try is every 2nd day instead of every 3rd. > >Sounds like the mb12 is ramping up on the 1st day, he gets what he >needs on the 2nd day and then it's on it's way back down on day 3. >Kind of like a sawtooth (probably come out wrong in post): > >b12 >^ >| /\ >| / \ >| / \ >|====================feel good above here :-) >| / \ >| / \ >| / \ >|-------1----2----3------------>days > > >So idea would be every 2nd day he'd always be above the happy line :-) >anyway be worth a shot!!! for a week or 2 and see if he evens out. > >Mark > > > > > > > Hi, > > > > Just wondering if anyone has experienced this on MB12 trial. is > > getting injection every third day. First day after he is really quite > > unsettled, some screaming etc. Second day great full of giggles, >happy good > > concentration etc.. third day frustrated he bit his escort this >morning and > > then the cycle begins again. Of course it coule be nothing at all to do > > with MB12 but it does seem a bit of a coincidence. > > > > Thanks > > Elaine > > > > -- > > No virus found in this outgoing message. > > Checked by AVG Free Edition. > > Version: 7.5.432 / Virus Database: 268.17.10/651 - Release Date: >24/01/2007 > > 18:48 > > > > _________________________________________________________________ MSN Hotmail is evolving – check out the new Windows Live Mail http://ideas.live.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 When you say it is a cycle how many 3-day patterns like this have you seen? Sally Geir Flatabø wrote: It is rather typical, - you are seeing an on off effect, might be your child is too thin, or you are injecting too deep... some find it isbetter whan giving injections more often, or using nasal spray or B12 cream instead or extra... to even out the effect Geir Flatabø 2007/1/25, Elaine Rankin <Elaine.Rankin@ mindless. com>: Hi, Just wondering if anyone has experienced this on MB12 trial. is getting injection every third day. First day after he is really quite unsettled, some screaming etc. Second day great full of giggles, happy good concentration etc ... third day frustrated he bit his escort this morning and then the cycle begins again. Of course it coule be nothing at all to do with MB12 but it does seem a bit of a coincidence. Thanks Elaine -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.10/651 - Release Date: 24/01/2007 18:48 No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.11/652 - Release Date: 25/01/2007 15:32 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 Tom had exactly the same reaction as , we did what Mark’s suggesting and it worked a treat. Sara x Re: MB12 Hi Elaine, First thing I'd try is every 2nd day instead of every 3rd. Sounds like the mb12 is ramping up on the 1st day, he gets what he needs on the 2nd day and then it's on it's way back down on day 3. Kind of like a sawtooth (probably come out wrong in post): b12 ^ | /\ | / \ | / \ |====================feel good above here :-) | / \ | / \ | / \ |-------1----2----3------------>days So idea would be every 2nd day he'd always be above the happy line :-) anyway be worth a shot!!! for a week or 2 and see if he evens out. Mark > > Hi, > > Just wondering if anyone has experienced this on MB12 trial. is > getting injection every third day. First day after he is really quite > unsettled, some screaming etc. Second day great full of giggles, happy good > concentration etc.. third day frustrated he bit his escort this morning and > then the cycle begins again. Of course it coule be nothing at all to do > with MB12 but it does seem a bit of a coincidence. > > Thanks > Elaine > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.5.432 / Virus Database: 268.17.10/651 - Release Date: 24/01/2007 > 18:48 > -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.8/649 - Release Date: 23/01/2007 20:40 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.12/653 - Release Date: 26/01/2007 11:11 Quote Link to comment Share on other sites More sharing options...
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