Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Awesome news Kenny, Sam is 14 now, we have 145 rounds under our belt (took a two year break for personal reasons) and Sam is doing very well. Still no words but closer than he has ever been and lots of gains with life skills, socialisation and best of all he is eating proper meals, last week including spring greens!! Keep up the great work! Mandi in UK In a message dated 16/03/2011 17:17:02 GMT Standard Time, KEN@... writes: Just wanted to share quick update hopefully someone with an older kid can comment, perhaps share an update as well. It's been a while since posting and last few years it been hard to tell if we were making grounds considering my son's age. Well today I do have a progress report that id like to share. Btw a few weeks ago my kiddo turned 13. We have completed to date #185 rounds. . Yea!! As a reminder my son hit a stall period somewhere about rounds 80-100 in chelation. Since then it has been hard to tell gains because we hit so many miles stones within the first year of chelation. Now considering my son's age, it is always hard to see big stuff. One reason he is very social with lots of expressive language. And To top it off in the last few years he has developed quite a personality. In the last year or so we have taken many breaks, but each time after picking back up, getting a few more rounds under the belt we have seen some stuff. Breaks are good but often times you never know till you string a block of rounds together and look back. Often times we forget how far we have come because of what issues we are currently dealing with. The gains that we see now are mostly in regard to his mature level and independence. O yea the last thing I have noticed is he now expressing his right to do what he wants to do because he is teenager. (His words) Yea Mr. bossy pants lol… he getting too big for spankings so now it's learning reasoning and making wise choices. Please pray for us as we enter puberty. I heard it could be a little tricky as their body is going through all those changes. Btw the last few days I have spent allot of time with my son and noticed some new changes. Just this morning I briefly spoke with my wife before leaving for work asking her thoughts about my son's recent progress. . But then I had to call her again to confirm what I suspect lately Mostly to see if she also sees what I suspect changing with in my son. I asked her to share her thoughts in what she has recently seen too with regard to gains with my son's maturity level. Also wanted to hear her mommy instinct in what she thought where these gains are coming from. Chelation, getting older or other. She has now confirmed what I been thinking. All I have to say is the last 4 weeks in chelation we have seen some really neat things regarding his maturity level. Now at age 13 it has been a long time waiting to see some of these last things to come...I'm excited again and its all-good stuff. Just wanted to share that. Thanks for listening . Ps Was hoping again that some of the folks with older kids may comment perhaps some that may have over #150 rounds of chelation under their belt. Kenny v Father to Recovering from Autism Re: Older kids still making gains / chelation responder > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there hoping some of the folks with older kids may comment on. Perhaps some one who may have over #150 rounds under there belt. > > O how I miss all you guys dearly. Don't post much but read everyday .It is still very encouraging to read stories of kids who are making gains using the AC protocol. No doubt slow and steady is safe and effective. In addition you can chelate safely on your own. We been at this for years (total of 8) last 5 have been on our own. Words can not express how far a long we have come. At times we even saw a glimpse of the light, however as my child gets older it's hard to tell how much further he can go. Another words (plainly he still has autism). Some back round. We started to chelate consistently when my child was 6.5 using Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) We chelated up to #160 rounds he is now 11 years old, and will be 12 in March. My son has made huge gains (too many to list). However many of them were within the first 40-70- rounds. Then we hit a long lasting stall from rounds #70-100, but of course keep plugging away. Thereafter is been so hard to tell whats- what?? Thats where id like to hear from you folks. > > There is no doubt my son responded favorably to chelation, but after that stall (also considering my son is 11) it's so hard to tell. This is why it is incredibly useful to keep a video or written diary - or both - perhaps every month. Then you can very easily compare him to how he was 6 months or a year ago and see how progress is going. >Btw during that time we took a chelation break and introduced a few antiviral protocols to see if he was a responder. Mostly rule out any viral component that may been underneath. He did not respond to antiviral positive or negatively during the trials. This was a reasonable thing to do. It does seem likely that this has ruled out any viral component to the problem. > I wrote Andy way back when around the #90-100 chelation round mark asking about the stall in how long it lasts. . He said something to the effect. That it's hard to tell, what you may have seen in 1-2 rounds early may take 5-10, to see things. I think you've confused 2 answers. The stall lasts however long it lasts, seldom more than a year, often 6 months or so. AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ rounds in, what you used to see in 1-2 rounds might now take 5-10 before it happens. Chelation is an exponential decay towards 'normalcy.' It is like one of those problems where you can only get half way towards where you are going every time you take a step. But as in the joke about the engineer and mathematician tempted by beautiful women beckoning to them and told every step would only bring them half the remaining distance, while the mathematician just stood there because he'd never actually get to the woman, the engineer started walking vigorously because he could get close enough to do what he wanted to. After enough chelation your kid may get close enough to normal to not matter even if a few extra mercury ions are still floating around. >Totally understood and went back to business as usual. I know gains may be subtle and we have to look at the whole picture. Which is easiest to do using those diaries. >But in all honesty that was over #50 rounds ago Not sure we are still responding today??? . It is very hard to tell without a video diary, or good description of his behaviors in writing. People's memories tend to filter out the bad stuff, it is very hard to tell if your id is improving when you forget the bad behaviors from 6 months ago. >There is no doubt my kid is/ was a chelation responder from the beginning, but im not sure today we are still making gains. Start the diary. Take video on a given day per month, under similar circumstances each time. Look over all the videos in 6 months or a year. > We will continue as we have always done so. But love to hear back from some parents who have older kids or those who have #150-300 rounds under their belt. Perhaps share some of your experience to hold on to as we continue to chelate. Sorry so long . Thank you so much God bless you all. > > My Best as always > Kenny V > Father to > Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Thanks for sharing your wonderful progress, give great hope to me and i am sure many others. in UK (Mum to Harry 6yrs old, 46 rounds AC Chelation and counting.....) From: Mum231ASD@... Date: Wed, 16 Mar 2011 16:07:56 -0400 Subject: Re: [ ] Older kids still making gains / chelation responder- Upd... Awesome news Kenny, Sam is 14 now, we have 145 rounds under our belt (took a two year break for personal reasons) and Sam is doing very well. Still no words but closer than he has ever been and lots of gains with life skills, socialisation and best of all he is eating proper meals, last week including spring greens!! Keep up the great work! Mandi in UK In a message dated 16/03/2011 17:17:02 GMT Standard Time, KEN@... writes: Just wanted to share quick update hopefully someone with an older kid can comment, perhaps share an update as well. It's been a while since posting and last few years it been hard to tell if we were making grounds considering my son's age. Well today I do have a progress report that id like to share. Btw a few weeks ago my kiddo turned 13. We have completed to date #185 rounds. . Yea!! As a reminder my son hit a stall period somewhere about rounds 80-100 in chelation. Since then it has been hard to tell gains because we hit so many miles stones within the first year of chelation. Now considering my son's age, it is always hard to see big stuff. One reason he is very social with lots of expressive language. And To top it off in the last few years he has developed quite a personality. In the last year or so we have taken many breaks, but each time after picking back up, getting a few more rounds under the belt we have seen some stuff. Breaks are good but often times you never know till you string a block of rounds together and look back. Often times we forget how far we have come because of what issues we are currently dealing with. The gains that we see now are mostly in regard to his mature level and independence. O yea the last thing I have noticed is he now expressing his right to do what he wants to do because he is teenager. (His words) Yea Mr. bossy pants lol… he getting too big for spankings so now it's learning reasoning and making wise choices. Please pray for us as we enter puberty. I heard it could be a little tricky as their body is going through all those changes. Btw the last few days I have spent allot of time with my son and noticed some new changes. Just this morning I briefly spoke with my wife before leaving for work asking her thoughts about my son's recent progress. . But then I had to call her again to confirm what I suspect lately Mostly to see if she also sees what I suspect changing with in my son. I asked her to share her thoughts in what she has recently seen too with regard to gains with my son's maturity level. Also wanted to hear her mommy instinct in what she thought where these gains are coming from. Chelation, getting older or other. She has now confirmed what I been thinking. All I have to say is the last 4 weeks in chelation we have seen some really neat things regarding his maturity level. Now at age 13 it has been a long time waiting to see some of these last things to come...I'm excited again and its all-good stuff. Just wanted to share that. Thanks for listening . Ps Was hoping again that some of the folks with older kids may comment perhaps some that may have over #150 rounds of chelation under their belt. Kenny v Father to Recovering from Autism Re: Older kids still making gains / chelation responder > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there hoping some of the folks with older kids may comment on. Perhaps some one who may have over #150 rounds under there belt. > > O how I miss all you guys dearly. Don't post much but read everyday .It is still very encouraging to read stories of kids who are making gains using the AC protocol. No doubt slow and steady is safe and effective. In addition you can chelate safely on your own. We been at this for years (total of 8) last 5 have been on our own. Words can not express how far a long we have come. At times we even saw a glimpse of the light, however as my child gets older it's hard to tell how much further he can go. Another words (plainly he still has autism). Some back round. We started to chelate consistently when my child was 6.5 using Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) We chelated up to #160 rounds he is now 11 years old, and will be 12 in March. My son has made huge gains (too many to list). However many of them were within the first 40-70- rounds. Then we hit a long lasting stall from rounds #70-100, but of course keep plugging away. Thereafter is been so hard to tell whats- what?? Thats where id like to hear from you folks. > > There is no doubt my son responded favorably to chelation, but after that stall (also considering my son is 11) it's so hard to tell. This is why it is incredibly useful to keep a video or written diary - or both - perhaps every month. Then you can very easily compare him to how he was 6 months or a year ago and see how progress is going. >Btw during that time we took a chelation break and introduced a few antiviral protocols to see if he was a responder. Mostly rule out any viral component that may been underneath. He did not respond to antiviral positive or negatively during the trials. This was a reasonable thing to do. It does seem likely that this has ruled out any viral component to the problem. > I wrote Andy way back when around the #90-100 chelation round mark asking about the stall in how long it lasts. . He said something to the effect. That it's hard to tell, what you may have seen in 1-2 rounds early may take 5-10, to see things. I think you've confused 2 answers. The stall lasts however long it lasts, seldom more than a year, often 6 months or so. AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ rounds in, what you used to see in 1-2 rounds might now take 5-10 before it happens. Chelation is an exponential decay towards 'normalcy.' It is like one of those problems where you can only get half way towards where you are going every time you take a step. But as in the joke about the engineer and mathematician tempted by beautiful women beckoning to them and told every step would only bring them half the remaining distance, while the mathematician just stood there because he'd never actually get to the woman, the engineer started walking vigorously because he could get close enough to do what he wanted to. After enough chelation your kid may get close enough to normal to not matter even if a few extra mercury ions are still floating around. >Totally understood and went back to business as usual. I know gains may be subtle and we have to look at the whole picture. Which is easiest to do using those diaries. >But in all honesty that was over #50 rounds ago Not sure we are still responding today??? . It is very hard to tell without a video diary, or good description of his behaviors in writing. People's memories tend to filter out the bad stuff, it is very hard to tell if your id is improving when you forget the bad behaviors from 6 months ago. >There is no doubt my kid is/ was a chelation responder from the beginning, but im not sure today we are still making gains. Start the diary. Take video on a given day per month, under similar circumstances each time. Look over all the videos in 6 months or a year. > We will continue as we have always done so. But love to hear back from some parents who have older kids or those who have #150-300 rounds under their belt. Perhaps share some of your experience to hold on to as we continue to chelate. Sorry so long . Thank you so much God bless you all. > > My Best as always > Kenny V > Father to > Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 great news mandi... spring greens fantastic,isobel x > > > > > > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there > hoping > some of the folks with older kids may comment on. Perhaps some one who may > have > over #150 rounds under there belt. > > > > O how I miss all you guys dearly. Don't post much but read everyday .It > is > still very encouraging to read stories of kids who are making gains using > the AC > protocol. No doubt slow and steady is safe and effective. In addition you > can > chelate safely on your own. We been at this for years (total of 8) last 5 > have > been on our own. Words can not express how far a long we have come. At > times we > even saw a glimpse of the light, however as my child gets older it's hard > to > tell how much further he can go. Another words (plainly he still has > autism). > Some back round. We started to chelate consistently when my child was 6.5 > using > Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) > We > chelated up to #160 rounds he is now 11 years old, and will be 12 in > March. My > son has made huge gains (too many to list). However many of them were > within > the first 40-70- rounds. Then we hit a long lasting stall from rounds > #70-100, > but of course keep plugging away. Thereafter is been so hard to tell whats- > what?? Thats where id like to hear from you folks. > > > > There is no doubt my son responded favorably to chelation, but after that > stall (also considering my son is 11) it's so hard to tell. > > This is why it is incredibly useful to keep a video or written diary - or > both - > perhaps every month. Then you can very easily compare him to how he was 6 > months or a year ago and see how progress is going. > > >Btw during that time we took a chelation break and introduced a few > antiviral > protocols to see if he was a responder. Mostly rule out any viral component > that may been underneath. He did not respond to antiviral positive or > negatively > during the trials. > > This was a reasonable thing to do. It does seem likely that this has ruled > out > any viral component to the problem. > > > I wrote Andy way back when around the #90-100 chelation round mark asking > about the stall in how long it lasts. . He said something to the effect. > That > it's hard to tell, what you may have seen in 1-2 rounds early may take > 5-10, to > see things. > > I think you've confused 2 answers. > > The stall lasts however long it lasts, seldom more than a year, often 6 > months > or so. > > AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ > rounds in, what you used to see in 1-2 rounds might now take 5-10 before it > happens. > > Chelation is an exponential decay towards 'normalcy.' It is like one of > those > problems where you can only get half way towards where you are going every > time > you take a step. But as in the joke about the engineer and mathematician > tempted by beautiful women beckoning to them and told every step would only > bring them half the remaining distance, while the mathematician just stood > there > because he'd never actually get to the woman, the engineer started walking > vigorously because he could get close enough to do what he wanted to. > > After enough chelation your kid may get close enough to normal to not > matter > even if a few extra mercury ions are still floating around. > > >Totally understood and went back to business as usual. I know gains may be > subtle and we have to look at the whole picture. > > Which is easiest to do using those diaries. > > >But in all honesty that was over #50 rounds ago Not sure we are still > responding today??? . > > It is very hard to tell without a video diary, or good description of his > behaviors in writing. People's memories tend to filter out the bad stuff, > it is > very hard to tell if your id is improving when you forget the bad > behaviors from > 6 months ago. > > >There is no doubt my kid is/ was a chelation responder from the > beginning, but > im not sure today we are still making gains. > > Start the diary. Take video on a given day per month, under similar > circumstances each time. Look over all the videos in 6 months or a year. > > > We will continue as we have always done so. But love to hear back from > some > parents who have older kids or those who have #150-300 rounds under their > belt. > Perhaps share some of your experience to hold on to as we continue to > chelate. > Sorry so long . Thank you so much God bless you all. > > > > My Best as always > > Kenny V > > Father to > > > Andy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Mandi, What protocol are you using? We are considering going back, but maybe just doing ALA now. I think we were around 105 rounds when we moved on to other things for awhile. Barb Re: [ ] Older kids still making gains / chelation responder- Upd... Awesome news Kenny, Sam is 14 now, we have 145 rounds under our belt (took a two year break for personal reasons) and Sam is doing very well. Still no words but closer than he has ever been and lots of gains with life skills, socialisation and best of all he is eating proper meals, last week including spring greens!! Keep up the great work! Mandi in UK In a message dated 16/03/2011 17:17:02 GMT Standard Time, KEN@... writes: Just wanted to share quick update hopefully someone with an older kid can comment, perhaps share an update as well. It's been a while since posting and last few years it been hard to tell if we were making grounds considering my son's age. Well today I do have a progress report that id like to share. Btw a few weeks ago my kiddo turned 13. We have completed to date #185 rounds. . Yea!! As a reminder my son hit a stall period somewhere about rounds 80-100 in chelation. Since then it has been hard to tell gains because we hit so many miles stones within the first year of chelation. Now considering my son's age, it is always hard to see big stuff. One reason he is very social with lots of expressive language. And To top it off in the last few years he has developed quite a personality. In the last year or so we have taken many breaks, but each time after picking back up, getting a few more rounds under the belt we have seen some stuff. Breaks are good but often times you never know till you string a block of rounds together and look back. Often times we forget how far we have come because of what issues we are currently dealing with. The gains that we see now are mostly in regard to his mature level and independence. O yea the last thing I have noticed is he now expressing his right to do what he wants to do because he is teenager. (His words) Yea Mr. bossy pants lol… he getting too big for spankings so now it's learning reasoning and making wise choices. Please pray for us as we enter puberty. I heard it could be a little tricky as their body is going through all those changes. Btw the last few days I have spent allot of time with my son and noticed some new changes. Just this morning I briefly spoke with my wife before leaving for work asking her thoughts about my son's recent progress. . But then I had to call her again to confirm what I suspect lately Mostly to see if she also sees what I suspect changing with in my son. I asked her to share her thoughts in what she has recently seen too with regard to gains with my son's maturity level. Also wanted to hear her mommy instinct in what she thought where these gains are coming from. Chelation, getting older or other. She has now confirmed what I been thinking. All I have to say is the last 4 weeks in chelation we have seen some really neat things regarding his maturity level. Now at age 13 it has been a long time waiting to see some of these last things to come...I'm excited again and its all-good stuff. Just wanted to share that. Thanks for listening . Ps Was hoping again that some of the folks with older kids may comment perhaps some that may have over #150 rounds of chelation under their belt. Kenny v Father to Recovering from Autism Re: Older kids still making gains / chelation responder > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there hoping some of the folks with older kids may comment on. Perhaps some one who may have over #150 rounds under there belt. > > O how I miss all you guys dearly. Don't post much but read everyday .It is still very encouraging to read stories of kids who are making gains using the AC protocol. No doubt slow and steady is safe and effective. In addition you can chelate safely on your own. We been at this for years (total of 8) last 5 have been on our own. Words can not express how far a long we have come. At times we even saw a glimpse of the light, however as my child gets older it's hard to tell how much further he can go. Another words (plainly he still has autism). Some back round. We started to chelate consistently when my child was 6.5 using Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) We chelated up to #160 rounds he is now 11 years old, and will be 12 in March. My son has made huge gains (too many to list). However many of them were within the first 40-70- rounds. Then we hit a long lasting stall from rounds #70-100, but of course keep plugging away. Thereafter is been so hard to tell whats- what?? Thats where id like to hear from you folks. > > There is no doubt my son responded favorably to chelation, but after that stall (also considering my son is 11) it's so hard to tell. This is why it is incredibly useful to keep a video or written diary - or both - perhaps every month. Then you can very easily compare him to how he was 6 months or a year ago and see how progress is going. >Btw during that time we took a chelation break and introduced a few antiviral protocols to see if he was a responder. Mostly rule out any viral component that may been underneath. He did not respond to antiviral positive or negatively during the trials. This was a reasonable thing to do. It does seem likely that this has ruled out any viral component to the problem. > I wrote Andy way back when around the #90-100 chelation round mark asking about the stall in how long it lasts. . He said something to the effect. That it's hard to tell, what you may have seen in 1-2 rounds early may take 5-10, to see things. I think you've confused 2 answers. The stall lasts however long it lasts, seldom more than a year, often 6 months or so. AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ rounds in, what you used to see in 1-2 rounds might now take 5-10 before it happens. Chelation is an exponential decay towards 'normalcy.' It is like one of those problems where you can only get half way towards where you are going every time you take a step. But as in the joke about the engineer and mathematician tempted by beautiful women beckoning to them and told every step would only bring them half the remaining distance, while the mathematician just stood there because he'd never actually get to the woman, the engineer started walking vigorously because he could get close enough to do what he wanted to. After enough chelation your kid may get close enough to normal to not matter even if a few extra mercury ions are still floating around. >Totally understood and went back to business as usual. I know gains may be subtle and we have to look at the whole picture. Which is easiest to do using those diaries. >But in all honesty that was over #50 rounds ago Not sure we are still responding today??? . It is very hard to tell without a video diary, or good description of his behaviors in writing. People's memories tend to filter out the bad stuff, it is very hard to tell if your id is improving when you forget the bad behaviors from 6 months ago. >There is no doubt my kid is/ was a chelation responder from the beginning, but im not sure today we are still making gains. Start the diary. Take video on a given day per month, under similar circumstances each time. Look over all the videos in 6 months or a year. > We will continue as we have always done so. But love to hear back from some parents who have older kids or those who have #150-300 rounds under their belt. Perhaps share some of your experience to hold on to as we continue to chelate. Sorry so long . Thank you so much God bless you all. > > My Best as always > Kenny V > Father to > Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 Wouldn't use anything but AC, we do DMSA/ALA oral usually and odd weekends with TDDMPS 8 hourly if I am knackered though that works out super expensive now he is so big How is Craig doing? Is he still at College? Mandi in UK In a message dated 16/03/2011 20:46:50 GMT Standard Time, jromkema@... writes: Mandi, What protocol are you using? We are considering going back, but maybe just doing ALA now. I think we were around 105 rounds when we moved on to other things for awhile. Barb Re: [ ] Older kids still making gains / chelation responder- Upd... Awesome news Kenny, Sam is 14 now, we have 145 rounds under our belt (took a two year break for personal reasons) and Sam is doing very well. Still no words but closer than he has ever been and lots of gains with life skills, socialisation and best of all he is eating proper meals, last week including spring greens!! Keep up the great work! Mandi in UK In a message dated 16/03/2011 17:17:02 GMT Standard Time, _KEN@..._ (mailto:KEN@...) writes: Just wanted to share quick update hopefully someone with an older kid can comment, perhaps share an update as well. It's been a while since posting and last few years it been hard to tell if we were making grounds considering my son's age. Well today I do have a progress report that id like to share. Btw a few weeks ago my kiddo turned 13. We have completed to date #185 rounds. . Yea!! As a reminder my son hit a stall period somewhere about rounds 80-100 in chelation. Since then it has been hard to tell gains because we hit so many miles stones within the first year of chelation. Now considering my son's age, it is always hard to see big stuff. One reason he is very social with lots of expressive language. And To top it off in the last few years he has developed quite a personality. In the last year or so we have taken many breaks, but each time after picking back up, getting a few more rounds under the belt we have seen some stuff. Breaks are good but often times you never know till you string a block of rounds together and look back. Often times we forget how far we have come because of what issues we are currently dealing with. The gains that we see now are mostly in regard to his mature level and independence. O yea the last thing I have noticed is he now expressing his right to do what he wants to do because he is teenager. (His words) Yea Mr. bossy pants lol… he getting too big for spankings so now it's learning reasoning and making wise choices. Please pray for us as we enter puberty. I heard it could be a little tricky as their body is going through all those changes. Btw the last few days I have spent allot of time with my son and noticed some new changes. Just this morning I briefly spoke with my wife before leaving for work asking her thoughts about my son's recent progress. . But then I had to call her again to confirm what I suspect lately Mostly to see if she also sees what I suspect changing with in my son. I asked her to share her thoughts in what she has recently seen too with regard to gains with my son's maturity level. Also wanted to hear her mommy instinct in what she thought where these gains are coming from. Chelation, getting older or other. She has now confirmed what I been thinking. All I have to say is the last 4 weeks in chelation we have seen some really neat things regarding his maturity level. Now at age 13 it has been a long time waiting to see some of these last things to come...I'm excited again and its all-good stuff. Just wanted to share that. Thanks for listening . Ps Was hoping again that some of the folks with older kids may comment perhaps some that may have over #150 rounds of chelation under their belt. Kenny v Father to Recovering from Autism Re: Older kids still making gains / chelation responder > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there hoping some of the folks with older kids may comment on. Perhaps some one who may have over #150 rounds under there belt. > > O how I miss all you guys dearly. Don't post much but read everyday .It is still very encouraging to read stories of kids who are making gains using the AC protocol. No doubt slow and steady is safe and effective. In addition you can chelate safely on your own. We been at this for years (total of 8) last 5 have been on our own. Words can not express how far a long we have come. At times we even saw a glimpse of the light, however as my child gets older it's hard to tell how much further he can go. Another words (plainly he still has autism). Some back round. We started to chelate consistently when my child was 6.5 using Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) We chelated up to #160 rounds he is now 11 years old, and will be 12 in March. My son has made huge gains (too many to list). However many of them were within the first 40-70- rounds. Then we hit a long lasting stall from rounds #70-100, but of course keep plugging away. Thereafter is been so hard to tell whats- what?? Thats where id like to hear from you folks. > > There is no doubt my son responded favorably to chelation, but after that stall (also considering my son is 11) it's so hard to tell. This is why it is incredibly useful to keep a video or written diary - or both - perhaps every month. Then you can very easily compare him to how he was 6 months or a year ago and see how progress is going. >Btw during that time we took a chelation break and introduced a few antiviral protocols to see if he was a responder. Mostly rule out any viral component that may been underneath. He did not respond to antiviral positive or negatively during the trials. This was a reasonable thing to do. It does seem likely that this has ruled out any viral component to the problem. > I wrote Andy way back when around the #90-100 chelation round mark asking about the stall in how long it lasts. . He said something to the effect. That it's hard to tell, what you may have seen in 1-2 rounds early may take 5-10, to see things. I think you've confused 2 answers. The stall lasts however long it lasts, seldom more than a year, often 6 months or so. AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ rounds in, what you used to see in 1-2 rounds might now take 5-10 before it happens. Chelation is an exponential decay towards 'normalcy.' It is like one of those problems where you can only get half way towards where you are going every time you take a step. But as in the joke about the engineer and mathematician tempted by beautiful women beckoning to them and told every step would only bring them half the remaining distance, while the mathematician just stood there because he'd never actually get to the woman, the engineer started walking vigorously because he could get close enough to do what he wanted to. After enough chelation your kid may get close enough to normal to not matter even if a few extra mercury ions are still floating around. >Totally understood and went back to business as usual. I know gains may be subtle and we have to look at the whole picture. Which is easiest to do using those diaries. >But in all honesty that was over #50 rounds ago Not sure we are still responding today??? . It is very hard to tell without a video diary, or good description of his behaviors in writing. People's memories tend to filter out the bad stuff, it is very hard to tell if your id is improving when you forget the bad behaviors from 6 months ago. >There is no doubt my kid is/ was a chelation responder from the beginning, but im not sure today we are still making gains. Start the diary. Take video on a given day per month, under similar circumstances each time. Look over all the videos in 6 months or a year. > We will continue as we have always done so. But love to hear back from some parents who have older kids or those who have #150-300 rounds under their belt. Perhaps share some of your experience to hold on to as we continue to chelate. Sorry so long . Thank you so much God bless you all. > > My Best as always > Kenny V > Father to > Andy [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 He graduates this May! He still lives at home. He still needs to grow socially, behaviorally, self-help, communication. Remember, he got the CP along with the autism. But he has NO TROUBLE with the intellectual learning part! He's an excellent student, once you remove the obstacles (eye tracking, needing to type out answers using physical suppor) and learns things quickly. The future is definitely in God's hands . . . It took him ten years--two classes a semester--but he got there! We'll miss the welcoming fellowship of that college. Barb Re: [ ] Older kids still making gains / chelation responder- Upd... Awesome news Kenny, Sam is 14 now, we have 145 rounds under our belt (took a two year break for personal reasons) and Sam is doing very well. Still no words but closer than he has ever been and lots of gains with life skills, socialisation and best of all he is eating proper meals, last week including spring greens!! Keep up the great work! Mandi in UK In a message dated 16/03/2011 17:17:02 GMT Standard Time, _KEN@..._ (mailto:KEN@...) writes: Just wanted to share quick update hopefully someone with an older kid can comment, perhaps share an update as well. It's been a while since posting and last few years it been hard to tell if we were making grounds considering my son's age. Well today I do have a progress report that id like to share. Btw a few weeks ago my kiddo turned 13. We have completed to date #185 rounds. . Yea!! As a reminder my son hit a stall period somewhere about rounds 80-100 in chelation. Since then it has been hard to tell gains because we hit so many miles stones within the first year of chelation. Now considering my son's age, it is always hard to see big stuff. One reason he is very social with lots of expressive language. And To top it off in the last few years he has developed quite a personality. In the last year or so we have taken many breaks, but each time after picking back up, getting a few more rounds under the belt we have seen some stuff. Breaks are good but often times you never know till you string a block of rounds together and look back. Often times we forget how far we have come because of what issues we are currently dealing with. The gains that we see now are mostly in regard to his mature level and independence. O yea the last thing I have noticed is he now expressing his right to do what he wants to do because he is teenager. (His words) Yea Mr. bossy pants lol… he getting too big for spankings so now it's learning reasoning and making wise choices. Please pray for us as we enter puberty. I heard it could be a little tricky as their body is going through all those changes. Btw the last few days I have spent allot of time with my son and noticed some new changes. Just this morning I briefly spoke with my wife before leaving for work asking her thoughts about my son's recent progress. . But then I had to call her again to confirm what I suspect lately Mostly to see if she also sees what I suspect changing with in my son. I asked her to share her thoughts in what she has recently seen too with regard to gains with my son's maturity level. Also wanted to hear her mommy instinct in what she thought where these gains are coming from. Chelation, getting older or other. She has now confirmed what I been thinking. All I have to say is the last 4 weeks in chelation we have seen some really neat things regarding his maturity level. Now at age 13 it has been a long time waiting to see some of these last things to come...I'm excited again and its all-good stuff. Just wanted to share that. Thanks for listening . Ps Was hoping again that some of the folks with older kids may comment perhaps some that may have over #150 rounds of chelation under their belt. Kenny v Father to Recovering from Autism Re: Older kids still making gains / chelation responder > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there hoping some of the folks with older kids may comment on. Perhaps some one who may have over #150 rounds under there belt. > > O how I miss all you guys dearly. Don't post much but read everyday .It is still very encouraging to read stories of kids who are making gains using the AC protocol. No doubt slow and steady is safe and effective. In addition you can chelate safely on your own. We been at this for years (total of 8) last 5 have been on our own. Words can not express how far a long we have come. At times we even saw a glimpse of the light, however as my child gets older it's hard to tell how much further he can go. Another words (plainly he still has autism). Some back round. We started to chelate consistently when my child was 6.5 using Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) We chelated up to #160 rounds he is now 11 years old, and will be 12 in March. My son has made huge gains (too many to list). However many of them were within the first 40-70- rounds. Then we hit a long lasting stall from rounds #70-100, but of course keep plugging away. Thereafter is been so hard to tell whats- what?? Thats where id like to hear from you folks. > > There is no doubt my son responded favorably to chelation, but after that stall (also considering my son is 11) it's so hard to tell. This is why it is incredibly useful to keep a video or written diary - or both - perhaps every month. Then you can very easily compare him to how he was 6 months or a year ago and see how progress is going. >Btw during that time we took a chelation break and introduced a few antiviral protocols to see if he was a responder. Mostly rule out any viral component that may been underneath. He did not respond to antiviral positive or negatively during the trials. This was a reasonable thing to do. It does seem likely that this has ruled out any viral component to the problem. > I wrote Andy way back when around the #90-100 chelation round mark asking about the stall in how long it lasts. . He said something to the effect. That it's hard to tell, what you may have seen in 1-2 rounds early may take 5-10, to see things. I think you've confused 2 answers. The stall lasts however long it lasts, seldom more than a year, often 6 months or so. AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ rounds in, what you used to see in 1-2 rounds might now take 5-10 before it happens. Chelation is an exponential decay towards 'normalcy.' It is like one of those problems where you can only get half way towards where you are going every time you take a step. But as in the joke about the engineer and mathematician tempted by beautiful women beckoning to them and told every step would only bring them half the remaining distance, while the mathematician just stood there because he'd never actually get to the woman, the engineer started walking vigorously because he could get close enough to do what he wanted to. After enough chelation your kid may get close enough to normal to not matter even if a few extra mercury ions are still floating around. >Totally understood and went back to business as usual. I know gains may be subtle and we have to look at the whole picture. Which is easiest to do using those diaries. >But in all honesty that was over #50 rounds ago Not sure we are still responding today??? . It is very hard to tell without a video diary, or good description of his behaviors in writing. People's memories tend to filter out the bad stuff, it is very hard to tell if your id is improving when you forget the bad behaviors from 6 months ago. >There is no doubt my kid is/ was a chelation responder from the beginning, but im not sure today we are still making gains. Start the diary. Take video on a given day per month, under similar circumstances each time. Look over all the videos in 6 months or a year. > We will continue as we have always done so. But love to hear back from some parents who have older kids or those who have #150-300 rounds under their belt. Perhaps share some of your experience to hold on to as we continue to chelate. Sorry so long . Thank you so much God bless you all. > > My Best as always > Kenny V > Father to > Andy Quote Link to comment Share on other sites More sharing options...
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