Re: Fwd: Treatment.

[Guest guest]

JMO: I never let anyone talk me into putting my son on a psychotropic or

antidepressant or any of that crap. Drugs do have their place. If my son's

aggression had not ceased and he got big (as heis now) I may have had to

consider something, but thank GOD the agreesion and self-injurious stuff

went away. Patientce pays. They only guarantee from these drugs is that

the doc and drug company will make a profit off it. Will it really help the

child? I think it masks what is really going on and wht is really the

underlying issue, which is probably heavy metal poisoning.

My son got better with diet and metabolic supports (vitamins, minerals,

amino acids, EFA, and probiotics). I worked with him A LOT one on one when

he was littel and still do this now.

My son stims (stimming was gone but came back after we did IV chelation) and

then the doc tried to talk me into Prozac for stimming and hyperactivity. I

said NO. I don't regret it. My son is well-behaved, is not aggressive

anymore (but I have to watch his diet as certain foods will make him

aggressive and defiant). My son got all forms of speech back, though his

speech is about five years delayed.

I think you have to weigh the risks versus the benefits of any medication,

and the parent has to make the final decision. I think these drugs are

extremely over-prescribed. Sometimes REAL healing takes time and patience.

We finally made our way back to considering AC and started nine weeks ago

and are very glad we did. This may take longer, but it is the safest, most

natural (we are using ALA only) and the side effects are minimal.

If your child makes seemingly faster progress due to being doped, well, that

makes the ABA therapist look good, doesn't it? But is it real healing and

progress? won't the child regress as soon as you stop the drugs?

Personally, if it were me, I'd find a different ABA therapist or what I

actually did was not hire one at all, bought " Behavioral Interventions for

Young Children with Autism " and devised my own in home program combining it

with things from " Floor-time philosophy and I was able to teach my son a lot

in a year's time.

This can work if you are able to with sacrifices survive on one income (and

it has been very rough but oh so worth it). I know I was lucky to be able

to do this. After doing the public school thing for several years, we are

back to home schooling, and he is once again making remarkable progress.

I would be extremely skeptical of any person who tried to push me to put my

child on synthetic medication simply because they think if he's on it he

will make more progress. He can make progress; it just may take more time.

You are doing AC, and I believe this is the best thing you can be doing to

bring about real healing and progress for your child, but as you know, this

is a long-term protocol and you have to commit to the 2- 6 year journey of

it.

You may want to also read about RPM (Rapid Prompting Method) and read the

book and get ideas from that as to how to teach your child. ABA is

expensive, and I am all for parents doing as much as they can on their own.

My son is getting PT,speech, OT and has an RPM tutor twice a week. I don't

know how long this is going to last (as they talk about budget cuts and what

not) so we are going to make the most of these services while we can get

them.

I'm sorry, I am just blown away by the suggestion of that therapist and feel

it was unethical for that therapist to even suggest this to you. My advice

to you would be to find another therapist, do it yourself, but continue AC.

I think on AC your child will progress but I think it can be a slow

progress. I am just against using these types of drugs unless they are

absolutely necessary for the safety of the child and to keep a child at home

as opposed to having to institutionalize the child. these drugs can have

serious side effects, and we really don't know a lot about the long-term

ramifications of giving them to children -- especially ones so young.

Haven

[Guest guest]

Thanks so much for your input. It is such a lonely journey for me and I guess

you are telling me exactly what I need to hear, my child can improve with time

without these medications as yours has. My gut is telling me not to do it but I

just don't want to look back and wish I had. Incidentally, we were at therapy

yesterday and my son did the best that he ever has. I'm not going to do it. I've

committed to AC chelation. I'm going to be patient and see how it goes.

Blessings

Aly

Sent from my iPhone

On Mar 17, 2011, at 4:32 PM, Haven DeLay <hdelay@...> wrote:

> JMO: I never let anyone talk me into putting my son on a psychotropic or

> antidepressant or any of that crap. Drugs do have their place. If my son's

> aggression had not ceased and he got big (as heis now) I may have had to

> consider something, but thank GOD the agreesion and self-injurious stuff

> went away. Patientce pays. They only guarantee from these drugs is that

> the doc and drug company will make a profit off it. Will it really help the

> child? I think it masks what is really going on and wht is really the

> underlying issue, which is probably heavy metal poisoning.

>

> My son got better with diet and metabolic supports (vitamins, minerals,

> amino acids, EFA, and probiotics). I worked with him A LOT one on one when

> he was littel and still do this now.

>

> My son stims (stimming was gone but came back after we did IV chelation) and

> then the doc tried to talk me into Prozac for stimming and hyperactivity. I

> said NO. I don't regret it. My son is well-behaved, is not aggressive

> anymore (but I have to watch his diet as certain foods will make him

> aggressive and defiant). My son got all forms of speech back, though his

> speech is about five years delayed.

>

> I think you have to weigh the risks versus the benefits of any medication,

> and the parent has to make the final decision. I think these drugs are

> extremely over-prescribed. Sometimes REAL healing takes time and patience.

>

> We finally made our way back to considering AC and started nine weeks ago

> and are very glad we did. This may take longer, but it is the safest, most

> natural (we are using ALA only) and the side effects are minimal.

>

> If your child makes seemingly faster progress due to being doped, well, that

> makes the ABA therapist look good, doesn't it? But is it real healing and

> progress? won't the child regress as soon as you stop the drugs?

> Personally, if it were me, I'd find a different ABA therapist or what I

> actually did was not hire one at all, bought " Behavioral Interventions for

> Young Children with Autism " and devised my own in home program combining it

> with things from " Floor-time philosophy and I was able to teach my son a lot

> in a year's time.

>

> This can work if you are able to with sacrifices survive on one income (and

> it has been very rough but oh so worth it). I know I was lucky to be able

> to do this. After doing the public school thing for several years, we are

> back to home schooling, and he is once again making remarkable progress.

>

> I would be extremely skeptical of any person who tried to push me to put my

> child on synthetic medication simply because they think if he's on it he

> will make more progress. He can make progress; it just may take more time.

>

> You are doing AC, and I believe this is the best thing you can be doing to

> bring about real healing and progress for your child, but as you know, this

> is a long-term protocol and you have to commit to the 2- 6 year journey of

> it.

>

> You may want to also read about RPM (Rapid Prompting Method) and read the

> book and get ideas from that as to how to teach your child. ABA is

> expensive, and I am all for parents doing as much as they can on their own.

> My son is getting PT,speech, OT and has an RPM tutor twice a week. I don't

> know how long this is going to last (as they talk about budget cuts and what

> not) so we are going to make the most of these services while we can get

> them.

>

> I'm sorry, I am just blown away by the suggestion of that therapist and feel

> it was unethical for that therapist to even suggest this to you. My advice

> to you would be to find another therapist, do it yourself, but continue AC.

> I think on AC your child will progress but I think it can be a slow

> progress. I am just against using these types of drugs unless they are

> absolutely necessary for the safety of the child and to keep a child at home

> as opposed to having to institutionalize the child. these drugs can have

> serious side effects, and we really don't know a lot about the long-term

> ramifications of giving them to children -- especially ones so young.

>

> Haven

>

>

[Guest guest]

Aly,

Hang in there! I have never once regretted not giving into the pressure to

put my son on some psychotropic, synthetic stuff. I have long regretted not

doing AC much sooner. I regret things like slipping on his diet and letting

him have a little sugar -- I always regret that, but never a single regret

about refusing an SSRI.

Your child is very young, and I had the chance to start AC when my son was

three and didn't do it, and I regret that I waited until he was eleven. As

I said, my son made a lot of progress with diet, vitamins, minerals, amino

acids, EFA, fish oil, and I put my son on the gf/cf/sf diet starting when he

was two (it took us a year to get him off all three), but shortly after we

took away the last one (soy protein), he said his first sentence.

Diet went a long way to improving behavior and his sleep patterns (along wit

the help of melatonin. The best amino acid we put him on was

acetyl-L-carnitine, which I think helped him a lot and continues to help

him. Magnesium and vitamin C helped control his severe constipation (so we

were able to get him off Miralax.

My son was one of those kids who after regression (besides losing all

speech) began to get sick all the time. He would get an infection with

fever roughly every two weeks like clock work. He had his first bout of

pneumonia at age two and has had that eight times. They diagnosed him with

a NOS immune disorder due to constant lung infections/issues and said he had

asthma.

There were doctors who wanted to put him on several different kinds of

steroids five times a day. (we rejected that idea, too). He was on Xopanex

and Pulmacort for some time, but I am happy to report that since starting

AC, my son has not been sick, and has only needed his rescue inhaler three

times in nine weeks! Putting him on ACE for adrenal support has helped

immensely.

Just commit to the long haul. You have time in your favor since you have

started AC with him so young.

My philosophy is to heal as naturally as you possibly can. Prescription

drugs are a last resort.

Haven