Guest guest Posted February 11, 2011 Report Share Posted February 11, 2011 Hi I would recommend you do andy cutler protocol(AC). Please read up on it.  recoveryfromautism group has a lot of information about AC protocol. This protocol uses very low dosages . Considered to be slow and safe.  3yrs old ASD ... will start cheltion soon From: the_murdocks2004 <the_murdocks2004@...> Subject: [ ] My Husband is VERY nervous about chelating Date: Saturday, 12 February, 2011, 5:30 AM  I've asked my husband to read, read, read, and I don't want to wait too long for him to be satisfied to try chelation. Our son is 5 now, and the window for more positive impact is narrowing. I gave him info, encouraged him to read, etc. He wants me to look for a doctor to monitor what I'll be doing while chelating, and for that doctor to be able to explain things to him and help him (us) understand test results. Our hair tests will be sent to Great Plains on Monday -- I'm going to chelate myself too, but without a doctor. If we're going to have a doctor, I want someone who is well experienced in AC's chelation since that is what I will insist on using ALA. Any recommendations? Any recommendations for a doctor in Southern CA, around San Diego, Orange, Riverside, San Bernardino, Los Angeles counties? The DAN we have now recommended I use the Metagenics chelation product, and it doesn't even have a chelating agent in the ingredients! So I don't have a lot of confidence there. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2011 Report Share Posted February 11, 2011 That's my plan, , but as I mentioned below, my husband wants a doctor involved, so I'm looking for recommendations for an experienced (in AC chelation) one in my area. A doc who is trained by or with Andy would be even better. > If we're going to have a doctor, I want someone who is well experienced in AC's chelation since that is what I will insist on using ALA. > Thanks though, Sheila > > > From: the_murdocks2004 <the_murdocks2004@...> > Subject: [ ] My Husband is VERY nervous about chelating > > Date: Saturday, 12 February, 2011, 5:30 AM > > > Â > > > > I've asked my husband to read, read, read, and I don't want to wait too long for him to be satisfied to try chelation. Our son is 5 now, and the window for more positive impact is narrowing. > > I gave him info, encouraged him to read, etc. He wants me to look for a doctor to monitor what I'll be doing while chelating, and for that doctor to be able to explain things to him and help him (us) understand test results. > > Our hair tests will be sent to Great Plains on Monday -- I'm going to chelate myself too, but without a doctor. > > If we're going to have a doctor, I want someone who is well experienced in AC's chelation since that is what I will insist on using ALA. > > Any recommendations? Any recommendations for a doctor in Southern CA, around San Diego, Orange, Riverside, San Bernardino, Los Angeles counties? > > The DAN we have now recommended I use the Metagenics chelation product, and it doesn't even have a chelating agent in the ingredients! So I don't have a lot of confidence there. > > Sheila > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2011 Report Share Posted February 11, 2011 Andy i read does consult with doctors..you need to pay of course but this might be an excellent option? Leanne From: the_murdocks2004@... Date: Sat, 12 Feb 2011 05:39:23 +0000 Subject: [ ] Re: My Husband is VERY nervous about chelating That's my plan, , but as I mentioned below, my husband wants a doctor involved, so I'm looking for recommendations for an experienced (in AC chelation) one in my area. A doc who is trained by or with Andy would be even better. > If we're going to have a doctor, I want someone who is well experienced in AC's chelation since that is what I will insist on using ALA. > Thanks though, Sheila > > > From: the_murdocks2004 <the_murdocks2004@...> > Subject: [ ] My Husband is VERY nervous about chelating > > Date: Saturday, 12 February, 2011, 5:30 AM > > > Â > > > > I've asked my husband to read, read, read, and I don't want to wait too long for him to be satisfied to try chelation. Our son is 5 now, and the window for more positive impact is narrowing. > > I gave him info, encouraged him to read, etc. He wants me to look for a doctor to monitor what I'll be doing while chelating, and for that doctor to be able to explain things to him and help him (us) understand test results. > > Our hair tests will be sent to Great Plains on Monday -- I'm going to chelate myself too, but without a doctor. > > If we're going to have a doctor, I want someone who is well experienced in AC's chelation since that is what I will insist on using ALA. > > Any recommendations? Any recommendations for a doctor in Southern CA, around San Diego, Orange, Riverside, San Bernardino, Los Angeles counties? > > The DAN we have now recommended I use the Metagenics chelation product, and it doesn't even have a chelating agent in the ingredients! So I don't have a lot of confidence there. > > Sheila > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 Do not use Great Plains. Get a DDI hair test, so you can apply the rules of counting. Sheila, you have some time to become more knowledgeable. Have you read Andy's book? I doubt you will find a doc, especially a DAN to go along as they can't make money off the AC Protocol. I do suggest you begin chelating as soon as possible, but benefits can be obtained even if kids are older. However, the sooner you get metals out, the better. We waited a on time, mostly because of our son's neutrophil count and because we too thought we had to have an MD on board. So after giving thousands and thousands of dollars away to a DAN and seeing little improvement and regression in many areas due to IV chelation (Please, don't do that!) Here we are. My son is eleven, and we started chelating a month ago, and we already see many positive changes. I urge you, if you have not already done so, to join the Recovery From Autism group. You can get a DDI hair test ordered through them, and they will help with the interpretation. You just need to find a doctor willing to run the tests you want run. I would not expect any support for AC chelation as they (the DANS) really push IV, and I want you to know my son suffered serious respiratory reactions from it. The DAN still pushed us to go ahead but then wanted to add oral steroids. Drugs, drugs drugs. And we were getting charged $$$ per week out of pocket. IV is NOT safe. It brought back stimming, OCD, and SID in my son. If you can find a doctor willing to confer with DR. Cutler, that would be great. Chelation with ALA is very safe if you follow the protocol. I was very scared to start, too after the reactions I saw with IV, but we are so glad we did. Join the RFA group, and you will learn a lot, and find the help you need. It is great that you are starting your child young and preparing to do it the right way. You said you plan to chelate yourself, too. Be sure you have NO amalgams first. You will be starting with a low dose, so I suggest Kirkman's ALA, which is a twenty five mg capsule. You dose at about 1/8 mg per pound of body weight, but a lot start lower than that. We did. so you will need to buy some empty capsules, as well. Kirkman's were the lowest dosage capsules I could find. We have used mostly Kirkman products from the start, and I think it is a good product. Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 The Great Plains hair test is fine. It is actually sent to DDI to be run. DDI is less expensive unless you have BC/BS insurance and your insurance covers hair tests as GP's is in-network with BC/BS. Dr. Suzanne www.biomedicaldoc.com > > Do not use Great Plains. Get a DDI hair test, so you can apply the rules of > counting. > > Sheila, you have some time to become more knowledgeable. Have you read > Andy's book? I doubt you will find a doc, especially a DAN to go along as > they can't make money off the AC Protocol. > > I do suggest you begin chelating as soon as possible, but benefits can be > obtained even if kids are older. However, the sooner you get metals out, > the better. > > We waited a on time, mostly because of our son's neutrophil count and > because we too thought we had to have an MD on board. So after giving > thousands and thousands of dollars away to a DAN and seeing little > improvement and regression in many areas due to IV chelation (Please, don't > do that!) Here we are. My son is eleven, and we started chelating a month > ago, and we already see many positive changes. > > I urge you, if you have not already done so, to join the Recovery From > Autism group. You can get a DDI hair test ordered through them, and they > will help with the interpretation. > > You just need to find a doctor willing to run the tests you want run. I > would not expect any support for AC chelation as they (the DANS) really push > IV, and I want you to know my son suffered serious respiratory reactions > from it. The DAN still pushed us to go ahead but then wanted to add oral > steroids. Drugs, drugs drugs. And we were getting charged $$$ per week out > of pocket. > > IV is NOT safe. It brought back stimming, OCD, and SID in my son. > > If you can find a doctor willing to confer with DR. Cutler, that would be > great. Chelation with ALA is very safe if you follow the protocol. I was > very scared to start, too after the reactions I saw with IV, but we are so > glad we did. > > Join the RFA group, and you will learn a lot, and find the help you need. > It is great that you are starting your child young and preparing to do it > the right way. > > You said you plan to chelate yourself, too. Be sure you have NO amalgams > first. > > You will be starting with a low dose, so I suggest Kirkman's ALA, which is a > twenty five mg capsule. You dose at about 1/8 mg per pound of body weight, > but a lot start lower than that. We did. so you will need to buy some > empty capsules, as well. Kirkman's were the lowest dosage capsules I > could find. We have used mostly Kirkman products from the start, and I think > it is a good product. > > Haven > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 But as I understand it, you have to apply a different set of rules to the other? Or can you apply the same counting rules? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 You live in CA there is a Nurse Practitioner named that lives in Seattle. She is well respected by Dr. Cutler. She has a web site that you can check out. I don't remember it off the top of my head. Perhaps someone else knows or you could google her name. I use her for my son and I think you will be thrilled with her. Sent from my iPhone On Feb 12, 2011, at 8:16 AM, Haven DeLay <hdelay@...> wrote: > Do not use Great Plains. Get a DDI hair test, so you can apply the rules of > counting. > > Sheila, you have some time to become more knowledgeable. Have you read > Andy's book? I doubt you will find a doc, especially a DAN to go along as > they can't make money off the AC Protocol. > > I do suggest you begin chelating as soon as possible, but benefits can be > obtained even if kids are older. However, the sooner you get metals out, > the better. > > We waited a on time, mostly because of our son's neutrophil count and > because we too thought we had to have an MD on board. So after giving > thousands and thousands of dollars away to a DAN and seeing little > improvement and regression in many areas due to IV chelation (Please, don't > do that!) Here we are. My son is eleven, and we started chelating a month > ago, and we already see many positive changes. > > I urge you, if you have not already done so, to join the Recovery From > Autism group. You can get a DDI hair test ordered through them, and they > will help with the interpretation. > > You just need to find a doctor willing to run the tests you want run. I > would not expect any support for AC chelation as they (the DANS) really push > IV, and I want you to know my son suffered serious respiratory reactions > from it. The DAN still pushed us to go ahead but then wanted to add oral > steroids. Drugs, drugs drugs. And we were getting charged $$$ per week out > of pocket. > > IV is NOT safe. It brought back stimming, OCD, and SID in my son. > > If you can find a doctor willing to confer with DR. Cutler, that would be > great. Chelation with ALA is very safe if you follow the protocol. I was > very scared to start, too after the reactions I saw with IV, but we are so > glad we did. > > Join the RFA group, and you will learn a lot, and find the help you need. > It is great that you are starting your child young and preparing to do it > the right way. > > You said you plan to chelate yourself, too. Be sure you have NO amalgams > first. > > You will be starting with a low dose, so I suggest Kirkman's ALA, which is a > twenty five mg capsule. You dose at about 1/8 mg per pound of body weight, > but a lot start lower than that. We did. so you will need to buy some > empty capsules, as well. Kirkman's were the lowest dosage capsules I > could find. We have used mostly Kirkman products from the start, and I think > it is a good product. > > Haven > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 Here is her contact information: 4757 36th Ave. S. Suite 2 Seattle, WA 98118 Telephone: 206-760-9266 http://npjulie.com/ Dr. Suzanne DaSilva www.biomedicaldoc.com > > > Do not use Great Plains. Get a DDI hair test, so you can apply the rules of > > counting. > > > > Sheila, you have some time to become more knowledgeable. Have you read > > Andy's book? I doubt you will find a doc, especially a DAN to go along as > > they can't make money off the AC Protocol. > > > > I do suggest you begin chelating as soon as possible, but benefits can be > > obtained even if kids are older. However, the sooner you get metals out, > > the better. > > > > We waited a on time, mostly because of our son's neutrophil count and > > because we too thought we had to have an MD on board. So after giving > > thousands and thousands of dollars away to a DAN and seeing little > > improvement and regression in many areas due to IV chelation (Please, don't > > do that!) Here we are. My son is eleven, and we started chelating a month > > ago, and we already see many positive changes. > > > > I urge you, if you have not already done so, to join the Recovery From > > Autism group. You can get a DDI hair test ordered through them, and they > > will help with the interpretation. > > > > You just need to find a doctor willing to run the tests you want run. I > > would not expect any support for AC chelation as they (the DANS) really push > > IV, and I want you to know my son suffered serious respiratory reactions > > from it. The DAN still pushed us to go ahead but then wanted to add oral > > steroids. Drugs, drugs drugs. And we were getting charged $$$ per week out > > of pocket. > > > > IV is NOT safe. It brought back stimming, OCD, and SID in my son. > > > > If you can find a doctor willing to confer with DR. Cutler, that would be > > great. Chelation with ALA is very safe if you follow the protocol. I was > > very scared to start, too after the reactions I saw with IV, but we are so > > glad we did. > > > > Join the RFA group, and you will learn a lot, and find the help you need. > > It is great that you are starting your child young and preparing to do it > > the right way. > > > > You said you plan to chelate yourself, too. Be sure you have NO amalgams > > first. > > > > You will be starting with a low dose, so I suggest Kirkman's ALA, which is a > > twenty five mg capsule. You dose at about 1/8 mg per pound of body weight, > > but a lot start lower than that. We did. so you will need to buy some > > empty capsules, as well. Kirkman's were the lowest dosage capsules I > > could find. We have used mostly Kirkman products from the start, and I think > > it is a good product. > > > > Haven > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 Same rules for both as long as it is the Hair Elements test. I asked Dr. Cutler this question to be sure because I have read both in my office. He was the one that told me that Great Plains has DDI do their hair tests. Either company will get you the same results. Dr. Suzanne www.biomedicaldoc.com > > But as I understand it, you have to apply a different set of rules to the > other? Or can you apply the same counting rules? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2011 Report Share Posted February 13, 2011 Thanks Suzanne. I didn't know that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2011 Report Share Posted February 13, 2011 Great Plains actually marked off the DDI name on my test kit (so it's the same). But the big difference to me was this: a doctor signs off on the kit and the doctor is the one that receives the results. The doctor may be set up with GP for GP to send the results to the patient as well. My doctor does not want patients receiving the results. I NEVER got the color copy from GP. And My doctor will not get it for me. So, you need to trust your doctor if you are using GP. And GP marked up the price. However, I did get to speak with the scientist at GP for 1 hour (I think). That was interesting. I have read that Great Smokies (now Genova) lab results are different, I believe. Martha > > > > But as I understand it, you have to apply a different set of rules to the > > other? Or can you apply the same counting rules? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2011 Report Share Posted February 13, 2011 We joined the RFA (Recovery From Autism) group just before beginning the AC Protocol. One of the moderators can order it for you and you will get a color copy. They can also help you interpret the test. This group is invaluable if you are doing AC Protocol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Haven, I cant find the RFA or Recovery from Autism group, can you please let me know how to join this forum? Thanks Wande Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 This group is closed, just temporarily, I hope. ________________________________ From: wande <wandeadewale@...> Sent: Mon, February 14, 2011 9:18:15 AM Subject: [ ] Re: My Husband is VERY nervous about chelating  Haven, I cant find the RFA or Recovery from Autism group, can you please let me know how to join this forum? Thanks Wande Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Anyone can order their own DDI hair test from http://directlabs.com/ (unless they're in New York I believe, where it is prohibited). You get a discount if you mention the AM group. This way, you're not giving your child's test results to people you don't know. Anita > > We joined the RFA (Recovery From Autism) group just before beginning the AC > Protocol. One of the moderators can order it for you and you will get a > color copy. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Haven, Is this the RFA you're talking about? http://recoveryfromautism.com/ Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Which reminds me, we shouldn't just be about recovering from autism, but also learning to deal with what we have.. . If chelation works differently with you or perhaps doesn't work at all (of perhaps just now it's not working for you, for whatever reason) then that's the sort of thing that should overarch everything we could be about, perhaps as the measure of success itself, always keeping an eye on the possibilities, which I believe is all that a site dedicated to a particular thing (like this?) can actually be. (So, as long as I'm here it means I haven't given up on chelation, however that can be done safely and inexpensively [that value isn't also the thing with me] of this seeming to be one of the best groups in that respect, of it not being moderated (outside of our doing so by reason if not such reason, of that's how communication works where it would work so well) and allowing the truth of as much stand for what greater truth there might or perhaps only could be by as much.. . I believe if you took a small amount of ALA as a supplement, you'd be doing a primary if not primitive form of pretty safe and natural chelation, maybe taking a break from it to allow for the other half of doing what has come to stand for chelation (of the whole cycle). I see no reason for anyone not doing that how safe and recommended ALA is by just about everybody out there who seems to know something about anything to do with supplements, but of course, if it seems to give you a problem, (health being an individual thing, like justice itself) even the smallest amount you could try of so reasonably trying things, (that that isn't what life and learning is all about) just stop it, and maybe try chelating with foods or whatever, that most supplements can't also be found in foods, how long that might take A bit of a digression, but as a life lesson, I figure as good as any/thing:) In our case it was my wife that was reluctant to chelate. ($$$, among other things) She's OK with it now, for what it's worth.. We're trying to avoid professional help in that respect, bargaining/Communicating for what we need with what we've got, (of understanding as much, as we do? of all the abuse we've suffered) sometimes with money where that works, here and there.. . When it comes to friends (so called friends? of the social and/or political type, that we have to pay back in that respect.. . we often find it's actually *cheaper* to pay *cash* for what we need and be done with it, if not be done with such friends and associates.. . Best wishes in that respect, on where I Feel I can help Us and how I can do as much for us (as we do for me) how I now realize that *justness* is the thing, of Understandingmore.. . (That I need dictators or abusers otherwise, but I really feel I don't, of my separating the chaff from the wheat, or whatever, of such *true* value, true to me at least.. . Best wishes, Thereof Glavic On true value? .. . It doesn't come any cheaper (I Figure, by as much. FTO?!. > > Haven, > > I cant find the RFA or Recovery from Autism group, can you please let me know how to join this forum? > > Thanks > > Wande > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Thank you for your thoughts, . The same points you've made have gone through my mind in the last year or two. I'm sure with others as well. I've focused a lot of attention on the food we consume at home and out, quality and quantity, especially quality, plus what we've surrounded ourselves with environmentally. It may be, even with success in chelating, that our son (and my husband and I) will have to take supplements for the rest of his live in order to be in optimum health. I have hopes that one day it'll be whittled down to taking 1 multivitamin, and to mainly rely on food for the nutrients he needs. Before our son was born and autism began appearing, we didn't have many pills in the house. Almost nothing in our medicine cabinet, just a thermometer. Now I have a full shelf in our pantry and one in our refrigerator dedicated to vitamins, supplements, etc. I sometimes open the pantry door and feel overwhelmed or think " this is whacked " . But it's what I have to do right now. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Thank you for the heads up, Martha. I made sure to ask my DAN doc for all of the copies when she receives them. I want to keep records at home, or have them handy when we switch doctors or a specialist needs them. > > Great Plains actually marked off the DDI name on my test kit (so it's the same). But the big difference to me was this: a doctor signs off on the kit and the doctor is the one that receives the results. The doctor may be set up with GP for GP to send the results to the patient as well. My doctor does not want patients receiving the results. I NEVER got the color copy from GP. And My doctor will not get it for me. So, you need to trust your doctor if you are using GP. And GP marked up the price. However, I did get to speak with the scientist at GP for 1 hour (I think). That was interesting. > > I have read that Great Smokies (now Genova) lab results are different, I believe. > Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Oh darn! I wished I read this before ordering the test requisition. I'll call them tomorrow to see if they'll still give me the discount. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Hi Sheila, More on ALA: http://altmedicine.about.com/od/alphalipoicacid/a/alphalipoicacid.htm It doesn't really seem like you can do wrong by it if you take it in moderation (with a bit of order to chelation as we would have it as your *guide,* and not your master? .. .) If many of us are compromised by heavy metal toxicity (as has been suggested) I think the science and literature would have alluded to ALA having a dangerous side-effect in that respect. It doesn't. I see it nowhere in the literature except by a very small band of people (here mostly?) who believe they have isolated its power and efficacy better than whoever else is doing the research (mainstream science? or the supplement industry, perhaps) with respect to the side-effects related to taking ALA, (What, we chelators don't exist to the industry if not the science?!?) which, if I'm not mistaken, is *predominately* taken (ALA) by people for reasons other than for chelating, so I wouldn't get too hung up on doing things perfectly outside of what you discover for yourself... of your own primary research and doing things in moderation in that respect, that everything else would be so moderate and moderating.. . Go with what you Feel, as understand.. . You're very welcome. Glavic > > Thank you for your thoughts, . The same points you've made have gone through my mind in the last year or two. I'm sure with others as well. > > I've focused a lot of attention on the food we consume at home and out, quality and quantity, especially quality, plus what we've surrounded ourselves with environmentally. It may be, even with success in chelating, that our son (and my husband and I) will have to take supplements for the rest of his live in order to be in optimum health. I have hopes that one day it'll be whittled down to taking 1 multivitamin, and to mainly rely on food for the nutrients he needs. > > Before our son was born and autism began appearing, we didn't have many pills in the house. Almost nothing in our medicine cabinet, just a thermometer. Now I have a full shelf in our pantry and one in our refrigerator dedicated to vitamins, supplements, etc. I sometimes open the pantry door and feel overwhelmed or think " this is whacked " . But it's what I have to do right now. > > Sheila > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 On Mon, Feb 14, 2011 at 9:52 AM, the_murdocks2004 < the_murdocks2004@...> wrote: > > > Haven, > > Is this the RFA you're talking about? > http://recoveryfromautism.com/ > > Sheila > No, this is not the one. go to > RecoveryFromAutism/ > check to see if it has been temporarily closed to new members. I hope not. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 , yes, ALA is very safe, but it really shouldn't be taken by anyone who has amalgam fillings in their mouth. It can cross the BBB. I took it a couple of times just to see....I have amalgams, and good Lord did I get a bad case of brain fog! ALA should also be dosed on its half-life of three hours for at least a continuous 66 hours. 72 is better. Even knowing this, I was still scared to start again based on what I saw happen with IV, but The RFA group helped me push through my fear. My son did start with the respiratory symptoms on the very first day we started --after the third dose, but it was the RFA group and the files there that taught me about the role of the adrenals, the effect mercury has on them, the effect chelation can have on them, and they taught me about ACE. Since starting ACE, my son has had NO asthma, has needed no asthma meds in one month, has had no signs of infections which have plagued him every two to three weeks since age fifteen months. This is the LONGEST my son has gone without being sick in NINE years. He still stims, but it is reduced form before we started. If we gain NOTHING else, and this just frees him from asthma meds and frees him from constant infections....This is a miracle in my book. If I had listened to a pediatric pulmonologist a couple of years ago, my son would be stuck on several different steroids five times a day. Someone sent me an abstract of the benefit of ALA on asthma. Very fascinating! maybe it is the combination of ALA and ACE and GSE. I don't know. I just know that for once I am beginning to relax and think my son could actually have a normal immune system for a change. I love my son. I KNOW he has mercury in his body. This is very poisonous, toxic stuff. I just want it OUT. One second to put it in, and years to get it out. It makes NO sense. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Sheila, I know what you mean. I had a friend in high school who had scoliosis. I went to her house for dinner one evening, and her dad gave her all these vitamins to take before dinner and I was just a kid and thought how strange that was that he was making her take about fifteen different vitamins. Now I wish my parents had made us take one. My mother thought a piece of toast and hot tea with sugar in it was the breakfast of champions for us kids. I was very skeptical when the gf/cf/sf diet was first brought up to me. I tend to be a skeptic. But all I know is I had a child who couldn't talk, wouldn't give me eye contact, and often pooped on the floor. Now we talk. We got stuck in traffic tonight coming home from social class (sixty-six miles away). He wanted me to exit, but everyone was exiting, and that would have taken just as long. He said, " I just want to be free, Mommy. I want to be free! " I said I would like that too but when there is an accident, you've just got to go with the flow and be patient. First he said, " Mommy, you're mean. " because I didn't exit, and then he said, " No Mom, I didn't mean that. You're good. " He started to get upset about the traffic, but was able to calm himself down. Every now and then he would say, " I'm handling the traffic, Mom. " I told him he was handling it better than I was. It took us an hour to go ten miles! I thought we would never get home. All the mainstream docs said it was hopeless. all I ever heard from them was he would never do this and never do that. Unfortunately in the pomposity of their degree, they lose sight of the poser of hope. When they can't figure osmething out, these days, they alwasy blow theri patients off as " being depressed. " My son proves them wrong. I am so glad I trusted my gut feelings. I took the road less traveled. What if I had just taken their word as gospel and done nothing? What if I had just let them dope him? god, I am so glad I didn't. Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 I hadn't heard it was closed. If so, why? The web address is RecoveryFromAutism/ Go there and see if it will allow you to ask to join. I hope it isn't closed. So many more children need help. Haven Quote Link to comment Share on other sites More sharing options...
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