Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Blair, io am wondering this too. My son is very hyper and stimming is off the wall for about two to three days off-round. I hope someone replies with an idea. Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Hi, We have been successfully plugging away for a few years at the A/C protocol. For my daughter ( now 7 years old round 103 - 55lbs) Adrenal support Yeast but what really did it was making sure we were not moving the dose up too quickly. This is a gal that had to start at 1-3 mgs . We have moved slowly slowly slowly over the years and have had tremendous gains. Many times when we moved up we would see this few day hangover. Trust me we moved up slowly. It seems like there is a perfect spot to be..sitting right on the fence...too little not enough gains...too much adrenal and hangovers. Even if logic seems to say its okay to move up and its just a bit so it should not be a problem and you have been at the dose forever well ......maybe its not time. We had slowly worked our way up to 25 mgs. I was seeing the hangover frequently. We popped back down to 12 mgs and the hangover is gone but still seeing tremendous gains. We don't have to reach the goal of the maximum amount we have to reach the goal of the correct amount for right now. Not saying this is the case for either of you. This is not the case for everyone but it really seemed to be our round hangover cure. If you have adrenal support and your feel confident about your yeast protocol then see if you offer a lower dose and you still get this hangover. Just a thought. Simone > Blair, > > io am wondering this too. My son is very hyper and stimming is off the wall > for about two to three days off-round. I hope someone replies with an idea. > > Haven > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 What are you doing for the adrenal support? I'm using adrenal cortex extract 66mg 2x/day. Not sure if that is enough. Deb > > Hi, > We have been successfully plugging away for a few years at the A/C protocol. > For my daughter ( now 7 years old round 103 - 55lbs) > Adrenal support > Yeast > but what really did it was making sure we were not moving the dose up too quickly. > This is a gal that had to start at 1-3 mgs . We have moved slowly slowly slowly > over the years and have had tremendous gains. Many times when we moved up we would > see this few day hangover. Trust me we moved up slowly. It seems like there is a > perfect spot to be..sitting right on the fence...too little not enough gains...too much adrenal > and hangovers. Even if logic seems to say its okay to move up and its just a bit > so it should not be a problem and you have been at the dose forever well ......maybe its not time. > We had slowly worked our way up to 25 mgs. I was seeing the hangover frequently. > We popped back down to 12 mgs and the hangover is gone but still seeing tremendous gains. > We don't have to reach the goal of the maximum amount we have to reach the goal of > the correct amount for right now. Not saying this is the case for either of you. > This is not the case for everyone but it really seemed to be our round hangover cure. > If you have adrenal support and your feel confident about your yeast protocol then > see if you offer a lower dose and you still get this hangover. > Just a thought. > Simone > > > Blair, > > > > io am wondering this too. My son is very hyper and stimming is off the wall > > for about two to three days off-round. I hope someone replies with an idea. > > > > Haven > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Thank you for the feedback, Simone. I'm going to increase and see how it goes. He is 16yo, 134 lbs skin and bones, seems like he could take more than I'm giving. Deb > > > > > > Hi, > > > We have been successfully plugging away for a few years at the A/C protocol. > > > For my daughter ( now 7 years old round 103 - 55lbs) > > > Adrenal support > > > Yeast > > > but what really did it was making sure we were not moving the dose up too quickly. > > > This is a gal that had to start at 1-3 mgs . We have moved slowly slowly slowly > > > over the years and have had tremendous gains. Many times when we moved up we would > > > see this few day hangover. Trust me we moved up slowly. It seems like there is a > > > perfect spot to be..sitting right on the fence...too little not enough gains...too much adrenal > > > and hangovers. Even if logic seems to say its okay to move up and its just a bit > > > so it should not be a problem and you have been at the dose forever well ......maybe its not time. > > > We had slowly worked our way up to 25 mgs. I was seeing the hangover frequently. > > > We popped back down to 12 mgs and the hangover is gone but still seeing tremendous gains. > > > We don't have to reach the goal of the maximum amount we have to reach the goal of > > > the correct amount for right now. Not saying this is the case for either of you. > > > This is not the case for everyone but it really seemed to be our round hangover cure. > > > If you have adrenal support and your feel confident about your yeast protocol then > > > see if you offer a lower dose and you still get this hangover. > > > Just a thought. > > > Simone > > > > > > > Blair, > > > > > > > > io am wondering this too. My son is very hyper and stimming is off the wall > > > > for about two to three days off-round. I hope someone replies with an idea. > > > > > > > > Haven > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Hi Simone, I completely understand what you are saying about the hangover effect with too high a dose. My 10yo dd clearly fits into this scenario. Way too much adrenal stress with even a 1mg increase in ALA. But, you know, she has always been a very sensitive responder to supplements. We are on round 52, and she is still just shy of the 1/8 mg/lb dose. I try desperately to get to this minimum dose, but it just isn't worth it in terms of side effects. Any thoughts on lower-than-low dose chelation? > > Hi, > We have been successfully plugging away for a few years at the A/C protocol. > For my daughter ( now 7 years old round 103 - 55lbs) > Adrenal support > Yeast > but what really did it was making sure we were not moving the dose up too quickly. > This is a gal that had to start at 1-3 mgs . We have moved slowly slowly slowly > over the years and have had tremendous gains. Many times when we moved up we would > see this few day hangover. Trust me we moved up slowly. It seems like there is a > perfect spot to be..sitting right on the fence...too little not enough gains...too much adrenal > and hangovers. Even if logic seems to say its okay to move up and its just a bit > so it should not be a problem and you have been at the dose forever well ......maybe its not time. > We had slowly worked our way up to 25 mgs. I was seeing the hangover frequently. > We popped back down to 12 mgs and the hangover is gone but still seeing tremendous gains. > We don't have to reach the goal of the maximum amount we have to reach the goal of > the correct amount for right now. Not saying this is the case for either of you. > This is not the case for everyone but it really seemed to be our round hangover cure. > If you have adrenal support and your feel confident about your yeast protocol then > see if you offer a lower dose and you still get this hangover. > Just a thought. > Simone > > > Blair, > > > > io am wondering this too. My son is very hyper and stimming is off the wall > > for about two to three days off-round. I hope someone replies with an idea. > > > > Haven > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Hi Simone, Very interesting about cysteine and ALA, and the sulfur connection. I had never heard that before. Maybe something to look into here. I will definitely look into the archives. I was not very clear in my initial response. This is what I meant about being a sensitive responder: she most always needs a lower dose of supplements, meds, etc to be effective, and normal doses will cause side effects. So for example with ACE, we had to start at a very low dose, probably 1/8th of a 250mg capsule, and slowly (over a month or 2) work up to a full capsule. Too high of a dose would cause a lot of irritability. Now she takes 5caps/day, but again, it took a few months to get there. Food sensitivities are to gluten, milk, peanuts. Used to have some trouble with eggs (which are high sulfur, right?), but can tolerate 1-2/wk now. We have done 4 rounds of DMSA, not consecutive. First 2 weeks (which were consecutive) she got the flu. I stopped the DMSA and waited a few more weeks, then did 2 more weeks with DMSA and she got sick again. She's not a kid who gets a lot of illnesses (anymore); my fear is the DMSA is lowering her neutrophils, so I cut it for a while. Thanks so much for your help. > > > > > > Hi, > > > We have been successfully plugging away for a few years at the A/C protocol. > > > For my daughter ( now 7 years old round 103 - 55lbs) > > > Adrenal support > > > Yeast > > > but what really did it was making sure we were not moving the dose up too quickly. > > > This is a gal that had to start at 1-3 mgs . We have moved slowly slowly slowly > > > over the years and have had tremendous gains. Many times when we moved up we would > > > see this few day hangover. Trust me we moved up slowly. It seems like there is a > > > perfect spot to be..sitting right on the fence...too little not enough gains...too much adrenal > > > and hangovers. Even if logic seems to say its okay to move up and its just a bit > > > so it should not be a problem and you have been at the dose forever well ......maybe its not time. > > > We had slowly worked our way up to 25 mgs. I was seeing the hangover frequently. > > > We popped back down to 12 mgs and the hangover is gone but still seeing tremendous gains. > > > We don't have to reach the goal of the maximum amount we have to reach the goal of > > > the correct amount for right now. Not saying this is the case for either of you. > > > This is not the case for everyone but it really seemed to be our round hangover cure. > > > If you have adrenal support and your feel confident about your yeast protocol then > > > see if you offer a lower dose and you still get this hangover. > > > Just a thought. > > > Simone > > > > > > > Blair, > > > > > > > > io am wondering this too. My son is very hyper and stimming is off the wall > > > > for about two to three days off-round. I hope someone replies with an idea. > > > > > > > > Haven > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 > > Hi Simone, > I completely understand what you are saying about the hangover effect with too high a dose. My 10yo dd clearly fits into this scenario. Way too much adrenal stress with even a 1mg increase in ALA. But, you know, she has always been a very sensitive responder to supplements. We are on round 52, and she is still just shy of the 1/8 mg/lb dose. I try desperately to get to this minimum dose, but it just isn't worth it in terms of side effects. Any thoughts on lower-than-low dose chelation? > > > I am not on a formal chelation protocol. It's clear to me that metals and other toxins are coming out of my system. I have a genetic disorder and the basis for everything that goes wrong with me is that there is a protein channel that is deficient in my cells. It causes me to misprocess things and this causes bottlenecks which create excesses of some things and deficiencies of others. I have spent 10 years working on getting well. A few thoughts on stuff that has helped me get around these bottlenecks/sensitivities, which may or may not apply to your situation: I have gone to great lengths to take external stressors off my system in order to help optimize my body's ability to cope with cleaning up the mess inside my tissues. For me, this included removing toxic household cleaners, particle board furniture, paper/cardboard, and some other things from my home as much as I possibly could. It was done gradually so my body could handle the change. I read that if minerals (especially salt, which my body misprocesses) and PH balance in the cell get way out of whack, it causes the body to mis-fold proteins. In other words, when the body chemistry is too out of whack, it actively creates the same issue my genetic disorder creates. Working on my PH balance and the salt issue (in part because salt is a major thing with my genetic disorder) and general nutritional deficiencies has helped my body function closer to normal. I believe it does that in part by optimizing my body's ability to create properly working channels of the type that it normally messes up. I mean, my body may never be a " silk purse " but it's the best damn " sow's ear " it can be, if that analogy makes sense. I do a lot of stuff transdermally (through the skin). I am careful where I sit at work, I put things in my bath water, etc. Skin is the largest organ of the body and my gut doesn't work right. Absorbing helpful stuff through the skin and avoiding/minimizing exposures to problem stuff has been really helpful to me. HTH and good luck. Michele http://www.healthgazelle.com http://www.kidslikemine.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Reposting it and changing one word as it seems I tripped some profanity filter and the message may not be available on the group because of it. I actually swear like a sailor in person. I try to keep it out of my online comments but don't always succeed. Oop. Michele > > Hi Simone, > I completely understand what you are saying about the hangover effect with too high a dose. My 10yo dd clearly fits into this scenario. Way too much adrenal stress with even a 1mg increase in ALA. But, you know, she has always been a very sensitive responder to supplements. We are on round 52, and she is still just shy of the 1/8 mg/lb dose. I try desperately to get to this minimum dose, but it just isn't worth it in terms of side effects. Any thoughts on lower-than-low dose chelation? > > > I am not on a formal chelation protocol. It's clear to me that metals and other toxins are coming out of my system. I have a genetic disorder and the basis for everything that goes wrong with me is that there is a protein channel that is deficient in my cells. It causes me to misprocess things and this causes bottlenecks which create excesses of some things and deficiencies of others. I have spent 10 years working on getting well. A few thoughts on stuff that has helped me get around these bottlenecks/sensitivities, which may or may not apply to your situation: I have gone to great lengths to take external stressors off my system in order to help optimize my body's ability to cope with cleaning up the mess inside my tissues. For me, this included removing toxic household cleaners, particle board furniture, paper/cardboard, and some other things from my home as much as I possibly could. It was done gradually so my body could handle the change. I read that if minerals (especially salt, which my body misprocesses) and PH balance in the cell get way out of whack, it causes the body to mis-fold proteins. In other words, when the body chemistry is too out of whack, it actively creates the same issue my genetic disorder creates. Working on my PH balance and the salt issue (in part because salt is a major thing with my genetic disorder) and general nutritional deficiencies has helped my body function closer to normal. I believe it does that in part by optimizing my body's ability to create properly working channels of the type that it normally messes up. I mean, my body may never be a " silk purse " but it's the best darn " sow's ear " it can be, if that analogy makes sense. I do a lot of stuff transdermally (through the skin). I am careful where I sit at work, I put things in my bath water, etc. Skin is the largest organ of the body and my gut doesn't work right. Absorbing helpful stuff through the skin and avoiding/minimizing exposures to problem stuff has been really helpful to me. HTH and good luck. Michele http://www.healthgazelle.com http://www.kidslikemine.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Thanks Michele - You gave me a good laugh! I don't see any profanities and appreciate that you're a straight-shooter. We have been slowly trying to detox our environment. I am working on household cleaners, soaps, laundry det, etc. I know there is so much more, and it can be overwhelming sometimes. Also, hard to know what is going on with her internally as well, i.e. what specifically is malfunctioning in her body. How did you determine that your problem was with low sodium, unbalanced pH, etc? > > > > Hi Simone, > > I completely understand what you are saying about the hangover effect with too high a dose. My 10yo dd clearly fits into this scenario. Way too much adrenal stress with even a 1mg increase in ALA. But, you know, she has always been a very sensitive responder to supplements. We are on round 52, and she is still just shy of the 1/8 mg/lb dose. I try desperately to get to this minimum dose, but it just isn't worth it in terms of side effects. Any thoughts on lower-than-low dose chelation? > > > > > > > > > I am not on a formal chelation protocol. It's clear to me that metals and other toxins are coming out of my system. I have a genetic disorder and the basis for everything that goes wrong with me is that there is a protein channel that is deficient in my cells. It causes me to misprocess things and this causes bottlenecks which create excesses of some things and deficiencies of others. I have spent 10 years working on getting well. A few thoughts on stuff that has helped me get around these bottlenecks/sensitivities, which may or may not apply to your situation: > > I have gone to great lengths to take external stressors off my system in order to help optimize my body's ability to cope with cleaning up the mess inside my tissues. For me, this included removing toxic household cleaners, particle board furniture, paper/cardboard, and some other things from my home as much as I possibly could. It was done gradually so my body could handle the change. > > I read that if minerals (especially salt, which my body misprocesses) and PH balance in the cell get way out of whack, it causes the body to mis-fold proteins. In other words, when the body chemistry is too out of whack, it actively creates the same issue my genetic disorder creates. Working on my PH balance and the salt issue (in part because salt is a major thing with my genetic disorder) and general nutritional deficiencies has helped my body function closer to normal. I believe it does that in part by optimizing my body's ability to create properly working channels of the type that it normally messes up. I mean, my body may never be a " silk purse " but it's the best darn " sow's ear " it can be, if that analogy makes sense. > > I do a lot of stuff transdermally (through the skin). I am careful where I sit at work, I put things in my bath water, etc. Skin is the largest organ of the body and my gut doesn't work right. Absorbing helpful stuff through the skin and avoiding/minimizing exposures to problem stuff has been really helpful to me. > > HTH and good luck. > > Michele > http://www.healthgazelle.com > http://www.kidslikemine.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Thanks for sharing your story Simone. It is always helpful for me to hear other people's experiences. How old is your daughter? How many rounds of chelation are you at? I did a little research on sulfur/high thiol foods and supplements in the meantime. Maybe something I should explore, but honestly, I can't imagine eliminating yet more foods from our diet at this point. I think I will try to watch for reactions after she eats some of the high thiol foods. I also saw that molybdenum can be helpful - will maybe add that in and see if there are any changes. > > > > > > > > > > Hi, > > > > > We have been successfully plugging away for a few years at the A/C protocol. > > > > > For my daughter ( now 7 years old round 103 - 55lbs) > > > > > Adrenal support > > > > > Yeast > > > > > but what really did it was making sure we were not moving the dose up too quickly. > > > > > This is a gal that had to start at 1-3 mgs . We have moved slowly slowly slowly > > > > > over the years and have had tremendous gains. Many times when we moved up we would > > > > > see this few day hangover. Trust me we moved up slowly. It seems like there is a > > > > > perfect spot to be..sitting right on the fence...too little not enough gains...too much adrenal > > > > > and hangovers. Even if logic seems to say its okay to move up and its just a bit > > > > > so it should not be a problem and you have been at the dose forever well .....maybe its not time. > > > > > We had slowly worked our way up to 25 mgs. I was seeing the hangover frequently. > > > > > We popped back down to 12 mgs and the hangover is gone but still seeing tremendous gains. > > > > > We don't have to reach the goal of the maximum amount we have to reach the goal of > > > > > the correct amount for right now. Not saying this is the case for either of you. > > > > > This is not the case for everyone but it really seemed to be our round hangover cure. > > > > > If you have adrenal support and your feel confident about your yeast protocol then > > > > > see if you offer a lower dose and you still get this hangover. > > > > > Just a thought. > > > > > Simone > > > > > > > > > > > Blair, > > > > > > > > > > > > io am wondering this too. My son is very hyper and stimming is off the wall > > > > > > for about two to three days off-round. I hope someone replies with an idea. > > > > > > > > > > > > Haven > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 > > Thanks Michele - You gave me a good laugh! I don't see any profanities and appreciate that you're a straight-shooter. I changed the offending word to " darn " ( " best darn sow's ear... " ). > > How did you determine that your problem was with low sodium, unbalanced pH, etc? > The PH thing started with an online conversation with someone with rheumatoid arthritis who commented on modifying diet to reduce acidity so as to reduce need for anti-inflammatory drugs. I was having a miserable day and debating whether or not to take yet more medication and after chatting online with this person, I jumped up and put baking soda in a glass of water, drank some of it and got instant relief for the lung inflammation that was making me think about taking yet more meds. From there, I did lots more research. It turns out that Cystic Fibrosis is basically an inflammatory condition, it is well known that people with CF are typically waaay too acid, controlling inflammation in people with CF is proven to reduce incidence of infection...etc...etc....and then I tripped across the info about acidity and such causing proteins to misfold. As I understand it, most genetic disorders involve a misfolded/miscoded protein. So I am kind of guessing your child may have either some inherent (unrecognized) mild genetic disorder OR is so toxic that the body chemistry is causing the types of problems typical of genetic disorders by causing proteins to misfold and thus causing bottlenecks because there aren't enough channels into and out of the cells to process stuff efficiently. But that's a very BIG, BIG guess. However, if what you really wanted to know with your question was how to determine something like that for your child, some folks on this list have used PH strips to test saliva and/or urine. The salt issue is very well established as a problem for my genetic disorder. It is so well established that people with CF purge salt at high rates that the most common test for CF is a 'sweat chloride' test -- ie they test just how salty your sweat is. To apply it to your situation, I would look for symptoms, like adrenal stress, that indicate salt and/or other minerals are deficient. HTH and good luck. Michele http://www.healthgazelle.com http://www.kidslikemine.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Nothing wrong with ultra low doses. My son was on 1-2 mg of ALA forever it seems- one day he just tolerated more and a little more and a little more. Etc. Do not push it- I tried and we had adrenal issues. We pushed the DMSA dose to the outer limits and ended up with low neutrophils. It's not about the dose per se- these are guidelines- use a dose that gets the job done with the least amount of side effects. After 124 rounds, I have made my peace with that. Not to worry ! I as an adult after 2 years am just at a little over 1/8 mg- and it is still working for me too. Irene > > > > Hi, > > We have been successfully plugging away for a few years at the A/C protocol. > > For my daughter ( now 7 years old round 103 - 55lbs) > > Adrenal support > > Yeast > > but what really did it was making sure we were not moving the dose up too quickly. > > This is a gal that had to start at 1-3 mgs . We have moved slowly slowly slowly > > over the years and have had tremendous gains. Many times when we moved up we would > > see this few day hangover. Trust me we moved up slowly. It seems like there is a > > perfect spot to be..sitting right on the fence...too little not enough gains...too much adrenal > > and hangovers. Even if logic seems to say its okay to move up and its just a bit > > so it should not be a problem and you have been at the dose forever well ......maybe its not time. > > We had slowly worked our way up to 25 mgs. I was seeing the hangover frequently. > > We popped back down to 12 mgs and the hangover is gone but still seeing tremendous gains. > > We don't have to reach the goal of the maximum amount we have to reach the goal of > > the correct amount for right now. Not saying this is the case for either of you. > > This is not the case for everyone but it really seemed to be our round hangover cure. > > If you have adrenal support and your feel confident about your yeast protocol then > > see if you offer a lower dose and you still get this hangover. > > Just a thought. > > Simone > > > > > Blair, > > > > > > io am wondering this too. My son is very hyper and stimming is off the wall > > > for about two to three days off-round. I hope someone replies with an idea. > > > > > > Haven > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Haven- that amount of adrenals support is not a lot and you could probably use more. We worked our way up to six 250mg caps a day. No toxic amounts of the stuff. Like night and day when my son has enough on board. Also stimminess could be yeast too. GSE made my son twice as stimmy. (he is skow phase 1 as am I, gse makes me feel weird and faint) He could not tolerate it as an antifungal. Just throwing it out there. There are lots of good natural anti fungals out there. Make sure your chelator dose is low enough too, don't push it. Epsom salt baths post round and extra C, E and ACE akways helped here post round. After a while, this post round stuff gets better and goes away. At round 124 we very rarely have major post round issues- if we do get stimminess - either extra ACE or an antifungal helps. Irene > > My son is getting 125 mg of GSE a day (divided in two doses) along with > d-biotin at 1000mcg twice a day, given when he takes the GSE. > > He is on 50 mg of Thorne ACE twice a day. He also takes all the regular > supps for AC Protocol. We divided things up into four times a day. He gets > his probiotics at noon and bedtime (about four hours away from the GSE). > > We are on round twelve, and there has been a lot more stimming/finger > flicking on this round and more hyperactivity where he runs down the hall > and throws himself up against the door. > > On the othr hand, he is more with it. His auditory processing is much > better. > > Am I giving enough ACE, GSE, and biotin? I don't know how to tell if this > is adrenal (I usual know if he is weepy, anxious, or clingy) This could be > yeast or it could be just metals moving around, so I am wondering if I > should be doing something else off round to help mop up anything floating > around? > > The stimming is worrisome to me. > > Haven > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 > > Hi , > > We have always just used lots of Himalayan sea salt and no iodized table salt. Its great a no guilt way to have lots of salt/mineral and its good for you. > Any other suggestions? If you haven't already, you could try Celtic to see if it does anything more for you. Also, I found that taking glyconutrients and coconut oil with the sea salt had a synergistic effect -- had a much bigger impact than any of them alone. These days, I routinely make a healthy carb with sea salt and organic butter. The right carbs/glyconutrients and the right fats/oils taken with or consumed with sea salt seem to make the salt absorb better. I have found that when I am desperately in need of salt and can't just make myself take more, getting it with the right carbs and fats increases my ability to take it and absorb it properly. > > As for the Ph my gal has always been higlhy acidic but we have had some success with using LiverLIfe - lots of milk thistle > and drinking organic lemon juice ( use acidic to make the tummy alkaline) followed by a xylitol rinse for the teeth so that they are not > covered i the lemon juice acid) I ate lots and lots of lettuce, corn (especially white corn, though I don't know why that is my preference), and watermelon. I also ate granny smith apples fairly often. As I understand it, other apples are high phenol, which I do poorly with but any apples should help with PH. (If phenol is not an issue, cucumbers and celery are also good -- I stuck with lettuce so much because I don't tolerate cucumbers and celery that well.) We also drink apple juice and lots of other juices. If there are indications of deficiencies of alkaline minerals, like calcium or magnesium, treat them. I also keep (diet) tonic water in the house at all times. We use it for cooking some and as a non-toxic cleaner these days. I used to drink it fairly often. I still sometimes use it topically, like to treat my ears. If you haven't seen it before, there is a little info on my website under the PH balance section: http://healthgazelle.com/ph.shtml Generally speaking, newer info is going on the blog these days. The main site isn't updated as much. Well, it's like 1:30 AM here. Let me know if I missed something. Michele http://www.healthgazelle.com http://www.kidslikemine.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Thanks Irene. This makes me feel so much better, because I know you have been at this for a long while, and have had very good results. I have been told we really should try to get to the minimum required dose, and I agree with this, but I can't keep on top of what I think is adrenal stress, even with a 1mg increase in ALA. She does OK with a 5.8mg dose and I will keep it there for a while and try to increase again later. I was hoping to not still be chelating 5 yrs later, esp b/c she is just about to turn 11 and I'm not sure how long I will have control over this, but I can only do what I can do at this point. I really appreciate your input! > > > > > > Hi, > > > We have been successfully plugging away for a few years at the A/C protocol. > > > For my daughter ( now 7 years old round 103 - 55lbs) > > > Adrenal support > > > Yeast > > > but what really did it was making sure we were not moving the dose up too quickly. > > > This is a gal that had to start at 1-3 mgs . We have moved slowly slowly slowly > > > over the years and have had tremendous gains. Many times when we moved up we would > > > see this few day hangover. Trust me we moved up slowly. It seems like there is a > > > perfect spot to be..sitting right on the fence...too little not enough gains...too much adrenal > > > and hangovers. Even if logic seems to say its okay to move up and its just a bit > > > so it should not be a problem and you have been at the dose forever well ......maybe its not time. > > > We had slowly worked our way up to 25 mgs. I was seeing the hangover frequently. > > > We popped back down to 12 mgs and the hangover is gone but still seeing tremendous gains. > > > We don't have to reach the goal of the maximum amount we have to reach the goal of > > > the correct amount for right now. Not saying this is the case for either of you. > > > This is not the case for everyone but it really seemed to be our round hangover cure. > > > If you have adrenal support and your feel confident about your yeast protocol then > > > see if you offer a lower dose and you still get this hangover. > > > Just a thought. > > > Simone > > > > > > > Blair, > > > > > > > > io am wondering this too. My son is very hyper and stimming is off the wall > > > > for about two to three days off-round. I hope someone replies with an idea. > > > > > > > > Haven > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 So great to have such huge improvements. I feel we have come such a long way too, and I would like to keep it going. For a while I never thought our lives would look " normal " but we are getting closer and closer to that, and I'm loving it! I can guess that you have probably spent every waking minute trying to figure out how to help your girl. I always think that parents of NT children have absolutely no clue how much more we do as parents of non-NT kids. > > > > > > > > > > > > > > Hi, > > > > > > > We have been successfully plugging away for a few years at the A/C protocol. > > > > > > > For my daughter ( now 7 years old round 103 - 55lbs) > > > > > > > Adrenal support > > > > > > > Yeast > > > > > > > but what really did it was making sure we were not moving the dose up too quickly. > > > > > > > This is a gal that had to start at 1-3 mgs . We have moved slowly slowly slowly > > > > > > > over the years and have had tremendous gains. Many times when we moved up we would > > > > > > > see this few day hangover. Trust me we moved up slowly. It seems like there is a > > > > > > > perfect spot to be..sitting right on the fence...too little not enough gains...too much adrenal > > > > > > > and hangovers. Even if logic seems to say its okay to move up and its just a bit > > > > > > > so it should not be a problem and you have been at the dose forever well .....maybe its not time. > > > > > > > We had slowly worked our way up to 25 mgs. I was seeing the hangover frequently. > > > > > > > We popped back down to 12 mgs and the hangover is gone but still seeing tremendous gains. > > > > > > > We don't have to reach the goal of the maximum amount we have to reach the goal of > > > > > > > the correct amount for right now. Not saying this is the case for either of you. > > > > > > > This is not the case for everyone but it really seemed to be our round hangover cure. > > > > > > > If you have adrenal support and your feel confident about your yeast protocol then > > > > > > > see if you offer a lower dose and you still get this hangover. > > > > > > > Just a thought. > > > > > > > Simone > > > > > > > > > > > > > > > Blair, > > > > > > > > > > > > > > > > io am wondering this too. My son is very hyper and stimming is off the wall > > > > > > > > for about two to three days off-round. I hope someone replies with an idea. > > > > > > > > > > > > > > > > Haven > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Haven, We have had good response to emulsified oil of oregano. GSE was nasty here even w no phenol; much more than what I thought 'die-off' should be. IgG testing down the road a bit showed a big allergic response to grapefruit and other citrus. >> > let me know of other natural yeast fighters. I might want to take him off > the GSE and try the other. He was on all kinds of anti-fungals at one time > or another. I think the prescription ones quite working long ago, and I was > not happy about him being on those long term. > > Thanks for all your help, > > Haven > > > Quote Link to comment Share on other sites More sharing options...
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