Re: improvement - rage - migraines?

[Guest guest]

The sunlight comment is interesting. When my son was very young, he was

extremely sensitive to sunlight and used to cover his eyes and cry when we went

outside. After we got him on good quality supplements, that went away.

Barb

[ ] improvement - rage - migraines?

My boy has improved after round #14. When I ask him how he feels, instead of

going into a rage, he says " I feel terrible " . It seems now I can identify issues

like allergies, yeast (thrush on tongue), headaches- these things were

previously indistinguishable from the severe autism/rage. Now I can discern

them, they are being uncovered. Layers of poor health are surfacing and I hope

to resolve them one by one.

Sunlight seems to trigger rage so I'm wondering about migraines. Any

suggestions for possible migraines? Deb

[Guest guest]

>

> Sunlight seems to trigger rage so I'm wondering about migraines. Any

suggestions for possible migraines? Deb

>

This is somewhat speculative and likely flies in the face of most things you

will read. With that proviso, let me just ramble a bit. If it helps you,

great! If not, all it cost you was a smidgeon of your time.

I've thrown up at least once a month for over four years. In the past 10 months

to a year, it's been a great deal more frequent (often resulting in all-day

marathon vomiting as much as one day per week). I am not currently chelating.

I am treating myself for " atypical cystic fibrosis " . A big part of that is

removing all the toxins and crud that have built up in my system over a

life-time of not getting appropriate care (in part because I was diagnosed late

in life, in part because I think conventional approaches to treating it suck).

These vomiting sessions are typically preceded by severe headache and sometimes

accompanied by sensitivity to light. What I vomit up is very bitter or sour and

extremely corrosive to my throat. I often vomit up very little food, mostly

liquid and whatever this corrosive chemical-smelling stuff is. The vomiting

episodes don't resolve until I do vomit up this vile stuff -- as long as I am

primarily vomiting food, the issue will not resolve. As soon as I have ejected

enough of this foul stuff, I get dramatic and immediate relief from the

headache, nausea, light sensitivity and general misery and I typically go to

sleep and sleep very hard, a deep healing sleep.

On this list, there have been several occasions where someone reported their

child vomiting as part of chelation. On at least one occasion, the consensus

was they were using too high a dose of chelator. So I get the impression that

my experience isn't really unique, that other folks go through a similar

pattern. It just isn't really widely recognized.

On a list I got thrown off of (a GFCF/Celiac list), lots of people there

reported migraines. People there tried to tell me that my headaches accompanied

by nausea were " migraines " . I am very clear they are part of a healing process.

I have found ways to support the process so it is compressed (time-wise) and

less miserable. (Something that helps a bunch: salt water baths and staying

adequately hydrated.) On the list I was thrown off of, I tried to ask the

question " Just what is a migraine? " I think that was taken as being

smart-assed. But I was completely serious. I am perfectly clear what my

headaches accompanied by nausea indicate. I am 100% clear that they are caused

by a purging process which puts my body under stress. I am clear that the right

kind of support to help my body get through the purging process makes the

situation more bearable but that the only thing that puts an end to the misery

is when my body finally rids itself of whatever is coming out of me.

The last 10 months or so have been really intense in that regard. I am overall

doing a lot a better. These days, my headaches are less frequent and less

intense (usually less intense even on days when I actually vomit -- my body is

getting better at evicting the poisons in my system, without so much drama).

And, yes, I am often very angry as these poisons come out of me.

Since you specifically state that sunlight seems to trigger rages, I would

personally wonder if production of vitamin D is causing a cascade of events that

is helping the body to try to cope with whatever crud is gunking up his system

and if maybe he just isn't getting adequate support to get through the process

and it remains at basically the " stirred up but not resolved " stage.

Good luck with this.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

[Guest guest]

Yes Michele, I'm sure you're right. I'm just not sure what exactly he needs to

get through it. I have increased the B12 and all other B's except folic acid

and I do see improvement. I will increase the adrenal support based on other's

posts. I had to modify his diet again, he is down to just a few foods now but

he is tolerating them a bit.

Things are slowly getting better. They are so much better now than when we

started. However he is miserable and I have a long way to go. He still causes

a lot of destruction when he goes into rage, so I still consider us in emergency

mode. Hopefully the next few rounds will make things better. I wish I could

chelate full time, he is so much better on rounds. Deb

> >

> > Sunlight seems to trigger rage so I'm wondering about migraines. Any

suggestions for possible migraines? Deb

> >

>

>

> This is somewhat speculative and likely flies in the face of most things you

will read. With that proviso, let me just ramble a bit. If it helps you,

great! If not, all it cost you was a smidgeon of your time.

>

>

> I've thrown up at least once a month for over four years. In the past 10

months to a year, it's been a great deal more frequent (often resulting in

all-day marathon vomiting as much as one day per week). I am not currently

chelating. I am treating myself for " atypical cystic fibrosis " . A big part of

that is removing all the toxins and crud that have built up in my system over a

life-time of not getting appropriate care (in part because I was diagnosed late

in life, in part because I think conventional approaches to treating it suck).

These vomiting sessions are typically preceded by severe headache and sometimes

accompanied by sensitivity to light. What I vomit up is very bitter or sour and

extremely corrosive to my throat. I often vomit up very little food, mostly

liquid and whatever this corrosive chemical-smelling stuff is. The vomiting

episodes don't resolve until I do vomit up this vile stuff -- as long as I am

primarily vomiting food, the issue will not resolve. As soon as I have ejected

enough of this foul stuff, I get dramatic and immediate relief from the

headache, nausea, light sensitivity and general misery and I typically go to

sleep and sleep very hard, a deep healing sleep.

>

> On this list, there have been several occasions where someone reported their

child vomiting as part of chelation. On at least one occasion, the consensus

was they were using too high a dose of chelator. So I get the impression that

my experience isn't really unique, that other folks go through a similar

pattern. It just isn't really widely recognized.

>

> On a list I got thrown off of (a GFCF/Celiac list), lots of people there

reported migraines. People there tried to tell me that my headaches accompanied

by nausea were " migraines " . I am very clear they are part of a healing process.

I have found ways to support the process so it is compressed (time-wise) and

less miserable. (Something that helps a bunch: salt water baths and staying

adequately hydrated.) On the list I was thrown off of, I tried to ask the

question " Just what is a migraine? " I think that was taken as being

smart-assed. But I was completely serious. I am perfectly clear what my

headaches accompanied by nausea indicate. I am 100% clear that they are caused

by a purging process which puts my body under stress. I am clear that the right

kind of support to help my body get through the purging process makes the

situation more bearable but that the only thing that puts an end to the misery

is when my body finally rids itself of whatever is coming out of me.

>

> The last 10 months or so have been really intense in that regard. I am

overall doing a lot a better. These days, my headaches are less frequent and

less intense (usually less intense even on days when I actually vomit -- my body

is getting better at evicting the poisons in my system, without so much drama).

And, yes, I am often very angry as these poisons come out of me.

>

> Since you specifically state that sunlight seems to trigger rages, I would

personally wonder if production of vitamin D is causing a cascade of events that

is helping the body to try to cope with whatever crud is gunking up his system

and if maybe he just isn't getting adequate support to get through the process

and it remains at basically the " stirred up but not resolved " stage.

>

> Good luck with this.

>

> Michele

> http://www.healthgazelle.com

> http://www.kidslikemine.com

>

[Guest guest]

>

> Yes Michele, I'm sure you're right. I'm just not sure what exactly he needs

to get through it.

For me, the intense headache and nausea has to do with something going on in my

mucus membranes, including sinuses. Salt is a major component of mucus, as is

water. I find a salt water bath helps my body purge this stuff faster and more

comfortably. I bathe twice a day and add salt every time. When I am suffering

badly from headaches, I sometimes do an extra bath to help promote the process.

We also found that a good quality ice cream can help. All three of us went

through a period of eating ice cream last year and my youngest threw up a few

times, usually after eating ice cream. I favor a coffee-flavored ice cream but

I also was adding vanilla to a drink we called " witch's brew "

http://www.healthgazelle.com/blog/?p=15. We suspect the vanilla extract was

specifically helping and that the medicinal property of the vanilla combined

with the fat in ice cream does something helpful and have wondered if that is

why vanilla ice cream is the most popular flavor (in our toxic modern world).

If GFCF, consider finding something with a fat he tolerates well and giving

vanilla in a drink.

>I have increased the B12 and all other B's except folic acid and I do see

improvement. I will increase the adrenal support based on other's posts.

If adrenal support is needed, most likely so is thyroid. I mostly take sea

salt, wild yam extract and lysine for adrenals. For thyroid, I take coconut oil.

There are other options for both. Find something that works. I have been told

that if the adrenals are chronically stressed, it stresses the thyroid. I found

this to fit with my experiences in getting well and that it helped to give

support for both any time I needed support for one or the other.

>I had to modify his diet again, he is down to just a few foods now but he is

tolerating them a bit.

When my sons and I lived with relatives in a very toxic household, the number of

foods we tolerated shrank to a scarily small number. Moving out of there and to

our own apartment, getting rid of toxic cleaners and so on allowed us to start

eating a wider variety of foods.

HTH and good luck.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

[Guest guest]

http://www.ispub.com/ostia/index.php?xmlFilePath=journals/ijnw/vol2n1/vitaminb12\

..xml

Puking during chelation especially with DMSA makes me suspect succinyl step in

b-12 file above. moreover, the optic issues and headaches issues are very

common in b-12 dificiency.

> > >

> > > Sunlight seems to trigger rage so I'm wondering about migraines. Any

suggestions for possible migraines? Deb

> > >

> >

> >

> > This is somewhat speculative and likely flies in the face of most things you

will read. With that proviso, let me just ramble a bit. If it helps you,

great! If not, all it cost you was a smidgeon of your time.

> >

> >

> > I've thrown up at least once a month for over four years. In the past 10

months to a year, it's been a great deal more frequent (often resulting in

all-day marathon vomiting as much as one day per week). I am not currently

chelating. I am treating myself for " atypical cystic fibrosis " . A big part of

that is removing all the toxins and crud that have built up in my system over a

life-time of not getting appropriate care (in part because I was diagnosed late

in life, in part because I think conventional approaches to treating it suck).

These vomiting sessions are typically preceded by severe headache and sometimes

accompanied by sensitivity to light. What I vomit up is very bitter or sour and

extremely corrosive to my throat. I often vomit up very little food, mostly

liquid and whatever this corrosive chemical-smelling stuff is. The vomiting

episodes don't resolve until I do vomit up this vile stuff -- as long as I am

primarily vomiting food, the issue will not resolve. As soon as I have ejected

enough of this foul stuff, I get dramatic and immediate relief from the

headache, nausea, light sensitivity and general misery and I typically go to

sleep and sleep very hard, a deep healing sleep.

> >

> > On this list, there have been several occasions where someone reported their

child vomiting as part of chelation. On at least one occasion, the consensus

was they were using too high a dose of chelator. So I get the impression that

my experience isn't really unique, that other folks go through a similar

pattern. It just isn't really widely recognized.

> >

> > On a list I got thrown off of (a GFCF/Celiac list), lots of people there

reported migraines. People there tried to tell me that my headaches accompanied

by nausea were " migraines " . I am very clear they are part of a healing process.

I have found ways to support the process so it is compressed (time-wise) and

less miserable. (Something that helps a bunch: salt water baths and staying

adequately hydrated.) On the list I was thrown off of, I tried to ask the

question " Just what is a migraine? " I think that was taken as being

smart-assed. But I was completely serious. I am perfectly clear what my

headaches accompanied by nausea indicate. I am 100% clear that they are caused

by a purging process which puts my body under stress. I am clear that the right

kind of support to help my body get through the purging process makes the

situation more bearable but that the only thing that puts an end to the misery

is when my body finally rids itself of whatever is coming out of me.

> >

> > The last 10 months or so have been really intense in that regard. I am

overall doing a lot a better. These days, my headaches are less frequent and

less intense (usually less intense even on days when I actually vomit -- my body

is getting better at evicting the poisons in my system, without so much drama).

And, yes, I am often very angry as these poisons come out of me.

> >

> > Since you specifically state that sunlight seems to trigger rages, I would

personally wonder if production of vitamin D is causing a cascade of events that

is helping the body to try to cope with whatever crud is gunking up his system

and if maybe he just isn't getting adequate support to get through the process

and it remains at basically the " stirred up but not resolved " stage.

> >

> > Good luck with this.

> >

> > Michele

> > http://www.healthgazelle.com

> > http://www.kidslikemine.com

> >

>

[Guest guest]

,

You said you are taking coconut oil..are you taking coconut oil supplements? OR

are you using coconut oils to cook? And how much do you take?

thanks,

Kim

[ ] Re: improvement - rage - migraines?

>

> Yes Michele, I'm sure you're right. I'm just not sure what exactly he needs to

get through it.

For me, the intense headache and nausea has to do with something going on in my

mucus membranes, including sinuses. Salt is a major component of mucus, as is

water. I find a salt water bath helps my body purge this stuff faster and more

comfortably. I bathe twice a day and add salt every time. When I am suffering

badly from headaches, I sometimes do an extra bath to help promote the process.

We also found that a good quality ice cream can help. All three of us went

through a period of eating ice cream last year and my youngest threw up a few

times, usually after eating ice cream. I favor a coffee-flavored ice cream but I

also was adding vanilla to a drink we called " witch's brew "

http://www.healthgazelle.com/blog/?p=15. We suspect the vanilla extract was

specifically helping and that the medicinal property of the vanilla combined

with the fat in ice cream does something helpful and have wondered if that is

why vanilla ice cream is the most popular flavor (in our toxic modern world). If

GFCF, consider finding something with a fat he tolerates well and giving vanilla

in a drink.

>I have increased the B12 and all other B's except folic acid and I do see

improvement. I will increase the adrenal support based on other's posts.

If adrenal support is needed, most likely so is thyroid. I mostly take sea salt,

wild yam extract and lysine for adrenals. For thyroid, I take coconut oil. There

are other options for both. Find something that works. I have been told that if

the adrenals are chronically stressed, it stresses the thyroid. I found this to

fit with my experiences in getting well and that it helped to give support for

both any time I needed support for one or the other.

>I had to modify his diet again, he is down to just a few foods now but he is

tolerating them a bit.

When my sons and I lived with relatives in a very toxic household, the number of

foods we tolerated shrank to a scarily small number. Moving out of there and to

our own apartment, getting rid of toxic cleaners and so on allowed us to start

eating a wider variety of foods.

HTH and good luck.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

[Guest guest]

>

>

> You said you are taking coconut oil..are you taking coconut oil supplements?

OR are you using coconut oils to cook? And how much do you take?

>

I consume coconut oil very sparingly at the moment and am mostly getting it in

dried blueberries I have been snacking on here lately. But for about 3 years, it

was a very big part of my diet/regimen. Initially, I took it as a supplement

orally by the spoonful, around 1 to 2 tablespoons a day. I also at one time took

coconut oil supplements in pill form. Later, I cooked with it and used it

topically. From what I have read, MCT oils (medium chain triglycerides) don't

need to be digested but are simply absorbed in the gut without processing. In

my experience, coconut oil, which is high in MCT's, absorbs well through the

skin.

In my experience, taking something as a supplement initially is easier because

you are looking at one factor: What the effect is of something you added. If

you start cooking with it, you are looking at two factors: What you added to

your diet and what you took out that you would have normally consumed in its

place. I generally recommend you try things like coconut oil as a supplement

initially and if it works well for you, then incorporate it into your diet.

That was the path I followed with coconut oil, among other things (including sea

salt).

HTH.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com