RE: Which method of chelation is best?

[Guest guest]

I took my son to Dr. Buttar. His IV protocol worked really well with my son.

From: [mailto: ]

On Behalf Of thejustjuicer

Sent: Wednesday, March 02, 2011 8:55 PM

Subject: [ ] Which method of chelation is best?

Hi,

I have been doing some reading recently and have interacted with many people

in the past who believe that Andy Cutler's method of chelation is the ONLY

method of chelation that works although recently I have come across Dr.

Buttar's protocol for chelation and he seems to be having very good results

with it.

Is one form of chelation generally better than another or is does it depend

largely on the individual?

[Guest guest]

The impression I got from this board is most people here benefit greatly from AC

protocol. However, I for one, do not religiously follow his dosing schedule and

I have seen improvements from my son after the more " traditional " chelation

(higher dose, less frequent, etc). Therefore, IMHO, I believe it depends on

each individual and how comfortable you feel about implementing the protocol as

a parent.

Being said that, I do appreciate the help and insight provided by the members

here and consider their knowledge invaluable.

April

[ ] Which method of chelation is best?

Hi,

I have been doing some reading recently and have interacted with many people

in the past who believe that Andy Cutler's method of chelation is the ONLY

method of chelation that works although recently I have come across Dr. Buttar's

protocol for chelation and he seems to be having very good results with it.

Is one form of chelation generally better than another or is does it depend

largely on the individual?

[Guest guest]

AC protocol is safer and the most effective with least side effects and

possibility for damage and regression.

See dmpsbackfire.com

Or search on onibasu.com for the numerous nightmare stories of iv chelation

>

> I took my son to Dr. Buttar. His IV protocol worked really well with my son.

>

>

>

>

> From: [mailto: ]

> On Behalf Of thejustjuicer

> Sent: Wednesday, March 02, 2011 8:55 PM

>

> Subject: [ ] Which method of chelation is best?

>

>

>

>

>

> Hi,

>

> I have been doing some reading recently and have interacted with many people

> in the past who believe that Andy Cutler's method of chelation is the ONLY

> method of chelation that works although recently I have come across Dr.

> Buttar's protocol for chelation and he seems to be having very good results

> with it.

>

> Is one form of chelation generally better than another or is does it depend

> largely on the individual?

>

>

>

>

>

>

[Guest guest]

Some people are tough enough or even lucky enough to do well on any chelation

protocol at least short term, but I certainly would not run this risk past my

son or myself.

Andy bases his protocol on the half-life of the chelating agents and therefore

on the laws of nature and I believe that he has said that the laws of nature

will win hands down every time.

The below links should be of interest.

http://onibasu.com/archives/am/205666.html

http://onibasu.com/archives/am/270523.html

Kenny

>

> Hi,

>

> I have been doing some reading recently and have interacted with many people

in the past who believe that Andy Cutler's method of chelation is the ONLY

method of chelation that works although recently I have come across Dr. Buttar's

protocol for chelation and he seems to be having very good results with it.

>

> Is one form of chelation generally better than another or is does it depend

largely on the individual?

>

[Guest guest]

I am typically not pro or anti anything, I like to hear out all sides and weigh

my own decisions, but I have to say that when it comes to chelation, I don't

take any chances. There is a science behind it that just doesn't have anything

to do with the person, it's the science of the chelators that matters more.

That's not to say that one child might not metabolize a chelator faster or

slower than another, but what I am referring to is the science behind the

method.

I wouldn't do ANY other form of dosing with chelators, other than timing the

doses by the half life of the chelator you are using and making sure that it is

in the blood consistently for three days straight. Not doing so will result in

redistribution, period, again, this is science, not about the individual. What

CAN happen is perhaps many people may just be getting lucky that the

redistribution hasn't effected anything serious....yet! The problem with this

is that sometimes the damage isn't seen right away. Let me give you an example.

Let's say that you pull mercury from the fat/tissue under your child's arm and

mobilize it, then the chelator reaches it's half life (because you decide not to

dose again) and this mercury is dropped into the blood stream. Where will it

go? Well, the truth is that it is free to go anywhere, including the brain,

liver, kidneys, gut....see my point? It MAY not go there, but it COULD. And we

see so many symptoms with our children daily on many occasions, even when the

ARE getting better, that we may not even know which neurological signs are

caused by the redistribution or not.

So are you willing to play Russian Roulette with your child? I sure as heck am

not! I go with safe, tested and proven! There was a time when DAN! doctors

were doing this protocol properly, literally following AC chelation, but parents

began to fight the dosing schedule and slowly, doctors began to let up on the

strict schedules, not even realizing the damage they would/could be causing

those children. If you want to see a discussion with Andy Cutler about the

technical differences between his protocol and the DAN! or any other protocol

for that matter, check this out

http://onibasu.com/archives/am/53055.html

Again, I don't consider myself an extremist, unless it comes to the safety of my

children and I do a LOT of research, all day, literally every day, and have been

for two years straight. Some would say, I've earned my right to a degree by

now, ha ha ha ha. Anyway, seriously, when in doubt, do it safely....that's my

motto. Why risk anything else when this safe method works?

>

> Hi,

>

> I have been doing some reading recently and have interacted with many people

in the past who believe that Andy Cutler's method of chelation is the ONLY

method of chelation that works although recently I have come across Dr. Buttar's

protocol for chelation and he seems to be having very good results with it.

>

> Is one form of chelation generally better than another or is does it depend

largely on the individual?

>

[Guest guest]

That is what we like about Andy's Protocol: it is low, slow, and safe. It

took us years to get back here. We are lucky in that our son improved

greatly with dietary changes, supplements, and therapeutic interventions.

We started intense intervention when he was two years old. We were told by

DR. Holmes that our son's neutrophil count was too low to chelate, so we

waited, just doing diet, therapy, supplements.

Then we got herded into challenge tests - nothing -- I don't even think this

doctor really knew what she was doing. She was definitely all about the

money -- well over a thousand dollars for tests and " her " supplements on the

first visit. She told us to start high-dose, oral chelation. We had given

her our son's history but she never even re-checked his neutrophil count nor

liver and kidney function before throwing lots of stuff at us.

WE did transdermal and suppository - nothing.

But our son continued to improve with dietary and metabolic support. His

stimming disappeared. He regained receptive and expressive functional

speech. His OCD and SID disappeared. We could go places - even crowded

restaurants. There's a few others in there who prescribed " their "

supplement, which actually made our son worse. ONe doctor prescribed a

supplement that contained copper, even though we gave this doctor our son's

history of having a serious issue with retaining copper. Shortly after this

supplement was started our son regressed somewhat.

Then we got talked into IV, and for me it was just as scary as I thought it

would be. It was very stressful for both me andmy son. They alwasy had

trouble finding a vein. He always got very very sleepy afterward. Then he

started having delayed respiratory reactions. The first time the doc said

it was " coincidence " -- Gee, where have I heard that before? so fearful we

went back for the next round, and sure enough he had another delayed

reaciton forty-five minutes after the treatment; only this time it was worse

and the respiratory reaction spiraled into pneumonia. We quit.

And then we noticed that suddenly our son reacted to broccoli and then to

sulfa drugs. The solution for the respiratory issues was alwasy more drugs:

steroids, inhalers, nebulizers, antihistamines etc... None of this healed

him; it only covered up the real issues. He had countless infections,

bronchitis, pneumonia eight times, strep and staph(whenever bitten by an

insect).

Two years later - last summer, we were admonished by our DAN for not coming

in every week. The doc was not pleased when I said we just couldn't afford

it anymore. Then he started pushing the idea of putting our son on Prozac.

We said no. Our son started stimming again after IV chelation. His OCD and

SID came back after IV chelation along with hyperactivity.

We were told his lead was high and then were told it was probably the DMPS

that caused the reactions, so they talked us into IV EDTA. On the fourth

round of that, our son had a serious asthma attack on the way home in the

car, and we were stuck in traffic! We had waited almost an hour before

leaving the doc's office, but still our son reacted, and this one was so

scary. Somehow my husbadn managed to get oof the freeway so we could

administer asthma protocol.

The DAN doc still wanted to continue IV. We suggested doing it AC, and of

course he pooh-poohed it, but wouldn't explain why. Then I found out that

what he had been doing was charging us out of pocket for IV and not filing

it, even though my son was covered for it. It's okay if a doc doesn't want

to file insurance, but not right to tell patients up front that you're not

going to BEFORE they commit to a service, and I don't think it is right not

to let parents file it if they are covered. There is no way we could afford

280 a week out of pocket.

Then he wanted to continue IV chelation but give oral prednisone before each

treatment, even though he knew our son had had oral steroids before and that

they had caused a psychotic episode. We said, " Hell, no. " Then he got

frustrated and said, " Well, just leave the metals in there then. " We've

never gone back.

Then I remember the A-M group, which had helped us so much int her very

beginning. I had gotten so busy that I hadn't really kept up with the group

in a good while. Then I remembered something Dr. Cutler wrote me back in

2003 - that if something was going to work, it would work and if it didn't

it was best to stop it and move on. He told me about AC way back then, but

I was scared and still under some preconceived notion that MD's know best

(GAG).

I realized that what made my son better were the early thing that DR.

Holmes, Andy, and Moria told us to do. I foundmyself wishing I had listened

to Andy and started AC way back then. As well as my son did with diet and

supplements alone, I truly think if I had started AC then, my son would be

healed by now.

AC is a very safe method of chelation, and that is what I wanted. We

started AC six weeks ago. I added biotin, GSE, and ACE to his supplement

list. Keep in mind that I have a child who has developed an infection with

a fever roughly every two weeks since initial vaccine injury, so our lives

have always revolved around the next illness, the next trip to the hospital,

medications, breathing treatments etc....

Our son has not been sick since beginning AC chelation. Since the addition

of ACE, my son, who needed asthma meds almost daily and was about to be put

back on steroids, has only needed his rescue inhaler twice in six weeks.

He is more focused. His reciprocal language had emerged two years ago, but

since AC this is improving and he now initiates conversation whereas before

we had to initiate. He is more motivated -- I mean literally he will say,

" I need to do my chores " before I have to tell him to do his chores. Just

the improvement in his health and his " asthma " has been enough to convince

met hat this is the way to go.

We are using ALA only as our son was very reactive in the past. He barely

stims while on round, but days two and three off-round have increased

stimming, but I upped his ACE and this helps. I am beginning to wonder if

my son had asthma at all but rather adrenal issues instead. The reactions

he had after IV were probably signs of adrenal crisis. Steroids are given

for this situation and that is why giving asthma meds made him better. I

was also sent a study which showed most children with asthma improved after

being put an ALA.

AC Protocol is the least expensive of all interventions. It is also the

safest, and for us it is the only thing that we have seen after a long

plateau that is producing noticeable improvements.

This protocol take commitment as it can take one to three years to get the

mercury and other metals out. The biggest inconvenience is having to wake

every three or four hours, but it is not as bad as it sounds (especially

when hubby offers to be the one who wakes up:)

It requires only the basic antioxidants, a yeast protocol, liver support and

adrenal support if warranted. Other supplements can be added if the parents

feel they help the child.

It wasn't just Dr. Cutler's book that convinced me. I also came across

another book written many many years ago called " Toxic Metal Syndrome, "

though this book talks about a form of IV chelation they were using at a

clinic in Oklahoma where people with Alzheimer's were improving with

chelation.

Our children have been through so much already. I firmly believe the

stimming, OCD, and SID came back in my son because all IV did was deplete

his adrenals and mover the metals around and deposit them elsewhere. I

would never risk doing that form a chelation again.

You are doing the right thing. Gather information. Discourse with other

parents who have already traveled down the road. Read Dr. Cutler's book.

Go to websites like Moria Merriweather's and Dana's View and read a lot.

But don't wait as long as we did to make a decision.

[Guest guest]

Just to clarify! It was not Dr. Holmes I was referring to when I said, " I

don't think this doctor knew what she was doing. " It was a different

doctor. Dr. Holmes was the first doctor who gave us hope and a game plan,

and she helped us very much!

[Guest guest]

Hi Haven,

wow this is an amazing email! thank you so much for sharing! when is a good time

to start...dare i ask? i am so scared and there are just so many different

options....don't you need to check liver function and make sure minerals and

things like that are up before starting chelation? i asked earlier on the board

if they can recommend a doctor that follows the ac protocol...but no one

responded. =( is there someone you can recommend?

N

________________________________

From: Haven DeLay <hdelay@...>

Sent: Thu, March 3, 2011 6:58:56 AM

Subject: Re: [ ] Re: Which method of chelation is best?

That is what we like about Andy's Protocol: it is low, slow, and safe. It

took us years to get back here. We are lucky in that our son improved

greatly with dietary changes, supplements, and therapeutic interventions.

We started intense intervention when he was two years old. We were told by

DR. Holmes that our son's neutrophil count was too low to chelate, so we

waited, just doing diet, therapy, supplements.

Then we got herded into challenge tests - nothing -- I don't even think this

doctor really knew what she was doing. She was definitely all about the

money -- well over a thousand dollars for tests and " her " supplements on the

first visit. She told us to start high-dose, oral chelation. We had given

her our son's history but she never even re-checked his neutrophil count nor

liver and kidney function before throwing lots of stuff at us.

WE did transdermal and suppository - nothing.

But our son continued to improve with dietary and metabolic support. His

stimming disappeared. He regained receptive and expressive functional

speech. His OCD and SID disappeared. We could go places - even crowded

restaurants. There's a few others in there who prescribed " their "

supplement, which actually made our son worse. ONe doctor prescribed a

supplement that contained copper, even though we gave this doctor our son's

history of having a serious issue with retaining copper. Shortly after this

supplement was started our son regressed somewhat.

Then we got talked into IV, and for me it was just as scary as I thought it

would be. It was very stressful for both me andmy son. They alwasy had

trouble finding a vein. He always got very very sleepy afterward. Then he

started having delayed respiratory reactions. The first time the doc said

it was " coincidence " -- Gee, where have I heard that before? so fearful we

went back for the next round, and sure enough he had another delayed

reaciton forty-five minutes after the treatment; only this time it was worse

and the respiratory reaction spiraled into pneumonia. We quit.

And then we noticed that suddenly our son reacted to broccoli and then to

sulfa drugs. The solution for the respiratory issues was alwasy more drugs:

steroids, inhalers, nebulizers, antihistamines etc... None of this healed

him; it only covered up the real issues. He had countless infections,

bronchitis, pneumonia eight times, strep and staph(whenever bitten by an

insect).

Two years later - last summer, we were admonished by our DAN for not coming

in every week. The doc was not pleased when I said we just couldn't afford

it anymore. Then he started pushing the idea of putting our son on Prozac.

We said no. Our son started stimming again after IV chelation. His OCD and

SID came back after IV chelation along with hyperactivity.

We were told his lead was high and then were told it was probably the DMPS

that caused the reactions, so they talked us into IV EDTA. On the fourth

round of that, our son had a serious asthma attack on the way home in the

car, and we were stuck in traffic! We had waited almost an hour before

leaving the doc's office, but still our son reacted, and this one was so

scary. Somehow my husbadn managed to get oof the freeway so we could

administer asthma protocol.

The DAN doc still wanted to continue IV. We suggested doing it AC, and of

course he pooh-poohed it, but wouldn't explain why. Then I found out that

what he had been doing was charging us out of pocket for IV and not filing

it, even though my son was covered for it. It's okay if a doc doesn't want

to file insurance, but not right to tell patients up front that you're not

going to BEFORE they commit to a service, and I don't think it is right not

to let parents file it if they are covered. There is no way we could afford

280 a week out of pocket.

Then he wanted to continue IV chelation but give oral prednisone before each

treatment, even though he knew our son had had oral steroids before and that

they had caused a psychotic episode. We said, " Hell, no. " Then he got

frustrated and said, " Well, just leave the metals in there then. " We've

never gone back.

Then I remember the A-M group, which had helped us so much int her very

beginning. I had gotten so busy that I hadn't really kept up with the group

in a good while. Then I remembered something Dr. Cutler wrote me back in

2003 - that if something was going to work, it would work and if it didn't

it was best to stop it and move on. He told me about AC way back then, but

I was scared and still under some preconceived notion that MD's know best

(GAG).

I realized that what made my son better were the early thing that DR.

Holmes, Andy, and Moria told us to do. I foundmyself wishing I had listened

to Andy and started AC way back then. As well as my son did with diet and

supplements alone, I truly think if I had started AC then, my son would be

healed by now.

AC is a very safe method of chelation, and that is what I wanted. We

started AC six weeks ago. I added biotin, GSE, and ACE to his supplement

list. Keep in mind that I have a child who has developed an infection with

a fever roughly every two weeks since initial vaccine injury, so our lives

have always revolved around the next illness, the next trip to the hospital,

medications, breathing treatments etc....

Our son has not been sick since beginning AC chelation. Since the addition

of ACE, my son, who needed asthma meds almost daily and was about to be put

back on steroids, has only needed his rescue inhaler twice in six weeks.

He is more focused. His reciprocal language had emerged two years ago, but

since AC this is improving and he now initiates conversation whereas before

we had to initiate. He is more motivated -- I mean literally he will say,

" I need to do my chores " before I have to tell him to do his chores. Just

the improvement in his health and his " asthma " has been enough to convince

met hat this is the way to go.

We are using ALA only as our son was very reactive in the past. He barely

stims while on round, but days two and three off-round have increased

stimming, but I upped his ACE and this helps. I am beginning to wonder if

my son had asthma at all but rather adrenal issues instead. The reactions

he had after IV were probably signs of adrenal crisis. Steroids are given

for this situation and that is why giving asthma meds made him better. I

was also sent a study which showed most children with asthma improved after

being put an ALA.

AC Protocol is the least expensive of all interventions. It is also the

safest, and for us it is the only thing that we have seen after a long

plateau that is producing noticeable improvements.

This protocol take commitment as it can take one to three years to get the

mercury and other metals out. The biggest inconvenience is having to wake

every three or four hours, but it is not as bad as it sounds (especially

when hubby offers to be the one who wakes up:)

It requires only the basic antioxidants, a yeast protocol, liver support and

adrenal support if warranted. Other supplements can be added if the parents

feel they help the child.

It wasn't just Dr. Cutler's book that convinced me. I also came across

another book written many many years ago called " Toxic Metal Syndrome, "

though this book talks about a form of IV chelation they were using at a

clinic in Oklahoma where people with Alzheimer's were improving with

chelation.

Our children have been through so much already. I firmly believe the

stimming, OCD, and SID came back in my son because all IV did was deplete

his adrenals and mover the metals around and deposit them elsewhere. I

would never risk doing that form a chelation again.

You are doing the right thing. Gather information. Discourse with other

parents who have already traveled down the road. Read Dr. Cutler's book.

Go to websites like Moria Merriweather's and Dana's View and read a lot.

But don't wait as long as we did to make a decision.

[Guest guest]

There are few doctors who follow this protocol as IMO they can't make tons

of money off of it, so they try to steer parents away from it. There are a

few but none in Texas to my knowledge. Having been at this a while, we are

going to see a docotr for food allergy testing later this month, and I may

ask him to run a CBC- and to check kidney and liver function fro my own

peace of mind. but AC chelation is so low and slow that the problems that

can crop up with IV are just not an issue.

I was scared to start AC too, given the reactions our son had to IV, and

given his subsequent problems with some sulfur foods and sulfa drugs. Then

another mom gave me the kick in the pants I needed. I meant to start before

Christmas, but it seemed every weekend he would wind up sick or he wound up

having a reaction to peanut butter which he had never had before. Then he

got a stomach virus the next week and wound up at the hospital. After that,

we finally started and have had no health problems since and asthma meds

ONLY TWICE.

I get nervous when the asthma like symptoms come on, but now I just give a

little more ACE and it has subsided the asthma symptoms. He does so well on

rounds that I said I wish I could extend the rounds, but that is not

possible. Then I was feeling greedy and thought about upping his dose of

ALA, but some other moms said they had gotten greedy too and upped and saw

more issues like yeast flare. Yeast is almost always a problem with

chelation.

I connect stimming with yeast, but it may well just be the mercury being

unbound and getting through the body again. At some point, I know we will

ahve to add DMSA to get lead out, but for now things are going good so we

will stay at the same dose and not rock the boat. This is a protocol for

patience. My grandmother used to say, " Gli anni passeranno del tempo si fa

o non. Quindi fare qualcosa! " The years will pass whether you do or do

not. So do something! She's say you could be four years down the road and

know you at least tried or you could still be wondering if you could. I

have always been one who would rather try and fail than not try at all. My

epitaph will be " She died trying. "

I knew in my gut for some time that DAN wasn't really working for our son.

When you get that gut instinct, you should listen to it, but I waited, and

we had reached a plateau. I had lost faith in his physician, and I still

watied too long. Sometimes you've got to make a change and get a different

opinion. I mean the diet worked. Improving diet is alwasy a good thing for

anybody. I knew from Dr. McCandless' book that these kids have difficulty

absorbing nutrients properly and so need supplemental support. I knew that

had always worked.

But our DAN was always throwing the latest fad supplement regime at us, and

honestly I never saw improvement with them. AC focuses on the basics and not

a lot of high priced this and that. It gets back to the basics, and it is

working.

While ago, my house was so quiet! No stimming! The quiet actually takes

some getting used to. I was in a store the other day and a mom was there

with a boy taller than her and he was running all over the place stimming

vocally, flicking his fingers. I remember those days! Only my son was

little when I had a hard time keeping track of him in a store. My heart

just broke for her.

If nothing had worked like it did for my son, I would still be trying. I

watched my perfectly healthy, normally developing child lose speech and

change before my eyes immediately following the vaccines, so I KNOW what

happened to him. Since the main stream just told us it was hopeless and to

put him in an institution, what choice did we have but to research and try

to heal his body. The quirks of autism don't matter to me. If he always

marches to the beat of a different drummer, that is fine. What mattered to

me was that he reach independence and have a life of his own separate from

us, so threat when we are gone he would not wind up in an institution. It

mattered to heal him so he was not always sick.

He was diagnosed with " Heavy Metal Intoxication. " I know mercury is in

there per the hair test and porphyrins test and that mercury and lead did

come out during IV, and since it is the second most toxic substance on the

face of the Earth, I want it out of his body.

If I had listened to those early mainstream doctors and taken their words as

Gospel, where would my son be now?

I am lucky we have a pediatrician. He knows where I stand on vaccines, and

so far has not gone Gestapo. He knows we are using ALA (its an OTC

supplement after all) He even knows we are using ACE and is intrigued by

the lessening of our son's symptoms. Maybe we will win him away from the

dark side:).

I never tell parents what to do. I don't say " Don't vaccinate. " But I do

tell our story. I do say " Get educated. " I do warn that if something goes

wrong the financial, therapeutic, education, etc... responsibility falls

squarely on the parents' shoulders. I tell parents what IV chelation did to

our child. I tell what positive results we are seeing with AC Protocol.

The best part is is that if one does this protocol the risks, if any, are

minimal. You have a lot of control on stopping a round or quitting all

together. Since we are using ALA only, it is an all natural protocol.

We start round eight tomorrow. They other part is you have to divide

capsules to fit your child's dose. WE buy 25 mg ALA from Kirkman's and

empty capsule to divide in half as we dose a little less than 1/8 mg a

pound. I think we are going to start buying a brand form Whole Foods that

is 50 mg caps and cheaper and will divide into fourths.

Then I bought a " 4 a day " pill keeper to divide his supps into four times a

day for the week. It is not hard.

I'll keep you posted.

In Andy's book there is a part about how to get a doctor to get on board

with you and do the tests you want. I just go in and say " We need to test

this... " and so far they do it.

The stimming, OCD, and SID are still back but they are greatly reduced. We

have long periods of quiet here now.

I have faith in this protocol, and I won't give up on it until we reach at

least round 300. ALA is a powerful antioxidant, and in fact in research at

Berkley when paired with Acetyl-L-Carnitine they were found to repair cells

at the mitochondrial level. When they fed it to very old mice over a period

of time, the mice began to act like teen-aged mice! ALA crosses the BBB so

should not be taken if you have amalgams in your mouth.

With the studies I've read about it regarding its capacity to remove mercury

from the brain, repair cells, etc...everyone ought to get their amalgams

removed and be on it, but I do think it important to dose on its half-life

of three hours. They say to dose for 72 hours. We dose for 66.

I think that is about standard for kids who are going to school. Most

parents dose after school on Friday and give the last dose before school on

Monday. WE start on Friday morning early and dose through late Sunday night

so we only have to gt up two nights instead of three.

[Guest guest]

My son would probably like me to make something very clear. You have NO IDEA

what amount/kinds of metals you are going to stir up if you do a challenge test

or IV chelation pull. At the advice of a DAN! doctor, I gave my son large

amounts (250mg) of DMSA suppository on an irregular schedule for two weekends.

The challenge test said he had high lead. Imagine that, a massive amount of

lead stirred up in his system so the doctor or I could SEE HOW MUCH. That's all

we got out of it, what did my son get? Aggravation from hell. He went nuts for

the next year, or two...don't do it.

>

> Hi,

>

> I have been doing some reading recently and have interacted with many people

in the past who believe that Andy Cutler's method of chelation is the ONLY

method of chelation that works although recently I have come across Dr. Buttar's

protocol for chelation and he seems to be having very good results with it.

>

> Is one form of chelation generally better than another or is does it depend

largely on the individual?

>

[Guest guest]

I can also attest to the changes dong IV. We are STILL dealing with

returned stimming, OCD, and SID which were GONE before we did IV. Being on

the AC Protocol is lessening those symptoms. Of course, I would NEVER

subject my child to IV or a challenge test again.

On the AC Protocol, you can do a hair test once a year and see if you are

making progress. We did a hair test very early on and it was clear our son

had abnormal mineral transport. When we did it again several years later,

the rules were not as easy to apply for me, but with someone's help I was

able to see he still met the rules of counting, but compared to the previous

test, I could see it was improved.

You may well have to continue rounds well after you see no symptoms. It may

even be a good idea to chelate every so often. I am not sure but I think

these kids are not able to naturally chelate well, and the environment is

very toxic -- especially regarding mercury where it is in security outside

lights (mercury vapor lights), light bulbs, batteries, electronic,

fertilizers, the air, the water, and the food supply.

I found out our county, though mostly rural has one of the worst air

qualities in the nation due to high mercury emissions from two cement

plants. A study was done and showed that the cases of autism in this county

have risen exponentially with the rise in emissions of mercury in the air.

I want to MOVE.

Dr. Oz said on his show over a week ago that maybe what is happening to

these kids is happening to all of us. He said some other very uninformed

things too like " they took the mercury out, " but after all he is being paid

by ABC who is so far up the drug lords @#$, but still that one comment was

food for thought for us all.

Anyone else notice the brain fog?

[Guest guest]

When it comes to " good results, " actual parents who are chelating and seeing

recovery are your best references. We had horrible experiences with DAN!

chelation and IV chelation but didn't stick around to tell the doctors all about

it during our expensive short appointments. They weren't too keen to listen and

were quick to accept the side effects or suggest more interventions to deal with

them. So doctors have a false picture of how well their protocols work because

the people who suffer from them stop seeing that doctor...sadly some parents

then give up on chelation because the wrong protocol convinces them it can't

help. Andy has seen many kids who regressed on famous DAN! doctor chelation.

Better to do it correctly from the start.

Jo

> >

> > Hi,

> >

> > I have been doing some reading recently and have interacted with many people

in the past who believe that Andy Cutler's method of chelation is the ONLY

method of chelation that works although recently I have come across Dr. Buttar's

protocol for chelation and he seems to be having very good results with it.

> >

> > Is one form of chelation generally better than another or is does it depend

largely on the individual?

> >

>

[Guest guest]

Thanks to everyone for their timeous and insightful responses. From what I can

tell most people prefer the AC protocol.

Thanks especially to Haven for going into so much detail about her in journey to

getting her child well again.

Just to clarify. I am not a parent of an autistic but a member of my immediate

family is.

With regards to diets, I have tried many and after dealing with OCD for alot my

life and finding massive relief from following a yeast diet and protocol, my

outlook on health and mental health changed completely.

I think I have an advantage in the sense that what often works for autistic kids

works for me too. I also have the benefit of having first-hand experience with

many 'bio-medical' treatments and a symptom that I could monitor when trying

different things.

It's my firm belief that ALL children can recover completely provided you get

the metals out (Everywhere lol). Which is what we are all trying to do.

I am experimenting on myself at the moment and even 1mg of DMSA can cause

problems for me. and even 1 mg of ALA can cause problems for me on

redistribution.

That's why I am wondering if there isn't something that can be done differently

to change things.

Thanks again to everyone for their insights.

JJ

[Guest guest]

Thank you for sharing your story. After 2 rounds of DMSA following AC protocol,

my 3 yo son developed neutropenia. We stopped it and I am researching ALA alone.

caryn

>

> That is what we like about Andy's Protocol: it is low, slow, and safe. It

> took us years to get back here. We are lucky in that our son improved

> greatly with dietary changes, supplements, and therapeutic interventions.

> We started intense intervention when he was two years old. We were told by

> DR. Holmes that our son's neutrophil count was too low to chelate, so we

> waited, just doing diet, therapy, supplements.

>

> Then we got herded into challenge tests - nothing -- I don't even think this

> doctor really knew what she was doing. She was definitely all about the

> money -- well over a thousand dollars for tests and " her " supplements on the

> first visit. She told us to start high-dose, oral chelation. We had given

> her our son's history but she never even re-checked his neutrophil count nor

> liver and kidney function before throwing lots of stuff at us.

>

> WE did transdermal and suppository - nothing.

>

> But our son continued to improve with dietary and metabolic support. His

> stimming disappeared. He regained receptive and expressive functional

> speech. His OCD and SID disappeared. We could go places - even crowded

> restaurants. There's a few others in there who prescribed " their "

> supplement, which actually made our son worse. ONe doctor prescribed a

> supplement that contained copper, even though we gave this doctor our son's

> history of having a serious issue with retaining copper. Shortly after this

> supplement was started our son regressed somewhat.

>

> Then we got talked into IV, and for me it was just as scary as I thought it

> would be. It was very stressful for both me andmy son. They alwasy had

> trouble finding a vein. He always got very very sleepy afterward. Then he

> started having delayed respiratory reactions. The first time the doc said

> it was " coincidence " -- Gee, where have I heard that before? so fearful we

> went back for the next round, and sure enough he had another delayed

> reaciton forty-five minutes after the treatment; only this time it was worse

> and the respiratory reaction spiraled into pneumonia. We quit.

>

> And then we noticed that suddenly our son reacted to broccoli and then to

> sulfa drugs. The solution for the respiratory issues was alwasy more drugs:

> steroids, inhalers, nebulizers, antihistamines etc... None of this healed

> him; it only covered up the real issues. He had countless infections,

> bronchitis, pneumonia eight times, strep and staph(whenever bitten by an

> insect).

>

> Two years later - last summer, we were admonished by our DAN for not coming

> in every week. The doc was not pleased when I said we just couldn't afford

> it anymore. Then he started pushing the idea of putting our son on Prozac.

> We said no. Our son started stimming again after IV chelation. His OCD and

> SID came back after IV chelation along with hyperactivity.

>

> We were told his lead was high and then were told it was probably the DMPS

> that caused the reactions, so they talked us into IV EDTA. On the fourth

> round of that, our son had a serious asthma attack on the way home in the

> car, and we were stuck in traffic! We had waited almost an hour before

> leaving the doc's office, but still our son reacted, and this one was so

> scary. Somehow my husbadn managed to get oof the freeway so we could

> administer asthma protocol.

>

> The DAN doc still wanted to continue IV. We suggested doing it AC, and of

> course he pooh-poohed it, but wouldn't explain why. Then I found out that

> what he had been doing was charging us out of pocket for IV and not filing

> it, even though my son was covered for it. It's okay if a doc doesn't want

> to file insurance, but not right to tell patients up front that you're not

> going to BEFORE they commit to a service, and I don't think it is right not

> to let parents file it if they are covered. There is no way we could afford

> 280 a week out of pocket.

>

> Then he wanted to continue IV chelation but give oral prednisone before each

> treatment, even though he knew our son had had oral steroids before and that

> they had caused a psychotic episode. We said, " Hell, no. " Then he got

> frustrated and said, " Well, just leave the metals in there then. " We've

> never gone back.

>

> Then I remember the A-M group, which had helped us so much int her very

> beginning. I had gotten so busy that I hadn't really kept up with the group

> in a good while. Then I remembered something Dr. Cutler wrote me back in

> 2003 - that if something was going to work, it would work and if it didn't

> it was best to stop it and move on. He told me about AC way back then, but

> I was scared and still under some preconceived notion that MD's know best

> (GAG).

>

> I realized that what made my son better were the early thing that DR.

> Holmes, Andy, and Moria told us to do. I foundmyself wishing I had listened

> to Andy and started AC way back then. As well as my son did with diet and

> supplements alone, I truly think if I had started AC then, my son would be

> healed by now.

>

> AC is a very safe method of chelation, and that is what I wanted. We

> started AC six weeks ago. I added biotin, GSE, and ACE to his supplement

> list. Keep in mind that I have a child who has developed an infection with

> a fever roughly every two weeks since initial vaccine injury, so our lives

> have always revolved around the next illness, the next trip to the hospital,

> medications, breathing treatments etc....

>

> Our son has not been sick since beginning AC chelation. Since the addition

> of ACE, my son, who needed asthma meds almost daily and was about to be put

> back on steroids, has only needed his rescue inhaler twice in six weeks.

>

> He is more focused. His reciprocal language had emerged two years ago, but

> since AC this is improving and he now initiates conversation whereas before

> we had to initiate. He is more motivated -- I mean literally he will say,

> " I need to do my chores " before I have to tell him to do his chores. Just

> the improvement in his health and his " asthma " has been enough to convince

> met hat this is the way to go.

>

> We are using ALA only as our son was very reactive in the past. He barely

> stims while on round, but days two and three off-round have increased

> stimming, but I upped his ACE and this helps. I am beginning to wonder if

> my son had asthma at all but rather adrenal issues instead. The reactions

> he had after IV were probably signs of adrenal crisis. Steroids are given

> for this situation and that is why giving asthma meds made him better. I

> was also sent a study which showed most children with asthma improved after

> being put an ALA.

>

> AC Protocol is the least expensive of all interventions. It is also the

> safest, and for us it is the only thing that we have seen after a long

> plateau that is producing noticeable improvements.

>

> This protocol take commitment as it can take one to three years to get the

> mercury and other metals out. The biggest inconvenience is having to wake

> every three or four hours, but it is not as bad as it sounds (especially

> when hubby offers to be the one who wakes up:)

>

> It requires only the basic antioxidants, a yeast protocol, liver support and

> adrenal support if warranted. Other supplements can be added if the parents

> feel they help the child.

>

> It wasn't just Dr. Cutler's book that convinced me. I also came across

> another book written many many years ago called " Toxic Metal Syndrome, "

> though this book talks about a form of IV chelation they were using at a

> clinic in Oklahoma where people with Alzheimer's were improving with

> chelation.

>

> Our children have been through so much already. I firmly believe the

> stimming, OCD, and SID came back in my son because all IV did was deplete

> his adrenals and mover the metals around and deposit them elsewhere. I

> would never risk doing that form a chelation again.

>

> You are doing the right thing. Gather information. Discourse with other

> parents who have already traveled down the road. Read Dr. Cutler's book.

> Go to websites like Moria Merriweather's and Dana's View and read a lot.

> But don't wait as long as we did to make a decision.

>

>

>

[Guest guest]

Just curious how you give AL-Carnitine and if a kid 50lb how much i can give and

is it only on helation day or day basis and 1 more if you dont mind where you

buy your ALC what supps you use for AC helation more than A,E,C zink and mg or

thts enough.

Best day Ralits

From: Haven DeLay <hdelay@...>

Subject: Re: [ ] Re: Which method of chelation is best?

Date: Thursday, 3 March, 2011, 16:58

 

There are few doctors who follow this protocol as IMO they can't make tons

of money off of it, so they try to steer parents away from it. There are a

few but none in Texas to my knowledge. Having been at this a while, we are

going to see a docotr for food allergy testing later this month, and I may

ask him to run a CBC- and to check kidney and liver function fro my own

peace of mind. but AC chelation is so low and slow that the problems that

can crop up with IV are just not an issue.

I was scared to start AC too, given the reactions our son had to IV, and

given his subsequent problems with some sulfur foods and sulfa drugs. Then

another mom gave me the kick in the pants I needed. I meant to start before

Christmas, but it seemed every weekend he would wind up sick or he wound up

having a reaction to peanut butter which he had never had before. Then he

got a stomach virus the next week and wound up at the hospital. After that,

we finally started and have had no health problems since and asthma meds

ONLY TWICE.

I get nervous when the asthma like symptoms come on, but now I just give a

little more ACE and it has subsided the asthma symptoms. He does so well on

rounds that I said I wish I could extend the rounds, but that is not

possible. Then I was feeling greedy and thought about upping his dose of

ALA, but some other moms said they had gotten greedy too and upped and saw

more issues like yeast flare. Yeast is almost always a problem with

chelation.

I connect stimming with yeast, but it may well just be the mercury being

unbound and getting through the body again. At some point, I know we will

ahve to add DMSA to get lead out, but for now things are going good so we

will stay at the same dose and not rock the boat. This is a protocol for

patience. My grandmother used to say, " Gli anni passeranno del tempo si fa

o non. Quindi fare qualcosa! " The years will pass whether you do or do

not. So do something! She's say you could be four years down the road and

know you at least tried or you could still be wondering if you could. I

have always been one who would rather try and fail than not try at all. My

epitaph will be " She died trying. "

I knew in my gut for some time that DAN wasn't really working for our son.

When you get that gut instinct, you should listen to it, but I waited, and

we had reached a plateau. I had lost faith in his physician, and I still

watied too long. Sometimes you've got to make a change and get a different

opinion. I mean the diet worked. Improving diet is alwasy a good thing for

anybody. I knew from Dr. McCandless' book that these kids have difficulty

absorbing nutrients properly and so need supplemental support. I knew that

had always worked.

But our DAN was always throwing the latest fad supplement regime at us, and

honestly I never saw improvement with them. AC focuses on the basics and not

a lot of high priced this and that. It gets back to the basics, and it is

working.

While ago, my house was so quiet! No stimming! The quiet actually takes

some getting used to. I was in a store the other day and a mom was there

with a boy taller than her and he was running all over the place stimming

vocally, flicking his fingers. I remember those days! Only my son was

little when I had a hard time keeping track of him in a store. My heart

just broke for her.

If nothing had worked like it did for my son, I would still be trying. I

watched my perfectly healthy, normally developing child lose speech and

change before my eyes immediately following the vaccines, so I KNOW what

happened to him. Since the main stream just told us it was hopeless and to

put him in an institution, what choice did we have but to research and try

to heal his body. The quirks of autism don't matter to me. If he always

marches to the beat of a different drummer, that is fine. What mattered to

me was that he reach independence and have a life of his own separate from

us, so threat when we are gone he would not wind up in an institution. It

mattered to heal him so he was not always sick.

He was diagnosed with " Heavy Metal Intoxication. " I know mercury is in

there per the hair test and porphyrins test and that mercury and lead did

come out during IV, and since it is the second most toxic substance on the

face of the Earth, I want it out of his body.

If I had listened to those early mainstream doctors and taken their words as

Gospel, where would my son be now?

I am lucky we have a pediatrician. He knows where I stand on vaccines, and

so far has not gone Gestapo. He knows we are using ALA (its an OTC

supplement after all) He even knows we are using ACE and is intrigued by

the lessening of our son's symptoms. Maybe we will win him away from the

dark side:).

I never tell parents what to do. I don't say " Don't vaccinate. " But I do

tell our story. I do say " Get educated. " I do warn that if something goes

wrong the financial, therapeutic, education, etc... responsibility falls

squarely on the parents' shoulders. I tell parents what IV chelation did to

our child. I tell what positive results we are seeing with AC Protocol.

The best part is is that if one does this protocol the risks, if any, are

minimal. You have a lot of control on stopping a round or quitting all

together. Since we are using ALA only, it is an all natural protocol.

We start round eight tomorrow. They other part is you have to divide

capsules to fit your child's dose. WE buy 25 mg ALA from Kirkman's and

empty capsule to divide in half as we dose a little less than 1/8 mg a

pound. I think we are going to start buying a brand form Whole Foods that

is 50 mg caps and cheaper and will divide into fourths.

Then I bought a " 4 a day " pill keeper to divide his supps into four times a

day for the week. It is not hard.

I'll keep you posted.

In Andy's book there is a part about how to get a doctor to get on board

with you and do the tests you want. I just go in and say " We need to test

this... " and so far they do it.

The stimming, OCD, and SID are still back but they are greatly reduced. We

have long periods of quiet here now.

I have faith in this protocol, and I won't give up on it until we reach at

least round 300. ALA is a powerful antioxidant, and in fact in research at

Berkley when paired with Acetyl-L-Carnitine they were found to repair cells

at the mitochondrial level. When they fed it to very old mice over a period

of time, the mice began to act like teen-aged mice! ALA crosses the BBB so

should not be taken if you have amalgams in your mouth.

With the studies I've read about it regarding its capacity to remove mercury

from the brain, repair cells, etc...everyone ought to get their amalgams

removed and be on it, but I do think it important to dose on its half-life

of three hours. They say to dose for 72 hours. We dose for 66.

I think that is about standard for kids who are going to school. Most

parents dose after school on Friday and give the last dose before school on

Monday. WE start on Friday morning early and dose through late Sunday night

so we only have to gt up two nights instead of three.