Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Terry - If you were to get one of the more technical books about OCD you might be able to find information about the unusual brain activity observed in those with OCD. I seem to remember hearing about PET (?) scans being done where more activity than usual was observed in certain parts of the brain. It seems to me like an observable physical sign of the mental activity that our OCDers tell us about. Thanks to studies on this brain activity, some doctors will now admit that OCD has a biological base. And this can be helpful in getting proper insurance coverage, especially as our kids get older. Our insurance was not going to cover after his 23rd birthday so I sent them a presentation which included information on studies done on observing brain activity in a person with OCD. He is back on the insurance! Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 I am not a fan of the medical perfessionals either. I would ask for another test, maybe by chance " they " did something wrong. Ask as many questions as you can, after all the neurologist is working for you. My son had normal EEG time after time, and he did have seizures. Finally when his seizures stopped he was released from care and has not had one in 13 years. Why did they do a EEG to begin with? Was this recommended by the Psychiatrist? Wishing you luck, Chelsea > My son had an EEG done and the results were abnormal. The neurologist said these abnormalities are often seen in " psychiatric patients " and in seizures. > My son does not have seizures. > The neurologist seemed to think it was ok to have an abnormal EEG if you were under psychiatric care. > This seems like bad medical care to me. What kind of explanation is that for an abnormal EEG? > Has anybody ever heard of abnormalities in an EEG associated with OCD or Aspergers? And if so, what's done about it. This neurologist basically just washed his hands of the whole thing. > I really hate the medical profession. > Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 I asked for an MRI to rule out a brain tumor. I just wanted to rule everything else out before stayi;ng with the ocd diagnosis. To get an MRI I had to see a neurologist. The neurologist who didn't want to do the MRI, once he conceded also suggested the EEG. I didn't know why at the time but I figured, why not. So I'm surprised that when something shows up , he wants to write it off. Perhaps I will have them run it again. Thanks for the input Chelsea Terry Re: EEG > > I am not a fan of the medical perfessionals either. I would ask for > another test, maybe by chance " they " did something wrong. Ask as > many questions as you can, after all the neurologist is working for > you. My son had normal EEG time after time, and he did have seizures. > Finally when his seizures stopped he was released from care and has > not had one in 13 years. Why did they do a EEG to begin with? Was > this recommended by the Psychiatrist? > > Wishing you luck, > Chelsea > > > > My son had an EEG done and the results were abnormal. The > neurologist said these abnormalities are often seen in " psychiatric > patients " and in seizures. > > My son does not have seizures. > > The neurologist seemed to think it was ok to have an abnormal EEG > if you were under psychiatric care. > > This seems like bad medical care to me. What kind of explanation > is that for an abnormal EEG? > > Has anybody ever heard of abnormalities in an EEG associated with > OCD or Aspergers? And if so, what's done about it. This neurologist > basically just washed his hands of the whole thing. > > I really hate the medical profession. > > Terry > > > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 If I have this right, a Mayo clinic neurologist did an EEG on my daughter and while he did not find a seizure disorder, he did find her brain responded overactively to light stimuli, which is typical for people with OCD. The front lobe of her brain was much more stimulated than the average person would have been under the same circumstances. I don't know if this has anything to do with the question, because I'm not sure in what respect the EEG was abnormal, as in seizures? A second opinion might be helpful. Take care, Stephany > > > My son had an EEG done and the results were abnormal. The > > neurologist said these abnormalities are often seen in " psychiatric > > patients " and in seizures. > > > My son does not have seizures. > > > The neurologist seemed to think it was ok to have an abnormal EEG > > if you were under psychiatric care. > > > This seems like bad medical care to me. What kind of explanation > > is that for an abnormal EEG? > > > Has anybody ever heard of abnormalities in an EEG associated with > > OCD or Aspergers? And if so, what's done about it. This neurologist > > basically just washed his hands of the whole thing. > > > I really hate the medical profession. > > > Terry > > > > > > > > You may subscribe to the OCD-L by emailing listserv@v... . In > the body of your message write: subscribe OCD-L your name. You may > subscribe to the Parents of Adults with OCD List at > parentsofadultswithOCD . You may access the > files, links, and archives for our list at > . Our list advisors are Tamar > Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are > Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , > Roman, and Jackie Stout. Subscription issues, problems, or > suggestions may be addressed to Louis Harkins, list owner, at > harkins@w... . > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Thanks, that might explain it. The neurologist said that there was focal activity in a part of the brain. He told me this in a phone call because I had called and asked for the results( not an unreasonable thing to do-LOL). I didn't know what questions to ask as I was surprised by the results and his lack of interest. Terry Re: EEG > If I have this right, a Mayo clinic neurologist did an EEG on my > daughter and while he did not find a seizure disorder, he did find > her brain responded overactively to light stimuli, which is typical > for people with OCD. The front lobe of her brain was much more > stimulated than the average person would have been under the same > circumstances. I don't know if this has anything to do with the > question, because I'm not sure in what respect the EEG was abnormal, > as in seizures? A second opinion might be helpful. Take care, > > Stephany > > > > > > My son had an EEG done and the results were abnormal. The > > > neurologist said these abnormalities are often seen > in " psychiatric > > > patients " and in seizures. > > > > My son does not have seizures. > > > > The neurologist seemed to think it was ok to have an abnormal > EEG > > > if you were under psychiatric care. > > > > This seems like bad medical care to me. What kind of > explanation > > > is that for an abnormal EEG? > > > > Has anybody ever heard of abnormalities in an EEG associated > with > > > OCD or Aspergers? And if so, what's done about it. This > neurologist > > > basically just washed his hands of the whole thing. > > > > I really hate the medical profession. > > > > Terry > > > > > > > > > > > > You may subscribe to the OCD-L by emailing listserv@v... . In > > the body of your message write: subscribe OCD-L your name. You > may > > subscribe to the Parents of Adults with OCD List at > > parentsofadultswithOCD . You may > access the > > files, links, and archives for our list at > > . Our list advisors > are Tamar > > Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list > moderators are > > Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy > , > > Roman, and Jackie Stout. Subscription issues, problems, or > > suggestions may be addressed to Louis Harkins, list owner, at > > harkins@w... . > > > > > > > > > > > > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 Hi Terry My 10n yr old son had a EEG done a few months back and came back normal. Hes had OCD for a year and a half. His dr said it would'nt show the OCD, but would show seizure activity. A PET SCAN would show OCD-try getting a insurance co to ok that, huh. if its not the medical professionals its the insurance companies. Nellie > >From: " Terry Migdal " <zmct@...> >Date: Mon, 20 Nov 2000 18:07:33 -0800 ><egroups>, <Aspergersegroups> >Subject: EEG > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 HI Terry: I do not have any experience with this but I have pretty extensive experience of my own and now also with Steve as a medical care consumer. What you have written is a good example when it is time for a second opinion. I hope you can get a copy of the EEG results and shop them around to a doc who will take the time to explain things to you in a way that does not imply a good neurologist washes their hands when it comes to " psychiatric patients " . Good luck, take care, aloha, Kathy P.S. There are some wonderful docs, don't let this bad apple sour you on the whole bunch. K. At 06:07 PM 11/20/2000 -0800, you wrote: My son had an EEG done and the results were abnormal. The neurologist said these abnormalities are often seen in " psychiatric patients " and in seizures. My son does not have seizures. The neurologist seemed to think it was ok to have an abnormal EEG if you were under psychiatric care. This seems like bad medical care to me. What kind of explanation is that for an abnormal EEG? Has anybody ever heard of abnormalities in an EEG associated with OCD or Aspergers? And if so, what's done about it. This neurologist basically just washed his hands of the whole thing. I really hate the medical profession. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Hi Jeanne. We've never had to go thru an EEG and I'm only speaking from a " mom's " viewpoint. I think I'd go ahead and have it. Else, like you, I'd always wonder if I should have. And there's so many things that " could cause and not cause " the spells. Do the spells happen just at any time - home, school, community, day/night, etc.? Do they last more than a few moments? I think other parents have mentioned migraines here, so maybe their kids have similar spells and some advice on it. BTW, when he comes out of his spell, is he perfectly OK or is his speech or anything affected, dizziness, etc.? See, I'm full of questions!! I'd do the EEG and not have any regrets. > Hello - I mostly am a " reader " of this board but > ocassionally post when I have a question so.... here > is my question. > > Have any of your kids ever had " spells " where they > can't see, hear or feel things? > > My son (15) has told us about these events for the > last 4 or 5 years. Three years ago we took him to a > neurologist and he had an EEG performed. The EEG came > back as slightly abnormal and the neurologist pretty > much dismissed it and I let the " spells " slide (they > seem minor compared to everything else we dealt/deal > with). > > Any way at our last visit with the > psychiatrist,Charlie (my son), stated that the spells > were coming much more frequently and the psychiatrist > sent us back to the neurologist. We met with him today > and he said that Charlie probably has been having lots > of mini migraines (no actual headache) but to be on > the safe side he ordered a 24 hour EEG. > > So.... for the first time in our 6 years of going to > doctors I am not sure if we should do what a doctor > says and have the 24 hour EEG. I don't think we will > find anything and quite frankly I am tired of driving > 2 hours on icey roads just to come up empty handed. On > the other hand if I don't do it I will always wonder > if I should.Have any of you ever got to the point > where you say enough is enough and just ignore the > doctors? > > One other aspect to all this is that Charlie has to > miss a full day of school every time we go to the > doctors and he is very happy about the EEG because it > will require missing two more days (he hates school > -does very well but still hates it). Sometimes I > wonder if he exagerates these spells so that he might > miss a day or two. > > I apologize for rambling. I am just pretty worn out > from traveling on the roads today---- and from > fighting this battle for so long. Thanks in advance > for any replies. > > Jeanne > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Jeane, This is advice and support from a mom who has three kids with a lot of health problems! We are a 30 medication household, we have so many doctors that the kids can't remember their names and even though we are covered 100% by two insurances, we still get bills. ?? It is real frustrating to spend half of your life in doctors offices or in the hospital. I actually have a hospital bag packed at all times so I am ready to go with my favorite PJ's and my coffee cream. I have so many doctors appointments that I am going to buy a palm pilot this Christmas to keep better track of them! My advice to you is to go ahead and do the test with your son if he is up to it. I have been in the situation where my child wasn't being treated properly because of a missed diagnosis and that's no fun either! I would try to hold on, grit your teeth and get through it. If nothing shows up then you will have the confidence knowing that the test is done and over with. Amy in ohio _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 sometimes " spells " could be a mini seizure[ petit mal] i recall reading that and the symptoms you describe fit. erica an EEg would detect them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 I think this is a good question, Jeanne. I've wonderd the same myself. I have thought my 9 yr old daughter might have a high functioning autism or what is caled non verbal learning disorder, which manifests with lots of social anxiety, math disability, rigidity (rituals)and fear of novel situations. I have always homeschooled her, so I wonder just what would a neurologist do for me if I were to get a diagnosis? And how would going through the process affect my daughter. As it is, I read up on strategies for HFA and apply them at home as needed. The only way I could think it would help is by way of offering an explanation when my husband or others get huffy about my supposed incompetence with my daughter because she cannot tie her shoes yet, for instance, or is having great difficulty learning her times tables, and sometimes has spells of screaming (less and less frequent) when she is overwhelmed with too many changes (moving was terrible for us)or excitement. Other than that she is very smart and helpful, perceptive and quite an advanced reader, has her few select friends and activities which I orchestrated pretty much for her comfort level (I only learned these helpful approaches after research-before she was totally confusing me).I do not really at this time see a practical use for the assessment other than to use it for others who come into contact with her and question her abilities. So I am still pondering the least traumatic way to undego such a process. I do know that EEG's for mild seizure disorders are veryinconclusive. I have read where different technicians come up with different reports. sometimes you can proceed according to waht you beleive is your son's disability 9by applying techniques for learning, or calming, or avoiding triggers) even though you do not have a diagnosis.In @y..., jeanne larson <rere56_2000@y...> wrote: > Hello - I mostly am a " reader " of this board but > ocassionally post when I have a question so.... here > is my question. > > Have any of your kids ever had " spells " where they > can't see, hear or feel things? > > My son (15) has told us about these events for the > last 4 or 5 years. Three years ago we took him to a > neurologist and he had an EEG performed. The EEG came > back as slightly abnormal and the neurologist pretty > much dismissed it and I let the " spells " slide (they > seem minor compared to everything else we dealt/deal > with). > > Any way at our last visit with the > psychiatrist,Charlie (my son), stated that the spells > were coming much more frequently and the psychiatrist > sent us back to the neurologist. We met with him today > and he said that Charlie probably has been having lots > of mini migraines (no actual headache) but to be on > the safe side he ordered a 24 hour EEG. > > So.... for the first time in our 6 years of going to > doctors I am not sure if we should do what a doctor > says and have the 24 hour EEG. I don't think we will > find anything and quite frankly I am tired of driving > 2 hours on icey roads just to come up empty handed. On > the other hand if I don't do it I will always wonder > if I should.Have any of you ever got to the point > where you say enough is enough and just ignore the > doctors? > > One other aspect to all this is that Charlie has to > miss a full day of school every time we go to the > doctors and he is very happy about the EEG because it > will require missing two more days (he hates school > -does very well but still hates it). Sometimes I > wonder if he exagerates these spells so that he might > miss a day or two. > > I apologize for rambling. I am just pretty worn out > from traveling on the roads today---- and from > fighting this battle for so long. Thanks in advance > for any replies. > > Jeanne > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi Jeanne, I wanted to belatedly respond to your post. Personally I would get the eeg since at the very least it would rule out one possible reason for your son's " spells. " It can be so difficult to separate physical problems from OCD symptoms, and I'm always grateful for anything that can help make the distinction. Regarding his spells, have you known when he is having them? How does he behave then? My daughter can become so inwardly focused on an obsessional thought that she doesn't hear or respond, sort of like a little kid mesmerized by the tv. She also gets upset sometimes and complains that she can't feel her feet--is that what you mean by " can't feel things? " Let us know how things turn out. Kathy R. in Indiana ----- Original Message ----- From: " jeanne larson " <rere56_2000@...> > Have any of your kids ever had " spells " where they > can't see, hear or feel things? > > My son (15) has told us about these events for the > last 4 or 5 years. Three years ago we took him to a > neurologist and he had an EEG performed. The EEG came > back as slightly abnormal and the neurologist pretty > much dismissed it and I let the " spells " slide (they > seem minor compared to everything else we dealt/deal > with). > > Any way at our last visit with the > psychiatrist,Charlie (my son), stated that the spells > were coming much more frequently and the psychiatrist > sent us back to the neurologist. We met with him today > and he said that Charlie probably has been having lots > of mini migraines (no actual headache) but to be on > the safe side he ordered a 24 hour EEG. > > So.... for the first time in our 6 years of going to > doctors I am not sure if we should do what a doctor > says and have the 24 hour EEG. I don't think we will > find anything and quite frankly I am tired of driving > 2 hours on icey roads just to come up empty handed. On > the other hand if I don't do it I will always wonder > if I should.Have any of you ever got to the point > where you say enough is enough and just ignore the > doctors? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 EEG > Dear , > > I am really looking forward to meeting you in Adelaide in August. > > In anticipation, I wonder if you could relieve my mounting frustration in > being unable to obtain an explanation about the EEG area of the QX program. > This is despite the attendance of two training week-ends in Melbourne. > > In the past, I used a Vega machine in Melbourne, Australia from 1986 to > 1990 together with two medical colleagues (I am an osteopath). We saw some > very good results but eventually gave it away because we felt it was not > reliable enough. > > I bought the QXCI in Melbourne last October in the hope that it could help > me with the children with learning problems that I treat; this includes a > two week intensive which I run periodically. > I have found no one who can explain the values for the EEG-Brain waves part > of the program. > I read in your manual that the beta wave should be the dominant wave. I > cannot find any advice on what a physiologic score would be for Alpha, > Beta, Theta, Delta and Immature slow thought. Can you PLEASE clarify what > would be a " normal " reading, particularly for children aged 2 - 12 years. > The results just seem to bounce around in a totally random fashion. I have > charted one of the Aspberger patients that I am currently seeing. If you > look at the Excell file that is attached, 's Alpha goes from 10 to 25 > to 7, which doesn't seem to indicate any progress at all. > The right hand column seems to vary in an even more extreme way (see EEG#2 > values). Some readings go right down (e.g. Cerebellar disorder goes from 47 > to 3 to 1) but others go up (e.g. Bilateral sync. which goes from 19 to 44 > to 49). How can any significance be placed on this and how can one dialogue > with the patient's parents when you are on a quicksand of results. > > The ADD/LEAP results are just as variable. One session shows a disorder in > the reticular system and the next session shows a disorder in the cingulate > gyrus. It is just like a revolving door that never ends. How does one make > sense of this? > > > Regards > > Maxwell Fraval D.O., M.Ost.Sc.(Paed) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2010 Report Share Posted December 24, 2010 A QEEG (Quantitative EEG) is usually more practical for CFS than regular EEG. See http://www.adhd.com.au/QEEG.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Does doing an EEG come with any risks for my child? I am not doing any sedation. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 My son had it done a couple of years ago and all it is probes put on his head. My son kept his for 24 hrs. The only bad thing I would thinks is the struggle you go through holding him down to have them put on and then making sure he doesn't take them of during the day and night. My son slept that night between my husband and I and we each help on of his hands while he slept. I've heard it is sometimes done while in a hospital stay. I don't think there is any sedative involved as in my opinion, it would loose the purpose of being able to read the brain waves properly (but I'm no neurologist) Good luck, T. Zapata [ ] EEG Does doing an EEG come with any risks for my child? I am not doing any sedation. Thanks Quote Link to comment Share on other sites More sharing options...
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