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That is a lower dosage than usual. It could be that your labs have

shown some dip towards hemolytic anemia or something else. Ask the Dr

why it's so low. You should be taking either 1,000 or 1200mg daily.

If there is no reason for the dosage to be that low, ask the Dr why

he isn't giving you the full dosage. There must be a reason for it.

LeighAnn

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Hi nightblossom. I was on 3 and 3 but the meds started giving me

anemia so they had to cut it to 2 and 2. I still cleared the virus.

Just make sure he or she keeps on top of the labs and blood work. I

would suspect that they probably have enough info to know the cutoff

for efficacy of the meds. And if you are in a study there are

protocols they have to follow.

> Hello All...hope you're all in the best of health.

> I have a tiny problem. It has to do with what is the proper

dosage

> of Rebetol. My dr. has me on 2 pills in the morning and 2 more at

> night...that 800 mg a day. I weigh over 200lbs...so what I would

like

> to know is the right dosage? Is there is a difference between

taking

> 800 or 1200 mg? Would a dosage increase help with my virus. By the

> way I took my first shot and pills on Dec.6. 2002....

> Thank you All

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Guest guest

, I would def look into that pain more. My pain was from my lower back

into my butt down my thigh across to my shin and into my foot. My was the

sciatia was being pressed by the herniated disc.

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, I would def look into that pain more. My pain was from my lower back

into my butt down my thigh across to my shin and into my foot. My was the

sciatia was being pressed by the herniated disc.

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-

I just hope that it's sciatica. I have the same pain. It started in my low

back and reached into my left butt into my thigh and mine goes down

to my freakin' foot. I thought it was sciatica, too. An MRI showed

a herniated disc at L4/L5, so if I were you, I'd get it checked out sooner

than later. This is what's driving me nuts right now. Also my herniation

is

pressing on my S1, which is why it goes down to my foot when I stand

up. Crap.

joe

> Hey All

> Okay im going nuts with this sciatica pain that goes down into my right

thigh...hot sharp shooting,aching,agonizing,freakin pains. I take lortabs

7.5 q4hrs and soma's q6hrs. The medication only helps a little over an hour.

And then im miserable until i can drug up again. Yes laying down helps,but i

am still working. Any suggestions to what might help or other pain med might

help(my family doc will give me anything until i have my initial consult

with the neuro on June 2)

>

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-

I just hope that it's sciatica. I have the same pain. It started in my low

back and reached into my left butt into my thigh and mine goes down

to my freakin' foot. I thought it was sciatica, too. An MRI showed

a herniated disc at L4/L5, so if I were you, I'd get it checked out sooner

than later. This is what's driving me nuts right now. Also my herniation

is

pressing on my S1, which is why it goes down to my foot when I stand

up. Crap.

joe

> Hey All

> Okay im going nuts with this sciatica pain that goes down into my right

thigh...hot sharp shooting,aching,agonizing,freakin pains. I take lortabs

7.5 q4hrs and soma's q6hrs. The medication only helps a little over an hour.

And then im miserable until i can drug up again. Yes laying down helps,but i

am still working. Any suggestions to what might help or other pain med might

help(my family doc will give me anything until i have my initial consult

with the neuro on June 2)

>

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Well you two, I hope for both of you that its nothing serious, but I hope more

that its Fixable! As of right now mine is not so I deal with that irritating (to

be nice) nerve pain 24/7 and its enough to make me want to literally shoot my

foot at times so I dont feel that pain, its so bad in my heel! My neurontin can

calm it down a bit but knowing that right now there is no reason (disc or

sciatica) for it to be bothering me, that's the worst, not having a possible

cure for it. Its sad when you hope the nerve severs itself so you dont feel

anymore pain, I wish you both luck!!

, as I said I take neurontin for my nerve pain, others swear by topamax

which I did try but for me I had a very odd side effect so my doctor took me off

it immediately, but if it works for a lot of ppl go for it. I dont have any of

the side effects that others on here have had with neurontin (weight gain is the

big one I guess) so I'm back with that. Good luck in whatever you try and Joe, I

hope you arent having a new problem as it seems from what you've said about S1

you may, lets hope its " sympathy " pain... there feels like there's a problem but

its just pressure from the actual problem one. Ugh I tell ya if its not one

problem its another, why do we get thrown with more than one thing to deal with?

I just hope all of you that have neck and now low back problems dont have to go

thru anymore pain, I really hope that after your surgeries it's all gone and

you're back to normal lives... I'm so glad there is a chance out there for you

all, options of surgery, and if I'm lucky (I never thought I'd say lucky and

surgery in one sentence LOL) I'll someday soon have the option of surgery, I'd

be runnin to the hospital if I had the chance! LOL :P

Connie

Re: Need Advice

> -

>

> I just hope that it's sciatica. I have the same pain. It started in my low

> back and reached into my left butt into my thigh and mine goes down

> to my freakin' foot. I thought it was sciatica, too. An MRI showed

> a herniated disc at L4/L5, so if I were you, I'd get it checked out sooner

> than later. This is what's driving me nuts right now. Also my herniation

> is

> pressing on my S1, which is why it goes down to my foot when I stand

> up. Crap.

>

> joe

>

> > Hey All

> > Okay im going nuts with this sciatica pain that goes down into my right

> thigh...hot sharp shooting,aching,agonizing,freakin pains. I take lortabs

> 7.5 q4hrs and soma's q6hrs. The medication only helps a little over an hour.

> And then im miserable until i can drug up again. Yes laying down helps,but i

> am still working. Any suggestions to what might help or other pain med might

> help(my family doc will give me anything until i have my initial consult

> with the neuro on June 2)

> >

>

>

>

>

>

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Well you two, I hope for both of you that its nothing serious, but I hope more

that its Fixable! As of right now mine is not so I deal with that irritating (to

be nice) nerve pain 24/7 and its enough to make me want to literally shoot my

foot at times so I dont feel that pain, its so bad in my heel! My neurontin can

calm it down a bit but knowing that right now there is no reason (disc or

sciatica) for it to be bothering me, that's the worst, not having a possible

cure for it. Its sad when you hope the nerve severs itself so you dont feel

anymore pain, I wish you both luck!!

, as I said I take neurontin for my nerve pain, others swear by topamax

which I did try but for me I had a very odd side effect so my doctor took me off

it immediately, but if it works for a lot of ppl go for it. I dont have any of

the side effects that others on here have had with neurontin (weight gain is the

big one I guess) so I'm back with that. Good luck in whatever you try and Joe, I

hope you arent having a new problem as it seems from what you've said about S1

you may, lets hope its " sympathy " pain... there feels like there's a problem but

its just pressure from the actual problem one. Ugh I tell ya if its not one

problem its another, why do we get thrown with more than one thing to deal with?

I just hope all of you that have neck and now low back problems dont have to go

thru anymore pain, I really hope that after your surgeries it's all gone and

you're back to normal lives... I'm so glad there is a chance out there for you

all, options of surgery, and if I'm lucky (I never thought I'd say lucky and

surgery in one sentence LOL) I'll someday soon have the option of surgery, I'd

be runnin to the hospital if I had the chance! LOL :P

Connie

Re: Need Advice

> -

>

> I just hope that it's sciatica. I have the same pain. It started in my low

> back and reached into my left butt into my thigh and mine goes down

> to my freakin' foot. I thought it was sciatica, too. An MRI showed

> a herniated disc at L4/L5, so if I were you, I'd get it checked out sooner

> than later. This is what's driving me nuts right now. Also my herniation

> is

> pressing on my S1, which is why it goes down to my foot when I stand

> up. Crap.

>

> joe

>

> > Hey All

> > Okay im going nuts with this sciatica pain that goes down into my right

> thigh...hot sharp shooting,aching,agonizing,freakin pains. I take lortabs

> 7.5 q4hrs and soma's q6hrs. The medication only helps a little over an hour.

> And then im miserable until i can drug up again. Yes laying down helps,but i

> am still working. Any suggestions to what might help or other pain med might

> help(my family doc will give me anything until i have my initial consult

> with the neuro on June 2)

> >

>

>

>

>

>

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Hi all. I wrote a few times on here but, I was concentrating on keeping my

compensation. Now, i am in the process of appealing their decison to cut me

off. I went to the Pian Clinc on Monday and the Director said he no longer

wanted to do injections but, wanted to talk. He is sending a letter to my

Medical Dr. with suggestions and referring me back to the surgeon. I have

not had surgery and I got hurt on May 12th last year. I had the facet joints

injected and 2 epidurals. The Dr. at the Pain clinic wants my medical Dr.

to put me on neurotin PLUS a slow release pain medication(an opiate). Does

anyone know of some of these? I am presently on diaulid ..4 mg..4 times a

day but, they don`t last long and I have a horrible quality of life. He said

the slow release would help me get some life back and I have been told you

usually take the other pain med as prescribed but, the slow release a

stops the breakthrough pain ,when the time between meds is not up and you

can not take more. I know nothing of the neurontin.what is it like ? He

said you start at 300mg a day and can go up as much as 16oo mg a day. I

really can not afford to gain weight as someone said that is a side affect

,as a year with little mobility I have put on 35 lbs.I would apprecaite any

info . I have pain in my right buttock, groin, leg and foot and now,

sometimes I get pain into my left buttock and going into the leg. The only

releief I can get is moving from one positon to another and NOT for long.

THe best is wrapped around a bdy pillow. I want an operation...because its

been a year and I am getting worse. I think an operation holds some hope

for us who have tried everyhting else and been unsucessfull. I had PT. for

the first 5 months and tehn I went back foir all of April but, came back

home more sore. Has anyone tried to do a little biking on a stationary. i

want so bad to find a way to lose some of this exces weight. Thanks for

your time jackie from Nova Scotia,Canada

>From: LS816@...

>Reply-spinaldisorderssupport

>spinaldisorderssupport

>Subject: Re: Need Advice

>Date: Tue, 6 May 2003 22:51:20 EDT

>

>, I would def look into that pain more. My pain was from my lower back

>into my butt down my thigh across to my shin and into my foot. My was the

>sciatia was being pressed by the herniated disc.

>

>

>

>

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Hi all. I wrote a few times on here but, I was concentrating on keeping my

compensation. Now, i am in the process of appealing their decison to cut me

off. I went to the Pian Clinc on Monday and the Director said he no longer

wanted to do injections but, wanted to talk. He is sending a letter to my

Medical Dr. with suggestions and referring me back to the surgeon. I have

not had surgery and I got hurt on May 12th last year. I had the facet joints

injected and 2 epidurals. The Dr. at the Pain clinic wants my medical Dr.

to put me on neurotin PLUS a slow release pain medication(an opiate). Does

anyone know of some of these? I am presently on diaulid ..4 mg..4 times a

day but, they don`t last long and I have a horrible quality of life. He said

the slow release would help me get some life back and I have been told you

usually take the other pain med as prescribed but, the slow release a

stops the breakthrough pain ,when the time between meds is not up and you

can not take more. I know nothing of the neurontin.what is it like ? He

said you start at 300mg a day and can go up as much as 16oo mg a day. I

really can not afford to gain weight as someone said that is a side affect

,as a year with little mobility I have put on 35 lbs.I would apprecaite any

info . I have pain in my right buttock, groin, leg and foot and now,

sometimes I get pain into my left buttock and going into the leg. The only

releief I can get is moving from one positon to another and NOT for long.

THe best is wrapped around a bdy pillow. I want an operation...because its

been a year and I am getting worse. I think an operation holds some hope

for us who have tried everyhting else and been unsucessfull. I had PT. for

the first 5 months and tehn I went back foir all of April but, came back

home more sore. Has anyone tried to do a little biking on a stationary. i

want so bad to find a way to lose some of this exces weight. Thanks for

your time jackie from Nova Scotia,Canada

>From: LS816@...

>Reply-spinaldisorderssupport

>spinaldisorderssupport

>Subject: Re: Need Advice

>Date: Tue, 6 May 2003 22:51:20 EDT

>

>, I would def look into that pain more. My pain was from my lower back

>into my butt down my thigh across to my shin and into my foot. My was the

>sciatia was being pressed by the herniated disc.

>

>

>

>

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Thank you Joe,Connie, and . I got alot of interesting info from

you....so i compiled it all down in front of me before calling my family

doctor...only to find out that she is out of town until Friday!!!

Grrrr....figures thats my luck.

Since I haven't seen the neuro...i can only tell what my problem is from reading

the MRI report. Its says....at L3-4 there is borderline stenosis of the canal

due to relatively short pedicles. At L4-5 there is grade 1 spondylolthesis

associated with degeneration or the facets. In addition there is diffuse bulging

of the annulus.This results in stenosis of the spinal canal and narrowing of

neural foramina bilaterally.Also pressure is noted on the S1. Okay anyone know

what the hell this all means???? The only thing I know is that I am a surgery

candidate! Oh this MRI was done just a few weeks ago,when I was having this pain

in the leg.

And thank god my pain thus far hasn't traveled any further down the leg...stops

at the knee.Your right Joe...this is CRAP!

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Thank you Joe,Connie, and . I got alot of interesting info from

you....so i compiled it all down in front of me before calling my family

doctor...only to find out that she is out of town until Friday!!!

Grrrr....figures thats my luck.

Since I haven't seen the neuro...i can only tell what my problem is from reading

the MRI report. Its says....at L3-4 there is borderline stenosis of the canal

due to relatively short pedicles. At L4-5 there is grade 1 spondylolthesis

associated with degeneration or the facets. In addition there is diffuse bulging

of the annulus.This results in stenosis of the spinal canal and narrowing of

neural foramina bilaterally.Also pressure is noted on the S1. Okay anyone know

what the hell this all means???? The only thing I know is that I am a surgery

candidate! Oh this MRI was done just a few weeks ago,when I was having this pain

in the leg.

And thank god my pain thus far hasn't traveled any further down the leg...stops

at the knee.Your right Joe...this is CRAP!

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Hi,

Sorry to hear about your pain. I have been severe pain for the last five

years and bad pain for twenty years prior to that, its a long story! When

you go to the neurosurgeon in June you might talk to him about MORPHINE

IMPLANT. My life is so different today. Beleive me I had lost all hope. I

don't your exact situation, but I am doing my part to try and help my fellow

Pain suffers. I will keep you in my prayers. Take Care,

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Guest guest

Hi,

Sorry to hear about your pain. I have been severe pain for the last five

years and bad pain for twenty years prior to that, its a long story! When

you go to the neurosurgeon in June you might talk to him about MORPHINE

IMPLANT. My life is so different today. Beleive me I had lost all hope. I

don't your exact situation, but I am doing my part to try and help my fellow

Pain suffers. I will keep you in my prayers. Take Care,

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Thank you

Have you had surgery?

And still in pain?

Right now Im trying to keep a positive attitude that I wont have any pain after

the surgery(i mean i know i will have some immediatley following),but in the

long run praying it will be back to almost like normal. I know i have high

hopes....but got to think positive.

Oh wow...my family doc didn't really change my drugs, she just doubled my

lortabs 7.5(take 2 every 4 hours), so it has helped some. That along with the

soma and an ice pack shoved down the back of my pants and one strapped to my

leg...i guess im doing a little better,even tho i look funny. Have to go to an

outside BBQ in Orlando tomorrow...suppose to be in the 90's....may have to

switch to dry ice(LOL).

Thanks for keeping me in your prayers...all you guys are so great

Re: Need Advice

Hi,

Sorry to hear about your pain. I have been severe pain for the last five

years and bad pain for twenty years prior to that, its a long story! When

you go to the neurosurgeon in June you might talk to him about MORPHINE

IMPLANT. My life is so different today. Beleive me I had lost all hope. I

don't your exact situation, but I am doing my part to try and help my fellow

Pain suffers. I will keep you in my prayers. Take Care,

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Guest guest

,

Not knowing how much you know. Try http://www.nlm.nih.gov/medlineplus. It'

s a font of wonderful, easy to understand information & has lots of

top-notch links.

Here's what I know:

-Pedicles are the finger-like projections of bone along your spinal column

that create your spinal canal (lamina) & cradle your nervous system

(nerves).

- " Relatively short " pedicles mean that your spinal canal is not as deep or

cavernous as some, exposing you to possible stenosis, a narrowing of the

spinal canal where external pressure may impinge your spinal cord. You are

borderline, meaning you don't have to worry about it right now.

-Spondylolithesis is where there is L4-5 subluxation (dislocation, movement)

in your lumbar region of your vertebrae, & typically occurs in arthritic or

other degenerative cases. Your's is nearly a textbook case, as L4-5 are the

universal lumbar bones that slip on each other. Painful, yes.

-Foramina: back to your nervous system. The spaces between the bones of a

spine are called foramina, & the nervous system passes through your spine &

into your arms & legs. The space between your L4-5 bones are narrowed, most

likely because of the slippage between L4-5.

-Annulus: Between each bone of the vertebrae is a gel-like disk (think

cartilage) that acts as a cushion between the bones of your spinal column,

which allows you to bend, etc. The annulus fibrosus is a cartilage-like

ring around the cushion. It's probably bulging from your slipped L4-5, as

they're squeezed together. The bulge is impinging on your spinal canal,

which is causing the narrowing (stenosis).

-Pressure on S1: Right below L4-5 are your sacral verterbrae starting with

S1. Perhaps your bulging annulus from L4-5 is pushing up against your first

sacral bone.

If your neurosurgeon isn't available to answer your questions, try calling

your regular physician. Mine has helped me so much. You may want to be

cautious in bending. You may want to avoid jumping.

sonia

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Guest guest

Thank you so much, you have been very imformative...oh and believe me....I don't

bend,jump etc etc. Don't do much of anything except exist. Just waiting for the

surgery date to be set and then i will be a happy camper.

RE: Re:Need Advice

,

Not knowing how much you know. Try http://www.nlm.nih.gov/medlineplus. It'

s a font of wonderful, easy to understand information & has lots of

top-notch links.

Here's what I know:

-Pedicles are the finger-like projections of bone along your spinal column

that create your spinal canal (lamina) & cradle your nervous system

(nerves).

- " Relatively short " pedicles mean that your spinal canal is not as deep or

cavernous as some, exposing you to possible stenosis, a narrowing of the

spinal canal where external pressure may impinge your spinal cord. You are

borderline, meaning you don't have to worry about it right now.

-Spondylolithesis is where there is L4-5 subluxation (dislocation, movement)

in your lumbar region of your vertebrae, & typically occurs in arthritic or

other degenerative cases. Your's is nearly a textbook case, as L4-5 are the

universal lumbar bones that slip on each other. Painful, yes.

-Foramina: back to your nervous system. The spaces between the bones of a

spine are called foramina, & the nervous system passes through your spine &

into your arms & legs. The space between your L4-5 bones are narrowed, most

likely because of the slippage between L4-5.

-Annulus: Between each bone of the vertebrae is a gel-like disk (think

cartilage) that acts as a cushion between the bones of your spinal column,

which allows you to bend, etc. The annulus fibrosus is a cartilage-like

ring around the cushion. It's probably bulging from your slipped L4-5, as

they're squeezed together. The bulge is impinging on your spinal canal,

which is causing the narrowing (stenosis).

-Pressure on S1: Right below L4-5 are your sacral verterbrae starting with

S1. Perhaps your bulging annulus from L4-5 is pushing up against your first

sacral bone.

If your neurosurgeon isn't available to answer your questions, try calling

your regular physician. Mine has helped me so much. You may want to be

cautious in bending. You may want to avoid jumping.

sonia

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, My 1 level fusion was 4 hours. That was with bone graft. Some

hospitals usally have the bigger surgerys in the morning. My laminctomy which

was only 2 hrs was scheduled for 10.

I still dont get this brace wearing thing...Does one wear it for more than 1

level fusion? I was sitting in a chair on the 3rd day. No brace. Maybe its

easier or something. My doc told me before surgery that he doesnt use them so

Inever questioned it..

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I used to live in Orlando and summers are no fun. 2 of my 3 kids were

born in July there...Swollon ankles and everything..lol My parents lived

there for years after I moved so we visited often and we said the same thing

each time..Thank god we left its brutal..Now my parents are here in NJ so the

only time we go now is if my daughter makes it there with cheerleading..And

thats in Dec. It was nice when we went last year..

I am sorry are you having a fusion done? With bone graft? My doc told me it

would be between 3.5 and 5 hours...

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Guest guest

,

Hope it helped. Yes, it's no touch-your-toes time for all of us. Sigh.

BTW, have you considered asking for an early morning surgery? Later in the

day, the more procedures your surgeon has already performed & is getting

progressively tired & more apt to make mistakes. (Ditto for

anesthesiologist.)

sonia

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Great idea about asking for an early surgery. I will make sure I request that

when i see the neuro on June 2nd. Im just counting the days as im so sick of

having pain. Have a question...for like just a fusion,how long does surgery

take?

RE: Re:Need Advice

,

Hope it helped. Yes, it's no touch-your-toes time for all of us. Sigh.

BTW, have you considered asking for an early morning surgery? Later in the

day, the more procedures your surgeon has already performed & is getting

progressively tired & more apt to make mistakes. (Ditto for

anesthesiologist.)

sonia

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I know nothing about the back braces (yet). I have that on my list to ask the

doctor when i have my consultation for surgery. Im hoping i don't have to wear

one....especially during the summer in Florida.It was 93 here today and

humid...miserable!

ps..thanx for info on surgery times. 2hrs wouldn't be bad.

Re: Re:Need Advice

, My 1 level fusion was 4 hours. That was with bone graft. Some

hospitals usally have the bigger surgerys in the morning. My laminctomy which

was only 2 hrs was scheduled for 10.

I still dont get this brace wearing thing...Does one wear it for more than 1

level fusion? I was sitting in a chair on the 3rd day. No brace. Maybe its

easier or something. My doc told me before surgery that he doesnt use them so

Inever questioned it..

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Guest guest

Well i really don't know what they are going to do surgery wise. The Ortho doc

said fusion, but have yet to hear what the neuro says.

Ah yes then you know Florida weather. I was in Orlando Saturday for a BBQ. Who

the hell has a BBQ in Florida in this heat! It was miserable. All I wanted to do

was jump in the pool and go swimming,but the Ortho said NO SWIMMING! So for

right now I just settle for the girls little plastic swimming pool...what a

sight!

Re: Re:Need Advice

I used to live in Orlando and summers are no fun. 2 of my 3 kids were

born in July there...Swollon ankles and everything..lol My parents lived

there for years after I moved so we visited often and we said the same thing

each time..Thank god we left its brutal..Now my parents are here in NJ so the

only time we go now is if my daughter makes it there with cheerleading..And

thats in Dec. It was nice when we went last year..

I am sorry are you having a fusion done? With bone graft? My doc told me it

would be between 3.5 and 5 hours...

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  • 2 months later...
Guest guest

Why say anything? He has made his peace with something he can't

change about his own past. He isn't asking for advice or

information, just telling you what he thinks.

Need advice

| Below is part of an email I received from a childhood friend

who just got back in touch with me. I asked him about polio that

he contracted when he was a child. I wondered if he had gotten

a vaccine at all, and if so if it was before the polio. See

below. I need advice on how to answer this situation.

|

| >As for causes, its good to believe in something. As for my

polio, I took the oral vaccine for polio just like everybody did

back then. My mother and I both so got a Smallpox vaccination

in late August but mine didn't take (no scab), my mother's did.

Within a few days I had a high fever (104)followed by recovery

and then the polio started August 31, first at the ankle and by

Sept 2 my left leg was paralyzed. All this just before my 8th

grade year (1964). Sept 2 I was in hospital with partial

paralysis and a lot of pain from the contractions. I spent 6

weeks in the _____ hospital and in Nov I went to _______ and

spent another 6 weeks. Because of the lack of knowledge about

polio by the doctors in _____ they did everything wrong and cost

me the normal use of the leg. ______ totally understood what to

do and save what little was left. I only wear a short knee

brace but any thoughts of entering the Olympics in the 100 yard

dash are pretty slim. Did I get polio from the vaccine, I don't

know. Would I do it all over again even knowing that there is

always a chance of getting or having a reaction to the vaccine?

Yes. The number of people who benefit from vaccines far

outweighs the number of people who will be negatively affected.

It's the cost of protecting the masses. Polio didn't have a

devastating effect on my life, it just made me redirect my

energies. Just as you grandson was stricken and you feel

victimized because you weren't told of all the risks, how would

you feel if you had been told, chosen not to vaccinate your

grandson and he then got the disease the vaccines were meant to

protect you from? It's a Catch-22. Your right, they never

spend time telling us that there is a know percentage of the

population that will get the disease or have a bad negative

reaction, probably because of the fear factor that would cause,

but at this time, what alternative would you suggest to prevent

these devastating diseases?>

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