Need Advice

September 9, 2003

Hi Dawn,

Yes, for over a year I had symptoms of both Hyper-T and Hypo-T. Everything

was normal and then all of a sudden, everything was grossly out of range. I

had weight gain then loss, fatigue, hyperness, etc.

I've been told that it happens alot, but I wish someone would do something to

find it sooner. It was hell.

In a message dated 9/9/2003 1:34:50 PM Eastern Standard Time,

natiod@... writes:

>

> I have not been diagnosed with HyperThyroid, however a year ago I

> started having symptoms in which I thought I might be. Symptoms have

> been fatigue, hair loss, and weight loss. I had my TSH checked and the

> result was 1.1 which the doctor says is in the normal range (.5-5.0).

> A year later I am still having these symptoms, the hair loss is my

> biggest concern as I know that usually indicates a health problem. Did

> anyone else have a " normal " test result then find out they were HyperT?

> Is 1.1 normal, should I have the test taken again?

>

> Thanks in advance for your input.

>

> Dawn

September 9, 2003

Hi Dawn,

Did you have that TSH test a year ago or recently?

If it was a year ago and symptoms have persisted, it should have been

rechecked after a few months. If you are hyperthyroid, the TSH should have

fallen

considerably by now. Often, symptoms begin before the labs become abnormal. Take

care, Elaine

September 10, 2003

I did, and my name is Dawn too!

It took them ages to diagnose me with hyperthyroidism - I had my thyroid

checked about 9 months before I was finally diagnosed, and I was what is

called " subclinically hyperthyroid " , where my TSH was low and my other two

more active FT3 and FT4 were normal. The doctor said it was irrelevent.

After that the thyroid was retested and read as normal on two further

occasions. All that time though, I had hair loss, weight loss, appetite

loss (which is atypical) and racing heart and raging rage that seemed to

come from nowhere. I was exhausted and my eyes hurt. Everyone said I was

depressed and I couldn't work out how that could be as it didn't feel that

way.

So I think that there is a pre-Grave's hyperthyroidism stage for some of us

where the dodgy autoimmune response is kicking off and then perhaps righting

itself, then kicking off again. But this is just the theory of a lay

person, I am not a medic or anything.

I wish that I had had the antibody test specific to Graves' at that point,

but maybe even that would have been inconclusive at that stage.

I must say though that I found that long period of feeling ill with no

explaination very worrying and hard indeed. Whenever I looked in the mirror

I thought, now something really is wrong, am I the only one who can see it?

Hoping you can get some answers soon and that you feel better soon

DAWN ROSE

From: " Nations, Dawn " <natiod@...>

Reply-hyperthyroidism

Subject: Need advice

Date: Tue, 9 Sep 2003 12:32:00 -0500

I have not been diagnosed with HyperThyroid, however a year ago I

started having symptoms in which I thought I might be. Symptoms have

been fatigue, hair loss, and weight loss. I had my TSH checked and the

result was 1.1 which the doctor says is in the normal range (.5-5.0).

A year later I am still having these symptoms, the hair loss is my

biggest concern as I know that usually indicates a health problem. Did

anyone else have a " normal " test result then find out they were HyperT?

Is 1.1 normal, should I have the test taken again?

Thanks in advance for your input.

Dawn

November 8, 2003

Kacy, Congratulations! Welcome to Bandlandia!

You should let your doctor know about your symptoms and see if

there's anything he/she would like you to take. I'm not sure what

the heartburn would be a symptom of, but do know you shouldn't mess

around if you can't swallow anything - you don't want to get

dehydrated.

I did have a sore throat after my banding... sort of felt like the

beginning of thrush. Warm liquids helped, although it may also have

been the Maalox my doctor insisted upon.

I found a heating pad to help with the gas and the general pain. I'd

also recommend you take the pain pills prescribed - remember it's

easier to manage pain than it is to stop it.

You might want to also try one of the main boards like the

SmartBandsters or Bandsters group - there's stuff in the files

and archives about post-surgery. The more general stuff is over

there

Jo in Silverdale

-120

>

> I feel like things are going well and I am on the mend but a little

concerned because the doctor said to watch out for that heartburn

feeling. Can anyone provide some advice on this? I would appreciate

it...

>

December 4, 2003

Hi ,

Have you tried Nifedipine? It comes in a pill or capsule. The capsule has

liquid in it and works almost immediately if you cut open the capsule and swallow the liquid.

The spasms disappear. It may not work for everyone but it worked wonders for me.

There are other remedies - ask Debbie - she will fill you in.

Regarding your partner - I would not get into discussions with him about your illness. He

is not listening to you.

Bobbie

December 4, 2003

Hi Debbie,

Just wanted you to know that there are diabetics that no matter how well they take

care of themselves are uncontrolled -and as a result have difficult lives.

Bobbie

December 4, 2003

Hi ! I was wondering what had happened to you, I haven't seen you posting in over a month or so!

Have you been able to try any of the drugs we talked about, either on an "as needed" basis when you get a spasm, or else as a once-a-day preventative? Many of us have found drugs that will stop or prevent the spasms.

As for your work partner not understanding, could you maybe print out some of the posts from this group to show him what it's like to experience a spasm? Diabetes is a very complicated disease, but it generally doesn't cause one to stop in mid-stride and curl up into a fetal position with little to no warning! With proper planning, the diabetes can be controlled -- with achalasia, there *is* no control!!!!

I'd really like to see you find a way to stop your spasms altogether, though, so that it doesn't affect your worklife at all. Have you talked to your doctor about trying ANY of the drugs? Let me know if you need a list of them again and I'll dig it up and post it.

Debbi in Michigan

I've had achalasia for 14 years and had all the operations which turned out to assist my sollowing back to about 75 percent.My biggest problem now is esophogeal spasm's which occur two to three times a week and last from 2 to 8 and sometimes 16 hours in duration.These spasm's as most of you know are extreamly painful and darn near disabling. I have been approved for FMLA family and medical leave on an intermittant basis. I am a corrections officer and have a work partner that just can't quite understand why I must take so much time off. He himself suffers from Diabetes and he constantly makes comments to me comparing his medical problem to mine and makes comments like if he can come to work with diabetes then why is it that I can't, considering more people die from diabetes than people with achalasia. I have had many discussions with him regarding my illness, even had some really painful spasms in his presents. My dilemma is this, how do I deal with this person which I had considered my friend until just recient and have worked with for the past 14 years? How do I get him to understand that comparing his medical problem to mine is like comparing apples to oranges.Any advise will be greatly appreciated. New York

December 4, 2003

These are the times when one finds out who their real friends are,

sounds like you've been there for him, just never mind people like

that. Cathey in Michigan

> I've had achalasia for 14 years and had all the operations which

> turned out to assist my sollowing back to about 75 percent.

> My biggest problem now is esophogeal spasm's which occur two to

three

> times a week and last from 2 to 8 and sometimes 16 hours in

duration.

> These spasm's as most of you know are extreamly painful and darn

near

> disabling. I have been approved for FMLA family and medical leave

on

> an intermittant basis. I am a corrections officer and have a work

> partner that just can't quite understand why I must take so much

time

> off. He himself suffers from Diabetes and he constantly makes

> comments to me comparing his medical problem to mine and makes

> comments like if he can come to work with diabetes then why is it

> that I can't, considering more people die from diabetes than people

> with achalasia. I have had many discussions with him regarding my

> illness, even had some really painful spasms in his presents. My

> dilemma is this, how do I deal with this person which I had

> considered my friend until just recient and have worked with for

the

> past 14 years? How do I get him to understand that comparing his

> medical problem to mine is like comparing apples to oranges.

> Any advise will be greatly appreciated.

>

> New York

December 5, 2003

loopy7481 wrote:

>... I am a corrections officer and have a work

>partner that just can't quite understand why I must take so much time

>off. He himself suffers from Diabetes and he constantly makes

>comments to me comparing his medical problem to mine...

It is likely that this is not so much about your condition as it is about

his. He is probably having problems coming to terms about his diabetes. It

is possible that this is part of a " why me " reaction, and is he is

comparing himself not just to you but to everyone. He may feel that life

has been unfair to him by giving him this terrible disease, and on top of

that others get to have time off from work for their problems, so life

should cut him a break too.

If you could convince him that you do need the time off he will probably

just be more convinced that life is unfair to him, even if you do have more

pain.

My guess is that helping him come to terms with your problem is not going

to help him much. He needs to come to terms with his problem, and diabetes

can be a bad one.

notan

December 29, 2003

Hey Duncan,

If we're taking probiotics, prebiotics (Inulin), and antifungals, how long do

you think it should take until we start to see a difference? Days, weeks,

months? I know it will vary from person to person, but even a ball park time

frame would be helpful. (We take approx. 3 doses of each per day.)

Chris

December 29, 2003

Hi,

One thing you really need to do if you are passing actual worms with

enemas is to get some actual testing for parasites done to determine

what you have and then treat them.

TK

> yeah i need advice.

> i fight with candida for a few years now and i still didn't find

any

> solution. i've tried a lot of things - gse ,pau'd arco , colloidal

> silver, psyllium & bentonite shakes , aloa vera, liver flushes,

> probiotics, veggie-meat diet and much more.. and i still have got

> this problem. veggie-meat diet is very boring and hard in some way.

> I would like to eat some carbos (a lot of people on candida diet

eat

> whole grains brown rice etc. - i just can't - brain fog is coming

> back after such a meal) I just don't know what to do now. I heard

> that parasites cause candida - yeah i passed few white long worms

> with enema - so i made my own zapper - it doesn't help much.

Someone

> said that liver flushes clean candida - i did a lot of them - over

> 10 maybe even 15 and still hopeless. Now i read about thyroid ,

> kortizol levels yeah maybe these are problems in my case .I'm

> thinking about tests but i live only with my mother and i just

don't

> want her to spent more money for my problems.

>

> Duncan Crow i see u r much into candida and u know much about it.

> What should i do? Please suggest me something.

December 29, 2003

>

> yeah i need advice.

> i fight with candida for a few years now and i still didn't find any

> solution. i've tried a lot of things - gse ,pau'd arco , colloidal silver,

> psyllium & bentonite shakes , aloa vera, liver flushes, probiotics,

> veggie-meat diet and much more.. and i still have got this problem.

What I see right away that you're missing is prebiotic such as inulin to

feed the probiotic.

Without it, you'd need a whole lot of probtiotic, some 15 to 30 capsules

a day to assert biological control. And even then, it may not establish

on the bowel lining, as they need the correct feed for that.

Hope this is what you needed.

Duncan Crow

December 30, 2003

Hi Patty,

Are you saying that inulin is helping you more than threelac? I was

gonna try threelac but maybe inulin would be a better investment.

I'm low on cash so i can't try everything, gotta be picky.

Thanks

> I have been using inulin for over a month. I have stopped

threelac. I can

> now add more foods to my diet without negative consequences. The

holidays

> were OK for me (I was able to enjoy many holiday treats).

>

> -Patty

>

January 13, 2004

DEAR GRACE,I'VE HAD THOSE KIND OF SEIZURES AND ALOT OF THE TIME IF MY BUDDY THAT

I USE TO WORK WITH DIDN'T NOTICE THERE'S NO TELLING HOW LONG THEY WOULD'VE

LASTED.WHEN I WAS YOUNG I WAS TAKING LIQUID MEDICINE BUT AFTER SO LONG IT DIDN'T

WORK AS WELL AS PILLS. I USE TO HAVE SEIZURES THAT WOULD START THEN SUDDENLY

STOP WHEN I GRABBED MY JAWS BECAUSE WHEN I HAD THEM MY JAWS WOULD LOCK AND I

WOULD GO OUT OF CONTROL. GRACE,IF I COULD AFFORD TO SEND YOU NU PLUS AND ALL THE

SUNRIDER PRODUCTS I'VE TAKEN I'D SEND THEM TO YOU FREE BUT,I DON'T GET VERY MUCH

MONEY AND BARELY MAKE IT BECAUSE IT'S THE ONLY THING THAT'S HELPPED ME.I'VE GONE

NOW 7 MONTHS WITHOUT A SEIZURE FROM TAKING SUNRIDER. IF YOU BECOME A PREFERED

COSTOMER IT JUST $10.00 THEN YOU GET DISCOUNTS ON EVERYTHING LOOK AT

www.completeself.com IT WILL TELL YOU EVERYTHING YOU NEED TO KNOW.GRACE,I'D LOVE

FOR MICHELLE TO QUIT HAVING SEIZURES TOO SHE WILL ALWAYS BE IN MY PRAYERS

EVERYDAY I LIVE. LOVE,MARK

" Grace H. " <foxyfox8@...> wrote:Hello Everyone,

I have a few questions and concerns. After I said many many times that I

was not going to raise my daughter's meds because of the problem we had

with the last increase, I finally let my neuro convince me because I

truly want to be seizure free, but now I'm still not sure it's a

good idea and here's why. was on 75mg of Trileptal pill form

and the neuro told me to put her on liquid form of Trileptal because it

would be easier to increase the dose if we needed to without having to

worry about the side effects. Well, Friday night we began this new

journey where I gave 60mg at night and 30mg in the morning.

She's tolerated it fine so far, but is still having simple partials only

now she seems to be snaping out of them faster. Anyway, I noticed

yesterday and more so today that I have to repeat myself at least twice

before she answers me because she's like in a daydreaming state and when

I ask her what I've said, most of the time she tells me and once in a

while she doesn't. She's always been a sort of daydreamer and I know

it's daydreaming because I was always able to get a response from her

when she was doing so and right away, but this seems different. My

questions are, how long does it normally take to adjust to a med, and how

different is a med from pill form to liquid form? How long should I give

before I decide to change it back or make other changes. Has this ever

happened to anyone here? Any comments or advice will be greatly

appreciated.

Grace

________________________________________________________________

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January 13, 2004

Dear Grace,

Trileptal is linked to cognitive problems. No doubt there are many

people on anti-convulsants who also think they are having various

other " disorders, " when what they are experiencing is impairment from

the drugs. When I used AEDs, it was sort of like giving me a shot of

whiskey (also a central nervous system depressant) every four hours,

then trying to treat me for my " mental problems. " A search on the

google search engine under " trileptal " " cognitive, " turned up 1500

results. It is a legitimate concern. A search under " trileptal " " side

effects " brought up 7,600 links. There's a bunch of links below about

the trileptal. If you are looking at non-drug options, you may want

to contact Dr. Edelberg's Whole Health Medical Group. They may be

able to help you find resources near you.

http://www.wholehealthmd.com/hc/resourceareas_view/1,1438,550,00.html

It is so difficult to know what to do in these situations. There is

usually no one sure way, no " right " decision. We just have to do our

best and modify our choices as we go along, knowing we are doing the

best we can with the information and resources we have to work with.

I hope the information is useful.

Zoe

" Most Common Adverse Events in All Clinical Studies

Adjunctive Therapy/Monotherapy in Adults Previously Treated with

other AEDs: The most commonly observed (³5%) adverse experiences

seen

in association with Trileptal and substantially more frequent than in

placebo treated patients were: dizziness, somnolence, diplopia,

fatigue, nausea, vomiting, ataxia, abnormal vision, abdominal pain,

tremor, dyspepsia, abnormal gait.

Approximately 23% of these 1537 adult patients discontinued treatment

because of an adverse experience. The adverse experiences most

commonly associated with discontinuation were: dizziness (6.4%),

diplopia (5.9%), ataxia (5.2%), vomiting (5.1%), nausea (4.9%),

somnolence (3.8%), headache (2.9%), fatigue (2.1%), abnormal vision

(2.1%), tremor (1.8%), abnormal gait (1.7%), rash (1.4%),

hyponatremia (1.0%).

Adjunctive Therapy/Monotherapy in Pediatric Patients Previously

Treated with other AEDs: The most commonly observed (³5%) adverse

experiences seen in association with Trileptal in these patients were

similar to those seen in adults.

Approximately 11% of these 456 pediatric patients discontinued

treatment because of an adverse experience. The adverse experiences

most commonly associated with discontinuation were: somnolence

(2.4%), vomiting (2.0%), ataxia (1.8%), diplopia (1.3%), dizziness

(1.3%), fatigue (1.1%), nystagmus (1.1%).

Full report:

http://www.rxlist.com/cgi/generic3/oxcarbazepine_ad.htm

Report on nystagmus (could the vertogo from the nystagmus perhaps

worsen her seizures?):

http://www.eyeassociates.com/images/understanding_nystagmus.htm

One of the less common side effects is hyponatremia (low sodium):

" Hyponatremia: An abnormally low concentration of sodium in the

blood. Too little sodium can cause cells to malfunction, and

extremely low sodium can be fatal.

The symptoms of hyponatremia include bloating and puffiness in the

face and fingers, nausea, vomiting, muscle weakness, headache and

disorientation. "

Full report:

http://www.medterms.com/script/main/art.asp?articlekey=3859 & rd=1

Hyponatremia

.... Other symptoms include seizures and irrational and inappropriate

behavior. In

people with acute, severe hyponatremia, there will be signs of

brainstem ...

http://www.mcrrc.org/archive/rundown_features/ hs_hyponatremia.html

I took dilantin and tegretol years ago and now have osteoporosis.

Trileptal is a calcium antagonist. What I didn't know then is these

drugs interfere with how vitamin D is metabolized, in turn affecting

the function of the parathyroid gland which regulates calcium in the

body. I stopped taking dilantin around 1985, and my bones are still

wasting away, no matter how well I eat.

NSE : Information on epilepsy: Women and epilepsy

.... carbamazepine (Tegretol); oxcarbazepine (Trileptal);

phenobarbitone; phenytoin ... excessive

loss of calcium from the ... process, known as osteoporosis, causes

thinning ...

http://www.epilepsynse.org.uk/pages/info/leaflets/women.cfm

Yet, the Doctors' Guide says it is safe in this 2000 bulletin:

http://www.pslgroup.com/dg/1D7ACA.htm

Trileptal Warnings, Precautions, Pregnancy, Nursing, Abuse ...

.... trial evaluating 2400 mg/day of Trileptal, no patients in either

treatment group

discontinued double-blind treatment because of cognitive adverse

events ...

http://www.rxlist.com/cgi/generic3/oxcarbazepine_wcp.htm - 43k -

Cached - Similar pages

[PDF] TRILEPTAL ‰ DESCRIPTION CLINICAL PHARMACOLOGY

File Format: PDF/Adobe Acrobat - View as HTML

.... PRECAUTIONS Cognitive/Neuropsychiatric Adverse Events Use of

Trileptal has

been associated with central nervous system related adverse

events. ...

http://www.fda.gov/cder/foi/label/2000/21014lbl.pdf - Similar pages

[PDF] Trileptal

File Format: PDF/Adobe Acrobat

.... PRECAUTIONS Cognitive/Neuropsychiatric Adverse Events Use of

Trileptal ® (oxcarbazepine)

has been associated with central nervous system related adverse

events ...

http://www.pharma.us.novartis.com/product/ pi/pdf/trileptal.pdf -

Similar pages

Trileptal in bipolar disorder

.... Trileptal also seems to cause side effects less often than

Tegretol ... the dose nears

the top of what people can tolerate, dizziness and cognitive

slowing/dulling ...

http://www.psycheducation.org/depression/meds/trileptal.htm - 10k -

Cached - Similar pages

January 14, 2004

Mark,

Thanks for the info and I will check the website. has been on

the liquid since Friday night so I will keep and eye on her and see what

happens by this Friday night and If I'm not happy with what I see, I will

put her back on the pill form. Thanks for keeping in your

prayers. God Bless!

Grace

On Tue, 13 Jan 2004 18:34:27 -0800 (PST) mark hogue

<markhogue2002@...> writes:

> DEAR GRACE,I'VE HAD THOSE KIND OF SEIZURES AND ALOT OF THE TIME IF MY

> BUDDY THAT I USE TO WORK WITH DIDN'T NOTICE THERE'S NO TELLING HOW

> LONG THEY WOULD'VE LASTED.WHEN I WAS YOUNG I WAS TAKING LIQUID

> MEDICINE BUT AFTER SO LONG IT DIDN'T WORK AS WELL AS PILLS. I USE TO

> HAVE SEIZURES THAT WOULD START THEN SUDDENLY STOP WHEN I GRABBED MY

> JAWS BECAUSE WHEN I HAD THEM MY JAWS WOULD LOCK AND I WOULD GO OUT

> OF CONTROL. GRACE,IF I COULD AFFORD TO SEND YOU NU PLUS AND ALL THE

> SUNRIDER PRODUCTS I'VE TAKEN I'D SEND THEM TO YOU FREE BUT,I DON'T

> GET VERY MUCH MONEY AND BARELY MAKE IT BECAUSE IT'S THE ONLY THING

> THAT'S HELPPED ME.I'VE GONE NOW 7 MONTHS WITHOUT A SEIZURE FROM

> TAKING SUNRIDER. IF YOU BECOME A PREFERED COSTOMER IT JUST $10.00

> THEN YOU GET DISCOUNTS ON EVERYTHING LOOK AT www.completeself.com IT

> WILL TELL YOU EVERYTHING YOU NEED TO KNOW.GRACE,I'D LOVE FOR

> MICHELLE TO QUIT HAVING SEIZURES TOO SHE WILL ALWAYS BE IN MY

> PRAYERS EVERYDAY I LIVE. LOVE,MARK

>

> " Grace H. " <foxyfox8@...> wrote:Hello Everyone,

>

> I have a few questions and concerns. After I said many many times

> that I

> was not going to raise my daughter's meds because of the problem we

> had

> with the last increase, I finally let my neuro convince me because

> I

> truly want to be seizure free, but now I'm still not sure

> it's a

> good idea and here's why. was on 75mg of Trileptal pill

> form

> and the neuro told me to put her on liquid form of Trileptal because

> it

> would be easier to increase the dose if we needed to without having

> to

> worry about the side effects. Well, Friday night we began this new

> journey where I gave 60mg at night and 30mg in the morning.

>

> She's tolerated it fine so far, but is still having simple partials

> only

> now she seems to be snaping out of them faster. Anyway, I noticed

> yesterday and more so today that I have to repeat myself at least

> twice

> before she answers me because she's like in a daydreaming state and

> when

> I ask her what I've said, most of the time she tells me and once in

> a

> while she doesn't. She's always been a sort of daydreamer and I

> know

> it's daydreaming because I was always able to get a response from

> her

> when she was doing so and right away, but this seems different. My

> questions are, how long does it normally take to adjust to a med,

> and how

> different is a med from pill form to liquid form? How long should I

> give

> before I decide to change it back or make other changes. Has this

> ever

> happened to anyone here? Any comments or advice will be greatly

> appreciated.

>

> Grace

>

> ________________________________________________________________

> The best thing to hit the internet in years - Juno SpeedBand!

> Surf the web up to FIVE TIMES FASTER!

> Only $14.95/ month - visit www.juno.com to sign up today!

>

January 14, 2004

Zoe,

Thank you very much for the information. is on a very low dose

of Trileptal. Our neuro put her on it because he believes in trying to

treat epilepsy with just one med and according to him, Trileptal is one

of the very few meds with few undesirable side effects. He also said

that the drug company has to put down every side effect, but this doesn't

mean that you will experience all of them, some people experience some of

them and some people don't experience any of them. I will keep an eye on

and if I have to make changes, I will do that. Thanks again

Zoe!

Grace

On Wed, 14 Jan 2004 06:01:47 -0000 " zoe88025 " <Zll51@...> writes:

> Dear Grace,

> Trileptal is linked to cognitive problems. No doubt there are many

>

> people on anti-convulsants who also think they are having various

> other " disorders, " when what they are experiencing is impairment

> from

> the drugs. When I used AEDs, it was sort of like giving me a shot of

>

> whiskey (also a central nervous system depressant) every four hours,

>

> then trying to treat me for my " mental problems. " A search on the

> google search engine under " trileptal " " cognitive, " turned up 1500

> results. It is a legitimate concern. A search under " trileptal "

> " side

> effects " brought up 7,600 links. There's a bunch of links below

> about

> the trileptal. If you are looking at non-drug options, you may want

>

> to contact Dr. Edelberg's Whole Health Medical Group. They may be

> able to help you find resources near you.

> http://www.wholehealthmd.com/hc/resourceareas_view/1,1438,550,00.html

> It is so difficult to know what to do in these situations. There is

>

> usually no one sure way, no " right " decision. We just have to do our

>

> best and modify our choices as we go along, knowing we are doing the

>

> best we can with the information and resources we have to work with.

>

> I hope the information is useful.

> Zoe

>

> " Most Common Adverse Events in All Clinical Studies

>

> Adjunctive Therapy/Monotherapy in Adults Previously Treated with

> other AEDs: The most commonly observed (³5%) adverse experiences

> seen

> in association with Trileptal and substantially more frequent than

> in

> placebo treated patients were: dizziness, somnolence, diplopia,

> fatigue, nausea, vomiting, ataxia, abnormal vision, abdominal pain,

>

> tremor, dyspepsia, abnormal gait.

>

> Approximately 23% of these 1537 adult patients discontinued

> treatment

> because of an adverse experience. The adverse experiences most

> commonly associated with discontinuation were: dizziness (6.4%),

> diplopia (5.9%), ataxia (5.2%), vomiting (5.1%), nausea (4.9%),

> somnolence (3.8%), headache (2.9%), fatigue (2.1%), abnormal vision

>

> (2.1%), tremor (1.8%), abnormal gait (1.7%), rash (1.4%),

> hyponatremia (1.0%).

>

> Adjunctive Therapy/Monotherapy in Pediatric Patients Previously

> Treated with other AEDs: The most commonly observed (³5%) adverse

> experiences seen in association with Trileptal in these patients

> were

> similar to those seen in adults.

> Approximately 11% of these 456 pediatric patients discontinued

> treatment because of an adverse experience. The adverse experiences

>

> most commonly associated with discontinuation were: somnolence

> (2.4%), vomiting (2.0%), ataxia (1.8%), diplopia (1.3%), dizziness

> (1.3%), fatigue (1.1%), nystagmus (1.1%).

> Full report:

> http://www.rxlist.com/cgi/generic3/oxcarbazepine_ad.htm

> Report on nystagmus (could the vertogo from the nystagmus perhaps

> worsen her seizures?):

> http://www.eyeassociates.com/images/understanding_nystagmus.htm

> One of the less common side effects is hyponatremia (low sodium):

> " Hyponatremia: An abnormally low concentration of sodium in the

> blood. Too little sodium can cause cells to malfunction, and

> extremely low sodium can be fatal.

> The symptoms of hyponatremia include bloating and puffiness in the

> face and fingers, nausea, vomiting, muscle weakness, headache and

> disorientation. "

> Full report:

> http://www.medterms.com/script/main/art.asp?articlekey=3859 & rd=1

>

> Hyponatremia

> ... Other symptoms include seizures and irrational and inappropriate

>

> behavior. In

> people with acute, severe hyponatremia, there will be signs of

> brainstem ...

> http://www.mcrrc.org/archive/rundown_features/ hs_hyponatremia.html

>

> I took dilantin and tegretol years ago and now have osteoporosis.

> Trileptal is a calcium antagonist. What I didn't know then is these

>

> drugs interfere with how vitamin D is metabolized, in turn affecting

>

> the function of the parathyroid gland which regulates calcium in the

>

> body. I stopped taking dilantin around 1985, and my bones are still

>

> wasting away, no matter how well I eat.

>

> NSE : Information on epilepsy: Women and epilepsy

> ... carbamazepine (Tegretol); oxcarbazepine (Trileptal);

> phenobarbitone; phenytoin ... excessive

> loss of calcium from the ... process, known as osteoporosis, causes

>

> thinning ...

> http://www.epilepsynse.org.uk/pages/info/leaflets/women.cfm

>

> Yet, the Doctors' Guide says it is safe in this 2000 bulletin:

> http://www.pslgroup.com/dg/1D7ACA.htm

>

> Trileptal Warnings, Precautions, Pregnancy, Nursing, Abuse ...

> ... trial evaluating 2400 mg/day of Trileptal, no patients in either

>

> treatment group

> discontinued double-blind treatment because of cognitive adverse

> events ...

> http://www.rxlist.com/cgi/generic3/oxcarbazepine_wcp.htm - 43k -

> Cached - Similar pages

>

> [PDF] TRILEPTAL ‰ DESCRIPTION CLINICAL PHARMACOLOGY

> File Format: PDF/Adobe Acrobat - View as HTML

> ... PRECAUTIONS Cognitive/Neuropsychiatric Adverse Events Use of

> Trileptal has

> been associated with central nervous system related adverse

> events. ...

> http://www.fda.gov/cder/foi/label/2000/21014lbl.pdf - Similar pages

>

> [PDF] Trileptal

> File Format: PDF/Adobe Acrobat

> ... PRECAUTIONS Cognitive/Neuropsychiatric Adverse Events Use of

> Trileptal ® (oxcarbazepine)

> has been associated with central nervous system related adverse

> events ...

> http://www.pharma.us.novartis.com/product/ pi/pdf/trileptal.pdf -

> Similar pages

>

> Trileptal in bipolar disorder

> ... Trileptal also seems to cause side effects less often than

> Tegretol ... the dose nears

> the top of what people can tolerate, dizziness and cognitive

> slowing/dulling ...

> http://www.psycheducation.org/depression/meds/trileptal.htm - 10k -

>

> Cached - Similar pages

>

January 14, 2004

GRACE, YOUR WELCOME!!!!!! I KNOW WHAT YOUR GOING THROUGH JUST LIKE A YEAR AGO,

I WOULDN'T LEAVE MY HOUSE ALONE FOR ANY REASON BECAUSE I NEVER KNEW WHEN A

SEIZURE WOULD HIT ME.NOW,I'LL GO PLACES ON THE BUS BY MYSELF.JUST PRAY THAT GOD

PLACES HEALING HANDS UPON MICHELLE IN JESUS' NAME I PRAY AMEN!!!!!!!!!!!!!!!!

" Grace H. " <foxyfox8@...> wrote: